Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 21 People

    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

    Your Response

    Cancel

    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

    Your Response

    Cancel

    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 11 Responses Jan 10, 2011

    Your Response

    Cancel

    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 1 Response Jul 26, 2013

    Your Response

    Cancel

    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10, 2014

    Your Response

    Cancel

    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

    Your Response

    Cancel

    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 41-45 1 Response May 25, 2014

    Your Response

    Cancel

    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

    Your Response

    Cancel

    I'm so glad I found this.

    Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and so on. Every time I go to a new provider, nothing is ever "bad enough" to do much about, leaving me feeling at times like I'm...
    jsxburt jsxburt 46-50, F Dec 20, 2014

    Your Response

    Cancel

    Related Experiences

    Hello there! I'm currently making some researches about Maladaptive Daydreaming Disorder. A disorder in which the person uses daydreaming as a defense mechanisme to escape from...
    RichardAndon RichardAndon 22-25, M 6 Responses Jan 20

    Your Response

    Cancel
    Asperger's symdrome is something thats gives me a lot and takes a lot too, I can recite 100 digits of pi easily, dolve a rubix cube in 1 min 13 seconds, and tell you anything about...
    Kringle95 Kringle95 18-21, F 2 Responses Jan 20

    Your Response

    Cancel
    When you have this it's easy to become absolutely obsessed with things, and that's not easy to deal with, even when I became devastated after finishing a book series that there are...
    Dakurti99 Dakurti99 13-15, M 5 days ago

    Your Response

    Cancel
    Asperger's is like a curse to me. I didn't ask to have panic attacks in cluttered noises. I didn't ask to not have a normal social. I CERTAINLY didn't ask to drag my family and...
    msvlogwars msvlogwars 16-17, F 2 days ago

    Your Response

    Cancel
    I have it. My favorite symptom is that people with it prefer nonfiction over fiction which I do.
    bobherry bobherry 16-17, M 1 Response Jan 6

    Your Response

    Cancel
    Having more problems with my right bicept, I guess I'll talk to my doctor about it, Still under stress from an unsuccessful consult about my neck injury, Doctors seem to judge me...
    JEM404 JEM404 41-45, M Jan 17

    Your Response

    Cancel
    Post diagnosis things went sour, my carefully constructed world started collapsing around me. Everything I had done to cope with a condition I didn't realise I had became...
    Teab Teab 41-45, M Jan 20

    Your Response

    Cancel
    how do people react when you tell them you have aspergers? I am always so nervous to tell people!
    kristykaz121 kristykaz121 18-21, F 11 Responses 4 days ago

    Your Response

    Cancel
    Got in trouble at school so many times because of it. Its ruining my life to be honest.
    idfwuu idfwuu 13-15, M 4 Responses Jan 1

    Your Response

    Cancel
    This is an oddly specific group
    Gabbi97 Gabbi97 18-21, F 2 Responses Jan 12

    Your Response

    Cancel
    Which explains why everybody hates me. :D
    Symbiopsychotaxiplasm Symbiopsychotaxiplasm 26-30, F 4 Responses Jan 16

    Your Response

    Cancel
    I always wanted to meet someone with aspergers like me wish I knew someone near :(
    kittyanthony kittyanthony 22-25, M 3 Responses Jan 20

    Your Response

    Cancel
    Yes, and I've learned many ways about how to adapt to and around NTs. Contact me if you would like. :)
    wuiop wuiop 31-35, M 1 Response 2 days ago

    Your Response

    Cancel
    social norms always confuses me. Still normal though. :)
    ItGirl111 ItGirl111 26-30, F 5 hrs ago

    Your Response

    Cancel
    I have Asperger's Syndrome and am depressive as well, I would love new friends
    deanratzloff deanratzloff 13-15 1 Response Jan 23

    Your Response

    Cancel
    Ok so this is important for anyone who has CFS or anything like it. I have had this illness for 4 1/2 years now, and I've been to a fair number of doctors. But it took awhile to...
    Invisibleninja12 Invisibleninja12 18-21, F 1 Response Jan 14

    Your Response

    Cancel
    Hello, My name is Mathilda Panzarella i have 17 years old and i'm a french girl so excuse me for my bad english.. I sign up on this social network, because since a long time, i...
    PanzarellaMathilda PanzarellaMathilda 16-17, F 1 day ago

    Your Response

    Cancel
    My partner was diagnosed with Stiff Person Syndrome in July 2014. Due to my own ignorance about the illness and my own selfish needs of refusing to accept her sudden disability, i...
    GeekyGirl82 GeekyGirl82 31-35, F Jan 12

    Your Response

    Cancel
    I'm a 21 year old female with possible hypermobility syndrome/EDS Type 3 or fibromyalgia. My mum has hypermobile joints but hasn't been diagnosed with HMS/EDS but has been...
    Kari9349 Kari9349 18-21, F Jan 1

    Your Response

    Cancel
    A new information website has been developed for stiff-person syndrome to educate, empower, and advocate. www.thetinman.org
    TheTinManOrg TheTinManOrg 51-55 Jan 2

    Your Response

    Cancel
    Can someone please tell me they're symptoms of polycistic ovarian syndrome x
    iwantababy111 iwantababy111 16-17, F 1 Response Jan 21

    Your Response

    Cancel
    Ugh. It's nearly midnight and my legs are still twitching and jumping. I've taken the meds, done all my stretches, taken aspirin, rolled on the foam roller. I'm so sleepy. It...
    Deedle623 Deedle623 51-55, F 3 Responses 3 days ago

    Your Response

    Cancel
    my name is Ciara and I'm 19 and I am currently in the hospital post laminectomy. I have had back pain for about a year now. I had an inflamed SI joint that I recieved 3 steroid...
    cjacobs34 cjacobs34 18-21, F 1 Response 1 day ago

    Your Response

    Cancel
    I had my diagnosis at 19, I have several other medical problems which have resulted in very limited mobility. I have good bouts where I can move much more easily but I have 'flare...
    noonespecial44 noonespecial44 26-30, F Jan 19

    Your Response

    Cancel
    A cure for Parkinson's Disease? Every once in a while I get excited about some research that is being done as it relates to Parkinson's Disease. I'm not stupid, I know how these...
    LifeinWoodinville LifeinWoodinville 41-45, M 6 Responses Jan 5

    Your Response

    Cancel
    I was diagnosed with Grover's disease about 3 years ago. I tried many things but eventually found a solution that worked for me. I asked my dermatologist to prescribe UV light...
    nocompromise nocompromise 41-45, M Jan 4

    Your Response

    Cancel
    about 3 years ago i was diagnosed with tspk... i went to the eye doctor thinking i had pink eye really bad, but knew it was something else. my eyes were completely bloodshot (i...
    Nebraskagirl21 Nebraskagirl21 22-25, F Jan 8

    Your Response

    Cancel
    I have been diagnosed but just started taking meds Levothyroxine 25mg. Can someone tell me what I need to know and what I need to do to feel better from the symptoms. And the do's...
    paulina21 paulina21 31-35, F Jan 11

    Your Response

    Cancel
    I was diagnosed when I was four or five years old with Freidrich's Ataxia, after my parents noticed that I was stumbling more than usual. They did blood tests, spinal taps, MRIs...
    oudaine oudaine 22-25, F 1 Response Jan 20

    Your Response

    Cancel
    How do you guys manage CFS? Seems like I can't live a normal life like I used to.
    awesomesauce2 awesomesauce2 22-25, M 4 Responses Jan 8

    Your Response

    Cancel
    Found a very good read! Check it out http://www.drmyhill.co.uk/wiki/CFS_-_The_Central_Cause:_Mitochondrial_Failure#Explanation_of_the_Fatigue_Problems_in_CFS_Patients
    awesomesauce2 awesomesauce2 22-25, M Jan 18

    Your Response

    Cancel
    Hello, Im a 15 year old boy and live in Finland, since i havent told anyone ever about my duane's syndrome type 1 i tought it would be a good idea to share my story here. I was...
    thundercoolmint thundercoolmint 13-15, M Jan 11

    Your Response

    Cancel
    Not that I am desperate for love, but I sorta need (or want) to have capital S Someone who is my age. I mean, not really in a romantic way. I want someone who can be like a best...
    lmaofood lmaofood 18-21, F 1 Response Jan 2

    Your Response

    Cancel
    I was diagnosed yesterday me and my partner went to see a specialist that deals with Autism, We thought i had it and she has confirmed the i have Asperger's. So I hope now that my...
    Cuddlzboy Cuddlzboy 36-40, M Jan 20

    Your Response

    Cancel
    I have scars all over my body. It's embarrassing, really... Growing up, I've heard so many opinions in my life regarding my scars. 'A proper girl shouldn't have scars', 'Don't...
    mistfox mistfox 22-25, F 1 Response 1 day ago

    Your Response

    Cancel
    I have boy friends, but I only run into them from time to time. Those girl friends I have? They would only go to me if they needed advices and ****. I'm sick of it, really. I don't...
    SweeterThanToblerone SweeterThanToblerone 13-15, F Jan 19

    Your Response

    Cancel
    I think I have the best girl a man could have... She's beautiful inside and out...
    AwesomeAlert AwesomeAlert 46-50, M 1 Response Jan 21

    Your Response

    Cancel