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I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 42 People

    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

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    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

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    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

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    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 22-25, F Jan 20

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    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

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    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

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    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19

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    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

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    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

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    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

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    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 22 Responses Aug 15, 2010

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    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

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    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M Jun 11, 2013

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    Related Experiences

    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

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    I have a spot on the top of my scalp. I'm seven, I want it gone. Sitting on Grams couch after school I replay gym class in my mind. Another game of being picked last and being...
    lauralu56 lauralu56 26-30, F Aug 26

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    I just absolutely love it! One time I was sitting in history. My crush sat directly behind me. I had just taken my hair out of braids so my natural curly hair was out and my crush...
    Xoxolife Xoxolife 16-17, F Aug 23

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    I am obsessed with curly hair. I make it a point to try to compliment almost everyone that I see with great curly hair! People really appreciate it, too! I have naturally curly...
    MRH1978 MRH1978 36-40, F 3 Responses Aug 28

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    I'm tired of doing this! why can't i stop even though i really want to!!? i'm doing this to my self even though i don't want to do it! It all started when i was 14, i don't know...
    TheTurtleDove TheTurtleDove 22-25, F 2 Responses Aug 25

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    so... yeah. I'm not anorexic, it's EDNOS. 5'2 and 100lb, still normal, i know, but my mind set 92lb and/or 84lb as the goals. i don't wish to recover, i don't want your help. i...
    roseinsurvival roseinsurvival 13-15 1 Response Aug 31

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    Poetess: I am not perfect.. body..mind... Like all the most beautiful people in my life, I am imperfectly perfect.. I am me.. my body is a little storybook of experiences that...
    PaintedPoemCpl PaintedPoemCpl 36-40 2 Responses Sep 7

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    I have a delayed sleep phase which means that without medication, I typically fall asleep between two and four a.m. I can sleep a full eight or nine hours but falling asleep at a...
    softgreenhourglass softgreenhourglass 36-40, M 1 Response a week ago

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    I had no idea I had a legit problem until I would wake up and just have hair all over my pillow and bed. I have long very thick hair so I didn't start noticing any sort of baldness...
    eoj163 eoj163 16-17, F 2 days ago

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    I have had this feeling all of my life just simple things to start with such as I just knew that a car was coming around the corner (living in the mountains of Kentucky on one-lane...
    Danni1982 Danni1982 31-35, F 15 hrs ago

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    Im 23 years old i have a half sister from my father samuel bracey. All i know about my sister is her name is Heather she is 6months younger then i am so she would have been born in...
    jessicawilliamson jessicawilliamson 22-25, F 15 hrs ago

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    I can't be sure and I don't want to be sure. But I have a feeling that its true. It's a very strange story I have only told 1 person and I think they judge me because of it. I...
    whatevernobody whatevernobody 31-35, F 1 Response 14 hrs ago

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    Hey everyone. I hope my experience can help people just as much as so many of your experiences have helped me. Im 26 and have had HS for 9 years (i think) thats how long i can...
    Meganvan Meganvan 26-30, F 1 Response 8 hrs ago

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    Here's something for you guys. Ok, if anyone is interested, I am a man and I can have multiple orgas.ms. Yes, it's possible for males also. Actually, there is a slight difference...
    Vrime Vrime 22-25, M 1 Response 8 hrs ago

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    I have depression and ive had it for about a year but im clean with no cuts. Although ive had suicidal thoughts and self harm thoughts everyday so my mom decided to put me in...
    KaylaBiskup KaylaBiskup 18-21, F 6 hrs ago

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    oh my goodness.He is the most charming, sexy, smart , admirable man I have ever met. Like seriously I don't think I have ever met anyone as sweet and nice as him. Woah he makes me...
    Angelina1992 Angelina1992 18-21, F 1 Response 5 hrs ago

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    i had an appointment with my hairdresser that was a rather spur-of-the-moment decision, and I only had about 20 minutes to get to the salon, which is 15 minutes away. So, I got...
    fishsweeper fishsweeper 51-55, F 2 Responses 4 hrs ago

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    I want to start off by saying, I love this group name. It fits my situation perfectly. I used to be such a creative, artistic, expressive person. I had a 600+ page role-play going...
    rollingdoro rollingdoro 22-25, F 4 hrs ago

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    I have always enjoyed quietness. I don't like babies crying or people talking loudly on the phone, or people whispering in lectures.. I moved back home halfway through my second...
    leo1292 leo1292 22-25, F 3 hrs ago

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    I have accepted myself, not in a way that I know myself therefore I should change everything to fit in the society and #yolo. No not that, but simply I have accepted that, me, who...
    anon152 anon152 13-15, F 3 hrs ago

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    When I was younger my family thought my mother had bipolar disorder. I grew up in a behavioral mess of bad decisions my mother had continuously made. When I was 8 my mother...
    tswmcgee tswmcgee 26-30, F 3 hrs ago

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    My name is Karly and I am 25 years old. My family of 6 has a history of Depression, Anxiety, ADD/ADHD and sleeping disorders. My father, sister and I suffer from all the above...
    kcmac311 kcmac311 22-25, F 2 hrs ago

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    Fears, Fears, Fears #1. Thunderstorms. I dislike thunderstorms with a passion. I'm afraid of them. The lightning doesn't scare me as much as the thunder does. I dislike the noise...
    Samaccino Samaccino 16-17, F 2 hrs ago

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    21 years old, paternal grandmother had it, father had it, I have it but my younger sister doesn't. Intelligent and successful but have always and continue to get teased about it...
    Darling03 Darling03 18-21, F 1 hr ago

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    I have been, and still am part of a really abusive selfish mother and an enabler father. My mother is so derailed mentally, she is viciously crewel. She has antagonized me from...
    pistacchia pistacchia 46-50, F 27 mins ago

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    This awful disease makes me think terrible things that I really don't want to think about then it makes me want to confess them to someone, especially if the thoughts involve them...
    somethingx3 somethingx3 31-35, M 1 Response 12 hrs ago

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    i have worn lipstick lots of times when i have privacy, i just love the way it looks on my lips. my favourite colors of lipstick are red, hot pink and black, was thinking of trying...
    girlsrule2015 girlsrule2015 26-30, M 1 Response 11 hrs ago

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    It's so difficult.. I am a graduate student, and I've always done well academically. But sometimes I get so consumed in self-doubt and anxiety that I have forgotten something or...
    BeautifulinElevation BeautifulinElevation 22-25, F 1 Response 10 hrs ago

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    It affects my life far too much. Even in 'relaxed' situations such as going for a drink, my legs feel jelly, breathing is sometimes laboured, I'm hypervigilant and want to be near...
    Reallifeperson Reallifeperson 22-25, M 2 Responses 10 hrs ago

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    This actually still scares me when I think about it so maybe it's good to get it out. Two of my closest female friends knew this guy. I never really knew much about him besides...
    Bewail Bewail 22-25, F 4 Responses 9 hrs ago

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    I fell from the stairs at school about one story high and knocked myself out 😓 and by the time I woke up (just now) I find my big brother going through my phone (Bruno I'm so...
    johannesc4 johannesc4 13-15, M 9 hrs ago

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    Ive had friends I've talked to on the phone and thru video chat saying i have a calm voice haha i just simply talk and try not to be boring Thanks for reading!
    goofysk8 goofysk8 22-25 6 hrs ago

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    once somebody asked me, what did i want and i told him that i want everything..... the issue is, that we are always thinking about what we dont hae and never pay attention to what...
    mrnut mrnut 36-40, M 6 hrs ago

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    Im 14 years old and I have had maladaptive dreaming for a while although I only just found out, I don't even remember when it started. I usually start dreaming whenever I have...
    Shadow0173 Shadow0173 13-15, F 1 Response 5 hrs ago

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    I thought i had multiple personalities to the highest severity, thought I was bipolar 2 ultra rapid cycling, thought i had a tumor in my brain, thought i was developing multiple...
    Ifeeluberish Ifeeluberish 18-21, M 5 hrs ago

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