Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Fatal Familial Insomnia

A Fatal Familial Insomnia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fatal Familial Insomnia. You're not alone. 3 People

    Me First!!! Whoopee!!!

    SO I GET TO SHARE THE FIRST STORY ON THIS GROUP. I WAS DIAGNOSED WITH FATAL FAMILIAL INSOMNIA 3 MONTHS AGO. I HAVE ALWAYS BEEN EXTREMELEY SUICIDAL, AND THE PANIC ATTACKS AND THE FEARS, AND ALWAYS FEELING PARANOID. WELL, THATS NOT HELPING. I ONLY SEE ONE OTHER MEMBER TO THIS...
    deleted deleted 26-30 5 Responses Jan 26, 2013

    Your Response

    Cancel

    Related Experiences

    On my second pair of earphones in about just over a month which lasted only a few days. It breaks super quick in one ear. One ear is much quieter and it disrupts me sleep. I am...
    1lonelydaisy 1lonelydaisy 41-45 2 Responses 15 hrs ago

    Your Response

    Cancel
    insomnia was acting up last night. i hate insomnia!!! i think i slept 3 hrs last night. ughhh!! :/
    WickedlilAngel WickedlilAngel 31-35, F 2 Responses Feb 8

    Your Response

    Cancel
    another insomnia night... i'm so exausted and sleepy.. but i can't sleep...sign
    JerryJerryA JerryJerryA 31-35, F 3 Responses Feb 7

    Your Response

    Cancel
    yeah I crashed last night and completely passed out. Ladies and Gentlemen I present to you the struggles of insomnia
    thegroundisup thegroundisup 13-15, F 3 Responses Feb 9

    Your Response

    Cancel
    OMG, if I don't get some sleep I'm gonna go nuts. I've been able to get about 3-4 hours sleep at night lately and I know it's a huge improvement from being up 3-4 nights in a row...
    thumper15 thumper15 18-21, F 1 Response Feb 10

    Your Response

    Cancel
    I have been a diagnosed insomniac for about a year. I have suffered longer. I also struggle with anxiety & depression. Lately I have been worse than ever. I lost my job due to a...
    REF2494 REF2494 18-21, F 2 Responses Feb 12

    Your Response

    Cancel
    So lately I've been falling asleep around 8-9am and sleeping for like 12 hours. I feel like my body is immensely stressed out and this is its way of coping. I really need to get...
    WynonnaMarye WynonnaMarye 18-21, F Feb 14

    Your Response

    Cancel
    Oh no...!! Insomnia again... :((
    ShanaiyaGrey ShanaiyaGrey 22-25, F 2 Responses Feb 19

    Your Response

    Cancel
    I hate having insomnia it seems I can never get a decent sleep my mind won't turn off.
    michellesydney michellesydney 18-21, F 1 Response 4 days ago

    Your Response

    Cancel
    I hate having insomnia... It screws over my sleeping habits so badly to where I'm sleeping during the day and waking up around 1-3am.....
    Protonyx Protonyx 16-17, M 1 day ago

    Your Response

    Cancel
    I have recently been diagnosed with Meningitis/Mycoplasma pneumonia encephalitis. I try to google this disease and BARELY find anything about it. What I do read scares the crap...
    amiedawn419 amiedawn419 36-40, F Feb 11

    Your Response

    Cancel
    Teach me how to fight I'll show you how to win you're my mortal flaw and I'm your fatal sin let me feel the sting the pain the burn under my skin. Put me to the test I'll prove...
    mewmewoops mewmewoops 18-21, F a week ago

    Your Response

    Cancel
    I'm confused on what to write about. I'm confused in this stage of our relationship, and I don't know who to ask. I hope I can get feedback and advice from people here who has...
    svetlanadavina svetlanadavina 22-25 5 days ago

    Your Response

    Cancel
    Usually I do not have a reason why I stay up late at night. But now I do, thanks to the gruesome images and videos of some deaths that I have watched which were caused by war...
    BloviatingBuffoon BloviatingBuffoon 70+, F 3 Responses Jan 30

    Your Response

    Cancel
    My whole life I knew I was different but could never put my finger on it. It just always seems like everyone else has it so much easier, and I don't mean with materialistic things...
    lilikeamonument lilikeamonument 26-30, F Feb 1

    Your Response

    Cancel
    The only way I can sleep is with sleeping pills and alcohol. ..I know it's not healthy but I have to go to work...I take over the recommended dosage. ..Sometimes six at once...
    buttaflykixx buttaflykixx 36-40, F Feb 1

    Your Response

    Cancel
    I keep waking up in the night. I keep claiming it's due to insomnia but I don't think it's as simple as that I'm sure some therapist would call it post traumatic stress.   I...
    lilygeorge12 lilygeorge12 22-25, F 1 Response Feb 1

    Your Response

    Cancel
    At long last I have I have a name and description for my inability to fall asleep till the wee small hours and I have made an appointment with a Sleep Disorder Doctor to confirm my...
    midnitemind midnitemind 70+ Feb 1

    Your Response

    Cancel
    I used to have hyperthyroidism and struggled with heat and sweat, winter and windy weather was my only favorite time, now after having my thyroid under control and I rarely ever...
    52hell 52hell 26-30, F Feb 2

    Your Response

    Cancel
    I can't sleep because I have nightmares or because after im done cutting myself I cry because I feel alone because I feel like no one cares
    Razziness Razziness 13-15, M 2 Responses Feb 3

    Your Response

    Cancel
    I wish I was one of those people that fall asleep as soon as they close their eyes. I have to toss & turn, and stretch and think about my entire day and wonder why the cashier...
    AEHeroine AEHeroine 18-21, F 3 Responses Feb 4

    Your Response

    Cancel
    I have always had a problem with sleeping through the night or staying asleep but this last week has been the worst. a hour here and there, I have tried melatonin, sleeping pills...
    rose2416 rose2416 31-35, F 3 Responses Feb 6

    Your Response

    Cancel
    Up late again... everyone tells me how unhealthy it is to do what I'm stuck doing at my age. But how can I sleep? I can't help but think so much this late at night... what else is...
    KaylaVB19 KaylaVB19 16-17, F 2 Responses Feb 9

    Your Response

    Cancel
    I am up right now because I was sooooo stressed I haven slept in two days hahahaha crap
    sadnesskillsme sadnesskillsme 13-15, F Feb 12

    Your Response

    Cancel
    Ehh. I wouldn't say it's messed up, but more like a scattered sleep schedule... I never get to sleep around the same times, or get the same hours of sleep every night, simply...
    BananaSmoothiee BananaSmoothiee 18-21, F Feb 12

    Your Response

    Cancel
    I haven't had a fulfilling sleep in so long that it's now become so normal.
    rickyrosa rickyrosa 22-25, M Feb 12

    Your Response

    Cancel
    8:30 AM and I haven't slept. Not even tired yet. :/ Ugh..
    MrCutBleedSmile MrCutBleedSmile 18-21, M Feb 14

    Your Response

    Cancel
    I can't sleep and like my friends are over RN and both of them are asleep ugh I have no one to talk to xD
    thegroundisup thegroundisup 13-15, F Feb 15

    Your Response

    Cancel
    I am on probation because my school doesn't think 49 hours with out sleep is a valid excuse to stay home. the school said I can control when I sleep its not like I am sick. after...
    Mybiscuits Mybiscuits 16-17, F 3 Responses Feb 17

    Your Response

    Cancel
    It just feels awful and I wish I could take this feeling out of me. I hate the cycle, I hate the tenseness, I hate the nerves... but most of all, I hate having to pretend like...
    loresmom loresmom 41-45, F Feb 18

    Your Response

    Cancel
    I have to take a hot bath and relax before bed, otherwise it's impossible for me to fall asleep.
    themagicalrose themagicalrose 18-21, F 2 Responses Feb 18

    Your Response

    Cancel
    Man I am so tired I could close my eyes right now. I managed to get new earphones two weeks ago but those were faulty and I couldn't use them. My mother bought me a new pair about...
    1lonelydaisy 1lonelydaisy 41-45 5 days ago

    Your Response

    Cancel
    I haven't slep more than five hours in the past couple days. I am extremely exaughsted but yet I can't seem to fall asleep. I lay in bed trying to get some shut eye but nothing...
    SunshineLaura SunshineLaura 18-21, F 2 Responses 5 days ago

    Your Response

    Cancel
    So much so that sometimes I wake up in the middle of the night with random thoughts and I can't get back to sleep. My mind is working on overdrive. Last night I was reading about...
    Welllaugh Welllaugh 36-40, F 3 Responses 5 days ago

    Your Response

    Cancel
    Friday night I slept 4 hours, Saturday night for an hour and a half and that's it. Haven't slept since then and now it's tuesday night, almost 1:30am. My eyes burn, probably not...
    thumper15 thumper15 18-21, F 2 days ago

    Your Response

    Cancel
    “A country divided against itself can not long endure.” That goes for a company, a couple or a family. That doesn’t mean everyone should have the same opinion, I don’t...
    lasergraph lasergraph 61-65, M 1 Response 9 hrs ago

    Your Response

    Cancel
    It's healing now. My bags are packed, light and heavy. The smell of you is almost gone. I'm scared of your darkness. But see you won't win. I still believe in love. I still...
    wingeyes wingeyes 31-35, F 3 Responses 9 hrs ago

    Your Response

    Cancel
    I am so scared. I have never in life been so ashamed of myself. I was diagnosed with HSV in September. After leaving an abusive relationship. I told myself I could allow myself to...
    DomTheMom DomTheMom 26-30, F 1 Response 6 hrs ago

    Your Response

    Cancel
    Ok, so this is something that has really damaged my life badly and I just need to vent it somewhere. It will be very long and I apologise for going off on tangents...
    inexperiencedguy94 inexperiencedguy94 18-21, M 3 hrs ago

    Your Response

    Cancel
    I have a Wattpad where I write about my imaginary friends, and all. I think people who have not had imaginary friends will want to have them after reading my first few parts xD I...
    ImaginaryBFF ImaginaryBFF 16-17, F 1 hr ago

    Your Response

    Cancel
    She's a pregnant 1 year old chihuahua that showed up on my doorstep. I can't keep her because I already have 2 & that's all I'm allowed to have according to my city & I don't know...
    ncon08 ncon08 18-21, F 7 Responses 15 hrs ago

    Your Response

    Cancel
    I have been shooting various weapons for 20 years now. My father is a local law enforcement officer and took us kids out to shoot on weekends at various locations. I have shot...
    brunettewifeandmom brunettewifeandmom 31-35, F 1 Response 15 hrs ago

    Your Response

    Cancel
    Idk wtf. I only have it in my room. Nowhere else in the house. I sneeze so much in my room it ruins my sleep and my "me" time. I also have a sneeze attack in my english room only...
    RainbowPastel RainbowPastel 16-17, F 15 hrs ago

    Your Response

    Cancel
    Chrohn's is the worst!! These have been the roughest 2 years of my life so far. Words can not explain my frustration with this. All I want to know is what the hell can I eat...
    beYOUtifulxo beYOUtifulxo 26-30, F 2 Responses 15 hrs ago

    Your Response

    Cancel