Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

    Your Response

    Cancel

    Related Experiences

    So you guys said I should go and start doing a dream journal on here so this is for last night (Aug 1st to Aug 2nd). The dream itself was separated into 4 different dreams. It...
    IndigoGamer IndigoGamer 16-17, M 40 mins ago

    Your Response

    Cancel
    Haven't slept for 2 nights. I feel anxious and don't know what to do
    steve6352 steve6352 51-55, M 1 hr ago

    Your Response

    Cancel
    Recently I have been staying at my parents' place, partly because the return payment for my still-active student loan has increased dramatically and there are too many things I can...
    Jugemu Jugemu 31-35, M 1 hr ago

    Your Response

    Cancel
    It's not by my choice really but it's hard to lose it when you have to explain to people who and what you are. It's not like I can hide my situation. I have to tell them. But I...
    alex2123 alex2123 18-21, T 1 hr ago

    Your Response

    Cancel
    I have incredible low self worth. I have been through a lot in my life, and I realize that I haven't lived that long of a life, but when your whole life you are made to believe...
    AlliesWorld AlliesWorld 22-25, F 3 Responses 1 hr ago

    Your Response

    Cancel
    I will be having surgery, on my big toe, soon. It has taken visits to three different doctors to finally get someone to agree that there is indeed something under the skin that...
    Koala1964 Koala1964 51-55, M 1 hr ago

    Your Response

    Cancel
    I should have moved out the second I turned 18, but I was trapped by my own fear and the emotional control he had over me, and I stayed for another three years. When my mom finally...
    TrueBlue94 TrueBlue94 18-21, F 3 hrs ago

    Your Response

    Cancel
    I have recently learned that my mother is a narcissist. I have endured such terrible abuse from her, often so subtle. So many years I tried to forgive her but this last incident...
    SisterJudahWarrior777 SisterJudahWarrior777 26-30, F 1 Response 5 hrs ago

    Your Response

    Cancel
    I am nice guy. but if you push me I have been known to have a bad temper.
    kenimerftravis3 kenimerftravis3 18-21, M 1 Response 6 hrs ago

    Your Response

    Cancel
    I can't get a formal diagnosis of BDD because my flaws aren't imaginary, they're not minor and there's nothing I can do about it so I don't try. I have three beautiful sisters and...
    arachnoalae arachnoalae 26-30, F 7 hrs ago

    Your Response

    Cancel
    Well I don't have a pimp but I think I need one I have no parents I'm a foster kid and yeah I'm not a hooker yet but I want to become one I just need help getting started
    ashleyyhanson ashleyyhanson 13-15, F 2 Responses 7 hrs ago

    Your Response

    Cancel
    Ok first, do not judge me... I have always been attracted to older men, ever since I began experience arousing thoughts. I was very sheltered but still always fantasize about...
    naughtyprincessbaby naughtyprincessbaby 18-21, F 7 hrs ago

    Your Response

    Cancel
    I changed a lot since I left EP. Nice to see how everything can change within a year. I guess at some point you just realise that some changes are inevitable and life has a lot...
    Rainatmidnight97 Rainatmidnight97 18-21, F 7 hrs ago

    Your Response

    Cancel
    Truth is, I'm scared. And when irrational anxiety meets boredom I guess what you get is me. I barely know who I am sometimes, because I can't really be sure of what exactly...
    Rainatmidnight97 Rainatmidnight97 18-21, F 1 Response 8 hrs ago

    Your Response

    Cancel
    I have been trying to cheat on my wife for a year but it never seems to work out. I don't really know if I sabotage it on purpose or just truly haven't found a woman who I thought...
    xjayx00 xjayx00 36-40, M 8 hrs ago

    Your Response

    Cancel
    Ra, oa, eds, fibro, degenerative disc disease.... bipolar, DID. what can't be seen kills me inside. my body literally hurts non stop everywhere. Some things help like meds, yoga...
    crazybipolarchick crazybipolarchick 36-40, F 1 Response 11 hrs ago

    Your Response

    Cancel
    Also I have learned that looking at a computer screen, or phone screen, at the bright light before going to bed makes it harder for your brain to fall asleep when you want to...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 3 Responses 22 hrs ago

    Your Response

    Cancel
    Also--is anyone here aware they may have sleep apnea? Which is a blockage of the airways that makes you wake up and take a breath while you're in deep sleep? I was having it for...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 1 Response 22 hrs ago

    Your Response

    Cancel
    I would like to share with everyone this healer who has helped me and my family and my friends, who has also helped people become completely cured of insomnia as well as other...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 22 hrs ago

    Your Response

    Cancel
    Here is a little trick that I have found actually works for falling asleep for me--hope it works for you. It's a breathing technique: http://www.byrdie.com/how-to-fall-asleep...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 22 hrs ago

    Your Response

    Cancel
    I'm going to die a slow, painful, agonizing death from all this insomnia I've been having.
    ERMAHGERD1 ERMAHGERD1 22-25, F 4 Responses 1 day ago

    Your Response

    Cancel
    HELP. i look so terrible now. I have been having insomnia and depression. I skip school and isolate myself. I stopped doing the things i've liked. My self-esteem has dropped a lot...
    TJLK TJLK 18-21, F 2 days ago

    Your Response

    Cancel
    I am basically nocturnal right now. I keep trying to reverse it... I better get my sleep schedule back in order because I'm going to have to be getting up at 6:30 once the semester...
    starling156 starling156 18-21, M 2 Responses 4 days ago

    Your Response

    Cancel
    "Insomnia" is too pretty a word. It should be called "Newark."
    mokele mokele 31-35, M 4 days ago

    Your Response

    Cancel
    Instead of trying to get me or my siblings back after being put in foster care my mother enjoyed her new-found independence sans children. She met and married my now deceased...
    Aries323 Aries323 18-21, M 6 days ago

    Your Response

    Cancel
    Hi I am 16. I have been ruminating for as long as I can remember, but always thought it was normal for everyone. Well when I realized it was not, I felt ashamed and tried to hide...
    Girlnamedgirl Girlnamedgirl 16-17, F 2 Responses a week ago

    Your Response

    Cancel
    Man, I had a case last night, it was terrifying! Usually, now that I know what it is I can handle it; but last night I was in a deep sleep and I heard a voice I didn't recognize...
    HeyThereHeather HeyThereHeather 26-30, F 4 Responses Jul 24

    Your Response

    Cancel
    My Name is ****** ******. I'm 14 and My mother has Personality Disorder (PD) and my father has Borderline Personality Disorder (BPD). Both my parents are also alcoholics along with...
    sophieharperlee sophieharperlee 18-21, F Jul 24

    Your Response

    Cancel
    I have chronic insomnia I have since I was diagnosed with hydrocephalus they wanted to try to do an ETV which is when they remove a piece of your brain so you have another hole but...
    musicspeakstome musicspeakstome 18-21, F 1 Response Jul 23

    Your Response

    Cancel
    I found this website when I was searching for people's experiences with a related treatment, ECT. I noticed that a lot of people have posted here about getting ECT, but there are...
    WendyTN WendyTN 36-40, F 1 Response Jul 21

    Your Response

    Cancel
    it can get real bad if i dont have something to help me sleep. i asked for a pill to help me sleep and was given a placebo. of course it didnt work at all. so here marks day two...
    sutsuki sutsuki 16-17, F 3 Responses Jul 21

    Your Response

    Cancel
    Just an update on this little experiment called 'I need to change major things in my life so I don't try to snub it out again,' I've been awake now for almost 2 whole days and in...
    SoberingBabySteps SoberingBabySteps 31-35, M Jul 20

    Your Response

    Cancel
    These past few days, I practically lost all my tastes in foods. I don't feel like eating , you know and another thing, I feel like I am starting to have insomnia again and I feel...
    19chum 19chum 18-21, M 5 Responses Jul 19

    Your Response

    Cancel
    Curse you insomnia you have won again! At least I don't have to go or do anything today!
    slimmmerman slimmmerman 41-45, M 1 Response Jul 19

    Your Response

    Cancel
    I have really bad insomnia. I just can't sleep it's abnormal like I'm not suppose to sleep. It's so bad I feel tired but my body doesn't want to sleep and I find myself up for over...
    Shilfer Shilfer 16-17, F 1 Response Jul 18

    Your Response

    Cancel
    Granulomatosis with polyangiitis (GPA) or formerly known as Wegener's Granulomatosis. It started...ooooooooohhhh I really duno. probably SOMEWHERE between or after December 2014...
    Juls4 Juls4 18-21, F Jul 18

    Your Response

    Cancel
    its about 4:30am and my insomnia is just at its worse. going to the docs again but they don't do anything. 8 years and counting here's to a sleepless night!
    yocallmemark yocallmemark 16-17, T 1 Response Jul 17

    Your Response

    Cancel
    haven't been on here in a long time. cant fall asleep my anxiety and depression has come back i feel like I'm falling in a black hole again. it helps just to write this out even if...
    ledsteven95 ledsteven95 18-21, M 1 Response Jul 16

    Your Response

    Cancel
    Today I slept tell 238 because I haven't been feeling good when I finally get up... Everyone is being so load and my baby sister just slammed her baby dolls head into my foot that...
    auroradennen auroradennen 16-17, F Jul 15

    Your Response

    Cancel
    Sleep with me. No, seriously. If you can put up with me, your contractual agreement as my friend should be to sleep with me. Not **** me, but actually do me the favour of lending...
    WithoutChemicals WithoutChemicals 18-21, F 6 Responses Jul 14

    Your Response

    Cancel