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I Have Cyclic Vomiting Syndrome

A Cyclic Vomiting Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cyclic Vomiting Syndrome. You're not alone. 159 People

    Cvs And Anxiety?

    Hey everyone!  First let me say I hope this finds everyone somewhat healthy, and episode free!  Second I want to tell everyone thank you again for all of your support, and your kind thoughts and words.  It means more than I could ever say!   Now down to business.  Like so...
    missj816 missj816 36-40, F 5 Responses May 12, 2011

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    Cyclic Vomiting

    My name is Noah Szwagulak i am 11 years old , i was diagnosed with C.V.S when i was born. It was terrible ,i was in the E.R every month cat scans after rmi's i had to get surgery. luckily i grew out of it when i was seven . after that i was a sickly child . i get the stomach flue...
    Noahslurpy Noahslurpy 13-15, M 3 Responses Sep 23, 2013

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    Have My 2 Year Old Got Cvs?

    Hi my daughter is nearly 3 and every time she gets too excited she gags to make herself sick and is sick everywhere but only once? It seems to happen on mornings just as shes going to pre-school, this also happens when she eats certain foods such as mashed potato, raisins, cheese...
    xhannahxwx xhannahxwx 26-30, F 2 Responses Oct 2, 2013

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    What's Working For Me.

    I was diagnosed with cyclic vomiting syndrome in 2011. I would have episodes about 6 weeks apart always early in the morning lasting 4 to 5 days. I am 27 years old. going to get treatment in the ER I was repeatedly told that it was a psychological thing or something to do with...
    blessedme86 blessedme86 26-30, F 1 Response Sep 5, 2013

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    I was diagnosed with CVS about 6 months ago.

    My Dr didn't know what it was and I still don't know if they think something else is wrong still. But I have been having "episodes" since I was a kid. And at this point, I have have my appendix and gallbladder removed. I also have been diagnosed with GERD. Im just sooo tired of...
    katieinky katieinky 26-30, F 2 Responses Dec 30, 2013

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    I Have Cvs 2

    i have cyclic vomiting syndrome and have had it for the past 5 years. i felt very alone and that no one understands what im going through everyday, i have noticed from other people entries that you only have it lasting for a couple of days but mine has not stoped,i have...
    daleb86 daleb86 22-25, F 7 Responses Nov 30, 2009

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    Living With CVS

    I've been woken up for the past five years almost everyday with an intolerable pain in my stomach and terrible nausea. This is continued by hours of uncontrollable vomiting. At first it was whenever I woke up, but now the pain will wake me up at 3am and won't stop for several...
    Dailydevon Dailydevon 22-25 1 Response Apr 30, 2013

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    Cyclic vomiting syndrome: A syndrome

    characterized by episodes, bouts, or cycles of severe nausea and vomiting that last for hours or even days and alternate with longer asymptomatic periods (with no symptoms). The cause of the syndrome is unknown but it is believed by many experts to be related to migraine. Cyclic...
    22ndRow 22ndRow 41-45, F 1 Response Feb 12

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    I have lived the last 5 years of my life in

    absolute fear. Besides the marathon-length migraines, imagine never being able to go out to dinner, take in a movie, or even go on vacation without the fear of having an attack and facing the possibility that you may just have to suffer in pain for endless hours because an ER...
    22ndRow 22ndRow 41-45, F 1 Response Feb 12

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    You Don't Have A Tumor.

    I have CVS.  Before I was told this, my local Dr. was convinced I was having severe hangovers every month for 4 months straight.  Then it was my female parts, just going through the change.  I knew there was something seriously wrong, but could get nobody to listen.  Finally...
    sedona311 sedona311 41-45 3 Responses Jun 1, 2012

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    I don't have episodes

    as much as I used to but now it's just 24/7 burning and pain. Will this ever stop?
    Cvsgirl1222 Cvsgirl1222 16-17, F Sep 9

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    Cvs Serious Pain

    I've had CVS for about 2 years now, it was a very sudden and shocking illness that would have me up every night throwing up until I was lethargic on the bathroom floor. Everyone thought I was bullemic, though I would never do that to myself. As of right now, I'm in the nausea...
    Caeles Caeles 18-21 5 Responses Aug 14, 2010

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    Is Depression Normal With Cvs???

    Hi I have nad CVS since i was 12 but wasnt diagnosed until last year. I'm 16 now and I've developed serious depression because of the fear of when my next episode will be. Its caused me to act different. My friends think im lying and they dont believe me how scary this is but i...
    kandykorn kandykorn 16-17 7 Responses Jun 6, 2012

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    Disaster

    I have recently been diagnosed with cvs after a year of pain frustration and yes lots of vomiting. I am still inflicted with terrible symptoms and ended up losing my job as the 50 to 60 times i have been in the ER made it hard to keep. Actually the whole thing kind of consumed me...
    Luc32 Luc32 31-35 2 Responses Jan 4, 2013

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    My Daughter Has Cvs

    My daughter has had CVS since 18 months old...she is now almost 8! Life iis difficult and really not sure what to do! She has missed SO much school, her anexity has gone from zero to 100. We have been to different doctors and had so many different tests too! I wish there is a...
    familyof4 familyof4 31-35 2 Responses Nov 15, 2012

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    Do I Have Cvs?

    I'm 14, and for 3 maybe 4 years I have had violent episodes of throwing up about once a month. It normally starts at night, after 7pm and lasts for 3-7 days. I throw up 6-9 times a day with headaches, stomachaches, terrible nausea, chills, shakes, and low fevers. DO you think I...
    devonrose2000 devonrose2000 13-15 4 Responses Dec 4, 2012

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    Tips For Living With CVS

    Well if it's not already obvious just like most everyone else here I too am a victim of CVS. However I was hoping perhaps by coming here I might be able to pick up some tips. Does anybody know any ways to feel better when caught in the middle of an episode? Even temporary things...
    LittleWhiteRoom LittleWhiteRoom 18-21, F 5 Responses May 13, 2013

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    Not Sure If Cvs

    Hello. I am a 40 year old female. I have bouts of vomiting about 4 times a year usually beginning with a severe headache that feels like sinus pressure. I can't eat or drink anything and the only thing that stops the vomiting is going to the ER and getting medicine in an IV...
    Mokonalove Mokonalove 36-40, F 2 Responses Jan 13, 2013

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    Thc Helps

    I have had cvs for 3 years now I was in and out of er room for a yr and half 3-5 times a week to get treatment because the yuma regional medical center said only way to get treated was to come in and get ivs and meds everytime, now I learned that was just for money..but for the...
    headblock headblock 22-25 1 Response Jun 11, 2013

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    I vomit all the time

    but it's as a result of gastric bypass. I can't hold food down. It's been 12 yrs.
    dd2726 dd2726 41-45, F 1 Response Mar 3

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    I Suffer From Cvs....

    I am a 36 year old mother of three children, but I have been suffering with CVS for ten years now.   Two of my children have never seen me healthy, but they are wonderful.   I have had ever test done numerous times with no answers.  I also have been on numerous meds, but...
    missj816 missj816 36-40, F 7 Responses May 6, 2011

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    Does Anyone Know If What I Am Describing Sounds Like Cyclic Vomitting Syndrome?

    I will try and keep this short.  I am 33, I wake up each morning with intense nausea and stomach pain.  I vomit every morning and sometimes just dry heaves.  It happens at the same time each morning with the same symptoms and lasts maybe 3 - 4 hours.  I have had test after...
    robinlynn6 robinlynn6 31-35 7 Responses Feb 24, 2011

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    I have had CVS since I was 12 years old

    and countless doctors kept saying it would go away as I got older. Unfortunately ten years later it hasn't gone away. A few months ago I chose to go through more extensive testing than before because it doesn't appear to be getting better. The tests revealed I have IBS and...
    rcook8 rcook8 22-25, F 3 Responses Jan 20

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    Cvs? I'm So Lost

    Hi there, my name is Naomi. I'm 18 years old and have been struggling with something I am still unsure of. About 3 and a half months ago I started to feel nauseous, was puking quite a bit so I started to smoke a bit of weed. It helped greatly but then the symptoms became stronger...
    yesimnaomi yesimnaomi 18-21, F 4 Responses Dec 20, 2012

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    I Have Cvs

    I was diagnosed with CVS when I was 11, after suffering the symptoms since I was a small child. I was told by my doctor that I have a mild case, as I have never been in the hospital because of it and I would only have episodes 1-2 times every few months. Between the time I...
    Cpet8817 Cpet8817 22-25, F 1 Response Jan 19, 2013

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    My Daughter Has Cvs

    My 31 year old daughter has suffered with this horrific disease since she was a baby. It has basically stolen her life from her. She has been in the hospital more than 100 times with it. My daughter is also disabled from fibromyalgia, neurofibromatosis, OCD, and bipolar...
    notme987 notme987 51-55, F 3 Responses Dec 28, 2012

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    I Might Be Able To Help...

    So to make a long story short; I have known 2 people (I know extremely rare) to have CVS, and I have been able to help both of them... I think there is a large amount of people out there that are getting CVS because of what I refer to as Sativa Sickness (Sativa is one of the...
    SacDaddy SacDaddy 26-30 6 Responses Apr 1, 2010

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    Tired

    Im twenty four years old and about 6 years ago I started getting more sick than usual. I then went and saw a gastro doctor and pretty soon he diagnosed me with cvs. It was tough before the diagnosis my family at first thought I was bulimic. I kept telling them no way. To this day...
    Svuk Svuk 22-25, F 4 Responses Oct 10, 2011

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    Is Cvs Possible Without Actual Vomiting?

    My 5 y.o. was being monitored by her pediatrician b/c of episodes of extreme abdominal pain and vomiting every 3 weeks or so for 6 months. She almost always complained of a headache shortly before the real symptoms started. Once were referred to the pedi-gastroenerologist she...
    jangelle jangelle 31-35, F 3 Responses Nov 10, 2013

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    I Think I Have It

    I haven't been formally diagnosed, but I need health care before that can happen. My episodes started about two years ago, they may have started earlier, but they really started getting bad two years ago. Generally, I will wake up with a headache. That's my first cue that the...
    hekatemoon hekatemoon 22-25, F 5 Responses May 7, 2011

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    I have suffered with CVS my entire life,

    from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are not guaranteed. 1.) Eat pancakes - To this very day I hate pancakes, because as a child whenever I had an episode I would eat pancakes...
    Platinumryan Platinumryan 16-17 Sep 4

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    Shocking To Hear Your Stories..!

    HI.. WELL M 20YRS OLD I'VE HAD CVS FOR 3 YRS NOW I LUCKILY GOT DIAGNOSED QUICKLY LIKE 6 MONTHS INTO MY DISEASE. BUT I JUST COULDNT UNDERSTANT HOW IT CAME ABOUT.. ALL OF SUDDEN PAINFUL STOMACH ACHES THROWING.. IN THE ER CONSTANTLY EVERYDAY... FOR REAL... ALL TEST NEGATIVE FOR...
    uniqua413 uniqua413 18-21, F 11 Responses Nov 12, 2009

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    Too Much

    I was recently diagnosed with "cyclic vomiting symptoms." I've been having periodic bouts of vomiting all my life but I haven't held down food for 48 hours straight in over a month now. I'm typically a really happy person but I've been feeling down lately because of this. I feel...
    VegasL VegasL 18-21 Apr 27, 2013

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    Living With Cyclic Vomiting Syndrome

    hello, im a 26 year old male who has been suffering from CVS for about15 years with no end in site.It took me about two years to get a diagonsis(the worst two years of my life) this syndrome has taken my whole life away from me. i am fresh outta the emergency room for the third...
    stemmj26 stemmj26 26-30, M 1 Response Jan 1, 2011

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    12 Years Is Too Long.

    I am 14 years old and have had CVS since I was 2. We tried to get diagnosed but every doctor we went to just blew us off. I was 10 when I was diagnosed with CVS and abdominal migraines. I have never spoke to anyone with it and feel so alone and misunderstood. I would just like...
    12years2012 12years2012 16-17, F 2 Responses Mar 26, 2013

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    I Have Cvs

    I Had cvs sence 2-3 years old i been hospitalised all my life mostly. I missed alot of school it was really hard to cope with cvs when i was younger i didnt know how to control my pain much and was throwing up alottt. Im 20 now i am able to manage my pain a lil better now i dont...
    dreamer210 dreamer210 18-21, F 4 Responses Dec 3, 2012

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    Alone Is Just The First Feeling....

    I was diagnosed with CVS in February of this year (2013). For 2 years I was having serious digestive issues. I had surgery for endometriosis because they felt that was the cause of my abdominal pain. I had endoscopies and colonoscopies. All came up normal. I had plenty of blood...
    PODBeautiful PODBeautiful 22-25 2 Responses Jun 18, 2013

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    I'm So Tired

    Hi everyone my names tessa I am 22 years old. I havnt been diagnosed with cvs yet but I'm almost positive that's what it is. It all started in April of 2011, I would get food poisoining like symptoms about once a month. And about after the fourth month I new something was wrong...
    Momma01 Momma01 22-25 3 Responses May 22, 2012

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    CVS Im 18 Living W It , My Helpful Tips &Amp; Story. Read For Ur Own Benefit!!!

    I've had cvs for over 6 years now, started when I first got my period. It seems to be connected or triggered by mesntrual cycle for me, as it occurrs like clock work whenever I'm ovulating. I must say the most difficult thing about this condition is the time it takes for doctors...
    cyclicallyscrewednlost cyclicallyscrewednlost 18-21, F 3 Responses Jun 27, 2013

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    I have Superior Mesenteric Artery Syndrome

    that went undiagnosed for ten years. It's very rare, and causes abdominal pain, vomiting, and weight loss. I don't know much about CVS, but maybe ask your doctor about the possibility that you have SMA Syndrome? There are tests and surgeries that can help.
    ISavedMyself ISavedMyself 26-30, F 1 Response Jan 29

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    The Past Year..

    I'm 16 and am almost certain I have Cyclic Vomiting Syndrome based on my symptoms I have experienced since September of 2008.  My episodes get triggered by colds/viruses and I've had 9 episodes since then.   In September I got a cold and I had a 24 hour vomiting...
    guitargirl93 guitargirl93 16-17, F 4 Responses Feb 9, 2010

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    My sister has recently started to have severe

    vomiting that last up to 3-4 days, for two months. It correlates with her period. This time it was so bad she had to go to the ER. Does she have CVS?
    MissNinaBee MissNinaBee 31-35, F Sep 26

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    My 9yr. Old Daughter Has Cyclic Vomiting Syndrome

    My 9 yr. old has had frequent vomiting from the time she was a small baby. I would take her to doctors and they would just say it was frequent viruses. last year she started to complain of her eyes "going blank" and would develop a migraine aprox.15 min after. I took her to an...
    EshelmanSchwitz EshelmanSchwitz 41-45, F 1 Response Aug 23, 2013

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    Trying Not To Let CVS Define My Life.

    Hi guys. I am a 32 year old married woman and mother living with a bad case of ibs and cvs. The CVS first presented itself in college, with many random trips to the ER after nights full of throwing up for seemingly no reason at all. That first happened in 2000, and it wasn't...
    CaliCVS CaliCVS 31-35, F 2 Responses Jun 25, 2013

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    Any Correlations?

    I have two people that I know that have cyclic vomiting syndrome. Considering the rareness of this disorder, I have been trying to make correlations about the disorder to maybe figure what is going on with people... One major correlation I have recognized between the two people...
    SacDaddy SacDaddy 26-30 6 Responses Mar 3, 2010

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    Growing Up With Cvs

    I have been sick since I was born and I'm 24 years old now. It began by throwing up formula as an infant and gradually got worse until the age of 4 years old when I started seeing many doctors and having many tests done. I was in the hospital a lot when I was younger including...
    EquestrainAddict EquestrainAddict 22-25, F 3 Responses Jun 4, 2012

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    I Hate My Cvs Filled Life

    I am 19 and I have had cvs for about a year and a half now. I am usually sick in bed most days and the days that I do feel good enough to get out of bed ,which is hardly ever, im out of energy from being sick and never do anything. It keeps me home, the only places I go to is...
    Bogarnpwnsface Bogarnpwnsface 18-21, M 7 Responses Sep 20, 2011

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    Hey All, I'm a 28 year old female with what I

    think is CVS. Every few months I am awoken in the middle of the night with the worst stomach ache in the centre of my abdomen and I know whats coming. Sometimes I have to go to the washroom but the ache just grows and grows. The nausea seems to start creeping up as well until it...
    starjj starjj 26-30, F 1 Response Dec 7

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    My Story

    For the longest time no one could understand why I'd have episodes of vomiting that lasted for weeks.  People were puzzled why I couldn't eat, drink, had terrible stomach pain or remain conscious for long periods of time when tests showed that nothing was wrong with me. ...
    deleted deleted 26-30 9 Responses Jul 28, 2009

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    Im Happy To Have An Answer

    for years ive been dealing with cvs.docors couldn't find anything on tests ,strarted sending me to specialists more $ no answers.....now i know im not alone...i feel for everyone that suffers from any dieses .thanks 2 everyone that helps me and the others when we have an episode...
    maryrose27 maryrose27 26-30, F 1 Response Aug 8, 2012

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    CVS Gal in NM

     I have CVS for three years now with about 28 hospital visits a year. I'm am only getting worse as the years go by. It starting with the constant  vomiting and now have a Hiatal Hernia, PCOS, horrible GURD,  IBS, Slow Moving Stomach, depression and Esophagus damage. My Stomach...
    trisanacox trisanacox 31-35, F 5 Responses Dec 23, 2011

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