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I Have Endometriosis

Endometriosis Sufferers chat, meet, share information and support each other here. 930 People

    I was diagnosed with Stage 4 endometriosis in

    January of this year. I had a major surgery back in May. They had to take out 8 to 10 inches of my small intestine, some of my colon, my appendix and I had 2 bad cysts on both ovaries. Now I only have 40% of one ovary and 50% of the other. My gastrointestinal doc has put on a...
    hcrummett15 hcrummett15 22-25, F 2 Responses Nov 18, 2015

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    My horror started at 16

    when I got my first period. They were heavy - to the point where even with a pad and tampon overnight I would ruin my sheets and PJs...I had to sleep on towels :( and they were so painful sometimes all I could do was cry. Then my periods got longer, sometimes up to ten days...
    S1ren S1ren 22-25, F 3 Responses Mar 15, 2014

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    Stage 4 since 2014. Dxd in 2012 with stage 2-3.

    I've done a year and a half of Lupron, a year of Progesterone, 1 D&C, two laps, two hysteroscopys, 1 cystoscopy, a $400,000 DaVinci robotic surgery with Firefly and Excision, at least 8 different incisions on my stomach And I STILL have stage 4 endo that's getting worse. My...
    apresm0i apresm0i 26-30, F 2 Responses Feb 1

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    Hello. My name is Channyn

    and here are 10 things that I've learned about myself since I've been diagnosed with Endometriosis that I would like to share with other Endo-sufferers. 1.) Painful periods are not normal. When I turned 19 I remember having conversations with my college friends about how I've...
    MrsHess MrsHess 22-25, F 2 Responses Apr 4, 2014

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    And I'm finally managing my symptoms!

    I also was diagnosed with pcos and after being told I needed a hysterectomy, I found an amazing product that has helped me be pain free! I no longer am considered obese, I lost 50 pounds! I no longer have abnormal periods, constant pelvic pain, my periods are regular again, and...
    kgucc kgucc 18-21, F 2 Responses Jul 31, 2015

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    Living With And Treating Endometriosis

    One night in 1996, after a date, I arrived home with terrible shooting pains in my abdominal, pains that were so overwhelming I couldnt sit up, my date had to take me the hospital and of course my father was arrived scared to death I was pregnant. The doctor performed a vaginal...
    RotRosha RotRosha 26-30, F 12 Responses Jul 12, 2006

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    I was told many years ago

    that I had endometriosis due to my symptoms, yet never had surgery. I thought I was a big baby and I needed to just "man up" and deal with the pain and other symptoms I had. My gyno made me feel like it was not that big of a deal, so I just went on with my life. Some months...
    Amie77 Amie77 36-40, F 1 Response Sep 16, 2015

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    I'm 20.. Last year (April) I had a right

    ruptured ovarian cyst, this march I had another ruptured cyst same ovary! I haven't been diagnosed but I know something is wrong constant bloating bleeding for 10 months.. Highly painful into course a lot more symptoms everything seems to add up to endometriosis!
    jessicajade21 jessicajade21 18-21, F 1 Response Apr 27, 2015

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    With heavy painful periods

    and horrible head aches all together at once is agonizing. I wish I were born male on those times of the month. I know it is only for a time but it seems like it will never end. I take birth control and prenatal vitamins to regulate my hormones. I was on metformin 3 times daily...
    jamielove7777 jamielove7777 31-35, F Apr 24, 2015

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    Does anyone else ever experience Nausea With

    Endo, I feel like for me thats one of the worst parts, not only do I get the crippling pain, but i also get to feel like I'm going to vomit. I haven't eaten right in 2 years
    Bethylee225 Bethylee225 22-25, F 1 Response Mar 28, 2014

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    Surgery

    Hi Everyone, I just got diagnosed with endometriosis and had a laproscopic surgery done. I am still sore. It was not a very good expierence for me. I live in a forgein country and the hospital i went barely anyone spoke english and i could hardly ask any questions. On top of...
    armywifey armywifey 18-21, F 4 Responses Apr 5, 2007

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    I was verbally diagnosed with this at age 20,

    when I was 21 I went in with debilitating pain and scheduled for a laparoscopy in May 2014. I am now 22 and already scheduled for yet another laparoscopy/plasma jet ablation. I am just so lucky to have the wonderful support system I have. If anyone would like to talk, I am...
    Ciara22 Ciara22 22-25, F 2 Responses Feb 14, 2015

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    If you don't have #endometriosis,

    #pcos #fibro #IC or any other crazy auto immune diseases you can never understand what we feel physically or mentally. I'm so tired & depressed all the time. Everytime a new month comes I be ready to cry 😞 #endometriosis #endostrong #chronicpain 😣 I hate it.
    lisettemades lisettemades 26-30, F 1 Response Oct 30, 2014

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    I'm 17 and I've been suffering from severe pain

    with my period for about 4 years now, but the pain just kept getting worse and worse. I had several doctors tell me the pain was normal, or in my head or I was exaggerating. Finally I went to an obg/yn and he put me on birth control for about 6 months and when nothing changed...
    brookenoel brookenoel 18-21, F 3 Responses Jul 6, 2015

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    I got diagnosed this year

    but have had it for a long time. I think. No doctor helped me work it out until periods became unmanageable. I have a fibroid as well. I had surgery in January to remove it but I worry it'll recur.
    rosesandblueskies rosesandblueskies 36-40, F 1 Response Jun 10, 2015

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    So I'm going through endometriosis have had it

    since I was young as I'm in my 30's now and having a hysterectomy because of it but the doctor has found it growing throughout my intestines-- is there anyone who has any advice to help ease my mind?? That hopefully a complete hysterectomy will help????
    dkfraley dkfraley 31-35, F 5 Responses Aug 12, 2015

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    I have had endometriosis

    for years. After a miscarriage, then years of infertility, then laparoscopy, I had a healthy pregnancy of twins. Shortly after their birth, the dreaded endo grew right back. It seems to love my left ovary and it even makes me have digestive issues like running to the bathroom. I...
    teacher653 teacher653 36-40, F 1 Response Oct 22, 2014

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    Since i started my period at 11 years old its

    all been down hill. I am almost 24 now and the pain i have been experiencing since has at times been completely unbearable. Sometimes i wonder how i can possibly keep living like this and then i have a good day and i remember why i fight. No one can ever understand unless theyve...
    deleted deleted 26-30 1 Response Jul 21, 2015

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    Hi ladies, as you probably know i have endo

    (hence why im in this group) and also polycystic ovaries. I am wanting to have a baby and i know that i will most likely struggle to fall pregnant, have any of yous got great success stories to help me cheer up and feel a bit more confident ? If yes, please also include how long...
    Neffy94 Neffy94 18-21, F 1 Response May 21, 2015

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    I was 17 when I was diagnosed with

    endometriosis. I'm 19 now and in college. It's so hard to pretend like everything is fine, when my biggest fear is that I will never be able to have biological kids. I have a wonderful boyfriend who supports me, but I still have nightmares that he will leave me if we find out we...
    ashtonmallory ashtonmallory 18-21, F 4 Responses Apr 22, 2015

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    i need help, im sure i have endo

    and my docs put it down to my pcos xx
    claribells claribells 31-35, F 2 Responses Oct 31, 2015

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    Will I Ever Get My Life Back?

    Last year, after many years of pain and being passed around by doctors, I was finally diagnosed with endo. Quickly the relief of finally know what was wrong with my body was erased when it still seemed like I couldn't find any doctor willing to help me. When I found a doctor who...
    Britt25any Britt25any 22-25, F 4 Responses Jan 10, 2013

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    Endo Hell For So Long Now...

    I've been putting off this story because I thought I was healing. I am not. I am lost, alone and in pain. My mother, aunt and my grandmother have all suffered the same. All I can do is cry and scream, telling me to relax is like saying "It's just temporary." I feel am...
    TheRealWoman TheRealWoman 31-35, F 12 Responses Mar 3, 2009

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    On To The Next One..

    Since the age of 16 I've had 6 surgeries & just scheduled my 7th one for the end of May, today. Does anyone else feel like hope is almost out of reach or near impossible? Every surgery I get excited, to be pain free for a bit... but this disease always relapses and the time in...
    jenniemacf1 jenniemacf1 22-25, F 3 Responses Mar 18, 2013

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    I'm waiting to be diagnosed

    but the doctor is almost positive I have endometriosis and/or fibroids. I have an array of issues!! I'm wondering has anyone had success treating it naturally?
    Jmaysgurl Jmaysgurl 26-30, F Jan 7

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    I haven't been diagnosed with endo yet

    but my doctor believes i may have it. i went into the doctor a few months ago and expected everything to be normal but it wasn't, i was put on a different birth control and told to come back in three months for a check up. here in about a month i go back and I'm extremely...
    steph0807 steph0807 18-21, F 1 Response Jun 17, 2015

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    Just Keep Fighting

    Today is another pain day. How I wish I could remember a day where I felt 100% ( for those of you with Endo you can relate). As the days go on its harder and harder to get out of bed. My Weekends are spent sleeping or laying around because I have no energy to do anything else and...
    HopefulChick87 HopefulChick87 26-30, F Mar 8, 2013

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    I Have Endometriosis & It Sucks.

    Hi! My name is Jessica. I got my first period when I was 12. It has been absolutely horrible from the get go. I have missed school & work almost every month for the past 12 years because of it. They have been extremely heavy (to the point I was worried I was hemorrhaging and...
    jnowen0913 jnowen0913 22-25, F Mar 3, 2012

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    Ok so this is my story

    so far.....around 7 years ago my periods became extremely heavy....took me two years to speak to the doctor and she examined me and said she could feel something inside. Sent me for tests and it came back that I had a polyp. That was removed and I was ok for about six months...
    lemolemo lemolemo 41-45, F 3 Responses Oct 3, 2015

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    I have not yet being diagnosed

    but my doctor believes I may have endometriosis. I was always told by others the level of period pain I felt was not normal. It would be so bad to the point of vomiting and being confined to bed for two days. I just recently discovered I have a cyst through an ultra sound. I am...
    Caitbeee Caitbeee 22-25, F 2 Responses Jul 5, 2015

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    I was diagnosed last October 2014.

    It's tough and I just want to know how is everybody with endometriosis deals with it.
    cocolov3 cocolov3 22-25, F 3 Responses Feb 10, 2015

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    I'm so relieved to find this page.

    I have had endo since having my tubes tied 8 years ago. Some cycles are worse than others, but the pain and exhaustion are always there. I'm in the beginning of an especially painful cycle and am feeling so alone. My husband and family have become desensitized to my complaints...
    gonegonejen gonegonejen 31-35, F Sep 13, 2015

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    I grew up thinking everyones periods were

    debilitatingly painful, that everyones lasted 9 days, were heavy, and made everyone puke. I thought I was normal. I had a lot of stomach problems all through childhood and adolescence. My sophomore year of high school my doctor stuck me in a CT machine. They found a softball...
    LinzDarling LinzDarling 22-25, F 1 Response Sep 26, 2015

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    On the 7th i'll be going in

    for my second ultrasound so my gynecologist can get a look at the endometrial cyst on my right ovary and to talk about how to treat it and the pain. How about we skip all the pain pills and just do the surgery. We can worry about pain management later.
    deleted deleted 26-30 Dec 28, 2015

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    I'm not exactly sure

    if I have it or not. I'm going to schedule an appointment with my gyn soon. I've had my period since I was 12, and over the years, my period cramps and PMS have just gotten worse and worse. It wasn't until I turned 17 that my cramps were unbearable and I actually began...
    ghostofthesun ghostofthesun 22-25, F 1 Response Dec 27, 2015

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    i am 18 years old. the doctor told me the best

    way to manage my stage 4 endometriosis was to have hysterectomy, after all the damage was so severe there is a 90+ % chance i wont be able to have children any way. my boyfriend broke up with me when he found out that i wont be able to have kids. now what?
    kitabubbs kitabubbs 18-21, F 4 Responses May 8, 2014

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    Age 18 and Scared

    Okay. So ever since I got my first period there were no complications with me AT ALL! The worste my period ever did to me was give me little to no lower backpain, slight neusea, and fatigue. The only extreme thing it ever did to me was make me really emotional. Does it sound...
    KayRox410 KayRox410 22-25, F 11 Responses May 16, 2009

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    I do not have a great experience

    when I go to my GYN... Everytime I go for my annual, she asks me how I am (referring to my Endo). If I tell her I hurt pretty bad the whole time I have my period then she suggests getting the Lupron shot and taking low doses of estrogen with it. I have told her a few times now...
    amberleigh512 amberleigh512 22-25 2 Responses Oct 31, 2015

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    Living With Endo

    I first starting experiencing problems with heavy periods and awful pain when I was 14. After 4 years of doctors telling me I was just growing up and saying the pain I was experiencing was normal, I asked to be referred to a gynaecologist. Because I was then 18 and an adult, I...
    singinghistorian singinghistorian 22-25, F 2 Responses Jan 9, 2012

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    Endometriosis Changed My Life

    I had been having heavy periods and cramps for years. It had been getting worse but I was able to cope until I had a sever attack. I was an Army nurse stationed at the Balad airbase in Iraq. The first day of my period the pain was so severe I couldn't walk and almost passed out...
    MadisonS MadisonS 26-30, F 3 Responses Nov 28, 2011

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    Hey everyone. I have not

    yet been officially diagnosed, but my doctor is nearly certain that I have endometriosis. I am scheduled to get a CT scan and blood work to confirm his suspicions next week and to be honest I'm terrified. I've been experiencing pains for years and horrible periods, ruptured...
    khuntley3 khuntley3 22-25, F Jul 3, 2015

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    How the Govn't destroyed my life ( Like Endo Wasn't Enough)

    On Labor Day of 2003 I dropped to the floor at work, rolling around in more pain then I had ever experienced in my life. I wish I could still say that but my three year fight with the military to DO SOMETHING was more painful then anything Endo ever threw my way. Dont get me...
    rockione23 rockione23 18-21, F 9 Responses Sep 23, 2006

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    After years of birth control,

    ruptured cysts, painful periods, mood swings, and more recently miscarriages and infertility I was diagnosed with endometriosis. I underwent DaVinci Laproscopy to excise the endometriosis and adhesions and am now on the road to recovery!
    mrscoachd mrscoachd 31-35, F 1 Response Mar 18, 2014

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    Well it's been over a year

    since I've been on this site and I'm starting to relive my nightmare all over again. Endometriosis. This past year I've been doing much better with the pain like it disappeared for awhile, but now I think the monster is back. It's night #3 and I can't sleep because of the pain...
    allis0ns13 allis0ns13 18-21, F 1 Response Sep 4, 2014

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    Endometriosis is a common gynaecological

    problem. It does not necessarily cause infertility or pain. Minimal to mild endometriosis is common and it is far more likely that you will have no difficulty conceiving naturally. With increasing severity of endometriosis, scar tissue (adhesions) becomes more common and the...
    sunnygogo sunnygogo 26-30, F Nov 23, 2015

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