I Have Dystonia

Dystonia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dystonia. You're not alone. 15 People

    Hi, I'm from Canada. I'm almost 21 now,

    and ever since I was little I've been told I have Cerebral Palsy; However, as I grew and got older, it was apparent to everyone that something was off the mark. I could do things that people with CP "aren't supposed to" be able to do - and I COULDN'T do things that apparently...
    1happylady 1happylady
    22-25, F
    2 Responses Apr 8, 2015

    My Mum.

    Hi everybody, I am not the one that is actually with the dystonia but my mum has a very severe case of it. When my mum has one of the episodes, afterwards she can be very distressed. When I see her in these episodes it makes me feel like I am a useless piece of crap. Sometimes...
    Jas4001 Jas4001
    18-21, F
    2 Responses Apr 28, 2012

    For years I have struggled with painful spasms

    from my neck to my hips, with unexplained pains in my legs. My orthopedists insisted that I just had scoliosis, and sent me to PT and put me in useless back braces. It wasn't until I sought out a neurologist in May out of sheer desperation to get a explanation for my pain (and...
    Medi2017 Medi2017
    22-25, F
    Aug 17, 2014

    Mornings like this I wish I didn't have to take

    meds prescribed by doctors just so I don't have to feel anything. All the bad side effects are getting to me. I wish marijuana was legal in Texas. I'd go back to California just for their weed. Lol
    vanessamoomoo vanessamoomoo
    22-25, F
    1 Response Oct 4, 2014
    deleted deleted
    26-30
    Feb 17, 2016
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