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I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

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    I have insomnia and can't sleep. Them again that's apparent since I have INSOMNIA. duh, I feel kinda stupid. I am starting to get used to it and I can stay awake until 4 in the...
    Firtreegirl Firtreegirl 13-15, F 3 Responses Jul 17

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    I'm an insomniac. I want a good nights sleep for once
    KylieLaine KylieLaine 18-21, F 1 Response Jul 20

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    I'm suffering from insomnia. It's 3:25 a.m, but I'm still awake. A tired night or morning. :(
    Ssuyu Ssuyu 22-25, F 1 Response 4 days ago

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    I stay up late. I can't sleep well. i have this insomnia since i was 12.
    RubyR21 RubyR21 18-21, F 3 Responses Jul 6

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    And the insomnia hits hard again, wide awake. Last night fell asleep around 4 am. I have to be up today at 6:30 am. So I really hope I can get some sleep. :/ I took some melatonin...
    TheSongPlaysWithin TheSongPlaysWithin 16-17, F Jul 9

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    I used to shower with my older cousin. She's right years older than me and I don't know why I was so fond of her. It's become familial love now
    Kimbahbay Kimbahbay 16-17, F 2 Responses Jul 14

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    I have insomnia, it's 4:57am right now and my alarm is set for 5:30. I haven't gotten any sleep yet tonight, it's not from a lack of trying, I've been trying to get to sleep all...
    misspaperwait misspaperwait 22-25, F 2 Responses Jul 18

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    It's pretty bad sometimes. I'm afraid of taking too much medication because of my insomnia.
    SaraRose0616 SaraRose0616 16-17, F 1 Response Jul 18

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    My insomnia ok not 2 bad. I'm mostly kept up because my mind is loud at night. I think way 2 much and I over think things. I hate it
    hennyforyourthoughts hennyforyourthoughts 18-21, F Jul 19

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    Hyperthyroidism, especially when it is misdiagnosed or let to run rampant, is a very dark disease. It really messes with your mind and when you combine it with the incredible...
    hcafaculty hcafaculty 46-50, M 1 Response Jul 21

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    meandro meandro 26-30, M 2 Responses a week ago

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    It's 2:01 A.M. here and I'm not asleep yet. Having insomnia sucks.
    BloodRedDarkness BloodRedDarkness 16-17, F 2 Responses a week ago

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    Insomnia seems to be a very lonely affliction. It just seems to be me against the slumbering world every night. I lay awake in my bed knowing that I will have to pretend that...
    alisemichelle alisemichelle 16-17, F 1 Response a week ago

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    Insomnia+early morning construction(that lasts all day)=insanity Fall asleep around 5, construction comes at 6:30, sometimes earlier/later by half an hour, every day but Sunday...
    Heartbeatangel Heartbeatangel 18-21, F 1 Response 5 days ago

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    Insomnia. My old nemesis. My old friend.
    Handyman25 Handyman25 22-25, M 1 Response 5 days ago

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    keenan01 keenan01 41-45, F 2 Responses 2 days ago

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    TryingToLoveLifeNow TryingToLoveLifeNow 18-21, F Jul 4

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    What pills are the best to overdose on that will cause fatality? Please only proper human like answers, and only over the counter drugs.
    lostunit lostunit 26-30, M 3 Responses Jul 5

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    I have my outgoing side. That's my charming side, the charismatic side, the part of me that is skilled at manipulating. And then I have my dangerous side. That's my murderous...
    DarkSoulInsaneHeart DarkSoulInsaneHeart 13-15, F 1 Response a week ago

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    Bird488 Bird488 26-30, F 5 Responses 3 days ago

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    I'm pretty maxed out on the loss/death abuse department. I used to abuse drugs pretty heavy. I got the habit from my family who gave me drugs for the first time when I was 9 yrs...
    OutcastBlacksheep OutcastBlacksheep 36-40, F Jul 21

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    I am a extremely secret person so I think I enjoy this site most of all because I have a place I can let things off my chest yet still be anonymous to some degree. Anyways; with...
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    I have not slept in 3 nights. and the 4th night is half way over.... I think I may be having some hallucinations too...
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    Just another night; a long, dragged out night. Over the past 2-3 weeks, the most sleep in one night I've had was 6 hours. My average is 2-4 hours. Why haven't i KO'd with tiredness...
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    idkhby idkhby 13-15, F 1 Response Jul 15

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    rottenroses rottenroses 16-17, F 1 Response Jul 17

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    Kman4You Kman4You 36-40, M Jul 17

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    ajrestless ajrestless 18-21, F Jul 20

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    Santi0924 Santi0924 18-21, M Jul 22

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    dirtbiker1254 dirtbiker1254 22-25, F 1 Response Jul 24

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    with insomnia you are never really asleep... and never really awake
    Insomniac77 Insomniac77 16-17, M a week ago

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    Theworldismyhell Theworldismyhell 18-21, F 1 Response a week ago

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    5:30 AM still haven't fallen asleep.
    TheSongPlaysWithin TheSongPlaysWithin 16-17, F 1 Response a week ago

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    Couldn't sleep tonight :( Found this app. I feel like talking to someone but feel like I should ignore all thoughts I have at this hour. You know? :P ah well. Hope everyone on...
    Protosan Protosan 16-17, F 6 days ago

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