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I Have Familial Mediterranean Fever

A Familial Mediterranean Fever anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Familial Mediterranean Fever. You're not alone. 13 People

    Finally, A Diagnosis

    My soon to be 11 year old son was recently diagnosed with FMF. He has been sick for a little over a year and has seen 4 specialists, made copious ER visits, missed 14 days of school in 1 month, has had gallons of blood drawn, finally got used to not participating in sports and...
    jennsky1 jennsky1 26-30, F 1 Response Dec 4, 2012

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    FMF Surprise

    Good Evening, my name is jean, i finally got a Dx after MANY YEARS OF HOSPITAL VISITS, SURGURYS AND SCARE OF CANCER. COLCRYS MADE ME FEELGREAT FOR A GOOD WHILE. The pain , swelling, fevers, rash and unable to walk is back! Can any one tell me is FMF get worse? The Dr...
    jean0824 jean0824 41-45, F Sep 2, 2013

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    Related Experiences

    I had glandular fever about 1 year ago. My symptoms now that i look back started a few weeks before i knew i had it. It started off with being more tired than usual, sore throats...
    ambs101 ambs101 18-21, F May 18

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    One year on and my glandular fever is still kicking my arse. And I'm over it. The most frustrating and relentless experience. Sick and tired of being sick and tired. And the...
    dizzyspells09 dizzyspells09 22-25, F May 24

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    Everytime i have a Fever higher that 38 degrees celcius i feel like i just have a head without body And i can just stare at a simple object for 2-3 minutes ... But my twin brother...
    PandaYugo PandaYugo 16-17, M May 11

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    HEART HELP Vitamin B-5 lowers cholesterol, and so does walnuts and almonds. I think almonds are the best. ORGANIC Apple Cider Vinegar with "mother" is so great for the heart. I...
    ArtLover01 ArtLover01 66-70, F 1 Response May 11

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    I've had baby fever for about 2 years now and I've finally convinced my man that this October would be the best time to start trying! I'm so excited and scared! Hoping the next few...
    mblondiee mblondiee 18-21, F 4 Responses May 5

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    I sleep naked when I am sick to help with the fever and my brother let my friend in and she came in my room and threw off my blankets and saw me in full glory.
    Aureillenne Aureillenne 18-21, F 6 Responses May 10

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    it was a fever                           
    May 24

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    my boyfriend and I have been in a relationship for 6 years. he's my high school sweetheart. recently we moved into our new place and I'm having baby fever. I know we are not ready...
    constancemariefat constancemariefat 22-25, F 1 Response a week ago

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    First of all, please don't judge..I am a good person that did a not-so-good-thing. I fell deeply in love with someone I shouldn't have. He feels the same. We are both with other...
    Catontheroof Catontheroof 31-35, F 1 Response 7 hrs ago

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    My cup is overflowing with inspiration. I said it then, I say it once again; I love my special friend. I feel I have more than my EP share! (I couldn't upload the cover pic in the...
    stiltcourt stiltcourt 41-45, F 1 Response 6 hrs ago

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    I have been diagnosed with type one and two cervical dysphasia. Since 35% of cases heal on their own I am going to wait and get another copo in 6 months before having the LEEP...
    jackiesmith12 jackiesmith12 22-25, F 5 hrs ago

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    Even before Kindergarten, I have struggled with a social anxiety disorder known as Selective Mutism. Up until Middle School I never spoke a word to anyone except my family, and...
    girlwithsm girlwithsm 13-15, F 4 hrs ago

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    Yup....and that is because I no longer have the strength, the resilience or the optimism to withstand any more anxiety. I have a dream which means the world to me but what makes me...
    uiop09 uiop09 18-21, F 2 hrs ago

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    June 3 2015. Things have changed for the better since I was in here writing before The chronic fatigue syndrome isn't any better but I'm working some every week. I feel better...
    MsBlueDreamer MsBlueDreamer 46-50, F 1 Response 2 hrs ago

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      My name is Jaydie and I am 15 years old. A few months ago, I was diagnosed with depersonalisation/derealisation, which causes symptoms such as feeling unreal, not alive...
    Jaydkins Jaydkins 13-15, F 2 Responses 2 hrs ago

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    I wonder if there are any others that can relate to my issue. I have traveled to and lived in other countries over the years. I was stationed in Germany for a couple of years...
    LostDragon LostDragon 56-60, M 1 hr ago

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    My scars remind me that I survived... I survived a horrible dark time in my life, and I don't have to be ashamed of that. Each one of those marks was another hour, another day...
    Tori84 Tori84 26-30, F 1 Response 9 hrs ago

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    Why do I Always become EXTREMELY sexually attracted to the friends of my husband?? My husband has forbidden this one to me for 10 years ( I have had.a few of his friends, like in...
    curiouslylooking4me curiouslylooking4me 31-35, F 1 Response 9 hrs ago

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    I would have married a woman after only knowing her 3 months. I knew I wanted to marry her within 2 weeks. Gladly, I would have loved her forever and laid down in traffic for her...
    Ajushi Ajushi 41-45, M 1 Response 9 hrs ago

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    This was about a life altering heartbreak. Someone I care & love very deeply for, which in turn helped me discover what I am about. Please, leave your thoughts. ❤True love is...
    Stickwithmebaby Stickwithmebaby 36-40, F 9 hrs ago

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    Religion based families dont mix such as Catholic and maybe Jewish. I even see asian guys and other ethnicities finally starting to mix these days. Korean and Japanese families...
    BoxJellyFish64 BoxJellyFish64 22-25 1 Response 9 hrs ago

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    I met a nice girl that wanted me to show on webcam. After I started my cam I liked to see her take off the clothes and let her watch me ***** too. Till then I have showed my self...
    Ruefe87 Ruefe87 26-30, M 8 hrs ago

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    idk why allmost everyone I know is on kikster and it's like why text on a phone when I got my comp and I can press the keys on a keyboard alot better than on my phone. I don't like...
    foxy4ever foxy4ever 13-15, M 2 Responses 7 hrs ago

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    I have had anxiety for my whole life. It's frustrating because sometimes I can't sleep which is even more frustrating because I have 2 kids. 2yr and 6 months. The other day my mom...
    xiluvspink xiluvspink 22-25, F 1 Response 7 hrs ago

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    Hey guys, just wondering if anyone had/have problems with creativity, having this disorder? Mine was off, on for a few months than now fading a bit. For ex/ my creativity... I've...
    SsMcGavin SsMcGavin 22-25, M 6 hrs ago

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    He threatened to end my life just because of things I have believed in, and he said "if you believe in such cause, why don't you believe my words on killing you?" And I simply...
    Gino19 Gino19 16-17, M 2 hrs ago

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    so lesson learned sufficiently...went to the beach Saturday with a bunch of friends. at first, when we got to the beach it was cool, and there was a heavy fog, which actually...
    bcharap bcharap 36-40, M 1 hr ago

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    I have recently come to terms that I like a certain guy, we were really close last year but now not so much due to not having classes together. I really miss him and I'm now...
    Bethhhhhh Bethhhhhh 18-21, F 1 hr ago

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    I own and restored a 68 coupe I owned this car since 1994.The one thin i have noticed is there is no love for the coupe.i have found stuff (shirts,model kits, die cast, posters...
    Jazonx Jazonx 36-40 51 mins ago

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    He's the last guy I expected to have a crush on because he is so indifferent. I think I like indifferent guys. -_- I shouldn't because I am taken. He's a 200 lb guy and slightly a...
    BoxJellyFish64 BoxJellyFish64 22-25 1 Response 9 hrs ago

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    He was walking infront of me. Walking like a gay. I followed him. I knew where he is taking me. Where i can pay and have my sexual need to be satisfied. So i followed him. Didn't...
    opennminded13 opennminded13 31-35, M 1 Response 8 hrs ago

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    Flashbacks that make you hold your head with horror. I have those! Anyone else?
    KoopyKoop KoopyKoop 18-21, T 3 Responses 8 hrs ago

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    For the guys asking all the time , I do have abs hahaha guys get on my level :p
    rubyroo15 rubyroo15 18-21, F 13 Responses 5 hrs ago

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    I have an account :) message me for the username, i follow back
    EngineerMa EngineerMa 18-21, M 5 hrs ago

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    i have tropical fish tank i love just watching them it relaxin though Purdy my cat torments em and scares hell out off them some times though
    candysissyfag candysissyfag 26-30, T 2 Responses 4 hrs ago

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    I've lost my pixie dust. have you seen it?
    xieyuting xieyuting 26-30, F 11 Responses 4 hrs ago

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    I have 4 pieces that I love. I take them off when I go to bed. my white gold princess ring, my matching necklace and ring that my mom bought me and my pandora bracelet
    Ang012685 Ang012685 26-30, F 2 Responses 4 hrs ago

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    Last year, the month of September, a new English teacher arrived. Our former English teacher went to London to teach there, and the new one was the replacement. Let's hide the new...
    HeartsBlossoms HeartsBlossoms 13-15, F 4 hrs ago

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    i have a very pink head is it weird lol?
    alexander87 alexander87 26-30, M 3 hrs ago

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