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I Have Fibromyalgia

Personal Stories, Advice, and Support 2,189 People

    Ive suffered for years even

    as a teen but just last year was diagnosed with fibro. Over the years it has gotten worse and I am not the type to rest nor take naps as I love to just bounce off the walls with energy. I don't like to sleep because I know the incredible pain I will be in when I awake. Ive...
    morticiaD88 morticiaD88 36-40, F 5 Responses Mar 6

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    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 41-45, F 21 Responses Apr 30, 2007

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    I have suffered from this

    since about 2000, but didn't get diagnosed until 2006. I spent years asking doctors what is wrong only to constantly be told to lose weight, or it's all in my head. I finally found a doctor who helped me, but we moved 6 months ago and my new doctor is forcing me to see a pain...
    Unappreciated05 Unappreciated05 36-40, F 2 Responses Jan 31

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    Since I had fibromyalgia I lost half of my

    friends cause they don't understand the pain I go though.. :(
    michelle199419 michelle199419 18-21, F 7 Responses Jun 18

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    Ya Learn Something New Every Day !

    No matter how much ya think ya know !  copy / pasted from wikipedia The term "fibromyalgia" derives from new Latin,fibro-, meaning "fibrous tissues", Greek myo-, "muscle", and Greek algos-, "pain"; thus the term literally means "muscle and connective tissue pain". The...
    justmarji justmarji 51-55, F 3 Responses Dec 13, 2012

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    Today has been good so far!

    My pain is manageable at the moment. We are in the middle of a long day out with the children picnicking, games and time together. First time I have been out with them in months. Hope everyone is having a blessed day! They are oh so rare! Message me anytime!
    squirllykid squirllykid 46-50, F 1 Response Jul 24

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    And Am Having The Worst Time Yet.......

    Right now is the longest I've been able to sit up and be awake .....the aches, the pain, the fatigue and guilt. Guilt is the worse in all of this as I'm not here for s / o. Everything is on him. I'm grateful he is a patient man.   
    justmarji justmarji 51-55, F 11 Responses Jan 4, 2013

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    My aunt has fibromyalgia

    and about a month ago I started getting pain that got really bad in the course of a week. It started at the bottom of my feet and slowly worked all the way up my neck. I went to the hospital because I don't have insurance and was out of state. They did a urine test said...
    searchingfar searchingfar 22-25, F 2 Responses Aug 17

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    Today I woke at 1:30 pm my insomnia kept me

    awake till 7:45am or the coffee I drink all day just trying to get enough energy to start day today it did not happen still laying down after7 hours of coffee got up to pee 3 times warmed some food for my 14 year old son and that's all haven't even been able to wash my face or...
    Winger302 Winger302 51-55, F 2 Responses Mar 24

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    As a young teen I was just constantly thrown on

    pain killers for back and hip pain. It wasn't until Nov last year it was diagnosed as Fibromyalgia. My energy levels just completely dropped and I could barely walk to the shop without being in tears on the way home from the pain. First of all they told me I have...
    XanthiaJo XanthiaJo 22-25, F 3 Responses Apr 13

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    It is so hard to do EVERYTHING.

    I get tired so easily. And exhaustion due to pain is a really crappy kind of exhaustion.
    Chuckabeth Chuckabeth 18-21 1 Response 3 days ago

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    hey im 19 and of course have fibromyalgia.

    Was wounding if anyone my age that I can talk to have fibromyalgia... please inbox me :)
    michelle199419 michelle199419 18-21, F 3 Responses Jun 6

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    I was diagonsed with fibromyalgia back 15 years

    ago and as I have gotten older it seems to have gotten worse I lay in bed at night and when go to move I am in pain sometimes I feel like I am paraylized and cannot move. I do not wish fibromyalgia on anyone it is terrible to have and your in pain more than anything else even...
    Krimsonraine Krimsonraine 41-45, F 1 Response Aug 17

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    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears 31-35, F 2 Responses Aug 1, 2007

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    Last night I could barely sleep.

    My RLS kept me up all night. I hate having to deal with that pain. It just makes me want to cry sometimes because I'm nor on medicine yet or doing any therapy, so I just have to get up and walk around until it goes away. This happens almost every night and its tough.
    thesorrybumblebee thesorrybumblebee 18-21, F 1 Response Aug 16

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    I have been sick for two years

    since I got pregnant with my daughter. Ive seen all the big doctors in big cities and no one knows whats wrong. They just know my immune system seems (out of sorts.) I am going to see a homeopathic doctor in a few weeks. I have excruciating pain in my arms and legs, and Im so...
    gypsystorms gypsystorms 36-40, F 2 Responses Feb 28

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    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

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    I Have Fibro, It Doesn't Have Me!!

    My first symptom that something was really wrong with me was March 2000 with my vision going completely blurry and my eyes were constantly in spasm. I couldn't function because I couldn't see clearly for more than a minute at a time. I had painful joints and low back pain that...
    Gma48 Gma48 46-50, F 5 Responses Jan 18, 2012

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    My days are filled with pain.

    My nights with no sleep. Everyone I thought were friends left me. All I want is someone to tell me it's going to be okay. Someone to hold me. Someone to help me see it doesn't all suck.
    johna71 johna71 41-45, M 4 Responses Jun 16

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    I'm not going to let it get between me

    and my ambitions. Ever since I was a kid I dreamed of hiking up mountains, camping in the wilderness, traveling the world and meeting people from every corner. I want to find the hidden beauty and share it, I want to soak up culture and experience like a sponge. I want to bask...
    goinganywhere goinganywhere 18-21, F 2 Responses Jul 6

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    In November 2010 I had total thyroid failure,

    after 6 months of taking medication for this I was diagnosed with Fibromyalgia , it took me 10 months to get back to work, But still during this time of returning back to work I was being diagnosed with autoimmune problems, as well as hypermobility. As of January this year I am...
    Louisek81 Louisek81 31-35, F 1 Response Feb 17

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    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-18, F 2 Responses Nov 10, 2007

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    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems 51-55, F 32 Responses Mar 10, 2007

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    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 3 Responses Apr 16, 2012

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    I was officially diagnosed with Fibro almost 2

    years ago, even though my doctor thinks I may have had it for years without proper diagnosis or treatment.
    CowboyFarmer CowboyFarmer 46-50, M 2 Responses Jan 27

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    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 17 Responses Jun 11, 2012

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    When I take muscle relaxers the next day my

    fibromyalgia pain is even worse. Does this happen to anyone else?
    psych22 psych22 22-25, F 3 Responses Aug 20

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    Please read this, very important

    and interesting - I received this message from a friend that suffers from Fibromyalgia, I really hope this is gonna help you guys: "I came across an article a few years back which focused on the Sun's flares & effects on the body. So as my illness is related to the nervous...
    RougeEtNoirPetitEtoile RougeEtNoirPetitEtoile 31-35 2 Responses May 12

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    squirllykid squirllykid 46-50, F 3 Responses Jul 28

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    Hello my name is Delores,

    I was diagnosed in 2001, it's seems to be at it's worst when I'm stressed or over doing it. I take medication and also get trigger point injection. Which is supposed too help you take less medication. Just pray that my children can understand. They say mom you are always tired...
    praying4healing praying4healing 46-50, F 10 Responses Mar 16

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    Fibromyalgia And Stress

    I'm not sure any one has made this connection ........You have to keep stress very low, as low as you can . Yesterday I went through  so much stress by way of horrible blow up with my s / o  and then the doubts and anxiety about our future together, feelings......Today, I'm...
    justmarji justmarji 51-55, F 9 Responses Jul 1, 2013

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    I have had FM for over 10 years

    and have been through more doctors in this country and several others than anyone will ever know, I really get upset when people go to doctors and as I read on here today they are told its some virus or blood disease ect, ect and on we go. I will tell you that I know my disease...
    nightseeker0 nightseeker0 56-60, M 1 Response Jan 24

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    I was just diagnosed less

    than two weeks ago with fibromyalgia. At first, I only really felt relief that finally someone had figured out what was wrong with me. But, the relief has worn off and I'm sad and scared. I don't know what this means for my life now. There's so much I wanted to do, and things I...
    Owlmaid Owlmaid 26-30, F 4 Responses Mar 3

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    I have had FM since I was 15,

    now it is so bad and with the chronic fatigue all I do is sleep or cry. I am on so much medication and it still doesn't help. My husband is so frustrated and overwhelmed. My kids are sad because they can't go on vacations with me any more. I don't play with them anymore. I am...
    squirllykid squirllykid 46-50, F 4 Responses Jul 21

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    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 5 Responses May 8, 2007

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    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01 46-50, F 25 Responses May 27, 2007

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    Just woke up in pain,

    like every other morning. I make a cup of coffee and reach for my five bottles of pills...once they kick in, I'll be able to move some more. As I wait, my muscles ache, my head is cloudy, my nerves (thanks to neuropathy) are sending me electric shocks and pulses that make my...
    michelle0808 michelle0808 31-35, F 2 Responses Aug 19

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    I am 65 and have had fibro

    since I was 33 although it took a long time for the diagnosis. I could barely move. To get out of bed was almost impossible. The aching in my muscles and joints was horrible. My upper legs have small lumps like the eraser on a pencil. The Dr said that was a common complaint...
    agautier1 agautier1 41-45, F 4 Responses Jun 15

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    Fibromyalgia

    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings 56-60, F 3 Responses Sep 15, 2010

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    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312 36-40, F 2 Responses Jun 29, 2012

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 8 Responses Mar 4

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    I feel happy and a little aggravated.

    My parents came to visit and the first thing they say is that I look good when I tell them I'm feeling ill. Don't get me wrong, I'm glad that I don't look the way I feel, but at the same time, I can't help but feel there is an undertone of disbelief when I say I feel under the...
    violetpenny03 violetpenny03 31-35, F 4 Responses Aug 11

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    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 41-45, F 9 Responses May 11, 2007

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    I need to pack up some boxes today

    and return them. I can barely bend down and my neck is aching everyone is yelling because of random crap. I am sp stressed and there are kids around which makes it worse. Kids keep talking and making all these noises and it irkes me so much. My sensitivity to weather doesn't...
    thesorrybumblebee thesorrybumblebee 18-21, F 6 Responses Aug 14

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    To All My Ep Friends

    i just wanted to let you know that i am aware of the fact that i havent been great about writing messages, reading stories etc. i dont want to use this as an excuse but i just want to explain. i have fibromyalgia. sometimes it makes me feel extremely tired, spaced out, foggy...i...
    deleted deleted 26-30 5 Responses May 29, 2011

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    I Thought You Understood......

    But why would I expect anyone who hasn't experienced the full spectrum of this chronic illness to understand that  when I say I can't do, I just can't do. Some days it takes all I've got to get out of bed. The pain, the aches, the fatigue.  The least bit of stress.   To push...
    justmarji justmarji 51-55, F 3 Responses Feb 27, 2013

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    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 18 Responses Sep 12, 2010

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 7 Responses Dec 31, 2012

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    Today has been so emotionally draining!

    I need to make a way to be apart of my life again!
    squirllykid squirllykid 46-50, F 1 Response Jul 22

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    With All The Little Special Gifts It Brings With It......

    It's been about four years since diagnosed but I know I've had it way longer than that.     Because of  the lifestyle I lived I suffer now.   The abuse / beatings / broken bones .  The poor diet because I left home at 14 and well.....what do you think,  a 14 year old run...
    justmarji justmarji 51-55, F 7 Responses Nov 10, 2012

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    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    shellleebrooks shellleebrooks 36-40, F 24 Responses Feb 7, 2012

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    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 28 Responses Jan 8, 2007

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