I Have Cystic Fibrosis

Personal Stories, Advice, and Support 60 People

    I'm 15years old I was diagnosed with a double

    gene of delta F-508. I was diagnosed at 3 months old. They did the test because I was dieing of malnutrition. I'm a freshman in highschool and I'm a jv cheerleader and softball player. My lungs suck as being lungs. I have my off days I've only been In the hospital about 3 times...
    Natashabeth Natashabeth
    18-21, F
    Jun 16, 2014

    Cystic Fibrosis

    I was diagnosed with Cystic Fibrosis when i was about 6 months old. Life is definately a strugle, and alot different when you have a life threatening disease. I've had an amazing life and love it but some days are pretty bad. In my early years of life I basically lived in the...
    Jdrama23 Jdrama23
    18-21, M
    4 Responses May 4, 2012

    do you think its easy to find true love

    when you have cystic fibrosis? will someone truly love u for u being u with all ur flaws? am i enough?
    cf1998 cf1998
    18-21, F
    1 Response Mar 9

    I have cystic fibrosis,

    sadly. I was diagnosed on September 29th 2015. I am 16 years old and this really sucks. I was suffering from a chronic cough for 3 years before this. With the extreme depression and the fact that i had lost all of my friends just weeks before all of this i have been feeling...
    kdekok kdekok
    16-17, F
    Nov 11, 2015

    I Do!

    I was diagnosed at birth.  I was in and out of the hospital a lot as a kid.  It's a struggle no doubt but I do what I have to do.   I'm not afraid to say I have it but I usually keep it to myself though.  I'm not looking for...
    VoomZoom VoomZoom
    31-35, M
    3 Responses Jul 25, 2009

    I Have Cystic Fibrosis

    I was diagnosed with cystic fibrosis at birth, as was my sister. I'm 19 and struggle with CF everyday. I am in the hospital right now. i have developed a new chromobacter that is highly resistant to oral and nebulized antibiotics. I have had at 55% lung functioning for about the...
    mrhoelter91 mrhoelter91
    18-21, M
    Jan 28, 2011

    I am 17 years old and i have been diagonised

    with cystic fibrosis as a new born. Life has not been so easy for me as i have spent months in hospital and still do, because of my disease i also have cronic pancreatitus which is when my pancreas is half working and does not produce enough enzymes to function proparly...
    MrsNicoleBieber MrsNicoleBieber
    18-21, F
    Dec 26, 2013


    I beat cystic fibrosis I won the fight against this horrible fukin disease
    gypsy6404 gypsy6404
    5 Responses Apr 13, 2013

    I Dont Know What To Do Anymore.

    Hi. I have lived with cystic fibrosis. I rather not reveal my age, but i am in middle school. I am sick of being called pregnant, weird, freak, all because of my constant absences and big cf belly. I am troubled, and i wonder why God gave me cystic fibrosis. It seems unfair that...
    ChiccoWuv ChiccoWuv
    3 Responses Feb 27, 2013

    I was diagnosed when I was two

    and for a long time I couldn't accept it. I never told people unless I had to. I felt like people judged me and felt sorry for me. And I didn't want that. Finally a few years ago I learned to cope with it. My Heath improved and I was happier for it. But with in the last few...
    emilyalane32 emilyalane32
    22-25, F
    Aug 13, 2015

    Okay, So.

    My name is Moranda. I am 13 years old. I was diagnosed when I was 7. I take pulmizine (not sure how it is spelled) and a breathing vest twice a day, and take four pills each time I eat. I guess I'm one of the lucky ones, although i don't feel like it. The idea that i probably won...
    lifeisbeautiful373 lifeisbeautiful373
    1 Response Jan 7, 2012

    Oh....Cystic Fibrosis

    I have Cystic Fibrosis.  I was diagnosed at 6 months of age and am now 34.  I can't say that it's been an easy road, but I can say that my journey has been a mild one compared to some.  I feel very lucky to have been blessed with a mild form of the disease. When I was 12 years...
    neveramother neveramother
    31-35, F
    4 Responses Sep 1, 2011

    I was diagnosed with CF

    when I was 15 months old. I am now 17 years old and am wondering if people with CF can be Firefighters. I want to help people like they have helped me and have always wanted to be a firefighter. If someone could please get back to me that would be great. Thanks, Austin
    austinwitmer2015 austinwitmer2015
    18-21, M
    Jul 18, 2014

    I was diagnosed with Cystic Fibrosis

    before I was born and have been living with now for 18 years. It becomes very frustrating sometimes. So much that I have to do everyday...it gets old! I just want to be a normal teenager, that can run and exercise like everyone else does. So then I think, maybe it would just be...
    kaitlyn2097 kaitlyn2097
    18-21, F
    Mar 3

    I Was Diagnosed

    I was diagnosed with mild cystic fibrosis when I was 8 years old and i am learning with live with it, I am now 15 years old still love to play sports and i don't let it get the best of me.
    horselover612 horselover612
    13-15, F
    Oct 7, 2012

    Cf Angels Ii

               EP Link!!
    31-35, M
    May 4, 2010

    I was diagnosed before I was born

    so I never really had to deal with the newness of it. it was just always something i did. I'm currently 20 years old and managing it pretty well. Recently I went through some depression about having CF. I looked around on blog sites of others with CF and it really helped...
    CasperIsHungry CasperIsHungry
    22-25, F
    Feb 25, 2014

    I Have Cystic Fibrosis

    My parents found out that I had cystic fibrosis when i was only an infant.  I have grown up with CF for a long time, not realizing .  Im 18 years old, married, and I have a baby on the way.  I cant wait, im way excited.  I have worked really hard to stay out...
    1460thgirl89 1460thgirl89
    18-21, F
    4 Responses May 26, 2008

    I Was Dx With Cf Last Month.

    This is all new to me.  I am way to old to find out.  The only good thing it explains 60 years of my life.  Aways have been skinny, BM 18. Pancreatic infections multiple times. Chronic sinus infection. Pneumonia 1 or 2 time a year for 20 years. Infertility...
    Spankydoodle Spankydoodle
    6 Responses Aug 25, 2011

    Division One College Soccer Pla<x>yer

    I am 18 years old. I was diagnosed with Cystic Fibrosis after the first month of being born. I can't say it has been easy, but I love a challenge. I am a freshman playing division one level college soccer. Never give up on yourself no matter what people or statistics say about...
    HaleyDesro HaleyDesro
    18-21, F
    Nov 3, 2013

    I Always Feel Like a Fish Outta Water!

    So I was born with Cystic fibrosis. It is, as u know a disease in which my excess mucus clogs my lungs, prevents  my food from being digested, and damages my reproductive system.  I have been on so many different kinds of meds to manage my symptoms that i dont even...
    Collin05 Collin05
    16-17, M
    7 Responses Apr 12, 2009


    I am 15 and i was diagnosed with C.F. when i was 1 day old. When i was little it wasn't so bad, but in the last year i have defiantly noticed that I've been having an even harder time breathing. I had my first ever hospitalization this year (2012). This year has been by far...
    serenity6 serenity6
    13-15, F
    1 Response Aug 29, 2012
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