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I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 23 People

    I'm so glad I found this.

    Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and so on. Every time I go to a new provider, nothing is ever "bad enough" to do much about, leaving me feeling at times like I'm...
    jsxburt jsxburt 51-55, F 1 Response Dec 20, 2014

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    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 13 Responses Jan 10, 2011

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    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

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    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 41-45 1 Response May 25, 2014

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    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10, 2014

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    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

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    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 1 Response Jul 26, 2013

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    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

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    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

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    Related Experiences

    About 17 months ago I injured my left shoulder during a period where I was training particularly hard and i just woke up one day and could hardly raise my left arm at all without...
    dukeyboy83 dukeyboy83 31-35, M 10 hrs ago

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    All I can say is thank God for the theatre. My parents signed me up for an amateur theatre group when I was 11; in hindsight, they may have done it because of my Asperger's (I was...
    heyitsgarrett heyitsgarrett 22-25, M 2 Responses 22 hrs ago

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    I was diagnosed with Dariers Disease when I was 27, and 5 years later I still can't come to terms with it. I'm the first in my family and I have the linear disorder - it affects...
    Sglodion Sglodion 22-25, F 1 day ago

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    Hey guys. I diagnosed myself with Pica Syndrome because I crave soap pretty often and I recently started eating carpet freshener powder. I feel ashamed of what I've been doing so I...
    WhyArentYouSmiling WhyArentYouSmiling 18-21, F 1 Response 2 days ago

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    So I made an account for this website to share my story about having polycyclic ovary syndrome. I was only diagnosed two days ago but after talking to my doctor and reading...
    JudgementFreeMe JudgementFreeMe 22-25, F 3 days ago

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    My therapist was setting up my new treatment plan and had been talking about how she wanted to find a new diagnosis for me, because she felt my difficulties went beyond the...
    Emeryael Emeryael 26-30, F 1 Response 4 days ago

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    I look on here and am deeply saddened by the number of people who want to kill themselves. Many at such a young age, when they have not even begun to live their lives. They get in...
    GraceIsMine GraceIsMine 66-70, F 4 Responses 6 days ago

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    Im 13 almost 14 in 9th grade and I've had Crohns for 4 years now. But I've only been diagnosed with it about 4 months ago. I've been suffering with it without knowing that it was...
    Poptart020 Poptart020 13-15, F 1 Response a week ago

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    Could be me. Need to schedule an appointment and get assessed.
    Western9 Western9 36-40, M a week ago

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    I don't mind Aspergers. It has benefited my intelligence greatly, and I have a small group of friends who understand that I may not be the most entertaining or talkative person in...
    XenonVirus XenonVirus 13-15, M a week ago

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    Because of my Crohn's, eating is incredibly difficult sometimes because I know after I eat whatever it is I'm going to end up on the toilet in a few minutes. It's especially...
    Catherdra Catherdra 22-25, F Jun 29

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    Hate the empty nest. Use to have sons friends Ina bs out...so quite here. On a good note ...grocery bill has gone way down.
    sharipie sharipie 51-55, F 2 Responses Jun 29

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    Want to know me better? Autism is funny. And terrifying. (Just like EP really) Just now, as I sat reading a short passage of keywords about autism titled 'Am I OKay' I did my...
    jacquelinejones jacquelinejones 46-50 3 Responses Jun 28

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    I was diagnosed from my kidney doc after a Biopsy that I had sjogrens, but my Rhuemetologist says no ( I don't like him and am changing to a new one) I already have kidney disease...
    katsass katsass 46-50, F Jun 27

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    and am glad there are others out there that have it too, because i'm not crazy.(At least not half as crazy as they were making me out to be)But...I would never, ever wish this...
    katiebabydoll13 katiebabydoll13 26-30, F Jun 27

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    my name is murtada , im from saudi arabia 29 years old ,, i need someone to help me about darier's , because now more than 15 years I have it ,, i use medicine but noting deferent...
    murtada1986 murtada1986 26-30, M Jun 26

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    Please read with care, and take steps to keep yourself feeling safe and secure, if reading about body image and associated topics are triggering for you. I’m your stereotypical...
    ChocolateCurvesModel ChocolateCurvesModel 31-35, F Jun 26

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    Write about your experiencePlease read with care, and take steps to keep yourself feeling safe and secure, if reading about body image and associated topics are triggering for you...
    ChocolateCurvesModel ChocolateCurvesModel 31-35, F 1 Response Jun 26

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    I'm in love with someone I'll never have... It's the saddest thing in the world to me...
    boggbinny boggbinny 13-15, M 3 Responses Jun 26

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    I was just diagnosed with Hashimoto's and hypothyroidism this month after many years of symptoms. I wonder if I'll ever feel like I have control of my body again. It has made me so...
    ambiblue ambiblue 22-25, F Jun 25

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    Im 16 and I struggle with Poland syndrome just as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no...
    FreeWilly04 FreeWilly04 16-17, M 1 Response Jun 25

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    I want to write, but these pictures have no words.
    notarikon notarikon 16-17 Jun 24

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    I was diagnosed with Hashimoto's March 2015. My identical twin was diagnosed 20 years ago. She can’t remember her exact symptoms that led to her diagnosis after two years and...
    MinnieT MinnieT 36-40, F 2 Responses Jun 24

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    I used to hate it, but recently I've grown to love it. When I was younger, I got teased for my curves and hourglass figure, now the people in my town want what I have. It's funny...
    Avidnerd Avidnerd 18-21, F 5 Responses Jun 23

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    I hate it so much, it's bull crap (pun intended). So I was diagnosed at age 14, I had to get a colonoscopy to get diagnosed. For the past two years my medicine hasn't been working...
    thatoneAustinguy thatoneAustinguy 18-21, M Jun 22

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    Daimyan is 9 and our journey began at his birth. He would like to ask everyone for support on a new support group on facebook. Search LUNAR to find it. Thank you
    LunarDayDay LunarDayDay 36-40, M Jun 22

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    I think a good male friend of mine may have Klinefelter syndrome. He fits many of the symptoms mentioned online including he is tall, a bit socially awkward, very wide hips and...
    pennyjd pennyjd 36-40, F Jun 22

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    FIRST I want to ask if any of you have had or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it...
    CousinV CousinV 18-21, F Jun 21

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    I'm 17 and i was diagnosed about a month ago. I'm not depressed or anything, but i'm losing lots of hair, and think i'm gaining weight. I'm so scared of what might happen to me...
    opiumm opiumm 16-17, F 1 Response Jun 21

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    I'm in love with someone I can never have. It's a complex situation, involving circumstances and distance, but the feelings are stronger now than they were a few months ago when...
    ally124 ally124 26-30, F 1 Response Jun 21

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    First time sufferer of Grover's disease for almost 4 months. Brutal and diabolical itching and discomfort is negatively effecting my life and causing disruption to desired and...
    Parkmuse Parkmuse 56-60, F 2 Responses Jun 19

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    Life will knock you off your feet. How hard you can get hit and keep pushing forward is important. I've been through so much but it was worth it all because I am happy by which I...
    LeahLovee LeahLovee 13-15, F 2 Responses Jun 18

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    Asperger's Syndrome in high school was tough. I didn't have a lot of friends and I was alone a lot but still hung out with a few peers. I remember being in the vocal club and band...
    AspieGirl97 AspieGirl97 18-21, F 4 Responses Jun 18

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