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I Have Dissecting Cellulitis of the Scalp

A Dissecting Cellulitis Of The Scalp anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dissecting Cellulitis Of The Scalp. You're not alone. 43 People

    How I Beat Dcs And Gave Me My Life Back!!!!

    hello everyone my story is long and has a great ending in my case. I battled it for 7 years with all diffrent derms doctors and meds so i found a doctor that told me to deal with it or it has to go and my case was realy bad so i went to boston top hospital and got the plastic...
    themadchef themadchef 31-35, M Jul 6, 2012

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    My husband has this condition

    and he suffers tremendously. It breaks my heart to watch him he currently does not have insurance. But will soon with his job however its not the best coverage. All of you suffering and feeling like no one will accept you those people dont deserve you anyways god bless you...
    supportingwife supportingwife 22-25, F Jan 20, 2014

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    Has Anybody Tried Proactiv?

    Just wondering if anybody has tried it or not? iv tried everything dr's have givin me and nothing.. iv even tried the tea tree oils and apple cider vinegar... yada yada yada... i kinda find that stuff with aloe keeps the swelling and pain kinda low... just was wondering if anyone...
    myhighqis420 myhighqis420 26-30 5 Responses Jan 31, 2012

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    I Am Also Under Treatment

    Hi everyone, I was doing some research online about the condition which I was just diagnosed but been having for nearly two years and came across this conversation. I wanted to share some of my experience, since I know how painful and depressing the condition is as it kills...
    perseverant perseverant 31-35, M Jun 11, 2013

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    New To This Site. Here's What Is Working For Me.

    I have had this since highschool, it went away for awhile and now in my 40's its a daily battle. I was finally diagnosed over a year ago, and after little to no improvement with multiple doctors, I simply decided that there is no one thing that works. The back of my head was...
    JohnAZ JohnAZ 41-45 3 Responses Sep 13, 2012

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    Please Read This!!!!!

    I have suffered for years, recently it has become very aggressive. I understand the PAIN, SLEEPLESS NIGHTS, LEAKING, etc.... But hear me, are you being treated for the right thing? Nothing was working...Last week i saw a new doctor, Dr.Paul Hazen of the HS Institiute. He cleared...
    DaBatfin DaBatfin 36-40, M Oct 14, 2013

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    Terrible

    hi to all my name is Jose i had this condition for   about 8 years and is rare because i see that this affect mainly African Americans and im Hispanicive taking just about everything and nothing seems to work .last thing i did  was  two injections of penicillin will see how...
    josejajgc josejajgc 36-40 5 Responses Oct 15, 2011

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    My son was diagnosed 2 years ago

    as a senior in high school. He's in college now and we've been through his primary care doctor, 2 dermatologists, 1 lancing, 2 scalp surgeries and now we are at the blood screening phase. Everyone keeps circling back to Accutane as the drug of choice of which I disapprove...
    Helpingmysoncope77 Helpingmysoncope77 36-40, F Jan 27

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    Hello guys, I'm 19 years old

    and I've been suffering with Dissecting Cellulitis Of The Scalp for a year now. I lost a little amount of my hair but it keeps growing back and falling down again in other areas. Doctors didn't know what's wrong with me at the begininng. Thank god I met that one doctor who knew...
    sslas94 sslas94 18-21, M Jan 19, 2014

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    Alone??

    I've been dealing with this for 3 years and I swell severely, my whole body like I'm filling up with puss I have to rise my hair for hours to get it out has anybody else had this?
    9jenn9 9jenn9 31-35, F Apr 28, 2013

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    Anything Topical

    has anyone found anything topical that seems to help at all? Weve been on all sorts of meds and now have even had several removed by surgery. If anyone has any suggestions or anything new that we can throw at our drs and dermo. we would greatly appreciate it.
    terriann48 terriann48 46-50, F Nov 8, 2012

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    My 14 Yr Old Son

    My 14 year old son has been diagnosed with dissecting cellutitis. Im not sure if thats exactly what he has. Ive raked over everything i can find trying to find info. Frankly his Drs. just dont know what to do. They told us they have never delt with anything like it. Hes tried...
    terriann48 terriann48 46-50, F 4 Responses Nov 8, 2012

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    Support Page For Our Condition

    I know how painful the condition is. I generally average no more than twenty hours of sleep combined for an entire week due to the pain. I recently read a couple articles about a few kids who are suffering from the condition and I can only imagine. While there really is no cure...
    butler863 butler863 31-35 1 Response Feb 16, 2013

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    Ive Had Scalp Dissecting Cellulitis For Roughly 2 Years Now

    Ive been taking 2x20mg doses of roaccutane daily for the 4mths and for the past couple of weeks ive been taking  a 50mg capsule of zinc along with it which supposedly aids the isotretinoin. Along with the medication i use cetrimide shampoo to wash my scalp ( the pustules...
    mechanicx mechanicx 22-25, M 23 Responses Aug 15, 2010

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    Related Experiences

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    howie79 howie79 31-35, M 3 days ago

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    Yes, me too. I've been struggling with it for nearly 10 years now. I pull only at the hair on my head. I don't pull it out from the roots though. What I do is snap it off from any...
    idontlikesharingmyfriends idontlikesharingmyfriends 22-25, F 1 Response Feb 9

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    Hey im 22 been pulling from my scalp for 6/7 years...Im a guy and finding it hard to find other guys to talk about trich. Most of my mates have never heard of it or they only think...
    ollie422 ollie422 22-25, M Feb 17

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    I really didnt think it through about how much I would miss having my hair brushed or the idea of someone running their fingers through my hair. And I can forget going to a salon...
    R0GUE R0GUE 70+ 1 Response 5 days ago

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    It's such a relaxing experience. I hear the buzz of the clippers and it's like all the tension goes out of me. That scratchy but gentle feeling as it goes from the base of my neck...
    howie79 howie79 31-35, M 3 days ago

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    Terminal insomnia, more specifically. Which means I don't have a problem falling asleep but I wake up too early. I usually wake up at around 330AM. Sometimes it's an hour later...
    Undeadly Undeadly 41-45, F 2 hrs ago

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    I am 22 years old and have had CRIPPLING emetophobia for as long as I can remember. In fact, my fear is so bad that I can't even stand to hear or read the "v" word...so browsing...
    hummingbirdbullets hummingbirdbullets 22-25, F 4 hrs ago

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    Okay this might going to be a long post Does this ever happen to you that you are living a ****** life and then you are straight transported to cloud 9 then again everything comes...
    eriloves1D eriloves1D 16-17, F 4 hrs ago

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    I have kept open mind to new ideas and experiences- as they say, a ship is safe in harbo, but that's not what ships are for. Accepting some level of risk in life is important. You...
    Zelaleme Zelaleme 46-50, F 28 mins ago

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    Some of you will know about my horrific trash TV habit. I also have an addiction to trash Youtube videos..I mean EP has kind of taken over a lot of the time I used to spend on it...
    Blondiex15 Blondiex15 36-40, F 2 Responses 2 hrs ago

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    I wish I had a friend I could play guitar with. I haven't had any friend's in over 10 years.
    mitchmiller1969 mitchmiller1969 41-45, M 4 hrs ago

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    I posted my alopecia experience I have alopecia totalis Check it?
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    About an hour of actual sleep and I have to be at work at 4am. I try not rely on sleeping pills, as I don't like the idea of taking medication unless it's absolutely necessary, but...
    AmayaTsuki AmayaTsuki 26-30, F 1 Response 3 hrs ago

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    I have the potential to be a really strong, attractive and intellectual woman but sometimes lack confidence. Every year my laziness and sometimes my lack of fashion sense for...
    alostone alostone 22-25, F 3 hrs ago

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    God is probably the only best friend I've ever had. I talk to Him sometimes when I don't have anyone else to turn to. He's a good listener although He doesn't talk much..or talk at...
    shioshishio shioshishio 18-21, F 1 Response 3 hrs ago

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    I know that feeling to it sucks but I was to move on but Nope haven't yet think about her all the time find myself daydreaming about her i dream about her in my sleepy
    bighoss803 bighoss803 41-45, M 2 hrs ago

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    I'm afraid I won't know what an ****** feels like because of my disability and I'll have an accident during intercourse.
    confusedGirl84 confusedGirl84 26-30, F 2 hrs ago

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    People always said I have soup cooler lips or DSL LIPS (Diick sucking lips) it's annoying though. And I kiss mostly white guys with small lips so I feel sorry for them because mine...
    kjonesr kjonesr 18-21, F 2 hrs ago

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    why is there nobody in central iowa usa on here?? I really want to have some kind of physical interaction soon. I can't find anyone remotely close to my area to go out with shop...
    transgirl28 transgirl28 26-30, T 2 hrs ago

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    I've had self image issues for as long as I can remember.. I'm so scared of what people will think of me. I have an obsession of looking perfect, and I'm never 100% happy with how...
    Dreamer2221 Dreamer2221 18-21, F 3 Responses 1 hr ago

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    for the past few days i haven't posted in instagram haha for some reason psss.. let's be quite ;)
    KarenIsMyName KarenIsMyName 18-21, F 48 mins ago

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    What does a hockey player and an Amish girl have in common?
    adhane05 adhane05 22-25, M 48 mins ago

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    "Believe it or not," I typed in with a smile, "I usually come across as too shy." I pressed the 'enter' button and waited for him to respond. "Seriously?" was his reply, and I had...
    thetitania thetitania 16-17, F 1 Response Feb 2

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    I have no relationship with my father...he left when I Was six...he told me he was just going to do a job...then he left and only came back every other day. Those visits became...
    ChrisLN99 ChrisLN99 13-15, M Feb 2

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    Help Me Complete My Education I am a Ugandan was recently at the high school but couldn't complete because of my financial problems. I managed to pay my tuition for my last year...
    wesleyspartan wesleyspartan 16-17, M 1 Response Feb 2

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    Many young women today are a bit tired of the usual relationships that they have with men of their age. This is why it is no surprise nowadays that we see a lot of Younger Women...
    celinecc11 celinecc11 26-30, F Feb 2

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    Many young women today are a bit tired of the usual relationships that they have with men of their age. This is why it is no surprise nowadays that we see a lot of Younger...
    celinecc11 celinecc11 26-30, F Feb 2

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    Many young women today are a bit tired of the usual relationships that they have with men of their age. This is why it is no surprise nowadays that we see a lot of Younger...
    celinecc11 celinecc11 26-30, F 1 Response Feb 2

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    Many young women today are a bit tired of the usual relationships that they have with men of their age. This is why it is no surprise nowadays that we see a lot of Younger...
    celinecc11 celinecc11 26-30, F Feb 2

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    Many young women today are a bit tired of the usual relationships that they have with men of their age. This is why it is no surprise nowadays that we see a lot of Younger...
    celinecc11 celinecc11 26-30, F Feb 2

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    Many young women today are a bit tired of the usual relationships that they have with men of their age. This is why it is no surprise nowadays that we see a lot of Younger...
    celinecc11 celinecc11 26-30, F Feb 2

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    Many young women today are a bit tired of the usual relationships that they have with men of their age. This is why it is no surprise nowadays that we see a lot of Younger Women...
    celinecc11 celinecc11 26-30, F Feb 2

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    Many young women today are a bit tired of the usual relationships that they have with men of their age. This is why it is no surprise nowadays that we see a lot of Younger Women...
    celinecc11 celinecc11 26-30, F Feb 2

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