I Have Craniofrontonasal Dysplasia

A Craniofrontonasal Dysplasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Craniofrontonasal Dysplasia. You're not alone.


    y daughter was born march 14, 2013 with bilateral coronal craniosynostosis. She is now undergoing genetic testing for cranio frontonasal dysplasia. I would love to touchbase with others who may have experienced similar diagnosis.
    lisastone lisastone
    2 Responses Jun 27, 2013
More Stories