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I Have Endometriosis

Endometriosis Sufferers chat, meet, share information and support each other here. 901 People

    I've not been diagnosed

    but fear I may have it. Looking to get to a doctor as soon as I can. I'm scared and could use someone to talk to.
    Jeradactyl Jeradactyl 22-25, F 2 Responses Jun 19, 2014

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    Age 18 and Scared

    Okay. So ever since I got my first period there were no complications with me AT ALL! The worste my period ever did to me was give me little to no lower backpain, slight neusea, and fatigue. The only extreme thing it ever did to me was make me really emotional. Does it sound...
    KayRox410 KayRox410 22-25, F 11 Responses May 16, 2009

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    I had a laparoscopy four weeks ago removing the

    endometriosis, only in the last three days I've been having pain again. I've been bleeding for the last ten days on and off, but it's not what I would call a period. Could it be back already? I've been online (I know it's not the most reliable of sources... but...) and a lot of...
    Peculiarpianist Peculiarpianist 22-25, F 1 Response Nov 8, 2014

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    Do I Have Endo????

    hi! I am 22 years old and i have never been diagnosed with endometriosis. however, i have been having the symptoms for YEARS and i need some advice from someone who has it. every single month, i go through EXTREME/SEVERE pelvic pain during my period. i pretty much...
    vjeffery vjeffery 22-25, F 8 Responses Nov 10, 2009

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    I got diagnosed this year

    but have had it for a long time. I think. No doctor helped me work it out until periods became unmanageable. I have a fibroid as well. I had surgery in January to remove it but I worry it'll recur.
    rosesandblueskies rosesandblueskies 36-40, F 1 Response Jun 10

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    How the Govn't destroyed my life ( Like Endo Wasn't Enough)

    On Labor Day of 2003 I dropped to the floor at work, rolling around in more pain then I had ever experienced in my life. I wish I could still say that but my three year fight with the military to DO SOMETHING was more painful then anything Endo ever threw my way. Dont get me...
    rockione23 rockione23 18-21, F 9 Responses Sep 23, 2006

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    I'm 28 and have been suffering from the age of

    13 have been in and out of hospital for 12 years with what they said was abdominal migraines! Surprise surprise 3 years and after a crazy amount of painkillers they told me they did not know what was wrong with me! They offered me morphine tablets for the pain in my stomach and...
    staceygall28 staceygall28 26-30, F Oct 16, 2014

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    Hi ladies, as you probably know i have endo

    (hence why im in this group) and also polycystic ovaries. I am wanting to have a baby and i know that i will most likely struggle to fall pregnant, have any of yous got great success stories to help me cheer up and feel a bit more confident ? If yes, please also include how long...
    Neffy94 Neffy94 18-21, F 1 Response May 21

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    After years of birth control,

    ruptured cysts, painful periods, mood swings, and more recently miscarriages and infertility I was diagnosed with endometriosis. I underwent DaVinci Laproscopy to excise the endometriosis and adhesions and am now on the road to recovery!
    mrscoachd mrscoachd 26-30, F 1 Response Mar 18, 2014

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    I've just been told I "probably" have

    Endometriosis. I've got an appointment with a gynecology team on Friday where we will book for me to have surgery to see the extent of it etc. I'm 22 and now probably have an expiration date on my fertility. I wanted four kids and now I'm questioning whether that's even possible...
    Peculiarpianist Peculiarpianist 22-25, F 1 Response Sep 29, 2014

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    Endometriosis Changed My Life

    I had been having heavy periods and cramps for years. It had been getting worse but I was able to cope until I had a sever attack. I was an Army nurse stationed at the Balad airbase in Iraq. The first day of my period the pain was so severe I couldn't walk and almost passed out...
    MadisonS MadisonS 26-30, F 3 Responses Nov 28, 2011

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    I was diagnosed with endometriosis years ago

    and I have had three surgeries to remove it. seems like I get a good 6 months with no pain and then the pain starts to build back up to the point I can barely stand myself. my doctors keep trying different hormone medicines and nothing is helping. The doctors I have seen say...
    sabrina1990 sabrina1990 22-25, F Nov 13, 2014

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    I'm 20.. Last year (April) I had a right

    ruptured ovarian cyst, this march I had another ruptured cyst same ovary! I haven't been diagnosed but I know something is wrong constant bloating bleeding for 10 months.. Highly painful into course a lot more symptoms everything seems to add up to endometriosis!
    jessicajade21 jessicajade21 18-21, F 1 Response Apr 27

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    Does anyone else ever experience Nausea With

    Endo, I feel like for me thats one of the worst parts, not only do I get the crippling pain, but i also get to feel like I'm going to vomit. I haven't eaten right in 2 years
    Bethylee225 Bethylee225 22-25, F 1 Response Mar 28, 2014

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    Endo After Hysterectomy And Oopherectomy

    Hi Everyone, First, I'm heavily medicated so this might not flow very well and it might seem random. Anyway, I don't think I've posted here before, maybe once or twice, I don't really remember. My name is Katya. I have endometriosis and in a week I will be having my fourth...
    shwankey shwankey 31-35, F 10 Responses Dec 15, 2006

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    In June I had been having pelvic pain

    for years and finally in June of this year my doctor did exploratory laparoscopy and found and burned out endometriosis. Since then my pain and periods have just gotten worse. During my periods and ovulation I have severe pain in the ovaries and uterus. I have also noticed...
    SWEETBUS SWEETBUS 36-40, F 1 Response Nov 6, 2014

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    I'm tired. I never understood

    why I needed more sleep than other people. Everyone around me can function off of 4-6 hours of sleep. I need 8-9, and still manage to wake up exhausted every single day. I'm in pain so often , that I stopped paying attention to it. I slept with heating pads, and popped a million...
    cami85 cami85 26-30, F 2 Responses Mar 10, 2014

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    I am struggling emotionally this last couple of

    days. We have friends of my hubby staying and it's worst timing. I have PMS bad and just want to curl up in bed. It always seems we have something on when It's that time. I had a operation 3 weeks to have Stage 3 Endo removed. I stick to an Endo diet and find it so hard...
    Starlight30 Starlight30 31-35, F Nov 1, 2014

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    I Have Endometriosis & It Sucks.

    Hi! My name is Jessica. I got my first period when I was 12. It has been absolutely horrible from the get go. I have missed school & work almost every month for the past 12 years because of it. They have been extremely heavy (to the point I was worried I was hemorrhaging and...
    jnowen0913 jnowen0913 22-25, F Mar 3, 2012

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    I found it I has endo from an acupuncturist.

    The doctors had always told me that painful periods were just part of being a woman. The acupuncturist took my pulse, checked my tongue and announced that I had endo. I went to the docs and they did a keyhole and confirmed it. They offered me some treatments, lasers of course...
    millicentmay millicentmay 36-40, F 1 Response Mar 13, 2014

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    I can barely walk today I'm in

    so much pain. My friends and family are telling me to just take my painkillers but they're not working. Others are telling me to man-up and stop being a wimp. How are you supposed to live in this much pain? My university want me to defer a year as I'm trying to do my masters. I...
    Peculiarpianist Peculiarpianist 22-25, F 3 Responses Oct 1, 2014

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    Endo Hell For So Long Now...

    I've been putting off this story because I thought I was healing. I am not. I am lost, alone and in pain. My mother, aunt and my grandmother have all suffered the same. All I can do is cry and scream, telling me to relax is like saying "It's just temporary." I feel am...
    TheRealWoman TheRealWoman 31-35, F 12 Responses Mar 3, 2009

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    Hello. My name is Channyn

    and here are 10 things that I've learned about myself since I've been diagnosed with Endometriosis that I would like to share with other Endo-sufferers. 1.) Painful periods are not normal. When I turned 19 I remember having conversations with my college friends about how I've...
    MrsHess MrsHess 22-25, F 2 Responses Apr 4, 2014

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    I haven't been diagnosed with endo yet

    but my doctor believes i may have it. i went into the doctor a few months ago and expected everything to be normal but it wasn't, i was put on a different birth control and told to come back in three months for a check up. here in about a month i go back and I'm extremely...
    steph0807 steph0807 18-21, F Jun 17

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    Living With And Treating Endometriosis

    One night in 1996, after a date, I arrived home with terrible shooting pains in my abdominal, pains that were so overwhelming I couldnt sit up, my date had to take me the hospital and of course my father was arrived scared to death I was pregnant. The doctor performed a vaginal...
    RotRosha RotRosha 26-30, F 12 Responses Jul 12, 2006

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    Well it's been over a year

    since I've been on this site and I'm starting to relive my nightmare all over again. Endometriosis. This past year I've been doing much better with the pain like it disappeared for awhile, but now I think the monster is back. It's night #3 and I can't sleep because of the pain...
    allis0ns13 allis0ns13 18-21, F 1 Response Sep 4, 2014

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    I was 17 when I was diagnosed with

    endometriosis. I'm 19 now and in college. It's so hard to pretend like everything is fine, when my biggest fear is that I will never be able to have biological kids. I have a wonderful boyfriend who supports me, but I still have nightmares that he will leave me if we find out we...
    ashtonmallory ashtonmallory 18-21, F 4 Responses Apr 22

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    Just Keep Fighting

    Today is another pain day. How I wish I could remember a day where I felt 100% ( for those of you with Endo you can relate). As the days go on its harder and harder to get out of bed. My Weekends are spent sleeping or laying around because I have no energy to do anything else and...
    HopefulChick87 HopefulChick87 26-30, F Mar 8, 2013

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    Hey everyone. I have not

    yet been officially diagnosed, but my doctor is nearly certain that I have endometriosis. I am scheduled to get a CT scan and blood work to confirm his suspicions next week and to be honest I'm terrified. I've been experiencing pains for years and horrible periods, ruptured...
    khuntley3 khuntley3 22-25, F Jul 3

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    I found out about a year

    and a half ago that I most likely have endometriosis. :( it's so painful, they had to put me on the shot so I wouldn't have to experience the pain every month and that has helped alot. But now I am gaining weight (and working to loose it, down 8 pounds so fare.) And my doctor...
    maggiemae89 maggiemae89 26-30, F 1 Response Sep 12, 2014

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    Surgery

    Hi Everyone, I just got diagnosed with endometriosis and had a laproscopic surgery done. I am still sore. It was not a very good expierence for me. I live in a forgein country and the hospital i went barely anyone spoke english and i could hardly ask any questions. On top of...
    armywifey armywifey 18-21, F 4 Responses Apr 5, 2007

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    I have not yet being diagnosed

    but my doctor believes I may have endometriosis. I was always told by others the level of period pain I felt was not normal. It would be so bad to the point of vomiting and being confined to bed for two days. I just recently discovered I have a cyst through an ultra sound. I am...
    Caitbeee Caitbeee 18-21, F 2 Responses Jul 5

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    Living With Endo

    I first starting experiencing problems with heavy periods and awful pain when I was 14. After 4 years of doctors telling me I was just growing up and saying the pain I was experiencing was normal, I asked to be referred to a gynaecologist. Because I was then 18 and an adult, I...
    singinghistorian singinghistorian 22-25, F 2 Responses Jan 9, 2012

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    Will I Ever Get My Life Back?

    Last year, after many years of pain and being passed around by doctors, I was finally diagnosed with endo. Quickly the relief of finally know what was wrong with my body was erased when it still seemed like I couldn't find any doctor willing to help me. When I found a doctor who...
    Britt25any Britt25any 22-25, F 4 Responses Jan 10, 2013

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    I'm 17 and I've been suffering from severe pain

    with my period for about 4 years now, but the pain just kept getting worse and worse. I had several doctors tell me the pain was normal, or in my head or I was exaggerating. Finally I went to an obg/yn and he put me on birth control for about 6 months and when nothing changed...
    brookenoel brookenoel 16-17, F 3 Responses Jul 6

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    With heavy painful periods

    and horrible head aches all together at once is agonizing. I wish I were born male on those times of the month. I know it is only for a time but it seems like it will never end. I take birth control and prenatal vitamins to regulate my hormones. I was on metformin 3 times daily...
    jamielove7777 jamielove7777 26-30, F Apr 24

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    i have had the worst most painful period this

    month after stopping the pill. I stopped the pill because it gave me periods that lasted months at a time but to be honest I would rather that then the pain I have been in this month. It's so painful I feel sick, I try pain medication and it doesn't help! Plus it's extremely...
    Polit573 Polit573 18-21, F 1 Response May 10

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    My horror started at 16

    when I got my first period. They were heavy - to the point where even with a pad and tampon overnight I would ruin my sheets and PJs...I had to sleep on towels :( and they were so painful sometimes all I could do was cry. Then my periods got longer, sometimes up to ten days...
    S1ren S1ren 22-25, F 3 Responses Mar 15, 2014

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    If you don't have #endometriosis,

    #pcos #fibro #IC or any other crazy auto immune diseases you can never understand what we feel physically or mentally. I'm so tired & depressed all the time. Everytime a new month comes I be ready to cry 😞 #endometriosis #endostrong #chronicpain 😣 I hate it.
    lisettemades lisettemades 26-30, F 1 Response Oct 30, 2014

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    I have had endometriosis

    for years. After a miscarriage, then years of infertility, then laparoscopy, I had a healthy pregnancy of twins. Shortly after their birth, the dreaded endo grew right back. It seems to love my left ovary and it even makes me have digestive issues like running to the bathroom. I...
    teacher653 teacher653 36-40, F 1 Response Oct 22, 2014

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    I'm currently undergoing tests/scans etc to

    figure out what's going on with my health, and the next scan is looking for Endometriosis. I'm having one of those moments where I'm terrified they'll never find out what's actually wrong with me and I'll continue having something that no one understands and just continuing to...
    GeorgieW2 GeorgieW2 26-30, F 1 Response Sep 3, 2014

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    Your Endo Symptoms

    To all of you who have had an endometriosis diagnosis, what are your symptoms?I know we are all different, and may have different symptoms.I had a laparoscopy and endometriosis wasn't found.  I don't blame the doc cause I think he did a great job but I believe I have it.I seem...
    Whateverrrrr Whateverrrrr 36-40, F 3 Responses Mar 26, 2012

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    Endometriosis Changed My Life

    This Month I have recently been asked to work for Metro Health Fairs. This Amazing opportunity has given me the chance to spreak Endometriosis awareness through their events, along with my blog www.Baggagebeauty.blogspot.com. Here's my story!....I had been waiting 365 days for...
    CourtneyMahony CourtneyMahony 22-25, F Mar 15, 2012

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    I get severely swollen feet around/on my period.

    They swell up 3x their size. I can't find much online linking swollen feet with Endo. Anyone else?
    athewhale athewhale 18-21, F 1 Response Sep 8, 2014

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    I was diagnosed last October 2014.

    It's tough and I just want to know how is everybody with endometriosis deals with it.
    cocolov3 cocolov3 22-25, F 2 Responses Feb 10

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    I'm 21 and had my first laparoscopy

    and they found endometriosis. I'm kinda scared , any advice?
    hannahsuzette hannahsuzette 22-25, F 1 Response