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I Have Fibromyalgia

Personal Stories, Advice, and Support 2,675 People

    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 17 Responses Jun 11, 2012

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    are any of you in Australia

    and have been through all the elimination processes.... my GPs are not helpful and I'm on a year long waiting list to see a rheumatologist.. and I'm wondering what can I get my self checked for in the meantime.... every GP iv seen keep asking me "Why do you think you need to...
    tljsmtc tljsmtc 22-25, F 3 Responses Dec 7, 2014

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F 1 day ago

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    Fibromyalgia

    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings 56-60, F 3 Responses Sep 15, 2010

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    I used to be someone

    who contributed to society, someone who used to matter. I made a difference in peoples lives, I saved lives, I changed lives. I was a nursing supervisor, well respected by my supervisors, co-workers, patients. I was really very good at my job. Then I was diagnosed with a benign...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 6

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    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 28 Responses Jan 8, 2007

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    Just woke up in pain,

    like every other morning. I make a cup of coffee and reach for my five bottles of pills...once they kick in, I'll be able to move some more. As I wait, my muscles ache, my head is cloudy, my nerves (thanks to neuropathy) are sending me electric shocks and pulses that make my...
    michelle0808 michelle0808 31-35, F 4 Responses Aug 19, 2014

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F 20 hrs ago

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    Five years ago I was diagnosed with

    fibromyalgia & it absolutely ruined my life, causing me an extremely humiliating, very public fall from Grace. My symptoms effected my job performance & were misunderstood by my co-workers and supervisors alike. I believe they assumed that such a drastic change in my personality...
    xxTayaLionessxx xxTayaLionessxx 41-45, F Dec 29, 2014

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    -usually a very active,

    happy, crazy, life living kinda gal! but lately been defeated by fibromyalgia... I know fibromyalgia is said to be triggered from depression and anxiety etc but I have not, any of those. just recently diagnosed through the elimination process, I feel like there must seriously...
    tljsmtc tljsmtc 22-25, F 2 Responses Oct 25, 2014

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    Is anyone else out there looking forward to the

    movie "Cake" where Jennifer Aniston plays Claire, a chronic pain patient? I'm definitely going to go see it in the theaters. I'm really hoping they portray someone living w/chronic, intractable, invisible pain in a way that the rest of society can finally understand, relate to...
    xxLionessxx xxLionessxx 36-40, F 3 Responses 6 days ago

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    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 6 Responses May 8, 2007

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    I haven't been to the hospital

    since my diagnosis but last night was one of the worst I have been in a long time and my husband pretty much put me in the car and took me.. but I have never felt so lost and completely helpless... once I got there because I had been in before and obviously nothing was found it...
    tljsmtc tljsmtc 22-25, F 5 Responses Nov 25, 2014

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    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears 31-35, F 2 Responses Aug 1, 2007

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    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 41-45, F 9 Responses May 11, 2007

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    Whoops I ate gluten.::.

    i figured it couldn't really make it all too much worse since it is so bad right now..:I figured I would let my heart and tummy be happy....frie chicken :p....cheers to feeling crappy and moving forward
    searchingfar searchingfar 22-25, F 6 hrs ago

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F 1 day ago

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    you know what I miss.

    ... doing a big stretch and yawn!! can't now coz it sends sharp pains through my ribs. aaaah you sick fibro.
    tljsmtc tljsmtc 22-25, F 1 Response Nov 4, 2014

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    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    deleted deleted 26-30 22 Responses Feb 7, 2012

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    What are your experiences with fibromyalgia?

    How do you deal with the pain? Have you found anything that helps?
    jaimstar jaimstar 26-30, F 2 Responses Oct 25, 2014

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    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

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    Since I had fibromyalgia I lost half of my

    friends cause they don't understand the pain I go though.. :(
    shell20 shell20 18-21, F 7 Responses Jun 18, 2014

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    I had had pain in my joints & muscles

    for awhile...then it became constant. I was diagnosed with Fibromyalgia in November 2013. Some doctors & others don't believe it's a "real" disease. Well everyone is entitled to their opinion. But it IS real. It got to the point where it was pretty bad. My ex fiancee tried...
    RubyLane RubyLane 41-45, F Dec 25, 2014

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    I have certain symptoms

    that make me think I have this, but I'm not always in constant pain. I always feel in a fog state, I have difficulty concentrating or remembering things. I feel like my body is very sensitive, like any sudden movement or too much body exercise will cause me to pull a muscle. I...
    ofthisgirl90 ofthisgirl90 22-25, F 4 Responses Jan 21

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    LADIES...Does your fibromyalgia symptoms get

    worse when you know you are about to start your period? I couldn't figure out why I was being so forgetful at work or why I felt drained these last few days. Normally I can't even sleep in till past 8 and it is almost 10:30 and I keep falling asleep and only waking because my...
    searchingfar searchingfar 22-25, F 3 Responses Nov 17, 2014

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    Does anyone else experience chest pain

    when they're having a flare? My chest feels heavy and tight and it hurts to breathe kind of like when you have a bad cold. I'm assuming I'm not the only one who experiences this, does anyone have any suggestions for what might help alleviate this? I got an asthma inhaler but...
    musicqueen musicqueen 26-30, F 2 Responses Jan 6

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    I been suffering from this disease

    for years now.. I was 13 when it started. All I want you to know and to never forget is that you are not alone. Apart from that our pain will have an end one day even if it's not tomorrow. NEVER GIVE UP ! STAY STRONG! We can show the world that we're stronger than anyone else...
    alwaysshine alwaysshine 18-21, F 1 Response Sep 30, 2014

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    I am 25 yr old woman.

    .. suffered with fibromyalgia since I was 17.. i am.now 25 and still every day I am in pain. can't remember a day without pain. its getting colder and it's getting worse. so hard to explain to ppl that don't know me. Any other young sufferers our there i would love to talk ? x
    cbear89 cbear89 22-25, F 4 Responses Oct 22, 2014

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F 20 hrs ago

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    those days that you feel

    so good that you make the most out of physically is so worth the aftermath pain lol.. woke up feeling amazing so went for a swim with my daughter(2yrs) and hubs, then did some retail therapy :) then "helped" my husband put together a trampoline for my baby girl and now I'm in...
    tljsmtc tljsmtc 22-25, F 1 Response Nov 1, 2014

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    Can anyone recommend any good books

    or resources to read to help get my head around being diagnosed with Fibro? I've know for a few months now that this is what I have but I was just officially diagnosed last week. As you all know, it's a crappy diagnosis and I've spent a lot of time just being by myself, being...
    musicqueen musicqueen 26-30, F 2 Responses Nov 19, 2014

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    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 3 Responses Apr 16, 2012

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    Hi! I was recently diagnosed,

    and I don't think my current regimen of nortriptyline is helping. I am still in constant pain, and I have no energy. Can you all tell me what treatments work the best for you? Thanks!
    jsho86 jsho86 26-30, F 2 Responses 1 day ago

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 8 Responses Mar 4, 2014

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    My whole body aches today.

    Damn it, snow and cold weather, go away.
    LoveAndPeace1321 LoveAndPeace1321 18-21, M 3 Responses 11 hrs ago

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 17 Responses Sep 12, 2010

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    I've been reading some stories of those

    who suffer from fibro and have become so despondent from so much pain for so long, & have become so depressed from the effects of fibro on their life that they are driven to think about hurting themselves. Reading this breaks my heart. I too have been in such agonizing pain that...
    xxTayaLionessxx xxTayaLionessxx 41-45, F Dec 29, 2014

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    Imagine loading up a backpack with 30-50 lbs of

    rocks, sew on patches of the roughest grade of sandpaper you can find to the underside of the straps so that you get nasty sharp gouges into the soft flesh of your shoulders through whatever shirt you're wearing... ...Now, sprinkle a healthy tablespoon or so of some nice sharp...
    debbie913 debbie913 31-35, F 6 Responses Nov 24, 2014

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    To All My Ep Friends

    i just wanted to let you know that i am aware of the fact that i havent been great about writing messages, reading stories etc. i dont want to use this as an excuse but i just want to explain. i have fibromyalgia. sometimes it makes me feel extremely tired, spaced out, foggy...i...
    deleted deleted 26-30 4 Responses May 29, 2011

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    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 41-45, F 21 Responses Apr 30, 2007

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F 20 hrs ago

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    so before this illness I use to be

    so fit and healthy and active but since..... I have gained so much weight ???? so I'm going to TRY and do some light exercise today despite not even being able to hold my cup this morning *sigh * find a reason to fight for everyday because even though it might feel like a waste...
    tljsmtc tljsmtc 22-25, F 2 Responses Oct 26, 2014

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    My days are filled with pain.

    My nights with no sleep. Everyone I thought were friends left me. All I want is someone to tell me it's going to be okay. Someone to hold me. Someone to help me see it doesn't all suck.
    johna71 johna71 41-45, M 4 Responses Jun 16, 2014

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    My Husband & I were just talking about how I

    don't have the patience I used to. As a wife & mother, and especially as a L&D/Pediatrics Nurse, I was capable of tuning out annoying background noise and functioning normally. I could completely ignore babies crying, the TV turned up, people talking, the phone ringing, the dog...
    xxTayaLionessxx xxTayaLionessxx 41-45, F Dec 29, 2014

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 6 Responses Dec 31, 2012

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    There worst thing I have found through living

    with Fibromyalgia for years now is the severe loneliness that comes with it. Having to shut people out isolate yourself and keep it all In. Stuck between heaven and hell. I used to think it was doing me a favour. Slowing me down and taking time to put me first. Standing up for...
    Elveee Elveee 36-40, F 3 Responses Oct 25, 2014

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    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-18, F 2 Responses Nov 10, 2007

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    It is so hard to do EVERYTHING.

    I get tired so easily. And exhaustion due to pain is a really crappy kind of exhaustion.
    Chuckabeth Chuckabeth 18-21 3 Responses Aug 29, 2014

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    I'm not going to let it get between me

    and my ambitions. Ever since I was a kid I dreamed of hiking up mountains, camping in the wilderness, traveling the world and meeting people from every corner. I want to find the hidden beauty and share it, I want to soak up culture and experience like a sponge. I want to bask...
    goinganywhere goinganywhere 18-21, F 2 Responses Jul 6, 2014

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    I Have Fibro, It Doesn't Have Me!!

    My first symptom that something was really wrong with me was March 2000 with my vision going completely blurry and my eyes were constantly in spasm. I couldn't function because I couldn't see clearly for more than a minute at a time. I had painful joints and low back pain that...
    Gma48 Gma48 46-50, F 5 Responses Jan 18, 2012

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