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I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 19 People

    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10

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    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

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    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

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    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 41-45 1 Response May 25

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    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

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    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 9 Responses Jan 10, 2011

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    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

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    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 1 Response Jul 26, 2013

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    Related Experiences

    All my life, I’ve felt different, like I just don’t quite belong in any group that I’m a part of. Trying to fit in has led to me to trouble. I’ve drank heavily, smoked weed...
    empoweredh22 empoweredh22 22-25, M 1 Response 6 days ago

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    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response 5 days ago

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    I actually don't know for sure if I have Sjogren's; my second appt with the rheumy isn't until the 19th. I've had horrible dry mouth, throat, eyes, etc., for a while now (3+yrs). I...
    Notasouthernbelle Notasouthernbelle 36-40, F 2 Responses Aug 6

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    I have been diagnosed with Asperger syndrome. Sometimes it just seems like it doesn't fit at all except the unsocial part as most of my routines has fallen apart well I guess this...
    Joiss Joiss 18-21, M 1 Response Aug 10

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    I've had depression and anxiety pretty much my whole life, leading to two hospital stays in my late teens. At that stage it was suspected to be some sort of psychosis, or...
    BJH72 BJH72 41-45, M 1 Response Jul 28

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    I was at this 12½ year wedding day anniversary today. Way to many people. Couldn't focus on anything. Too much noise. And my phone died after the first 4 hours, but I was there...
    leejoonnieoppa leejoonnieoppa 18-21, F 5 Responses Aug 2

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    I have had raynauds since at least 4 years old, but I didn't know what it was until about 13yrs old. This disease has been so frustrating because I feel like nobody understands it...
    allisondela allisondela 18-21, F Aug 14

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    https://www.kickstarter.com/projects/2084036675/artistic-autistic-awareness?ref=email My Kickstarter application is finally live. I have autism and I find the preconceptions...
    TheNakedPoet TheNakedPoet 41-45, M 4 days ago

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    I need help I can't find a girl that likes me and I mange to suppres. My tics really well and you would only really know if someone told you and well I think the girls I try to get...
    Sproketsocet Sproketsocet 18-21, M 1 Response 2 days ago

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    I was diagnosed at 27 due to tadpole pupil episodes. I always had a smaller pupil and droopy lid. Also a long time migraine sufferer. In the past two years, I developed new...
    telltalelemon telltalelemon 31-35, F Jul 29

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    Do any of you keep like dairy/journal
    shadowfluffy6 shadowfluffy6 18-21, F 2 Responses 6 days ago

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    I've just found out today I have Carpal Tunnel Syndrome .. it's hard for me to participate in Color Guard ..and soon I feel like I would have to stop ..bc the pain is crucial
    lynn1497 lynn1497 16-17, F Jul 24

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    I've wondered it for quite a while, I do suffer from Generalised Anxiety Disorder so there's a bit of me that think it's more than that than CFS. I tend to ache all over on a...
    Reallifeperson Reallifeperson 22-25, M Jul 28

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    I have a 7 yr old adopted daughter that I'm very concerned about. She and her twin sister were abandoned at the hospital, born 3 mos. premature, and positive for methamphetamine...
    mama27kidz mama27kidz 56-60, F Aug 5

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    I had what I thought was piriformis until it became chronic, simultaneous with my toes becoming restless. That sounded more like RLS. Then I had an inspiration and started wearing...
    echinoderm echinoderm 51-55, M Jul 24

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    Calling all women with POS!!! I haven't had a period in a year. The past week or so I have been lightly spotting with severe cramps. Yet still no period! Has this happened to...
    TheUnpredictable9 TheUnpredictable9 18-21, F Aug 11

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    My doctor put me on levelen and told me to skip the white pills, so that I wouldn't ovulate. She told me to take the while pills once every six months to allow my body to keep...
    ChloeMaay ChloeMaay 18-21, F a week ago

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    I was recently diagnosed in December 2013. I have been doing Ivig infusions ever since. I am on baclofen, iron, meclizine, cymbalta, lexapro, suboxone for pain, toradol, vimovo...
    CatFlag CatFlag 31-35, F 1 Response Jul 23

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    my computer's running really ******* slow and it's throwing off the entire mood of writing. Even as I'm typing now, it's lagging hardcore and i'm sick of it. I'm writing a story...
    hornewrecked hornewrecked 16-17, F 1 Response Jul 23

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    And it's depressing and so tiring :(
    MarvelBabe MarvelBabe 13-15, F 1 Response Aug 2

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    I was told I had keinbock's about 12 yrs. ago had surgery to shorten bone in my right arm. That helped with pain for about two yrs. so I stayed working but since then pain has...
    icequeen029 icequeen029 31-35, F Aug 11

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    I am 16 years old and got my first job in May of 2014. I'm a Server and Cashier at a restaurant. Some days when I work, I feel slow with knowing what's going on. I never had a...
    short98 short98 16-17, F Aug 15

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    I was just diagnosed with hashimoto's my TPO is 3300 and my Tg was <5, does anyone else have these levels? I can never get warm and have a lot of joint pain. I don't do well in...
    Jung007 Jung007 31-35, M 1 day ago

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    I am making a prognosis as a patient and I want to be tested for the AACh antibodies. Thymoma is abnormal growth of the thymus and is strongly correlated with MFC in the recent...
    RiderVictori RiderVictori 31-35, T Aug 9

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    Today is a stressful day, for the first time since my partner was a child he is seeing a counselor on his own. Of Course he is resistant to change and wants all the details and...
    lonelyASgrlfrnd lonelyASgrlfrnd 22-25, F Aug 7

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    Had it since fifth grade (10 years old). I remember when i went to science camp. I was the only kid who had to wake up early and go to the teachers room to take my medicine. While...
    ninjadentistinspace ninjadentistinspace 16-17, F 2 days ago

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    I'm quite shy and have Asperger's syndrome, and I desperately want to find someone who loves me for who I am. I doubt it'll be easy, but I hope I find them someday.
    Juri17 Juri17 16-17, F 1 Response Aug 5

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     I don't actually have Aspergers Syndrome myself(that I am aware of). I am posting this story becauseI would like...
    Jugemu Jugemu 31-35, M Aug 3

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    YOU ARE THE MOST BEAUTIFUL PERSON SOMEONE COULD EVER WANT, YOU HAVE ALLWAY'S BEEN PERFECT JUST THE WAY YOU ARE!, LIFE OWE'S YOU EVERYTHING, JUST ASK!
    JEM404 JEM404 41-45, M a week ago

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    You Look Yummy :) This dream absolutely terrified me as a kid. Just thinking about this godforsaken nightmare sends huge amounts of fear crawling down my spine. I say this with...
    NFDenmark NFDenmark 16-17, M 2 Responses Jul 31

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    *Tiana Jade* This girl needs no introduction. lol Seriously, she's the most amazing person i've known here. Pure hearted, a one of a kind friend that you'll surely love to have...
    DarkSoul07 DarkSoul07 22-25, F 2 Responses Aug 2

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    But I don't have a feminine side ;A; But there's a side I have. It's called a awesome side c:< :D And sir if you think if I would ever think I would have a feminine side I don...
    DysfunctionalPiano DysfunctionalPiano 13-15, F Jul 28

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    I have Hashimoto's and hypothyroidism. Nothing new, was diagnosed over a year ago. However, my symptoms have become out of control. I need my medication adjusted. While I'm waiting...
    justb33 justb33 36-40, F 1 Response Aug 13

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    I can't really help myself... I have medication but it isn't really for the ADHD I have. It's kinda like a a little of each type but more of the temper one out of all other than...
    DreadlockJesus DreadlockJesus 31-35, M Aug 5

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    I'm weird but i call it original (: I'm doing me n happy with myself n the way I am. I'm a ******* weirdo but a good weirdo aha . I'm the bestiest n funniest friend you'll ever...
    youngadult14 youngadult14 13-15, F 1 Response 4 days ago

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    you can go thru life second guessing and wondering this or that. The problem with that is, you'll never be truly happy with what you've already done or have. It's good to strive...
    Rc831 Rc831 51-55, M 4 days ago

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    Let me get something straight. Just Bc I post in here talking about my struggles with bigger boobs does NOT mean I am going to show you my boobs or even show you my bras. Wtf. I...
    ForeverYoung09 ForeverYoung09 18-21, F 7 Responses 2 days ago

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    Barth syndromeFewer than 200 living males are known worldwide with this disease. Symptoms vary largely between patients, from life threatening to non-existant. No patient has all...
    Uncertain153 Uncertain153 26-30, M 1 Response Jul 24

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    In April 2012 I was officially diagnosed w/POTS Syndrome after several months of symptoms of worsening symptoms. I was one of the fortunate few who came across a neurologist at the...
    Jill73 Jill73 41-45, F Aug 6

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    Having Aspergers Syndrome is quite challenging for me. I have always felt like a ghost or a being living in another world in high school. Because of my particular interests, I have...
    loveVictorandDumas loveVictorandDumas 16-17, F 1 Response 1 day ago