I Have Craniofacial Dyssynostosis

A Craniofacial Dyssynostosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Craniofacial Dyssynostosis. You're not alone.

    My Daughter

    my daughter is coming up 3yrs old and has craniofacial dyssynostosis with short stature and would love to hear from other parents, family members or sufferers(i know there are only a few) to chat for support. We are under the care of great ormond street london  many thanks
    nessienoo8482 nessienoo8482
    26-30
    Aug 31, 2008
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