Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 46 People

    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

    Your Response

    Cancel

    why does this thing has to happen to us.

    I recently turned 27 I have had a this for about a year now and let me tell you that this is awful, being judged by people being ridiculed, sometimes I just wish it would end. when I was a little kid I wasn't the best of kids. when I turned 14 I started being more mature I...
    justagoodsoul justagoodsoul 26-30, M 1 Response Nov 4, 2015

    Your Response

    Cancel

    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

    Your Response

    Cancel

    My son was diagnosed 2 years ago

    as a senior in high school. He's in college now and we've been through his primary care doctor, 2 dermatologists, 1 lancing, 2 scalp surgeries and now we are at the blood screening phase. Everyone keeps circling back to Accutane as the drug of choice of which I disapprove...
    Helpingmysoncope77 Helpingmysoncope77 36-40, F Jan 27, 2015

    Your Response

    Cancel

    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

    Your Response

    Cancel

    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

    Your Response

    Cancel

    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

    Your Response

    Cancel

    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

    Your Response

    Cancel

    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

    Your Response

    Cancel

    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19, 2014

    Your Response

    Cancel

    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 24 Responses Aug 15, 2010

    Your Response

    Cancel

    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

    Your Response

    Cancel

    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 26-30, F 1 Response Jan 20, 2014

    Your Response

    Cancel

    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M 1 Response Jun 11, 2013

    Your Response

    Cancel

    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

    Your Response

    Cancel

    Related Experiences

    My dark side is that I become overly infatuated with guys I date.. And almost always it is the ones who are "unavailable" so it is a terrible waste of time for me. It's like a...
    shoffman22 shoffman22 22-25, F 19 mins ago

    Your Response

    Cancel
    I don't remember exactly when it showed up. I was just looking through photos that my parents had taken on a family vacation one weekend... and there it was. An extra chin! How...
    Pelennor Pelennor 18-21, F 21 mins ago

    Your Response

    Cancel
    I need help with a friends with benefits situation that I want to be more.. I have hung out with a guy three times, about a month apart each and have made major dating mistakes...
    shoffman22 shoffman22 22-25, F 39 mins ago

    Your Response

    Cancel
    Sometimes I just feel like giving up. Waking up everday carrying this pain of social anxiety is ruining my life. I have days where im positive and optimistic, then I have days like...
    painfullyconfident painfullyconfident 22-25, M 56 mins ago

    Your Response

    Cancel
    I thought had a everyone had a vivid imagination until I met someone who didn't .Tell me are u able to imagine anything you want on spot with your eyes open. Example: I want you to...
    martinez1993 martinez1993 22-25, M 1 Response 1 hr ago

    Your Response

    Cancel
    When awake and in reality, I already feel vulnerable and incapable to do the things I feel I want and need to do, but sleep paralysis gives that demeanor a stronger meaning. I feel...
    darniseg98 darniseg98 16-17, F 1 Response 1 hr ago

    Your Response

    Cancel
    Yesterday i got my first one after a long time i got took to the doctors to have a check up and he tried to give me a blood test I freaked out and told him to get lost my mom got...
    Littlenudeboy Littlenudeboy 13-15, M 1 hr ago

    Your Response

    Cancel
    What's gonna determine whether or not I can get out of bed and go to school Monday, is the infectious diseases doctor has to come in, look and examine my hand. Cause I have egsama...
    CreepypastaFan2016 CreepypastaFan2016 16-17, F 1 hr ago

    Your Response

    Cancel
    Our mum raised us on her own with no help from dad, she works hard really hard that means she is away a lot at weekend, when a neighbour looks out for us. Our dad was never around...
    BrunoAndSammy BrunoAndSammy 13-15, M 2 Responses 2 hrs ago

    Your Response

    Cancel
    it gets pretty noisy up there. i have a hard time making decisions. God help me.
    cosmosdrift cosmosdrift 31-35, F 2 Responses 3 hrs ago

    Your Response

    Cancel
    Clonazapam works like a charm in helping you fall asleep and stay asleep, especially if you have a lot on your mind. I only use it about twice a week because it is highly...
    Alleygirltoo Alleygirltoo 41-45, F 3 Responses 3 hrs ago

    Your Response

    Cancel
    I am not so sure to tell my parents that I am going out late at night with my friends and that I have been in other places they would surely not permit me to go. I just lied...
    Jubbydith Jubbydith 18-21, F 1 Response 3 hrs ago

    Your Response

    Cancel
    Yes, I like tattoos but don't have any yet. I might get one someday but it would have to have some meaning behind it.
    PanHead1989 PanHead1989 26-30, M 3 hrs ago

    Your Response

    Cancel
    It was a Saturday, around nine o'clock. I remember I had been feeling particularly apathetic that day, since a second, strong bout of depression had hit me the beginning of that...
    Kaoruk100 Kaoruk100 18-21, F 4 hrs ago

    Your Response

    Cancel
    Its scarring me more and more ..i am scared how my life would be .. i am unable to stand for myself .. when someone is being aggressive to me i cant say a word .. sometimes i even...
    newsun newsun 18-21, M 1 Response 4 hrs ago

    Your Response

    Cancel
    I never thought that it would happen. Especially not like this. I never thought of my family to become a divorced family. It was during my senior year of high school. Just last...
    YoSavvyGirl YoSavvyGirl 18-21, F 5 hrs ago

    Your Response

    Cancel
    I have been sick, really sick. It started before Christmas with cellulitis in the sinus cavity. Then my upper molar abscessed into the already infected sinus. It was one thing...
    akindheart akindheart 56-60, F 29 Responses 3 days ago

    Your Response

    Cancel
    My dissecting kit is pretty old, it was the only one i could afford.my scalpel cant even cut anymore, surgical blades at the hospital were much better.i am so sad.
    lesbianpeter lesbianpeter 18-21, F 1 Response 5 days ago

    Your Response

    Cancel
    Who ever can massage my scalp as hard as my eyes nearly pop out of my head. Wife that girl ;)
    32forever2016 32forever2016 31-35, M Jan 28

    Your Response

    Cancel
    I have this too and on my scalp I have some bald spots, luckily my hair is very thick and it covers it up but this isn't good, I'm using head bands and perfumes to stop this. I...
    CookieTracker7 CookieTracker7 16-17, F Jan 28

    Your Response

    Cancel
    We have known each other for many years, this time was different... She is 5ft10 with long sandy blonde hair and blue eyes, I am 6ft+ brown hair blue eyes. We both work to stay in...
    wildfire102 wildfire102 46-50, M Jan 15

    Your Response

    Cancel
    We have known each other for many years, this time was different... She is 5ft10 with long sandy blonde hair and blue eyes, I am 6ft+ brown hair blue eyes. We both work to stay in...
    wildfire102 wildfire102 46-50, M 1 Response Jan 13

    Your Response

    Cancel
    I like scratching the dandruff out of my sister's scalp.
    XxSxarletxX XxSxarletxX 16-17, F 3 Responses Jan 9

    Your Response

    Cancel
    I am in love with the most amazing and beautiful girl I have ever met!!
    dmetri123 dmetri123 18-21, M 1 Response Jan 6

    Your Response

    Cancel
    During the Bush administration 4 gun manufacturers were filing bankruptcy. Sales were at an all time low. Since Obama took office sales skyrocket to 97%. 64. 1 million guns have...
    btorn btorn 36-40, M 1 Response Jan 6

    Your Response

    Cancel
    I had fallen for a guy online, it was 9 years ago. The first time i saw his photo on some chat website, i liked him. I contacted him and he was nice first. Then he stopped logging...
    Sappheire Sappheire 31-35, F 1 Response Jan 6

    Your Response

    Cancel