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I Have Crohn's Disease

Personal Stories, Advice, and Support 372 People

    I have a autoimmune chronic illness called

    Crohn's Disease. It's been really hard for me to adjust, because I was diagnosed this year. It feels like a part of me is gone replaced by a shadow that will follow me for the rest of my life. There is no known cure for Crohn's and I will have to take medicine to control...
    deleted deleted 26-30 1 Response Jul 13

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    Two Years And Counting

    What to say and how to start? I have had chrons or shall I say diagnosed with chrons for two years now and to say it has been difficult would be an understatement.crippling pain vomiting wait loss and the fear of not knowing what is happening to you and the feeling that you could...
    corialanus corialanus 26-30, M 1 Response Oct 23, 2012

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    No Guts No Glory

    All power is of God. What is not of Him, has no power to do anything. - Unknown When people cannot stand me, because they do not understand me... God will stand by me. - Unknown While Crohn's disease itself is not terminal, the complications often result in death. Keeping it...
    mnsfrey mnsfrey 31-35, F 1 Response Nov 23, 2013

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    Hi everyone. I was just up late

    and decided to see if I could find a site where people with Crohn's disease could support each other. I stumbled on to this site, and here I am. The short version is that this disease has pretty much brought my life to a standstill. None of the treatments I have tried...
    Jonathan0909 Jonathan0909 31-35, M 3 Responses Jan 23, 2014

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    Still Going Strong!

    I'm 26 and have been living with Crohn's for over 12 years. I've had my ups and downs, I've had surgery, I've changed my diet (vegetarian now), I've had those days where being doubled over feels much better than being vertical... but I'm still going and I'm not letting up! I...
    mpd09 mpd09 26-30, M 5 Responses Jun 26, 2007

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    Sometimes it seems like a cure

    for illness may be accessed by analyzing our thought patterns and beliefs and in turn how we act accordingly. As if the bodies immune cells are reacting to our own thought and subconscious.
    phizgar phizgar 26-30, M 2 Responses Jun 11

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    Dear Crohn's Disease,

    I wish you would stop hurting me. You make me feel weak, and prevent me from participating in activities. I want to be stronger than you but it's hard. You almost took my life. You've turned my life upside down. I just wish you'd go away. But you won't. It's impossible right now...
    SpaceGlitch SpaceGlitch 16-17, F 1 Response May 3

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    I wont tell my life story here

    because probaly nobody cares about it. All I want to tell u is if there is never give up. I've been ill for 3 months and I never gave up on anything. Crohn's disease sucks, but there are even worse diseases.
    Olibolliez Olibolliez 16-17, M 1 Response Jan 22, 2014

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    Im 13 almost 14 in 9th grade

    and I've had Crohns for 4 years now. But I've only been diagnosed with it about 4 months ago. I've been suffering with it without knowing that it was Crohns, only a while ago my parents decided to take me to a doctor. It's not that they don't care it's just that I haven't spoken...
    Poptart020 Poptart020 13-15, F 1 Response Jun 30

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    I hate it so much, it's bull crap (pun

    intended). So I was diagnosed at age 14, I had to get a colonoscopy to get diagnosed. For the past two years my medicine hasn't been working... until now. At the moment I take Remicade, I'm sure most of you have heard of it. The medicine works miracles! In a matter of two months...
    thatoneAustinguy thatoneAustinguy 18-21, M Jun 22

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    I Don't Think Ppl Get This

    I was just diagnosed with this 3 years ago. Although I had years and years of unknown problems with these guts of mine I "guess" its good to know I didn't cause this and there's nothing I did to make it happen to my body turning on itself. My blessing in this is I work from...
    Luvmiman Luvmiman 51-55, F Oct 22, 2013

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    It Worked For Me...

    Ok so...all of us are familiar with taking pills. Some of us, unfortunately have taken more pills in a month than some people take their whole lives! We all have different and unique ways of finding out we had Crohn's. Some of us early, and some of us late in life. I found out...
    Spyderz Spyderz 26-30, M 3 Responses Oct 15, 2008

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    I was diagnosed when i was 3

    and when i was 10 i got really sick and stayed in the hospital for over a year, it was hard but now im on a new medication that really helps.
    Hmaster69 Hmaster69 18-21, M 1 Response Nov 19, 2014

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    Iv had Crohn's pretty much my entire life.

    I had my whole large bowel out 3 yrs ago, Stoma for a year (thank god it was reversible) but since then I have suffered agonising fatigue. The only way I can describe this is like having the flu all of the time! But doctors just say it's my Crohn's. I cry most mornings before...
    strawberryblonde89 strawberryblonde89 26-30, F 1 Response Feb 9

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    Just Been Diagnosed With Crohns, As Yet Had No Advice ..... Help!!!!

    After couple of years misery just got confirmation. Have had very little advice as yet and just dont know how to cope.  Seems I am an odd one here, I am 60 and only just starting on this miserable journey ..... sighs
    annepatty annepatty 61-65, F 3 Responses Nov 2, 2013

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    i remember how happy I was

    when I had my first real poop after being diagnosed with crohns.
    helreb helreb 18-21, F 3 Responses Jul 9, 2014

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    When Do You Start The 'Normal' Life?

    I was diagnosed with crohns 3 months ago. When does life get better? Im 18. College kicked me out because I kept having to take time off, the army told me, my disease wouldn't let me join.
    chelseabda chelseabda 18-21, F 1 Response Nov 21, 2013

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    Wish

    I wish my family understand what its like having chorghns disease its pain full and idont like waking up thowing up
    deleted deleted 26-30 2 Responses Oct 12, 2013

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    My Misery Has Ended

    No one can understand the horrors of Crohn's disease unless they have experienced them. After months of horrible pains, I was diagnosed with Crohn's disease in January of 2004 when I was 30 years old. The disease dominated my life for over two years. It is bad enough being...
    Brightblueeyes Brightblueeyes 31-35, F 16 Responses Jan 3, 2008

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    I was diagnosed with Crohn's Disease

    when I was 9, somewhere around 2005-07. I had the worst case you've ever seen, but luckily don't have a colostomy/colon resection, I'm thankful for every day I get, if anyone has any questions, please contact me!
    ilovemckayla ilovemckayla 26-30, F 6 Responses Nov 3, 2014

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    Not me but my late father.

    As a boy, my father had "delicate" health. After his freshman year in college, he checked into the Mayo Clinic, which removed about a meter of his small intestine. Recovering from major abdominal surgery made him miss a year of school. A few years later, he flunked a job...
    consa consa 61-65, M 1 Response Jan 26, 2014

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    My Journey So Far

    Ever since i can remember i always had chest and stomach pains as a child i was constantly going to the doctors but it wasnt till i was 15 that the doctors took me seriously after i had lost 4 stone over a couple of months, it was then that i was diagnosed with crohns. The years...
    james1bkw james1bkw 36-40, M 1 Response Nov 12, 2013

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    Crohns Disease -- Looking For Help!

    I don't have crohn's disease, but my 12 yr old daughter does.  The problem with Crohns Disease is it is not visible and everyone who see's my daughter always comments on how great she looks. Meanwhile, she is dying on the inside. She is a very strong girl and can maintain...
    thundar thundar 41-45, F 9 Responses Jan 9, 2008

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    8 Years Later And It's Finally Recognized

    Hi Im Mel :) New here! When I first got my period at 14, I cried. My mother told me to suck it up because all women get it and its natural, but that wasn't why I cried - the pain was unbearable. For two years, I dealt with the pain in silence, not letting my mother see me cry...
    melmelmel1 melmelmel1 22-25, F 4 Responses Oct 22, 2012

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    I have been dealing with this

    since i was a little girl who was told I was lactose intolerant, turned out lactose was just a trigger food. I muddled through symptoms until the birth of my third child in 2011 when I got so sick I ended up in the hospital for 3 weeks. Finally got a dr. who diagnosed me with...
    Brooke1981 Brooke1981 31-35, F 5 Responses Jan 25, 2014

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    I have crohn's disease .

    I was diagnosed in 2003 , I would say I'm a very strong person with all the pain I go through . but it seems ever since I had my daughter 7 years ago I've just been really sick . No meds are working for me , I can't eat , I'm always running to the restroom . I'm always in so...
    queenbee03 queenbee03 22-25, F 2 Responses Dec 10, 2014

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    This is my first post on EP

    but looking forward to sharing with others. I have Crohn's disease and life has never been easy. I'm a glass half full kind of guy so even on bad days I'm still positive. Sometimes I don't think people understand how strong I am and that I'm okay with what's going on. Yes it's...
    BrianIBD BrianIBD 31-35, M 2 Responses Nov 12, 2014

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    I was diagnosed at 9 (now I'm 14).

    It can be really hard but what makes it soo much easier for me is camp oasis (summer camp for people with Crohn's and colitis)...ITS SO AMAZING and everybody understands:) <3
    ellajade ellajade 13-15, F Feb 21

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    I've decided I will not let this disease win.

    I've had several surgeries and am no longer able to be employed. Crohn's affected my teeth and now I have dentures. I am lucky to have a very understanding family.
    bathroomqueen bathroomqueen 41-45, F 2 Responses Feb 23, 2014

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    I was diagnosed with Crohn's

    when I was 10 (In 2001), and now I'm 23. (I'll be 24 in June) It's weird knowing you've had disease for over half your life and will continue to have it. Being diagnosed at such a young age left me with some trauma I think considering all the tests I went through. I don't think...
    Catherdra Catherdra 22-25, F 1 Response Mar 23

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    Chrohn's is the worst!

    ! These have been the roughest 2 years of my life so far. Words can not explain my frustration with this. All I want to know is what the hell can I eat without having a dang flare up?? I mean you can't eat fresh veggies, you can't eat fresh fruits w/ skin (which is most...
    deleted deleted 26-30 6 Responses Feb 27

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    Crohn's; It's Like A War Inside Yourself.

    I was diagnosed at 16, but suffered for so long beforehand. A 15 year old girl, trying to fit in, make new friends, but was too shy to do so. I just got a job, and school was full on. I wasn't dealing with the symptoms very well, and yet I kept them to myself for such a long time...
    spacewoman12 spacewoman12 18-21, F 1 Response Oct 28, 2013

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    Because of my Crohn's,

    eating is incredibly difficult sometimes because I know after I eat whatever it is I'm going to end up on the toilet in a few minutes. It's especially frustrating when paired with negative body image. That itself comes and goes with me feeling super attractive one day and then...
    Catherdra Catherdra 22-25, F Jun 29

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    My Crohn's Story

    There is a show on TV that starts with now, then immediately goes to where the story began. So, first the now… I work about 10 to 11 hours a day. When I am not working, I go home and sleep. I live across the street from work, and it seems the longer I am...
    ESO145 ESO145 46-50, M 3 Responses Feb 7, 2009

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    My flare ups are becoming unbearable.

    The burning and cramping pain and vomiting have brought me to tears in my more recent flare ups and once I get over one flare up I eat something and trigger another one. And I REALLY love pizza! But it's a food that often causes me a lot of problems. It seems, though, that even...
    skyblue12 skyblue12 18-21, F 3 Responses Dec 25, 2013

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    I Want

    I wish the pain went away I want to die it hurts so much I can't do this anymore
    deleted deleted 26-30 1 Response Oct 14, 2013

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    The Process

    I was chasing my dreams, but I tripped over reality and busted my head on the truth.
    mnsfrey mnsfrey 31-35, F 1 Response Nov 25, 2013

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    I was diagnosed with Crohn's in June of 2014.

    I am having one of those days where I feel like the disease is leading me around by the nose. I try to keep my optimism but I really miss not having a condition hang over my head, you know what I mean?
    craftymom24 craftymom24 41-45, F 2 Responses Oct 12, 2014

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    Crohns And Trying To Be A Mum

    Im 31years old and have three children and my partner has two i was diagnosed with chrons in 2009 after years of pain and being told i had ibs i was in hospital with dvt as chrons makes your blood sticky i get blood clots just another thing to go with the pain i suffer daily...
    liza80 liza80 31-35, F 4 Responses Apr 20, 2011

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    Life

    Sometimes life just kicks our ***, but that's when the friends that became family, step it up and prove yet again why they already became family. <3 I smile because I am blessed with God's love, a wonderful Husband, an amazing family, & wonderful friends. I am grateful to see...
    mnsfrey mnsfrey 31-35, F Nov 29, 2013

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    I was diagnosed with Crohn's in 2009,

    after being incredibly sick for months. I didn't know what was wrong with me, and I felt like doctors, and sometimes even my parents, weren't listening to me and taking me seriously when I insisted something was very wrong. I had a resection in 2009 and have been on Remicade...
    lh113 lh113 26-30, F 5 Responses May 12, 2014

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    Crohn's & I

    It was 2003 when I was diagnosed with crohns. September maybe 28th or somewhere along there. I was allways in pain. Day and night. I lived it, breathed it, slept with it. I was scared but I never let it show. When the doctor told me what I had I was confused because I had...
    attraction attraction 22-25, F 7 Responses Jun 12, 2009

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