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I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 44 People

    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

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    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

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    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 24 Responses Aug 15, 2010

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    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 22-25, F Jan 20, 2014

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    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

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    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

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    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

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    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19, 2014

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    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M Jun 11, 2013

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    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

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    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

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    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

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    My son was diagnosed 2 years ago

    as a senior in high school. He's in college now and we've been through his primary care doctor, 2 dermatologists, 1 lancing, 2 scalp surgeries and now we are at the blood screening phase. Everyone keeps circling back to Accutane as the drug of choice of which I disapprove...
    Helpingmysoncope77 Helpingmysoncope77 36-40, F Jan 27

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    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

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    Related Experiences

    I've been having troubles with my Trich lately.I'm going to be blatantly honest here. I'm 14 years old. I suffer from Trichotillomania and I feel so overwhelmingly alone in this. I...
    theoreticals theoreticals 13-15, F 2 Responses 6 days ago

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    I was diagnosed with congenital absence of the inferior vena cava a couple years ago. I was born with it, and although my mom said I was born with one leg that was swollen and...
    norolemodelmom norolemodelmom 36-40, F 1 Response 2 days ago

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    I have 18, going on 19. I'm feeling ambitious, so I'm gonna attempt to touch on what they all are, without getting into the meaning so much, because that would be too long. If...
    OqSydSchizo16 OqSydSchizo16 36-40, M 2 Responses May 4

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    With all that has come and gone, I'm seeing love differently. In my mind, it is a wide open dirt track dissecting crisp and parched bushes, and burnt weeds. And the dusty passage...
    LuxThePoet LuxThePoet 41-45, F 3 Responses May 5

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    I had a really bad day with my hair yesterday and pulled out more than I have at one time in weeks... I kept trying to stop -but after about a minute I would see that I'd...
    meg9417 meg9417 18-21, F 1 Response Apr 23

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    A couple days ago I had a very strange dream, any insight or interpretation is welcome. In this dream I was in some kind of doctors office with an acquaintance that I know in my...
    FloralSkies FloralSkies 16-17, F 1 Response Apr 27

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    I've unknowingly had Trich since I was little, around 7. My dad used to ask me to pull out his grey hairs, which he had a few of at the time, and I never realised why I liked doing...
    Kay06 Kay06 18-21 Apr 29

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    I haven't been officially diagnosed but I think I have this. I pick my scalp the most. My mom always yells at me and says I have sores. I pick until I bleed and I pick off huge...
    PrincessNem PrincessNem 18-21, F May 2

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    I thought I would never be the one to talk about recovery. But I have to say, I've improved tremendously. My sister passed away when I was 10 from insulin overdose which she...
    iminrecovery iminrecovery 18-21, F 1 Response May 3

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    A few of you have asked me about forward shampooing and it is a brilliant way to give a great scalp massage although its a bit submissive. Take a look https://www.youtube.com/watch...
    deleted deleted 26-30 May 7

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    One bad thing about having really short hair : My scalp has sunburn..
    akaShaun akaShaun 16-17, M 2 Responses May 8

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    It appears I have gotten my PN under control. I know this will not work for everyone but it is working great for me. I take 1,000mg of L-LYSINE with 500mg of Vitamin C in the...
    yorkieczar yorkieczar 51-55 2 days ago

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    I constantly scratch my scalp and I keep trying to improve at school and I'm trying to improve at drawing but nothing is happening and I've had this problem for years. I would...
    FoxFan64 FoxFan64 13-15, M 1 Response 1 day ago

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    I'm only 21 and I've been suffering from back and neck pain for nearly 2 years now. i was in a bad car accident last june that had made my back pain even worse ( i had already...
    darnswell13 darnswell13 18-21, F 6 hrs ago

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    I recently let go of this guy who I believed that was my twin flame. A month or two later I meet another guy and we clicked instantaneously, just like that. They're born in the...
    krimsonlove krimsonlove 22-25, F 1 Response 5 hrs ago

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    I was diagnosed with Thalassemia when I was pregnant but they didn't specifically indicate if what kind. They just wanna make sure that my baby's dad(my partner that time) wont...
    Shansai84 Shansai84 26-30, F 1 Response 4 hrs ago

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    I was 11 when I first read about Nostradamus' prophetic poem. It was in a sub culture book which was in a bookshelf of the elementary school. Raised in rural Japan and wasn't much...
    katsuobushi katsuobushi 36-40, M 4 hrs ago

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    Hi, I am looking for people who can relate to me. - once had an enviable relationship with God the Father (talked everyday, enjoyed His Presence, etc.) - now feel no conviction...
    alwaysthinking742 alwaysthinking742 22-25, M 2 hrs ago

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M 7 hrs ago

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    Ah, it's great to return back to EP. Just wanted to say to everyone, have a great weekend, and Happy early Memorial Day
    EmoryDelf EmoryDelf 18-21, M 1 Response 7 hrs ago

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    Lately some of you guys in my circle have been treating me very poorly and rude and I honestly don't think that's right to be treating me or anyone for that matter that way...
    ReachingNirvana ReachingNirvana 22-25, M 1 Response 7 hrs ago

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    When I was a kid (third grade or less), I used to have dreams so vivid to the point where I (think) can feel things.... For example: One time, I had a dream where I was at the top...
    salmon140301 salmon140301 13-15, F 6 hrs ago

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    Sometimes I dream that I woke up and started my day and I'll be bummed out that I have class on Saturday but then I'll wonder why the campus is even open. Then I'll be happy that...
    candycat13 candycat13 18-21, F 5 hrs ago

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    I don't really believe in good/bad or right/wrong from a moral perspective but I do believe in rationality and irrationality. Lets face it , some people's minds and actions have no...
    SoleExecutioner SoleExecutioner 18-21, F 1 Response 5 hrs ago

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    Yesterday I'd felt like I was still awake though I was sleeping, if that makes sense at all. I had a dream about living in this little worn down shack and for some reason I was...
    Britt4ny Britt4ny 70+, F 5 hrs ago

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    I have clothing line in which I have my personal brand and my awareness brand helping non-profit organizations. www.mikextomcouture.com www.instagram.com/mikextomcouture
    MikexTom MikexTom 31-35, M 4 hrs ago

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    I have two older sisters. They're 24 and 20. The eldest is nice but the other takes me for granted. The other day she was looking for a stylus for her iPad. She needed it to study...
    Quarantined Quarantined 13-15, M 2 hrs ago

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    One thing I've found helpful on this journey (so far) is imagining that existence is one giant river and I am but a drop, flowing with the current rather than trying to push back...
    PaxTerra PaxTerra 18-21, F 1 hr ago

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    Do y'all have any idea how much I hate going to the grocery store?
    pinkstarburst pinkstarburst 41-45, F 5 Responses 1 hr ago