I Have Erythromelalgia

I have been diagnosed with erythromelalgia and Renaud's disease....these are in my right foot..my foot burns/tingles across my toes, the top of my foot and the pad of my foot..my ankle is very weak..i can not stand or walk for long...

Hi Everyone,

I wanted to tell you about a research study being conducted for Erythromelalgia patients.  You can find more information here:  www.rarediseasestudy.org

I have had mild swelling and redness in my hands and sometimes feet when I got overheated, worked with my hands or walked a lot or ate to much salt for as long as I can remember. I did't realize this was unusual, I thought it had...

Hi I have a son that was born with Raynard's & Erythromalalgia, we used to live in England and my son was in constant pain and was a prisoner in his home for the first 6 years of his life. He used to scream in pain from 3 to 5 hours a...

I have never posted on the internet before but I feel that there is so little info on Erythromelalgia (EM) that I needed to do so. I am female and 57 years old. I was a very active person before EM - hiking whenever possible. In Aug...

Hello, My name is AMy and I discovered last year that my problem was erythromelalgia.  I want to share with everyone what works for me because, it might help others to deal with it. History:  I moved to CT 12 years ago from...

hi
i have erythromelalgia, recently been diagnosed.
i suffer especially from my hands (palms), especially in warmed places (with hitting), at evenig and while excercising or getting stressed / angry. my hands are red and swolen, itchy...

dose anyone take a pill that works for the pain and won't make you crazy like lyrica?

Hello,
My name is Joanne and I am new to EM.   Even though it has been months and not years that I have been having symptoms I honestly don't know how to cope with it.  It is life altering beyound my wildest nightmares...

I have had symptoms from erythromelalgia (EM) for about 15 years now. It got really bad about 5 years ago and now I am on disability. I was diagnosed at the Mayo Clinic. Like many others, I had figured it out for myself, thanks to the...

Starting about 2 months ago, I got slight tingled and burning in my feet, that turned into burning in my hands. I went through a period where I was constantly icing my hands and feet. I learned the hard way that this was not a good...

My first flare ups started when i was young, i couldnt stand up long enough for my mom to do my hair. My fet would turn red or even black. We called it "bad circulation" doctors literally laughed it off as nothing. It didnt really burn...

For many years my feet have turned red and became swollen in the summertime. I paid little attention to it. Several years ago my hands began turning very red during the summer and when I went from a cold environment to a warm...

Hello, I am a young mother of 2 wonderful kids. I was working last year and going to school 4 days a week and doing clinicals and theory for nursing. I would take the kids swimming on the weekends to the public pool. One day I was...

I am almost 21 and I've had Erythromelilgia my whole life! I mainly get flare-ups but I also get pain kind of like arthritis. Something I have learned about my type is mainly certain foods such as #1 red meat it really makes me flare-up...

Hi, I hoping this may sound familiar to someone so we can start to get some answers for my baby. she is 6 months old and for 3 months has been getting episodes where her legs/feet (sometimes hands/arms) go bright red and purple and are...

I have been suffering from this for two years. My doctor told me it was in my head and I was starting to believe him. I was really starting to feel like I was crazy! I suspect my friends and family were thinking the same thing. I...

I have had erythromelalgia since August 2008 but didn't know that was what it was until a few months ago.   I have been to 7 doctors and the last one knew what it was.  I have been on so many different medicines. ...

I started out with tingling in the toes, back in 2007. I now have burning  in both my feet. Been to several Dr.'s, and just last yr. 2011, the Dr. told me I had Erythromelalgia.  Been on different medicines for it and nothing works. I...