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I Have Dextrocardia With Situs Inversus

A Dextrocardia With Situs Inversus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dextrocardia With Situs Inversus. You're not alone. 118 People

    My Babygirl, The Right Side Is The Good Side!

    when i was 35 weeks pregnant i found out that my baby girl had dextrocardia with situs inversus. i remember crying all day, i did not even know that this was possible, and did not even know if my baby was going to live, and was to affraid to ask. shortly after i saw different...
    sheismyheart sheismyheart 22-25 1 Response Oct 11, 2012

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    Our Son Was Diagnosed With Dextrocardia With Situs Inversus At 3 Days Old

    We were sent home from the hospital 2 days after a difficult birth 10 days early that ended in a c-section, from the beginning we had noticed breathing problems, but was told by the midwifes that its due to the mucus. when the community midwife came to check on mum and baby at...
    vickyoneill82 vickyoneill82 26-30 4 Responses Dec 6, 2010

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    I Have Dextrocardia With Situs Inversous :D

    Hey,my name is Mamie O'Reilly and I'm 17 years old and live in Ireland. My parents first discovered that I had this rare condition when I was just 3 years old......One day my Daddy was changing the oil in his jeep,and put the old paraffin oil into an empty coke bottle.The...
    mamieoreilly mamieoreilly 16-17, F 4 Responses Dec 29, 2011

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    Opposite

    I also have pectis excavatom. Im deformed missing my left pectorial. And cheast is caved in i have always felt opposite from everybody
    yearkey1984 yearkey1984 26-30, M 1 Response Aug 16, 2013

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    I Feel Unique

    i was diagnose last year but when i found out i had this deases. .i felt unique. ofcourse i was worried but living with this kinda weird heart position make me feel successful everyday. im a happy person and energetic enough to live with this. .since my heart is on the right, i...
    nooriegail nooriegail 18-21, F 1 Response May 27, 2013

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    I Have Dextrocardia With Total Sitius Inversus

    I'm 48 have Dextrocardia with Total Sitius Inversus(all organs are backwards). Just got back from yet another dr. Appt. So tired of dr. Appts. And test and more test. My dr. Says I will be on oxygen. Having a lot of trouble breathing. Just started me on yet some more new stuff...
    shortef41 shortef41 46-50, F 3 Responses Jul 20, 2012

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    My Story

    I am a 17 year old with Dextrocardia with situs inversus and asplenia. My parents found out when I was just 2. I've been in hospital a lot as I get sicker than most. I live life 100% normally. Apart from being on penicillin twice a day every day.
    ChloeJade1995 ChloeJade1995 16-17 Aug 29, 2012

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    My Story

    I'm a 15 year old female and my parents found out that I had dextrocardia with situs inversus a few days after I was born. The doctor was trying to listen to my heart and it was hard for him to hear, when they ran tests they found out that I had this. I am always at the doctors...
    keepthefaith47 keepthefaith47 13-15, F 1 Response Aug 8, 2012

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    Charlotte Is Here!

    Charlotte was born on 11/20/09, and is doing well. She weighs 7lbs 4oz, and is 19" long! She appears to have Situs Inversus Totalis, which is the rarest form of this condition. This basically means that everything, including the spleen is present and normal, just a mirror...
    Charlottesdad Charlottesdad 31-35, M 1 Response Nov 22, 2009

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    My Baby Had Dextrocardia With Situs Inversus

    my daughter is now 1, and when she was about 7mths. dr. informed me she had dextocardia wit situs inversus. now with me being only 20 at the time i didnt no what to think. but she seems to act like other kids her age sometimes she even seems to have a little more energy than...
    nesha068 nesha068 18-21, F Sep 3, 2009

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    Leaving 49 Years With Situs Inversus Dextrocardia

    I am Mdm Subuletchmy a 49 year old women with situs inversus dextrocardia. Currently leaving in Singapore with 2 daughters. I also haveKartagener syndrome. I suffering my whole life with bronchiectasis. These condition effect my daily life.
    mlbss mlbss 46-50 3 Responses Dec 21, 2010

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    Our Unborn Baby Has Dextrocardian With Situs Inversus

    Thank you to everyone for sharing your stories in relation to Dextrocradia with Situs Inversus.  I am now 25 weeks pregnant and was told when i was 18 weeks pregnant that our baby has Dex with S.Inv.  After initially being pregnant with twins, then losing one...
    jaffajanice jaffajanice 36-40 4 Responses Nov 24, 2009

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    I Never Knew That I Have Dextrocardia With Situs Inversus

    i am already 21 when i discovered that i have dextrocardia.. i only discovered it when i had my medical exam for employment. i hope i could meet other people who has dextrocardia..
    camillejoyce camillejoyce 18-21 4 Responses Nov 12, 2008

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    New Baby Girl With Situs Inversus

     So, in 3 days our baby girl will be here, she has Situs Inversus. The dr's say that everything looks normal except for her spleen, which she may or may not have. We are so scared for her, no one really knows much about how her life will be. Any advice would be great.
    Charlottesdad Charlottesdad 31-35, M 2 Responses Nov 17, 2009

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    45 Year Old Retired Army Officer

    I found out when I was 14 years old that I am backwards inside. I was being diagnosed for ulcers and after the Xray, the technician took so long and took multiple pictures, I didn't understand what the confusion was about. He came to me and told me my heart was on the opposite...
    majorcjefferson majorcjefferson 41-45, F 5 Responses May 14, 2012

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    I Am Dextro-cardia :)

    Hi. I am Umair Ali from Karachi, Pakistan. I was born on 25-06-92. I am dextro-cardia with situs inversus and my sister too!I want to ask that is there any fertility problem in dextro-cardia case??? :/
    ujgangsta ujgangsta 18-21, M 2 Responses Aug 15, 2011

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    The Dr. " Congratulation.. You Are Special " ..

    I was 19 when I first discovered that I have dextrocardia with Situs Inversus.. the Dr said " your heart is on the right side of your chest !! " I took deep breath and asked about the right time to do surgery ..!! he laughed and said .. "no...
    hadeel hadeel 18-21, F 5 Responses Oct 16, 2009

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    Spleen

    Can anyone please tell me if my son is two would we know if he has a spleen? He doesn't get sick a lot and he acts normal somewhat advanced even
    heartdex heartdex 31-35 1 Response Jan 17, 2013

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    It's Nice to Share Our Storys

    Hi, I was diagnised at 2 with Dextrocardia with Situs Inversus, and am now 43. I also have corrected tranposition which means that my ventricals do each others job resulting in the small ventrical doing the large ventricals job. This ventrical is now wornout and I am in late...
    Annie27566 Annie27566 41-45 Aug 10, 2009

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    My Newborn Has Situs Inversus With Dextrocardia

    i had my third baby a week ago and he ended up in NICU we found there that he has situs inversus with dextrocardia, he is in there due to an infection i was partly prepared as i was origanally told he had it during an ultrasound but then another ultrasound i was told he...
    lamb01 lamb01 29, F 2 Responses Nov 1, 2009

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    Dextracardia Situs Invertus

    I am with you all. I also have the sinus problems and have not found anything to calm them. I also am allergic to so many meds.now I have been living this way for 46 years but have only known for 19 years. Now all of a sudden I have chronic white matter on the brain. Have always...
    r66garza r66garza 46-50 1 Response Nov 2, 2012

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    I'm 62 In Spite Of A Heart Murmur And Dextrocardia With Situs Inversus

    I want to encourage parents who have just discovered their child or unborn baby has dextrocardia with situs inversus. Do not be swept away by unconcerned worry. There is a good chance this baby will be a loving, healthy, and productive member of society. I am a 62 year old...
    Barbaraann67 Barbaraann67 61-65 3 Responses Feb 23, 2012

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    Dextrocardia Situs Inversus Totalis

    I have Dextrocardia and i knew this at my age 9 but now i am 29 i come to know recently that i have Situs Iversus also. I am having low himoglobine except this there is no difficulties in life so far.. Thanks
    Sribarla Sribarla 31-35 May 4, 2013

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    I Have Dextrocardia And Situs Inversus

    I was diagnosis with this when i was 2 yrs old because i had pnemonia and they told my parents after seeing my x ray. My parents were told i wouldnt live thru pubrity or have any kids well needless to say im 52 yrs old and proud mother of 2 kids age 33 yrs old daughter and 23 yrs...
    caremi caremi 51-55, F 4 Responses Jan 17, 2013

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    I Feel Feminine Nature, My Sister Also With Situs Inversus With Dextrocardia Attract Me

    some times i feel feminine nature, and face comunication problems, its difficult to understand and explore the laws of nature that how to behave with female and how to with male, some times ago i felt that only my sister is understanding my feelings, but now internet helped me a...
    digitalsindh digitalsindh 26-30, M Jun 16, 2011

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    My Daughter Was Diagnosed With Dextrocarida With Situs Inversus Totalis

    My daughter was not diagnosed with Dextrocarida until she was 10 years old.  A community college in our area was doing free echocardiograms, so we decided to have one done on each of my youngest girls.  It was at this time that we found out her diagnosis...
    clarkclan9 clarkclan9 41-45, F 6 Responses Feb 15, 2010

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    I Have Complete Situs Inversus

    Hi, i have situs inversus, luckily total one. I never had problems woth s.i. itself, but i also have Kartagenrs' syndrome, which makes me caugh more & makes my nose full all the time... My doctor thought i could never live normally because of k.s., but he checked me about month...
    IWK3 IWK3 16-17, M 1 Response Jul 30, 2013

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    Situs Invertus

     I am situs invertus, and I do have problems with my sinus. I have had surgery on my sinuses but not one doctor told me that this could be related to Situs Invertus. I am now realizing all of the different diseases that is affected with Situs Invertus. But I must add that I...
    lindahi50 lindahi50 46-50 3 Responses Jul 9, 2009

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    Gavin's Story

    Dextrocardia With Situs Inversus 1 PERCENT OF THE POPULATION IN THE WORLD HAS DEXTROCARDIA WITH SITUS INVERSUS. THIS DISSORDER HAS NO PREFERRED GENDER OR RACE The only thing Loraine can recall being odd or different about her pregnancy with Gavin was that she was borderline...
    alienrain alienrain 31-35 2 Responses Jan 29, 2012

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    My Dextrocardia...

    seems to be only 1 in punjab with heart on right side... feels good to be some what extra ordinary... no one just believe till they check it pumping on right side.. just want to lead a good and a royal life...
    sahilnaib sahilnaib 18-21 Dec 7, 2012

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    How Did I Get Dextrocardia With Situs Inversus?!

    I am 21 years old and it was diagnosed with dextrocardia with situs inversus when i was weeks old. I have always been interested in finding out what the actual cause of this condition is?! But i have never been able to get an answer out of any of the websites i read. Any...
    ChloeLM ChloeLM 22-25, F 3 Responses Jul 16, 2013

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    Just the Same But "Backwards"

    I found out I had dextrocardia wht situs inversus when I was around 12.  My appendix was infected and my parents called the doctor, and was told that as long as it was not hurting on the right side, I was okay, it was probably just gas...HA!  My appendix burst and I...
    drpepgal drpepgal 31-35 2 Responses Jul 15, 2009

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    My 6yr Old Son Has Situs Inversus Totalis W/dextrocardia

    My son has always had recurring coughs, pnemonia and ear infections. When he was 4 they did a chest xray and noticed his "condition". He has seen a Pulmonologist. They confirimed he doesnt have asthma(thank God) but he still gets ongoing coughs and wheezes when the cough prolongs...
    situsboy situsboy 26-30 4 Responses Sep 21, 2010

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    I Just Found Out I Have Situs Inversus And I'm 28

    I just found out I have situs inversus when going to have a stomach sonogram for seizures that keep reoccurring. I had to wear a heart monitor for 24hrs to see if there is any connection with the seizure episodes. Now that they've discovered I have situs inversus I'm curious if...
    gabriellesr gabriellesr 26-30, F 1 Response Sep 8, 2013

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    For All Parents Of Dextro Cardia Situs Inversus Kids

    This is for all the parents who have recently come up to the horrifying (only intially) fact that their beloved kid is a rare case of dextrocardia with situs inversus.  I came to know about my daughter being one when she was 15 days. (she is now 6 months)  With all...
    dextri dextri 26-30, M 4 Responses Apr 11, 2010

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    I Was Born With Dextrocardia Situs Inversus

    My name is sajda asif and im 40 years old. My mother told me wen i was a child that i was born with detrocardia i didnt understand much about this then just new that my heart was a mirror image to a normal person . I grew up without any health problems led a perfectly normal and...
    deleted deleted 26-30 Apr 28, 2013

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    28 Living Herbally And Healthy

    I have dcsi and I have never been pregnant. I just want to know is there any women out there that has dcsi and had a baby? And any other info or advice u want to give me :-) ty
    blackbeautifulMe blackbeautifulMe 26-30, F 1 Response Jan 12, 2013

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    I Have Dextrocardia With Situs Inversus As Well As Marfans Syndrome

    Hi I have two unique conditions and constantly have to be seen by specialist. Dextrocardia with Situs Inversus and Marfans Syndrome. I don't let it affect my life I am very active I teach dance classes and go hiking. I do have chest pains and palpitations as well as...
    danceitoffwithaisha danceitoffwithaisha 36-40, F 2 Responses May 20, 2013

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    I have dextrocardia and I like the fact

    that I am different from others. My best friends know this and they also think it is cool. I never met a person also like this in real life - at least I do not know. I live in Netherlands. If you are somewhere nearby, maybe we can have a coffee together sometime?
    Zivazebra Zivazebra 22-25, F Jan 9

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    I Received a Medicalert Bracelet For 4th Birthday...n

     ...which was kind of weird. Have always felt different. Do others feel different, odd, strange? 
    inverseuniverse inverseuniverse 46-50 6 Responses Jun 11, 2009

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    Our Wonderful Children

    When our middle child was born she had a lot of trouble keeping her milk down. When she was four months old she was diagnosed with reflux and sent for a berium C. As the doctors followed the fluid down her body they suddenly stopped and started talking about her heart which made...
    Jumbled Jumbled 36-40, M 1 Response Jan 5, 2010

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    I Have Dextrocardia With Situs Inversus

    I was diagnosed when I was six years old with situs inversus with dextrocardia. I am 38 years old. I had my gallbladder removed 5 years ago. I consider myself pretty healthy spite the fact i have hypoglycemia too. I eat healthy for the most part and take good are of myself. I...
    ali914 ali914 36-40, F Mar 11, 2013

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    Emotional Wreck...

    Okay, let me start out by saying I am 19 years old, and pregnant with my 2nd daughter whom is due January 12th 2012, which makes me 21.5 weeks pregnant. I went in for pictures of my daughters heart today in an ultrasound, My 10 minute ultrasound turned in to a hour and a half of...
    Momiiof2 Momiiof2 18-21 2 Responses Sep 4, 2012

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    I Have Dextrocardia With Situs Inversus Too

    My parents  discover it when I was 5 , I get so sick and they took me to the hospital , at the first thy shocked but the doctors a sure them that i AM FINE.   And now at age 22  I have healthy and normal life , so I wanna say for any one how discover this...
    VreemV VreemV 22-25, F 9 Responses May 10, 2011

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    40 With Dcsi

    I was diagnosed right after I was born before I left the hospital. I also have Asplenia...5 of those bad boys! :) The only unusual thing I have experienced is whenever I happen to require x-rays...they always ask permission to use them for teaching purposes...which I always...
    pam197231 pam197231 36-40 Nov 14, 2012

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    dextrocardia

      I am not sure if I have my lungs reversed. I just know my heart is a dextrocardia. I found out after I had my appendix removed.  June 14, 1978, I started to have pain on my left side; my mother told everyone that I just over ate. Over the week I became very...
    jawss41198 jawss41198 41-45, M Nov 11, 2009

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    Even Paramedics Don't Know.

    Hey! I'm 21 just about to turn 22. I got diagnosed with full situs Inversus and Dextrocardia when I was about 9 at a routine check up a year after I had an operation on my belly button. (how they didn't find out before or during the operation I will never know!) I just the...
    AnthonyWilson AnthonyWilson 22-25, M 1 Response Sep 4, 2013

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    Stuff

    Last year I found out I had dextrocardia, how does this even happen like srsly
    jassabz jassabz 13-15 Nov 4, 2013

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    55 Years With Dextrocardiasitus Inversus

    My doctor found I had it when I was in first grade. It hasn't stopped me from doing anything I have ever wanted to do. I am a Naval Aviator who flew F/A-18s for 10 years. And finished my career as a LtCol in the PA Air National guard. I am the father of 4 healthy kids (none...
    BlueSpike15 BlueSpike15 51-55, M Jul 2, 2013

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    A Rare Breed - One In a Million

    I have Dextrocardia with Situs Inversus I have known about my Dextrocardia since a child. I found out I had Situs Inversus during my nurse training when I had a voluntary barium swallow. Working in health care I am often asked to be a guinea pig for students but...
    b2a1g7puss b2a1g7puss 56-60 3 Responses Aug 12, 2009

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    Living With Dextercardia Situs Inversus For 59 Years

    I was diagnosed with Dextercardia when I was 3 years old. I was told that the spelling and pronunciation of this condition was Dextercardia meaning "dexter" (right sided) and "cardia" (pertaining to the heart). As an infant I was often unwell with chesty problems. That was 56...
    emmgd emmgd 56-60 1 Response Nov 3, 2012

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    Mirror Dextracardia

    I was diagnosed with dextra cardia when I was born nothing.else.is placed differenly and I never have had any health problems or complication. 1 in 100000 they say and I want to find another one like me.
    Travbox Travbox 22-25, M Jul 26, 2013

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    Two Year Old

    My wife and I just found out our two year old boy has dextrocardia. Should we be freaking out? Our appointment is Tues with the cardiologist why aren't we already there
    heartdex heartdex 31-35 3 Responses Jan 17, 2013

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    22 Year Old Male With Dextrocardia With Situs Inversus

    I was born Oct, 7th 1990 and I cannot remember much about the time my parents where informed I have Dextrocardia with SI. I actually lived a fun childhood aside from being home schooled after Elementary and the many medical appointments. I also have Asthma and I have been told...
    mikeyttaylor mikeyttaylor 22-25 Apr 27, 2013

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    My Dextorcardia

    I was born in 1967 with Dextrocardia and situs inversus. I always knew that my heart and appendix were on opposite side to most other people, but found out through a full body scan a few years ago, that all my internal organs are mirrored. I do not see my condition as different...
    RightWayRound RightWayRound 41-45, F 2 Responses Sep 1, 2012

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    My Ten Yr Old Has Situs Inversus Totalis

    My ten yr old son has situs inversus totalis with dextrocardia. I found out he had it completely by accident. He was given an x-ray at the emergency room for something else and I was called back a few days later saying that I had to bring him back in for another x-ray they...
    vsheehy vsheehy 36-40 Jun 9, 2013

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