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I Have Diabetic Amyotrophy

Diabetic Amyotrophy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Diabetic Amyotrophy. You're not alone. 20 People

    I Want My Old Life Back ... I Miss It

    I started walking with difficulty in early 2009. I have had a few doses of IgG infusion, but did not help much. I have had steroids, have used the Chi machine, all to no avail. Also havearm and hand weakness with significant muscle wasting throughout my body. I try to climb...
    steeda steeda 46-50, M 1 Response Apr 29, 2010

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    I Have Type 1

    I have had type 1 diabetes for 21 years. In April of this year I started noticing weakness in my legs and then it just kept getting worse and worse. I have been going to the dr the whole time, and only found out that I have this Sept 21,2012.
    Jackie99705 Jackie99705 41-45, F Sep 24, 2012

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    I Want To Walk Again.

    So in May, 2012 I had a stroke during open heart surgery. The day after I went home I was sturk with diabetic amyothrophy. The stroke hit center part of the brain and made my legs very weak and I was using a walker. When the Amyotrophy hit it totally disabled my legs, and also...
    markslighthouse markslighthouse 41-45, M 1 Response Jan 31, 2013

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    I Wish I Could Take His Pain Away

    My hubby has been diagnosed with diabetic amyotrophy. He's had type2 diabetes for about 6 years. It all began about 10 months ago with unexplained weight loss. At first he was just eating anything and everything he wanted, but he just kept losing weight! He was okay with it...
    avrille69 avrille69 41-45 2 Responses Jun 16, 2012

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    Early Warnings

    I AM NOW 70 AND 1/2 YEArs old.  When I was 68 I had periods of weakness which didn't last moe than a few minutes.  What was the pre-cursor of eveything was a pronounced bleeding of the gums around all of the teeth.   A visit to a dentist who had knowledge of...
    jcn jcn 70+ 2 Responses Jan 18, 2009

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    It Will Pass (mostly)

    I developed diabetic amyotrophy 3 years ago. I would be walking along and suddenly it was like my whole foot was missing, I'd fall down. In about 2 months, the muscles on the tops of my thighs had weakened considerably. I lost 40 pounds. I couldn't stand up, I couldn't walk. I...
    Cosumne Cosumne 61-65, F 10 Responses Mar 7, 2011

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    Scary Diagnosis

    I was recently diagnosed with diabetic Amyotrophy. I am starting to experience very severe pain. At this point it is just my right leg. Have been using a cane for about Six weeks. I am afraid to use narcotics too often. I am afraid of addiction. Pain wakes me up at night I am...
    terijara terijara 51-55, F Sep 5, 2013

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    I Did Not Know There Was Anything This Painful On Earth!

    I am Angela and am 41 years old.  I started getting weak and had a hard time walking due to feeling so weak but about 5 months ago I became very painful especially in one side of my lower body.  The pain is sever now and on both sides.  Burning and strangulation of...
    lilbabyangie lilbabyangie 41-45 2 Responses May 31, 2010

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    Related Experiences

    I have diabetic gastroparesis and am looking for friends that might help me understand how to live with this better
    vickimc58 vickimc58 56-60, F Jul 3

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    I am 52 and at the age of 21 I had my first blood work because I was pregnant. They told me I was gestational and not to worry. It my diabetes never went away. So my gp treated me...
    NancyVK NancyVK 51-55, F Jul 23

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    I'm 18 now, and I got tested for diabetes last year. My mom noticed that I was drinking a lot more than usual. In fact, up to ten bottles of water a day, constantly thirsty. I went...
    thecellist thecellist 18-21, F Jul 17

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    I have type one diabetes. it sucks. I hate it. and it hates me.
    dunmerprince dunmerprince 18-21, M 1 Response Jul 4

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    I've made several posts with this heading, and I'm aware that this might make it hard to follow if looking at multiple posts. However, this is my current focus and all of these...
    DanicaER DanicaER 36-40, F 1 Response a week ago

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    It all started when I was in 3rd or 4th standard. I have been struggling with obesity from the 1st standard but Acanthosis Nigricans(Lets call it AN) started developing in 3rd or...
    HarshadaA HarshadaA 22-25 Jul 15

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    My name is Garrett and I am 23 years old. I was diagnosed with Type 1 Diabetes when I was 12. Every day since then insulin and needles have been an integral part of my life. It's...
    GarrettTheGinge GarrettTheGinge 22-25, M 1 Response 5 days ago

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    My head and thoughts are no longer of my own. I cannot tell you the month day or time. I do however know the year is 2014 and august 7 rapidly approaches whatever today's date...
    simpleandsweet36 simpleandsweet36 36-40, F 2 hrs ago

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    I have had morphea since 1965 at the age of 14. Back then it was extremely rare to find a doctor who even knew what morphea was. My morphea started as a round spot on my wrist...
    Muffygirl Muffygirl 61-65, F 38 mins ago

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    People have ****** me over to much ill make it short and sweet for yall because if I told you why I have trust issues and how many people have hurt me then wed be here for a long...
    BornDifferent BornDifferent 18-21, F 2 hrs ago

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    Have you ever hated anyone who made your life a living hell? A sick and twisted psychopath, who gets off at seeing you in pain. I have had an experience with such a person, it...
    BleedingPrimrose BleedingPrimrose 18-21, F 1 Response 1 hr ago

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    Ugh, I'm so socially awkward due to my anxiety and it bugs me. I can't manage to sleepover anywhere. I always end up coming back home. I have to keep my phone charged and on me 24...
    TheSongPlaysWithin TheSongPlaysWithin 16-17, F 1 Response 2 hrs ago

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    my message to another EP member: once you accept death (like I have) you make yourself a work of art. seriously, look at me. would I act the way I do if I hadn't pondered suicide a...
    mierdamundo mierdamundo 31-35 1 Response 1 hr ago

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    I have been dreaming about my ex boyfriend lately, but I honestly don't think of him anymore. I know it means something but I don't want to talk to him anymore.
    Jelliii Jelliii 22-25, F 57 mins ago

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    How can someone ever love me if I don't like myself sometimes. I have my good days and my bad days. Honestly today feels like one of those bad days. Sometimes though I come to the...
    Savone52798 Savone52798 16-17, F 3 Responses 39 mins ago

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    I'm 21 and I didn't get diagnosed till last year in May. It pretty much explained everything I was going through, the panic attacks, the endless worrying, the nausea and the...
    chrisxderp chrisxderp 18-21, F 33 mins ago

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    Since around the time I was 8, At every physical I had I was told that I had a curve in my spine, I thought nothing of it until I went for my physical when I was 11, the doctor...
    HelloLittleTurtle HelloLittleTurtle 13-15, F Jul 1

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    When I was sixteen, I had a dream that I could fly. Not especially strange in general, I'm sure a lot of people on here have. But how many people have woken up after a dream like...
    badgerman42 badgerman42 22-25, M 1 Response Jul 1

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    What I hate most are the people who don't even have the disorder/illness/disease whatever you want to call it and they try to take over and tell you what to do. Like no, back up...
    usmcdaughter usmcdaughter 18-21, F 4 Responses Jul 1

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    I have psoriasis on my hands, and it is beginning to spread to my nails. It isn't painful on my nails (but bloody hell does it hurt when it flares up on my skin.) It just looks...
    lattemaker lattemaker 22-25, F 1 Response Jul 1

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    It is so frustrating to have anxiety. Along with all my other health issues, anxiety and depression are much more debilitating. I would never wish anxiety upon anyone. The question...
    cassidybute cassidybute 18-21, F 5 Responses Jul 1

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    I meet wonderful strangers that I can honestly call friends on EP. Alana000 you are a sweetheart very caring and adorable & beautiful girl. I feel very happy to have meet you...
    Ilyme Ilyme 31-35, F 3 Responses Jul 1

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    I have become the scapegoat daughter of a narcissistic mother, and I don't know what to do anymore. She has physically harmed me on multiple occasions, and the next morning denies...
    psychfemme psychfemme 18-21, F 4 Responses Jul 1

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    I have been improving my belief in my self More lately it's wonderful
    rosiebloom rosiebloom 22-25, F 1 Response Jul 1

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    This is by far one of the funniest things I have ever seen !
    LovelyLadyJ LovelyLadyJ 22-25, F 6 Responses Jul 1

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    You have to do some thing different to get some thing different
    rosiebloom rosiebloom 22-25, F 1 Response Jul 1

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    Her name is Darlene and she is a piece of crap. He heat doesn't work in the winter. Her windshield is extremely cracked. Her tires squeak. Her driver side door doesn't open from...
    sunflowerpet sunflowerpet 18-21, F 2 Responses Jul 1

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    I am no one to use my situation to my advantage. I don't seek sympathy; I prefer empathy. I don't want people to feel sorry for me; I want people to understand. It makes me angry...
    makefriendswithchaos makefriendswithchaos 18-21 Jul 1

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    I am not your average skinny white girl. I am a thicker girl and I am trying to love the way I look. I don't have the skinny waist and the tiny thighs, but the world wasn't meant...
    ericaaa987 ericaaa987 13-15, F 1 Response Jul 1

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    I was totally in love with this one guy thinking we would last forever. He was very religious and turns out I guess god told him to stop. So then our relationship ended and he...
    Sparklefuck Sparklefuck 13-15, F Jul 1

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    To anyone with any questions about POTS or wanting some enlightenment or to have a laugh check out my blog at www.potsisthepits.com
    cassidybute cassidybute 18-21, F 2 Responses Jul 1

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    I try ti control it and I am getting more successful over time. After I have lost my temper I end up ashamed that I have done so.
    paulalafemme paulalafemme 41-45, F Jul 1

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    Sure I have a few friends, but no good ones. No loyal ones. No friends I can relate with being that I am a weird person. And today, in life, it's difficult to find good friends...
    TacTaco TacTaco 22-25, M Jul 1

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    Society demands people to act normal, to do things appropriately with the right corresponding manner and I have nothing against it. Its just that most people try so hard to blend...
    zynicx zynicx 18-21, F 1 Response Jul 1

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    I have a box but its a box i have for my mum with stuff in there that i took when she past away. Its got her mobile phones in it and a shirt she always use to wear, it was a bit...
    Gentleandlovingsoul Gentleandlovingsoul 36-40, F 2 Responses Jul 1

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    There comes a point in every relationship where we know we need to walk away. Even when every instinct in us is screaming to hang on for just a little bit longer, we don't have it...
    diablesse34 diablesse34 46-50, F 21 Responses Jul 1

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    I was at a swimming pool, sitting near the edge, and a man had his leg caught up with a huge metal plug and kept being dragged beneath the surface. I was clinging to him with all...
    AngelofPink AngelofPink 18-21, F 2 Responses Jul 1

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    All of my friends have one or the other, or both. I have resisted the temptation and I am proud. There's nothing wrong with tattoos if you like them, I just think they are a...
    reelman4372 reelman4372 31-35, M Jul 1

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    Never have, never will. If she isn't sure who she wants, then I don't want her.
    reelman4372 reelman4372 31-35, M 1 Response Jul 1