I Have Endometriosis

Endometriosis Sufferers chat, meet, share information and support each other here. 936 People

    I'm 17 and I've been suffering from severe pain

    with my period for about 4 years now, but the pain just kept getting worse and worse. I had several doctors tell me the pain was normal, or in my head or I was exaggerating. Finally I went to an obg/yn and he put me on birth control for about 6 months and when nothing changed...
    brookenoel brookenoel
    18-21, F
    3 Responses Jul 6, 2015

    I'm waiting to be diagnosed

    but the doctor is almost positive I have endometriosis and/or fibroids. I have an array of issues!! I'm wondering has anyone had success treating it naturally?
    Jmaysgurl Jmaysgurl
    26-30, F
    Jan 7

    Well it's been over a year

    since I've been on this site and I'm starting to relive my nightmare all over again. Endometriosis. This past year I've been doing much better with the pain like it disappeared for awhile, but now I think the monster is back. It's night #3 and I can't sleep because of the pain...
    allis0ns13 allis0ns13
    18-21, F
    1 Response Sep 4, 2014

    Females who have Stage I

    or II endometriosis the chance of having a baby is approximately 2% in any given menstrual cycle (cycle fecundity rate). Females with Stage III or IV endometriosis the chance would be lower than 1%. By comparison, age-dependent cycle fecundity rates in healthy fertile women...
    antonellamessi antonellamessi
    22-25, F
    1 Response Feb 17

    I have had endometriosis

    for years. After a miscarriage, then years of infertility, then laparoscopy, I had a healthy pregnancy of twins. Shortly after their birth, the dreaded endo grew right back. It seems to love my left ovary and it even makes me have digestive issues like running to the bathroom. I...
    teacher653 teacher653
    36-40, F
    1 Response Oct 22, 2014

    I found out about a year

    and a half ago that I most likely have endometriosis. :( it's so painful, they had to put me on the shot so I wouldn't have to experience the pain every month and that has helped alot. But now I am gaining weight (and working to loose it, down 8 pounds so fare.) And my doctor...
    maggiemae89 maggiemae89
    26-30, F
    2 Responses Sep 12, 2014

    I've not been diagnosed

    but fear I may have it. Looking to get to a doctor as soon as I can. I'm scared and could use someone to talk to.
    Jeradactyl Jeradactyl
    22-25, F
    2 Responses Jun 19, 2014

    i need help, im sure i have endo

    and my docs put it down to my pcos xx
    claribells claribells
    31-35, F
    2 Responses Oct 31, 2015

    After years of birth control,

    ruptured cysts, painful periods, mood swings, and more recently miscarriages and infertility I was diagnosed with endometriosis. I underwent DaVinci Laproscopy to excise the endometriosis and adhesions and am now on the road to recovery!
    mrscoachd mrscoachd
    31-35, F
    1 Response Mar 18, 2014

    Hello ladies, I am hoping to find some help

    here. Last month I had an extremely painful menstrual cycle. I've never had them that bad. Ive been experiencing lower back pain and burning by my left buttock that radiates down my leg. Flank pain, abdominal pain,bloating and frequent urination. I visited my gyno and she...
    Cherrios87 Cherrios87
    26-30, F
    Mar 7

    My horror started at 16

    when I got my first period. They were heavy - to the point where even with a pad and tampon overnight I would ruin my sheets and PJs...I had to sleep on towels :( and they were so painful sometimes all I could do was cry. Then my periods got longer, sometimes up to ten days...
    S1ren S1ren
    26-30, F
    3 Responses Mar 15, 2014

    I was diagnosed with endo in the middle of last

    year and I'm still trying to understand the symptoms and how to manage it. Does anyone with endo suffer from exhaustion or fatigue? Is this a normal part of endo? Any help or advice is welcome, thank you. :)
    khuntley3 khuntley3
    22-25, F
    3 Responses Jan 16

    Endometriosis is a common gynaecological

    problem. It does not necessarily cause infertility or pain. Minimal to mild endometriosis is common and it is far more likely that you will have no difficulty conceiving naturally. With increasing severity of endometriosis, scar tissue (adhesions) becomes more common and the...
    sunnygogo sunnygogo
    31-35, F
    Nov 23, 2015

    Living With Endo

    I first starting experiencing problems with heavy periods and awful pain when I was 14. After 4 years of doctors telling me I was just growing up and saying the pain I was experiencing was normal, I asked to be referred to a gynaecologist. Because I was then 18 and an adult, I...
    singinghistorian singinghistorian
    22-25, F
    2 Responses Jan 9, 2012

    On the 7th i'll be going in

    for my second ultrasound so my gynecologist can get a look at the endometrial cyst on my right ovary and to talk about how to treat it and the pain. How about we skip all the pain pills and just do the surgery. We can worry about pain management later.
    deleted deleted
    26-30
    Dec 28, 2015

    Hi. I have endo and I'm trying to find a good

    chat room to talk to people who understand as talking to my friends is great but they don't really understand what it is. Do any of you know any good chat rooms please? X
    littlemissk80 littlemissk80
    36-40, F
    2 Responses Mar 26

    Is it only me? I can hardly ever sleep around

    having a attack or having my period.. It's about to be 6:00 in the morning where I am and I haven't shut my eyes. I have tried and tried, it's hopeless. There is this aching in my lower stomach and lower back and even my forbidden places, that doesn't seem to be going away...
    lovelysomeone lovelysomeone
    18-21, F
    1 Response Feb 25

    I'm not exactly sure

    if I have it or not. I'm going to schedule an appointment with my gyn soon. I've had my period since I was 12, and over the years, my period cramps and PMS have just gotten worse and worse. It wasn't until I turned 17 that my cramps were unbearable and I actually began...
    ghostofthesun ghostofthesun
    22-25, F
    1 Response Dec 27, 2015

    I am a 20 year old college student

    who is diagnosed with endo. It is so frustrating to endure both the physical and emotional pain that comes along with endometriosis. Today is Valentines day and instead of going to brunch with my girlfriends i am in bed with my heating pad. I find myself getting anxious when i...
    bberry7 bberry7
    18-21, F
    3 Responses Feb 14, 2015

    Endometriosis comes from the word endometrium,

    which is the tissue that lines the inside of the uterus. Endometriosis occurs when tissue that looks and acts like endometrial tissue is found outside the uterus, usually inside the pelvic cavity. As young women have strong kidney and sufficient blood, Tiangui can bring...
    antonellamessi antonellamessi
    22-25, F
    Feb 16

    Just Keep Fighting

    Today is another pain day. How I wish I could remember a day where I felt 100% ( for those of you with Endo you can relate). As the days go on its harder and harder to get out of bed. My Weekends are spent sleeping or laying around because I have no energy to do anything else and...
    HopefulChick87 HopefulChick87
    26-30, F
    Mar 8, 2013

    I'm tired. I never understood

    why I needed more sleep than other people. Everyone around me can function off of 4-6 hours of sleep. I need 8-9, and still manage to wake up exhausted every single day. I'm in pain so often , that I stopped paying attention to it. I slept with heating pads, and popped a million...
    cami85 cami85
    26-30, F
    2 Responses Mar 10, 2014

    I was diagnosed with Stage 4 endometriosis in

    January of this year. I had a major surgery back in May. They had to take out 8 to 10 inches of my small intestine, some of my colon, my appendix and I had 2 bad cysts on both ovaries. Now I only have 40% of one ovary and 50% of the other. My gastrointestinal doc has put on a...
    hcrummett15 hcrummett15
    22-25, F
    1 Response Nov 18, 2015

    I have had endometriosis

    since I was 16. Recently it has gotten absolutely terrible and has started to impact my life far more than before, and I'm having a hard time dealing with that. Multiple days a month I'm debilitated by pain, and being prescribed narcotics which I have no desire to take. I have...
    wimsypig wimsypig
    22-25, F
    Mar 9

    How the Govn't destroyed my life ( Like Endo Wasn't Enough)

    On Labor Day of 2003 I dropped to the floor at work, rolling around in more pain then I had ever experienced in my life. I wish I could still say that but my three year fight with the military to DO SOMETHING was more painful then anything Endo ever threw my way. Dont get me...
    rockione23 rockione23
    22-25, F
    9 Responses Sep 23, 2006

    I'm so relieved to find this page.

    I have had endo since having my tubes tied 8 years ago. Some cycles are worse than others, but the pain and exhaustion are always there. I'm in the beginning of an especially painful cycle and am feeling so alone. My husband and family have become desensitized to my complaints...
    gonegonejen gonegonejen
    31-35, F
    Sep 13, 2015

    And recent survey shows

    that certain diets change can improve your endometriosis symptoms, and you would gain a lot of other benefits from these diets. Also there are many experts believe that eating certain foods can reduce inflammation and estrogen levels in the body, thus they are helpful for...
    antonellamessi antonellamessi
    22-25, F
    Feb 18

    Endometriosis Changed My Life

    This Month I have recently been asked to work for Metro Health Fairs. This Amazing opportunity has given me the chance to spreak Endometriosis awareness through their events, along with my blog www.Baggagebeauty.blogspot.com. Here's my story!....I had been waiting 365 days for...
    CourtneyMahony CourtneyMahony
    22-25, F
    Mar 15, 2012

    Stage 4 since 2014. Dxd in 2012 with stage 2-3.

    I've done a year and a half of Lupron, a year of Progesterone, 1 D&C, two laps, two hysteroscopys, 1 cystoscopy, a $400,000 DaVinci robotic surgery with Firefly and Excision, at least 8 different incisions on my stomach And I STILL have stage 4 endo that's getting worse. My...
    apresm0i apresm0i
    26-30, F
    1 Response Feb 1

    I do not have a great experience

    when I go to my GYN... Everytime I go for my annual, she asks me how I am (referring to my Endo). If I tell her I hurt pretty bad the whole time I have my period then she suggests getting the Lupron shot and taking low doses of estrogen with it. I have told her a few times now...
    amberleigh512 amberleigh512
    22-25
    1 Response Oct 31, 2015

    Hello. I have endo and I'm just looking

    for somewhere I can chat to people who understand I'm just wondering if you know of any good chat rooms??
    littlemissk80 littlemissk80
    36-40, F
    1 Response Mar 26

    Hey lovely ladies, I was wondering

    if anyone out there has any success on managing your pain through herbal remedies, therapies, foods to avoid etc... I have endometriosis and cysts, and while it has been a lengthy process of misdiagnosis and having spent hundreds and hundreds of dollars on scans and appointments...
    Daniellasw Daniellasw
    26-30, F
    5 Responses Aug 29, 2015

    If you don't have #endometriosis,

    #pcos #fibro #IC or any other crazy auto immune diseases you can never understand what we feel physically or mentally. I'm so tired & depressed all the time. Everytime a new month comes I be ready to cry 😞 #endometriosis #endostrong #chronicpain 😣 I hate it.
    lisettemades lisettemades
    26-30, F
    1 Response Oct 30, 2014

    I've just had a laparoscopy in hospital

    and have been diagnosed with Endometriosis. For years I've lived with this pain and finally at twenty one years old I have an answer. I know I'm young but I really want children when I'm older and this diagnosis scares me. For any women living with this pain- please get it...
    Wallipops Wallipops
    18-21, F
    2 Responses Mar 4

    Endometriosis is usually a painful healthcare

    condition in which endometrial implants, comprised of tissue ordinarily discovered within the uterus, are present in other locations with the body. Endometritis is attributable to infections such as chlamydia, gonorrhea, tuberculosis, or mixtures of normal vaginal bacteria. An...
    antonellamessi antonellamessi
    22-25, F
    Feb 17

    I was 17 when I was diagnosed with

    endometriosis. I'm 19 now and in college. It's so hard to pretend like everything is fine, when my biggest fear is that I will never be able to have biological kids. I have a wonderful boyfriend who supports me, but I still have nightmares that he will leave me if we find out we...
    ashtonmallory ashtonmallory
    18-21, F
    4 Responses Apr 22, 2015

    I was diagnosed last October 2014.

    It's tough and I just want to know how is everybody with endometriosis deals with it.
    cocolov3 cocolov3
    22-25, F
    3 Responses Feb 10, 2015

    Surgery

    Hi Everyone, I just got diagnosed with endometriosis and had a laproscopic surgery done. I am still sore. It was not a very good expierence for me. I live in a forgein country and the hospital i went barely anyone spoke english and i could hardly ask any questions. On top of...
    armywifey armywifey
    18-21, F
    4 Responses Apr 5, 2007

    Does anyone else ever experience Nausea With

    Endo, I feel like for me thats one of the worst parts, not only do I get the crippling pain, but i also get to feel like I'm going to vomit. I haven't eaten right in 2 years
    Bethylee225 Bethylee225
    22-25, F
    1 Response Mar 28, 2014

    Everyone else got iPads

    and new clothes for Christmas and I got cheated on and an incurable disease. Merry Christmas to me...
    TheFluffyGozette TheFluffyGozette
    18-21, F
    Feb 15

    On To The Next One..

    Since the age of 16 I've had 6 surgeries & just scheduled my 7th one for the end of May, today. Does anyone else feel like hope is almost out of reach or near impossible? Every surgery I get excited, to be pain free for a bit... but this disease always relapses and the time in...
    jenniemacf1 jenniemacf1
    22-25, F
    3 Responses Mar 18, 2013

    I grew up thinking everyones periods were

    debilitatingly painful, that everyones lasted 9 days, were heavy, and made everyone puke. I thought I was normal. I had a lot of stomach problems all through childhood and adolescence. My sophomore year of high school my doctor stuck me in a CT machine. They found a softball...
    LinzDarling LinzDarling
    22-25, F
    1 Response Sep 26, 2015

    has anyone ever had their endometriosis made

    worse because of birth control or because they changed their birth control???
    Unknown012 Unknown012
    22-25, F
    1 Response Mar 8

    I was verbally diagnosed with this at age 20,

    when I was 21 I went in with debilitating pain and scheduled for a laparoscopy in May 2014. I am now 22 and already scheduled for yet another laparoscopy/plasma jet ablation. I am just so lucky to have the wonderful support system I have. If anyone would like to talk, I am...
    Ciara22 Ciara22
    22-25, F
    2 Responses Feb 14, 2015

    Living With And Treating Endometriosis

    One night in 1996, after a date, I arrived home with terrible shooting pains in my abdominal, pains that were so overwhelming I couldnt sit up, my date had to take me the hospital and of course my father was arrived scared to death I was pregnant. The doctor performed a vaginal...
    RotRosha RotRosha
    26-30, F
    12 Responses Jul 12, 2006

    I was told many years ago

    that I had endometriosis due to my symptoms, yet never had surgery. I thought I was a big baby and I needed to just "man up" and deal with the pain and other symptoms I had. My gyno made me feel like it was not that big of a deal, so I just went on with my life. Some months...
    Amie77 Amie77
    36-40, F
    1 Response Sep 16, 2015

    And I'm finally managing my symptoms!

    I also was diagnosed with pcos and after being told I needed a hysterectomy, I found an amazing product that has helped me be pain free! I no longer am considered obese, I lost 50 pounds! I no longer have abnormal periods, constant pelvic pain, my periods are regular again, and...
    kgucc kgucc
    18-21, F
    2 Responses Jul 31, 2015

    i am 18 years old. the doctor told me the best

    way to manage my stage 4 endometriosis was to have hysterectomy, after all the damage was so severe there is a 90+ % chance i wont be able to have children any way. my boyfriend broke up with me when he found out that i wont be able to have kids. now what?
    kitabubbs kitabubbs
    18-21, F
    4 Responses May 8, 2014

    Will I Ever Get My Life Back?

    Last year, after many years of pain and being passed around by doctors, I was finally diagnosed with endo. Quickly the relief of finally know what was wrong with my body was erased when it still seemed like I couldn't find any doctor willing to help me. When I found a doctor who...
    Britt25any Britt25any
    22-25, F
    4 Responses Jan 10, 2013

    I Have Endometriosis & It Sucks.

    Hi! My name is Jessica. I got my first period when I was 12. It has been absolutely horrible from the get go. I have missed school & work almost every month for the past 12 years because of it. They have been extremely heavy (to the point I was worried I was hemorrhaging and...
    jnowen0913 jnowen0913
    22-25, F
    Mar 3, 2012

    Endo Hell For So Long Now...

    I've been putting off this story because I thought I was healing. I am not. I am lost, alone and in pain. My mother, aunt and my grandmother have all suffered the same. All I can do is cry and scream, telling me to relax is like saying "It's just temporary." I feel am...
    TheRealWoman TheRealWoman
    31-35, F
    12 Responses Mar 3, 2009

    Hi, I am a 17 year old girl

    who was recently diagnosed with endometriosis, proceeding an endometrial laparoscopy in a month or so. The pain has gotten to a point where I have had to go on medical leave from my job that I love. It interferes with everyday life, relationships, social dynamics, etc. On top of...
    Butyoudontlooksick Butyoudontlooksick
    16-17, F
    Mar 23

    I have not yet being diagnosed

    but my doctor believes I may have endometriosis. I was always told by others the level of period pain I felt was not normal. It would be so bad to the point of vomiting and being confined to bed for two days. I just recently discovered I have a cyst through an ultra sound. I am...
    Caitbeee Caitbeee
    22-25, F
    2 Responses Jul 5, 2015

    I found it I has endo from an acupuncturist.

    The doctors had always told me that painful periods were just part of being a woman. The acupuncturist took my pulse, checked my tongue and announced that I had endo. I went to the docs and they did a keyhole and confirmed it. They offered me some treatments, lasers of course...
    millicentmay millicentmay
    36-40, F
    1 Response Mar 13, 2014

    Endometriosis Changed My Life

    I had been having heavy periods and cramps for years. It had been getting worse but I was able to cope until I had a sever attack. I was an Army nurse stationed at the Balad airbase in Iraq. The first day of my period the pain was so severe I couldn't walk and almost passed out...
    MadisonS MadisonS
    26-30, F
    3 Responses Nov 28, 2011

    Hi ladies, as you probably know i have endo

    (hence why im in this group) and also polycystic ovaries. I am wanting to have a baby and i know that i will most likely struggle to fall pregnant, have any of yous got great success stories to help me cheer up and feel a bit more confident ? If yes, please also include how long...
    Neffy94 Neffy94
    18-21, F
    1 Response May 21, 2015

    Since i started my period at 11 years old its

    all been down hill. I am almost 24 now and the pain i have been experiencing since has at times been completely unbearable. Sometimes i wonder how i can possibly keep living like this and then i have a good day and i remember why i fight. No one can ever understand unless theyve...
    deleted deleted
    26-30
    1 Response Jul 21, 2015

    Hello. My name is Channyn

    and here are 10 things that I've learned about myself since I've been diagnosed with Endometriosis that I would like to share with other Endo-sufferers. 1.) Painful periods are not normal. When I turned 19 I remember having conversations with my college friends about how I've...
    MrsHess MrsHess
    22-25, F
    2 Responses Apr 4, 2014

    So I'm going through endometriosis have had it

    since I was young as I'm in my 30's now and having a hysterectomy because of it but the doctor has found it growing throughout my intestines-- is there anyone who has any advice to help ease my mind?? That hopefully a complete hysterectomy will help????
    dkfraley dkfraley
    31-35, F
    5 Responses Aug 12, 2015
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