Post

I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 19 People

    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

    Your Response

    Cancel

    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

    Your Response

    Cancel

    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 41-45 1 Response May 25

    Your Response

    Cancel

    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10

    Your Response

    Cancel

    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 9 Responses Jan 10, 2011

    Your Response

    Cancel

    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

    Your Response

    Cancel

    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

    Your Response

    Cancel

    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 1 Response Jul 26, 2013

    Your Response

    Cancel

    Related Experiences

    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 3 Responses 3 days ago

    Your Response

    Cancel
    I was diagnosed at age 8 with Sjogren's (I am now 22 years old) I have never talked to another person with the disease but would love to. As you know if you have this as well...
    hollyphoenix92 hollyphoenix92 22-25, F 1 Response Sep 5

    Your Response

    Cancel
    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 4 Responses Aug 29

    Your Response

    Cancel

    Your Response

    Cancel
    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

    Your Response

    Cancel
    One of my more persistent tics is groping. If i notice, feel(like in a hug or brushing against me), or remember what they feel like, i have to grab a woman's breasts. I don't think...
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response 6 days ago

    Your Response

    Cancel
    https://www.kickstarter.com/projects/2084036675/artistic-autistic-awareness?ref=email My Kickstarter application is finally live. I have autism and I find the preconceptions...
    TheNakedPoet TheNakedPoet 41-45, M 1 Response Aug 18

    Your Response

    Cancel
    I need help I can't find a girl that likes me and I mange to suppres. My tics really well and you would only really know if someone told you and well I think the girls I try to get...
    Sproketsocet Sproketsocet 18-21, M 2 Responses Aug 20

    Your Response

    Cancel
    have plans for tonight? well too damn bad! Your getting bruises, cuts, pulled muscles, and a nice concussion, enjoy!
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response 6 days ago

    Your Response

    Cancel
    Its really annoying with the stupid spasms and twitches, and sometimes i can say bad stuff and it gets me in a lot of trouble :(
    RazorToMySkin RazorToMySkin 16-17, M 1 Response 10 hrs ago

    Your Response

    Cancel
    Got it from my dad. I'm not as bad as he is cause I fight to make it not define who I am. Though at first I felt bad but then I felt happy cause I'm gonna get money from the...
    YLIhououin YLIhououin 18-21, M 3 Responses Sep 1

    Your Response

    Cancel
    Uncoordinated Somehow, I'm reluctant to get hit with a ball, bat, shoe, kid, or some out of the blue object when I walk into a school gym. Now every time I walk anywhere near...
    kelseytoby1337 kelseytoby1337 16-17 2 Responses Sep 2

    Your Response

    Cancel
    Hi my name is Jaime I am 29 years old and in 2006 I was diagnosed with a very rare kidney disease called Gittleman's Syndrome its so rare that not very many people in the United...
    GSwife1313 GSwife1313 26-30 Sep 4

    Your Response

    Cancel
    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

    Your Response

    Cancel
    I am a 28 year old mother of two young children and a wife. In February of this year 2014 I was rushed into surgery do to CES. The surgery took care of the back and right leg pain...
    korinne44 korinne44 26-30, F 1 Response 1 hr ago

    Your Response

    Cancel
    So, not many people know of this and I think it might be a good idea to raise some awerness. Albright is a generic defect or mutation that basically makes my bones weak. I get 1...
    shadow2233 shadow2233 18-21, M 2 Responses 3 days ago

    Your Response

    Cancel
    I wish I could talk to my Aspie husband about the issues I have with our relationship, but as soon as I say anything, he gets so defensive and turns it back on me or becomes...
    TiffanyPerkins TiffanyPerkins 36-40, F 2 Responses Sep 9

    Your Response

    Cancel
    I have suffered with CVS my entire life, from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are...
    Platinumryan Platinumryan 16-17 Sep 4

    Your Response

    Cancel
    I've taken 2 clonzepam, and a Requip, and two aspirins. I have stretched and rolled on my foam roller. It's 2:00 am and it will not stop. So tired. Need to sleep.
    Deedle623 Deedle623 51-55, F 2 Responses Sep 5

    Your Response

    Cancel
    Another terrible night. Why does it take nearly an hour for the requip and clonzepam to kick in? I will take them earlier, tonight, but they make me loopy. I tried pickle juice...
    Deedle623 Deedle623 51-55, F 3 Responses Sep 6

    Your Response

    Cancel
    I don't have episodes as much as I used to but now it's just 24/7 burning and pain. Will this ever stop?
    Cvsgirl1222 Cvsgirl1222 16-17, F Sep 9

    Your Response

    Cancel
    I have had RLS for about 5 years. It started after I tore my hamstring from my sits bone. At first it was constant. I couldn't sleep, I couldn't stand in one place for long or...
    Deedle623 Deedle623 51-55, F 1 Response Aug 25

    Your Response

    Cancel
    It had been a whirlwind weekend - I flew from Georgia to Pennsylvania at o' dark early to surprise my aunt for her 60th birthday - it was a blast! Woke up the next morning, Sunday...
    kemeki kemeki 26-30, F Aug 26

    Your Response

    Cancel
    Today was the APDA Parkinson's Walk in Seattle. It was a pretty good turn out. In total the walk raised almost $26,000 for Parkinson's research. Personally I was able to raise...
    LifeinWoodinville LifeinWoodinville 41-45, M 3 Responses 3 days ago

    Your Response

    Cancel
    I was just diagnosed with hashimoto's my TPO is 3300 and my Tg was <5, does anyone else have these levels? I can never get warm and have a lot of joint pain. I don't do well in...
    Jung007 Jung007 31-35, M 1 Response Aug 21

    Your Response

    Cancel
    I had Grover's on my back and chest. Real itchy. My dermatologist prescribed Triamcinopone Acetonide. Expensive and it didn't seem to help much. I had an old bottle of Calamine...
    mrbob8 mrbob8 70+ 1 day ago

    Your Response

    Cancel
    I was 12 years old and I didn't have any protection. For the longest, I regretted not going through with it, but I saved myself for my high school sweetheart that I met when I was...
    iamokaynow iamokaynow 31-35, M 1 Response Sep 2

    Your Response

    Cancel
    Laser eye surgery in under a month l have no option but to try this l have a severe case of this disease and have to be taken off all of my steroids due to health risk/problems...
    Tspklondon Tspklondon 26-30, F Sep 6

    Your Response

    Cancel
    I have this horrible disease and I totally understand the symptoms very well. my question is, and this may sound morbid but how does a person die from this? I'm in great...
    jamieannilyn jamieannilyn 36-40 Sep 9

    Your Response

    Cancel
    I first developed a rash on both of my arms in 2008. Since then I have seen 9 doctors and the 9th doctor was the first one who could identify the rash. He told me there is no...
    Anstead Anstead 70+, F 1 day ago

    Your Response

    Cancel
    Had it since fifth grade (10 years old). I remember when i went to science camp. I was the only kid who had to wake up early and go to the teachers room to take my medicine. While...
    ninjadentistinspace ninjadentistinspace 16-17, F Aug 20

    Your Response

    Cancel
    I have Asperger's Syndrome It helps me find it difficult to talk to girls in the real world that probably why I'm single but I can't change it I was born with it but it upsets me...
    JonnyBurrows10 JonnyBurrows10 18-21, M 3 Responses Aug 31

    Your Response

    Cancel
    That's what I thought when I read about Asperger's . I knew I had dyslexia. But I had difficulties that people with dyslexia don't have . So I thought co morbid . I wondered about...
    interlink2 interlink2 46-50, M Sep 7

    Your Response

    Cancel
    In my early teens around 2000, I created a Myspace account. This man named Chuck added me. Of course I was fine with it because he was into anime and manga and being a young teen I...
    dreaminginjune dreaminginjune 22-25, F Sep 9

    Your Response

    Cancel
    I have always enjoyed quietness. I don't like babies crying or people talking loudly on the phone, or people whispering in lectures.. I moved back home halfway through my second...
    leo1292 leo1292 22-25, F 1 day ago

    Your Response

    Cancel
    Please help! Could someone clarify whether my symptoms could be endometriosis? I have been ill for over a year now and though many other conditions have been ruled out by my GP, a...
    NattieC NattieC 22-25, F Aug 25

    Your Response

    Cancel
    Or at least I used to be. It's hard being in love with someone you know you can never have. It's even worse when you have to force yourself to let go and move on. And being "just...
    Iyaniaya Iyaniaya 22-25, F 2 Responses 5 hrs ago

    Your Response

    Cancel
    Please think twice about ECT. It changed my life forever. I submitted to treatment 2 years ago for depression and am now being treated for PTSD and severe depression because of...
    Nomoreforme1 Nomoreforme1 51-55, F 2 Responses Aug 30

    Your Response

    Cancel
    Making Friends at Payless... Don't be afraid guys..."TRY THEM ON" Those are the three magical words my favorite sales associate, Maribel told me in 2010, and they still ring true...
    esthr009 esthr009 46-50, M 5 Responses 2 days ago

    Your Response

    Cancel