A Escobar Syndrome, Type B anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Escobar Syndrome, Type B. You're not alone.
I am in search of people with Escobar/Multiple Pterygium Syndrome. We have only met one other family who also have a daughter who is
13 years old. Our daughter is 14 years old, 50 lbs and 3' 10. She was diagnosed at birth. Has had many...