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I Have Endometriosis

Endometriosis Sufferers chat, meet, share information and support each other here. 841 People

    Surgery

    Hi Everyone, I just got diagnosed with endometriosis and had a laproscopic surgery done. I am still sore. It was not a very good expierence for me. I live in a forgein country and the hospital i went barely anyone spoke english and i could hardly ask any questions. On top of...
    armywifey armywifey 19-21, F 4 Responses Apr 5, 2007

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    I Have Endometriosis & It Sucks.

    Hi! My name is Jessica. I got my first period when I was 12. It has been absolutely horrible from the get go. I have missed school & work almost every month for the past 12 years because of it. They have been extremely heavy (to the point I was worried I was hemorrhaging and...
    jnowen0913 jnowen0913 22-25, F 1 Response Mar 3, 2012

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    Struggling doesn't even begin to describe it.

    I had a miscarriage, and then got my period. As if the miscarriage pain wasn't enough now I have cramps so bad that I can't move or even get out of bed. I know it's the endometriosis and I don't even know what to do. I just want to cry. My pain is so much worse than before I had...
    TylersGirl18 TylersGirl18 18-21, F Apr 11

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    Do I Have Endo????

    hi! I am 22 years old and i have never been diagnosed with endometriosis. however, i have been having the symptoms for YEARS and i need some advice from someone who has it. every single month, i go through EXTREME/SEVERE pelvic pain during my period. i pretty much...
    vjeffery vjeffery 22-25, F 8 Responses Nov 10, 2009

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    I've not been diagnosed

    but fear I may have it. Looking to get to a doctor as soon as I can. I'm scared and could use someone to talk to.
    Jeradactyl Jeradactyl 22-25, F 2 Responses Jun 19

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    Joined a Clinical Trial For New Med For Endo-scary!

    I was diagnosed w/Endo in "06 when I'd had 3 ovarian cysts rupture about 5 weeks. My gyno suspected Endo and did a Lapriscopic surgery and confirmed it. He said he removed a lot of scar tissue and some adhesions, even some in my colon that caused a blockage. He'd said it...
    dianneh54 dianneh54 36-40, F 2 Responses May 17, 2008

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    Does anyone else ever experience Nausea With

    Endo, I feel like for me thats one of the worst parts, not only do I get the crippling pain, but i also get to feel like I'm going to vomit. I haven't eaten right in 2 years
    Bethylee225 Bethylee225 22-25, F 1 Response Mar 28

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    Endometriosis Changed My Life

    This Month I have recently been asked to work for Metro Health Fairs. This Amazing opportunity has given me the chance to spreak Endometriosis awareness through their events, along with my blog www.Baggagebeauty.blogspot.com. Here's my story!....I had been waiting 365 days for...
    CourtneyMahony CourtneyMahony 22-25, F Mar 15, 2012

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    I was diagnosed with endometriosis

    when I was about 12 years old. That's a lot for a person of that age to take in. You don't really pay attention tot what the doctor is telling you. I am 16 going on 17 now. And I still barely understand what is wrong with me. Every time I talk about it I get to upset to talk...
    brandijeannn brandijeannn 16-17, F 2 Responses Aug 27

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    Got my 4th Lupron today.

    So far so good. Good in a way that I am not experiencing that much pain. Though I kind of feel like I may or may not be getting immune with the shot, since I can now feel some of the pain unlike the earlier shots. Anyway, side effects is pretty tolerable. Still with the hot...
    hopelessaddict hopelessaddict 26-30, F 1 Response Mar 4

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    Your Endo Symptoms

    To all of you who have had an endometriosis diagnosis, what are your symptoms?I know we are all different, and may have different symptoms.I had a laparoscopy and endometriosis wasn't found.  I don't blame the doc cause I think he did a great job but I believe I have it.I seem...
    Whateverrrrr Whateverrrrr 36-40, F 3 Responses Mar 26, 2012

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    I found out about a year

    and a half ago that I most likely have endometriosis. :( it's so painful, they had to put me on the shot so I wouldn't have to experience the pain every month and that has helped alot. But now I am gaining weight (and working to loose it, down 8 pounds so fare.) And my doctor...
    maggiemae89 maggiemae89 22-25, F Sep 12

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    How the Govn't destroyed my life ( Like Endo Wasn't Enough)

    On Labor Day of 2003 I dropped to the floor at work, rolling around in more pain then I had ever experienced in my life. I wish I could still say that but my three year fight with the military to DO SOMETHING was more painful then anything Endo ever threw my way. Dont get me...
    rockione23 rockione23 21-25, F 9 Responses Sep 23, 2006

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    Does anyone else have difficulties describing

    the pain that you feel from endometriosis. I didn't realize how funny it was to describe the pain until I said that I felt like I was giving birth to a bowling ball and there's a porcupine throwing a party in my uterus. It kind of makes you laugh for a bit to think about it...
    kim21cheer kim21cheer 22-25, F 4 Responses Mar 9

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    Hi Ladies I'm 26 yrs old w/ Stage II Endo.

    I have numerous surgeries starting from when I was 16 yrs old. I have had 3 laparoscopys, a pre sacral neurectomy, pain mapping and now unfortunately a hysterectomy. I had my hysterctomy in August 2013 and a few months went by and things seemed ok, then all hell broke loose...
    MissNik88 MissNik88 26-30, F 1 Response Mar 13

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    I has my last Lupron shot June 7th.

    Doctor didn't explain how I would feel after my last one or when pains would start back up all he said was it could help chances to get pregnant and through the pain I'm already feeling I pray he's right about those chances!
    MrsHolly MrsHolly 22-25, F 1 Response Jul 16

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    Sick of Having Endo

    Hi all im 27 and have endometriosis,i was diagnosed with it when i was 17.I have tried everything and even had an operation to burn it away,which would give me 6 months pain free and then im back 2 square 1.My last op was 6 months ago and i just keep going round in circles.Every...
    sparkle27 sparkle27 26-30, F 3 Responses Jan 1, 2008

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    Age 18 and Scared

    Okay. So ever since I got my first period there were no complications with me AT ALL! The worste my period ever did to me was give me little to no lower backpain, slight neusea, and fatigue. The only extreme thing it ever did to me was make me really emotional. Does it sound...
    KayRox410 KayRox410 22-25, F 11 Responses May 16, 2009

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    On To The Next One..

    Since the age of 16 I've had 6 surgeries & just scheduled my 7th one for the end of May, today. Does anyone else feel like hope is almost out of reach or near impossible? Every surgery I get excited, to be pain free for a bit... but this disease always relapses and the time in...
    jenniemacf1 jenniemacf1 22-25, F 3 Responses Mar 18, 2013

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    A Life With Endometriosis

    I have Endometriosis. ( For 20 years) I found out when I was 19. The doctor had to take my left ovary out. And my right ovary gets clogged. I hate when it's that time of the month. It's always painful. The most painful is having your doctor tell you that you can not have children...
    rockybree rockybree 36-40, F 4 Responses Jul 25, 2008

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    I'm currently undergoing tests/scans etc to

    figure out what's going on with my health, and the next scan is looking for Endometriosis. I'm having one of those moments where I'm terrified they'll never find out what's actually wrong with me and I'll continue having something that no one understands and just continuing to...
    GeorgieW2 GeorgieW2 26-30, F 1 Response Sep 3

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    It is a difficult condition to live with.

    ..I have two years with the condition..was diagnosed at age 20 with a laparoscopic surgery because the doctors kept saying that I was exaggerating and out of my mind...this condition affected my studies a lot and there was a time when I thought that I had no future to look...
    genesis99 genesis99 22-25, F 1 Response Aug 23

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    I discovered i had endometriosis through

    laparoscopy, been waiting nearly four month to have the operation to have it removed. the doctor said if my tube on my right side is too badly damaged he might have to take it away due to it being stuck to my bowel. all my friends and family are having kids and im just trying to...
    Bribzi Bribzi 22-25 1 Response Mar 8

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    I am 24 years old, I have endometriosis stage 3.

    I have had it since the age of 16 and just this time last year took action and had surgery to remove parts of it, unfortunately it has come back harsher and more than ever painful spreading to my other organs. I have never thought I would face such an obstacle as this, it has...
    MrsHolly MrsHolly 22-25, F 1 Response Jul 15

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    Hi all! I had a laparoscopy done in nov.

    2012. I have ttc ever since with no luck. Periods did become lighter and with less pain, sex did not hurt as bad. But in the last few months it has started getting worse, not as bad as before the surgery though. Should I go back to the doctor or just keep trying? Does anyone...
    drd08 drd08 22-25, F 2 Responses Feb 22

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    17 And Have Endometriosis

    when i had my first period i was fine, 5 years down the road i noticed longer periods and server pain. I tried so many different birth controls and nothing worked. My doctor thought i was going insane even my family thought i was going nuts. Till finally i talked to a OB-GYN...
    clerico clerico 16-17, F 4 Responses Jan 3, 2012

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    Endo After Hysterectomy And Oopherectomy

    Hi Everyone, First, I'm heavily medicated so this might not flow very well and it might seem random. Anyway, I don't think I've posted here before, maybe once or twice, I don't really remember. My name is Katya. I have endometriosis and in a week I will be having my fourth...
    shwankey shwankey 31-35, F 9 Responses Dec 15, 2006

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    Please help! Could someone clarify

    whether my symptoms could be endometriosis? I have been ill for over a year now and though many other conditions have been ruled out by my GP, a diagnosis of endometriosis has never been suggested. It started about 18 months ago - I was already constantly tired, and had begun...
    NattieC NattieC 22-25, F Aug 25

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    Endometriosis Changed My Life

    I had been having heavy periods and cramps for years. It had been getting worse but I was able to cope until I had a sever attack. I was an Army nurse stationed at the Balad airbase in Iraq. The first day of my period the pain was so severe I couldn't walk and almost passed out...
    MadisonS MadisonS 26-30, F 3 Responses Nov 28, 2011

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    Living With And Treating Endometriosis

    One night in 1996, after a date, I arrived home with terrible shooting pains in my abdominal, pains that were so overwhelming I couldnít sit up, my date had to take me the hospital and of course my father was arrived scared to death I was pregnant. The doctor performed a vaginal...
    RotRosha RotRosha 26-30, F 12 Responses Jul 12, 2006

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    I found out I have endometriosis earlier this

    year. I've started on birth control pills, and that's brought the pain down to maybe five or six days minimum/month of almost debilitating pain. Before I was diagnosed and the birth control pills began to work, I was down and out for three weeks out of the month. It was so bad...
    Boes Boes 26-30, F Jul 21

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    Do/Have any of you experienced vertigo

    as a side effect of endometriosis?
    Jeradactyl Jeradactyl 22-25, F 1 Response Jun 19

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    Hello. My name is Channyn

    and here are 10 things that I've learned about myself since I've been diagnosed with Endometriosis that I would like to share with other Endo-sufferers. 1.) Painful periods are not normal. When I turned 19 I remember having conversations with my college friends about how I've...
    MrsHess MrsHess 18-21, F 2 Responses Apr 4

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    After years of birth control,

    ruptured cysts, painful periods, mood swings, and more recently miscarriages and infertility I was diagnosed with endometriosis. I underwent DaVinci Laproscopy to excise the endometriosis and adhesions and am now on the road to recovery!
    mrscoachd mrscoachd 26-30, F 1 Response Mar 18

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    I am 22 years old, looking back i realize i've

    probably suffered from bleeding cysts since I was in high school, but going on two years ago out of nowhere It just hit me like a brick wall, Constant pain, nausea and feeling like crap, doctors dismissed me for months, saying it was a UTI, they out me on 5 different antibiotics...
    Bethylee225 Bethylee225 22-25, F Feb 27

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    Endo Hell For So Long Now...

    I've been putting off this story because I thought I was healing. I am not. I am lost, alone and in pain. My mother, aunt and my grandmother have all suffered the same. All I can do is cry and scream, telling me to relax is like saying "It's just temporary." I feel am...
    TheRealWoman TheRealWoman 31-35, F 12 Responses Mar 3, 2009

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    Have any of you ever been pregnant

    after your diagnosis? I am pregnant now and my symptoms of endo have been really bad. I heard that it grows more quickly with the pregnancy hormones. My mom brought up that if I continue in the pregnancy it could be my only shot. Have any of you ladies been through this? I'm...
    TylersGirl18 TylersGirl18 18-21, F Apr 3

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    Endo

    I have many symptoms of endometriosis.  Pain before and during menses and ovulation.  The pain always interfered with my life too and I felt emotional by all of this.  I've missed school and work cause of it.  I couldn't go to places cause of the pain.  Many times, I have...
    Whateverrrrr Whateverrrrr 36-40, F 4 Responses Jul 5, 2011

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    Just Keep Fighting

    Today is another pain day. How I wish I could remember a day where I felt 100% ( for those of you with Endo you can relate). As the days go on its harder and harder to get out of bed. My Weekends are spent sleeping or laying around because I have no energy to do anything else and...
    HopefulChick87 HopefulChick87 26-30, F Mar 8, 2013

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    Endometriosis Nightmare

    I have endometriosis.  Febuary last year i was suffering from painful and heavy periods and painful sex.  i was refereed to the gynae unit it my home town for further investigation.  They did a Laproscopy on me to see what was wrong.  Thats when they...
    sabby17 sabby17 36-40, F 1 Response Jul 25, 2008

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    I'm tired. I never understood

    why I needed more sleep than other people. Everyone around me can function off of 4-6 hours of sleep. I need 8-9, and still manage to wake up exhausted every single day. I'm in pain so often , that I stopped paying attention to it. I slept with heating pads, and popped a million...
    cami85 cami85 26-30, F 2 Responses Mar 10

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    I found it I has endo from an acupuncturist.

    The doctors had always told me that painful periods were just part of being a woman. The acupuncturist took my pulse, checked my tongue and announced that I had endo. I went to the docs and they did a keyhole and confirmed it. They offered me some treatments, lasers of course...
    millicentmay millicentmay 31-35, F 1 Response Mar 13

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    Diagnosed 1 Year and 8 Months Ago

    I was diagnosed after a visit to the emergency room, I had such severe pain I collapsed and my abdomen had expanded.  It was the worst pain I ever felt in my life.  Even worse than the pain is the fact that I have no health insurance to cover treatment as well as I can...
    sillywikid sillywikid 22-25 1 Response Jun 28, 2008

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    My horror started at 16

    when I got my first period. They were heavy - to the point where even with a pad and tampon overnight I would ruin my sheets and PJs...I had to sleep on towels :( and they were so painful sometimes all I could do was cry. Then my periods got longer, sometimes up to ten days...
    S1ren S1ren 22-25, F 3 Responses Mar 15

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    I get severely swollen feet around/on my period.

    They swell up 3x their size. I can't find much online linking swollen feet with Endo. Anyone else?
    athewhale athewhale 18-21, F Sep 8

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    I became ill very suddenly,

    almost overnight. I had excruciating pain in both shoulders and hip joints. I was sore all inside my body and extreme stiffness. Within days, I could barely rise out of a chair, get out of bed-- even turning over at night was so painful. I began to have a low grade fever in late...
    jvalle1146 jvalle1146 66-70, F 1 Response Jul 9

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    On Monday I had my first Laparoscopy done

    and it's been 3 days now and the pain from it was so bad on the first day, but it got better as the days went on. Staying in the hospital for almost two weeks was a real serious experience it drained me emotionally, physically, and, mentally. After months of going through so...
    Sorasai Sorasai 22-25, F 2 Responses Mar 5

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    My body really hates me today.

    I try to stay positive and live my life but days like today remind me that life is a struggle. I hurt when I breathe, move, or lay down. I don't feel like my family and friends understand and they even make me feel like this is somehow my fault. I go to a pelvis pain specialist...
    kim21cheer kim21cheer 22-25, F 1 Response Mar 8

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    Well it's been over a year

    since I've been on this site and I'm starting to relive my nightmare all over again. Endometriosis. This past year I've been doing much better with the pain like it disappeared for awhile, but now I think the monster is back. It's night #3 and I can't sleep because of the pain...
    allis0ns13 allis0ns13 18-21, F Sep 4

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    Will I Ever Get My Life Back?

    Last year, after many years of pain and being passed around by doctors, I was finally diagnosed with endo. Quickly the relief of finally know what was wrong with my body was erased when it still seemed like I couldn't find any doctor willing to help me. When I found a doctor who...
    Britt25any Britt25any 22-25, F 3 Responses Jan 10, 2013

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    i am 18 years old. the doctor told me the best

    way to manage my stage 4 endometriosis was to have hysterectomy, after all the damage was so severe there is a 90+ % chance i wont be able to have children any way. my boyfriend broke up with me when he found out that i wont be able to have kids. now what?
    kitabubbs kitabubbs 18-21, F 4 Responses May 8

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    Living With Endo

    I first starting experiencing problems with heavy periods and awful pain when I was 14. After 4 years of doctors telling me I was just growing up and saying the pain I was experiencing was normal, I asked to be referred to a gynaecologist. Because I was then 18 and an adult, I...
    singinghistorian singinghistorian 22-25, F 2 Responses Jan 9, 2012

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    Life With Endo.

    Before hand: Sorry if anything is spelled wrong, just a bit drowsy. Okay, I was diagnosed with endo. about 2 years ago; 13 years old and the only one in your group of friends that had to miss school almost every day because of the pain. Well now I'm 15 going on 16 and have tried...
    thatnataleekid thatnataleekid 16-17, F 1 Response May 8, 2008

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