I Have Crohns Disease

Personal Stories, Advice, and Support 70 People

    Think They Know

    I hate it when people tell me crohns disease cant kill you.....well tell that to my gravestone cos it can and does kill.... My body is giving up on me no matter what i do or the meds i take things keep going wrong and i dont think its going to last much longer
    james1bkw james1bkw
    36-40, M
    2 Responses Nov 23, 2013


    I am 23 living with crohns, I was diagnosed 2 years ago
    mslizzie mslizzie
    22-25, F
    3 Responses Jun 3, 2008

    Crohns and My Life

    HI  I would just like to start off by saying that I have been diagnosed with Crohns disease since 2002.  So I now what most of you are going through as a result of pain and discomfort.  When I got diagnosed with Crohns disease I wondered why me...
    Stripee Stripee
    2 Responses Aug 21, 2009

    Crohn's For 28 Years

    I was first diagnosed with Crohn's when I was 8 years old.  I had a summer of misery while doctors tried to figure out what I had.  I couldn't keep any food down, I was weak and didn't want to move off the couch.  Finally, my doctor suggest that I go to Rainbow Baby and...
    irishwen irishwen
    36-40, F
    1 Response Apr 3, 2012

    22 Years Of Crohns

    I was diagnosed with Crohns when I was 19.  It's the most painful thing I have ever dealt with in my life.  I can still remember it took them months to diagnose.  The doctors office would call me up and say the test results came back fine and they couldn't find anything wrong...
    SP41 SP41
    41-45, F
    Oct 8, 2011

    Being diagnosed with something no one

    understands how painful it is, is truly hard. My sophomore year I ended up home schooling because this disease discovering it & now I'm a senior. Till this day it's a battle, for past two weeks I been non stop vomiting. My friends don't know what say, my boyfriend dump me...
    MGx3 MGx3
    18-21, F
    4 Responses Jan 5, 2014

    Public Restrooms And Crohn's Disease

    I have decided to speak about a very uncomfortable topic.  An experience in which anyone who has Crohn's disease has gone through.  That experience is being uncomfortable in public restrooms .  I know that since I have Crohn's disease I Hate going in public restrooms.  I hate...
    def0120 def0120
    22-25, F
    5 Responses Nov 17, 2011

    when you first see me,

    you will think of me just like any other 14 year old girl. A dancer, friend, student and teenager just having fun. But if you really knew me, you would know that the last 2 years and counting haven't been all that great. in the summer of 2014 I had bad stomach pains and other...
    arianaw arianaw
    13-15, F
    1 Response Nov 21, 2015

    Usually not a day-to-day issue

    for me. But when an infection flares up, watch out. Starting to feel one coming. Dammit.
    Sicarium Sicarium
    36-40, M
    Apr 27, 2015

    I've had crohns since I was 15.

    It slowly became a bigger issue in my lay 20's. I ended up with 3 weeks in the hospital, an iliostomy and they removed a significant amount of small intestine. 6 weeks later I had my iliostomy reversed and I have been living crohns free and healthy for 3 years. There is hope...
    deleted deleted
    1 Response Feb 4

    Me too, I was diagnosed

    when I was 9 (now I'm 14). I've been on the SCD diet to treat it since I was diagnosed and it's kept me in remission for most of that time. When I have a flair I can get back on track by sticking to my diet more (cause I cheat a lot)...I've never done and meds and it's worked...
    ellajade ellajade
    16-17, F
    Feb 18, 2015

    My Crohns Expereince

    I was diagnosed in 2001. After years of complaining of pain to my Dr. and him telling me I was a hypocondriact,...the pain became so unbearable they figure my appendix had burst. Coming from a small town I was flown to the nearest city to be operated on. A 20 min surgery had...
    MomMe MomMe
    1 Response Jan 2, 2009

    It started in December

    and we are still trying to figure out what's wrong but my doctor said it's a non-classic cause of Crohn's disease. I have ulcers in my stomach, intestines and a couple other places. We figure that out with a colonoscopy, scope and MRI. I started meds but it's not helping the...
    deleted deleted
    May 7, 2015

    HI I am with a company of all natural products

    for various medical conditions, one product , probiotic that helps for "gut" health. If you are interested in learning more, message me, I would be happy to share more information. Thanks
    carolgem carolgem
    46-50, F
    May 26, 2015

    I don't have Crohn's disease.

    But I am truly sorry that any of you have to go through it. My boyfriend has had it since a child. However he has been in remission for most of the time I have known him. He has a flare up now, so I came here in hopes of understanding it better. I love my bf dearly and it hurts...
    Sunshinemms Sunshinemms
    22-25, F
    2 Responses Jul 30, 2015

    I Have Croh'ns Disease

    I was finally diagnosed in october 2008, after years of pain. The doctors tessted for everything else except crohn's. By the time they found it , it was bad. In february I had a foot of my small intestine removed. It got infected and I had to go back to the hospital. It...
    m3dic8d m3dic8d
    36-40, F
    Jul 5, 2009

    I am 43 year old male.

    I have had digestive issues most of my adult life. On June 1, I go in to the GI doctor to see what is wrong with me. Why have I waited so long. To be honest, other than the urgent needs to use the restroom after eating, I never really knew about Crohn's until just a few...
    dynamic71 dynamic71
    41-45, M
    Apr 2, 2015

    I was diagnosed a few months ago

    and I had a really hard time dealing with it and I still do. I feel like no one cares that I have this disease because it's not cancer, so I won't die. They don't understand that I lost a part of myself, and this disease will follow me all my life. I just wish I had some support...
    Haley145 Haley145
    16-17, F
    3 Responses Jul 4, 2015

    I Have Croh'ns Disease

    I was finally diagnosed in october 2008, after years of pain. The doctors tessted for everything else except crohn's. By the time they found it , it was bad. In february I had a foot of my small intestine removed. It got infected and I had to go back to the hospital. It...
    m3dic8d m3dic8d
    36-40, F
    Jul 5, 2009

    I was diagnosed when I was young.

    I'm lucky because I don't remember life with out Crohns. My whole life has been dealing with this burden. My first memory of Crohns is not being able to walk. Sandra carrying to the bathroom. I was bawling. At the time I thought it was like the flu that it would go away and I...
    jroe0211 jroe0211
    22-25, F
    3 Responses Apr 29, 2014

    This Is So Hard...

    I have Crohn's Disease.  It is a very painful and embarrassing condition.  Crohn's, I am still learning about it, just found out about a month ago.  It's very hard to talk about it, it's hard to find people who understand and don't think you are a freak. People...
    beaglewoman beaglewoman
    26-30, F
    4 Responses Jun 4, 2008

    I Suffered With Crohns Pains For 25 Years!

    I wish someone had convinced me that getting surgery would be the best thing in the world! I would have don-it sooner, like 25 years ago! Please! If you are suffering to much to bear, go for the surgery. I am experiencing life all over again and my appetite is like never before...
    romanoderoma romanoderoma
    66-70, M
    Aug 24, 2013

    I know what you're going through

    and I'm so sorry that you are. When I read this group and the postings in it, I cried the entire time because your experiences are eerily close to mine. I was apparently screaming and crying in pain all the time as a kid and at the age of just 3 I was diagnosed with Ulcerative...
    smgreen1703 smgreen1703
    22-25, F
    Aug 24, 2014
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