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I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 45 People

    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

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    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19, 2014

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    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

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    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 24 Responses Aug 15, 2010

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    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 26-30, F Jan 20, 2014

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    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

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    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

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    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

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    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M 1 Response Jun 11, 2013

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    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

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    My son was diagnosed 2 years ago

    as a senior in high school. He's in college now and we've been through his primary care doctor, 2 dermatologists, 1 lancing, 2 scalp surgeries and now we are at the blood screening phase. Everyone keeps circling back to Accutane as the drug of choice of which I disapprove...
    Helpingmysoncope77 Helpingmysoncope77 36-40, F Jan 27

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    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

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    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

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    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

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    Related Experiences

    My boyfriend is a year younger than me and is currently getting ready for his final year of A levels. From the word go his parents have been incredibly strict. School is all they...
    tinyheart8888 tinyheart8888 18-21, F 1 hr ago

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    My family mother n father brothers sisters. They are all very negative. I have managed to find a fighting spirit from somewhere but right now I feel beat down. They're like a...
    braingarden braingarden 22-25, F 1 hr ago

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    i have always suffered with constipation for years and had episodes of terrible lower stomache pain sweating faintness and general weekness then I go ok but the last 2 episodes...
    jaynerosemary jaynerosemary 51-55, F 1 hr ago

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    despite all the people around me I've been forced to do everything alone. my family are toxic to be around, I have no friends around me and I ended up in a toxic relationship that...
    LewisCollins LewisCollins 31-35 1 hr ago

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    I was scrolling through my wall and found some statuses from a few years ago. One was posted at 2 am on my birthday. I wrote that sometimes I feel like screaming, but I don't...
    hiddenkitty hiddenkitty 18-21, F 1 Response 3 hrs ago

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    I have no teeth. Half of them were knocked out, or damaged, when I was 17, the rest came out by 24. Over the years my edentulous mouth has been the cause of much mirth amongst my...
    SLD1970 SLD1970 41-45, M 3 hrs ago

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    I write on here to vent my feelings. Why is it okay for othet people to vent to others about people they have problems with but when i do it, im considered evil or bad? Im not here...
    HigherCalling HigherCalling 26-30, F 6 hrs ago

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    Im having a breakthrough guys. I have had severe HS for 12 years and its been an absolute living hell. My underarms are scarred and have different skin tones and I have always felt...
    bel1196 bel1196 18-21, F 7 hrs ago

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    this absolutely sucks I've joined just for this reason and i feel like i will never be able to have a serious relationship with this who wants to have sex with someone with these...
    kaitiegirlsms kaitiegirlsms 13-15, F 1 Response 8 hrs ago

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    I like being sad. I like being cold and wet. I like feeling that way when I know I will be warm and dry. I like being cold and hungry and looking into the window on Thanksgiving...
    rick4545 rick4545 36-40, M 8 hrs ago

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    Didn't know the extent of how bad until I did some research online. My thing was dustmites and mold. Holy effing sh--- part and partial was the fact I didn't know that you need to...
    Lov3intheasylum Lov3intheasylum 31-35, F 8 hrs ago

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    Actually I have two... My mum and my beautiful baby daughter. My mum is my best friend and I don't know what I'd do without her.
    JenniBob JenniBob 26-30, F 1 Response 8 hrs ago

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    Soooo i have an older bro with aspergers syndrome..... He's a little different though coz unlike most aspergers he is very loud and ttries to b sociable. It took me a long time to...
    Avreich Avreich 22-25, M 9 hrs ago

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    I thought the cat was dead...or at least dying. I thought I would have to dig another hole in the back yard. It was three in the morning and there were no vets available. But his...
    rick4545 rick4545 36-40, M 1 Response 9 hrs ago

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    I don't see a problem with it. All of my past relationships have been interracial. Love who loves you I guess and don't worry about other people. Gotta live your life for you and...
    RastaGotSoul RastaGotSoul 22-25, M 1 Response 9 hrs ago

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    It's really funny when someone insults me by calling me a druggie. Like I know I'm a f****** druggie how the f*** are you gonna call someone what they are as an insult? That would...
    GiveMeHead69 GiveMeHead69 22-25, F 2 Responses 9 hrs ago

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    You left and took everything, you took the three things I cared most in this world for, You and our two dogs that we had together for 8years, what am I suppose to do when all I...
    koorie123 koorie123 22-25, M 2 Responses 9 hrs ago

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    I have been blocked by various people do I care not really ..... But if they want to upto them but it does save a lot of time When people add me to there buddies they say...
    ilovebustyfemales ilovebustyfemales 41-45, M 9 hrs ago

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    At first glance , you'd never assume I was sick. Too young, too pretty, too normal ... 20 years young, hetero white woman, smart, vivacious.... I've yet to find any body else with...
    skippandyouube1 skippandyouube1 18-21, F 9 hrs ago

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    I want nothing more than to have crazy large family with a loving wife. I want our house to be bursting at the seems with love and life from our ever expanding brood. I don't have...
    doof3 doof3 26-30 1 Response 10 hrs ago

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    It's mostly because I live in a country were social life is hard to get. I stay home all day. TV shows, Anime, Movies, Music, Video Games, Books. I feel that I am living other...
    NerdyMick NerdyMick 13-15, M 10 hrs ago

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    For the past few years, I have been on a quest to be happy. I was actually catapulted into this quest by a dear friend I met on here four years ago and still text daily. I...
    ANewCreation4Him ANewCreation4Him 36-40, F 10 hrs ago

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    I also have no friends because of my bpd. I want to be normal and I can't be.
    biwetgal94 biwetgal94 18-21, F 10 hrs ago

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    Me and my ex girlfriend both have bpd. I could only attach to her and understand her and I actually felt everything with her like my bpd wasn't there you know? She couldn't give...
    biwetgal94 biwetgal94 18-21, F 10 hrs ago

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    It says so on my medical records. I get incontinence pads from the NHS continence service. My incontinence and enuresis is caused by my diabetes and is not curable so I will have...
    Stillwetshisbed Stillwetshisbed 46-50, M 2 Responses 10 hrs ago

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    I had a talk this morning with my husband and his words to me was I didn't have the affair I know what it looks like but I didn't have the affair. you are gonna be the reason we...
    unhappywife16 unhappywife16 41-45, F 2 Responses 10 hrs ago

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    Her name is Nichole, but she's been Nix to me for as long as I can remember. It's hard to describe to anyone else how close we are, how well we mesh together... But it's like...
    Songsinshadow Songsinshadow 18-21, M 2 Responses 11 hrs ago

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    And, not that long ago I was known to have howled at the moon.
    Thisis4fun Thisis4fun 56-60, M 2 Responses 11 hrs ago

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