Post

I Have Epilepsy

Personal Stories, Advice, and Support 403 People

    March 26, Purple Day - Hey, my friends, don't forget to wear purple tomorrow. This is our day!! Here's what I posted on my wall, feel free to paste and copy it onto your...
    silentwriter180 silentwriter180 41-45, F 1 Response Mar 25, 2012

    Your Response

    Cancel
    Does anyone else freak out after a seizure? I have grand-mal seizures, and even though medication (trileptal) helps, I still have one about every six months. Every time I have a...
    ezpz2020 ezpz2020 18-21 6 Responses Feb 2

    Your Response

    Cancel
    I've had epilepsy since I was 10. When it started it was only in my sleep and we thought I was just moving around a lot but I would frequently end up on the floor. Once I was told...
    alittlemoresonic42 alittlemoresonic42 18-21, F 1 Response 3 days ago

    Your Response

    Cancel
    The weirdest place I've had a seizure was at a San Jose Sharks Game, and I still stayed for the rest of the game.
    zombiehunter120695 zombiehunter120695 18-21, M Feb 1

    Your Response

    Cancel
    I'm 23. I had my first seizure when I was about 12. But since then I've just had other two seizures ...till last Saturday, when I had my forth seizure (even though I've been taking...
    giuls318 giuls318 22-25, F 1 Response Feb 22

    Your Response

    Cancel
    I'm Ryan, and I have epilepsy. On September of 2005 I had my first seizure and it was a big one ( grand maul seizure ). Early that night around 4:00 am I had a grand maul seizure...
    ryanthelion101 ryanthelion101 18-21, M 1 Response Mar 31

    Your Response

    Cancel
    Epilepsy and Me -   I started having fits  when I was 11 years old. I was having  grand mal seizures about once every three months. I would just fall and shake...
    Supertardisbabe Supertardisbabe 31-35, F 3 Responses Mar 29, 2008

    Your Response

    Cancel
    I was diagnosed with epilepsy when I was fifteen. Almost 3yrs ago. All of them are gm seizures. I take 2 medications to support it. I don't love it, but I have to live with it. I...
    SurpriseMeToday SurpriseMeToday 18-21, F 2 Responses Mar 17

    Your Response

    Cancel
    I'm 27 years old n have had my seizures since I was 5 years old. I have complex partial epilepsy. I feel like I'm alone with them even thou I have a wonderful support system. But I...
    dewife2005 dewife2005 26-30, F 4 Responses Mar 18

    Your Response

    Cancel
    How My Life As An Epileptic Began.. - I'm fifteen years old almost 16. I was diagnosed with epilepsy in april of 2012. I was out with my sister at walmarts redbox and had my first...
    sweetgirl15 sweetgirl15 16-17, F Oct 24, 2013

    Your Response

    Cancel
    November Is National Epilepsy Awareness Month!! -
    silentwriter180 silentwriter180 41-45, F Nov 1, 2012

    Your Response

    Cancel
    What's the Secret to Living Alone With Seizures? - I began having seizures 3 years ago, at age 39. I have not successfully lived alone since.  I have tried, but I ...
    donnny1 donnny1 36-40 14 Responses Apr 13, 2009

    Your Response

    Cancel
    I've had it since I was 8. Its familial. Typically its been VERY easy to control with medicine. I had a string of seizures a few months ago but its whatever. I've always thought of...
    ChloeCat19 ChloeCat19 18-21, F 1 Response 1 day ago

    Your Response

    Cancel
    It's a constant, every day struggle for me. Though I don't feel too embarrassed about it, I still have a hard time explain what goes on when I have one. I have Myoclonic seizures...
    GiggleBee GiggleBee 22-25, F 2 Responses Mar 2

    Your Response

    Cancel
    I Have Epilepsy/and New to This Group - Hi everyone,My names Jessica I'm 18 years old and have had epilepsy since I was 14.My first seizure I ever had was a gran-mal in my school's...
    jesstuckintime jesstuckintime 18-21 5 Responses Dec 28, 2008

    Your Response

    Cancel
    I wish I wasn't treated like a child. I'm 19. I have had epilepsy since I was 10. My mother still treats me like a child just b/c I have epilepsy. It's an argument every time just...
    Alisaperne6446 Alisaperne6446 18-21, F 3 Responses Jan 16

    Your Response

    Cancel
    When I lived up north we had a big house so one time I was getting ready to take a shower and all. Of a sudden I felt weired. Like something was watching me so I kinds tryed to...
    Moonspear Moonspear 18-21, F 1 Response Feb 9

    Your Response

    Cancel
    Born An Epileptic. - I have my first seizure when i was 3 months old and I basically grew up with it. it started when I had febrile seizures and it left some scarring or damage to...
    deleted deleted 26-30 6 Responses Jun 28, 2011

    Your Response

    Cancel
    My friend called me because she was depressed and suicidal- I had a seizure while on the phone with her- that didn't help her at all, what horrible timing.
    itskismet itskismet 41-45, F 2 Responses Mar 25

    Your Response

    Cancel
    I've had it all my life. It started with just me getting dizzy and having to sit down or else fall down. Then, it went to me blacking out for short bursts. And then, it went to me...
    bard66 bard66 18-21, F 3 Responses Jan 5

    Your Response

    Cancel
    Don't make any mental illness you have out you down adapt to it and change your lifestyle that way any illness will be far easier to live with OOHHH YEEEAAAHHH!!!
    JonnyBurrows10 JonnyBurrows10 18-21, M 4 Responses Mar 18

    Your Response

    Cancel
    This is exactly what happens to me and gets mis-labelled as 'anxiety' or whatever. http://www.bcepilepsy.com/files/Information_Sheets/All_About_Partial_Seizures.pdf All About...
    Buckley4U Buckley4U 36-40, F 1 Response Apr 7

    Your Response

    Cancel
    I'm very unfortunate to have epilepsy I wasn't born with it just came in my late teen age years. I did play a lot of video games and then I through away my ps3 because of it and...
    JonnyBurrows10 JonnyBurrows10 18-21, M 2 Responses Dec 2, 2013

    Your Response

    Cancel
    My epilepsy experience began when I was 18. My life hasn't been the same since. I lost my driving license, my confidence, and for a while my freedom. This October will be 4 years...
    AmyTurtle92 AmyTurtle92 18-21, F 2 Responses Jan 5

    Your Response

    Cancel
    Misguided deliverance attempts. When the doctors refused to help me, I allowed other people to try - with disastrous results. In some cases I didn't actually allow it, but rather...
    Buckley4U Buckley4U 36-40, F 3 Responses Apr 7

    Your Response

    Cancel
    i have got epilepsy and controls my life
    gcqldozz gcqldozz 41-45, M Feb 15

    Your Response

    Cancel
    College. - Growing up, I heard stories about college. I'm sure you've heard the same, or at least similar. Stories of how enriching an experience college can be for a person...
    Shiaten Shiaten 18-21, M 3 Responses Aug 29, 2010

    Your Response

    Cancel
    I'm surprised how my younger cousins handle the fact I have this. It doesn't seems to bother them like it does most adults. Those kids are my rock.
    InfoSyker InfoSyker 31-35, F 3 Responses Feb 10

    Your Response

    Cancel
    When I was in 5th grade, I was diagnosed with epilepsy. It was during spring break on Easter and on my friends birthday. I was at the beach house and all was great. I woke up one...
    zombiehunter120695 zombiehunter120695 18-21, M Jan 25

    Your Response

    Cancel
    Today I got fed up and thought of over-dosing in chocoate so I can have the ultimate siezure that would put me in a coma. Strange thing is I'm not even a suicidal person :/
    InfoSyker InfoSyker 31-35, F 1 Response Feb 10

    Your Response

    Cancel
    Its How You Look At It... - I was diagnosed with Epilepsy when I was 4y/o, 25 years, a quarter of a century my life has been effected by a disease, disorder invisible to the...
    crazedfilth crazedfilth 26-30, F 1 Response Nov 6, 2011

    Your Response

    Cancel
    I know this is very controversial, but I want to share a few things about exorcism / deliverance ministry with regard to epilepsy / seizure disorders. As a Christian I do...
    Buckley4U Buckley4U 36-40, F Apr 7

    Your Response

    Cancel
    Amazing And Emotional Youtube Video!!!! - Hey here's a youtube link that I found 7 months ago. It's for all those who struggle w/ epilepsy. I OWN NOTHING! It's amazing and...
    Alisaperne6446 Alisaperne6446 18-21, F Aug 3, 2013

    Your Response

    Cancel
    I Don't Let Grand Mal Seizures Change My Life. - I had petit mal seizures for about 3 years when I was 4 but they randomly went away when I got sick and couldn't take my medicine...
    HesMyArmyHero HesMyArmyHero 22-25, F 6 Responses Mar 9, 2009

    Your Response

    Cancel
    Hello I'm Red. I have Tonic Clonic and Absent seizures. It is scary to have seizures and it hurts. I shake and shake and groan and my eyes turn completely white. I try to close my...
    RedtheEmerald RedtheEmerald 13-15, F 3 Responses Apr 5

    Your Response

    Cancel
    As a Child -  I  havent had a seizure in yrs ... But i remember how much it controlled my life . I had to take medicine everyday twice a day , i couldnt go through...
    starstruck2xtrme starstruck2xtrme 26-30, F 1 Response Jan 9, 2008

    Your Response

    Cancel
    I really hate taking my medicine it me makes feel depressed, irritated, tired, (and ironically I almost forgot this one as I was writing this) it makes me forgetful. I hate being...
    Alisaperne6446 Alisaperne6446 18-21, F 2 Responses Mar 20

    Your Response

    Cancel
    What Epilepsy Has Done For Me. - Since a child, I have suffered in ways nearly unheard of. I have forgotten how to walk, sit, even breathe. It is like looking down a black hole and...
    amethystascension amethystascension 22-25, F 4 Responses Feb 15, 2011

    Your Response

    Cancel
    Epilepsy & Me - My name is Tracy and I'm a 29 year old mother of 2 from Melbourne, Australia. I had my first seizure at 25 while at work. I awoke alone, nauseous and all post...
    RiffRaffMama RiffRaffMama 26-30 1 Response Jan 11, 2009

    Your Response

    Cancel
    Epilepsy Gone Wild - When I was in the 3rd grade I was diagnosed with partial seizures. Several years passed and once 2008 hit I was diagnosed with generalized seizures as well. In...
    tig1991 tig1991 22-25, F 1 Response Dec 31, 2012

    Your Response

    Cancel
    Every year at this time, I reach out to my friends and family in hopes that support will show for not only myself, but for others who face the challenges of Epilepsy. This is an...
    silentwriter180 silentwriter180 41-45, F 1 Response Mar 22

    Your Response

    Cancel
    Hi guys I was at school today and I am writing a speech for my English class its about Epilepsy. I wanted to talk about what I been threw to the class. The teacher made me change...
    Moonspear Moonspear 18-21, F 2 Responses Feb 10

    Your Response

    Cancel
    Doctor Visit 10.31.12 - Went for my annual doctor visit to see my neurologist today. Was a better visit than I had expected. The last couple of visits were difficult to swallow as...
    silentwriter180 silentwriter180 41-45, F 2 Responses Oct 31, 2012

    Your Response

    Cancel
    hi i'm ali and i have epilepsy i don't have it as bad as others do but sometimes it gets in the way like i threw my pencil by accident up onto the school ceiling cause i flap my...
    Moonspear Moonspear 18-21, F 2 Responses Feb 8

    Your Response

    Cancel
    On the 4th of April in 2014 I was on my way to my brother's house from my grandma Ann's. I had just stepped onto her back porch when I collapsed and went into a grand mal (Clonic...
    tig1991 tig1991 22-25, F 4 Responses Apr 7

    Your Response

    Cancel
    Warning: This is pretty long! I had my first proper seizure on the 26th March 2007 and I was diagnosed with Juvenile Myoclonic epilepsy. Literally the biggest shock of my life and...
    twiggy93 twiggy93 18-21, F 4 Responses Feb 12

    Your Response

    Cancel
    Leaving Reality - I developed epilepsy from a head injury I got caught underneath a young horse that I was looking to buy and train. The horse panicked after so...
    FastLaneC3 FastLaneC3 18-21, F 5 Responses Mar 21, 2009

    Your Response

    Cancel
    THIS IS LONG. I'm going to make a youtube video about Epilepsy with a bunch of facts and such so I thought I'd write my experience down to get my thoughts in order. (If anyone...
    boklenHolley7 boklenHolley7 16-17, F 1 Response Mar 14

    Your Response

    Cancel
    I'm Not Fragile - Most people think this when I tell them about my Epilepsy. I will not break if you touch me. I will not have a seizure if you touch me or talk to me. They can be...
    ZappedToTheUnicorn ZappedToTheUnicorn 22-25, F 4 Responses Sep 28, 2012

    Your Response

    Cancel
    There was this one time I was going down stairs in my old apartment and in the living room there was this really really big cockroach. This thing freaked me out I was in so much...
    Moonspear Moonspear 18-21, F Feb 10

    Your Response

    Cancel
    The Pain of Having Epilepsy - I am so thankful for experience project so no one can see my tears while I tell my story. I experienced my first seizure when I was about 7...
    freebird79 freebird79 26-30, F 9 Responses Mar 25, 2009