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I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

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    About an hour of actual sleep and I have to be at work at 4am. I try not rely on sleeping pills, as I don't like the idea of taking medication unless it's absolutely necessary, but...
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    Insomnia again. It's 4:55 am and I don't think I'll be getting any sleep tonight.
    ShyGirlie78 ShyGirlie78 36-40, F 5 Responses Mar 3

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    I take 30+ minutes to fall asleep. I get around 5-7 hours on a good night. I don't usually want to sleep unless I'm really tired. I'm not sure if that makes me an insomniac, but it...
    ftmFreddy ftmFreddy 18-21, T Mar 4

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    I have been experiencing this for almost 7 months where I can't fall asleep, when I do I can't go back to sleep.. wake up through out the night countless of times, and I can...
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    Fatescollided11 Fatescollided11 26-30, F 1 Response Mar 13

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    So tired. It was a long day for me. I just want to rest and sleep but this insomnia won't let me. This feels terrible.
    RedThatDescribesMe RedThatDescribesMe 18-21, F 2 Responses Mar 17

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    Thanks insomnia, imma just lay here and look at the clock and try and figure out how much sleep I'd be getting if I fell asleep right now.... Dammit!
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    I have insomnia really bad and it's to the point where I'm just tired, irritable and plain out exhausted. I wish I could just slide in bed and fall soundly asleep. I'm also in...
    SweetT246 SweetT246 22-25 2 Responses Mar 21

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    I've had insomnia since I was about 5, doctors have no idea how to help me. It takes 4 benadryl to knock me out. Otherwise nothing else works. I don't get a lot of sleep haha and I...
    sfausett33 sfausett33 18-21, F 2 Responses a week ago

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    It's 3AM and I have school at 9:30am. I'm not even tired. There should be more than 24 hours in a day...it's just not enough. My body is wide wake at this time even with exercising...
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    "I've bin gone and I've done wrong but who's to judge who's to know what's my fatal grudge the reason for the pain the birth of the monster to be slain" I've bin away for a bit and...
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    Mike Luna. Specialist 4th class Michael Luna. The name might lead one to thinking he was of hispanic background. There might have been some of that heritage in his ancestry, but...
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    1lonelydaisy 1lonelydaisy 41-45 6 Responses Mar 3

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    hot milk works? i don't have energy to stand up..
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    I have been awake for the past 30 hours and need to remain awake for another 6. KILL ME NOW!!!!!
    addiejomo addiejomo 18-21, F 1 Response Mar 9

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    1lonelydaisy 1lonelydaisy 41-45 1 Response Mar 9

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