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I Have Fibromyalgia

Personal Stories, Advice, and Support 3,098 People

    Imagine loading up a backpack with 30-50 lbs of

    rocks, sew on patches of the roughest grade of sandpaper you can find to the underside of the straps so that you get nasty sharp gouges into the soft flesh of your shoulders through whatever shirt you're wearing... ...Now, sprinkle a healthy tablespoon or so of some nice sharp...
    debbie913 debbie913 31-35, F 12 Responses Nov 24, 2014

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    I don't have Fibromyalgia

    but my mum does. For years she's had to put up with misdiagnoses of Arthritis Spondylosis and simply chronic back pain. Then she had to go through the years of me and my brother being kids, not understanding anything about it, we were very active. He always jumped on her for...
    thedimone thedimone 13-15, F Jul 11

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    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears 31-35, F 2 Responses Aug 1, 2007

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    I Have Fibro, It Doesn't Have Me!!

    My first symptom that something was really wrong with me was March 2000 with my vision going completely blurry and my eyes were constantly in spasm. I couldn't function because I couldn't see clearly for more than a minute at a time. I had painful joints and low back pain that...
    Gma48 Gma48 46-50, F 4 Responses Jan 18, 2012

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    I'm 22 years old, I've been having

    fatigue/depression-like symptoms/pain/muscle tension since I was around 12. Today, after a good 7 months of diagnostic work, they told me I have Fibromyalgia. I have a prescription I haven't filled yet for an antidepressant whose name I forget, and some topical cream that's a...
    r3djax r3djax 22-25, M 2 Responses 4 days ago

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    Some may look at me as I sometimes regrettably

    look at myself from time to time. As I sit here in pain troubled with fatigue I feel down. Yet I ask myself who would not. I want to be free to do as my mind wishes but my body doesn't allow me to do so all the time. There are times that I feel disgusted with myself for feeling...
    searchingfar searchingfar 22-25, F 2 Responses Feb 11

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    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312 36-40, F 2 Responses Jun 29, 2012

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    Whoops I ate gluten.::.

    i figured it couldn't really make it all too much worse since it is so bad right now..:I figured I would let my heart and tummy be happy....frie chicken :p....cheers to feeling crappy and moving forward
    searchingfar searchingfar 22-25, F 2 Responses Jan 30

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    This link gave me hope

    and later bought the book written by Dr Kevin White. Recommend reading this book if you know someone close with fibromyaglia, or are a sufferer yourself. Raising awareness to this invisible illness is key. *Gentle Hugs* https://www.youtube.com/watch?v=8RnKQSLwPqY
    debbie913 debbie913 31-35, F 2 Responses Apr 26

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    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 4 Responses Apr 16, 2012

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    Is anyone else out there looking forward to the

    movie "Cake" where Jennifer Aniston plays Claire, a chronic pain patient? I'm definitely going to go see it in the theaters. I'm really hoping they portray someone living w/chronic, intractable, invisible pain in a way that the rest of society can finally understand, relate to...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 24

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    I used to be someone

    who contributed to society, someone who used to matter. I made a difference in peoples lives, I saved lives, I changed lives. I was a nursing supervisor, well respected by my supervisors, co-workers, patients. I was really very good at my job. Then I was diagnosed with a benign...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 6

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    I have been diagnosed with fibromylgia,

    it took doctors a year to figure it out why is was in pain! I would wake up and the pain would have moved to different parts off my body, it was so frustrating. When I got diagnosed it was still frustrating I wanted to know why I was in so much pain how or why I was suffering...
    LiilyPad LiilyPad 22-25, F 2 Responses Feb 19

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    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-17, F 2 Responses Nov 10, 2007

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    Anyone on here successfully claim disability?

    I can only work part time ad struggle with that at times and then other times I do alright. It seems hard to even be able to qualify. It seems one must see a doctor other than a general one and have tests to disprove other illnesses. I'm not saying I am going to try to claim but...
    searchingfar searchingfar 22-25, F 4 Responses Feb 13

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    Hi! I was recently diagnosed,

    and I don't think my current regimen of nortriptyline is helping. I am still in constant pain, and I have no energy. Can you all tell me what treatments work the best for you? Thanks!
    jsho86 jsho86 26-30, F 3 Responses Jan 29

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    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems 51-55, F 32 Responses Mar 10, 2007

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    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 18 Responses Jun 11, 2012

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    Fibromyalgia

    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings 56-60, F 4 Responses Sep 15, 2010

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F Jan 29

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    Just woke up in pain,

    like every other morning. I make a cup of coffee and reach for my five bottles of pills...once they kick in, I'll be able to move some more. As I wait, my muscles ache, my head is cloudy, my nerves (thanks to neuropathy) are sending me electric shocks and pulses that make my...
    michelle0808 michelle0808 31-35, F 4 Responses Aug 19, 2014

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    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F Jan 29

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    Does anyone experience severe flares during

    winter? I only discovered I had fibro last winter and I knew I was more sensitive to the cold weather than before but the cold weather started coming in a few weeks ago and since then I've been experiencing the worst and longest flare yet. It's been five weeks of intense awful...
    musicqueen musicqueen 26-30, F 4 Responses May 15

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    Hi I wanted to post that I am with a company in

    the US for all natural products for various medical conditions, one product that helps inflammatory issues. We have over 30 yrs of research behind our products. If interested in learning more, message me, would be happy to share more information. Thank you
    carolgem carolgem 46-50, F May 26

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    deleted deleted 26-30 21 Responses Feb 7, 2012

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    I haven't been to the hospital

    since my diagnosis but last night was one of the worst I have been in a long time and my husband pretty much put me in the car and took me.. but I have never felt so lost and completely helpless... once I got there because I had been in before and obviously nothing was found it...
    tljsmtc tljsmtc 22-25, F 5 Responses Nov 25, 2014

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    I been suffering from this disease

    for years now.. I was 13 when it started. All I want you to know and to never forget is that you are not alone. Apart from that our pain will have an end one day even if it's not tomorrow. NEVER GIVE UP ! STAY STRONG! We can show the world that we're stronger than anyone else...
    alwaysshine alwaysshine 18-21, F 1 Response Sep 30, 2014

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    Someone shoot me right now.

    ...so much pain..tears are welling up...I can't sleep...I took benadyrl to help me sleep....I hurt so bad...why...what the hell did I ever do
    searchingfar searchingfar 22-25, F 2 Responses Feb 6

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    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 18 Responses Sep 12, 2010

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    I was diagonsed with fibromyalgia back 15 years

    ago and as I have gotten older it seems to have gotten worse I lay in bed at night and when go to move I am in pain sometimes I feel like I am paraylized and cannot move. I do not wish fibromyalgia on anyone it is terrible to have and your in pain more than anything else even...
    Krimsonraine Krimsonraine 41-45, F 1 Response Aug 17, 2014

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    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 6 Responses May 8, 2007

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    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 46-50, F 21 Responses Apr 30, 2007

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    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 28 Responses Jan 8, 2007

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    I have had the worst 3 days.

    only diagnosed 1 month ago so I'm still learning. Lyrica is a wonder drug for me. plus I take Norco too. but the last 3 days over been hurting all over and really tired (I take nuvigil for tiredness). it seems like none of my meds are working. does this happen with...
    kareenmarie kareenmarie 36-40, F 2 Responses Jul 21

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    is this condition deadly

    and is it common? just asking :)
    deleted deleted 26-30 1 Response Jul 12

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    Someone please shoot me

    and put me out of this misery
    searchingfar searchingfar 22-25, F 2 Responses Feb 10

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 9 Responses Mar 4, 2014

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    What do you take specifically to help with

    fibro? My doc said there are 3 options: cymbalta, nurotin, and lyrica. I tried lyrica and i had bad reactions, cymbalta I can't take because it messes with my mood as was on I then I tried to kill myself. I haven't tried nurotin...but my doc said it makes people drowsy...come...
    searchingfar searchingfar 22-25, F 8 Responses Feb 13

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    There worst thing I have found through living

    with Fibromyalgia for years now is the severe loneliness that comes with it. Having to shut people out isolate yourself and keep it all In. Stuck between heaven and hell. I used to think it was doing me a favour. Slowing me down and taking time to put me first. Standing up for...
    Elveee Elveee 36-40, F 3 Responses Oct 25, 2014

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    I have fibromyalgia like millions of people.

    How many of us suffer from CFS, fibro, Lupus, arthritis, tendinitis, bursitis, gout, mental and emotional issues? Is it progressive? Yes it is and I know why. I'm not crazy I'm a 42 yr old stay at home mom with a need to fix my health. I have no affiliation with any company nor...
    fibromommy fibromommy 41-45, F Mar 5

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 6 Responses Dec 31, 2012

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