I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 46 People

    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ
    41-45
    3 Responses Sep 13, 2012

    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin
    36-40, M
    Oct 14, 2013

    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef
    31-35, M
    Jul 6, 2012

    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc
    36-40
    5 Responses Oct 15, 2011

    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48
    46-50, F
    4 Responses Nov 8, 2012

    why does this thing has to happen to us.

    I recently turned 27 I have had a this for about a year now and let me tell you that this is awful, being judged by people being ridiculed, sometimes I just wish it would end. when I was a little kid I wasn't the best of kids. when I turned 14 I started being more mature I...
    justagoodsoul justagoodsoul
    26-30, M
    1 Response Nov 4, 2015

    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx
    22-25, M
    24 Responses Aug 15, 2010

    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife
    26-30, F
    1 Response Jan 20, 2014

    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420
    26-30
    5 Responses Jan 31, 2012

    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863
    31-35
    1 Response Feb 16, 2013

    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94
    18-21, M
    Jan 19, 2014

    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48
    46-50, F
    Nov 8, 2012

    My son was diagnosed 2 years ago

    as a senior in high school. He's in college now and we've been through his primary care doctor, 2 dermatologists, 1 lancing, 2 scalp surgeries and now we are at the blood screening phase. Everyone keeps circling back to Accutane as the drug of choice of which I disapprove...
    Helpingmysoncope77 Helpingmysoncope77
    36-40, F
    Jan 27, 2015

    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant
    31-35, M
    1 Response Jun 11, 2013

    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9
    31-35, F
    Apr 28, 2013

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