Post

I Have Dysautonomia

for those with the autonomic nervous system disorder 187 People

    Medical Mystery - In summer of 2012 I started feeling very sick. I was constantly tired, my head hurt extremely bad, heart palpitations(of around 230 beats a minute), and I would...
    Imgabbs Imgabbs 16-17, F May 11, 2013

    Your Response

    Cancel
    Am I In Heaven? - When I was 14 years old I was in Catholic Mass with my mom. I fainted in the middle of the service. I thought I died because the priest was standing over me...
    m0mf1sh m0mf1sh 26-30, F Sep 20, 2012

    Your Response

    Cancel
    A Lifetime Of Dysautonomia - I have had syncope off and on since I was a teen. Had migraine headaches in my twenties, but they went away for more than a decade and came back as...
    Sharli Sharli 56-60 Feb 25, 2011

    Your Response

    Cancel
    The Fear Of Losing My Independence. - Hi.  I am a 44 year old female, single mom of 2 daughters and I have had the unfortunate luck of being diagnosed with Dysautonomia 6...
    bogeybear09 bogeybear09 41-45, F 1 Response Oct 30, 2010

    Your Response

    Cancel
    What Is Dysautonomia? - You are the person who's afraid that you're going to have a heart attack every time you feel a flutter.  You're the person who has been to every type of...
    needtobefree3333 needtobefree3333 46-50, F 1 Response Jun 5, 2012

    Your Response

    Cancel
    Dyautonomic Heartbeat - I have a stethoscope because I'm a geek. I was listening to my resting heartbeat after waking up this morning. I decided to do a little experiment and see...
    AshlynnKate AshlynnKate 16-17, F 2 Responses Dec 24, 2011

    Your Response

    Cancel
    Not Diagnosed Yet.... - But I have all the symptoms except POTS that I know of. I used to pass out all the time when I was younger and just recently diagnosed with IST. I always...
    caelanga caelanga 36-40, F 1 Response Oct 28, 2013

    Your Response

    Cancel
    Dysautonomia - My name is Carol and I am 41-years-young. I was diagnosed with dysautonomia on December 23, 2010. I remember it so vividly. At the time, it was a blessing to finally...
    carollynd carollynd 41-45, F 1 Response Feb 13, 2012

    Your Response

    Cancel
    Tomorrow Is My First Appointment With The Neurologist. - I was diagnosed this summer with Dysautonomia by my cardiologist. With time he has kind of said it is something that you...
    teresahashope teresahashope 31-35, F Sep 18, 2013

    Your Response

    Cancel
    Dysautonomia - I have been diagnosed with dysautonomia for almost 3 years. I can remember the day I started feeling different. All of the sudden I couldn't swallow. It felt...
    EMeg EMeg 22-25 7 Responses Oct 16, 2008

    Your Response

    Cancel
    Invisible - I've had symptoms of dysautonomia since puberty. I have odd food intolerances that come and go; for example, if I have lactose between ~4:00 a.m. and 7:00 a.m. it will...
    RecklessWrecker RecklessWrecker 22-25 3 Responses Nov 20, 2013

    Your Response

    Cancel
    12 Year Old Daughter Has Dysautonomia - Hi all, my 12 year old "C" was diagnosed about 9 months ago. She had a mild case because she wasn't actually fainting, but she would have...
    Shawnita Shawnita 41-45, F 1 Response Nov 15, 2012

    Your Response

    Cancel
    Now Isn't It Ironic? - I have always had a life plan. For the past three years I have planned, dedicated, and lived my life with the sole purpose of preparing the perfect...
    sleeplessnite sleeplessnite 22-25, F 1 Response Nov 11, 2011

    Your Response

    Cancel
    Really Better - So guys, I was really bad and depressed last year. But I don't know, I going to the Church these last months and I am feel that I never been so good since I...
    Mari028 Mari028 13-15, F Mar 25, 2012

    Your Response

    Cancel
    From Healthy To Dysautonomia In One Moment. - I'm 15 and my Dysautonomia started 2 years ago in the middle of the year,I went to gym and afterwards I noticed I had some really bad...
    MedicallyBroken MedicallyBroken 13-15 1 Response Feb 9, 2013

    Your Response

    Cancel
    Dysautonomia My Nightmare - I was told I have Dysautonomia three and a half years ago It has changed my life to the point of know longer bng able to support myself and I have lost...
    knightridertaxi knightridertaxi 51-55 2 Responses Jun 7, 2010

    Your Response

    Cancel
    Living To Do Your Best With This Strange Experience - Hi I have P.O.T.S, 2ND degree AV node block, right bundle branch block, etc. I was diagnosed after 3 years of many other...
    Bananabrainme Bananabrainme 51-55 1 Response Sep 16, 2010

    Your Response

    Cancel
    "Living With Dysautonomia"..Searching For A Cure♥ - I am a 63 yr. ( young) female! I have lived my life the best way I know how. I was diagnosed with Dysautonomia about 15 yrs...
    spinlady spinlady 61-65, F 1 Response Sep 18, 2013

    Your Response

    Cancel
    Daughter With Possible Dysautonomia (baroreflex Failure) - My 15 year old daughter has been suffering with hyper and hypo tension for over 3 years. Her BP is episodic and some days...
    tamsma tamsma 41-45 1 Response Jan 21, 2011

    Your Response

    Cancel
    Thank God L'm Not Nut,s - I'm 72 year old femail,was just diagnosis with Dysautonomia, First I was told I had MS,.The sad part about this is it took many Doctors and many years to...
    aminda22 aminda22 66-70, F Nov 24, 2012

    Your Response

    Cancel
    Dysautonomia Part of the Problem - I have dysautonomia. For me it was caused from Lyme Disease. The Lyme bacteria has attacked nearly every system in my body because...
    seekfind seekfind 36-40 Feb 13, 2009

    Your Response

    Cancel
    I Might Be Helpless Much Of The Time, But I Am Never Hopeless! - I was diagnosed with POTS about 3 years ago. No reason why, just have it. Don't know how I got it either. I just...
    bebe127 bebe127 41-45, F 1 Response Aug 27, 2012

    Your Response

    Cancel
    Sick Of Misinformed Or Uninformed Doctors! - Okay so I need to vent a little bit. 2 weeks ago to see a neurologist. I waited 2 months for this appointment. I got there and signed...
    DizzyGirl27 DizzyGirl27 22-25, F 1 Response Sep 11, 2012

    Your Response

    Cancel
    Not a Fun Rollercoaster, I Tell You. - So yeah... I have dysautonomia.  For those who aren't familiar with it (that would be, you know, just about everyone), it's basically a...
    deleted deleted 26-30 2 Responses Nov 25, 2008

    Your Response

    Cancel
    Unknowingly Having Dysautonomia For Five Years - so i have been sick for five years. im 17 now and have been sick since i was twelve. it started off as just being light headed...
    brirehab brirehab 16-17, F 3 Responses Mar 5, 2010

    Your Response

    Cancel
    Living With Pots - I am 33 and have had POTS for about  20 years.  It has been a very long road of tests and mis- diagnoses.  But today I can say that God has brought me to this...
    invisiblyme invisiblyme 31-35, F 2 Responses Feb 28, 2011

    Your Response

    Cancel
    Dyna (dysautonomia Youth Network Of America) - Hello everyone!  I hope that you are all doing well!  Always keep hope and rememeber we all care about you here!I wanted to tell...
    tiffanynicole tiffanynicole 13-15, F 2 Responses Sep 2, 2011

    Your Response

    Cancel
    Better With Salt - The sick thing about dysautonomia is that the illness gives you every invisible symptom, so it's harder for friends, relatives, coworkers -- and even most...
    Always3am Always3am 31-35, F 3 Responses Jul 30, 2012

    Your Response

    Cancel
    It wasn't until recently that I was diagnosed with this hell. Living with anxiety was enough, and now I have to go through this. Getting up every morning is hard, and I feel...
    HawaiianPunchz HawaiianPunchz 16-17, F 1 Response Mar 18

    Your Response

    Cancel
    I Know I Can't Be the Only One ... - I was diagnosed with dysautonomia about two years ago.  Anyone who joins this group will know the story, but since it seems no one does...
    brandnew brandnew 21-25, F 33 Responses Dec 13, 2007

    Your Response

    Cancel
    I Wish They Could Understand And Yet I Wouldn't Wish Illness On Anyone. - "you can be you or you can be ill" This is what someone said about people with illness. What an awful...
    DizzyGirl27 DizzyGirl27 22-25, F Sep 13, 2012

    Your Response

    Cancel
    Passing Out All The Time For A Year No Diagnosis Thought I Was Going Crazy! - Its been about a year since I began passing out cold with no explanation. I have scared my friends...
    kmek3030 kmek3030 31-35, F Jun 23, 2013

    Your Response

    Cancel
    My Illness, My Life, My Hope - My story begins at the tender age of 13. It was then that I began having strange dizzy spells. My family thought it was all a ploy to get attention...
    DizzyGirl27 DizzyGirl27 22-25, F 1 Response Sep 12, 2012

    Your Response

    Cancel
    Dysautonomia Diva - I am Aaron, I am a 15 year old who has dysautonomia , POTS and on Tuesday I am having surgery to determine if I have a heart condition called SVT. I am just a...
    DysautonomiaDiva DysautonomiaDiva 13-15, F 3 Responses Nov 24, 2012

    Your Response

    Cancel
    12 More Pages - I've been working on this organization for the past year!  Hope some of you may find it useful.  http://www.12morepages.com/
    Gurnicious32 Gurnicious32 18-21 Jul 22, 2009

    Your Response

    Cancel
    Trying To Live A Normal Life - I was diagnosed with Dysautonomia, POTS, Ehlers-danlos hypermoblity syndrome all in this past winter. I am 17 years old but have been suffering with...
    findingmyway94 findingmyway94 16-17, F 1 Response May 2, 2012

    Your Response

    Cancel
    Dysautonomia - Mercury Toxic and Reflux - My problems started about 8 years ago with worsening reflux that led to tachycardia and very strange blood pressure problems. I was...
    Eudemis Eudemis 46-50 Nov 25, 2008

    Your Response

    Cancel
    From Healthy To Dysautonomia In 10 Months - Well around February this year I began having issues with foot pain, after months of treating plantar fasciitis, I had MRI's of both...
    Iamxitd Iamxitd 41-45, M 2 Responses Oct 18, 2012

    Your Response

    Cancel
    I Don't Know How Much More I Can Take. - Hi, i began getting ill when i was 14 i am now 18, i have autonomia Dysautonomia the doctors told me i also have four other conditions...
    victorialynneee victorialynneee 18-21 2 Responses Jan 4, 2012

    Your Response

    Cancel
    Why Now? :( - I've always been the hard working, happy girl who had great aspirations and dreams for the future.. And at the end of year 11 /beginning of year 12, I knew something...
    Potsgirl Potsgirl 18-21, F 1 Response Aug 14, 2012

    Your Response

    Cancel
    Just Diagnosed With Dysautonomia... - Hi There, My name is Vanessa I am 31. I was just recently diagnosed with dysautonomia. It started for me when I was very young. I remember my...
    meowtattoo meowtattoo 31-35 2 Responses Oct 7, 2010

    Your Response

    Cancel
    My Whole Life - Diagnosed after a surgery brought on serious problems, but first symptoms appeared when I was 7. Life has been very scary ever since. Been having a lot of trouble...
    NotKrazyKatt NotKrazyKatt 41-45, F Aug 15, 2013

    Your Response

    Cancel
    Dysautonomia - Hello my name is bobby iv had dysautonomia since I was a kid I would get sick all the time for a long time dr bounced me around with all the different ideas of what...
    Bobbystofko Bobbystofko 18-21, M 1 Response Jul 12, 2013

    Your Response

    Cancel
    Dysautonomia, And POTS. - I've been living with terrible symptoms of POTS for almost two years now. I've joined this to hopefully get some support and answers because I've come to...
    ohitspotsy ohitspotsy 18-21, F 1 Response Aug 19, 2013

    Your Response

    Cancel
    I'm A 45 Y.o. Woman With Dysautonomia W/arrythmias & Anhidrosis.. Need Doctor(s) In Chicago Area Desperately - Hi - 7 years ago I started having daily arrythmias (PAC's, PVC's...
    BlahBlahAndBlah BlahBlahAndBlah 41-45 3 Responses Jan 13, 2012

    Your Response

    Cancel
    I Have Dysautonomia - I have been bed ridden for the better part of a year with P.O.T.S and I'm so nauseated I just CANNOT EXCERCISE and I have fatigue and headaches whenever I...
    Tylerdickson Tylerdickson 13-15 1 Response Aug 3, 2012

    Your Response

    Cancel
    Pain,depression And Tears - So, I think I'm becoming a little depressive,I mean, even with so many motives to smile I'm not really "feeling". There's some days,bad days, that I...
    Mari028 Mari028 13-15, F 1 Response Jan 4, 2012

    Your Response

    Cancel
    Possibly Pots - When I was 17 I started having weird medical problems, I was going to the washroom ALOT and was having weird anxiety, my heart would palpitate really weirdly...
    smm12 smm12 18-21 6 Responses Aug 12, 2008

    Your Response

    Cancel
    The Invisible Illness. - There were those days were I would lay down and think "am I crazy? can't they see that I'm sick?" So what's worse than an illness? An invisible one. I was...
    MeliDarling MeliDarling 16-17, F 3 Responses Feb 28, 2011

    Your Response

    Cancel
    People Look At Me As If I'm Perfectly Healthy - I'm so sick of people looking at me as if I'm perfectly healthy. Here's a perfect example today I'm not having a great day so I used...
    taetaeld taetaeld 26-30, F 1 Response Oct 10, 2012

    Your Response

    Cancel
    Remitting Relpasing Dysautonomia -  I have shared my story here: http://foamyglass.blogs.experienceproject.com/152777.html with some tips on what has been helpful for me...
    foamyglass foamyglass 41-45 1 Response Jul 30, 2009

    Your Response

    Cancel
    Dysatonomia: My Journey My Battle My Victory My Life -  I don't know when my dysautonomia began.  My specialist suggests that I've had it most if not all of my life due...
    mirandapowell mirandapowell 26-30, F 1 Response Nov 1, 2009

    Your Response

    Cancel