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I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

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    insomnia slithered into my bed and whispered, let's inventory our feelings. and so we did, systematically reliving all i've ever felt.
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    1) Zoloft - SSRI 2) Lexapro - SSRI 3) Prozac - SSRI 4) Wellbutrin - NDRI 5) Paxil - SSRI 6) Effexor - SNRI 7) Celexa - SSRI 8) Desyrel - SARI 9) Elavil - Tricylic 10) Cymbalta...
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    Of childhood trauma Economic Impact The cumulative economic and social burden of complex trauma in childhood is extremely high. based upon data from a variety of sources...
    dispossessed dispossessed 46-50, F 1 Response Sep 20

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    Christchurch, New Zealand. 4 September 2010, a 7.1 magnitude quake struck near the city, unleashing a long sequence of earthquake aftershocks including the 22 February 2011 6.3...
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    I am so hating being an insomniac right now I'm so wanting sleep it will cure the boredom you can only play games for so long before you get bored with that too
    Jungle46 Jungle46 46-50, F 1 Response 4 days ago

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    When my pain killers stop working, insomnia takes over like a ton of bricks. Life eh.
    Dreamstauge Dreamstauge 18-21, F 1 Response Sep 3

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    I hate having insomnia. It only kicks in every once in a while, but when it does, i rarely get more than 3 hrs sleep in a night. Ugh and i have to be up by 6 too. This sucks...
    Rednkfireftr Rednkfireftr 31-35, M 1 Response Sep 3

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    I've had insomnia for about 2 years and have been on benzodiazapemes for the same amount of time. It's gotten so bad that I'm afraid of going to bed! Actually, I'm scared to sleep...
    cheersbabe cheersbabe 22-25, F 3 Responses Sep 6

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    So I've been struggling with insomnia for awhile but yesterday I decided to try medicine to help me sleep.. Taking 1 Tylenol and 1 Xanax I slept for 13 hours and I feel great
    akaShaun akaShaun 16-17, M 2 Responses Sep 9

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    Is it Insomnia if you are so tired and can't even open your eyes, but STILL can't sleep? Because that's me
    1lonelydaisy 1lonelydaisy 70+, F 2 Responses Sep 10

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    Struggling with insomnia again, so tired of this **** :(
    MrDysfunctional MrDysfunctional 18-21, M 1 Response Sep 16

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    Dear insomnia can u please leave me alone for 5 hours so i can sleep Without your majesty waking me up every time ?
    jessy97 jessy97 16-17, F 1 Response Sep 17

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    I'm not really an insomniac but I feel like one because ever since may 21 I haven't been able to sleep really. Some days ill stay up to 4 in the morning some days I won't sleep at...
    Jaywaa Jaywaa 13-15, F Sep 17

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    I am a major insomniac i practically stay up all night luckily i have my girlfriend to text.
    Kitry Kitry 13-15, F 1 Response 2 days ago

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    ***Pic inside*** Even as an insomniac, I laughed at this
    akaShaun akaShaun 16-17, M 1 Response 2 days ago

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    i always have some health related anxiety that triggers severe panic attacks.. .. i am in good health in general and i come out good in tests. i was never worried about my health i...
    antoneli antoneli 18-21, M 2 Responses Sep 10

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    LONG story. I just need to tell someone what I'm going through. My MCS was in remission since the 1990's until I moved into a building where the manager had air fresheners...
    SadDrama SadDrama 41-45, F Sep 18

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    I went to community taco. night. I am a young Grandma. I saw my granddaughter at the tavern. We sat outside under the big oaks and talked casually. She told me how her new school...
    MCK21 MCK21 46-50, F 1 Response Sep 20

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    Tattoos are such an addiction! 1. A kind big tokidoki themed tattoo on my upper arm 2. A moustache on my finger for a movember fundraiser. 3. Stars on my wrist (I was young ha...
    Crystalcastle Crystalcastle 22-25, F 2 Responses 23 hrs ago

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    Myself and my partner have been very lucky and have 3 amazing kids, when we decided 2&a half years ago to try for another it was a very exciting moment for us all. But as time...
    shellB91 shellB91 22-25, F 15 hrs ago

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    Here I am again, it’s late and I can’t sleep. I’ve tried a warm bath, tablets and deep breathing. I’ve OD’d on ice-cream, listened to music and stared at the stars while...
    madamfaustus madamfaustus 31-35, F 2 Responses Aug 31

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    My husband lets me use sleeping pills he was prescribed for PTSD nightmares. He says he thinks I have it too. Every time I see my father I get so anxious. When we get home, I often...
    PirateM PirateM 26-30 Sep 1

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    Haven't been on in a while. I hate not being able to sleep at night. My brain just decides to think about everything, from being single to remembering EVERY SINGLE bad thing I've...
    Country00Girl Country00Girl 18-21, F 4 Responses Sep 2

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    I won't if they see I haven't slept in 4 days by the bags under my eyes
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    I cant sleep and I am noticing a trend with my insomnia playlist. It is following my moods. Sigur ros when I'm tired, edm when im awake, and hurt (the johnny cash version) when Im...
    sikandtired93 sikandtired93 18-21, F 1 Response Sep 4

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    Why sleep when you have an iphone full of music and a trusty pair of headphones? C: this should be fun Cx
    KittyKatLuvsYhu KittyKatLuvsYhu 13-15, F 1 Response Sep 7

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    My name is Kaylyn. For the past year and a half or so I have been struggling with what seems to be DID or maybe some type of schizophrenia. I have been struggling with panic...
    imtypicallykaylyn imtypicallykaylyn 16-17, F Sep 7

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    sometimes I get very easily distracted and can't focus on one thing at a time. It's partly due to my insomnia and that I don't let myself get out much unless I have to go somewhere...
    ajrestless ajrestless 22-25, F Sep 7

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    Once again i cant seem to fall asleep and i have migraine , stomachache and I'm nauseas ...
    mimilsu mimilsu 18-21, F 2 Responses Sep 8

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    have been for awhile. It gets boring this late at night. Anyone care to chat? non-sexual. Male or Female any age.
    MaxSinner MaxSinner 31-35, M Sep 8

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    have been for awhile. It gets boring this late at night. Anyone care to chat? non-sexual. Male or Female any age.
    MaxSinner MaxSinner 31-35, M Sep 8

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    A QUICK BREAK DOWN: BI-POLAR TWO It is more than just plain depression, but never delusional or psychotic (in some cases) the "up" moods never reach full blown mania...
    SassyBabe39 SassyBabe39 41-45, F 1 Response Sep 8

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    I haven't slept properly in 2 years on and off and every time the non sleeping spells grow larger and larger. I'm in grade 11 about to start grade 12. How am I s'posed to do this...
    lennyera lennyera 16-17, F 3 Responses Sep 11

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    When I was younger my family thought my mother had bipolar disorder. I grew up in a behavioral mess of bad decisions my mother had continuously made. When I was 8 my mother...
    tswmcgee tswmcgee 26-30, F Sep 16

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    Majority of the time I notice that I am awake late as hell...doesn't matter if I have to get up extra early either, I'm still up. & to me the next day doesn't count until I go to...
    shemarose shemarose 22-25, F 1 Response Sep 18

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    This is ruining my life. Impulses I can't control. Anger I cant maintain. Such deep brutal feelings. Scars from head to toe, self inflicted, done so I didn't have to feel my...
    skinfeeder skinfeeder 26-30 3 Responses Sep 20

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    I lay on the floor, begging life for mercy.. I've done what any regretful person has done in his life. I conquered and I failed you. I failed them all. I feel naked inside my...
    A888888 A888888 26-30, F Sep 20

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    It comes and goes. Last night, went to bed a little earlier than I have been lately and fell asleep right away. Woke up at 3 am. I was lying there and realized my dogs were barking...
    Env06 Env06 26-30, F 3 Responses 6 days ago

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    I have to get up in 2 minutes, it's not usually this bad. But I've had for as long as I can remember.
    NightWalker6676 NightWalker6676 13-15, F 4 days ago

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    Ughhh.. I cant sleep or stay asleep and i usually have a pretty packed day. It sucks
    Mkeely Mkeely 13-15, F 1 Response 3 days ago

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    To sleep or not to sleep, insomnia is the answer
    PoeticMute PoeticMute 31-35, M 1 Response 21 hrs ago

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    Me too. I am insomniac. I sleep at day and lay awake all night.
    kiddishguy kiddishguy 26-30, M 1 Response 14 hrs ago

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    I have a lot of things. It's weird how I go on my daily life blending in with everyone else while my head is so chaotic. I have split personality: the other personality I have is...
    ponycupcake ponycupcake 18-21, F 4 hrs ago

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    My whole life my younger brother and I have had our ups and downs and his always made me feel like crap but lately since his had a new girlfriend things have gotten worse. Last...
    Mamooshka Mamooshka 18-21, F 5 hrs ago

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