Post

I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 42 People

    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 22-25, F Jan 20

    Your Response

    Cancel

    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19

    Your Response

    Cancel

    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

    Your Response

    Cancel

    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

    Your Response

    Cancel

    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M Jun 11, 2013

    Your Response

    Cancel

    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

    Your Response

    Cancel

    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

    Your Response

    Cancel

    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

    Your Response

    Cancel

    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

    Your Response

    Cancel

    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

    Your Response

    Cancel

    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

    Your Response

    Cancel

    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 22 Responses Aug 15, 2010

    Your Response

    Cancel

    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

    Your Response

    Cancel

    Related Experiences

    I am obsessed with curly hair. I make it a point to try to compliment almost everyone that I see with great curly hair! People really appreciate it, too! I have naturally curly...
    NYX78 NYX78 36-40, F 3 Responses 18 hrs ago

    Your Response

    Cancel
    I had never heard of it til my mom had it. She has COPD, so she also gets fluid in her legs sometimes. Her legs have swollen so big they actually burst open. It's probably why she...
    DarkwingGoslyn DarkwingGoslyn 31-35 Aug 10

    Your Response

    Cancel
    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

    Your Response

    Cancel
    It's miserable. My legs hurt and get numb. If I get so much as a scratch, my legs pour water. The warm fluid burns my skin burns my skin too. It's easy to get infection. It started...
    DarkwingGoslyn DarkwingGoslyn 31-35 1 Response Aug 10

    Your Response

    Cancel
    I have a spot on the top of my scalp. I'm seven, I want it gone. Sitting on Grams couch after school I replay gym class in my mind. Another game of being picked last and being...
    lauralu56 lauralu56 26-30, F 2 days ago

    Your Response

    Cancel
    I just absolutely love it! One time I was sitting in history. My crush sat directly behind me. I had just taken my hair out of braids so my natural curly hair was out and my crush...
    Xoxolife Xoxolife 16-17, F 6 days ago

    Your Response

    Cancel
    Eeekkk my scalp gets sooo itchy once it's tied up. :(
    VousEtesBelleCM VousEtesBelleCM 18-21, F 1 Response Aug 1

    Your Response

    Cancel

    Your Response

    Cancel
    I'm tired of doing this! why can't i stop even though i really want to!!? i'm doing this to my self even though i don't want to do it! It all started when i was 14, i don't know...
    TheTurtleDove TheTurtleDove 22-25, F 2 Responses 3 days ago

    Your Response

    Cancel
    When I was a kid, i used to have a ton of friends, then i moved.... Everyone i knew was gone. After that i never really had any friends. I would always just get through school...
    Snsndmdmam Snsndmdmam 26-30, F 1 Response 22 hrs ago

    Your Response

    Cancel
    So I've been having this bed bug problem in my room for a while. Since the beginning of June to be exact. My dad hasn't put out ANY effort to fix the problem the past month and a...
    TheMasterMan1 TheMasterMan1 16-17, M 22 hrs ago

    Your Response

    Cancel
    I have one year left at my community college and I don't even know what I want to major in after I continue. I'm currently majoring in Liberal Arts and Sciences/General Studies...
    jahein137 jahein137 18-21, F 1 Response 21 hrs ago

    Your Response

    Cancel
    Look at the girls in the group and what Each individual lady might be most inclined to accomplish. Once you understand your pals’ Choices and budgets, you have to be...
    Wendolynce106 Wendolynce106 31-35, M 1 Response 15 hrs ago

    Your Response

    Cancel
    Money or No Money Having been sitting down for over 2 hours, I decided to hide myself in the conference room. For once, it was all silence. The only sound I could hear was the...
    cedicoin cedicoin 26-30, M 1 Response 14 hrs ago

    Your Response

    Cancel
    I'm 55 and a 22-year survivor of ovarian cancer. I'm also a 55-year survivor of a passive-aggressive mother. My mom had a pretty tough childhood, and I am sad to know the awful...
    Katsez01 Katsez01 51-55, F 1 Response 14 hrs ago

    Your Response

    Cancel
    I don't know why I have to pick a group before I post an experience but it's really annoying!! Anyway, an evil thought has been coming to my mind. I do not understand why people...
    Statuegirl Statuegirl 36-40, F 13 hrs ago

    Your Response

    Cancel
    So I have been living alone for a few years and it's new to me, again though, to have a person in the house that is not someone that I love. He is pretty annoying in a lot of ways...
    milehighHeartbreak milehighHeartbreak 31-35, M 1 Response 12 hrs ago

    Your Response

    Cancel
    Is PTC lifelong? I have not been diagnosed yet, but all of my symptoms point to PTC, I am waiting to see a specialist. I have had blood work and multiple MRIs, all coming out...
    tcollier tcollier 22-25, F 1 Response 7 hrs ago

    Your Response

    Cancel
    Sunday will be one year since you left us. It is still so difficult to accept that you are gone. I have so many memories, I tear up when I think about them. My big sister, I...
    aaaagggghhhh aaaagggghhhh 36-40, F 1 Response 7 hrs ago

    Your Response

    Cancel
    To be honest i don't think its knowable. A toaster's purpose is pre set by its creator. If we have a creator, which is debateable, then we have a pre set purpose... but what would...
    surfdas surfdas 22-25, M 1 Response 6 hrs ago

    Your Response

    Cancel
    I hope this helps someone. I Had Hyperhidrosis for many years. I know the embarrassment of having to wear black ALL the time, wearing paper towels underneath my armpits and still...
    busymom1 busymom1 36-40 5 hrs ago

    Your Response

    Cancel
    Entry # 1 Hello All :), Here is my attempt to record my progress toward becoming anxiety free. Ive been a shy person way before I could even comprehend what shy was. A shy...
    athion64 athion64 18-21, M 1 Response 5 hrs ago

    Your Response

    Cancel
    I can't believe this is an actual "thing". I ran into a few sites today after inputting "back injury" and "itch" after researching my thoracic injury for almost 3.5 years. My...
    WreckedSpine WreckedSpine 46-50 4 hrs ago

    Your Response

    Cancel
    'Annoying' is an understatement for this boy. I seriously do not know what has gotten into him. It is like something in the air hit him, like a virus. I HATE the way puberty...
    TheFrozenOne TheFrozenOne 18-21, F 2 Responses 4 hrs ago

    Your Response

    Cancel
    You know what... My parents took away the person I love, and my fiancee's mom took away the person her daughter loves (Me) so in the end I will take the person my parents love (Me...
    ECrierie ECrierie 16-17, M 1 Response 1 hr ago

    Your Response

    Cancel
    I don't have a lot of problems with talking to people. I'm only making this post because I just had a realization. When I meet someone for the first time, I will always struggle...
    Gemz2411 Gemz2411 18-21, F 1 Response 48 mins ago

    Your Response

    Cancel
    I've probably had it for as long as I can remember, but I didn't discover it until my middle school/early high school years; I randomly started looking up pregnant women on the...
    therapeuticmindfuckery therapeuticmindfuckery 22-25, M 23 hrs ago

    Your Response

    Cancel
    I wake up. Can't breathe. Feel like I'm going to die. Why does this happen to me? Despite some horrible things that have happened in my past, my life is great right now. I have...
    beautifullybrokengirl beautifullybrokengirl 18-21, F 3 Responses 23 hrs ago

    Your Response

    Cancel
    I have known that this was an actual thing for a couple years now. My parents still don't believe that it's an actual form of OCD and they keep telling me to "just stop". I have...
    cyrn97 cyrn97 16-17, F 23 hrs ago

    Your Response

    Cancel
    ( will have google translate to help me to) I don't know why, I have been using someone's laptop and the internet has been messing up so if it keeps messing up a lot he told me...
    Blazingdragon Blazingdragon 13-15, M 22 hrs ago

    Your Response

    Cancel
    After thinking hard about past events in my life, i came across the many times i have gotten the mail nude. Only until recently have i felt some sort of remorse for the many men...
    AnonR AnonR 70+, T 1 Response 22 hrs ago

    Your Response

    Cancel
    I have been very busy this last few weeks. i work a lot as it is! These last few weeks have taken me to some pretty strange hours of the day. I have been getting up at 2AM and...
    johnlament19 johnlament19 18-21, M 19 hrs ago

    Your Response

    Cancel
    I have this weird thing I do with my father and it starting off high 5ing each other web we said something funny or were being smart *****, and now it's like distant elbow high...
    emzeymoore emzeymoore 16-17, F 18 hrs ago

    Your Response

    Cancel
    I don't know what it is but making friends is so difficult I'm so terrible at making eye contact and have been friendless all my life and I'm in my 11th year of school and I still...
    brodeejade brodeejade 16-17, F 1 Response 18 hrs ago

    Your Response

    Cancel
    I don't even know when I'm supposed to sleep anymore. I work 7 pm-7am three to four times a week. It sucks because I miss out on so much and then when I get a day off I can't do...
    Tigerlily53 Tigerlily53 18-21, F 1 Response 16 hrs ago

    Your Response

    Cancel