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I Have Fibromyalgia

Personal Stories, Advice, and Support 2,827 People

    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 6 Responses May 8, 2007

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    Hello I'm Stephanie, I was finally diagnosed

    with Fibromyalgia, Rheumatoid Arthritis and a couple other health issues. I was wondering what everyone uses for the pain and also what do you do to stay awake and have energy. Thanks!!
    FallenStar87 FallenStar87 26-30, F 2 Responses Mar 17

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-17, F 2 Responses Nov 10, 2007

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 9 Responses Mar 4, 2014

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    What do you take specifically to help with

    fibro? My doc said there are 3 options: cymbalta, nurotin, and lyrica. I tried lyrica and i had bad reactions, cymbalta I can't take because it messes with my mood as was on I then I tried to kill myself. I haven't tried nurotin...but my doc said it makes people drowsy...come...
    searchingfar searchingfar 22-25, F 6 Responses Feb 13

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    Is anyone else out there looking forward to the

    movie "Cake" where Jennifer Aniston plays Claire, a chronic pain patient? I'm definitely going to go see it in the theaters. I'm really hoping they portray someone living w/chronic, intractable, invisible pain in a way that the rest of society can finally understand, relate to...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 24

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    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312 36-40, F 2 Responses Jun 29, 2012

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    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 17 Responses Jun 11, 2012

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    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems 51-55, F 32 Responses Mar 10, 2007

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    I have certain symptoms

    that make me think I have this, but I'm not always in constant pain. I always feel in a fog state, I have difficulty concentrating or remembering things. I feel like my body is very sensitive, like any sudden movement or too much body exercise will cause me to pull a muscle. I...
    ofthisgirl90 ofthisgirl90 22-25, F 3 Responses Jan 21

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    My Husband & I were just talking about how I

    don't have the patience I used to. As a wife & mother, and especially as a L&D/Pediatrics Nurse, I was capable of tuning out annoying background noise and functioning normally. I could completely ignore babies crying, the TV turned up, people talking, the phone ringing, the dog...
    xxTayaLionessxx xxTayaLionessxx 41-45, F Dec 29, 2014

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    I was diagonsed with fibromyalgia back 15 years

    ago and as I have gotten older it seems to have gotten worse I lay in bed at night and when go to move I am in pain sometimes I feel like I am paraylized and cannot move. I do not wish fibromyalgia on anyone it is terrible to have and your in pain more than anything else even...
    Krimsonraine Krimsonraine 41-45, F 1 Response Aug 17, 2014

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    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 17 Responses Sep 12, 2010

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    My days are filled with pain.

    My nights with no sleep. Everyone I thought were friends left me. All I want is someone to tell me it's going to be okay. Someone to hold me. Someone to help me see it doesn't all suck.
    johna71 johna71 41-45, M 4 Responses Jun 16, 2014

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    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

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    It is so hard to do EVERYTHING.

    I get tired so easily. And exhaustion due to pain is a really crappy kind of exhaustion.
    Chuckabeth Chuckabeth 18-21 3 Responses Aug 29, 2014

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    Just woke up in pain,

    like every other morning. I make a cup of coffee and reach for my five bottles of pills...once they kick in, I'll be able to move some more. As I wait, my muscles ache, my head is cloudy, my nerves (thanks to neuropathy) are sending me electric shocks and pulses that make my...
    michelle0808 michelle0808 31-35, F 4 Responses Aug 19, 2014

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    Whoops I ate gluten.::.

    i figured it couldn't really make it all too much worse since it is so bad right now..:I figured I would let my heart and tummy be happy....frie chicken :p....cheers to feeling crappy and moving forward
    searchingfar searchingfar 22-25, F 2 Responses Jan 30

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    My whole body aches today.

    Damn it, snow and cold weather, go away.
    LoveAndPeace1321 LoveAndPeace1321 18-21, M 4 Responses Jan 30

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    Someone shoot me right now.

    ...so much pain..tears are welling up...I can't sleep...I took benadyrl to help me sleep....I hurt so bad...why...what the hell did I ever do
    searchingfar searchingfar 22-25, F 2 Responses Feb 6

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    To All My Ep Friends

    i just wanted to let you know that i am aware of the fact that i havent been great about writing messages, reading stories etc. i dont want to use this as an excuse but i just want to explain. i have fibromyalgia. sometimes it makes me feel extremely tired, spaced out, foggy...i...
    deleted deleted 26-30 4 Responses May 29, 2011

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    I'm in so much pain today,

    I feel like my bones and muscles are on fire. I'm used to a base line of consistent pain but this is unbearable! 😖
    justjayne justjayne 41-45, F 3 Responses Dec 19, 2014

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    I used to be someone

    who contributed to society, someone who used to matter. I made a difference in peoples lives, I saved lives, I changed lives. I was a nursing supervisor, well respected by my supervisors, co-workers, patients. I was really very good at my job. Then I was diagnosed with a benign...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 6

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F Jan 29

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    Fibromyalgia

    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings 56-60, F 4 Responses Sep 15, 2010

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    I have fibromyalgia like millions of people.

    How many of us suffer from CFS, fibro, Lupus, arthritis, tendinitis, bursitis, gout, mental and emotional issues? Is it progressive? Yes it is and I know why. I'm not crazy I'm a 42 yr old stay at home mom with a need to fix my health. I have no affiliation with any company nor...
    fibromommy fibromommy 41-45, F Mar 5

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 6 Responses Dec 31, 2012

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    I had had pain in my joints & muscles

    for awhile...then it became constant. I was diagnosed with Fibromyalgia in November 2013. Some doctors & others don't believe it's a "real" disease. Well everyone is entitled to their opinion. But it IS real. It got to the point where it was pretty bad. My ex fiancee tried...
    RubyLane RubyLane 41-45, F 1 Response Dec 25, 2014

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01 46-50, F 26 Responses May 27, 2007

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F Jan 29

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    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    deleted deleted 26-30 22 Responses Feb 7, 2012

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    Does anyone else experience chest pain

    when they're having a flare? My chest feels heavy and tight and it hurts to breathe kind of like when you have a bad cold. I'm assuming I'm not the only one who experiences this, does anyone have any suggestions for what might help alleviate this? I got an asthma inhaler but...
    musicqueen musicqueen 26-30, F 2 Responses Jan 6

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    Imagine loading up a backpack with 30-50 lbs of

    rocks, sew on patches of the roughest grade of sandpaper you can find to the underside of the straps so that you get nasty sharp gouges into the soft flesh of your shoulders through whatever shirt you're wearing... ...Now, sprinkle a healthy tablespoon or so of some nice sharp...
    debbie913 debbie913 31-35, F 11 Responses Nov 24, 2014

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    Pain changes a person.

    Physical pain has done me in lately. Though I have suffered from mental And physical. It changes who I am, who I want to be. Some captain only makes you stronger but I don't agree, not entirely. My eating habits have gone to Shiite..I can't go forwakks...I am drinking more..tho...
    searchingfar searchingfar 22-25, F 1 Response Feb 10

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    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 28 Responses Jan 8, 2007

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    Someone please shoot me

    and put me out of this misery
    searchingfar searchingfar 22-25, F 2 Responses Feb 10

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    Anyone on here successfully claim disability?

    I can only work part time ad struggle with that at times and then other times I do alright. It seems hard to even be able to qualify. It seems one must see a doctor other than a general one and have tests to disprove other illnesses. I'm not saying I am going to try to claim but...
    searchingfar searchingfar 22-25, F 4 Responses Feb 13

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    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears 31-35, F 2 Responses Aug 1, 2007

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    Some may look at me as I sometimes regrettably

    look at myself from time to time. As I sit here in pain troubled with fatigue I feel down. Yet I ask myself who would not. I want to be free to do as my mind wishes but my body doesn't allow me to do so all the time. There are times that I feel disgusted with myself for feeling...
    searchingfar searchingfar 22-25, F 1 Response Feb 11

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    Five years ago I was diagnosed with

    fibromyalgia & it absolutely ruined my life, causing me an extremely humiliating, very public fall from Grace. My symptoms effected my job performance & were misunderstood by my co-workers and supervisors alike. I believe they assumed that such a drastic change in my personality...
    xxTayaLionessxx xxTayaLionessxx 41-45, F Dec 29, 2014

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    Hi! I was recently diagnosed,

    and I don't think my current regimen of nortriptyline is helping. I am still in constant pain, and I have no energy. Can you all tell me what treatments work the best for you? Thanks!
    jsho86 jsho86 26-30, F 3 Responses Jan 29

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    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 46-50, F 9 Responses May 11, 2007

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    Yesterday and today have been

    such bad pain days. I just have problems doing much of anything. I just want to sleep constantly. It seems it's all I do now is sleep.
    ChantelSurvived ChantelSurvived 22-25, F 4 Responses 3 days ago

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    are any of you in Australia

    and have been through all the elimination processes.... my GPs are not helpful and I'm on a year long waiting list to see a rheumatologist.. and I'm wondering what can I get my self checked for in the meantime.... every GP iv seen keep asking me "Why do you think you need to...
    tljsmtc tljsmtc 22-25, F 3 Responses Dec 7, 2014

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