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I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 24 People

    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 1 Response Jul 26, 2013

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    I'm so glad I found this.

    Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and so on. Every time I go to a new provider, nothing is ever "bad enough" to do much about, leaving me feeling at times like I'm...
    jsxburt jsxburt 51-55, F 1 Response Dec 20, 2014

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    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

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    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 41-45 May 25, 2014

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    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 13 Responses Jan 10, 2011

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    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

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    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10, 2014

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    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

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    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

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    Related Experiences

    I was just recently diagnosed with fap - gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or...
    Kjmiller1197 Kjmiller1197 18-21 6 hrs ago

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    I was diagnosed when I was 13. And I've gotten worse and worse. It's so exhausting even getting to the toilet. Headaches every day, noise just goes right through me. My muscles...
    MissRainDrops97 MissRainDrops97 18-21, F 1 Response 18 hrs ago

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    I start a project. When it is almost through, i think of a better project and ignore the current and the cycle continues.
    Timmoh Timmoh 16-17, M 1 day ago

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    I am a 32-year-old male. I got sick with the stomach flu at age 12 and was left with rumination syndrome, or something close. Within a couple of weeks of getting sick, I...
    nthgmvs nthgmvs 31-35, M 2 days ago

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    I have so much ambition, yet so little energy to complete a task. I'm always so tired, or spaced out.
    PoshPoet PoshPoet 22-25, F 2 days ago

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    Hi im 16 and i've had rumination syndrome for 2 years now. When it first started happening for what i can remember it was only tiny bits that would come back up after i ate and...
    brookechambers2 brookechambers2 16-17, F 3 days ago

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    Does anybody have a GOOD experience with their Aspergers partner? For a while I thought I might've been attracted to somebody with the disorder, but everything on here sounds so...
    anonyponymous anonyponymous 18-21, F 1 Response 4 days ago

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    Hey I am 15 and have had rumination syndrome/disorder for almost a year now. I hid it from my parents for 4 months because I was so horribly ashamed about it. I thought that it was...
    renee2018 renee2018 13-15, F 5 days ago

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    Last month, after a break up, moving and a promotion, I flared. My goiter was so big I couldn't talk. My joints were sore, I gained 10lbs of water weight... I also had the stomach...
    PoshPoet PoshPoet 22-25, F 1 Response 6 days ago

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    I have aspergers, mood disorder and depression when life is hard I feel that nobody cares I exist and I eat and write on here and play Rachel plattens fight song or look at my...
    FattyWithAttitude FattyWithAttitude 13-15, F 6 days ago

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    Hi there my name is Nate And I'm a 25 year old male With cerebral palsy, On August 14 2015 I was diagnosed with Hashi modos I was shocked Because I have been a bodybuilder for the...
    natecr natecr 22-25, M 6 days ago

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    I am Day Four into my diagnosis. Started with a metallic taste in mouth on Sunday and an eye twitch that went away after a few hours. I felt very, very tired all that day however...
    RNDeb RNDeb 56-60, F 6 days ago

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    I am Day Four into my diagnosis. Started with a metallic taste in mouth on Sunday and an eye twitch that went away after a few hours. I felt very, very tired all that day however...
    RNDeb RNDeb 56-60, F 6 days ago

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    I have to remember. It's not like in stories where every ending has been set, chosen for them by the author, where the ending will always turn out the way "it should". In other...
    Juls4 Juls4 18-21, F a week ago

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    I started writing a story this summer, and so far I've written 70 pages, but now I'm stuck. I haven't written anything in about a week, and I feel so unproductive. I know how I...
    hiddenkitty hiddenkitty 18-21, F Aug 18

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    My husband got it from me altho they say it's not contagious. Mine lasted 3 months, it drove me crazy. Went to a Derm. tried everything, nothing worked, then my MD suggested...
    kholli18 kholli18 66-70, F Aug 18

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    I recently found out I have ORS and will need another suregy (14th since I was 19) to remove the remnant and clean up the cysts and tumors that have grown since the original...
    Deena76 Deena76 36-40, F Aug 18

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    I might have AS. Any tips on how to manage it so as to avoid hurting people around me more (my spouse and family)?
    LolaHaze9 LolaHaze9 22-25, F Aug 17

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    I really need your help, I know you all are strangers but please... I think I have aspergers, the things I do in my daily life isn't "normal" to others. first off hi, I'm Andrew...
    AndrewJackson199923 AndrewJackson199923 16-17, M 3 Responses Aug 16

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    It's been a rollercoaster for the past two years. Some days I feel great and I can forget for a while. It's funny because people who don't understand are the one's full of useless...
    bell084 bell084 31-35, F Aug 16

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    Guys, there are many options!! The other solution would be a "Autologous blood serum therapy". That would be instead of laser surgery... Please don't give up and try everything...
    Sonnenanbeterin Sonnenanbeterin 26-30, F Aug 15

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    Hi people Finally, I found the solution for my problem! Try out "lipiflow thermal pulsation"! That was the therapy that has opened my eye lid glands. Unfortunately, it's expensive...
    Sonnenanbeterin Sonnenanbeterin 26-30, F Aug 15

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    Can someone tell me what cvs is and explain what happens when you u have it
    CelticDragon561 CelticDragon561 51-55, M 1 Response Aug 15

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    Cvs cyclic vomiting syndrome is something I have and it sucks so much! Is there a way to add this is the category??
    deleted deleted 26-30 1 Response Aug 14

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    After 15 months FINALLY I have an answer. My symptoms were severe leg edema that turned into pitting edema swollen arms swollen hands and fingers with the curvature of my fingers...
    wandawoof2015 wandawoof2015 51-55, F 2 Responses Aug 13

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    My 1 year old son was diagnosed last month with Williams Syndrome. It is a genetic disorder caused by a deletion of 26 genes on the long arm of chromosome 7. We found out after he...
    cthuluwhovian cthuluwhovian 22-25, F Aug 13

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    Hello my son is 4 he got diagnosed with sprengal shoulder at age 2 just wondering how this will affect him in life the doctors don't tell me nothing Iv read aswell a lot of people...
    kimjane2015 kimjane2015 31-35, F Aug 13

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    I was really tired. I woke up early with my brother and as he left to run some errands I decided to lay on the bed and listen to music. I closed my eyes and it didn't take very...
    SuicidalSam SuicidalSam 18-21, M 1 Response Aug 13

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    I was diagnosed with exactly same thing as you plus a swollen sc collarbone joint. I went thru 2months of 6mri and X-ray s and blood test ect first though. My name is Stephanie and...
    Skhm Skhm 46-50 Aug 12

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    Parsonage turners syndrom disease 🌀
    Skhm Skhm 46-50 Aug 12

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    I have. It's nice. I don't see what say great about my voice but I do appreciate the compliments.
    RealmRunner RealmRunner 22-25, F Aug 12

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    I contracted GBS in Jan 2013. Was in ICU and rehab. It has been a tough journey. I have recovered tremendously, but not fully. Experiencing alot of muscle contrations which I...
    fierozasmith fierozasmith 41-45, F Aug 11

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    I was diagnosed with DeQuarvains Syndrome mths ago after a terrible 18 mths of pain a mth after my toddlers birth. I had an apt to schedule surgery and my Dr canceled worried it...
    slyfirefly slyfirefly 26-30