A Craniofrontonasal Dysplasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Craniofrontonasal Dysplasia. You're not alone.
y daughter was born march 14, 2013 with bilateral coronal craniosynostosis. She is now undergoing genetic testing for cranio frontonasal dysplasia.
I would love to touchbase with others who may have experienced similar diagnosis.