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I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

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    DrKittyNinjaBunny DrKittyNinjaBunny 16-17, F 2 Responses 1 hr ago

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    Ever since i was little ive had night terrors and insomnia. night terrors have stopped but the insomnia hasnt
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    omg I hate being an insomniac. I want to be able to talk to people when I can't sleep but it's hard cause not everyone's on that no sleep kinda page.
    omgeezus omgeezus 26-30, F 2 Responses Nov 20

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    I don't think I'm an actual insomniac though I don't really get tired until 12 in the morning. I think it mostly has to do with the amount of technology I have in my room, such...
    Skuggington Skuggington 13-15, M Nov 20

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    Now I haven't been diagnosed with chronic insomnia, but I honestly feel this is ME. I guess it would help to exercise...if that was possible. I'm also very obese. But it's not...
    1lonelydaisy 1lonelydaisy 41-45 Nov 20

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    And it Isn't much fun. It's not like I can just go downstairs and play the piano or play violin or guitar in my room. I can't practise martial arts, I can't really go out for a...
    Tasha15Girl Tasha15Girl 13-15, F 4 Responses Nov 23

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    Time doesn't really matter with insomnia.. It's 5am but it doesn't feel like 5am..
    akaShaun akaShaun 16-17, M 1 Response Nov 24

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    I'm an insomniac. I hate that word. I am in denial. I think I like to stay up to make the day last longer. I sometimes do my best thinking at night - at least I think I do.
    tryingagainII tryingagainII 56-60, M 2 Responses Nov 24

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    Well, screw it. Are even the insomniacs asleep tonight? It doesn't seem like anyone is on. Must be the turkey.
    NoVADad703 NoVADad703 31-35, M Nov 28

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    I swear this is what stresses me out during the day and what's making me sick. I hate not being able to sleep. My fiance hates that I can't sleep but he can't do anything. I suffer...
    MarinesGirl94 MarinesGirl94 18-21, F 1 Response Dec 1

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    Nov 23, 2014 4am Oh,my look at the time, God it's 4 am, And I haven't even closed my eyes. What is wrong with me, Why do I not sleep? Is it the storm outside, Or the one raging...
    yonnie97 yonnie97 16-17, F 3 Responses Dec 3

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    A nap to a regular human being Is sleeping for us insomniacs.
    akaShaun akaShaun 16-17, M 1 Response Dec 5

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    When you wake up In the middle of the nigh, you KNOW you can't go back to sleep. Insomnia ******* sucks
    akaShaun akaShaun 16-17, M 2 Responses Dec 8

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    Insomnias a ***** just saying
    ninjacypher ninjacypher 13-15, M 1 Response Dec 8

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    And over the years my benzo dose has increased. Proportionate to my becoming more and more of a chronic insomniac. I will not blame this strong and dangerous drug for this...
    lunadelobos lunadelobos 41-45 Dec 10

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    It's 5:00 am and I'm still up. Why, some may ask. Well it's a simple answer really. Insomnia takes over my life. Has for years and it's really taking an effect on me. No wonder I...
    MarinesGirl94 MarinesGirl94 18-21, F 1 Response 5 days ago

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    Warning, this is long, but I feel as though I have to tell the full details of the story. Even if no one responds, I just need the catharsis of letting it all out for once...
    sketchit sketchit 26-30, F 1 Response Dec 9

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    Started using an app several years ago. Worked fine for about 2-3 years and then once I hit my adult years, It just wasn't as affective anymore. Now it barely works at all. But...
    1lonelydaisy 1lonelydaisy 41-45 1 Response Nov 20

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    I think my sleep issues started when I was 18. That's when I started using that app and then I couldn't go without it. Without it I wouldn't have made it through a time in my life...
    1lonelydaisy 1lonelydaisy 41-45 Nov 20

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    and i ******* hate the hours. i hate going in late night n being there til the sun comes up. i guess the only good thing tho is that it gives me time to think about **** since its...
    LightSparks LightSparks 26-30, M 2 Responses Nov 24

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    When will I ever sleep again? Thinking about taking pills but have bad side effects. I don't know what to do and how to cope up with this.
    MaryJay712 MaryJay712 16-17, F 2 Responses Nov 25

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    I suppose I could call it insomnia. It has been both productive and destructive in my life. I can remember as a child having great difficulty sleeping. When I discovered books I...
    TunnelofTrees TunnelofTrees 36-40, M Nov 28

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    i get so much anxiety ive had insomnia for years. its 3am now, i WAS talking to my idiot ex for a bit again! but ... everyone i love begs me not to. he was crazy verbally...
    Jacqueline779 Jacqueline779 26-30, F 1 Response Nov 30

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    http://youtu.be/wwkKcqdrfGo Perfect example. Except I will get maybe 4-6 hours sleep in two days. I've been ok for the past few days. Been able to sleep about 10 hours each day...
    1lonelydaisy 1lonelydaisy 41-45 1 Response Dec 1

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    Somewhere there must be an atheist dyslexic insomniac lying awake and wondering if there is a dog.
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