I Have Dyserythropoietic Anemia, Congenital Type 1

A Dyserythropoietic Anemia, Congenital Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dyserythropoietic Anemia, Congenital Type 1. You're not alone. 6 People

    My Story

    I don't know if people still use this group . But to see such a group made me smile :) I was born with CDA type 1 . After been born early and very poorly . I have always been treated for CDA type 1. However just recently had tests that should confirm it. I was transfusion...
    Rachelw89 Rachelw89
    26-30, F
    Jul 25, 2013

    My Son Has Congenital Dyserythropoietic Anemia Type 1

    Our son Greyson was born Aug 2011 who almost never survived the first week as he was so sick.  I had a pretty good pregnancy but at the end my belly stopped growing and then after being in hospital for the third time I went into labour myself since my body knew this baby had to...
    whipcreamgirl whipcreamgirl
    31-35, F
    Feb 5, 2012

    Hello, My name is Dorsa.

    I am an intern with Rare Genomics Institute and RareShare this summer. We are helping research information on rare disease and I am looking to interview experts/patients about different diseases to help patients with these diseases. I am working on CDA. I'd really appreciate...
    dorsaa dorsaa
    18-21, F
    Aug 18, 2015

    I Have Congenital Dyserythropoietic Anemia (cda)

     Hello there, i have just joined this website today , so im a little unsure of how it works of how i can get in contact with people who have my condition ( i don't like to use the word "disease" personally)   I am 22 years old , living in beautiful...
    rogue22 rogue22
    22-25
    7 Responses Dec 20, 2008
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