I Have Ehlers-danlos Syndrome Type 3

I am 30 years old and am newly diagnosed with EDS type 3 , i was prone to injuries as a child including broken bones as a baby, i had the typical 'growing pains' an was palmed off as a 'moany' child, my hips dislocated on various...

I have Ehlors Danlos Syndrome I am 26yrs old and in so much pain I find myself crying more than not. It gets severe in the winter months but its starting to hurt now. I cannot get my doc or any doc I have been to in the past 5yrs to...

As long as I can remember I have been able to do crazy things with my joints. From paying jump with my arms to what my nephew calls dinosaure hands. I honestly never correlated the pain in my joints and muscles to the unique abilities...

To all other patients, somedays this is hard, somedays it is funny. Keep going on, this is not the end. I do have days when I can't just stay on my own feet since both knees and hip go off. But I stand up and walk or drag my self to...

Hey to everyone out there - I'm Beth, I'm just 18, a sixth former hoping to read law and be a barrister, a music scholar; singer, cellist, pianist, a swimming teacher, lifeguard and geneal swimming fanatic...oh - and I have ehlers...

So my whole life I grew up with some joint pain, everyone always telling me I was making it up and just to suck it up. As a competitive swimmer, I had to go through some pretty tough 3 hour practices. There were so many practices, where...

Hi, I have just been diagnosed with EDS type III. I have finally found doctors to believe my pain but still have yet to be genetically tested (appt set for end of June) I was told at 16 years old my pain in my left knee my due to loose...

I am 21 yars old and a mother of three beautiful boys. I have a wonderful fiance and used to run my own home based daycare. I have Ehlers-Danlos Syndrome type 3.  I have always been clumsy since i was very small wich led to a lot...

I have not had a diagnosis until a few days ago. My life has been a health nightmare since birth. Straight into an incubator. I have had MANY surgeries, the left lobe of my liver removed, 3 surgeries on an ear that still does not have...

Hi. Well my journey has been a long and treacherous but I'm finally here and getting on with my life. From birth I had health issues, all through childhood I got sick all the time, I broke bones and sprained just about every joint in my...

I'm in pain every day prob like most of you it started when i was 10/11 yrs old now am close to 36. My diagnosis was only discovered by pure luck by my health visitor who's daughters both suffer from eds.
I was fine up until 4 years ago...

OK, I went to the Rheumatologists today. A second one. I already know I have Fybro and Hybermobility disorder. That was officially confirmed with the last one. And already known by myself since I was little. The last Rheumo said it...

Hello fellow EDSers (aka Zebras). Last year, in 2011, Mayo Clinic finally solved the mystery diagnoses--starting with Ehlers-Danlos Syndrome Type 3/Hypermobility and a dizzying array of related and unrelated conditions. I was back at...

I was diagnosed early at the age of 2. My mother was told I would not make it passed 15, spent most of my childhood living in the hospital, pretty much felt like a guini pig for doctors. Regardless of my disability I tried to live my...

Well I will start off by saying I was diagnosed with Ehlers-danlos type 3 about 6 years ago. The reason I went to the doctor in the first place was because I had went to a chiropractor and she refused to treat me because she stated that...

Im 20 years old from Australia. I have had 4surgeries on both my shoulders and my doc said I have eds 3. I am now starting to get severe pain and cant do many things. Im depressed because I used to play alot of sport and now I can't...

Finding out what is wrong with me has been a long trip. I remember having severe leg/muscle pains as a child. My grandmother would massage my legs while we were under an electric blanket. Pain has been a constant in my life, and just...

My name is Russell David Lewis. I have Ehlers Danlos Syndrome – Hypermobility Type (formally Type 3). Since I was little, I every single joint in my entire body dislocated. This caused pain throughout my childhood but was ignored by...

I am 16 a recently got diagnosed with Type 3 of EDS. I have been going to different types of doctors since I was about 11 with them just saying stuff like “Oh you are double jointed”. So that led to years of annoying physical...

My son was dx with EDS 3 about 7 years ago. He is 13 now. He has pain in his legs, back, and feet at the moment. They just fitted him with semi rigid orthotics due to constantly spraining his ankle. We are hoping it helps a bit with his...