I Have Crest Syndrome And Need Help

Personal Stories, Advice, and Support 6 People

    Is there anyone out there

    who has scleroderma of their organs? I now have it in my esophagus and lungs. Is this a death certainty. All I read is no cure and short life span. 3-5 yrs Is this how it really is? I am newly diagnosed so haven't been given any treatment for it as of yet. Is there a treatment...
    jojosig jojosig
    46-50, F
    Jan 28, 2016

    I'm So Frustrated With The Water And Pain

    Hi, I'm in need of anyone's help or suggestions. I have systemic (limited) scleroderma, fibromyalgia, and several other autoimmune disorders. I'm fairly knowledgable about most of it, it being the symptoms (tons), prognosis (no cure at this time), and related issues of CREST...
    debicatlover debicatlover
    51-55, F
    1 Response May 20, 2012
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