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I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

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    Okay,so saw fatal attraction,and let me put out some stuff,as a bpd sufferer myself,I will never do,and it is very unlikely most average bpd people might. 1.I love animals...
    aquabunny aquabunny 22-25, F 7 hrs ago

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    I can remember the first time I seriously considered killing myself. I was 9 years old. All my life I have suffered Insomnia and Bi-Polar depression but this year I have finally...
    EpicChick22 EpicChick22 18-21, F May 10

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    It's 5:45AM and I was supposed to be getting up in half an hour to get ready for class. I literally get no sleep at night, and feel completely exhausted and drowsy in the morning...
    Offing Offing 18-21, F 3 Responses Apr 26

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    Insomnia always comes back to haunt me. I'll spend a month trying to get on a normal schedule and when I finally do, it only lasts for about two weeks..
    akaShaun akaShaun 16-17, M 8 Responses Apr 28

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    What do I do when my mom won't buy me any medicine to help me go to sleep/stay asleep? She said "when you're tired, you'll fall asleep" wtf.. Like she doesn't understand insomnia...
    akaShaun akaShaun 16-17, M 4 Responses May 4

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    I sleep all day because I can't sleep at night. Even when I try to fix my pattern I'll end up staying up all day and all night again till its about 6am. Insomnia can be so...
    kristen1993 kristen1993 22-25, F 4 Responses May 5

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    I do insomnia, and I am so good at it, that I can do it all night long.
    ElMioCid ElMioCid 46-50, M 2 Responses May 9

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    Insomnia that basic ***** I love to hate
    blasianalien blasianalien 22-25, F 1 Response May 13

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    Insomnia...I HATE YOU!!! Grrrrr
    biwhisper biwhisper 41-45, F 1 Response May 14

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    Ok I'm going force myself to sleep. Insomnia sucks.
    TCL009 TCL009 41-45, F 1 Response 2 days ago

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    I love how I feel exhausted all day, like I've been swimming in cement, and the minute I lay down my brain is like, "Hey, let's think about all the things you've ever done wrong or...
    nobody62442 nobody62442 22-25, F 2 Responses 1 day ago

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    My aunt was driving her three year old grandbaby to the park on feb18, 2015, when she and another car hit head on. there was one person in the other car. the baby :....( died after...
    aztlc777 aztlc777 41-45, F Apr 23

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    Nature has it's own way of showing its rage. It's a miracle when you survive that rage. You thank the graces of nature yet you curse it at the same time. But that is all you can do...
    Shayala Shayala 18-21, F May 13

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    Great news! I did talk to the guy I am currently seeing and he was okay with it, and very glad that I was open and honest with him. It makes me happy to know that there can be life...
    lil0miss0sunshine lil0miss0sunshine 22-25, F 2 Responses 6 days ago

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    People throwing rubbish next to rubbish bins. Even as close as a meter away. Seeing rubbish bags full of stuff they can recycle. I know it's choice I just care about the planet...
    1lonelydaisy 1lonelydaisy 41-45 Apr 30

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    So I'm looking for advice or something along the lines of help.... As many of you know I'm a person who has had his fair share of experiences, so I can deal with many things, but...
    Arizv11 Arizv11 22-25, M May 2

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    I don't know how women sleep with married men and stay sane. He'd have a fatal attraction on his hands.
    LikeAPrayer LikeAPrayer 18-21, F 1 Response May 6

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    I've only shared this with a couple of people outside of my old Army unit: Mike Luna. Specialist 4th class Michael Luna. The name might lead one to thinking he was of hispanic...
    wantadoover wantadoover 56-60, M 4 Responses 5 days ago

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    Did you hear about the Agnostic, Dyslexic, Insomniac ? Stayed up all night pondering the existence of dog.
    Hockeyplayer56 Hockeyplayer56 46-50, M 1 Response Apr 22

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    I just now started suffering from anxiety in the past year. I was arrested for DUI for the first and last time in my life last year but ever since then I have had fear and anxiety...
    mpthatsme mpthatsme 26-30, F 1 Response Apr 30

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    In April of 2014 I lost my mother to brain cancer. I am sixteen years old, and it was extremely depressing and hard on both my sister and I. My sister is twenty, so she takes care...
    aarondisney aarondisney 22-25, M May 1

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    Of course the night when I have to get up at 5:00 for work is the night I also get really bad insomnia... I've been lying in bed for two hours now just tossing and turning. Ugh...
    scrtasnman13 scrtasnman13 22-25, M May 1

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    It's 16.20 I haven't slept yet! Giving up I think. Arghhhh
    jessl95 jessl95 18-21, F 3 Responses May 2

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    Insomnia is both my friend and foe, It gives me the option to fill up idle hours with my every whim and joy but the debilitating exhaustion and want to just close my eyes and let...
    TimeTwistedSoul TimeTwistedSoul 26-30, M May 5

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    I never expected this to happen like this. So about a year ago, I met this friend (I'll call her M) via my friend T, who i had known since freshman year of high school and...
    SynysterGates510 SynysterGates510 22-25, M May 7

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    Can't sleep. I've resorted to sleeping pills a doctor gave me and I'm glad I have lots of them cause it's gonna be a rough few nights. I am waking up at all hours and the only...
    deleted deleted 26-30 2 Responses May 13

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    Oh my goodness. So as the title reads, I pick at my skin. A lot. And I have ever since I was little. I mainly pick at my face, but recently I've acquired a few (okay 9) places on...
    IfYoureReadingThis IfYoureReadingThis 22-25, F 1 Response May 14

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    Okay, I obsess over my thoughts. There are certain things I think about that I just can't shut off. I know this sounds weird, but I obsess over breathing. I am aware of every...
    huntfishguy huntfishguy 18-21, M 2 Responses May 14

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    Dear Internet, I've only got insomnia to blame before. But now, you are as well a guilty culprit. Love, Eyebags
    RedHwaiting RedHwaiting 18-21, F a week ago

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    well ****,I'm ******.it's 5 am now & I have a final in 3 hours,I got into bed around two,praying for sleep,but nada,I'm going to watch Game Of Thrones now 🌚🌚🌚
    lifelesspie lifelesspie 18-21, F 1 Response 4 days ago

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    the past 2 weeks have been running on 2-4 hrs of sleep/day. It hurts my brain. i need to learn how to quit the physical body! I need more ambien!
    jaywabz jaywabz 22-25, M 4 days ago

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    Can't sleep at all. It's 2 a.m. In Japan. I was thinking about childhood in futon, couldn't sleep and commented on EP and became a little emotional, and now drinking highball to...
    katsuobushi katsuobushi 36-40, M 4 days ago

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    I have the opposite problem now; I can't seem to ever stay awake!
    PinkMellow PinkMellow 18-21, F 2 Responses 21 hrs ago

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    Everywhere my fake Mother goes, it is mandatory for me to follow her, or else I'd be beaten cussed at, and physically forced out of the house. I am 29 years old and she destroyed...
    ONESTARRYSTARRYNIGHT ONESTARRYSTARRYNIGHT 26-30, F 4 hrs ago

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    The only thing I have to do is not listen. It's as simple as that. Don't talk to him, don't listen to what he has to say, it's all lies. But I'm dumb. And weak. And I told Azriel...
    PinkMellow PinkMellow 18-21, F 1 Response 12 hrs ago

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    My father is the one that i lost when i was sixteen. My father was visiting me in hospital for a stomach operation that i was about to have, strangely enough dad was having...
    Alanuin Alanuin 26-30, F 12 hrs ago

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    I just merely have acquaintances. I never had a true friend and if I were to count one then I guess it was with that one girl in high school. It sucks to know that a friendship I...
    Xemplefied Xemplefied 26-30, M 11 hrs ago

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    Anyone around that's vaguely arty/creative? Or maybe there are some actual tattoo artists kicking around on here? I have a tattoo on my inner forearm I'm desperate to add to (along...
    SlushyAseSparkles SlushyAseSparkles 22-25, F 6 hrs ago

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    It was already halfway through summer session in the dream and I was feeling very relieved to have my first set of classes done with. Not much happened in the dream. My friends and...
    PinkMellow PinkMellow 18-21, F 4 hrs ago

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    You no I really put my heart an soul into hearting an expirence or posting one or Responding to it they have to have a wow factor an they have tobe medium long knone of these one...
    peoplesmart peoplesmart 31-35, M 3 hrs ago

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