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I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 25 People

    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

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    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 46-50 May 25, 2014

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    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

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    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

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    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10, 2014

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    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 2 Responses Jul 26, 2013

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    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 13 Responses Jan 10, 2011

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    I'm so glad I found this.

    Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and so on. Every time I go to a new provider, nothing is ever "bad enough" to do much about, leaving me feeling at times like I'm...
    jsxburt jsxburt 51-55, F 1 Response Dec 20, 2014

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    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

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    Related Experiences

    I myself, have no clue what to do with my life. I finished year 12 last year and even then, whenever a peer would ask me questions like "what do you want to study in university...
    breesworld breesworld 16-17, F 1 Response 15 hrs ago

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    I am so happy and grateful that I have a wonderful sense of calm with a smile so big it touches my ears while having tears of joy and a heart so full of love it feels like it's...
    Nocloudshere Nocloudshere 31-35 2 Responses 22 hrs ago

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    Ironically, I can write a lot about not being able to write anything. But yeah...I really want to write, and yet I find my mind completely blank when I start to write anything...
    curiouscallipso curiouscallipso 22-25, F 1 day ago

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    I came across this site reading everyone's stories feeling amazed about how I am not alone. I feel a little disappointed because everyone's stories are mostly or similarly the same...
    whyme96 whyme96 18-21, F 1 Response 1 day ago

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    This is in regards to a friend of mine who suffers from carpel tunnel. In addition to this...it also seems like the muscle, tendon, etc. in his arm is calcifying making it feel...
    jlg813 jlg813 26-30, F 1 Response 1 day ago

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    I am so happy with myself from being pretty chunky I dropped down to a size 8 yes I know many would say I'm still fat but hey. It's not weight I have it's the hips and the junk in...
    Morenita79 Morenita79 36-40, F 1 Response 2 days ago

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    Today, I was diagnosed with Duane Syndrome. After 17 long years of wandering what's wrong with me, and why my eyes are so different from other peoples', I finally have closure. I...
    katiebug7 katiebug7 16-17, F 2 days ago

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    Good evening! I have been diagnosed with Marfan Syndrome when I was three months old by an ophthalmologist in a hospital in Poland. I am now 6'2", after two cardiac surgeries and...
    sakrona sakrona 18-21, F 3 Responses 2 days ago

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    Just found out my 11 year old son has Asperger's syndrome. I have suspected for a while, and the reason it went undiagnosed for so long is because he is so academically gifted. In...
    SoShellyBye SoShellyBye 41-45, F 2 Responses 2 days ago

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    I don't know for sure, but I know it's not normal. How can you be so tired from nothing? And this condition is what makes me depressed. Like I can be perfectly normal and then...
    fcksociety fcksociety 22-25, F 2 days ago

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    It's hard to really do anything.. When your a minor and have no family support... What's the point
    Norial Norial 13-15, F 1 Response 2 days ago

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    Getting old fears me. True. I am shocked that i am no longer a teenager, but why is it like only my age increases? I feel like my mentality when i was a teenager is the same as i...
    blitzkrieg7 blitzkrieg7 22-25, F 3 Responses 2 days ago

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    im in the early stages of carpal tunnel syndrome in my right hand. i dont wear a brace yet. i go through pain and numbness in my fingers. its kinda weird.
    noaht43 noaht43 41-45, T 5 days ago

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    There's the oldest There's the youngest There's the only boy And then there's me...
    DreamRiver DreamRiver 18-21, F 4 Responses 6 days ago

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    Another bout has struck me down, looks like another few days of severe rest. Lucky me(!)
    ProjectExperienceNameUser ProjectExperienceNameUser 26-30, M 6 days ago

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    I don't understand why they are subjecting me to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of...
    LoneSouls LoneSouls 31-35, F 6 days ago

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    Broken Heart Syndrome is real. SO happy I DiDN'T GET THAT! But I was HEARTBROKEN for MANY, MANY months. It took another guy to help me forget and keep me distracted but that dude...
    endlessl0ve endlessl0ve 26-30, F 2 Responses a week ago

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    Any way to stop feeling fatigued? Anyone had any luck gaining energy back?
    WhiskeyT WhiskeyT 22-25, F 1 Response Feb 2

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    i'm 40 years old and have polands syndrome.i was always told that i just had a birth defect and that was it but finally a doctor diagnosed me.i was fine when i was younger but for...
    Brewdogg Brewdogg 36-40, M 1 Response Feb 1

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    Homeschooled my entire life I suck at Math Still don't have a driver's license (and haven't practice-driven since last summer) I missed out on pretty much everything cool in the 9...
    FluttershyLabeouf FluttershyLabeouf 18-21, M 1 Response Feb 1

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    I have the pais syndrome an intersex condition. I am a FTM/Libragender and I have bottom dysphoria and I am happy though that I'm intersex, though worried too.
    Yviroc Yviroc 22-25, T Jan 31

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    Does anyone else experience a great feeling of anxiety and impending constant doom from this? Like something is terribly wrong...does anyone else feel this horrific panic deep in...
    myreality1 myreality1 36-40, M Jan 30

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    My husband and I have been trying to get pregnant for the past year. Nothing. I have two beautiful twin daughters. Natural conception, first pregnancy. I finally went to see a...
    Butterflykiss707 Butterflykiss707 22-25, F Jan 30

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    I have read a lot of these stories now and and everything seems so gloomy! It cant be all horrible, Im 26 now and was born with very mild Spina Bifida Occulta. Apparently Springles...
    ShanCourt ShanCourt 22-25, F Jan 29

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    New low: as some of my friends may know, I was violently abused, raped and borderline tortured my my stepmother and stepsister following my fathers passing, and I left when I was...
    Nihl Nihl 18-21, M 1 Response Jan 26

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    My 10yo son has a missing right pec muscle, but no other symptoms of Poland. He's very sporty and it has made no difference to what he can do, in fact he has developed a huge...
    TKDmum TKDmum 41-45, F Jan 26

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    Just got out of the hospital due to crohns and now I'm in a really bad situation and need some help. If anyone can check out my gofundme page I would be very very thankful. https...
    atheGAYlouise atheGAYlouise 22-25, F 1 Response Jan 25

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    My name is Kristen Phelan and I'm a casting director working with Watercooler Casting. We are currently in development of a new TV project that is looking to document and bring...
    thekp129 thekp129 41-45, F Jan 25

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    I had my first Parkinson's related fall the other day. The only thing that saved me from hitting the ground was the kitchen counter, had that not been there I would have gone all...
    LifeinWoodinville LifeinWoodinville 41-45, M 6 Responses Jan 25

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    I was born with it. This disorder has really changed my life. All my symptoms of it: ----I tend to be socially anxious at times, not know what to say, I am not very good at...
    RainbowBlaze RainbowBlaze 13-15 2 Responses Jan 25

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    Please people, if you come to a place named "experience project" and you never take the time to write even one story, what are you doing here ? 2 out of 5 people that send me a...
    AdBlue AdBlue 46-50, M 2 Responses Jan 24

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