I Have Cystinuria-lysinuria

A Cystinuria-lysinuria anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cystinuria-lysinuria. You're not alone.

    I have cysturnia and have had it

    since I was 16 and had it before that time but found out when I was 16. Found to have a staghorn kidney stone at that age. I have been taking cupermine for several years but the price has gone up to $3,750.00 for 12 tablets so it is getting impossible to take. Does anyone else...
    healthforus healthforus
    56-60, M
    Oct 8, 2015
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