I Have Erythema Multiforme

A Erythema Multiforme anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Erythema Multiforme. You're not alone. 61 People

    Hi, I've had this mysterious disease

    for 36 years. I was diagnosed EM less than 4 years ago, until then I thought it was hives from allergies, anxiety, too much caffeine, or at one point, I was sure it was from a stagnant pond in which I had been swimming. Right now I am down with a bad bout, feeling low, and...
    targetman targetman
    61-65, M
    2 Responses Jun 19, 2014

    It'S NOT HSV!!!

    I am in the middle of my third outbreak of this terrible disease. My first outbreak was about five years ago. I suffered for over a year with sores all over my hands arms feet legs and mouth. I was back and forth to the doctors, put on several antibiotics and skin creams. Finally...
    VashtiC VashtiC
    31-35, F
    3 Responses Apr 2, 2013

    Have Suffered With EM For 20 Years

    I suffered my 1st major outbreak back in 1993 when I was 17. I wasn't diagnosed with EM at the time. I was sent to a infectious disease hospital where the doctors pretty much told my Mum I had a bad case of Herpes Simplex Virus. I had one or two cold sores growing up, but they...
    kathyd76 kathyd76
    1 Response Feb 24, 2013

    Well, it's taken me a long time

    for me to really express how I'm feeling, but I feel now is the time to share my story. As of now, I'm 15 years old, and have been suffering from erythema multiforme since as long as I can remember. My earliest memory I have of an outbreak is when I was on vacation. All I could...
    Rachel0298 Rachel0298
    18-21, F
    Feb 19, 2014

    I Was 15. It's Been 2 Years!!! Yay!

    I first got diagnosed when I was 15. It only took about ten minutes for the rash to start on my scalp and make it all the way down my legs. At first my mom took me to a Walgreens 24 hour clinic because my doctor wasnt open since it was sunday. My eyes were almost swollen shut. It...
    Cmunny Cmunny
    18-21, F
    1 Response Jun 4, 2012

    I was diagnosed with EM in March 2014

    since then I have had it monthly so 5 times already!! I have it now!! It's so annoying I get all blisters in my mouth and still have scars all over from the previous outbreaks! I have just got an appointment to see a dermatologist hopefully they can sort it!! Wouldn't wish this...
    Jemhk22 Jemhk22
    22-25, F
    2 Responses Sep 6, 2014

    anyone have EM from an unknown source?

    I see a lot of posts about EM associated with HSV, however I don't have HSV. I've had a single bout of EM for about 3 months now and I am so itchy that I'm causing bruising and burst blood vessels. Does anyone know how to relieve this?
    Jmk821 Jmk821
    26-30, M
    3 Responses May 28, 2015

    I've Had This Condition Since The Age Of 16..am Now 45

    I have suffered with cold sores on my lips since I about 5 years old.  At the age of 16, I got this terrible rash that at first glance from one dermatologist he supposed it to be caused from scabies.  He prescribed a lotion and I went home...knowing that it would work...
    bikegrl06 bikegrl06
    4 Responses Jul 27, 2010

    Is there anyone out there

    who has EMM and gets it vaginally, orally and maybe even in their eye a little (I have kerastitis now, which can also be a symptom). I'd love to hear from others? Also do people think that diet, hormones, and stress are contributing factors? My sores tested negative twice for...
    alycat926 alycat926
    41-45, F
    4 Responses May 1, 2015

    My Em

       Hi I am 21 years old and was diagnosed with EM officially only about a month ago however i was sure what it was about 1.5 years before the doctors. I had been to at least 6 doctors including 2 dermatologists and not one of them knew what was happening. They continued to...
    180bysummer 180bysummer
    3 Responses May 15, 2011

    I am new to this so bear with me.

    I had my first run in with EM on January 5th 2015. I had a outbreak across my belt line on my back. It then shot up my spine. These were like pimples, but wouldn't pop. just itched like crazy. this continued for a 5 days, well on the 6th day I broke out with the Rash head to Toe...
    wyoavsfan wyoavsfan
    41-45, M
    2 Responses May 11, 2015

    Living With EM For The Past 6 Years

    I was diagnosed officialy when I was 16 when I had a major case of EM, it was on my hands, elbows, feet, knees, on my lip's and tounge and down the back of my throat. At first they looked like a little red spots but a few days later they turned into the big bull-eye looking...
    ToriaNight ToriaNight
    1 Response Feb 10, 2013

    Em Suffering Is Rubbish

    I have em. Iam 24 and have suffered it twice, once aged 12 and once about 2 yr ago, dreading it ever coming back. Had it on hands last time, burnt like mad and made me pretty useless for a while. Come on naa I know there is more than me had it
    gizmominx gizmominx
    22-25, F
    4 Responses Jan 21, 2010

    I was diagnosed with EM about four months ago.

    I was wondering if anyone had any experience with Dapsone and if so what were your results?
    Rljohnson Rljohnson
    31-35, F
    1 Response Apr 9, 2014

    Too Old For Erythema Multiform

    I had my first episode of Erythema Multiforme 12 years ago when I was 44. I was hospitalised as no-one knew what was wrong with me at that stage. I have had annual reccurances until this year, I am on my fourth bout this year and really wish I knew what to do to stop it. My...
    kalkiwi kalkiwi
    1 Response Oct 23, 2013

    Living With Em

    I was first diagnosed when I was 18 and now im in my mid 30's. Ive had somegood years of being symptom free and some years when it seemed it would never go away. Hope to get back to those good years ..
    Em615 Em615
    36-40, M
    1 Response Jul 16, 2012

    Em From The Flu Shot

    I was diagnosed with EM about 8 years ago. It is kept under control now by taking 500 mg of Valtrax daily. One year ago I had a breakout which wasn't controlled by Valtrax and I needed to be put on a low dose of prednisone. It went away and I have been fine since last Friday...
    Evajet Evajet
    2 Responses Dec 11, 2012

    I Have Em

    I'm 20 years old. I contracted hsv 2 when I 16 years old. I started getting a tiny, itchy lesion on my right shoulder blade when I was 17. The dr said it was fungi and gave me some prescription lamisil. I never really had any hsv 2 breakouts(besides the when I found out I had it...
    gingieann gingieann
    18-21, F
    4 Responses Oct 18, 2010

    It all started two years ago.

    I was 21. I had viral pneumonia and it went on for too long (probably bc I never took a day off to really recoup). It started in my mouth near the inside of my upper lip. It was a vesicle and my lips were inflammed. I went to the ER and got the star treatment bc it seemed like...
    cpnhook21 cpnhook21
    26-30, M
    1 Response Nov 10, 2014

    Tryinging To "live " With Erythema Multiforme

    First of all you are not alone. When you were describing yours symptoms they sounded a lot like mine. I was diagnosed my a dermatologist actually about a year ago, but had it 2 years before the diagnosis. I just thought it was ringworm that was was hard to get rid of. I have it...
    cutekat214 cutekat214
    5 Responses Nov 4, 2010

    EM /Sjs

    I remember my first fight with EM I had just gotten over a cold sore and began my working out again I played basketball with a little scab still visible....that night I showered and cleaned myself with a towel the next morning a Saturday I works up to go get a haircut and I felt...
    Manuel361 Manuel361
    31-35, M
    1 Response Jun 3, 2013

    I have had erythema multiforme

    since I.was 5 I'm 21 now and am 37 week a pregnant has anyone else had a baby while being sick and during delivery did your body freak out and cause you to break out really bad? I've started breaking out and am afraid that it's going to be a bad one
    haley93 haley93
    22-25, F
    1 Response Mar 6, 2015

    My Story

    Hi I have had erythema multiforme for about 8 years now, it has been an awful time with awful pain included, I have joined this group to be part of a community who understand. I also run a group for erythema multiforme on facebook to to help build up a community, where people are...
    tiggermclean tiggermclean
    2 Responses Feb 18, 2011

    I have had Erythema Multiforme

    for a little over 14 years now. I got my first outbreak right after I had my oldest daughter. It was all over my face and hands, and I had no idea what it was or if it was contagious! I was terrified to kiss my baby for fear of passing it on to her! But once biopsied, I learned...
    Sharonimo Sharonimo
    36-40, F
    2 Responses Oct 9, 2014

    Have Had Em For Eight Years Now :(

    Hey everyone, if you or a family member suffers from EM you should go onto facebook and join the group Erythema Multiforme support group for sufferers and their families. I am an administrator and we always welcome new members. It's so helpful learning from one another so that we...
    shub86 shub86
    1 Response May 26, 2011

    I Have EM I Got It When I Was 14 Years Old Now I'M 43

    I didn't know for years what it was i went to the dr on another break out, and it was all over the palms of my hands as soon as he saw it there he knew, i thought at last i can get rid of it but thats not the case. It comes and goes as it please,but i have been blessed for the...
    lfaye lfaye
    1 Response Jun 20, 2013

    I have never been diagnosed with EM.

    After extensive research, I have determined that is what is happening to me. I would appreciate any help I could get. I'm miserable and it's so embarrassing. The itching is almost unbearable. Help please!!!
    Candice1979 Candice1979
    36-40, F
    1 Response Oct 24, 2015

    Em With No Cold Sores Ever...

    em with no cold sores ever... I have had a recurring case of em for about a year. I am taking valtex and use a special creme...can't recall the name right now. Strangely taking a couple multivitamins a day seemed to help for awhile...about 2 weeks. It was constant for months no...
    saraliesen saraliesen
    6 Responses Aug 13, 2012

    I May Have Finally Solved My Recurring Em Problem.

     Summary:To completely prevent recurring Erythema Multiforme, apply a high SPF lip balm (Blistex 5-star protection or similar) anytime you have sun exposure.  Apply even if you are only going to be in the sun for 30 seconds. During an EM outbreak, use Petroleum Jelly on...
    nycmatt1980 nycmatt1980
    4 Responses May 8, 2011

    hi i have had emm since sept 14.

    i don't know c where it started from or how it started at al i had blisters all over my back front face and the itchy. they put me on steroids and antihistamine. i was down to 7 mls os steroids when it has just flared up again. in going to see a na naturopath...
    bisselle bisselle
    51-55, F
    Apr 15, 2016

    Erythema Multiforme

    Hi i've been suffering from this illness since i was 16....i am now about to be 21 in two months....sometimes it makes me really really frustrated to the point where i want to cry. kinda sad for a grown man but this is exactly how i feel and it's even worse when ppl just...
    Luc1ano Luc1ano
    18-21, M
    3 Responses Mar 23, 2012

    Em Major

    i have em major and been dealing with this for 2in a half years i filed for disabiluty because i cant work like this thy come every two months  i have been on acyclovir did not help i have been on steroids did not help the lesions are so painful when they come i can barely...
    azabien25 azabien25
    26-30, F
    3 Responses Jul 19, 2010
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