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I Have Darier's Disease

A Darier's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Darier's Disease. You're not alone. 19 People

    Darier's Disease - Hi, I'm Gaby and i'm 17. I was diagnosed with Darier's Disease about a year ago I am still struggling to come to terms with it. It's a hard disease to have...
    Gaby17 Gaby17 16-17 8 Responses Oct 24, 2011

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    DD Treatment Re. 46 Years Of Darier's So Far - This Dariers is always tagged as hereditary. (See treatment Accutane and Light Therapy notes below). This didn't seem to be the case...
    Sonbeam Sonbeam 66-70, F Nov 9, 2013

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    I Wish I Didn'T Have It - I've had Darier's for 58 years. I've been on every medication, every treatment from Mutton Tallow to Accutane to Tegison which was illegal to prescribe...
    Trollie Trollie 61-65, F Mar 30, 2013

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    40+ Years - Hello, My Darier's presented when I was about 13 or so. Mild case in comparison to my mom and brother. My other 2 siblings were not affected. I have two children, one...
    laklaura laklaura 51-55, F 1 Response Sep 10, 2013

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    Darier'S Experiment - In quotes below is pretty much what I put as an intro in the MDJunction Website rather than re-typing the whole thing in this site. However, I am trying a...
    ASK626 ASK626 41-45 Feb 22, 2013

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    Linear Darier's - I don't have much a story, I have had this disease since childhood, I always thought it was psoriasis. I was diagnosed about two weeks ago after a biopsy. I don't...
    MrsCraig MrsCraig 22-25, F Nov 21, 2013

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    I am a 46 year old female and have had Darier's disease since I was 33 years old. According to my dermatologists my condition is not too severe however I am very self-conscious...
    texaslilly texaslilly 46-50, F Jan 20

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    I started developing Darier's Disease at the age of 7, but wasn't diagnosed til the age of 12, I am now 34. My dad, one sister, 2 of my uncles, and 2 of my sister's children have...
    vivlee5 vivlee5 31-35, F Jan 30

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    In My Ears - Help I have this in my ears and it is all inflamed have gone to the doc x3 all they recommend is antiboctic drops
    Johannsena Johannsena 31-35, F Aug 28, 2013

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    Possibly Dairier's Disease Or Rare Form Of ??? - i am sherry i am just now 40 and since june of 2011 i began this harsh struggle of this rash and lesions, completely raw in places...
    livinbyfaith livinbyfaith 36-40 3 Responses Oct 15, 2012

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    I Too Have Dariers And So Have My Daughters - Hi all I was diagnosed when i was forty with dariers disease I never heard of this disease so it was a shock. I suffered with my skin...
    aileenann aileenann 46-50 Jun 20, 2013

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    Its my daughter that has Dariers, inherited from her dad she is now 12 but was showing symptoms at 2!! she has topical ointments and washes to use but obviously its v hard for her...
    exhaustedx10 exhaustedx10 41-45, F Mar 28

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    I was first diagnosed when I was about 10 and I am now almost 35. I have been treated with many different forms of both topical ointments and oral steroids over the years...
    RizzB RizzB 31-35, F Mar 27

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    Related Experiences

    I do not have Parkinson's disease but I added this experience because I plan to become a neurologist specializing in Parkinson's disease and I love reading what you have to say...
    emily39 emily39 18-21, F Mar 24

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    I think I might have Cushing's Disease. Looking for someone who can explain what they went through with this.
    Jackson2033 Jackson2033 18-21, F Apr 4

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    I was just diagnosed with Forestier's Disease or DISH...Diffuse Idiopathic Skeletal Hyperostosisin in my lower spine. I've had weakness in my legs, lower back for the past 4...
    halley888 halley888 46-50, F Mar 26

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    I've had symptoms of Crohn's Disease since I was 13. Having gone through four doctors and two negative colonoscopies (among other tests), it was kind of a relief when I was finally...
    Maeliss Maeliss 18-21, F Apr 7

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    Can anyone explain what the signs and symptoms were for them?
    Jackson2033 Jackson2033 18-21, F 1 Response Apr 5

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    I have Tourette's syndrome.
    mrhollingswortg1992 mrhollingswortg1992 22-25, M a week ago

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    Hello. I was born in 1970 and experienced all the delayed milestones, etc. The Doctor at the time labeled it "floppy child syndrome" but after recent research, I believe that I...
    debbiebarnum debbiebarnum 41-45, F Mar 25

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    All the sounds I hear are extremely loud. I may have been like this my whole life, but it's getting worse now. People talking, laughing, babies crying, cars, machines, phones...
    mad95 mad95 18-21, F 1 Response Mar 16

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    Hello. I'm actually happy to have found a place to read others similar stories to my sons.. when he was born, he was perfect. At about 4-5 months old, my mother noticed he wasn't...
    amburk amburk 22-25, F Mar 21

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    I was diagnosed with TS when I was very young. My case is mild and my tics are slight but I do feel the internal side effects of TS like anxiety, hyper vigilance, and some OCD. I...
    artMusicBrew artMusicBrew 36-40, M Mar 24

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    But it's not what everyone thinks it is. When you say 'aspergers', people think of socially awkward people who are obsessed with computers or science. But in reality, it's a lot...
    sarah19597 sarah19597 16-17, F 7 Responses Mar 27

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    I was just diagnosed a few months ago but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner...
    Pinkyjolie Pinkyjolie 26-30, F 1 Response Mar 27

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    Was diagnosed back in high school. Felt like it held me back from many things. Yea, I did go 2 dances, junior and senior prom, but people treated me like I was retarded. I'm highly...
    HottRoddTX HottRoddTX 26-30, M 4 Responses Mar 28

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    I was diagnosed last year, I have typical symptoms but my doctor said its extreme, my hands get a little cold and got pure whit e and when they warm the pins and needles start. It...
    indigo21 indigo21 16-17, F Apr 3

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    I found out I had Poland's Syndrome in my 30s ( I am now 48) when I was referred to a plastic surgeon. Had an operation but had to remove the implant as my chest cavity kept...
    gamordente gamordente 46-50, M 3 days ago

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    I really want to get involved but I don't know what to say other than I'm here.
    lunaskies lunaskies 56-60, F Mar 28

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    I get reconstruction surgery July 16th!!! SO excited, but not being able to play field hockey because of it is going to suck. I'm terrified of going under but I don't even care...
    marinagrace marinagrace 13-15, F 6 days ago

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    i KNOW i can help. I have had Vestibular Migraines for 4 years now and I have a step by step way to take back control of your life and go back to living. Now before i go any...
    SOPHDOG SOPHDOG 22-25, F Apr 3

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    This is exactly what happens to me and gets mis-labelled as 'anxiety' or whatever. http://www.bcepilepsy.com/files/Information_Sheets/All_About_Partial_Seizures.pdf All About...
    Buckley4U Buckley4U 36-40, F 1 Response Apr 7

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    I always thought that because my girlfriend can't give me everything I want that makes it imperfect. But really the closest thing to perfect is your own perfect. Because it that's...
    FullofFood FullofFood 16-17, M 4 hrs ago

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    I am adult ADHD and have Parkinson's. My wife has Asperger's and various chronic illnesses. I love my wife dearly, but most of our marriage I've wondered whether she loves me. I...
    rw57 rw57 56-60, M Mar 22

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    I can't believe I'm in this position. He seemed to be the antithesis of the things that worried me most about my father. They say you tend to marry your father and my father was...
    TennesseeTina TennesseeTina 41-45, F 1 Response 6 days ago

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    I started having digestive issues the past year or more. I tend to go towards natural healing modes so, when things got back last October and I had chronic loose stool and very...
    Dia949 Dia949 51-55, F 3 days ago

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    From what I understand, you need to have had S in order to get an S T D. :P
    Whoami30 Whoami30 26-30, M 1 Response 2 days ago

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    There are so many times I wish I could find that right girl. Whenever I hear from people close to me say they have finally have a b/f or g/f, it seems like I am the one that is...
    Barefooter25 Barefooter25 36-40, M 2 Responses Mar 17

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    I've never been in love but I've damn sure been hurt. Today I went to my weekly counseling session and I said something to my counselor that I have never said out loud. Crazy thing...
    Shygirl917 Shygirl917 18-21, F 1 Response Mar 20

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    I have been trying to beat this awful disease for around 4 years now. It's gotten to the point where I argue with myself after every single time I eat anything. I try to tell...
    salily17 salily17 16-17, F 3 Responses 1 hr ago

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    'mom has dementia.' hah! nope, i am not going to say that. mom has NPD. Lying about her condition is one step forward to be like her. Mom is in her 50's. She can't be blame...
    fien fien 26-30, F 21 hrs ago

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    I have been suffering from this skin condition for about 4-5 years. It sort of began slowly progressing as I was in high school and then further on. I used to think that this...
    Dianaangel Dianaangel 18-21, F 3 days ago

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    I have Lupus and Lupus nephritis an incurable autoimmune disease and kidney involvement. One of the issues of living with an incurable disease is that its also an invisible...
    Young24Lupus Young24Lupus 22-25, F 1 Response Mar 27

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    I was diagnosed with Graves Disease in 2007. My thyroid tests, T3 and T4 were only mildly high but my TSH was less than 0.01. My symptoms were rapid heart rate and dry and...
    purpleizzybee purpleizzybee 61-65 4 days ago

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    To the patients who have Lupus or other diseases, what diseases do you have? How long have you had it? Do you feel this diseases is going kill you? Got any "I almost died...
    heartbroken69 heartbroken69 36-40, F 1 Response Apr 2

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    I have been diagnosed with MCTD in May 13, 2013. I've been to doctors after doctors. Hospitals after hospital. None knew what was going on with me. I felt more weak each day...
    laquino98 laquino98 13-15, F Mar 20

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    TMI.... Or not enough? A week ago I had no idea what renal colic was. I knew it was bad and not something I wanted. A week ago a baby was still not entirely out of the question...
    owchimama owchimama 31-35, F Mar 25

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    I'm in love with someone I know I can't have, and I've never felt so confused and alone. My story begins three years ago- I was an underclassman in high school when I fell very ill...
    lalarose lalarose 18-21, F 1 Response 6 days ago

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    I was told by my hemo doctor that I have Polycythemia Vera - secondary. Basically, there is a secondary cause to me having this disease. My Hemo doctor says they feel it is...
    trr2014 trr2014 41-45, M 1 Response Mar 16

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    I was never sick as a child-actually, quite the opposite. I was strong, rambunctious, energetic, and was constantly getting in to this I wasn't supposed to. Lol. So, fast forward...
    RustyJames2130 RustyJames2130 31-35, F Mar 23

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    I was diagnose with polycythemia vera last 2010 but before the doctors found out that I have the disease I already suffered a lot of pain and agony, I was 43 years old at that...
    edcachero edcachero 46-50, M Mar 27

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