Post

I Have Fibromyalgia

Personal Stories, Advice, and Support 1,940 People

    I am 65 and have had fibro

    since I was 33 although it took a long time for the diagnosis. I could barely move. To get out of bed was almost impossible. The aching in my muscles and joints was horrible. My upper legs have small lumps like the eraser on a pencil. The Dr said that was a common complaint...
    agautier1 agautier1 41-45, F 4 Responses Jun 15

    Your Response

    Cancel

    I've been going through a nasty flare the last

    3 days and I just have to appreciate the tiny things I'm able to do, like going to walk in the warm water therapy pool with my mom. All my friends keep themselves busy, but I'm the lazy one that can't keep busy. It makes no difference if I want to go out and feel less like the...
    Bandgeek1025 Bandgeek1025 13-15, F 1 Response Dec 29, 2013

    Your Response

    Cancel

    I was just diagnosed less

    than two weeks ago with fibromyalgia. At first, I only really felt relief that finally someone had figured out what was wrong with me. But, the relief has worn off and I'm sad and scared. I don't know what this means for my life now. There's so much I wanted to do, and things I...
    Owlmaid Owlmaid 26-30, F 4 Responses Mar 3

    Your Response

    Cancel

    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 8 Responses Mar 4

    Your Response

    Cancel

    To All My Ep Friends

    i just wanted to let you know that i am aware of the fact that i havent been great about writing messages, reading stories etc. i dont want to use this as an excuse but i just want to explain. i have fibromyalgia. sometimes it makes me feel extremely tired, spaced out, foggy...i...
    deleted deleted 26-30 5 Responses May 29, 2011

    Your Response

    Cancel
    squirllykid squirllykid 46-50, F 1 day ago

    Your Response

    Cancel

    I'm not going to let it get between me

    and my ambitions. Ever since I was a kid I dreamed of hiking up mountains, camping in the wilderness, traveling the world and meeting people from every corner. I want to find the hidden beauty and share it, I want to soak up culture and experience like a sponge. I want to bask...
    goinganywhere goinganywhere 18-21, F 2 Responses Jul 6

    Your Response

    Cancel

    As a young teen I was just constantly thrown on

    pain killers for back and hip pain. It wasn't until Nov last year it was diagnosed as Fibromyalgia. My energy levels just completely dropped and I could barely walk to the shop without being in tears on the way home from the pain. First of all they told me I have...
    XanthiaJo XanthiaJo 22-25, F 3 Responses Apr 13

    Your Response

    Cancel

    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

    Your Response

    Cancel

    Please read this, very important

    and interesting - I received this message from a friend that suffers from Fibromyalgia, I really hope this is gonna help you guys: "I came across an article a few years back which focused on the Sun's flares & effects on the body. So as my illness is related to the nervous...
    RougeEtNoirPetitEtoile RougeEtNoirPetitEtoile 31-35 2 Responses May 12

    Your Response

    Cancel

    ...but there is hope.

    I found topical pain relief. It is essential prescription pain relief without any pills or side effects, and they have practically saved my life. If you have any questions, I highly recommend looking up his pharmacy, A&R Pharmacy. They answered all of my questions with no...
    chiefsfan37 chiefsfan37 22-25, M Jan 24

    Your Response

    Cancel

    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312 36-40, F 2 Responses Jun 29, 2012

    Your Response

    Cancel

    I have had FM for over 10 years

    and have been through more doctors in this country and several others than anyone will ever know, I really get upset when people go to doctors and as I read on here today they are told its some virus or blood disease ect, ect and on we go. I will tell you that I know my disease...
    nightseeker0 nightseeker0 56-60, M 1 Response Jan 24

    Your Response

    Cancel

    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems 51-55, F 31 Responses Mar 10, 2007

    Your Response

    Cancel

    I have had Fibromyalgia

    for 25 years, only diagnosed last year. The pain is never ending, haven't had a pain free day for years.
    cakelady1 cakelady1 56-60 2 Responses Jan 11

    Your Response

    Cancel

    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 18 Responses Sep 12, 2010

    Your Response

    Cancel

    Today I woke at 1:30 pm my insomnia kept me

    awake till 7:45am or the coffee I drink all day just trying to get enough energy to start day today it did not happen still laying down after7 hours of coffee got up to pee 3 times warmed some food for my 14 year old son and that's all haven't even been able to wash my face or...
    Winger302 Winger302 51-55, F 2 Responses Mar 24

    Your Response

    Cancel

    At the beginning of 2013,

    my physiatrist finally diagnosed me with fibromyalgia. He didn't want to say the word. He called it the "f" word, and tried to reassure me that he would use the same treatment method even if I didn't have the "f" word. Honestly, it was a relief to hear it. I'd struggled with...
    justt4m justt4m 41-45, F 2 Responses Jan 16

    Your Response

    Cancel

    I have been sick for two years

    since I got pregnant with my daughter. Ive seen all the big doctors in big cities and no one knows whats wrong. They just know my immune system seems (out of sorts.) I am going to see a homeopathic doctor in a few weeks. I have excruciating pain in my arms and legs, and Im so...
    gypsystorms gypsystorms 36-40, F 2 Responses Feb 28

    Your Response

    Cancel

    Since I had fibromyalgia I lost half of my

    friends cause they don't understand the pain I go though.. :(
    michelle199419 michelle199419 18-21, F 7 Responses Jun 18

    Your Response

    Cancel

    I Thought You Understood......

    But why would I expect anyone who hasn't experienced the full spectrum of this chronic illness to understand that  when I say I can't do, I just can't do. Some days it takes all I've got to get out of bed. The pain, the aches, the fatigue.  The least bit of stress.   To push...
    justmarji justmarji 51-55, F 3 Responses Feb 27, 2013

    Your Response

    Cancel

    And Am Having The Worst Time Yet.......

    Right now is the longest I've been able to sit up and be awake .....the aches, the pain, the fatigue and guilt. Guilt is the worse in all of this as I'm not here for s / o. Everything is on him. I'm grateful he is a patient man.   
    justmarji justmarji 51-55, F 12 Responses Jan 4, 2013

    Your Response

    Cancel

    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 7 Responses Dec 31, 2012

    Your Response

    Cancel

    Ive suffered for years even

    as a teen but just last year was diagnosed with fibro. Over the years it has gotten worse and I am not the type to rest nor take naps as I love to just bounce off the walls with energy. I don't like to sleep because I know the incredible pain I will be in when I awake. Ive...
    morticiaD88 morticiaD88 36-40, F 5 Responses Mar 6

    Your Response

    Cancel

    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 41-45, F 9 Responses May 11, 2007

    Your Response

    Cancel

    My days are filled with pain.

    My nights with no sleep. Everyone I thought were friends left me. All I want is someone to tell me it's going to be okay. Someone to hold me. Someone to help me see it doesn't all suck.
    johna71 johna71 41-45, M 4 Responses Jun 16

    Your Response

    Cancel

    Hi everybody, I was diagnosed 5 years ago with

    fibromyalgia. I have had a lot happen in my life. I think too much stress brought this syndrome on. I got married young,18, had my first son at 19 and was divorced at 20. I remarried soon after again and had another son. After a few years my marriage went south. I endured a lot...
    cyhumphries cyhumphries 36-40, F 5 Responses Jan 16

    Your Response

    Cancel

    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 15 Responses Jun 11, 2012

    Your Response

    Cancel

    I turned 40 this year

    and have always had lots of energy. I started feeling so much pain and now this flare up is kicking my butt. I'm so tired I want to sleep all day. Chiro isn't working. ):
    needsun needsun 41-45, F 2 Responses Jan 16

    Your Response

    Cancel

    I was officially diagnosed with Fibro almost 2

    years ago, even though my doctor thinks I may have had it for years without proper diagnosis or treatment.
    CowboyFarmer CowboyFarmer 46-50, M 2 Responses Jan 27

    Your Response

    Cancel

    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-18, F 2 Responses Nov 10, 2007

    Your Response

    Cancel

    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 41-45, F 21 Responses Apr 30, 2007

    Your Response

    Cancel

    I've Had Fibro Since I Was 25, I'm Now 41 and On Disability.

         Having Fibromyalgia means having lots of other problems also like: Chronic fatigue syndrome, Irritable bowel syndrome, chronic headaches, visual disturbances, and many other symptoms that pop up from time to time.      I have been...
    freefogging freefogging 41-45 2 Responses Aug 17, 2008

    Your Response

    Cancel

    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01 46-50, F 25 Responses May 27, 2007

    Your Response

    Cancel

    Ya Learn Something New Every Day !

    No matter how much ya think ya know !  copy / pasted from wikipedia The term "fibromyalgia" derives from new Latin,fibro-, meaning "fibrous tissues", Greek myo-, "muscle", and Greek algos-, "pain"; thus the term literally means "muscle and connective tissue pain". The...
    justmarji justmarji 51-55, F 3 Responses Dec 13, 2012

    Your Response

    Cancel

    I Have Fibro, It Doesn't Have Me!!

    My first symptom that something was really wrong with me was March 2000 with my vision going completely blurry and my eyes were constantly in spasm. I couldn't function because I couldn't see clearly for more than a minute at a time. I had painful joints and low back pain that...
    Gma48 Gma48 46-50, F 5 Responses Jan 18, 2012

    Your Response

    Cancel

    I Love My Job, But I Desperately Need a Change

     I am a 38-year-old journalist with fibromyalgia. I love what I do, but the stress that comes with the job is awful on my illness. The other night I worked a 14-hour day covering a court hearing for a story that's made headlines across the country.  I drove home...
    IbePraisingHim IbePraisingHim 36-40, F 2 Responses Sep 22, 2007

    Your Response

    Cancel

    My mother suffers from this monster too.

    We would always tell one another, we just want someone to understand what we live through (not sympathy), just to understand. It ruins my life! It will continue to ruin my life until I can find some way to come to terms and except what I was delt. Its poor hell! My biggest fear...
    gotakeepushnon gotakeepushnon 31-35, F Jan 19

    Your Response

    Cancel

    Today has been so emotionally draining!

    I need to make a way to be apart of my life again!
    squirllykid squirllykid 46-50, F 1 Response a week ago

    Your Response

    Cancel

    Fibromyalgia And Stress

    I'm not sure any one has made this connection ........You have to keep stress very low, as low as you can . Yesterday I went through  so much stress by way of horrible blow up with my s / o  and then the doubts and anxiety about our future together, feelings......Today, I'm...
    justmarji justmarji 51-55, F 8 Responses Jul 1, 2013

    Your Response

    Cancel

    Am I Just A Lazy Hyperchondriac, I Think I Have Fibromyalgia

       I havent seen a doctor yet. A year ago I met a lady that told me that she has fibromyalgia. All she told me was that she was tired all the time and didnt sleep good. Recently I have been so tired and in a brain fog. I get headaches more than ever and a stiff neck...
    loveonly1 loveonly1 36-40, F 13 Responses Aug 8, 2010

    Your Response

    Cancel

    Today has been good so far!

    My pain is manageable at the moment. We are in the middle of a long day out with the children picnicking, games and time together. First time I have been out with them in months. Hope everyone is having a blessed day! They are oh so rare! Message me anytime!
    squirllykid squirllykid 46-50, F 1 Response 5 days ago

    Your Response

    Cancel

    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 27 Responses Jan 8, 2007

    Your Response

    Cancel

    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 3 Responses Apr 16, 2012

    Your Response

    Cancel

    Fibromyalgia

    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings 56-60, F 3 Responses Sep 15, 2010

    Your Response

    Cancel

    hey im 19 and of course have fibromyalgia.

    Was wounding if anyone my age that I can talk to have fibromyalgia... please inbox me :)
    michelle199419 michelle199419 18-21, F 3 Responses Jun 6

    Your Response

    Cancel

    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 5 Responses May 8, 2007

    Your Response

    Cancel

    I was diagnosed a little over 13 years ago

    but have had it most of my adult life. The most difficult part of this for me is the cognitive deficit that I experience nearly every day.
    SCbeauty SCbeauty 41-45, F 2 Responses Jan 29

    Your Response

    Cancel

    Hello my name is Delores,

    I was diagnosed in 2001, it's seems to be at it's worst when I'm stressed or over doing it. I take medication and also get trigger point injection. Which is supposed too help you take less medication. Just pray that my children can understand. They say mom you are always tired...
    praying4healing praying4healing 46-50, F 10 Responses Mar 16

    Your Response

    Cancel

    I have had FM since I was 15,

    now it is so bad and with the chronic fatigue all I do is sleep or cry. I am on so much medication and it still doesn't help. My husband is so frustrated and overwhelmed. My kids are sad because they can't go on vacations with me any more. I don't play with them anymore. I am...
    squirllykid squirllykid 46-50, F 4 Responses Jul 21

    Your Response

    Cancel

    Constant Pain

      I would like to share my fibromyalgia story. I was diagnosed with fibromyalgia in 1999. At that time I thought the pain was horrible. Little did I know that it would get worse during the years. The pain now is like having flu symptoms. The aches and pains are...
    selky56 selky56 56-60, F 1 Response Jul 24, 2007

    Your Response

    Cancel

    I have both Fibromyalgia

    and MS. I have tried to manage my pain and fatigue through natural solutions, but I have lately had to begin using multiple medications to manage my symptoms. However, I have found yoga as another good way to manage daily pain and fatigue. I hope this can help someone as it has...
    writtenonmyheart writtenonmyheart 22-25, F Jan 10

    Your Response

    Cancel

    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    shellleebrooks shellleebrooks 36-40, F 24 Responses Feb 7, 2012

    Your Response

    Cancel