I Have Dystonia Dopa Responsive

Personal Stories, Advice, and Support 3 People

    I Have Dopa Responsive Dystonia

    I've had this disorder since the age of 4 years.  I'm 45 years old and I just started taking Sinemet.  I sometimes had to hang on to tree's or lean on my little cousin to get to school.  I saw so many Doctor's who just didn't know how to help me.  Many people thought I was...
    sebra sebra
    41-45, F
    1 Response Feb 3, 2011

    My Life With Dystonia

    When I get existed or nerves I have trimmers and that comes with allot of pain. My body goes every which way my twitches make it go. It's like I have no control over my body. I hate being me sometimes. But I steal have the well to get up every morning and face the day.
    BeautyBeast27 BeautyBeast27
    26-30, F
    1 Response Nov 21, 2008
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