I Have Cushing's Disease

Personal Stories, Advice, and Support 59 People

    Long Term Affects

    Almost 10 years ago I was diagnosed with Cushing's diseas. All the test were conclusive. I had transphenodial surgery which was unsuccesfull and so was the gamma knife radiation that follow surgery. In order to be cured of cushing's, I had to have a Bilateral Adren. I have since...
    lspriggs lspriggs
    1 Response Dec 19, 2011

    What's Your Cure?

    I have suffered Cushing's disease for 20 years now and have every single symptom listed for it. My endocrinologists are still trialling various medications - I now take 6 different tablets a day. Just wondering if there are any "cured" people out there, and if so, what medication...
    pmoroney pmoroney
    5 Responses Oct 13, 2011

    I am 21 years old. The symptoms of Cushing has

    started around December 2012 but its been just lately that my doctor found out that I have hypercortisolism. Unfortunately, I haven't been treated yet because he still needs to find out the reason for my cortisol overproduction. They've been running many tests on me and took out...
    clippyclappy clippyclappy
    22-25, F
    1 Response Feb 18, 2014

    Confused About Swelling

    I'm newly diagnosed and have experienced a lot of bodily swelling, anyone else with this symptom?
    helplala helplala
    12 Responses Oct 21, 2009

    Can Anyone Relate To Me?

    Im 26 years old and about 10 months ago I found out I have a tumor in my pituitary gland, also "possible Cushing's disease." I found out I had a tumor because we thought it might be my thyroid causing problems with me because my mother had thyroid cancer. Anyway, I have been...
    Jahonor Jahonor
    26-30, F
    4 Responses Jan 12, 2013

    I Told You There Was Something Wrong With Me

    I was always the skinny kid and had boundless energy right into my 40's, then I felt like I hit a brick wall...I had already dealt with an overactive thyroid ( which made me look like someone on fast forward).. I was feeling tired and bloated all the time and after numerous...
    feefee65 feefee65
    51-55, F
    1 Response Apr 27, 2013

    My New Endocrinologist Has Ordered Two Kinds Of Mris...

    ... And I am so relieved, because finally there's a physical reason and "a good enough answer" to the question: "What's wrong with me?" And, also, this answers the question that I keep getting from other people: "What's wrong with you?" ... Or, put nicer (haha): "What's going on...
    schm schm
    31-35, F
    1 Response Jun 21, 2013

    I Was Diagnosed With Cushing's Syndrome & Adrenal Tumor At 24.

    Hello, I have been diagnosed with this curse called Cushing's syndrome at 24 this year. I am pretty sure it has affected me years prior because I always had irregular periods and some light physical symptoms however I was jolly, social, healthy and pretty thin although I always...
    yoshigirl12 yoshigirl12
    3 Responses Sep 23, 2013

    I was diagnosed at the end of September,

    2013. My tumor (pituitary) was removed on October 7th. I'm only 18 years old, but my doctors tell me that I've had this for a while. My tumor was about the size of a large marble, and it was aggressive. I have to have extra MRIs done about every three months. It all started...
    Sydney95 Sydney95
    18-21, F
    6 Responses Jan 7, 2014

    Can anyone explain what the signs

    and symptoms were for them?
    Jackson2033 Jackson2033
    18-21, F
    2 Responses Apr 5, 2014

    Hi Thier

    I found out I have cushionings about 1 yr ago it took about 4 yrs to diagnose my Tumor is on my adrenal gland and I have been suffering so many symptoms but they keep telling me it's to much of an Invasive surgery that they want to wait till it gets worse. I don't know how much...
    10 Responses Jan 20, 2013

    I started having severe migraines at the end of

    2008, but I was dealing with it. In June of 2009 I ended up at the hospital I couldn't take it anymore. They did blood work and an x-ray. They told me to see my doctor, she just gave me pills. They didn't help much all I wanted to do is sleep the pain away. In March of 2010 I...
    rascal1974 rascal1974
    41-45, F
    7 Responses Apr 17, 2014


    Cushing's Syndrome (also called hypercortisolism or hyperadrenocorticism) is an endocrine disorder caused by high levels of cortisol in the blood from a variety of causes, including a pituitary adenoma (known as Cushing's disease), adrenal hyperplasia or neoplasia, ectopic...
    iFortiTude iFortiTude
    2 Responses Aug 11, 2008

    Anyone like to share their experience post

    transsphenoidal surgery? I'm at day 10.
    DeeKay2169 DeeKay2169
    31-35, F
    May 10, 2015

    Fight The Fight For Medical Treatment For Cushing's Syndrome/disease

    hi!  Cushing's syndrome patient here.It's unbelievable a complete nightmare that never ends. I'm outraged and even if I didn't tell you this story I would be outraged if someone else told me a story like mine and the medical community did nothing to help us.  Half of us are...
    hugsnlove hugsnlove
    41-45, F
    7 Responses Jan 2, 2011

    I Am Not Diagnosed Yet But My GP Thinks That I Fit The Bill.

    I went to my GP last week and we were just shooting the bleep when he said he started hearing fireworks go off in his brain in regards to the symptoms we were discussing. Earlier this year I had been diagnosed with Diabetes Mellitus, Hypertension, and Hypothyroidism and we were...
    shawnnajanes shawnnajanes
    36-40, F
    2 Responses Aug 25, 2013

    I think I might have Cushing's Disease.

    Looking for someone who can explain what they went through with this.
    Jackson2033 Jackson2033
    18-21, F
    1 Response Apr 4, 2014

    Recent Diagnosis

    I just recently heard about Cushing's last week. I originally went to the doctor thinking I had a really bad sinus infection due to the horrible headaches. After examining my body and previous health history my doctor decided that he wanted to test me. I'm still waiting on the...
    sarah121490 sarah121490
    1 Response Apr 23, 2012
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