I Have Eagle's Syndrome

A Eagle's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Eagle's Syndrome. You're not alone. 25 People

    I'm so glad I found this.

    Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and so on. Every time I go to a new provider, nothing is ever "bad enough" to do much about, leaving me feeling at times like I'm...
    jsxburt jsxburt
    51-55, F
    1 Response Dec 20, 2014

    Relieved But Terrified

    I just got a diagnosis for eagle syndrome after more than three years of going many visits to the doctors, who have labeled me with everything from fibromialgia to cronic fatigue. If I were to take all the meds they threw at me I would be a chemistry set. If I sound angry you...
    susanthoss susanthoss
    46-50
    6 Responses Mar 11, 2012

    Had The Surgery

    I just wanted to post my story since I couldn't find many stories from people who had had the surgery before I had it, and I was curious about what to expect. I had about 2 cm of my styloid process/ligament removed 2 and a half months ago. At this point, I feel like the healing...
    jordanami jordanami
    31-35
    13 Responses Jan 10, 2011

    hi everyone ,I have just been diagnosed with

    eagle syndrome. I am waiting to have a ct scan but this is my journey. I had a small sist in my mouth appear about 7 years ago, I had it removed I started getting a sore throat so they sent me for a camera down my throat said that it was acid damage, was given tablets ! did not...
    julieg24 julieg24
    46-50, F
    1 Response May 10, 2014

    Morphing Into The Black Eagle?

    I'm joking...but this is what it feels like after a few years of trying to find out why I lost over an octave of my vocal range in only a few months. A professional singer, I had begin to notice a slight problem with my voice control, but I attributed it to lack of exercise and...
    ELIZABITCH ELIZABITCH
    31-35
    4 Responses Jun 6, 2011

    after 23 years of headaches,

    ear pain, right upper shoulder and back pain sinus and ear infections tooth aches dizzynesss ringing ....thinking was whiplash from a carwreck ....doctors saying everything is fine just allergies my dentist finally caught it on an xray because it wasn't my teeth causing the pain...
    tapittman1969 tapittman1969
    46-50
    May 25, 2014

    Eagle Syndrome Diagnosed 7/2/13 Surgery 7/31/13

    I started having pain and numbness in my neck followed fast by neck movement slowly fading. I went to see the chiropractor on 7/1/13 thinking my chiropractor would just do an adjustment. He decided with my loss of movement I needed a neck x-ray. 7/2/13 I went and had a neck x...
    diva12688 diva12688
    26-30
    2 Responses Jul 22, 2013

    Eagle's Syndrome Awareness

    I'm a 43 year-old female. At the age of 23 I developed a headache that has never gone away. This headache includes eye floaters (visual disturbances), tinnitus (ringining in the ears, hissing, buzzing, swishing, freight train sounds), neck, back and shoulder pain, severe fatigue...
    AmyBowie AmyBowie
    41-45, F
    2 Responses Jul 26, 2013

    I Have Eagles Syndrome

      I am considering surgery. Those of you that have had surgery, I would like to know if it helped, and how you are feeling 2 or more months out.
    mmpeak mmpeak
    61-65
    2 Responses Jun 6, 2011

    Related Experiences

    So here we are, Ep is about to close. It's been nice talking to some of you, finding out there was someone else with the same issues. I wish you all the best :)
    vanetuli vanetuli
    18-21, F
    Apr 21
    My attacks started 6yrs ago,woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I...
    SoothingSoozie SoothingSoozie
    41-45, F
    1 Response Apr 19
    My 3rd grader has struggled in school from Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician...
    Vette601 Vette601
    36-40, F
    Apr 19
    Well my story is a lot like some of yours, I started young on comet and sometimes dirt from my backyard... I like to eat things with gritty texture for most of my childhood and...
    BadMomKira BadMomKira
    22-25, F
    1 Response Apr 19
    I'm gonna really miss ep. It’s helped me a lot and I wouldn’t have transformed into who I am today if I hadn’t found this site. I was in a toxic, emotionally abusive...
    tarara0414 tarara0414
    18-21, F
    2 Responses Apr 19
    I am 19 years old and I have a crush on a guy who is 16. Although three years doesn't seem horrible, I know I cannot tell anyone that I am attracted to a sophomore in high school...
    chasingsunsets chasingsunsets
    18-21, F
    5 Responses Apr 17
    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
    Apr 17
    Hi, I was just diagnosed with SMA Syndrome after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
    Apr 17
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    I'm losing interest... in almost everything. It's like, it doesn't matter anymore. I don't know if it's just my mood today but I feel like I'm not going anywhere. I'm not...
    soyyoprincesa soyyoprincesa
    22-25, F
    2 Responses Apr 17
    A description of today's episode: I went home from work vomiting today. This time I was actually driving and puking at one point on my way home. Thanks to 'Murica for plastic...
    Doomflower Doomflower
    31-35, F
    3 Responses Apr 16
    Hello I'm Michelle but call me kris.I am from the USA.I suffer from bipolar as well as anxiety.
    deleted deleted
    26-30
    2 Responses Apr 14
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
    Apr 13
    I'm pretty sure being aspie has.it has its ups and downs.It messes up relationships so badly for me.
    deleted deleted
    26-30
    3 Responses Apr 11
    Does anyone still post on here? I was diagnosed almost four years ago and I still don't know much about it. My Husband and I are trying to have a baby and it's very difficult.
    jessymstephens jessymstephens
    22-25, F
    Apr 10
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    So... I make straight A's, never get in trouble, win school awards and awards in general. I'm on a scholarship team and I'm eligible for many other ones... I do all the house work...
    deleted deleted
    26-30
    1 Response Apr 9
    I'm so hurt that I can't even read all the experiences because my tears are in the way
    deleted deleted
    26-30
    2 Responses Apr 8
    OPEN HEAVENS FELLOWSHIP DAILY DEVOTION THE NEW CREATION IS A DIVINE PERSONALITY 1 Corinthians 15:47-48 The first man is of the earth, earthy: the second man is the Lord from...
    ganyoji ganyoji
    22-25, F
    3 Responses Apr 8
    My boyfriend hasn't been diagnosed or anything, but I was watching a programme about Asberger's and something resonated with me. If he does have it, I'm sure it's only mild, but it...
    anniechan anniechan
    18-21, F
    2 Responses Apr 7
    I was born with PruneBelly Syndrome (lack of abdominal muscles) I had some corrective surgery at age three and the dr cut through and removed my navel, so I don't really remember...
    Jmacaroon Jmacaroon
    51-55, F
    Apr 7
    Looking for other survivors of S.S. for support, as I work thru this Big Bowl of ****. Am going thru integration therapy and deal with chronic PTSD as a result of the years of...
    Rhonda87 Rhonda87
    51-55, F
    1 Response Apr 6
    Today at school, at art class, 'I' did something that made a friend mad. I'm not a very friendly person, not at all! But because people have expections, I can't just act like I...
    Aleixan Aleixan
    18-21, F
    2 Responses Apr 6
    #4 April 10th is the birthday of my best friend. She's in Cali currently, and sadly I couldn't fly to go meet her. Financial problem. I've known her since my 11th grade. I've...
    Abi936 Abi936
    22-25, M
    2 Responses Apr 6
    30 reasons i love my Aspie (or just a individual person wich i was lucky to met) This is my story, and Just mine. U dont need to relate. Because every person is different, with...
    deleted deleted
    26-30
    Apr 6
    3 months in. I've had a lot of good days, I've had more bad. The more time that passes, the good days happen more frequently & the bad days happen less. I find I'm able to deal...
    kchristine7 kchristine7
    18-21, F
    2 Responses Apr 5
    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
    what if thinking outside the box means just thinking outside of the smaller box but that there's always a larger box than that one and if you think outside of that one there's an...
    MoriyaSuwako MoriyaSuwako
    18-21, M
    1 Response Apr 5
    #3 I'm not sleepy after all :P so I'll continue. Taking it from the previous post, I've got a totally different thought running my head. Uhm, I got off a very serious...
    Abi936 Abi936
    22-25, M
    2 Responses Apr 5
    Bear with me, this is going to be a long story, but I need to get this off my chest. I am happy people found these places to vent and some people were lucky enough to become aware...
    Horriblesister Horriblesister
    51-55, F
    1 Response Apr 4
    The tilde. The squiggly. The ~ symbol. Seeing this symbol makes me feel the rage of Adolf Hitler after overdosing on f'ucking PCP. I just can't express my hatred over this symbol...
    jasonBK1 jasonBK1
    18-21, M
    3 Responses Apr 4
    It's the touring, the being on the road for 4 weeks that is eating me up inside, keeping cheerful for him, putting on a face of self-reliance, but inside, I feel unhinged, unmoored...
    deleted deleted
    26-30
    Apr 4
    I'd like one but i have a lot of issues and it's like sometimes there's no girl out there who would want me because of those issues I have It's not a priority for me to be in a...
    Dtrax8181 Dtrax8181
    26-30, M
    Apr 4
    Do you think the following blurb (from the About section on Experience Again) could possibly be written by someone who has been working on EP?? "A feeling of desolation...
    BSTisapain BSTisapain
    46-50, F
    2 Responses Apr 4
    https://youtu.be/i56AkejYpdE I know I shouldn't but I Love my dark side because I believe in justice so for all the people who was bullied a kid into suicide, or slaughter animals...
    Kornisone Kornisone
    26-30, F
    3 Responses Apr 4
    Mine is an Intellectual disability. Mine used to be mild but now, it isn't much anymore. Sometimes, it is mild. I had it because i was born a pre mature baby and i had some ripped...
    kagezuki10 kagezuki10
    16-17, F
    2 Responses Apr 3
    So I got some really ****** news. I might have to be hospitalized for 2 reasons: 1. ( not to gross anyone out ) but I might have an infection inside my nose cause I woke up had...
    SuchHorribleThings SuchHorribleThings
    16-17, F
    1 Response Apr 3
    I had a scary dream last night and I know this isn't the first time I've had this dream as if felt familiar upon waking up. Here it is: I'm in a house with a few people, it's...
    ADCue44 ADCue44
    18-21, F
    4 Responses Apr 3
    Friday was rough for us. I responded to something you said about my friends being jealous of me over you. I said it was more like pity for me. You bristled. I persisted. Obviously...
    lilimartelini lilimartelini
    51-55, F
    Apr 3
    Another Night in HeartBreak Hollywood Woke up, around 4pm, springtime’s sunlight, through my bedroom window shining in, I’m in a house, somewhere off Mulholland, had a call...
    AaronLA AaronLA
    31-35, M
    Apr 3
    Okay so am I crazy for this? Well I'm a person who's quiet, I do have a temper on me. Yet I'm still trying to find myself. I have a big imagination especially when I'm trying to...
    bchfdj bchfdj
    16-17, F
    Apr 2
    That's the main reason why I don't really have thousands of followers on my Instagram, Twitter, Facebook or anything else. It is not because I am a fake user. No! Not at all!I only...
    CoffeeTimeNow CoffeeTimeNow
    22-25, F
    Apr 2
    Im trying to watch a film secretly, it's paused on the other channel. Apparently it's disturbing so I'm keeping it a secret. Anyway my dad decided to stay at home. I paused it...
    Paleandpolluted86 Paleandpolluted86
    26-30, F
    4 Responses Apr 2
    I have a crush on someone who's waaaaayy out of my league. And here I'm going to call him Quil. I've never even met him before. When I think about him, I picture him out with the...
    yoonAlexandra yoonAlexandra
    18-21, F
    1 Response Apr 2
    Tonight, three of my alters killed themselves. It's horrible. Jake cried. For the first time in his life, the first time since we were six years old, Jake, the protector, cried...
    Indigo27 Indigo27
    16-17, F
    1 Response Apr 1
    I've had a panic attack at least twice a year now for half a decade and it's always irritated me that people don't understand how frightening they are. Yes, I know it's in my head...
    10786y 10786y
    22-25, F
    Apr 1
    I was thinking about what makes me be mad at her so much. I'm talking about the woman I was in a long-distance big age gap relationship with. And we broke up two months ago. So...
    deleted deleted
    26-30
    Apr 1
    Next week my Abilify dose is going to be raised to 4 mg. I'm mildly concerned about this because of the nausea side effect I've been getting. I've never actually thrown up yet, but...
    Hush92 Hush92
    18-21, F
    Apr 1
    I have a crush on a guy, now it's the usual crush, nothing like love or stuff, just like. Now, I usually have multiple crushes at once, it's a bad habit that I should stop. But...
    Cookiedung Cookiedung
    16-17, F
    Mar 31
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