I Have Dentinogenesis Imperfecta

A Dentinogenesis Imperfecta anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dentinogenesis Imperfecta. You're not alone. 31 People

    27 And Suffering The Di

    Hi I am 27 years old and I was diagnosed with Dentinogenisis imperfecta when I was a kid. My whole life was spent in and out of the dentist office till I was 18 then my dad got Layed off and I had no more insurance. I became an adult and moved out on my own which is not easy bc...
    cnshultz27 cnshultz27
    1 Response May 26, 2012

    Anyone Else Out There?

    I have this diorder of the teeth.  After much searching, I haven't found anyone other than relatives that have this.  Is there anyone else out there?  I have family in British Columbia and Nova Scotia.  I haven't heard of anyone else. I have had several...
    PurpleNettie PurpleNettie
    29 Responses Jan 9, 2009

    My 3 Yr Old Daughter Has Dentinogensis Imperfecta...

    I myself do not have the disorder but my 3 yr old daughter does she got it from her dad which left far before she was even born. I know plenty about the disorder however I am having a very hard time finding treatments and was wondering if there is anyone out there that is going...
    mandyhousman mandyhousman
    22-25, F
    4 Responses Mar 8, 2010

    I Have Dentinogenesis Imperfecta

    Unfortunetly, I have a disorder called Dentinogenesis Imperfecta. It's when you are born without enamel on your teeth. Other side effects is that your teeth are smaller than "normal" teeth, and they often are softer and prone to breakage. In my case the first born child has...
    Kally79 Kally79
    6 Responses Mar 11, 2010

    Also Living With DI

    I am 40 years old and have Dentinogenesis Imperfecta. Although there are certainly more devastating circumstances that can befall a person, living with DI...well, frankly, it sucks. I inherited DI from my father. He has two brothers and two of the three of them have DI. I have...
    consoledacupofcoffee consoledacupofcoffee
    36-40, F
    4 Responses Jan 25, 2011

    I Have Dentinogenesis Imperfecta

    I am 26 years old ... I was diagnosed when I was 2-3. All my life i've been in and out of the dentist having teeth polished, pulled and capped, braces in and out and fillings which lasted only hours. Once they even found out I had 7 abceses in my gums with no symptoms! I had...
    Jossabelle Jossabelle
    3 Responses Nov 18, 2012

    Searching For D.I Guest To Appear On Major Network Show Pilot

    Hello! I wanted to reach out to this forum with an opportunity for an individual to receive professional advice and treatment for Dentinogenesis Imperfecta on a new television show pilot. If you or someone you know with D.I has a compelling story and fits the below criteria, I'd...
    Casting23 Casting23
    Jun 8, 2012

    Painful And Expensive

    I have Dentinogenesis Imperfecta and like the other posters don't know anyone outside my family that has it. I'm 31 and it has finally got to the point were my teeth constantly falling apart is really starting to get me down. I have just been to the dentist and according to...
    thrawg thrawg
    31-35, M
    3 Responses Feb 25, 2010

    Needing Advice

    Hi there, I have 3 children, my oldest wo is 4 has DI my other girl who is 2 doesn't and I'm waiting to see if my 7 month old has.. I am mostly worried about when my girl is older and at school.. I'm hoping that cosmetically they can do something for her to stop her from going...
    nets76 nets76
    31-35, F
    5 Responses Jan 6, 2010

    I Also Have Di

    I also have DI, as does my mother, grandmother, great-grandmother, and many other members of our very large family. I would love to connect with other families that share this genetic condition.
    whippet99 whippet99
    5 Responses Aug 7, 2009

    Lost My Teeth By 27

    Well where do i start.ive always had dental issuses,from cavities to brittle teeth,to eventual losd of all my uppers and part of my bottoms.i trying to afford implants,but at the moment my financial status wont allow it.i basically have no social life due to my appearance.i dont...
    jbsmiley jbsmiley
    26-30, M
    Sep 19, 2012

    Seeking people in Massachusetts with DI !

    There is currently a bill being considered by the Mass. legislature which would mandate health insurers to cover treatment for rare congenital dental disorders such as DI, AI, ED, and Congenital Oligodontia. My daughter and I both have DI and are lobbying the bill, and we...
    Crissq Crissq
    Oct 31, 2015

    When Will I Be Able To Tell?

    Hello, I too have DI as did my mother, grandmother, an uncle etc. etc. Our family also is from England, and Scotland...seems to be a trend here. When I was around 20 I had veneers done on all of my teeth and hope that they will last many many years. Too many hours spent in the...
    Amersca Amersca
    2 Responses May 3, 2011

    Twins With Dentinogenesis Imperfecta

    My one year old twins (boy/girl) were just diagnosed with dentinogenesis imperfecta type 2. I have no experience with this condition and need to seek help from anyone with experience on what is the best way to treat it. Some dentists say to do bonding when they enter school...
    Chrisbella24 Chrisbella24
    1 Response Apr 3, 2012
More Stories