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I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

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    insomnia was acting up last night. i hate insomnia!!! i think i slept 3 hrs last night. ughhh!! :/
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    yeah I crashed last night and completely passed out. Ladies and Gentlemen I present to you the struggles of insomnia
    thegroundisup thegroundisup 13-15, F 3 Responses Feb 9

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    OMG, if I don't get some sleep I'm gonna go nuts. I've been able to get about 3-4 hours sleep at night lately and I know it's a huge improvement from being up 3-4 nights in a row...
    thumper15 thumper15 18-21, F 1 Response Feb 10

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    I have been a diagnosed insomniac for about a year. I have suffered longer. I also struggle with anxiety & depression. Lately I have been worse than ever. I lost my job due to a...
    REF2494 REF2494 18-21, F 2 Responses Feb 12

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    So lately I've been falling asleep around 8-9am and sleeping for like 12 hours. I feel like my body is immensely stressed out and this is its way of coping. I really need to get...
    WynonnaMarye WynonnaMarye 18-21, F Feb 14

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    Oh no...!! Insomnia again... :((
    ShanaiyaGrey ShanaiyaGrey 22-25, F 2 Responses Feb 19

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    I hate having insomnia it seems I can never get a decent sleep my mind won't turn off.
    michellesydney michellesydney 18-21, F 1 Response Feb 22

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    I hate having insomnia... It screws over my sleeping habits so badly to where I'm sleeping during the day and waking up around 1-3am.....
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    Sometimes, I find myself thinking and reflecting on the relationships I've had in life; not just romantic relationships, but also, friendships, family relationships... work...
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    I have known for 3 yrs that I have Hashimoto's but I believe I have had it for 25 yrs. It started during my 2nd pregnancy. My Dr over the years kept treating the symptoms with...
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    About an hour of actual sleep and I have to be at work at 4am. I try not rely on sleeping pills, as I don't like the idea of taking medication unless it's absolutely necessary, but...
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    Insomnia again. It's 4:55 am and I don't think I'll be getting any sleep tonight.
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    I take 30+ minutes to fall asleep. I get around 5-7 hours on a good night. I don't usually want to sleep unless I'm really tired. I'm not sure if that makes me an insomniac, but it...
    ftmFreddy ftmFreddy 18-21, T 10 hrs ago

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    I have recently been diagnosed with Meningitis/Mycoplasma pneumonia encephalitis. I try to google this disease and BARELY find anything about it. What I do read scares the crap...
    amiedawn419 amiedawn419 36-40, F Feb 11

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    Teach me how to fight I'll show you how to win you're my mortal flaw and I'm your fatal sin let me feel the sting the pain the burn under my skin. Put me to the test I'll prove...
    mewmewoops mewmewoops 18-21, F Feb 19

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    svetlanadavina svetlanadavina 22-25 Feb 21

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    I have always had a problem with sleeping through the night or staying asleep but this last week has been the worst. a hour here and there, I have tried melatonin, sleeping pills...
    rose2416 rose2416 31-35, F 3 Responses Feb 6

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    Up late again... everyone tells me how unhealthy it is to do what I'm stuck doing at my age. But how can I sleep? I can't help but think so much this late at night... what else is...
    KaylaVB19 KaylaVB19 16-17, F 2 Responses Feb 9

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    I am up right now because I was sooooo stressed I haven slept in two days hahahaha crap
    sadnesskillsme sadnesskillsme 13-15, F Feb 12

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    Ehh. I wouldn't say it's messed up, but more like a scattered sleep schedule... I never get to sleep around the same times, or get the same hours of sleep every night, simply...
    LostandFading LostandFading 18-21, F Feb 12

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    I haven't had a fulfilling sleep in so long that it's now become so normal.
    rickyrosa rickyrosa 22-25, M Feb 12

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    8:30 AM and I haven't slept. Not even tired yet. :/ Ugh..
    MrCutBleedSmile MrCutBleedSmile 18-21, M Feb 14

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    I can't sleep and like my friends are over RN and both of them are asleep ugh I have no one to talk to xD
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    I am on probation because my school doesn't think 49 hours with out sleep is a valid excuse to stay home. the school said I can control when I sleep its not like I am sick. after...
    Mybiscuits Mybiscuits 16-17, F 3 Responses Feb 17

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    It just feels awful and I wish I could take this feeling out of me. I hate the cycle, I hate the tenseness, I hate the nerves... but most of all, I hate having to pretend like...
    loresmom loresmom 41-45, F Feb 18

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    I have to take a hot bath and relax before bed, otherwise it's impossible for me to fall asleep.
    themagicalrose themagicalrose 18-21, F 2 Responses Feb 18

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    Man I am so tired I could close my eyes right now. I managed to get new earphones two weeks ago but those were faulty and I couldn't use them. My mother bought me a new pair about...
    1lonelydaisy 1lonelydaisy 41-45 Feb 21

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    I haven't slep more than five hours in the past couple days. I am extremely exaughsted but yet I can't seem to fall asleep. I lay in bed trying to get some shut eye but nothing...
    SunshineLaura SunshineLaura 18-21, F 1 Response Feb 21

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    So much so that sometimes I wake up in the middle of the night with random thoughts and I can't get back to sleep. My mind is working on overdrive. Last night I was reading about...
    Welllaugh Welllaugh 36-40, F 3 Responses Feb 22

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    Friday night I slept 4 hours, Saturday night for an hour and a half and that's it. Haven't slept since then and now it's tuesday night, almost 1:30am. My eyes burn, probably not...
    thumper15 thumper15 18-21, F 1 Response a week ago

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    On my second pair of earphones in about just over a month which lasted only a few days. It breaks super quick in one ear. One ear is much quieter and it disrupts me sleep. I am...
    1lonelydaisy 1lonelydaisy 41-45 3 Responses 5 days ago

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    I prayed for a better sleep last night. However I woke up later in the afternoon so there is that. I had tried to show more love for the Lord and maybe he blessed me. I try to...
    1lonelydaisy 1lonelydaisy 41-45 1 Response 4 days ago

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    I have work in four hours and I can't sleep the treatment was working for about a week but for the past two days I can't fall asleep I've only slept for about five hours up to this...
    SunshineLaura SunshineLaura 18-21, F 1 Response 3 days ago

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    I can"t sleep and it"s 4am what should i do? I have school today . Should i pretend to be sick to skip school today?
    nagaseiori nagaseiori 18-21, F 2 days ago

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    I slept for a little bit over an hour.. my face and head hurts so bad. I have a full day ahead of me school work and work not counting homework.
    SunshineLaura SunshineLaura 18-21, F 1 Response 2 days ago

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    I have just ran across DSPS today in researching and trying to find out what exactly has been wrong with me for most of my life. I've classified myself as a night owl since I was...
    CrowWoman CrowWoman 51-55, F 1 Response 1 day ago

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    I haven't slept in like two months. Pills aren't working now. I am going for s therapy next week. But until then, I have to keep it together!
    karmicsouls karmicsouls 31-35, F 1 day ago

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    I am so stinking tired. Prayer was useless last night. I did pray I think but not with earnestness which I feel like he only listens to. Doesn't he see how badly I struggle with...
    1lonelydaisy 1lonelydaisy 41-45 3 Responses 14 hrs ago