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I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 22 People

    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

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    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 41-45 1 Response May 25, 2014

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    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 1 Response Jul 26, 2013

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    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

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    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 12 Responses Jan 10, 2011

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    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

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    I'm so glad I found this.

    Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and so on. Every time I go to a new provider, nothing is ever "bad enough" to do much about, leaving me feeling at times like I'm...
    jsxburt jsxburt 51-55, F 1 Response Dec 20, 2014

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    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

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    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10, 2014

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    Related Experiences

    As an Aspie, I get very tired having to socialize and talk to people. I'm often accused of being aloof, standoffish, or downright rude. It's not my intention to be mean or...
    Sorgun Sorgun 26-30, M 3 Responses Feb 21

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    Indeedly--makes effective communication a ***** I gotta say. And then there's the difficulty to quickly adapt, and sometimes people say stuff in a way that you just don't get and...
    Cryx Cryx 16-17, F 1 Response 2 days ago

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    I have it. Mayve yes or maybe no. I dont know but there are signs. Although I wasnt diagnosed coz going to a psychiatrist or something has a negative stigma in my place. When I was...
    WifeOfVegeta WifeOfVegeta 26-30, F 1 Response Feb 4

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    i am aspie and i am proud of it. it makes me who i am and ucan all say like it makes some things i know i was diagnosed last year with this and high functioning augism and this is...
    prodemonz prodemonz 13-15, M 3 Responses a week ago

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    I have known for 3 yrs that I have Hashimoto's but I believe I have had it for 25 yrs. It started during my 2nd pregnancy. My Dr over the years kept treating the symptoms with...
    physio56 physio56 56-60, F 2 days ago

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    One year ago is when I started getting sick. It's started out as maybe an hour in the morning I would feel extremely nauseous and most of the time I would get sick and then go on...
    kateyrose98 kateyrose98 16-17, F Feb 9

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    Hello: My daughter has Parkes Weber Syndrome. I'm wondering if anyone in this group is from Ontario?
    Momofgirl Momofgirl 41-45, F Feb 5

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    My 13yr old daughter is an aspie .It runs on my husband's side of our family. He himself is an aspie so is his 17yr old son. Our 11yr old son has autism. It primarily has affected...
    Allie9273 Allie9273 41-45, F Feb 6

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    I am 31 and my husband is 31 as well?we are a gay couple? for the last 7 years My husband has been aware of his Aspergers Diagnosis and I, Have done a very extensive amount of...
    KnightOfTheMadHatter KnightOfTheMadHatter 31-35, M Feb 22

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    It's so tough to get exercise. I want to exercise so much...but I can't because it hurts and my joints pop every time i do:(
    Enpfor12 Enpfor12 18-21, F Feb 10

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    Hi, I'm 21. I slipped a disc in December 2014. I had CES symptoms for 2 weeks before having my disc removed as I was on a cruise ship. I guess I'm lucky as I can walk normally with...
    sdavis313 sdavis313 18-21, F 1 Response Feb 15

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    I can't say 100% that I have this (just 98%) I wish I knew how to get better because I also have pseudotumor cerebri and the two are going in circles with each other right now...
    lu7998 lu7998 31-35, F Feb 16

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    Dear CFS: **** you! I hate not being able to think clearly. I hate not being able to play with my kids Saturday *and* Sunday. Instead, I have to pick one day and then use the...
    LookingForIt987 LookingForIt987 41-45, M 2 Responses Feb 11

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    Hi everyone! So I'll be posting my full story later but just wanted to do a short version. I'm 17 and was diagnosed in October 2014, they found out it was BCS after only being...
    Abbyrk Abbyrk 16-17, F 1 Response Feb 15

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    Hi I'm 24 years old and currently being diagnosed with pts. 5 months ago I had my first symptom which came out of no where and was severe! I have had sooo many tests as you would...
    megzeee megzeee 22-25, F 1 Response Feb 18

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    I was born weighing two pounds and couldn't eat on my own. I wasn't eating food of any kind and was diagnosed with RSS when i was an infant. At first i was put on a N G tube (a...
    RTKDcarmichael1stdegree RTKDcarmichael1stdegree 18-21, M 1 Response 5 days ago

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    Have any of you kept up with news recently? Apparently, there are studies now that show this is a disease and the medical community will start treating it as a disease. Looks like...
    awesomesauce2 awesomesauce2 22-25, M 3 Responses 5 days ago

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    Iv had Crohn's pretty much my entire life. I had my whole large bowel out 3 yrs ago, Stoma for a year (thank god it was reversible) but since then I have suffered agonising fatigue...
    strawberryblonde89 strawberryblonde89 26-30, F 2 Responses Feb 9

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    Well I thought, for some silly reason, that I was the only person with Parkinson's Disease that had the horrible morning toes problem. Turns out it's more common then I thought...
    LifeinWoodinville LifeinWoodinville 41-45, M 2 Responses Feb 6

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    I've just started training full time at a circus school in Australia (NICA), and am struggling every day to keep up and to not feel sick. Almost every day I have to sit down for a...
    krazykrazne krazykrazne 22-25, F Feb 18

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    I was diagnosed at 9 (now I'm 14). It can be really hard but what makes it soo much easier for me is camp oasis (summer camp for people with Crohn's and colitis)...ITS SO AMAZING...
    ellajade ellajade 13-15, F Feb 21

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    PAN (Patient Access Network) Foundation Launches Financial Assistance for Patients Living with Parkinson’s Disease: http://www.panfoundation.org/news-article-list/365-pan...
    LifeinWoodinville LifeinWoodinville 41-45, M 1 Response a week ago

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    Chrohn's is the worst!! These have been the roughest 2 years of my life so far. Words can not explain my frustration with this. All I want to know is what the hell can I eat...
    beYOUtifulxo beYOUtifulxo 26-30, F 3 Responses 4 days ago

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    I'm 22 years old the mother of two and one on the way. for the past month i have been out of my doctors and endocrinologist whom thought i had hypothyroidism until i had an...
    jesskap jesskap 22-25, F Feb 21

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    hi guys , 4 months ago i started getting pain from left wrist , i workout alot so i thought it was from training but after 2 week and pain was still there , i went to doctor and...
    Al1r3zA Al1r3zA 18-21, M 1 Response Feb 20

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    I've had it since I was 9 years old
    ellajade ellajade 13-15, F Feb 21

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    My sister does, and I'm that sibling. I have asperger's syndrome, a form of high-functioning autism. When I was younger I would get angry at the littlest things. I remember...
    ftmFreddy ftmFreddy 18-21, T 1 Response Feb 9

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    I work in customer service (phone and email). I have been told before that I put too much pressure on myself, and I agree that I do. But I just don't know how NOT to. Well...
    enigma19020 enigma19020 46-50, M 2 hrs ago

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    Quite a few, actually. Let's see: Velo Cardio Facial Syndrome Asperger's syndrome Depression Obsessive Compulsive Disorder That's me.
    ftmFreddy ftmFreddy 18-21, T 5 Responses Feb 9

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    The ever present question, are we being manipulated? If you say, well yeah, duh. Then you ask yourself the next question, who is manipulating us? Welcome to the mind of all tin...
    everydayisagoodone everydayisagoodone 31-35 2 Responses Feb 13

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    Hi I am a 20 year old girl in the uk. I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me...
    MissLisac MissLisac 18-21, F 1 Response 4 days ago

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    I have McDonald's across the road from me when my perent are at work I go there and eat that why I'm so fat
    matto432 matto432 13-15 1 Response Feb 6

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    So it's hitting week 10 now that I have been unemployed and I am starting to feel completely hopeless. I have two degrees, a Bachelor and a Masters degree and yet I cannot seem to...
    evollove evollove 41-45 1 Response Feb 13

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