I Have Dystonia

Dystonia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dystonia. You're not alone. 15 People

    For years I have struggled with painful spasms

    from my neck to my hips, with unexplained pains in my legs. My orthopedists insisted that I just had scoliosis, and sent me to PT and put me in useless back braces. It wasn't until I sought out a neurologist in May out of sheer desperation to get a explanation for my pain (and...
    Medi2017 Medi2017
    22-25, F
    Aug 17, 2014

    Mornings like this I wish I didn't have to take

    meds prescribed by doctors just so I don't have to feel anything. All the bad side effects are getting to me. I wish marijuana was legal in Texas. I'd go back to California just for their weed. Lol
    vanessamoomoo vanessamoomoo
    22-25, F
    1 Response Oct 4, 2014

    My Mum.

    Hi everybody, I am not the one that is actually with the dystonia but my mum has a very severe case of it. When my mum has one of the episodes, afterwards she can be very distressed. When I see her in these episodes it makes me feel like I am a useless piece of crap. Sometimes...
    Jas4001 Jas4001
    18-21, F
    2 Responses Apr 28, 2012
    deleted deleted
    Feb 17, 2016

    Hi, I'm from Canada. I'm almost 21 now,

    and ever since I was little I've been told I have Cerebral Palsy; However, as I grew and got older, it was apparent to everyone that something was off the mark. I could do things that people with CP "aren't supposed to" be able to do - and I COULDN'T do things that apparently...
    1happylady 1happylady
    22-25, F
    2 Responses Apr 8, 2015
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