I Have Dilated Cardiomyopathy

A Dilated Cardiomyopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dilated Cardiomyopathy. You're not alone. 75 People

    35 Year Old Mom With Dilated Cardiomyopathy Just Need To Say It Out Loud

    Hi there. I'm a 35 year old African American female that just learned I have dilated cardiomyopathy with Ef 35% about a month ago. Besides being in shock, I'm pretty much numb with the whole thing. I'm taking Coreg & Cozaar, taking my blood pressure everyday & my weight. My...
    nitab143 nitab143
    36-40, F
    2 Responses Sep 2, 2013

    Dilated Cardiomyopathy Ef 24%

    My husband (36 yrs) was just diagnosed 1 month ago w/ CHF dilated cardiomyopathy. His ef is 24 % and we've had angio, echo, done. Everything in his RV is normal, the problem is his LV is severely enlarged about 7 - 8. I think doc said 5 was normal. He has shortness of breath...
    Mgm2 Mgm2
    3 Responses Mar 19, 2012

    Living With Cardio Myopathy

    I have recently found out that I have cardio myopathy which means that i have a enlarged/weakened heart. the heart has to work harder because it cant pump blood around my body effeciently.A few months ago I could hardly breathe, wheezing, coughing, breathlessness and almost...
    Nosy45 Nosy45
    46-50, F
    Jul 22, 2013

    Keeping Hope!

    June 17, 2010. On my 32nd wedding anniversary my husband, age 51 was diagnosed with Nonischemic Idiopathic Cardiomyopathy. I decided to post here so you see good things can happen. I have been at the bottom of that dark pit! At diagnosis my husband's EF was 10%, he had huge...
    SJ13 SJ13
    51-55, F
    4 Responses Oct 2, 2012

    36 With Cardiomyopathy

    I am 36a with cardiomyopathy. I was dx'd in 2008 with an ef of 40. They put me on coreg and beanzepryl and my ef went up to 60 in 6mos. Unfortunately it didnt stay there, it is now at 35. Although I feel it has dropped lower, my last echo was 10 mos ago. I have some shortness of...
    Dsmtay Dsmtay
    36-40, M
    1 Response Sep 9, 2012

    I am a 57 year old fairly active woman

    that started experiencing shortness of breath, tiredness, heart palpitations and just feeling terrible. I was diagnosed in 2013 with cardiomyopathy. My EF was 30 at that time. My cardiologist suggested that I take carvedilol 25mg twice a day then it was increased to 50mg twice a...
    deleted deleted
    Jul 10, 2015

    Yeah, Me Too

    Shylasnana was diagnosed 9 1/2 years ago. I'm still here, look after a three bedroom house, 3 dogs, 1 teenager still at home, work full-time (40 hours per week), I'm 53 years old. Don't ask me how I do all of this cause I don't know. I'm here to listen and maybe learn from all...
    Shylasnana Shylasnana
    Aug 11, 2012


    I everybody! I was just recently diagnosed with cardiomyopathy. I am 24 years old. I am a mother of 2 small children ages 3 and 20 months. When I heard the news it did not take me long to realize the gravity of my situation. I broke down in tears. I read everything I could get my...
    tonya137 tonya137
    3 Responses Jul 1, 2010

    Dilated Cardiomyopathy @ 23

    hi there. i have recently found out i have dilated cardiomyopathy. i was tested as my mother was diagnosed with it 3years ago. which came as a shock. even more of a shock was the fact that my test came back positive too. i have had a few different tests and all have led to the...
    lilmiss106 lilmiss106
    Nov 27, 2012

    I was diagnosed with DCM at age 19 (now 26)

    with an EF of only 30% and heart failure stage 3.. Went into cardiac arrest 4years ago and needed to get a pericardial window done since my heart was filled with 600ml fluid and was near death. After all of this i'm doing ok. My ef is now at 40-45% and i no longer need to have...
    deleted deleted
    2 Responses Jun 4, 2014

    It Happened In A Summers Night

    12  years ago i woke from my sleep in heavy breathing  , i went to the kitchen sat and looked at the clock on the micro wave  as 3 minutes passed  i then looked up  and said well god  how long is this going to go on for  then at the fourth moment it subsided    , thats...
    rockycatt rockycatt
    1 Response Mar 21, 2011

    New Condition

    Hello. My name Is Dereck. I have dilated cardiomyopathy and was diagnosed approximately a year ago. I have had a rough time dealing with this and all the changes to my family and myself. I have many questions and concerns that I am not able to share with anyone who can relate...
    dereck0612 dereck0612
    31-35, M
    1 Response Jul 22, 2012

    I Need Some Help- I Am Writting A Piece About This To Spread Awarness In The Community.

    I need to know the answer to a few questions:1. How long could it take for a person to identify the minor symptons of dilated cardiomyopathy and go to the doctor?2. Could somebody possibly give me a timeline of what happened to them.   -ie. what symptons they suffered...
    graygray96 graygray96
    4 Responses Mar 29, 2011

    Dilated Cardiomyopathy

    I am 36 years old and was recently diagnosed with idiopathic dilated cardiomyopathy. I have been in good health until I fainted out of the blue 2 weeks ago. I was semiconscious for a short time and when I came to, I felt like my heart was fluttering and I had a shortness of...
    rorktm rorktm
    36-40, M
    5 Responses Dec 3, 2011

    I'm 36 years old and was diagnosed with DCM in

    January with an EF of 10%. Second echo was done in April and EF is still 10%. I'm wearing this life vest thing and waiting to go back in 6 weeks for another echo. Never heard of DCM until I got it. Makes me look a life a little different. Went to the ER back in Jan, due to...
    Damdamjr Damdamjr
    36-40, M
    2 Responses May 21, 2015

    Love To Play

    I was diagnosed with dilated cardiomyopathy last year. I am a forty one year old male and in pretty good shape. I played soccer twice a week as a center defender for my men's team. I mountain bike regularly and surf whenever I can (could). I almost passed out during a soccer...
    sierraandy sierraandy
    41-45, M
    2 Responses Apr 30, 2013

    Need Help

    I was just diagnosed with dilated cardiomyopathy last week. I'm at 20-25% and currently wearing a life vest (defibrillator). Living in Houston gives me a lot of options but it's really hard to know who is best. Can anyone give me information on who is the best cardiologist to see...
    julie323 julie323
    41-45, F
    3 Responses Oct 17, 2013

    Noncompaction Cardiomyopathy

    I'm 34 years old. After a year of suffering from severe breathing issues and debilitating bronchitis-like illness every 4-6 weeks, and several months of doctors passing me around to different specialists, I have been diagnosed with noncompaction cardiomyopathy. Apparently, it's...
    Heartless34 Heartless34
    36-40, M
    4 Responses Nov 18, 2013

    Needing To Prolong My Life

    I have familial DC and at age 52, I desperately want to avoid a heart transplant yet live to age 75 or so. I am going to get a bivent pacemaker next month which I hope will drastically improve my EF which is 30-35%. This three lead device is supposedly helpful only 60-70% of the...
    Lizabuff Lizabuff
    51-55, F
    2 Responses Sep 15, 2013

    Living With CHF/Dilated Cardiomyopathy.

    I was at peak health, power lifting and running. I was 245 lbs of USDA Grade A beef and about to go tryout for an AFL team. I was a successful, young executive being groomed for VP of my department (HR) for a major U.S. offshore drilling company. Married with two great little...
    N8er N8er
    36-40, M
    3 Responses Feb 22, 2012

    Diagnosed With Viral Cardiomyoperthy

    Hi all, I was diagnosed with dilated cardiomyoperthy 3 years ago after hVing. Really bad flu. I now have an ef of 35 and am doing pretty well I don't exercise alot as I no I should but still work full time shift work. I have not met anyone else with this but have read stories and...
    Hazardofdukes Hazardofdukes
    46-50, F
    5 Responses Jun 27, 2012

    I'm 22 years old and was diagnosed with DCM 4

    months ago with an EF of 24%. I had my first Echo in September and a followup Echo in December with no improvement. I am currently wearing a defibrillator vest until I can get an ICD. My doctors say they don't think that I will show any improvement. I actually feel really good...
    kl0214 kl0214
    22-25, F
    Jan 31, 2015

    35 Yr Old Female With Dilated Cardiomyopathy Wants To Know If The Way She Feels Is Normal For The Disease And What To Expect

    I went to the Dr.s for a chest cold he heard an irregular heart beat not previously heard, sent me for a serious of test and it went from there.  That was in 2004.  For the first 5 years, it didn't even seem to effect  me.  I kept thinking they must be wrong or that I had...
    kymdo1369 kymdo1369
    36-40, F
    12 Responses Aug 6, 2011

    Recently Diagnosed

    Hello all, I'm a 39yo male and was recently diagnosed with idiopathic (well idiopathic so far) dilated cardiomyopathy. It started out about 4 weeks ago with palpitations that didn't seem to go away, felt like my heart was skipping a beat every 5 or 10 mins now and then...
    walrus808 walrus808
    1 Response Aug 8, 2012

    Skipped Beats Normal After Starting Meds?

    Hi All, Was wondering if it's normal to still feel skipped beats after starting beta blockers to treat my DCM. I'm only on 6.25mg of COREG twice a day so far and will be entering my third week on the meds shortly. My heart will be beating normally then feels like a...
    walrus808 walrus808
    3 Responses Aug 16, 2012

    We Didn't Ask For This

    My cardiologist - now a Senior Cardiologist at Papworth Hospital - when questioned about the probable cause of my illness stated clearly that this condition can be caused by a number of factors.  Most likely to be inherited factors, virus damage, sustained high blood pressure...
    deleted deleted
    5 Responses Feb 19, 2011

    I Still Feel Fine

    Hi i have DCM for four years now my ef was 10% and my lv was 8.5cm and i didnt even know that i had a problem since my bivent my ef is 35% and my lv is 6.5cm and i still feel fine and i am wondering how long i can keep feeling good
    ger123 ger123
    Jan 2, 2013

    Awaiting Results..

    hi all im a 23 year old mummy. my mum was diagonised with dilated cardiomypathy 2 years ago and her imediate family was tested. every body came back all clear.. all but me that is. my doctor told me that my echocardiogram was worrying and that i needed to have an MRI scan in...
    glammy106 glammy106
    1 Response Aug 23, 2012

    Dilated Cardiomyopathy

    I was diagnosed April of 2010, with Cardiomyopathy. I am currently on Cardevilol and Ramipril. I feel tired alot and sometimes can't do a lot of the things I use to do. Sometimes feel alone in this world, with this disease. Lucky to find groups like this to share and learn more...
    ladyj55 ladyj55
    5 Responses Aug 31, 2011

    What To Expect?

    Hi my husband was recently told he has dilated cardiomyopathy and Left Bundle Branch Block. He is on the max dose of Carvedilol and ramipril. So far after 4 1/2 months there has been no improvement with his ejection fraction which is at 30%. How long does the medication take...
    angi3229 angi3229
    4 Responses Nov 2, 2011

    Questions About Cardiomyoaphaty

    Greetings! I am a 35 year old bright and out going woman! I love t live life. However latley my health is not the greatest. I was dignosed with CHF at 22 years of age! I have been healthy however the older I get the worse my heart seems to be getting. I work full time however it...
    ctipton1 ctipton1
    31-35, F
    1 Response Oct 22, 2012

    Life Vs Me !

    So i was always a bit chubby, enjoyed my life, had some good friends, great parents. I always had a smile on my face and whatever life could throw at me i could take it with a smile.Until i was diagnosed with DCM (Dilated Cardiomyopathy) Ef Rate 15% - 4 years ago my life changed...
    overfragged overfragged
    26-30, M
    2 Responses Sep 4, 2012

    Jasmine 25

    Hello my name is Jasmine I was diagnosed with Cardiomyopathy in Feb 2010. I have two beautiful children 6 and 2. I inherited this condition from my father who died in 2007 after a heart transplant. I am trying to live each day to the fullest but have recently become depressed due...
    jazz87 jazz87
    2 Responses Mar 14, 2012

    Newly Diagnosed With DCM

    Hello all I was diagnosed about 6 weeks ago with DCM and atrial fibrillation with an EF of 40%. My LVEDP is 10 mmHg. At 75 years old I realize that I am much older than most of you. I live in Switzerland with a wonderful wife and would like to extend my life as long as possible...
    paulbasel paulbasel
    Oct 17, 2013

    Being A Cardiomyopathy Survivor.

    When I was about a year old I was diagnosed with Dilated Cardiomyopathy. I can only imagine how hard it must have been for my parents to see their child so poorly. As I was only very young I can hardly remember anything about my treatment, although I've been told I spent a long...
    gt96 gt96
    Feb 8, 2013

    Patient Living With Cardiomyopthy For 6 Years

    Im a 13 year female and i was diagonesed when i was 7 years old it was the scariest month of my life.  i got very sick with vomiting fever and other symmptoms. it took them 3 days of being in the ICU for them to figure out my issue.. i was in the hospital for 9 days.  i...
    cheytriv cheytriv
    13-15, F
    3 Responses Dec 8, 2009

    Hi, I'm 20 years old

    and have Dilated Cardiomyopathy. I was originally diagnosed with Ventricular Tachycardia at age 9. I had 2 ablation procedures within ages of 9 & 12. After the 2nd ablation, I was diagnosed with Cardiomyopathy. (Both of the ablations failed by the way). I now have an ICD...
    Ryendie22 Ryendie22
    1 Response Aug 16, 2015

    Heartsick And Heartbroken

    So about a month ago I found out that I have it. It's so hard to be only 19 and know I have such a short time. I've had it for a while apparently. Thinking back I had heart tremors/murmurs at a young age. It's so hard and no one understands. Its worst that people I thought would...
    Stickman1154 Stickman1154
    3 Responses Jun 19, 2011

    Laura 18

    My name is Laura and I was diagnosed with Dilated Cardio myopathy in March this year, totally unexpected as I have never been in hospital for anything except a broken toe! It was a big shock and still is sometimes when I think about it but I just keep positive and that's the best...
    Lauraaaaa94 Lauraaaaa94
    18-21, F
    3 Responses Sep 10, 2012
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