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I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

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    Related Experiences

    insomnia slithered into my bed and whispered, let's inventory our feelings. and so we did, systematically reliving all i've ever felt.
    fsck fsck 26-30, T 1 day ago

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    1) Zoloft - SSRI 2) Lexapro - SSRI 3) Prozac - SSRI 4) Wellbutrin - NDRI 5) Paxil - SSRI 6) Effexor - SNRI 7) Celexa - SSRI 8) Desyrel - SARI 9) Elavil - Tricylic 10) Cymbalta...
    SassyBabe39 SassyBabe39 41-45, F 1 Response a week ago

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    I had insomnia too, my social media accounts+stress made me insomnia 2years ago.. But hopefully im ok now, insomnia fighters can try shower with warm water before go to bed and...
    fauxlady fauxlady 22-25, F 2 Responses Aug 22

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    I recently purchased a book named "I Can't Sleep". This is a journal for passing the time when insomnia strikes and my brain is circling in on itself, cannibalizing the...
    IrisROE IrisROE 56-60, F Aug 19

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    I recently purchased a book named "I Can't Sleep". This is a journal for passing the time when insomnia strikes and my brain is circling in on itself, cannibalizing the...
    IrisROE IrisROE 56-60, F 1 Response Aug 20

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    How does having a 'few' sleepless night differ from having insomnia? How can you tell when it becomes more serious? Is insomnia something you get 'diagnosed' as??
    isatbytheocean isatbytheocean 18-21, F 1 Response Aug 21

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    Insomnia is truly ruining my life :( I can't function I'm so sleepy and tired all of the time but I can't sleep at all ! Someone please help !!!!!!!!
    ArmaniTsunami ArmaniTsunami 18-21, M 1 Response Aug 18

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    maybe i have insomnia or maybe it's just my wifi.
    queentheresa queentheresa 13-15, F 2 Responses Aug 19

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    What's the difference between insomnia and just not being able to fall asleep?
    akaShaun akaShaun 16-17, M 4 Responses Aug 20

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    So my sleep schedule is always messed up and last night I FINALLY THOUGHT I could fix it. I was exhausted from the lack of sleep the night before and was ready to finally sleep at...
    akaShaun akaShaun 16-17, M 1 Response Aug 23

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    A seventeen year old should not be suffering; Insomnia Sleep paralyses, at night. Morning anxiety. Social anxiety. I need some help because no one here seems to understand...
    1Lostcause 1Lostcause 16-17, T 1 Response Aug 28

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    When my pain killers stop working, insomnia takes over like a ton of bricks. Life eh.
    Dreamstauge Dreamstauge 18-21, F 1 Response Sep 3

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    I hate having insomnia. It only kicks in every once in a while, but when it does, i rarely get more than 3 hrs sleep in a night. Ugh and i have to be up by 6 too. This sucks...
    Rednkfireftr Rednkfireftr 31-35, M 1 Response Sep 3

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    I've had insomnia for about 2 years and have been on benzodiazapemes for the same amount of time. It's gotten so bad that I'm afraid of going to bed! Actually, I'm scared to sleep...
    cheersbabe cheersbabe 22-25, F 2 Responses Sep 6

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    So I've been struggling with insomnia for awhile but yesterday I decided to try medicine to help me sleep.. Taking 1 Tylenol and 1 Xanax I slept for 13 hours and I feel great
    akaShaun akaShaun 16-17, M 2 Responses 6 days ago

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    Is it Insomnia if you are so tired and can't even open your eyes, but STILL can't sleep? Because that's me
    1lonelydaisy 1lonelydaisy 70+, F 2 Responses 5 days ago

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    I started daydreaming when I was really young, I was about four maybe five. My best friend and I used to watch a show together and we'd act it out, and make up our own scenarios...
    MaladaptiveDayDreamer MaladaptiveDayDreamer 13-15, F Aug 28

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    Film Noir  I'd love to be in a film noir. It's such a sexy, suspenseful genre, and I like watching well-made films full of intrigue and sultry characters.How fun would it be...
    livelaughlovedream3 livelaughlovedream3 41-45, F 4 Responses Aug 24

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    Blimey, hard writing this down. January 2012 i left to go to work. Cold wet and windy winters morning. I remember driving down the road, then turning left at the traffic lights...
    hovisandhispad hovisandhispad 46-50, M 2 Responses Aug 24

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    i always have some health related anxiety that triggers severe panic attacks.. .. i am in good health in general and i come out good in tests. i was never worried about my health i...
    antoneli antoneli 18-21, M 2 Responses 5 days ago

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    The worst part of being an insomniac is having to eat spiders while I'm awake to maintain my yearly average.
    AgentSickler AgentSickler 18-21, M 8 Responses Aug 17

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    For the past week or so, I have been unable to sleep; I'm not even tired. I cleaned my whole room over the course of two nights. It seems like a bad thing, but I actually think it...
    ethanicus ethanicus 13-15, M Aug 17

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    The WorstI am so spent. I cannot wait to enter the sanctuary of my dreams. I lie in the cool darkness concentrating on my breathing. It's serene. It's comforting. My bed is my...
    SwanSongRebeL SwanSongRebeL 36-40, F 3 Responses Aug 18

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    Agnostic dyslexic insomniacs lie awake all night wondering if there is a dog
    Dantescircle Dantescircle 36-40, M 2 Responses Aug 18

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    The silver sword of morning piercing through my window frame. It's light now skipping round my room , its driving me insane. With eyes closed tight, this lights now dancing on my...
    lloyds123 lloyds123 46-50, M 1 Response Aug 19

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    I haven't been able to sleep at all basically for the past 3 months, every time I try to the same memory pops into my head and no matter how hard I try, I can't suppress it...
    Lanigga14 Lanigga14 13-15, F Aug 20

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    Seven years of sleep disturbed nights. Seven years of trouble staying asleep. I don't really know what it is that disturbs my sleep. I get very vivid and Dejavu dreams, which wake...
    Lecuyer90 Lecuyer90 22-25, F 2 Responses Aug 20

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    I hate going out now. I feel so awkward around people. I know I can usually get through if I make it out of the apartment, but the stress and feeling of the world closing in on me...
    RingoVonCitrus RingoVonCitrus 41-45, M 5 Responses Aug 21

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    I sometimes have nightmares that are extremely vivid. I try to go to bed earlier but I can't sleep at all. I have to take zzzquil for sleep, I used to take melatonin, and when I...
    ajrestless ajrestless 18-21, F Aug 23

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    I sometimes have nightmares that are extremely vivid. I try to go to bed earlier but I can't sleep at all. I have to take zzzquil for sleep, I used to take melatonin, and when I...
    ajrestless ajrestless 18-21, F 1 Response Aug 23

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    Lately, it's been a problem. I just really envy people who can immediately go to sleep the moment they jump into their bed but not me. If I'm lucky, it'll take at least an hour. If...
    Seiraxoxo Seiraxoxo 18-21, F 1 Response Aug 26

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    I can't sleep til 4-6 am and still wake up early and it's easy for me to have(accidental) all nighters and Im tired even if I do actually sleep a full 8 hours, and I'm exhausted a...
    rulahasan rulahasan 13-15, F Aug 26

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    I wish I could get to sleep before 2 am! Especially when I know I have a busy day the next day! The other night I was almost falling asleep watch telly, so I went to bed, but...
    Woolybabe Woolybabe 41-45, F Aug 27

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    ****! Insomnia, you ought to know better than jump out at me like that. It's a good thing I recognized you otherwise, you'd have gotten knocked the **** out.
    Handyman25 Handyman25 22-25, M 1 Response Aug 28

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    So before insomnia came knocking on my brain window, I had a singularly bizarre dream, which is really saying something. It started with me getting a message on EP from a member of...
    Handyman25 Handyman25 22-25, M 2 Responses Aug 28

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    Here I am again, it’s late and I can’t sleep. I’ve tried a warm bath, tablets and deep breathing. I’ve OD’d on ice-cream, listened to music and stared at the stars while...
    madamfaustus madamfaustus 31-35, F 1 Response Aug 31

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    My husband lets me use sleeping pills he was prescribed for PTSD nightmares. He says he thinks I have it too. Every time I see my father I get so anxious. When we get home, I often...
    PirateM PirateM 26-30 Sep 1

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    Haven't been on in a while. I hate not being able to sleep at night. My brain just decides to think about everything, from being single to remembering EVERY SINGLE bad thing I've...
    ForeverYoung09 ForeverYoung09 18-21, F 4 Responses Sep 2

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    I won't if they see I haven't slept in 4 days by the bags under my eyes
    disasterland disasterland 18-21, F 2 Responses Sep 3

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    I cant sleep and I am noticing a trend with my insomnia playlist. It is following my moods. Sigur ros when I'm tired, edm when im awake, and hurt (the johnny cash version) when Im...
    sikandtired93 sikandtired93 18-21, F 1 Response Sep 4

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    Why sleep when you have an iphone full of music and a trusty pair of headphones? C: this should be fun Cx
    KittyKatLuvsYhu KittyKatLuvsYhu 13-15, F 1 Response Sep 7

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    My name is Kaylyn. For the past year and a half or so I have been struggling with what seems to be DID or maybe some type of schizophrenia. I have been struggling with panic...
    imtypicallykaylyn imtypicallykaylyn 16-17, F Sep 7

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    sometimes I get very easily distracted and can't focus on one thing at a time. It's partly due to my insomnia and that I don't let myself get out much unless I have to go somewhere...
    ajrestless ajrestless 18-21, F Sep 7

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    Once again i cant seem to fall asleep and i have migraine , stomachache and I'm nauseas ...
    mimilsu mimilsu 18-21, F 2 Responses a week ago

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    have been for awhile. It gets boring this late at night. Anyone care to chat? non-sexual. Male or Female any age.
    MaxSinner MaxSinner 31-35, M a week ago

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    have been for awhile. It gets boring this late at night. Anyone care to chat? non-sexual. Male or Female any age.
    MaxSinner MaxSinner 31-35, M a week ago

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