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I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 24 People

    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak 61-65 2 Responses Jun 6, 2011

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    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969 41-45 1 Response May 25, 2014

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    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24 46-50, F 1 Response May 10, 2014

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    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss 46-50 6 Responses Mar 11, 2012

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    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami 31-35 13 Responses Jan 10, 2011

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    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688 26-30 2 Responses Jul 22, 2013

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    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie 41-45, F 1 Response Jul 26, 2013

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    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH 31-35 4 Responses Jun 6, 2011

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    I'm so glad I found this.

    Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and so on. Every time I go to a new provider, nothing is ever "bad enough" to do much about, leaving me feeling at times like I'm...
    jsxburt jsxburt 51-55, F 1 Response Dec 20, 2014

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    Related Experiences

    I was diagnosed with PTS almost 3 years ago after undergoing surgery to remove a bone spur. I still don’t have full use of my arm and still suffer pain, but have learned what...
    PDG1 PDG1 46-50 13 hrs ago

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    I was diagnosed with Asperger's (autism) about a year ago but I didn't accept the diagnosis because I had a lot of misunderstandings about what it meant. After continuing treatment...
    ExtrovertedAspie ExtrovertedAspie 31-35, M 18 hrs ago

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    Recently diagnosed with horners and holmes syndrome.. after over 10 years and going to many drs about me not sweating I finally found out why.. and this added to my many other...
    baidal88 baidal88 36-40, M 1 Response 1 day ago

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    It really bugs me when people dismiss my or other people's struggles with a bit of whataboutery. Or even just saying things like "pull yourself together". I don't deny that there...
    usernameinneed usernameinneed 26-30, M 3 Responses 1 day ago

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    There's days where I forget I am autistic. Surprising isn't it. Today was not one of those days. Too many people today. Too many emotions. Too many decisions. Too many things to...
    jacquelinejones jacquelinejones 46-50 1 Response 1 day ago

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    I am pretty sure my husband of 11 years has aspergers. We have three children, he is a stay at home dad. I love him but I feel like I am the only one making any effort in our...
    eriesisgod eriesisgod 26-30, F 1 day ago

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    I haven't really written anything in a few years, and it makes me sad, I used to love writing fiction, but I could never figure out what to write about... help please
    internetkid internetkid 18-21, F 1 Response 2 days ago

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    Phew!!! Major dramas in a group I help admin on Facebook. (Hostile takeover and rescue attempts for a group of 20 000 aspies) I am going to have a busy couple of days. What with...
    jacquelinejones jacquelinejones 46-50 1 Response 2 days ago

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    I've had the worst writer's block of my entire life for the past year now. Writing is my passion, but since I've developed depression I haven't been able to write for more than a...
    FayetheBrilliant FayetheBrilliant 16-17, F 2 days ago

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    I do. However, I constantly talk to myself, act out scenes and think negative. It's ruining my life and it's decreasing my time to practice drawing.
    FoxFan64 FoxFan64 13-15, M 2 Responses 4 days ago

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    They yell at you that you're not normal. That you always **** things up. You leave to your room, crying. You overhear them in the other room: What did we do wrong? How could we not...
    EurydiceKallos EurydiceKallos 18-21, F 6 Responses 4 days ago

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    my boss had a good point this label and every other label that people are diagnosed with is stupid some idiot decided back in the 1930s that whatever human being back then till...
    aaronpayne aaronpayne 22-25, M 4 days ago

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    How it's going? I have been suffering Queratitis TSPK for 15 years. It's really annoying and I'm pretty upset. The only treatment that really works is corticoides FML but it...
    davor79 davor79 31-35, M 5 days ago

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    I have autism but my question is how does autism come about is it vaccinattions or is it because of use of drugs idk but id like to see in the future a cure or maybe our government...
    aaronpayne aaronpayne 22-25, M 5 days ago

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    It all started 2 years ago when every time I was working ( at a nursing home ) I was fainting. Everytime this happened I went to the hospital and I got told nothing was wrong with...
    klousie klousie 22-25, F 6 days ago

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    Hi I am Madison, I am 16 years old and developed Darier’s disease when I was 2. The condition started with just a few bumps around my mouth, and by the time I was about eight I...
    Maddie314 Maddie314 16-17, F 6 days ago

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    Hi. I am new to this site. I am a 50-year-old female. I started getting migraines around age 30. They became chronic after a few years and have been having them chronically...
    KarenMac2 KarenMac2 46-50, F 1 Response 6 days ago

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    She just vanished.... She and I had had a relationship for about a month and a week, when she suddenly started being more and more distant. She stopped communicating on days that...
    GeorgeRashnikov GeorgeRashnikov 18-21, M a week ago

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    so i found out i have polycystic ovary syndrome a few days ago and it sucks since me and my husband have been trying and now reading about it is making me even more down about it...
    sweety7268 sweety7268 18-21, F a week ago

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    I hate my life. There are some days when I want to run away and never come back. I have a great husband that any woman would be blessed to have. He's hardworking, loving, kind...
    BadlyBent BadlyBent 36-40, F 5 Responses a week ago

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

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    I've been thinking about this a lot recently, so hopefully writing about it will get it out of my mind. I don't really know where to start. First of all, just for some background...
    brint0n brint0n 16-17, F 2 Responses Jul 20

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    My best friend just got diagnosed with Aspergers. It's been really hard for her. Is there anything anyone can suggest that might help her cope with the news? Also does anyone have...
    ThinspirationNation ThinspirationNation 18-21, F 6 Responses Jul 18

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    I admit there were times I didn't want to be this. I admit there were days in which all I did was cry, asking God or whatever kind of diety is up there watching why did I have to...
    elsasaunt elsasaunt 16-17, F 2 Responses Jul 18

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    You know. If there's one thing I would change about my life it would be the years of 'trying to be normal' that I am now trying to dismantle. I am seeing so many parts of myself...
    jacquelinejones jacquelinejones 46-50 3 Responses Jul 18

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    I have a child that may have Pendred's syndrome. This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear...
    arebella arebella 41-45, F Jul 18

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    hey i just got told i have this and i have no idea what it means can someone please help me?
    deleted deleted 26-30 1 Response Jul 18

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    Granulomatosis with polyangiitis (GPA) or formerly known as Wegener's Granulomatosis. It started...ooooooooohhhh I really duno. probably SOMEWHERE between or after December 2014...
    Juls4 Juls4 18-21, F Jul 18

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    I was diagnosed four years ago, have been on synthroid, then Levothyroxine, then armour, and now WP Thyroid. I'm still tired all the time.
    jmfhokie jmfhokie 26-30, F Jul 17

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    Met a 13 year old boy that we have everything's common get along great. We decided to be like step brothers in every way possible. I'm an only child by birth and it's great to...
    Alpha307 Alpha307 13-15, M Jul 15

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    what helps me a lot is to have everything in its place. If I misplace it, God forbid. If you are not my twin, and you move it, it's really bad. Anyone else feel like this?
    PJBelle PJBelle 46-50, F 2 Responses Jul 15

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    Why I can't do **** right?! Sometimes I do things I don't realize I'm doing. Like if I'm very slow and whatever, someone pushes me very hard or even get pissed off at me for being...
    BigGirlWithLove BigGirlWithLove 22-25, F 9 Responses Jul 15

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    Hi, I'm 13 and I have grown up knowing fully that I have Marfan syndrome, my mum and my brother also the syndrome and I inherited it, my whole life my mum has been open to talk...
    KitKatAngel KitKatAngel 18-21, F Jul 14

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