I Have Cyclic Vomiting Syndrome

A Cyclic Vomiting Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cyclic Vomiting Syndrome. You're not alone. 185 People

    Hey All, I'm a 28 year old female with what I

    think is CVS. Every few months I am awoken in the middle of the night with the worst stomach ache in the centre of my abdomen and I know whats coming. Sometimes I have to go to the washroom but the ache just grows and grows. The nausea seems to start creeping up as well until it...
    starjj starjj
    26-30, F
    3 Responses Dec 7, 2014

    Thc Helps

    I have had cvs for 3 years now I was in and out of er room for a yr and half 3-5 times a week to get treatment because the yuma regional medical center said only way to get treated was to come in and get ivs and meds everytime, now I learned that was just for money..but for the...
    headblock headblock
    26-30
    1 Response Jun 11, 2013
    Doomflower Doomflower
    31-35, F
    2 Responses Dec 23, 2015

    My daughter had it since she was a baby.

    By age seven she was waking up once or twice a week at 4:00 am and throwing up for several hours. She also had stomach pain and wouldn't eat much for several days. I was beside myself with worry. I found the diagnosis of CVS online and set to work researching a cure. I found out...
    Mishaeads1 Mishaeads1
    46-50, F
    Dec 16, 2015

    My Daughter Has Cvs

    My daughter has had CVS since 18 months old...she is now almost 8! Life iis difficult and really not sure what to do! She has missed SO much school, her anexity has gone from zero to 100. We have been to different doctors and had so many different tests too! I wish there is a...
    familyof4 familyof4
    31-35
    2 Responses Nov 15, 2012

    Can someone tell me what cvs is

    and explain what happens when you u have it
    CelticDragon561 CelticDragon561
    51-55, M
    2 Responses Aug 15, 2015

    My Story

    For the longest time no one could understand why I'd have episodes of vomiting that lasted for weeks.  People were puzzled why I couldn't eat, drink, had terrible stomach pain or remain conscious for long periods of time when tests showed that nothing was wrong with me. ...
    deleted deleted
    26-30
    9 Responses Jul 28, 2009

    I'm 21 years old and was just diagnosed.

    Went to the ER twice because I was too dehydrated and couldn't keep anything down. Smoking marajuana helps calm me and stops my attacks, but I read online that it may be making it worse. Does anyone have any experience with self medicating?
    lizzard731 lizzard731
    22-25, F
    1 Response Mar 27

    Omg i have never heard

    that syndrome Vomiting is my phobia
    fauxlady fauxlady
    22-25, F
    Jun 14, 2015

    and am glad there are others out there

    that have it too, because i'm not crazy.(At least not half as crazy as they were making me out to be)But...I would never, ever wish this horrible and debilitating illness on anyone, not even my worse enemy! I was diagnosed maybe a couple years ago, and it was an extremely long...
    katiebabydoll13 katiebabydoll13
    26-30, F
    1 Response Jun 27, 2015

    I was diagnosed with CVS about 6 months ago.

    My Dr didn't know what it was and I still don't know if they think something else is wrong still. But I have been having "episodes" since I was a kid. And at this point, I have have my appendix and gallbladder removed. I also have been diagnosed with GERD. Im just sooo tired of...
    katieinky katieinky
    26-30, F
    2 Responses Dec 30, 2013

    Cyclic Vomiting

    My name is Noah Szwagulak i am 11 years old , i was diagnosed with C.V.S when i was born. It was terrible ,i was in the E.R every month cat scans after rmi's i had to get surgery. luckily i grew out of it when i was seven . after that i was a sickly child . i get the stomach flue...
    Noahslurpy Noahslurpy
    16-17, M
    3 Responses Sep 23, 2013

    You Don't Have A Tumor.

    I have CVS.  Before I was told this, my local Dr. was convinced I was having severe hangovers every month for 4 months straight.  Then it was my female parts, just going through the change.  I knew there was something seriously wrong, but could get nobody to listen.  Finally...
    sedona311 sedona311
    41-45
    2 Responses Jun 1, 2012

    I vomit all the time

    but it's as a result of gastric bypass. I can't hold food down. It's been 12 yrs.
    dd2726 dd2726
    46-50, F
    1 Response Mar 3, 2014

    What's Working For Me.

    I was diagnosed with cyclic vomiting syndrome in 2011. I would have episodes about 6 weeks apart always early in the morning lasting 4 to 5 days. I am 27 years old. going to get treatment in the ER I was repeatedly told that it was a psychological thing or something to do with...
    blessedme86 blessedme86
    26-30, F
    1 Response Sep 5, 2013

    I have lived the last 5 years of my life in

    absolute fear. Besides the marathon-length migraines, imagine never being able to go out to dinner, take in a movie, or even go on vacation without the fear of having an attack and facing the possibility that you may just have to suffer in pain for endless hours because an ER...
    22ndRow 22ndRow
    46-50, F
    2 Responses Feb 12, 2014

    Not sure what to think,

    20 years old, for almost two years, I will wake up in the early hours with this intense pain, sweating, and know that I need to get to the toilet. I will sit there and wait , the pain builds up until it becomes so intense that I have to vomit until there is nothing left. It will...
    Ashlearyan Ashlearyan
    22-25, F
    1 Response Mar 7, 2015

    Do I Have Cvs?

    I'm 14, and for 3 maybe 4 years I have had violent episodes of throwing up about once a month. It normally starts at night, after 7pm and lasts for 3-7 days. I throw up 6-9 times a day with headaches, stomachaches, terrible nausea, chills, shakes, and low fevers. DO you think I...
    devonrose2000 devonrose2000
    13-15
    5 Responses Dec 4, 2012

    Cvs Serious Pain

    I've had CVS for about 2 years now, it was a very sudden and shocking illness that would have me up every night throwing up until I was lethargic on the bathroom floor. Everyone thought I was bullemic, though I would never do that to myself. As of right now, I'm in the nausea...
    Caeles Caeles
    18-21
    5 Responses Aug 14, 2010

    Im Happy To Have An Answer

    for years ive been dealing with cvs.docors couldn't find anything on tests ,strarted sending me to specialists more $ no answers.....now i know im not alone...i feel for everyone that suffers from any dieses .thanks 2 everyone that helps me and the others when we have an episode...
    maryrose27 maryrose27
    26-30, F
    1 Response Aug 8, 2012

    I have Superior Mesenteric Artery Syndrome

    that went undiagnosed for ten years. It's very rare, and causes abdominal pain, vomiting, and weight loss. I don't know much about CVS, but maybe ask your doctor about the possibility that you have SMA Syndrome? There are tests and surgeries that can help.
    ISavedMyself ISavedMyself
    26-30, F
    1 Response Jan 29, 2014

    I Hate My Cvs Filled Life

    I am 19 and I have had cvs for about a year and a half now. I am usually sick in bed most days and the days that I do feel good enough to get out of bed ,which is hardly ever, im out of energy from being sick and never do anything. It keeps me home, the only places I go to is...
    Bogarnpwnsface Bogarnpwnsface
    18-21, M
    7 Responses Sep 20, 2011

    I Suffer From Cvs....

    I am a 36 year old mother of three children, but I have been suffering with CVS for ten years now.   Two of my children have never seen me healthy, but they are wonderful.   I have had ever test done numerous times with no answers.  I also have been on numerous meds, but...
    missj816 missj816
    36-40, F
    7 Responses May 6, 2011

    Have My 2 Year Old Got Cvs?

    Hi my daughter is nearly 3 and every time she gets too excited she gags to make herself sick and is sick everywhere but only once? It seems to happen on mornings just as shes going to pre-school, this also happens when she eats certain foods such as mashed potato, raisins, cheese...
    xhannahxwx xhannahxwx
    26-30, F
    2 Responses Oct 2, 2013

    Shocking To Hear Your Stories..!

    HI.. WELL M 20YRS OLD I'VE HAD CVS FOR 3 YRS NOW I LUCKILY GOT DIAGNOSED QUICKLY LIKE 6 MONTHS INTO MY DISEASE. BUT I JUST COULDNT UNDERSTANT HOW IT CAME ABOUT.. ALL OF SUDDEN PAINFUL STOMACH ACHES THROWING.. IN THE ER CONSTANTLY EVERYDAY... FOR REAL... ALL TEST NEGATIVE FOR...
    uniqua413 uniqua413
    18-21, F
    11 Responses Nov 12, 2009

    A description of today's episode: I went home

    from work vomiting today. This time I was actually driving and puking at one point on my way home. Thanks to 'Murica for plastic baggies. It happens almost once a month. I hate myself for it. Even though I can only influence the cycles... I wasn't thinking! My monthly is due...
    Doomflower Doomflower
    31-35, F
    3 Responses Apr 16

    Trying Not To Let CVS Define My Life.

    Hi guys. I am a 32 year old married woman and mother living with a bad case of ibs and cvs. The CVS first presented itself in college, with many random trips to the ER after nights full of throwing up for seemingly no reason at all. That first happened in 2000, and it wasn't...
    CaliCVS CaliCVS
    31-35, F
    2 Responses Jun 25, 2013

    I have had CVS since I was 12 years old

    and countless doctors kept saying it would go away as I got older. Unfortunately ten years later it hasn't gone away. A few months ago I chose to go through more extensive testing than before because it doesn't appear to be getting better. The tests revealed I have IBS and...
    rcook8 rcook8
    22-25, F
    2 Responses Jan 20, 2014

    CVS Im 18 Living W It , My Helpful Tips &Amp; Story. Read For Ur Own Benefit!!!

    I've had cvs for over 6 years now, started when I first got my period. It seems to be connected or triggered by mesntrual cycle for me, as it occurrs like clock work whenever I'm ovulating. I must say the most difficult thing about this condition is the time it takes for doctors...
    cyclicallyscrewednlost cyclicallyscrewednlost
    18-21, F
    4 Responses Jun 27, 2013

    I don't have episodes

    as much as I used to but now it's just 24/7 burning and pain. Will this ever stop?
    Cvsgirl1222 Cvsgirl1222
    18-21, F
    Sep 9, 2014

    My attacks started 6yrs ago,

    woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I have fibro also diagnosed at the same time and was told that fibro was the cause. I can't cope at times as the attacks are...
    SoothingSoozie SoothingSoozie
    41-45, F
    1 Response Apr 19

    My sister has recently started to have severe

    vomiting that last up to 3-4 days, for two months. It correlates with her period. This time it was so bad she had to go to the ER. Does she have CVS?
    MissNinaBee MissNinaBee
    31-35, F
    Sep 26, 2014

    Saturday this started.

    It is Tuesday. While I have stopped heaving since early Monday morning I still feel queasy. It's like I could get to the point of puking at any moment but I don't.
    Doomflower Doomflower
    31-35, F
    1 Response Mar 1

    Growing Up With Cvs

    I have been sick since I was born and I'm 24 years old now. It began by throwing up formula as an infant and gradually got worse until the age of 4 years old when I started seeing many doctors and having many tests done. I was in the hospital a lot when I was younger including...
    EquestrainAddict EquestrainAddict
    22-25, F
    3 Responses Jun 4, 2012

    I don't know what else you call being nauseous

    and vomiting daily for weeks at a time with weeks of no symptoms in between. Last night it was so bad I went to the ER. I couldn't stand or walk by myself. I was c9nfused. It was the worst ever. I told the doc who was discharging me, "Phenergan works best for me PO." He is a...
    Doomflower Doomflower
    31-35, F
    3 Responses Feb 28

    On March 18th 2013, it was my thirteenth

    birthday and I had maybe ten friends over. Before I'd gotten to the junk food, the cake or even dinner, my very first episode of abdominal migraine and CVS began. I couldn't keep anything down, I was throwing up for days. It ended up that I couldn't even drink water and had to...
    jennamorrison15 jennamorrison15
    16-17
    Jun 14, 2015

    Is Depression Normal With Cvs???

    Hi I have nad CVS since i was 12 but wasnt diagnosed until last year. I'm 16 now and I've developed serious depression because of the fear of when my next episode will be. Its caused me to act different. My friends think im lying and they dont believe me how scary this is but i...
    kandykorn kandykorn
    16-17
    9 Responses Jun 6, 2012

    Every couple of weeks I vomit atleast

    once every ten to twenty minutes for no less than a week at a time. Its totally debilitating. Any one else? I Would like to talk to someone who experiences similar.
    salcla salcla
    26-30, F
    1 Response Mar 27, 2015

    I have suffered with CVS my entire life,

    from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are not guaranteed. 1.) Eat pancakes - To this very day I hate pancakes, because as a child whenever I had an episode I would eat pancakes...
    Platinumryan Platinumryan
    18-21
    2 Responses Sep 4, 2014

    Is Cvs Possible Without Actual Vomiting?

    My 5 y.o. was being monitored by her pediatrician b/c of episodes of extreme abdominal pain and vomiting every 3 weeks or so for 6 months. She almost always complained of a headache shortly before the real symptoms started. Once were referred to the pedi-gastroenerologist she...
    jangelle jangelle
    31-35, F
    6 Responses Nov 10, 2013

    Cvs And Anxiety?

    Hey everyone!  First let me say I hope this finds everyone somewhat healthy, and episode free!  Second I want to tell everyone thank you again for all of your support, and your kind thoughts and words.  It means more than I could ever say!   Now down to business.  Like so...
    missj816 missj816
    36-40, F
    5 Responses May 12, 2011

    My 9yr. Old Daughter Has Cyclic Vomiting Syndrome

    My 9 yr. old has had frequent vomiting from the time she was a small baby. I would take her to doctors and they would just say it was frequent viruses. last year she started to complain of her eyes "going blank" and would develop a migraine aprox.15 min after. I took her to an...
    EshelmanSchwitz EshelmanSchwitz
    41-45, F
    1 Response Aug 23, 2013

    Hi I am Penny and have CVS.

    I've had it now for 2 plus years and am having a hard time dealing with it. It is so difficult to deal with right now, my life is on hold. Does it every get better?
    PHowland PHowland
    51-55, F
    1 Response Jun 18, 2015

    The Past Year..

    I'm 16 and am almost certain I have Cyclic Vomiting Syndrome based on my symptoms I have experienced since September of 2008.  My episodes get triggered by colds/viruses and I've had 9 episodes since then.   In September I got a cold and I had a 24 hour vomiting...
    guitargirl93 guitargirl93
    16-17, F
    4 Responses Feb 9, 2010

    One year ago is when I started getting sick.

    It's started out as maybe an hour in the morning I would feel extremely nauseous and most of the time I would get sick and then go on with my day, but the delay in the morning would cause me to be late for school. Every now and the tho I would miss a whole day or even a couple...
    kateyrose98 kateyrose98
    18-21, F
    1 Response Feb 9, 2015

    Cyclic vomiting syndrome: A syndrome

    characterized by episodes, bouts, or cycles of severe nausea and vomiting that last for hours or even days and alternate with longer asymptomatic periods (with no symptoms). The cause of the syndrome is unknown but it is believed by many experts to be related to migraine. Cyclic...
    22ndRow 22ndRow
    46-50, F
    1 Response Feb 12, 2014
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