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I Have Diabetic Amyotrophy

Diabetic Amyotrophy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Diabetic Amyotrophy. You're not alone. 20 People

    I Have Type 1

    I have had type 1 diabetes for 21 years. In April of this year I started noticing weakness in my legs and then it just kept getting worse and worse. I have been going to the dr the whole time, and only found out that I have this Sept 21,2012.
    Jackie99705 Jackie99705 41-45, F Sep 24, 2012

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    It Will Pass (mostly)

    I developed diabetic amyotrophy 3 years ago. I would be walking along and suddenly it was like my whole foot was missing, I'd fall down. In about 2 months, the muscles on the tops of my thighs had weakened considerably. I lost 40 pounds. I couldn't stand up, I couldn't walk. I...
    Cosumne Cosumne 61-65, F 10 Responses Mar 7, 2011

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    Scary Diagnosis

    I was recently diagnosed with diabetic Amyotrophy. I am starting to experience very severe pain. At this point it is just my right leg. Have been using a cane for about Six weeks. I am afraid to use narcotics too often. I am afraid of addiction. Pain wakes me up at night I am...
    terijara terijara 51-55, F Sep 5, 2013

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    Early Warnings

    I AM NOW 70 AND 1/2 YEArs old.  When I was 68 I had periods of weakness which didn't last moe than a few minutes.  What was the pre-cursor of eveything was a pronounced bleeding of the gums around all of the teeth.   A visit to a dentist who had knowledge of...
    jcn jcn 70+ 2 Responses Jan 18, 2009

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    I Want To Walk Again.

    So in May, 2012 I had a stroke during open heart surgery. The day after I went home I was sturk with diabetic amyothrophy. The stroke hit center part of the brain and made my legs very weak and I was using a walker. When the Amyotrophy hit it totally disabled my legs, and also...
    markslighthouse markslighthouse 41-45, M 1 Response Jan 31, 2013

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    I Want My Old Life Back ... I Miss It

    I started walking with difficulty in early 2009. I have had a few doses of IgG infusion, but did not help much. I have had steroids, have used the Chi machine, all to no avail. Also havearm and hand weakness with significant muscle wasting throughout my body. I try to climb...
    steeda steeda 46-50, M 1 Response Apr 29, 2010

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    I Wish I Could Take His Pain Away

    My hubby has been diagnosed with diabetic amyotrophy. He's had type2 diabetes for about 6 years. It all began about 10 months ago with unexplained weight loss. At first he was just eating anything and everything he wanted, but he just kept losing weight! He was okay with it...
    avrille69 avrille69 41-45 2 Responses Jun 16, 2012

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    I Did Not Know There Was Anything This Painful On Earth!

    I am Angela and am 41 years old.  I started getting weak and had a hard time walking due to feeling so weak but about 5 months ago I became very painful especially in one side of my lower body.  The pain is sever now and on both sides.  Burning and strangulation of...
    lilbabyangie lilbabyangie 41-45 2 Responses May 31, 2010

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    Related Experiences

    I am a type one diabetic. I have an insulin pump. I had it two years ago when I was 12. Since then my long term glucose levels have dropped. Cos the pump gives you correction doses...
    blodyn blodyn 13-15, F 1 Response Oct 5

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    Were Here, Were Queer, Get Diabetic with it !
    davidmuhn davidmuhn 46-50, M Oct 13

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    Its that time of year again, Yes I want to shoot up and EAT the entire Halloween Candy Isle at Walmart ! Confessions of a Type 1 Diabetic !
    davidmuhn davidmuhn 46-50, M 1 Response 1 day ago

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    No matter how bad your day or your life for that matter is going, there is always someone out there who is having a worse one. For me all I have to do is recall my brother-in-law...
    lasergraph lasergraph 61-65, M 2 Responses Oct 7

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    Fall in the Hudson Valley, yes I broke down and got Doughnuts. I got Coffee instead of Cider but it was nice to eat something that reminded me of my childhood. I have been a Type 1...
    davidmuhn davidmuhn 46-50, M 4 days ago

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    I have four children they are my world my eldest is my only son he is almost 15 diabetic since he was two is an absolute math wiz my next child a daughter almost 14 has her...
    heather81 heather81 31-35, F Oct 8

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    And pregnant! This is my second pregnancy but my son is 7 years old so it's been a little while! Also, sugar level control is a little harder to keep between 4. And 8.5. Today...
    Whinny00 Whinny00 26-30, F 4 days ago

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    I am not diagnosed but I am bulimic and I starve.. Try to anyway it's hard because I'm type 1 diabetic
    AnasFailure AnasFailure 13-15, F 4 days ago

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    Does any other Diabetic also have Spherocytosis ?
    davidmuhn davidmuhn 46-50, M 8 hrs ago

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    I have IBS (Irritable Bowel Syndrome). I've always had a very sensitive digestive system, but it became really bad in 2010-2011. It was triggered because I had severe depression...
    spacepixie spacepixie 22-25, F 2 hrs ago

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    When I look back into my childhood, I could say that I was a happy-go-lucky child. I was one of those kids who played outside in clutters, with bikes, toys, and imagination. I didn...
    JumpingTomatoes JumpingTomatoes 16-17 1 hr ago

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    i have a crush who works on another location but we have the same company. lets call her vina. shes the kind of girl who almost got my ideal one. shes simple, smart, caring, sweet...
    KeeyCharming KeeyCharming 22-25, F 56 mins ago

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    Everybody has been on both sides of bullying. The bully and the victim, everybody, except maybe Gandhi. Throughout my career as a student in middle and high school, what I have...
    francake16 francake16 16-17, F 2 hrs ago

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    I understand she is my mother and I am supposed to respect her yet I can't respect anyone who treats me the way she does. If we have a disagreement and we try to talk it out she...
    Saphic33 Saphic33 26-30, F 53 mins ago

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    Sometimes, chaos comes into life catching you by surprise....The equilibrium you worked so hard to maintain is tipped off-balance....The ball of the pendulum is swayed from one...
    samemay54 samemay54 41-45, F 1 Response 4 hrs ago

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    Nudity isn't necessarily erotic; Children prove this to us everyday. In American society, however, we have been taught to believe that if someone is nude, we have to think of them...
    Ginkofishin Ginkofishin 18-21, F 4 Responses 1 hr ago

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    Happy Friday...I would have been happier if I had a result. I'm just going to sit here and have a little cry. I'm too tired to be able to resist.
    cheekyhannah cheekyhannah 31-35, F 1 hr ago

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    This is in regards to EP user badcaseofthebefores If you have the time and the inclination Please read one of 'her' posts called 'I am a Meat Eater'.... Then read my response. Now...
    blackinc blackinc 70+, M 4 hrs ago

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    I have. I was ashamed at the times but now that I look back, I'm glad I did because it brought upon a feeling I don't want to feel again.
    clamthatjams clamthatjams 22-25, F 1 Response 4 hrs ago

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    EP has really screwed up my sleeping, because several nights in a row I have stayed up until ungodly hours waiting to talk to person, I thought was special. However I am wondering...
    RebekahWriter13 RebekahWriter13 31-35, F 4 Responses 4 hrs ago

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    I actually have three, or four with my grandmother's dog. They are a Staffordshire Bull Terrier, Cocker Spaniel, Bichon Frisé and Cavachon. It gets a bit mad at times.
    Sam1189 Sam1189 22-25, M 2 hrs ago

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    Every night, I have problems sleeping. I spent most of the night tossing and turning, when I finally feel like I can go to sleep usually about 7 am, my phone starts ringing so I...
    Mr504 Mr504 36-40, M 1 Response 1 hr ago

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    I have an accent, New Zealand accent, it's so weird
    mattys1 mattys1 18-21, M 1 hr ago

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    Major guilt. Have I been a good influence being gay ?
    JoshM1974 JoshM1974 36-40, M 1 hr ago

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    Major guilt 😣. Have I been a good influence being gay ?
    JoshM1974 JoshM1974 36-40, M 1 hr ago

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    Well I'm an Aussie guy - so I have an Aussie guy accent :)
    joe33800 joe33800 41-45, M 51 mins ago

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    I have a southern accent and it makes it difficult when you travel and try to order something. lol
    countryguy30 countryguy30 22-25, M 1 Response 42 mins ago

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    My girl was always loving, sweet, honest, helpful, and respectful! Now, she would rather confide in strangers than her own mum and she told someone I am stupid! What have I done...
    sailnude sailnude 41-45, F 3 Responses 31 mins ago

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    Or just one. Poorly diagnosed. My grandmother was misdiagnosed. So fear fills me. And heart attacks made research painful. Cigs may have caused them. Or seroquel...
    Livyn4pals Livyn4pals 46-50, M 1 Response Sep 24

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    I have a mild learning disability. I was put in a special classes. From Gr. 8 to Gr. 12. I was teased and my English was not good either.After I graduated from high school. I took...
    DiscoNight1970s DiscoNight1970s 46-50, F Sep 24

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    I'm a sixteen your old guy and pretty mature for my age cause I grew up without a dad so I had to father my younger sister. Anyways a little while ago, probably 1 month, a women...
    Dante12345 Dante12345 16-17, M Sep 24

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    I've come to think about how lucky I am to have someone like my dad come along in my life. I don't know how I'd become myself without him. I love how patient and caring he is when...
    risingangel risingangel 16-17, F Sep 24

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    Experiences like this are just a reason to have earth be slammed by an asteroid.
    ValhallaAwaits ValhallaAwaits 18-21, M 1 Response Sep 24

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    My girlfriend is the most beautiful woman I have ever seen. I remember seeing her for the very first time. She's everything I love.
    ValhallaAwaits ValhallaAwaits 18-21, M Sep 24

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    Instead of the norm of bad people in one place and good people in the other what if each individual human created their own afterlife? Now this idea may not be as far fetched as it...
    bdr2037 bdr2037 22-25, M Sep 24

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    Guys, my manager has been coming onto me lately. It started off as subtle gestures, he would make my orders, make me lunch, leave me with my own shifts. Then the sexual jokes...
    VousEtesBelleCM VousEtesBelleCM 18-21, F 4 Responses Sep 24

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    My experiences have been both good and bad. I am interested in sharing what others have experienced. Thank you.
    deleted deleted 26-30 1 Response Sep 24

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    I have a youtube channel and I like singing but I am so afraid of people there I'll get hate comments but I just want to share because I love singing and I want to meet friends...
    nonichecliche nonichecliche 18-21, F 2 Responses Sep 24

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    Of course I do, I have red blood running through my veins :D !!!He starred in the hit show Stargate Atlantis, which ran from 2004-2009.The fascinating and physically demanding role...
    lunadelobos lunadelobos 41-45 1 Response Sep 24