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I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 42 People

    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

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    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

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    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

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    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 22 Responses Aug 15, 2010

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    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

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    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

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    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

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    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M Jun 11, 2013

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    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

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    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

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    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

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    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 22-25, F Jan 20

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    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19

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    Related Experiences

    And I plan on keeping it the way it is. It's been, I believe.... 5 years and I love it. Before all of this, I also had that "Creamy Crack" slapped on my head, starting at age 13...
    thatonecollegekid thatonecollegekid 18-21, F 1 Response Jun 26

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    CRPS, known as "craps" in my circle, is a whole new life experience I would just as soon skip. While I have learned some good things from God through this, I would also like to ask...
    turtleclan turtleclan 41-45, F Jun 26

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    Crossed the finish line of a marathon last week and within 10 mins I was in an ambulance. Hives, throat closed up, tongue swollen, eyes and hands swollen...I was surprised to say...
    MPLS1973 MPLS1973 41-45, F Jun 28

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    My name is Sarah, I'm 16 and I have TTM. I have been pulling for about 3 and a half years. Currently I wear a full wig and have little to no hair. I have gone through lots of...
    trichygirl trichygirl 16-17, F Jun 29

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    I found out about my hpv last year at what I thought was going to be a routine pap-smer. After the exam was over my doctor told me that I had some genital warts that I had been...
    Billiejean92 Billiejean92 18-21 1 Response Jul 2

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    I've had guttate psoriasis for a little over a year now. At this point my knees, elbows, scalp, back of my arms and ears are affected. While it is uncomfortable and unsightly...
    aereimann aereimann 18-21, F 1 Response Jul 9

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    it's really hard dealing with curly hair. The knots, kinks, tangles. it's crazy, but it's worth it. I think curly hair makes anyone look playful and fun, so that's why I love my...
    purplehorizons665 purplehorizons665 16-17, F 7 Responses Jul 12

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    This disorder is tearing me apart, literally. This is probably the first disorder I've ever had; since I was a toddler I've been picking obsessively at my scalp and creating little...
    meganbxiley meganbxiley 16-17, F 1 Response a week ago

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    I am 20 years old and I have suffered with severe eczema since I was 6 months old. It has always taken over my life and as a teenage girl, stopped me from living my life the way I...
    maydaisy maydaisy 18-21, F 1 Response a week ago

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    Psoriasis, Dermatitis, & eczema. I have in on my feet, ears, & sometimes my armpits! Lately it's been getting incredibly server on the crease of my nose and scalp. I'm on a TON on...
    MovieJunkie MovieJunkie 16-17, F 2 Responses a week ago

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    I can't remember a time when I wasn't struggling with Trich in my life. I'm 19 years old now, and my mom can still recall me ripping clumps out of my hair and making piles when I...
    kpmc612 kpmc612 18-21, F 2 days ago

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    And one tarantula! My dogs are: scalpel, jade, Mac, Louie, and Bella! Thor's my tarantula!🐶🐶🐶🐶🐶
    Zebra123456 Zebra123456 13-15, F 5 hrs ago

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    I have had psoriasis since I was 7 years old. I've undergone more treatments than I can remember. It is on my arms, legs, torso, scalp, hands, ears, nose, and ankles. I AM...
    scorpionflower1 scorpionflower1 36-40, F 1 Response 3 hrs ago

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    September 2010: Sometime this month, without knowledge, I conceived my second child. I was living in Dodge City, KS with my ex fiancé and his son. We were constantly fighting and...
    Krissysheart Krissysheart 22-25, F 1 Response 1 hr ago

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    I am Lisa new here. I don't know how to describe myself. I am a sentimental but optimistic girl. I feel so lone and helpless when I was told that I had affected with herpes.I have...
    herpesltr herpesltr 31-35 1 hr ago

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    It is a friend with benefits rather than multiple like the title suggests. I have never done it before. Probably wouldn't do it again. But now I feel trapped and I think he does...
    starflower1 starflower1 26-30, F 1 Response 1 hr ago

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    Welp so it looks like I'm the first post here. *takes a deep breath* okay, so my mom who is now 37 years old is a drug addict, more specifically meth, speed, heroine and whatever...
    Cryingsmile Cryingsmile 16-17, T 1 Response 32 mins ago

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    (Pic) Ya i have bad days, but they could be worse. I feel sorry for Mr. Stickman. He really has been out through a lot all these years.
    QuiltedBathwater QuiltedBathwater 18-21, M 1 Response 1 hr ago

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    I was raped by my brother of 8-9 years my age; who was beaten and raped by my half brother of 10-11 years my age who was raped by his mother and beaten by our father. Fun family...
    LightYagami LightYagami 18-21, M 1 hr ago

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    I am new to this site. misdiagnosed at 2 then again at 8 and finally diagnosed correctly with BM. MDA camp every summer but i still feel pretty alone. still struggling with the...
    sydneyalexis97 sydneyalexis97 16-17, F 1 hr ago

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    Yep lol it is my weakness I have when it comes to attractive guys
    Unsettledteen Unsettledteen 18-21, F 1 Response 1 hr ago

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    I absolutely love my natural hair. My texture is 4C and believe it or not I have NEVER had a perm.
    ohshxtitshelen ohshxtitshelen 16-17, F 1 Response Jun 24

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    So, I got my license Friday. I turned 16 in December but I really didn't want my license because driving makes me angry, like I get serious road rage. Anyways I actually like...
    Frenchfry3 Frenchfry3 16-17, F 1 Response Jun 24

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    I wish I can have a blog. I'd feel so happy sharing my thoughts. I warn you, "viewer discretion advised". I just cannot find the time. When I'm high I get amazing things. Even when...
    xylazam xylazam 18-21, M 1 Response Jun 24

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    I once have haphephobia. Fear of being touched. But now I'm cuddly as Koala.
    Uxio Uxio 18-21, M Jun 24

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    He used a million different names - he asked me to remove his user name, so I did so........ But he was a true friend. Someone I trusted and loved. But I think he might have...
    TheContemporaryDancer TheContemporaryDancer 13-15, F 3 Responses Jun 24

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    For the last two weeks or so, I've been so depressed. I just really hate myself for so many things. I hate that my life is going no where & that I am just a useless person. I...
    AlyAngel AlyAngel 22-25, F 4 Responses Jun 24

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    I would but I have nothing. Besides I know what happens by now, I give up everything and yet still people take and take, it's why I hate most of the people I meet.
    FeelingAmazingRightNow FeelingAmazingRightNow 13-15, M 1 Response Jun 24

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    I just had an interesting dream. The dream began with me standing in the middle of a forest of dead trees at night. As the mist blurred my vision, the pitch black outline of what...
    StraCat StraCat 31-35, M 2 Responses Jun 24

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    I have to sleep. I want to keep posting but...sleep...
    Nooneknowsmythoughts Nooneknowsmythoughts 18-21, F 2 Responses Jun 24

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    I have a dog who likes to be always inside the fridge, that's so 'cool'.
    Uxio Uxio 18-21, M 1 Response Jun 24

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    40th birthday in a week and decided bollocks to it I'm still gonna act 18 and have a laugh,you only get one shot at life might as well enjoy it
    murgy murgy 36-40, M 1 Response Jun 24

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    I've been drunk before. I've been high before. And I've been cross faded before.. I have no regrets about what I did during those periods of time because I remember them and...
    JuBear424 JuBear424 18-21, F 1 Response Jun 24

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    My Dad believes in corporal punishment and use the cane. Which girl or boy have the same problems too?
    Pattylein1998 Pattylein1998 13-15, F 15 Responses Jun 24

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    I have 2 piercings on each ear. I can't wait till I get older cuz I want my belly button pierced 💕👌😁
    itsthisgirlagain itsthisgirlagain 13-15, F 1 Response Jun 24

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