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I Have Exercise Induced Anaphylaxis

A Exercise Induced Anaphylaxis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Exercise Induced Anaphylaxis. You're not alone. 66 People

    I have just been diagnosed with EIA

    after cycling John O Groats 2 Lands End in 9 days. (Over 100 miles each day) On day 2 my ankles were very sore so I started taking NSAIDs. Day 4 i had diarrhoea and nausea so took imodium. Day 5 I felt really ill and was feeling drowsy on the bike. I took pepto-bismol to settle...
    sarahEIA sarahEIA 41-45, F Aug 6, 2014

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    Crossed the finish line of a marathon last week

    and within 10 mins I was in an ambulance. Hives, throat closed up, tongue swollen, eyes and hands swollen...I was surprised to say the least. It was the first time I've had an anaphylactic reaction this severe. I've had swollen hands and tingling in the mouth, face and scalp...
    MPLS1973 MPLS1973 41-45, F 1 Response Jun 28, 2014

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    Allergists Are Completely Useless And I Don't Know Where To Go For Help

    I had my first anaphylactic shock when i was 16 while on long walk. i'm now in my mid 20's and have had 4 full-on occurrences of anaphylaxis (all while on long walks). I'm also sensitive to certain foods. I abstain from corn, rice, wheat, soy, oats, walnuts, pecans and almonds...
    screwd4life screwd4life 26-30 1 Response Sep 12, 2012

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    I was diagnosed 3 years ago with EIA.

    I'm a very active mom of 3 boys and as a family love running races or doing crazy challenges together and my runs on the treadmill at night after they went to bed was my "me" time to help me unwind. For two and a half years I was able to continue my lifestyle while taking Zertec...
    LittleEIA LittleEIA 31-35, F 2 Responses Aug 8, 2014

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    I Was First Diagnosed When I Was 27....

        For a person who has been active all her life with sports, running, biking, swimming, etc., it was difficult to come to terms with having a condition where I could have a severe allergic reaction just by doing things I love.  And having it...
    fraser310 fraser310 26-30 6 Responses Dec 18, 2009

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    Life Altering Illness... Needs Some Advice

    I was 15 when I was diagnosed. I was a 4 sport a year athlete and one of the most active people you could have ever met. I had to quit all but one sport, walk in every gym class and alter my lifestyle. Now as an adult at my job as a nurse, I have to constantly consider what could...
    acarr002 acarr002 22-25 2 Responses Oct 4, 2012

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    Anybody Else Out There With This?

    I had my first major anaphylaxis attack 9 years ago at a Gold Gym while running. My 5 years old son (at the time) witness my right side of the face swelling and turning blue.. as I laid on the floor by the childcare entrance of the Gym. My poor son ...
    dryheat4u dryheat4u 41-45, F 11 Responses Oct 23, 2009

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    Training For Ironman Triathlon With Exercise Induced Anaphylaxis

    Near the end of 2011 after being active all my life of 41 yrs in various forms of exercise (and exercising after many meals), I decided to sign up for an Ironman triathlon. In Feb 2012 a couple months into regular training efforts, I had an Exercise Induced Anaphylaxis episode...
    rlpjacket rlpjacket 41-45, M 6 Responses Jul 14, 2012

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    Managing Eia In The Military

    I have been in the military for approximately three years, and was diagnosed with excersise induced anaphylaxis (EIA) in 2010 durring a two mile run. I believe I've had the condition for much longer because I'd often break out in hives after running in high school, but never got...
    sryannp sryannp 22-25, F 2 Responses Jun 12, 2012

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    Help Me?

    Hello everyone. I need to tell this and see what is wrong with me. My family can't afford to pay my insurance yet so I can't go to a doctor. So I'm not sure what I have. From researching, I think I have Choligeneric Urticaria or Exercise Induced Anaphylaxis. Okay, I am a normal...
    danidani19 danidani19 16-17 4 Responses Dec 27, 2010

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    Share Your Story...

    Hi everyone! My name is Kristina and I'm a features writer for women's magazines in the UK, as well as the granddaughter of a long time exercise induced anaphylaxis sufferer. I'd really like to raise a a bit of awareness of the condition and hopefully provide support for other...
    KristinaCN KristinaCN 22-25, F Jul 19, 2012

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    2 days in a row of getting EIA symptoms.

    2/11/15 I did 90 second sprint on the airdyne and did a 500m row at a 2:10 pace. I had trouble running a mile on the treadmill afterward, but was bale to run it in under 10 minutes. 2/12/15 I had a heavy barbell squat session and did great for all my heavy 2 rep sets...
    mentalfitness mentalfitness 31-35, M Feb 12

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    Trying To Cope With EIA.

    I am a 29 year old female who loves the outdoors and being active. I was fortunate enough to receive a running scholarship for college. During my college running career, I experienced episodes of exercise induced anaphylaxis not knowing what they were. I would have difficulty...
    rachelsheaharper rachelsheaharper 26-30, F 2 Responses Oct 19, 2013

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    I was diagnosed in April

    if 2013 during a run. I had never shown any signs of have this condition before that. But I haven't let it stop me. Even though some people still call me stupid for it, I am a runner still. I have a very severe case of EIA but I choose to still live an active life style. As long...
    cgolden282 cgolden282 18-21, F Feb 5, 2014

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    I Need Advice!

    I have had EIA ever since I was about 6 and I am now 16 and it has shown no signs of disappearing. I used to play sports when I was little but eventually it became too hard for me to breathe and the other kids would ask why I had red bumps all over my arms and chest. Running is...
    RachelAnnC RachelAnnC 16-17, F 2 Responses Aug 8, 2013

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    Exercize Induced Anaphylaxis. So Many Questions, So Few Answers

    Hi everyone! i am a 42 y.o. female who, a few years ago, out of the blue, started breaking out in welts/hives when i was at the gym on the treadmill. I took benedryl and waited for it to pass. After that initial outbreak, i would get sporadic outbreaks, every time it was at...
    jennydawn69 jennydawn69 41-45, F 1 Response Jul 13, 2012

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    I suffer from Exercise-Induced Anaphylaxis.

    I began having symptoms of hot/cold/cholinergic urticaria about 4 1/2 years ago when I got pregnant with my daughter. I also have grave's disease (thyroid disease). In the past 2 months it's gone from that to constantly having migraines, getting nauseous anytime I go up my...
    amandaladue2816 amandaladue2816 22-25, F 1 Response Dec 26, 2013

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    EIA Experiences

    I have experienced severe anaphylactic shock twice in the past year. Both times whilst at basketball training, and exercising quite vigorously; however, I had trained vigorously weekly for three years prior. I have no food allergies, and the reactions occurred randomly. Since...
    stevenguy stevenguy 18-21 1 Response Jun 13, 2013

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    Just Diagnosed Today

    Although I've been having symptoms for about two years.  I have not had a reaction with fainting or angiodema, but have had hives, feeling faint, a sense of doom and vomiting.  I had a skin test which was inconclusive, but I suspect my trigger food is dairy.  I'm...
    jmurgs jmurgs 26-30, F Mar 15, 2010

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    Been ballroom dancing

    for 13 years. About 3-4 years ago, starting experiencing weird symptoms after a particularly strenuous dance workout. Eyes would get watery, itchy and start to swell. I didn't think to count episodes but symptoms have been progressively worse with an episode this week that...
    shb1964 shb1964 46-50, F Jun 27, 2014

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    My Doctor's Advice Regarding Eia...

    First of all, this board is great...there seems to be limited information about EIA on the internet so, it's really helpful to hear how other people are dealing with this... I was diagnosed with EIA last year after I had two severe reactions. Once while walking home after dinner...
    bwarr bwarr 31-35, M 3 Responses Jun 26, 2012

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    Exercise Induced (among Other Triggers) Anaphylaxis

    not only do i deal w/ anaphylaxis triggers daily, but its always worse after my zumba class that i go to (wednesdays) but i have to deal with my heat breakthrough seizures that i get from overheating. may have figured out a way to keep both under control (thank god!!!!) keep cool...
    catgroomer5 catgroomer5 22-25, F 1 Response May 24, 2012

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    Medical Help

    What kind of medical doctor is able to diagnose and effectively treat exercise induced anaphylaxis? For years I've had symptoms but never been diagnosed. I can't say I've experience the face swelling or throat tightness. Mine starts with itchy legs and feet that spreads...
    tassiduous tassiduous 36-40, F 2 Responses Sep 29, 2013

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    New Diagnosis

    I have sesame seed allergy. Recently diagnosed with excercise induced anaphylaxis following ingestion of  wheat products. I guess I am not alone in this.
    diveguy diveguy 46-50, M 3 Responses Dec 5, 2009

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    Exercise Addict With EIA

    Mine occurs randomly, and only on outdoor runs that are around 5-8 miles in length. I was told it could be food induced (I have no known allergies and have taken an allergy test), but ran on an 5 hr empty stomach the last time it occurred... episodes increase in intensity each...
    ldgresham ldgresham 26-30, F Mar 24, 2013

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    Hi everyone. It's comforting to hear others

    dealing with this diagnosis. I was diagnosed a year ago. I was an avid runner, ran a half marathon two years prior, and was training for the broad street run (10 miles) when I had my first episode. To be honest, I haven't done any running or much exercise since. This...
    Mariannac Mariannac 26-30 1 Response Mar 30

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    I used to be a heavy weight lifting

    and walking maniac... I would do 5 miles a day and run half of it. Having asthma was difficult but I could work through it some. I can't find a way around this yet though. I also have exercise induced urticaria so I get hives with the shock. Started a strict diet "Whole 30...
    Silc Silc 26-30, F 1 day ago

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    Looking For Specialists

    I have seen allergists who didn't know much about this and doctors who love to ask questions and have their interns write about me but no one seems to have too much experience treating this. Does anyone know where to find specialists in this condition? I have reactions when i...
    sarahpinehill sarahpinehill 31-35 6 Responses Apr 3, 2013

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    I Also Have EIA

    I started noticing the burning in itching when I got to college (i'm 29 now). I was walking a long distance to one of my classes and I noticed the itching and burning in my legs. It was so intense that I didn't even notice the other symptoms. I remember having to stop and sit...
    sdchick21 sdchick21 31-35 Jun 27, 2013

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    Looking For A Solution To EIA

    For the past six years I have been coping with EIA. I first experienced symptoms relating to EIA when I was 20 years old. I was on an elliptical machine, and suddenly my palms started feeling itchy. Then I noticed that my eyes and face were itching, as well as my feet. It was...
    ahansen4 ahansen4 26-30 1 Response Aug 12, 2013

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    New To EIA

    I have had food allergies to seeds and tree nuts since I was in college. This past spring, I had to go to the emergency room after running. I had extreme symptoms and almost died even after being put on an IV of benadryl, epinephrine and steroids. I didn't believe that I could...
    2 Responses Feb 4, 2013

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    Eia- To Take Something Or Not-- That Is The Question

    Hello, I posted the previous story about EIA. I am trying to figure something out so I can still exercise. I went to the gym last week and did the stair mill for 20 minutes instead of jogging. I did not ingest anything for 6 hours prior (and I was SUPER hungry). About 5...
    sea114 sea114 26-30, F 1 Response Mar 20, 2013

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    Late Diagnosis...

    I was walking with a couple of friends in an area full of other walkers. I started to get hives, this was a common experience so I ignored them. the next thing I noticed was the hives turning into huge welts on my arms, legs, stomach and chest. I thought nothing of it...
    cocchanel cocchanel 51-55, F 2 Responses Jan 11, 2010

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    Does Anyone Have Advice On Managing Exercise Induced Anaphylaxis?

    I have been a runner for nearly 10 years. I have trained and completed full marathons and half marathons. Last week, I was doing a 6 mile run, which is not a difficult distance, and I went into anaphylactic shock. My lip started feeling numb around mile 5 and I suspected it...
    valerie1000 valerie1000 22-25 6 Responses Mar 1, 2012

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    Newly Diagnosed And Still Scared To Eat And Exercise!

    I was just diagnosed this past wednesday after going into anaphylatic shock on tuesday work. I had just taken a brisk 1.5 mile walk with a coworker about 1-2 hours after eating lunch. We weren't going fast... it was only a 15 minute mile, and we walked for 25 mins. Just as we're...
    vanjm vanjm 31-35, F 1 Response Sep 2, 2013

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    I Found Out I Had cholinargic urticaria During A Basketball Game

    im 17, and before i started experiencing these full body hives , i was extremely active in sports and moving around, now i have to watch my motions because i might get reactions from telling a damn joke to energetically. i hate this
    rp1132 rp1132 16-17 2 Responses Jan 12, 2011

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    EIA For 22 Years And Counting

    I am a self-diagnosed sufferer of EIA since the age of 18. After the first attack, I came across an article in a Science magazine that described exactly the sensations in the buildup phase and actual symptoms which I had experienced. I love to exercise but I tend to get attacks...
    jowee71 jowee71 41-45, F 2 Responses Jul 11, 2013

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    I'm 14 years old and i have EIA.

    I was diagnosed with it when i was 12 and boy, has it been hard. I like to run a lot and I'm on my high school's basketball team. Strangely, the allergists don't know what causes my reactions, since they told me it's usually not only exercise. For example, it's not food, weather...
    hsdp hsdp 13-15, F 1 Response Oct 8, 2014

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    Related Experiences

    will be the one missing me because you will have no one to put in line, anymore. You will stare into thin space and miss the a b u s e you dish out to me. I know I am disliked by...
    May 16

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    Does any one have any tips on what to be eating during the day for exercise. At the minute I am doing 2 intense boxercise classes a week. My metabolism is kicking i and I am...
    Tink1986 Tink1986 26-30, F 7 hrs ago

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    After 13 years of feeling depressed after orgasming I learned about POIS. (Post Orgasmic Illness Syndrome) it really is about asking the right questions. Asking Google in a...
    Wbyogimaso Wbyogimaso 26-30, M 1 Response 1 day ago

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    I'm such a lazy person, but exercising makes me feel awesome! I'm glad I took the decision to get back to exercise, it makes me feel happy, relaxed again and more self-confident...
    Blackberries Blackberries 26-30, F 1 Response Apr 28

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    I already finish my exercise for the morning waiting for the afternoon one
    jasmine2004 jasmine2004 26-30, F 1 Response May 1

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    What is your favorite exercise ride a bicycle walk jog or go to the gym or lift weights at home
    RealSouthernGentleman RealSouthernGentleman 46-50, M 10 Responses May 6

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    This is a kinda funny story. When I was taking loads of drugs in this house I shared with my best mate/drug buddy, some strange stuff used to happen.I had a parcel delivered to me...
    chinawhite007 chinawhite007 26-30, M May 1

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