I Have Dercum's Disease

Dercum's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dercum's Disease. You're not alone. 25 People

    One In A Million

    hello my name is Brian I'm 31 years old I'm a male and I have dercums disease.whats really crazy is that its only about sixteen percent male who get this.my first tumor showed up when I was about sixteen ...i now have about 250 and it becomes more painful day by day.i finally got...
    Bryan3 Bryan3
    31-35, M
    1 Response Sep 15, 2012

    Dercums Desease

    My name is Lynette and  about 1 year ago I had alot of pain in my shoulder blade it got so bad the ambulence came and got me only to take me to the hopital so they could tell me there  was nothing wrong. So a couple months later I noticed I was getting these tumors all...
    lynetteb lynetteb
    5 Responses May 1, 2009


    I'm not sure if I have dercums I found my first lump 19 years ago and since then I've had 21 removed with two more to be removed. Have looked at a lot of the symptoms and I have had chronic fatigue since my teens, headaches for the last 20 years weight gain, under active thyroid...
    jeaniemac jeaniemac
    2 Responses Feb 9, 2013

    I Keep Hoping I'm Wrong And That I Don't Have Dercum's But ...

    ... but I'm afraid that I surely do.  2 to 3 years ago I first started finding lumps in my forearms and behind my knees, then in my calves and in my hips and abs, now in my ribs.  This morning when I woke up I felt as if I had been beat up or kicked really hard several...
    batir0653 batir0653
    1 Response Aug 4, 2010

    Finally A Name To My Pain

    It all started about 5 years ago. Longer if I stop and think about It. I have fibromyalgia so a lot of my symptoms I was Blaiming On that.I kept complaining to all of my Dr.s that I HAVE LUMPS ALL OVER My BODY. I kept saying,why do they hurt? It felt Like they were attached...
    JJLace0844S JJLace0844S
    66-70, F
    Sep 10, 2012

    I Have Madelung's Disease [also Called Dercum's Disease]

    I found my first lipoma on the top of my rt. outer thigh in 1990, but I wasn’t diagnosed with Madelung’s Disease until 2009.  I have it below the waist, and am a teatotalling female.  I am of Swedish-Scottish-Irish ancestry, and no one else has this in my...
    insectlady insectlady
    1 Response Feb 21, 2010
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