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I Have Fibromyalgia

Personal Stories, Advice, and Support 2,874 People

    Is anyone else out there looking forward to the

    movie "Cake" where Jennifer Aniston plays Claire, a chronic pain patient? I'm definitely going to go see it in the theaters. I'm really hoping they portray someone living w/chronic, intractable, invisible pain in a way that the rest of society can finally understand, relate to...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 24

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    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 3 Responses Apr 16, 2012

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    I'm in so much pain today,

    I feel like my bones and muscles are on fire. I'm used to a base line of consistent pain but this is unbearable! 😖
    justjayne justjayne 41-45, F 3 Responses Dec 19, 2014

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    Anyone on here successfully claim disability?

    I can only work part time ad struggle with that at times and then other times I do alright. It seems hard to even be able to qualify. It seems one must see a doctor other than a general one and have tests to disprove other illnesses. I'm not saying I am going to try to claim but...
    searchingfar searchingfar 22-25, F 4 Responses Feb 13

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    There worst thing I have found through living

    with Fibromyalgia for years now is the severe loneliness that comes with it. Having to shut people out isolate yourself and keep it all In. Stuck between heaven and hell. I used to think it was doing me a favour. Slowing me down and taking time to put me first. Standing up for...
    Elveee Elveee 36-40, F 3 Responses Oct 25, 2014

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    Hi! I was recently diagnosed,

    and I don't think my current regimen of nortriptyline is helping. I am still in constant pain, and I have no energy. Can you all tell me what treatments work the best for you? Thanks!
    jsho86 jsho86 26-30, F 3 Responses Jan 29

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    I have certain symptoms

    that make me think I have this, but I'm not always in constant pain. I always feel in a fog state, I have difficulty concentrating or remembering things. I feel like my body is very sensitive, like any sudden movement or too much body exercise will cause me to pull a muscle. I...
    ofthisgirl90 ofthisgirl90 22-25, F 3 Responses Jan 21

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    My Husband & I were just talking about how I

    don't have the patience I used to. As a wife & mother, and especially as a L&D/Pediatrics Nurse, I was capable of tuning out annoying background noise and functioning normally. I could completely ignore babies crying, the TV turned up, people talking, the phone ringing, the dog...
    xxTayaLionessxx xxTayaLionessxx 41-45, F Dec 29, 2014

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    are any of you in Australia

    and have been through all the elimination processes.... my GPs are not helpful and I'm on a year long waiting list to see a rheumatologist.. and I'm wondering what can I get my self checked for in the meantime.... every GP iv seen keep asking me "Why do you think you need to...
    tljsmtc tljsmtc 22-25, F 3 Responses Dec 7, 2014

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    Someone shoot me right now.

    ...so much pain..tears are welling up...I can't sleep...I took benadyrl to help me sleep....I hurt so bad...why...what the hell did I ever do
    searchingfar searchingfar 22-25, F 2 Responses Feb 6

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    Fibromyalgia

    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings 56-60, F 4 Responses Sep 15, 2010

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    Some may look at me as I sometimes regrettably

    look at myself from time to time. As I sit here in pain troubled with fatigue I feel down. Yet I ask myself who would not. I want to be free to do as my mind wishes but my body doesn't allow me to do so all the time. There are times that I feel disgusted with myself for feeling...
    searchingfar searchingfar 22-25, F 1 Response Feb 11

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    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 17 Responses Jun 11, 2012

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    My whole body aches today.

    Damn it, snow and cold weather, go away.
    LoveAndPeace1321 LoveAndPeace1321 18-21, M 4 Responses Jan 30

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 6 Responses Dec 31, 2012

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 9 Responses Mar 4, 2014

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F Jan 29

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    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01 46-50, F 26 Responses May 27, 2007

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    Hello I'm Stephanie, I was finally diagnosed

    with Fibromyalgia, Rheumatoid Arthritis and a couple other health issues. I was wondering what everyone uses for the pain and also what do you do to stay awake and have energy. Thanks!!
    FallenStar87 FallenStar87 26-30, F 3 Responses Mar 17

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    I used to be someone

    who contributed to society, someone who used to matter. I made a difference in peoples lives, I saved lives, I changed lives. I was a nursing supervisor, well respected by my supervisors, co-workers, patients. I was really very good at my job. Then I was diagnosed with a benign...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 6

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    Just woke up in pain,

    like every other morning. I make a cup of coffee and reach for my five bottles of pills...once they kick in, I'll be able to move some more. As I wait, my muscles ache, my head is cloudy, my nerves (thanks to neuropathy) are sending me electric shocks and pulses that make my...
    michelle0808 michelle0808 31-35, F 4 Responses Aug 19, 2014

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    I've been reading some stories of those

    who suffer from fibro and have become so despondent from so much pain for so long, & have become so depressed from the effects of fibro on their life that they are driven to think about hurting themselves. Reading this breaks my heart. I too have been in such agonizing pain that...
    xxTayaLionessxx xxTayaLionessxx 41-45, F Dec 29, 2014

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    Yesterday and today have been

    such bad pain days. I just have problems doing much of anything. I just want to sleep constantly. It seems it's all I do now is sleep.
    ChantelSurvived ChantelSurvived 22-25, F 3 Responses Mar 29

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    I haven't been to the hospital

    since my diagnosis but last night was one of the worst I have been in a long time and my husband pretty much put me in the car and took me.. but I have never felt so lost and completely helpless... once I got there because I had been in before and obviously nothing was found it...
    tljsmtc tljsmtc 22-25, F 5 Responses Nov 25, 2014

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    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears 31-35, F 2 Responses Aug 1, 2007

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    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 17 Responses Sep 12, 2010

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    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 28 Responses Jan 8, 2007

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    I have been diagnosed with fibromylgia,

    it took doctors a year to figure it out why is was in pain! I would wake up and the pain would have moved to different parts off my body, it was so frustrating. When I got diagnosed it was still frustrating I wanted to know why I was in so much pain how or why I was suffering...
    LiilyPad LiilyPad 22-25, F 2 Responses Feb 19

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    My days are filled with pain.

    My nights with no sleep. Everyone I thought were friends left me. All I want is someone to tell me it's going to be okay. Someone to hold me. Someone to help me see it doesn't all suck.
    johna71 johna71 41-45, M 4 Responses Jun 16, 2014

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    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 46-50, F 21 Responses Apr 30, 2007

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    I have fibromyalgia and it's really frustrating

    how nobody understands how much it affects me. I'm not making it up or exaggerating the symptoms, I'm really very sick at times. It also isn't the same from day to day, week to week. Sometimes I'm doing relatively okay, other times I'm doing terrible. And my other chronic...
    UnwantedPup UnwantedPup 31-35, T 2 Responses 4 hrs ago

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    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312 36-40, F 2 Responses Jun 29, 2012

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    What do you take specifically to help with

    fibro? My doc said there are 3 options: cymbalta, nurotin, and lyrica. I tried lyrica and i had bad reactions, cymbalta I can't take because it messes with my mood as was on I then I tried to kill myself. I haven't tried nurotin...but my doc said it makes people drowsy...come...
    searchingfar searchingfar 22-25, F 6 Responses Feb 13

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    Does anyone else experience chest pain

    when they're having a flare? My chest feels heavy and tight and it hurts to breathe kind of like when you have a bad cold. I'm assuming I'm not the only one who experiences this, does anyone have any suggestions for what might help alleviate this? I got an asthma inhaler but...
    musicqueen musicqueen 26-30, F 2 Responses Jan 6

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    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 46-50, F 9 Responses May 11, 2007

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    I Have Fibro, It Doesn't Have Me!!

    My first symptom that something was really wrong with me was March 2000 with my vision going completely blurry and my eyes were constantly in spasm. I couldn't function because I couldn't see clearly for more than a minute at a time. I had painful joints and low back pain that...
    Gma48 Gma48 46-50, F 5 Responses Jan 18, 2012

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    First of all, sorry for the length of this.

    So I had an appointment for my fibromyalgia. I've been told I have it but was getting some more tests ran. I've never seen this doctor before. She was nice at first (and remained 'nice' throughout the appointment). I say 'nice' because some of the stuff she said to me really...
    ChantelSurvived ChantelSurvived 22-25, F 2 Responses Mar 31

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F Jan 29

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    I had had pain in my joints & muscles

    for awhile...then it became constant. I was diagnosed with Fibromyalgia in November 2013. Some doctors & others don't believe it's a "real" disease. Well everyone is entitled to their opinion. But it IS real. It got to the point where it was pretty bad. My ex fiancee tried...
    RubyLane RubyLane 41-45, F 1 Response Dec 25, 2014

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    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems 51-55, F 32 Responses Mar 10, 2007

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    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-17, F 2 Responses Nov 10, 2007

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    I was diagonsed with fibromyalgia back 15 years

    ago and as I have gotten older it seems to have gotten worse I lay in bed at night and when go to move I am in pain sometimes I feel like I am paraylized and cannot move. I do not wish fibromyalgia on anyone it is terrible to have and your in pain more than anything else even...