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I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 42 People

    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

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    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

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    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

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    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 23 Responses Aug 15, 2010

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    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 22-25, F Jan 20

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    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

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    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

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    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

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    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M Jun 11, 2013

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    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

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    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

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    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

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    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19

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    Related Experiences

    Hi, I'm a 47 year old nurse who was diagnosed with Dermatomyositis about 5 years ago. I have undergone all of the medical therapies available including several off label IV and IM...
    robinmac robinmac 46-50, F 1 Response Dec 4

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    Grow hair faster Whether you’re in the midst of trying to recover your strands from a misguided cut or simply want longer locks, you may have a hard time patiently waiting for...
    dantodawn dantodawn 51-55, T 2 Responses Dec 11

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    I'm sorry to disappoint everyone, having surgery did not resolve my anger issues. To all those who thought my pain was the reason I'm an angry raging *****, sorry. I'm now pain...
    Missjayne1 Missjayne1 31-35, F 1 Response Dec 9

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    Hello everyone! I am a 28 year old who has struggled with alopecia since I was 18 years old.... I put it aside for the most part of my high school years.. thinking it was all the...
    hstutz hstutz 26-30, F 2 Responses Dec 1

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    Hi! I am 22. I haven't been to a doctor about everything yet, but I would like to know if anyone has experienced what I am going through. First of all, all my life, I have always...
    paula8910 paula8910 22-25, F Dec 2

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    I never knew until today that there was a name for what I have. I read a book by Margaret Atwood called Cat's Eye in which the main character reacted to stress by peeling the skin...
    olagram olagram 51-55, F 1 Response Dec 4

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    I eat my puss, blackheads and scabs. Yeah. I just said that. After I pick, I eat. I recently joined this group and was looking through posts, but i didn't notice anything about...
    Starchan Starchan 16-17, F 6 days ago

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    Hello, I am new to the forum and I deal with C-PTSD. It's caused me to become a hermit who lives by herself and has no friends. I try to meet people and I'm friendly enough, I just...
    CanadianKestrel CanadianKestrel 31-35, F 2 Responses 19 hrs ago

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    You know, high school is a lot different than I thought it would be. People aren't mean or rude; for the most part, that is. I go to a small school, so everyone knows everyone...
    Anonymousgirl152 Anonymousgirl152 13-15, F 1 Response 18 hrs ago

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    It's a terrible thing to know that you have always disappointed your own father, yet at 34 years old this is the realisation that I have gradually awakened to. Every year, I...
    Kitty786 Kitty786 31-35, F 16 hrs ago

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    So yeah, I'm 13 and I've never met him, my mum told him she was pregnant and he left and never came back. I can find him coz my mum says that he gave her a fake name and a fake...
    cazziefish cazziefish 13-15, F 1 Response 12 hrs ago

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    I had the absolute worst panic attack last night. I mean, I've had little ones before, like with being around a large group of people ( I have bad social anxiety), but I will never...
    lizygurl lizygurl 18-21, F 10 hrs ago

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    Mine are a 34GG and I'm only a size 10 (UK) which makes them look like footballs stuck inside my sweater so it's not easy to hide them! But I want to ask a question really. Have...
    Bustyshylady Bustyshylady 31-35, F 5 Responses 7 hrs ago

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    I've known him for two years. He always makes me smile and laugh when I'm upset, teases me, jokes around and worries about me when I have problems, spends time with me talking...
    sweetice007 sweetice007 18-21, F 1 Response 7 hrs ago

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    in life, in future. I have faith in balance, and that something cant exist without its opposite. The only thing that can exist without an opposite is nothingness. and we know, at...
    ThePinkPowerRanger ThePinkPowerRanger 31-35, F 1 Response 5 hrs ago

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    I don't understand why people like to hurt me....Im not a bad person, im actually really nice but people still feel the need to treat me like I have no feelings. I used to have...
    Imstillhere122 Imstillhere122 18-21, F 4 hrs ago

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    I have to be completely honest with all the guys on here....I am a player. I have settled down now because I found the perfect guy for me. For any guys on here that thought they...
    smooches smooches 22-25, F 3 hrs ago

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    The Christmas season is now in full swing. It's been a very tough time for so many on here. A broken heart. That things aren't as they used to be. The holidays bring out so much...
    Beanbella Beanbella 31-35, F 1 Response 2 hrs ago

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    why did you add me to your circle? I say this because I usually add people who have something in common with me or that I find witty or kind. I find it interesting when people add...
    greeneyz83 greeneyz83 31-35, F 3 Responses 1 hr ago

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    I have had a lot of good childhood memories, but whenever someone ask's me to tell them a story about my childhood, only bad memories come up first, and I actually have to think...
    MeowOnMe MeowOnMe 18-21, F 1 hr ago

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    Hello :) I guess I'll let my little experience out here. About a month ago, maybe month and a half, I was having severe Pelvic pain. I have the Mirena iud so we just figured it was...
    sdupre88 sdupre88 26-30, F 42 mins ago

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    I have 24/7 high pitched ringing in my ear, head starting several months ago.. I failed a hearing test for my dream profession because of it. I guess it's all my bad luck, was...
    arlfense arlfense 26-30, F 1 Response 20 hrs ago

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    Yep I do! I was always one of those people who thought PTSD was all in your head. A fake syndrome just to get attention. Well I got a wake up call! I got into a head on car...
    LetsGetDogWeird LetsGetDogWeird 18-21, F 1 Response 20 hrs ago

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    Wish Seven years I’ve been waiting forA Christmas with you I wish forJust like the other years that passed byMy wish for Christmas never gone byA thought bothered my mindHow...
    Amago Amago 13-15, M 1 Response 19 hrs ago

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    For many, Christmas is the most wonderful time of the year; well maybe for everyone except the children of the comedian that became infamous for saying that he bought his children...
    fungirlmmm fungirlmmm 41-45, F 12 Responses 19 hrs ago

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    'Twas the night before Christmas Eve, and all through the barber shop, not a customer was stirring, not even a cop. The clippers were hung by the barber chair with care, in hopes...
    FlattopJeff FlattopJeff 46-50, M 19 hrs ago

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    I can't really remember the last time I was happy. I mean, I've laughed and smiled, and even on the surface been happy, but its always shallow. underneath everything is a deep...
    Phreakaccident12 Phreakaccident12 18-21, M 18 hrs ago

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    I guess it's more of a gum ache. I've had toothaches and they feel the same. But my gum is like split open and trying to kill me I think. It was something I ate. I could have been...
    DarkwingGoslyn DarkwingGoslyn 31-35 18 hrs ago

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    I have to many naughty thoughts in my head love to share it with one heck of naughty female out there. Send me a naughty pic so I know your real.. Wink wink
    horneybear79912 horneybear79912 36-40, M 18 hrs ago

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    I am open minded guy and want to make news open minded friends. Open to any topic and too all lifestyles. I want to have news friends here. Man, woman, couple, young or old, race...
    naughtyguy13 naughtyguy13 26-30, M 17 hrs ago

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    Find Nemo Survive a zombie apocalypse Find a one ended stick Dig to China Meet Austin powers Go to Smallville Sleep for 48 hours Become a millionaire Find a pot of gold at the end...
    jade0417 jade0417 18-21, F 2 Responses 17 hrs ago

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    In school, all the girls had to have injections and I'm absolutely terrified of needles and when my class got called to the hall to have the injections, I started to get really...
    Sinnister14 Sinnister14 13-15, F 2 Responses 17 hrs ago

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    Okay so I have this issue where whenever I like a guy and they ask me out and I say yes I sometimes question, does he really like me, or is it because he wants pics or does he take...
    FranceEtMusic FranceEtMusic 13-15, F 1 Response 16 hrs ago

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    Isn't it weird when you wake up and feel like you're floating? I have it all the time, it's like I stepped out of my body for a few seconds. :D
    raiinbeau raiinbeau 16-17, F 16 hrs ago
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