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I Have Crohn's Disease

Personal Stories, Advice, and Support 355 People

    I'm 17 And Just Trying To Live

    I was diagnosed with Crohn's disease when I was 9 years old and already struggling with Rheumatoid arthritis. That was actually how it got discovered, by going in for my swollen ankles. I've been on an extremely crazy rollercoaster with this disease and it's all but broken me. I...
    yoshimalo yoshimalo 18-21, F 1 Response Sep 24, 2013

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    Crohns And Trying To Be A Mum

    Im 31years old and have three children and my partner has two i was diagnosed with chrons in 2009 after years of pain and being told i had ibs i was in hospital with dvt as chrons makes your blood sticky i get blood clots just another thing to go with the pain i suffer daily...
    liza80 liza80 31-35, F 4 Responses Apr 20, 2011

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    My Misery Has Ended

    No one can understand the horrors of Crohn's disease unless they have experienced them. After months of horrible pains, I was diagnosed with Crohn's disease in January of 2004 when I was 30 years old. The disease dominated my life for over two years. It is bad enough being...
    Brightblueeyes Brightblueeyes 31-35, F 16 Responses Jan 3, 2008

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    The Path To Diagnosis Could Be A Long One, Fight For Yourself

    I've been diagnosed with Crohn's now since my late 20's (i'm 41). I had a toddler and a young child at home, and a rocky marriage. I remember feeling sick at my stomach all the time. I had trouble with nerves and stomach aches all my life, but this was different, everything I...
    julzi1 julzi1 41-45 1 Response Jun 3, 2013

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    Share My Experince With Have Crohns Disease As Well

    HI I would just like to say that I am putting down this information about my personal experince with living with Crohns disease.  All the info I am going to talk in this post is completely true. I was dignosed with Crohns disease in 2002.  I am...
    Stripee Stripee 31-35 1 Response Sep 7, 2009

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    My Life With Crohn's Disease.

    Well im 16 and i got dignosed with crohns disease this year(may). It started in january when i was starting to prepare for my final exams year 11 and i kept getting this terrible pains, that bad id cry sometimes because the amount of pain i was in. i didnt think much of it as...
    Charleylove123 Charleylove123 16-17 1 Response Oct 27, 2012

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    Crohn's, the Mystery Disease?

    I was diagnosed when I was 15...ahhh 15...what I'd give to be that again. It was a rather rare instance, that is extremely uncommon for a pre-diagnosis person. I was actually put into a wheelchair from some of the auto-immune properties that comes with Crohn's. I was unable to...
    Spyderz Spyderz 26-30, M 2 Responses Aug 3, 2008

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    In Remission

    I've been suffering since I was maybe 15? I was poked and prodded for 3 years, subjected to multiple tests until I left home, moved to another city.  The day of my move my stomach pains were worse than ever. My now husband, insisted that I go the emergency because this...
    mwhite26 mwhite26 22-25, F 2 Responses Aug 14, 2008

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    Just Been Diagnosed With Crohns, As Yet Had No Advice ..... Help!!!!

    After couple of years misery just got confirmation. Have had very little advice as yet and just dont know how to cope.  Seems I am an odd one here, I am 60 and only just starting on this miserable journey ..... sighs
    annepatty annepatty 61-65, F 3 Responses Nov 2, 2013

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    Crohns Disease -- Looking For Help!

    I don't have crohn's disease, but my 12 yr old daughter does.  The problem with Crohns Disease is it is not visible and everyone who see's my daughter always comments on how great she looks. Meanwhile, she is dying on the inside. She is a very strong girl and can maintain...
    thundar thundar 41-45, F 9 Responses Jan 9, 2008

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    Crohns disease questions

    I got diagnosed with crohns disease when i was 11. My mum would stress to me how serious is was but i always think my mums a bit of a drama queen and i never really listened, growing up i would always forget to take my tablets which caused me to get worse. However ive been well...
    beaumont123 beaumont123 18-21, F 3 Responses Jan 5, 2013

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    The Process

    I was chasing my dreams, but I tripped over reality and busted my head on the truth.
    mnsfrey mnsfrey 31-35, F 1 Response Nov 25, 2013

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    It Worked For Me...

    Ok so...all of us are familiar with taking pills. Some of us, unfortunately have taken more pills in a month than some people take their whole lives! We all have different and unique ways of finding out we had Crohn's. Some of us early, and some of us late in life. I found out...
    Spyderz Spyderz 26-30, M 3 Responses Oct 15, 2008

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    Crohns Disease

    I have had Crohn's Disease since I was 13 years old, I am now 37.  I was told I would never have children, I have two children.  I use to live in Surrey, my consultant would  only keep me on medication while down there.  When I moved to Suffolk, the consultant...
    Tracy37 Tracy37 36-40 3 Responses May 1, 2008

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    Fed Up With Being In Pain!

    I've had chrons for 3years now and I've had 10 operations the first time the doctor said to me if I had left it any longer I may not of survived. U see my husband was working in Iraq and I was too busy with my two young disabled children to realise how sick I was. But my hospital...
    liannemziss liannemziss 31-35, F Oct 10, 2013

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    I wont tell my life story here

    because probaly nobody cares about it. All I want to tell u is if there is never give up. I've been ill for 3 months and I never gave up on anything. Crohn's disease sucks, but there are even worse diseases.
    Olibolliez Olibolliez 16-17, M 1 Response Jan 22

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    Crohn's & I

    It was 2003 when I was diagnosed with crohns. September maybe 28th or somewhere along there. I was allways in pain. Day and night. I lived it, breathed it, slept with it. I was scared but I never let it show. When the doctor told me what I had I was confused because I had...
    attraction attraction 22-25, F 7 Responses Jun 12, 2009

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    Can't Afford Treatments

    I am a 41 year old mother of 7 (youngest is 7 weeks old). I have had Crohn's symptoms since I hit puberty and have been bleeding ever since. I was diagnosed clinically when I was 23 due to a peri-rectal abcess that needed to be drained in an emergency and they did a biopsy. I...
    muzie5 muzie5 36-40 Sep 21, 2013

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    I was diagnosed with Crohn's in 2009,

    after being incredibly sick for months. I didn't know what was wrong with me, and I felt like doctors, and sometimes even my parents, weren't listening to me and taking me seriously when I insisted something was very wrong. I had a resection in 2009 and have been on Remicade...
    lh113 lh113 26-30, F 2 Responses May 12

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    My Crohns Story: 17 Year Old Male Had Crohns Over 2 Years Form Australia

    My name is Chris and this is my story. Most of my life I was fairly healthy a little bit over weight but healthy but all this changed on day. I was home on a weekend lazing around my house it was starting to become fairly hot outside so it was a nice day I could say. I noticed I...
    crohns004 crohns004 16-17 6 Responses Dec 23, 2012

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    Crohn's Disease Ulcerative Colitis --------road To Health

    What’s Meridian? According to the traditional Chinese medicine, as the regulating and control system of the functions of human body, meridians serve as the pathways for the circulation of blood and Chi (life energy) and connection between the internal organs with the surface...
    huohu huohu 31-35, M Oct 7, 2013

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    Staying Strong

    Hi all, like all of you I have crohns. It all started when I was 14 years old I was having severe abdo pain and was suffering from constipation and severe nausea and vomiting. After dropping from 65kgs to 39 kgs from blatantly refusing food my parents decided this wasn't just...
    June094 June094 18-21, F Sep 26, 2013

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    My flare ups are becoming unbearable.

    The burning and cramping pain and vomiting have brought me to tears in my more recent flare ups and once I get over one flare up I eat something and trigger another one. And I REALLY love pizza! But it's a food that often causes me a lot of problems. It seems, though, that even...
    skyblue12 skyblue12 18-21, F 3 Responses Dec 25, 2013

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    8 Years Later And It's Finally Recognized

    Hi Im Mel :) New here! When I first got my period at 14, I cried. My mother told me to suck it up because all women get it and its natural, but that wasn't why I cried - the pain was unbearable. For two years, I dealt with the pain in silence, not letting my mother see me cry...
    melmelmel1 melmelmel1 22-25, F 4 Responses Oct 22, 2012

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    Series Of Unfortunate Events

    Where to begin? I suppose I will begin at the beginning! Seems to be the best place to start.../sarcasm.  But for the sake of time, and to avoid telling my life story, I will start when things seemed to take a turn for the worst.Growing up in Augusta in the beginning, was for...
    katiekins77 katiekins77 22-25, F 5 Responses Jan 13, 2011

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    My Journey So Far

    Ever since i can remember i always had chest and stomach pains as a child i was constantly going to the doctors but it wasnt till i was 15 that the doctors took me seriously after i had lost 4 stone over a couple of months, it was then that i was diagnosed with crohns. The years...
    james1bkw james1bkw 36-40, M 1 Response Nov 12, 2013

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    Caring For

    Hi everyone, when i finally got my bf to tell me what his illness was - my first thoughts where that this is probably bigger than i can know without doing lots of research. he so happy with me we shared lots of hugs - i didnt want to let him go. i dont know how severe it is yet...
    spiderrgurrl spiderrgurrl 26-30 5 Responses Nov 14, 2008

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    My Crohn's Story

    There is a show on TV that starts with now, then immediately goes to where the story began. So, first the now… I work about 10 to 11 hours a day. When I am not working, I go home and sleep. I live across the street from work, and it seems the longer I am...
    ESO145 ESO145 46-50, M 3 Responses Feb 7, 2009

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    I've decided I will not let this disease win.

    I've had several surgeries and am no longer able to be employed. Crohn's affected my teeth and now I have dentures. I am lucky to have a very understanding family.
    bathroomqueen bathroomqueen 36-40, F 2 Responses Feb 23

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    New Meds

    My doctor wants to start me on humira. Just wondering if anyone has any insight on this medication. ty
    xokittyox143 xokittyox143 26-30, F 1 Response Sep 4, 2013

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    God Has A Plan...

    Hi my name is Cindy. I am 52 years old. I am single with two grown daughters and a beautiful grand daughter. I was diagnosed with Crohn's when I was 26 years old. It was a horrible year. I lost bother my grand parents, got married and went through nine months of pure HELL with...
    cindynkansas cindynkansas 51-55 1 Response May 29, 2011

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    Crohn's As A Teen

    It started last year when I was a freshman in highschool, everything was going great but I was starting to get crampy and bloated all the time. I thought it was just from the birth control pills I just recently started taking, but it wasent going away and was getting worse. After...
    Hmatthys Hmatthys 16-17, F Aug 30, 2013

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    Crohns Disease Picture Project A Must Read

    Take a moment to stop by www.cdpictureproject.com But first below........ This is a must read and I guarantee you will be glad you took the time to do so. How many people ( including family and friends) that you know have no idea what you "really" deal with on a daily basis? I...
    Annsar Annsar 56-60, F 1 Response Aug 9, 2013

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    Something New, Something That Always Was There...

    Hello everyone! I'm a 26 years old woman and recently was diagnosed with Crohn's disease. I always be healthy but low weight. I didn't think it was serious because I feel great, I eat nutritious and my life was quite normal. But after a summer vacations, eating some different...
    Alyson87 Alyson87 26-30, F May 10, 2013

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    Not me but my late father.

    As a boy, my father had "delicate" health. After his freshman year in college, he checked into the Mayo Clinic, which removed about a meter of his small intestine. Recovering from major abdominal surgery made him miss a year of school. A few years later, he flunked a job...
    consa consa 61-65, M 1 Response Jan 26

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    Hi

    Hi im Celeste im looking for a sister or bother im a loveing careing persone email me :)
    deleted deleted 26-30 Oct 12, 2013

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    Start Of A Better Life

    Figured beings I was reading all these stories that I would tell my own too. I started having Crohn's symptoms at the age of 13. Went through 3 different doctors over Iowa. After 2-3 years they finally came up with Crohn's. Went through numerous treatments. Everything from pills...
    meier160 meier160 22-25, M 1 Response Oct 7, 2013

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    i remember how happy I was

    when I had my first real poop after being diagnosed with crohns.
    helreb helreb 18-21, F 1 Response Jul 9

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    I have been dealing with this

    since i was a little girl who was told I was lactose intolerant, turned out lactose was just a trigger food. I muddled through symptoms until the birth of my third child in 2011 when I got so sick I ended up in the hospital for 3 weeks. Finally got a dr. who diagnosed me with...
    Brooke1981 Brooke1981 31-35, F 4 Responses Jan 25

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    I've had symptoms of Crohn's Disease

    since I was 13. Having gone through four doctors and two negative colonoscopies (among other tests), it was kind of a relief when I was finally diagnosed with Crohn's of the small intestine via CT Enterography. The amount of impact Crohn's has had on my life is immeasurable; my...
    Maeliss Maeliss 18-21, F Apr 7

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    Life

    Sometimes life just kicks our ***, but that's when the friends that became family, step it up and prove yet again why they already became family. <3 I smile because I am blessed with God's love, a wonderful Husband, an amazing family, & wonderful friends. I am grateful to see...
    mnsfrey mnsfrey 31-35, F Nov 29, 2013

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    Hi everyone. I was just up late

    and decided to see if I could find a site where people with Crohn's disease could support each other. I stumbled on to this site, and here I am. The short version is that this disease has pretty much brought my life to a standstill. None of the treatments I have tried...
    Jonathan0909 Jonathan0909 31-35, M 3 Responses Jan 23

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    I Don't Think Ppl Get This

    I was just diagnosed with this 3 years ago. Although I had years and years of unknown problems with these guts of mine I "guess" its good to know I didn't cause this and there's nothing I did to make it happen to my body turning on itself. My blessing in this is I work from...
    Luvmiman Luvmiman 51-55, F Oct 22, 2013

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    Never Giving Up

    I was diagnosed with Crohn's Colitis when I was 19,  I am now 24 and still struggling to get it under control.  I have a supportive husband, and family.  I have been considerably better then before since starting a new medication, for 7 months now that  I self...
    ddr030505 ddr030505 22-25 4 Responses May 29, 2008

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    When Do You Start The 'Normal' Life?

    I was diagnosed with crohns 3 months ago. When does life get better? Im 18. College kicked me out because I kept having to take time off, the army told me, my disease wouldn't let me join.
    chelseabda chelseabda 18-21, F 1 Response Nov 21, 2013

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    Two Years And Counting

    What to say and how to start? I have had chrons or shall I say diagnosed with chrons for two years now and to say it has been difficult would be an understatement.crippling pain vomiting wait loss and the fear of not knowing what is happening to you and the feeling that you could...
    corialanus corialanus 26-30, M 1 Response Oct 23, 2012

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    Wish

    I wish my family understand what its like having chorghns disease its pain full and idont like waking up thowing up
    deleted deleted 26-30 2 Responses Oct 12, 2013

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    Crohn's; It's Like A War Inside Yourself.

    I was diagnosed at 16, but suffered for so long beforehand. A 15 year old girl, trying to fit in, make new friends, but was too shy to do so. I just got a job, and school was full on. I wasn't dealing with the symptoms very well, and yet I kept them to myself for such a long time...
    spacewoman12 spacewoman12 18-21, F 1 Response Oct 28, 2013

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    I Want

    I wish the pain went away I want to die it hurts so much I can't do this anymore
    deleted deleted 26-30 2 Responses Oct 14, 2013

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    Crohns Took Away The Best Year Of My Life.

    How do you imagine your 15 birthday? A house party? Some close friends for a sleep over? A laugh? I didnt know how I expected it, but I didnt expect to spend it in hospital, nor the next two weeks. I feel like I've lost control of my life. Crohns has taken away everything, my...
    izzwizz izzwizz 16-17, F 1 Response Sep 26, 2012

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    Still Going Strong!

    I'm 26 and have been living with Crohn's for over 12 years. I've had my ups and downs, I've had surgery, I've changed my diet (vegetarian now), I've had those days where being doubled over feels much better than being vertical... but I'm still going and I'm not letting up! I...
    mpd09 mpd09 26-30, M 5 Responses Jun 26, 2007

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    No Guts No Glory

    All power is of God. What is not of Him, has no power to do anything. - Unknown When people cannot stand me, because they do not understand me... God will stand by me. - Unknown While Crohn's disease itself is not terminal, the complications often result in death. Keeping it...
    mnsfrey mnsfrey 31-35, F 1 Response Nov 23, 2013

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    My Gift

    My fellow crohn mates I just want to pray for all of us. It's a day to day struggle but you must know that you are blessed & if ever you feel broken just PRAY for GOD is the only glue that can fix our pain. When you sick never forget that your a gift that no disease can spoil...
    Mrs318 Mrs318 36-40, F 2 Responses Aug 14, 2013

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