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I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 22 People

    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 1 Response Jul 26, 2013

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    I'm so glad I found this.

    Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and so on. Every time I go to a new provider, nothing is ever "bad enough" to do much about, leaving me feeling at times like I'm...
    jsxburt jsxburt 51-55, F 1 Response Dec 20, 2014

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    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

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    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

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    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10, 2014

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    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 41-45 1 Response May 25, 2014

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    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

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    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 12 Responses Jan 10, 2011

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    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

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    Related Experiences

    I was known as the "Weirdo" during school. I have never had any real friends in my whole life until freshman year. Kids never wanted to play with me and called me "stupid" and...
    lollipopchick lollipopchick 22-25, F 7 Responses Mar 10

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    For as long as I can remember I had felt....a little different than others. I didn't care about most things. I didn't want or need much social activities. I had, and still have, a...
    secretlyhonest1 secretlyhonest1 22-25, M 2 Responses 7 hrs ago

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    Indeedly--makes effective communication a ***** I gotta say. And then there's the difficulty to quickly adapt, and sometimes people say stuff in a way that you just don't get and...
    Cryx Cryx 16-17, F 1 Response Feb 28

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    All through my short life I have experienced the troubles of being an outcast, being told to simply "get involved" but that's not at all easy. Well not for me anyway. I can do...
    thedimone thedimone 13-15, F 3 Responses 2 days ago

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    and I was wondering how else did? What are some tics you have and how do you manage them?
    zodiac1888 zodiac1888 18-21, M Mar 20

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    When I was a kid I basically thought I was an alien because I felt so different the first language i learned was german but i was going to school with children whose mother...
    loafemon1 loafemon1 18-21, F 2 Responses 3 days ago

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    This is true, one thing about it is an immense obsession with limited things, I was diagnosed a LONG time ago, most likely after preschool. My obsession is mental disorders, Two...
    deanratzloff deanratzloff 13-15 2 Responses Mar 19

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    I have Kleine Levin Syndrome, but I prefer calling it the sleeping beauty syndrome, it makes me more comfortable. I live in a very small town where no one knows about this...
    briannanicolex briannanicolex 18-21, F Mar 13

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    I have known for 3 yrs that I have Hashimoto's but I believe I have had it for 25 yrs. It started during my 2nd pregnancy. My Dr over the years kept treating the symptoms with...
    physio56 physio56 56-60, F Mar 1

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    Just diagnosed this week although they called it neuralgic amyotrophy. I believe there is another name for it as well, do you know? Does this all mean our immune system has...
    tickatocken tickatocken 41-45, F 2 hrs ago

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    Hi my name is Edward, I was diagnosed with Russell Silver Syndrome when I was every young. I'm 18 now and about to go off to college. My whole life I have known about my...
    EdwardLayman EdwardLayman 18-21, M Mar 17

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    not me but my youngest son. we adopted him and his birth parents were drug and alcohol addicted. I am only just learning about this syndrome and the problems that my son will have...
    RobertaSunset RobertaSunset 36-40, F 2 days ago

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    I don't know if because of the other medications I HAVE to take or what but I use Restasis every day twice a day like the frickin commercial says. I also take Fish Oil and...
    steverick steverick 56-60, M 1 Response Mar 3

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    I NEED HELP! My boyfriend of 7 months has aspergers (low on the spectrum i think). I have tried communication, i really have, but i wonder how much of it is his personality, and...
    misselenamasen misselenamasen 18-21, F 3 Responses Mar 11

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    Not sure what to think, 20 years old, for almost two years, I will wake up in the early hours with this intense pain, sweating, and know that I need to get to the toilet. I will...
    Ashlearyan Ashlearyan 18-21, F Mar 7

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    I'm seeing a specialist soon as they suspect i have ehlers-danlos hypermobility type. I just wondered if everyone who has it has the stretchy skin as i only have it mildly on my...
    bloodandfire91 bloodandfire91 22-25, F Mar 18

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    I have tspk for almost 3 years now and been telling to use fml steroid 4 times a day with cyclosporine , everytime when we try to stop steroid. I got flare up and the bad pain...
    naassa naassa 26-30, F 4 hrs ago

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    Hi, Im a 17 year old girl from Sweden. I go too high school (I think that's high school in your country). Since I'm from Sweden my English might be a little off, but i hope it's...
    AnnaMariaC AnnaMariaC 16-17, F Mar 3

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    I feel the urge, the compulsion, or as the ancients would say, the creative spirit or genius, to write, to tell, to teach. I don't want to just write words, however beautiful they...
    shannonymous shannonymous 18-21, F 2 Responses Mar 17

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    It creeps up on me at the worst times, like when I have two essays due this week. Like when I'm awake in the early morning hours with a migraine, and a lump in my throat, like I...
    blindangel92 blindangel92 22-25, F Mar 19

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    I was diagnosed with Crohn's when I was 10 (In 2001), and now I'm 23. (I'll be 24 in June) It's weird knowing you've had disease for over half your life and will continue to have...
    Catherdra Catherdra 22-25, F 5 days ago

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    After getting through your first episode of writers block there's a sense of being relieved. Now thoughts are just flowing and my novel is going well. A lot of plot editing though...
    IllusionaryGentleman39 IllusionaryGentleman39 18-21, M 3 days ago

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    Anyone else have increased anxiety when increasing Nature Throid, even though their blood levels indicate under active thyroid still? Hesitant to go back to synthroid as it made me...
    longhorn12 longhorn12 22-25, F 3 Responses Mar 7

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    I am 25, female. I have had this mark on most of the bottom half on my left boob since i can remember. At least since about 12-13ish. Around then a dermatologist treated it with...
    mar1saaa mar1saaa 22-25 Mar 12

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    I get really cold feet and hands. The feet can at times look grayish. Usually just very red and so cold they hurt. I think I have Raynauds due to possible ehlers danlos or my POTS
    shannonsjourney shannonsjourney 18-21, F Mar 18

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    Hi all im so happy that i found this app with all these people sharing their storys with the same problem. I life in switzerland and it first startet about 2 years ago. Then it...
    Sonnenanbeterin Sonnenanbeterin 26-30, F 1 Response a week ago

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    Pues aquí estoy, me acaban de diagnosticar esto, y fue como una gran patada... llevo ya mucho tiempo con cosas: depresión, crónica, cansancio,fatiga, herpes zozter, problemas en...
    AleCogh AleCogh 51-55, F Mar 10

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    People say "oh your lucky, I wish I could stay at home and not work" and I just want to slap them. Id give anything to be able to work again. Yes I'm home but I can't even help...
    Besillybeyou Besillybeyou 26-30, F 2 Responses Mar 17

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    anyone here from the Uk who has it? finding the nhs not that helpful ty
    mysmugcat mysmugcat 41-45, F 2 days ago

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    Every couple of weeks I vomit atleast once every ten to twenty minutes for no less than a week at a time. Its totally debilitating. Any one else? I Would like to talk to someone...
    salcla salcla 26-30, F 1 day ago

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    Had this for a few years, but it got worse and worse it now affects my nipple 😪😳 so painful! Now being tested for a underlying problem to see why it effects my nipple as it...
    LiilyPad LiilyPad 22-25, F Mar 18

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    I have polycystic ovary syndrome. It mean my ovaries produce little and irregular eggs. This also means I miscarry, a lot. I’ve lost 7 babies and I am 21. You want to know why I...
    dakota4oneday dakota4oneday 18-21, F 5 Responses 6 days ago

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    I work in customer service (phone and email). I have been told before that I put too much pressure on myself, and I agree that I do. But I just don't know how NOT to. Well...
    enigma19020 enigma19020 46-50, M Mar 3

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