A Emery-Dreifuss Muscular Dystrophy, Dominant Type anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Emery-Dreifuss Muscular Dystrophy, Dominant Type. You're not alone.
I'm 26 female that has been diagnosed with EDMD . I was dignosed at the age of 6 with a disease called betham myopathy so for 20 years I was wrongly diagnosed . When I was gettIng a bit older my arms began to get tight at the elbows I walk on toes I find it harm to bend over I've...