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I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 45 People

    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19, 2014

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    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 24 Responses Aug 15, 2010

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    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 26-30, F Jan 20, 2014

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    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M 1 Response Jun 11, 2013

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    My son was diagnosed 2 years ago

    as a senior in high school. He's in college now and we've been through his primary care doctor, 2 dermatologists, 1 lancing, 2 scalp surgeries and now we are at the blood screening phase. Everyone keeps circling back to Accutane as the drug of choice of which I disapprove...
    Helpingmysoncope77 Helpingmysoncope77 36-40, F Jan 27

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    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

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    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

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    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

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    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

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    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

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    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

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    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

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    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

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    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

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    Related Experiences

    They are adorable and have got me through a lot. Although, they may be annoying at time I love them
    KayleeanneW KayleeanneW 13-15 30 mins ago

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    How to avoid my biggest turn offs 1. Shower well and thoroughly wash with soap including your crack. 2. Floss and brush daily and have professional dental cleanings at least 2x...
    syntheticrhyme syntheticrhyme 46-50, F 35 mins ago

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    It seems like having body image issues is a rite of passage for girls in this day and age. If you want to fit in, you need to hate how you look - and be expressive about it. Which...
    Storiesnotforthefaintofheart Storiesnotforthefaintofheart 18-21, F 1 Response 35 mins ago

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    Well my mom got locked up for hitting my dad cause he stole all her money and he's cheating on her.. My dad got mad at me for being on her side so he kicked me out.. I'm sleeping...
    Jazmay Jazmay 18-21, F 3 Responses 46 mins ago

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    I wouldn't really regard myself as a particularly adventurous person, however I have emigrated from the UK to Australia and completely changed my life. Best thing I ever did!
    Ed1509 Ed1509 36-40, M 1 hr ago

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    I will be having surgery, on my big toe, soon. It has taken visits to three different doctors to finally get someone to agree that there is indeed something under the skin that...
    Koala1964 Koala1964 51-55, M 2 days ago

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    Now that I am a baldy- my next step is to have people write on my chrome dome exactly what they think of my shaved scalp. Lets start here... What would you write on my ugly shaved...
    Lisabackstage Lisabackstage 31-35, F 5 Responses 3 days ago

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    As of about ten minutes ago it is official. My head is shaved and bald. Call me Baldy! My next move is to have people write on my shaved scalp what they think of my baldness!!
    Lisabackstage Lisabackstage 31-35, F 4 Responses 3 days ago

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    I am bald. I took clippers to my head and I shaved off my hair. Then shaving cream and a razor and the result? I am bald. I shaved off my brows too. I rubbed oil into my scalp to...
    Lisabackstage Lisabackstage 31-35, F 4 Responses 3 days ago

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    I want four pretty men all in a row, naked but done up so they are very pleasing to the eye. The first I want to impale, on a thick sharp wooden stake, starting through his as...
    Domienixxx Domienixxx 26-30 2 Responses 5 days ago

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    Getting Wet In Hot Times Heat hits the bald back , of my exposed scalp' Heating under the sun's rays As the cool waves beckon, And slosh against the granite I look down to where...
    RedEyesBlackDragon RedEyesBlackDragon 51-55, M Jul 26

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    This is why I have been hiding my legs for months. It's painful, but I'm more concerned that the infection is ugly and I can't shave my legs. Pitiful really. I'm on strong anti...
    DG2008 DG2008 31-35 Jul 21

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    Just to give a little background, I have not felt well for almost 3 years. I have been to every kind of specialist, had major blood work and scans performed without a diagnosis...
    KSH1121 KSH1121 56-60, F 1 Response Jul 20

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    This story is really hard to share, I've never told anyone the whole side to it because it's embarrassing and I am scared of what people would think, but now I feel like I have to...
    Shaneless Shaneless 16-17 2 Responses Jul 16

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    I had trich for abt 3 years now i only pull from my scalp i tried to stop and it worked but i relapsed because the thought of my hair isnt growing any longer has discouraged me. My...
    Dareme66 Dareme66 18-21, F Jul 6

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    As some of you may know, I am a published author. I work from my home; therefore, I must practice time management. I also have Bi-Polar I and Severe Anxiety Disorders. Through a...
    deleted deleted 26-30 4 Responses Jul 5

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    Too many people mistake sympathy for empathy. People like me who have suffered don't care for your sympathy, we want empathy, we want you to understand. Faux sympathy isn't needed...
    usernameinneed usernameinneed 26-30, M Jul 5

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    Well another one bites the dust! So I've been talking to this guy I met online, He doesn't have HSV or anything (that I know of) and we've never met before in Person. He swore...
    ydnacybab ydnacybab 22-25, F 6 Responses Jul 5

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    Someone asked me today if i am happy. Now why dissect so much. I enjoy, laugh a lot and smile at everyone I even briefly know. I have no idea if that translates into happiness and...
    deceptiveoutofcloset deceptiveoutofcloset 26-30, F Jul 5

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    Yes,I have a home based business for the past few months that offers hotel accommodation, tour packages in philippines, roundtrip around asia, passporting and visa. It's a bit hard...
    tummytum tummytum 22-25, F Jul 5

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    I like to tell people that i have the heart of a small boy. Then i say it's in a jar on my desk! :-p
    JnFrdriKler JnFrdriKler 22-25, M 3 Responses Jul 5

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    I can't wait until I move out in 3 weeks. Won't have people watching what I'm eating all the time, or have to worry about someone hearing me in the bathroom if I purge. I can do...
    itssmee itssmee 22-25, F 1 Response Jul 5

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    Last night was just the most recent. Got in another fight with my ex. Drank ALOT. Honestly don't remember most of the night. Did 4 hits of acid popped some pills. Thank god for my...
    soxs45 soxs45 18-21, M 2 Responses Jul 5

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    Exercise. Well not really exercise, but the histamines it produces. I break out in splotches all down my arms and legs and get itchy. Luckily I have found all I need is an allergy...
    SereneThoughts SereneThoughts 22-25, F 1 Response Jul 5

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    I have kids, but I would like to have more in a future relationship. I <3 being a dad.
    flawl3ssvictory flawl3ssvictory 31-35, M Jul 5

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    I had a nightmare/dream that my friend was turned into a mutant cockroach/human hybrid (she basically looked like her but hard and empty, still walking and talking just weirdly and...
    10detj 10detj 18-21, F Jul 5

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    My best friend is female. She and I have been best friends since Kindergarten. Things have never been weird between us. we have always been there for each other. she's dated guys...
    xtremside xtremside 36-40, M 1 Response Jul 5

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    I've always been a fan of playstation. I have a PS vita too. For PS4 multiplayer gaming, I have GTA 5, Littlebigplanet 3, nba 2k15, call of duty advanced warfare. I don't really...
    Zaxel Zaxel 18-21, M Jul 5

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    Ultimate embarrassment!? A friend of my brother's was into rock music. Had his headphones on with the music loud. Alone in his room, lay on his bed, thought he'd have a little DIY...
    PeterSp8 PeterSp8 41-45, M 1 Response Jul 5