I Have Exstrophy of the Bladder-epispadias

A Exstrophy Of The Bladder-epispadias anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Exstrophy Of The Bladder-epispadias. You're not alone. 26 People

    Grandson With BE -Epispadias

    My 5 yr old grandson is outgrowing the largest pull-up for children (size 5). There have been two surgeries; the first at birth to return the bladder to its proper place and close the pelvic bones, the second was to create what is called a New York bladder. There is no muscle...
    spawlow spawlow
    2 Responses Nov 1, 2013

    My Son Was Born With Epispadias

    My son was born in 2006 he is 5 going on 6 and is still incontinent and has had a lot of operations. I was wondering if any one has any other options or tips on where oR what to do next.
    JmarieM JmarieM
    3 Responses Mar 7, 2012

    My grandson was born with bladder exstrophy

    epispaddias and is near the end of his hospital stay. X-ray scheduled for Monday with hopes that pins will come out Wednesday and he can finally be picked up and hugged after weeks of lying flat on his back, drugs, pain! Hoping they won't have to extend the traction another week...
    cmtaih cmtaih
    61-65, F
    Mar 7, 2015
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