I Have Dysautonomia

So yeah... I have dysautonomia.  For those who aren't familiar with it (that would be, you know, just about everyone), it's basically a disregulation between your sympathetic and parasympathetic nervous systems.  The basic...

My name is Carol and I am 41-years-young. I was diagnosed with dysautonomia on December 23, 2010. I remember it so vividly. At the time, it was a blessing to finally know what I had. I finally had a name to everything I was going...

Hi all, my 12 year old "C" was diagnosed about 9 months ago. She had a mild case because she wasn't actually fainting, but she would have episodes of bad fatigue and tachycardia. A cardiologist did not do a tilt table test but all of...

In summer of 2012 I started feeling very sick. I was constantly tired, my head hurt extremely bad, heart palpitations(of around 230 beats a minute), and I would get dizzy spells when ever I would stand up, and when I was active for too...

When I was 17 I started having weird medical problems, I was going to the washroom ALOT and was having weird anxiety, my heart would palpitate really weirdly, blurred vision, weakness, fatigue, feeling faint disoriented. I went to my...

I have a stethoscope because I'm a geek. I was listening to my resting heartbeat after waking up this morning. I decided to do a little experiment and see what my hb would be standing up. Most people with dysautonomia have a rapid heart...

I was diagnosed with dysautonomia about two years ago.  Anyone who joins this group will know the story, but since it seems no one does yet, I'm going to explain the illness.  Dysautonomia is caused by malfunctioning of the...

I'm so sick of people looking at me as if I'm perfectly healthy. Here's a perfect example today I'm not having a great day so I used my disability handicap parking and was verbally attacked for using it. I wish that what's going on on...

I am Aaron, I am a 15 year old who has dysautonomia , POTS and on Tuesday I am having surgery to determine if I have a heart condition called SVT. I am just a normal girl, a freshman, who wants to hang out wit her friends, go to movies...

I have shared my story here: http://foamyglass.blogs.experienceproject.com/152777.html
with some tips on what has been helpful for me in my efforts to recover....

I don't know when my dysautonomia began.  My specialist suggests that I've had it most if not all of my life due to my medical history.  What I do know is that I'm a 28 year old wife and mother of 2 beautiful little...

I'm 72 year old femail,was just diagnosis with Dysautonomia, First I was told I had MS,.The sad part about this is it took many Doctors and many years to diagnosis this,So much of this could have been avoided, there might of been help...

When I was 14 years old I was in Catholic Mass with my mom. I fainted in the middle of the service. I thought I died because the priest was standing over me praying when I awoke. I had a battery of tests run on me. Finally they...

Well around February this year I began having issues with foot pain, after months of treating plantar fasciitis, I had MRI's of both feet. The MRI's showed no issues with my feet and the podiatrist and foot surgeon said my issue was...

I'm 15 and my Dysautonomia started 2 years ago in the middle of the year,I went to gym and afterwards I noticed I had some really bad chest pain.I had lunch next so I just waited to see if it would work out but eventually about 30...

My little brother Alex has just been diagnosed with Dysautonomia at the age of 17. Alex has always been very active in sports and this condition has caused him to become extremely fatigued. He becomes very sluggish and its to a point...

"you can be you or you can be ill"

This is what someone said about people with illness. What an awful thing to say. I am a person that suffers from multiple chronic illnesses and rise above them. That is who I am.

Every experience...

so i have been sick for five years. im 17 now and have been sick since i was twelve. it started off as just being light headed and very tolerable but then when i got to my junior year in high school i could'nt do it and had to quit...

So guys, I was really bad and depressed last year. But I don't know, I going to the Church these last months and I am feel that I never been so good since I discovered the illness.
And I think you should try too. I won a peace of...