I Have Fibromyalgia

Personal Stories, Advice, and Support 3,521 People

    Hi I don't personally have fibromyalgia,

    but I am with a US company for all natural products that help various medical conditions, products for pain/inflammation for instance, let me know if interested in learning more, would be happy to share more information.
    carolgem carolgem
    46-50, F
    Aug 15, 2015

    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7
    56-60, F
    16 Responses Sep 12, 2010

    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    deleted deleted
    22 Responses Feb 7, 2012

    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream
    51-55, F
    21 Responses Apr 30, 2007

    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears
    31-35, F
    2 Responses Aug 1, 2007

    Do any of you find that the older you get the

    less you can tolerate the pain. Or maybe it's not the tolerance level going down. Maybe it's that your fibro is getting worse with age. I know mine feels more severe as I get older. I was diagnosed 11yrs ago. It's gotten progressively worse over the last 4yrs and right now I'm...
    deleted deleted
    1 Response Aug 29, 2015

    Exhausted but happy to be able to be in my bed

    drinking tea and eating cookies
    deleted deleted
    Feb 17, 2016

    I have thought for years I have had

    fibromyalgia. I finally found a doctor that will listen to me. I have been checked for everything else and no one knows what's wrong with me. She put me on some meds to help and low and behold they help! Not only with my pain but my anxiety and stress. So far it's been a okay...
    maggiemae89 maggiemae89
    26-30, F
    Sep 10, 2015

    Just deal with it... Oh

    since you're always in a mood and have anxiety when I see you here you really need to take these pills. Well doc I perfected my resting ***** face while enduring my "made in my own mind" pain and suffering and topped it with sciatica and neuropathy but wait the bonus is the...
    stonergypsybang stonergypsybang
    31-35, F
    2 Responses Nov 11, 2015

    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312
    41-45, F
    2 Responses Jun 29, 2012

    I have had the worst 3 days.

    only diagnosed 1 month ago so I'm still learning. Lyrica is a wonder drug for me. plus I take Norco too. but the last 3 days over been hurting all over and really tired (I take nuvigil for tiredness). it seems like none of my meds are working. does this happen with...
    kareenmarie kareenmarie
    36-40, F
    3 Responses Jul 21, 2015

    I have fibromyalgia and it's really frustrating

    how nobody understands how much it affects me. I'm not making it up or exaggerating the symptoms, I'm really very sick at times. It also isn't the same from day to day, week to week. Sometimes I'm doing relatively okay, other times I'm doing terrible. And my other chronic...
    UnwantedPup UnwantedPup
    31-35, T
    10 Responses Apr 24, 2015

    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths
    46-50, F
    6 Responses Jul 21, 2007

    Any advice, the thing I find difficult more

    than anything else is the chronic fatigue. Has anyone successfully got through it?
    lex240293 lex240293
    22-25, F
    6 Responses Oct 28, 2015
    algezebra algezebra
    18-21, F
    Dec 13, 2015

    I'm in the process of going through a flair,

    and the recent stress I've been through doesn't help make it any easier. I have found out that my diet, when I eat healthy, makes me feel a lot better. High protein, and healthy carbs like vegetables and fruits, and backing off of soda and junk food seems to work better. I have...
    ZenLioNESS719 ZenLioNESS719
    51-55, F
    5 Responses Mar 16, 2016

    I have had it so long

    that I have given up trying to find a way to make it better.
    deleted deleted
    4 Responses Aug 1, 2015

    I been suffering from this disease

    for years now.. I was 13 when it started. All I want you to know and to never forget is that you are not alone. Apart from that our pain will have an end one day even if it's not tomorrow. NEVER GIVE UP ! STAY STRONG! We can show the world that we're stronger than anyone else...
    alwaysshine alwaysshine
    18-21, F
    1 Response Sep 30, 2014

    I suffer from hyperhidrosis

    and want to arrange a uk meetup for fellow sufferers. who would be interested?
    pbarn pbarn
    31-35, M
    Jan 22, 2016

    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461
    56-60, F
    6 Responses Nov 6, 2008

    How do you other women handle periods?

    Fibro has made me very sick and wiped out basically every day but during and right before my period I become much sicker and far more exhausted. Sleeping doesn't help as I don't feel remotely refreshed after sleeping during this time. Part of the issue is I'm overly sensitive to...
    fallenstar23 fallenstar23
    22-25, F
    1 Response Apr 13, 2016

    Just woke up in pain,

    like every other morning. I make a cup of coffee and reach for my five bottles of pills...once they kick in, I'll be able to move some more. As I wait, my muscles ache, my head is cloudy, my nerves (thanks to neuropathy) are sending me electric shocks and pulses that make my...
    michelle0808 michelle0808
    36-40, F
    4 Responses Aug 19, 2014

    I'm fed up with feeling abandoned by those

    who are supposed to love me, like my parents. I know my parents at least love me but they just call me lazy a lot and get angry that I'm sick. I've been sick for years and they've been angry at me the whole time. On top of fibromyalgia I have horrible anxiety and depression...
    fallenstar23 fallenstar23
    22-25, F
    2 Responses Apr 13, 2016

    I am barely able to walk anymore due to severe

    pain, so we are looking into by a wheelchair. For those of you that use wheelchairs, what kind are they? Are they Standard Wheelchairs(look like the ones in the hospital) , Lightweight Folding Wheelchair, or Ultra Lightweight Wheelchair?
    kikitaina kikitaina
    18-21, F
    1 Response Apr 3, 2016

    I Have Fibro, It Doesn't Have Me!!

    My first symptom that something was really wrong with me was March 2000 with my vision going completely blurry and my eyes were constantly in spasm. I couldn't function because I couldn't see clearly for more than a minute at a time. I had painful joints and low back pain that...
    Gma48 Gma48
    46-50, F
    4 Responses Jan 18, 2012

    I'm 47 but they now believe I have had fibro

    since I was about 19! My dr use to tell me I was a tense sleeper, that's why my body hurts! I have had awful headaches my entire life! Now I live with a headache all the time! I could say we were managing it but I would be lieing! I hurt in one place or the other all the time...
    Brokenangel631 Brokenangel631
    46-50, F
    2 Responses Jan 22, 2016

    I used to be someone

    who contributed to society, someone who used to matter. I made a difference in peoples lives, I saved lives, I changed lives. I was a nursing supervisor, well respected by my supervisors, co-workers, patients. I was really very good at my job. Then I was diagnosed with a benign...
    xxLionessxx xxLionessxx
    36-40, F
    3 Responses Jan 6, 2015

    I am in a lot of pain this evening,

    and I'm not sure why. I had what seemed to be the beginning of a flare a week or two ago, but I seemed to have managed to head it off by eating healthily. But perhaps it is inevitable. I hope not.
    ProfessorYaffle ProfessorYaffle
    46-50, F
    5 Responses Mar 21, 2016

    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream
    51-55, F
    9 Responses May 11, 2007

    It is so hard to do EVERYTHING.

    I get tired so easily. And exhaustion due to pain is a really crappy kind of exhaustion.
    Chuckabeth Chuckabeth
    3 Responses Aug 29, 2014

    Imagine loading up a backpack with 30-50 lbs of

    rocks, sew on patches of the roughest grade of sandpaper you can find to the underside of the straps so that you get nasty sharp gouges into the soft flesh of your shoulders through whatever shirt you're wearing... ...Now, sprinkle a healthy tablespoon or so of some nice sharp...
    debbie913 debbie913
    31-35, F
    9 Responses Nov 24, 2014

    Exhausted and having a really bad flare up

    today. All I wanna do is lay down and cry.
    EMTgirl3778 EMTgirl3778
    36-40, F
    1 Response Feb 18, 2016


    HELPED PEOPLE WITH FIBROMYALGIA: (I do not have this disease but I have seen a video of a woman who did, and I also know from loads of personal experience that this guy is legit.) Attention: free energy healing sessions given online by a man named Braco, www.braco.me. September...
    LoveIsWithinYou LoveIsWithinYou
    26-30, M
    Sep 9, 2015

    I haven't been to the hospital

    since my diagnosis but last night was one of the worst I have been in a long time and my husband pretty much put me in the car and took me.. but I have never felt so lost and completely helpless... once I got there because I had been in before and obviously nothing was found it...
    tljsmtc tljsmtc
    26-30, F
    3 Responses Nov 25, 2014


    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings
    56-60, F
    4 Responses Sep 15, 2010

    I too have fibro and arthritis.

    After years of suffering and lack of diagnosis i read a NYT article: the boy with a thorn in his joints: http://www.nytimes.com/2013/02/03/magazine/the-boy-with-a-thorn-in-his-joints.html?_r=0 I was so desperate I tried it immediately. I know it is hard to believe, but...
    bromeliad23 bromeliad23
    36-40, M
    1 Response Oct 2, 2015

    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01
    46-50, F
    27 Responses May 27, 2007

    I doubt I have Fibromyalgia,

    I have been suffering from migraine since childhood.. I always feel tired, fatigue and dizzy. The tiring feeling is always with me and it increased lately. I was in depression because of personal issues so I thought all these may be because of that.. I had no clue about this...
    dare86 dare86
    31-35, M
    Aug 30, 2015

    I am 19 years old, and I'm trying to go to

    college so I can fulfill my lifelong dream of being a pharmacist. However, a year and a half ago, I got diagnosed with Fibromyalgia. I'm currently taking 4 different medications to try and help, but I'm slowly finding that they aren't helping like they used to. I'm having...
    rockinrobyn rockinrobyn
    18-21, F
    3 Responses Sep 10, 2015

    I'm in the middle of Flairing!

    I'm wondering about pot
    deleted deleted
    3 Responses Mar 1, 2016

    Is anyone else out there looking forward to the

    movie "Cake" where Jennifer Aniston plays Claire, a chronic pain patient? I'm definitely going to go see it in the theaters. I'm really hoping they portray someone living w/chronic, intractable, invisible pain in a way that the rest of society can finally understand, relate to...
    xxLionessxx xxLionessxx
    36-40, F
    3 Responses Jan 24, 2015

    Yesterday and today have been

    such bad pain days. I just have problems doing much of anything. I just want to sleep constantly. It seems it's all I do now is sleep.
    ChantelSurvived ChantelSurvived
    26-30, F
    2 Responses Mar 29, 2015

    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela
    31-35, F
    5 Responses May 8, 2007

    First of all, sorry for the length of this.

    So I had an appointment for my fibromyalgia. I've been told I have it but was getting some more tests ran. I've never seen this doctor before. She was nice at first (and remained 'nice' throughout the appointment). I say 'nice' because some of the stuff she said to me really...
    ChantelSurvived ChantelSurvived
    26-30, F
    2 Responses Mar 31, 2015

    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie
    36-40, F
    28 Responses Jan 8, 2007

    I was just diagnosed yesterday with this.

    Today I'm having a really bad symptom day. I hate feeling like I have the flu almost all the time. I feel very suicidal because I refuse to live with this pain and torture for the rest of my existence. I've been sick since I was a teen and now I'm in my 20s. Almost no one in my...
    fallenstar23 fallenstar23
    22-25, F
    5 Responses Mar 1, 2016

    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems
    51-55, F
    32 Responses Mar 10, 2007

    Im raising money to get the wheelchair I really

    need. It would mean a lot to me if you donated:) I put the link to my gofundme page. https://www.gofundme.com/r9u3nyj8
    kikitaina kikitaina
    18-21, F
    Apr 3, 2016


    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17
    18-21, F
    2 Responses Nov 10, 2007

    Fibromyalgia is a non diagnosis

    as I call it. Dr.s don't know what is wrong just that you have a certain group of symptoms andso here is a category for you. It ticks me off be cause something serious is wrong. It effect my whole body including the function of my brain. Some days I can barely get out of bed...
    abbrafry abbrafry
    46-50, F
    4 Responses Nov 15, 2015

    I have had fibro since

    as far back as I can remember! I was physically, emotionally, and sexually abused! I have had three children! Three home births! And now two of those children are suffering with fibro and HMS! I'm considering starting pot pills!!
    deleted deleted
    1 Response Feb 14, 2016

    There worst thing I have found through living

    with Fibromyalgia for years now is the severe loneliness that comes with it. Having to shut people out isolate yourself and keep it all In. Stuck between heaven and hell. I used to think it was doing me a favour. Slowing me down and taking time to put me first. Standing up for...
    Elveee Elveee
    36-40, F
    3 Responses Oct 25, 2014

    Is it normal for fibromyalgia to make colds

    severe? I've been having a flare up since Friday. Friday I had severe fatigue and felt really sick but then I felt abnormally good the rest of the day. Saturday I was really exhausted and having waves of intense nausea. Sunday I had a terrible migraine. And last night out of...
    fallenstar23 fallenstar23
    22-25, F
    2 Responses Mar 28, 2016

    I was diagnosed with FM in 2003.

    I was tested up the wazoo to eliminate so many things because to drs here FM wasnt real. It was all in my head...just complaining...u kno the drill. Then I was sent to a doc at Ohio State University who believed in FM and ME! He recommended getting off all meds and learning to...
    Harleygirl65 Harleygirl65
    51-55, F
    1 Response Aug 19, 2015

    I'm 22 years old, I've been having

    fatigue/depression-like symptoms/pain/muscle tension since I was around 12. Today, after a good 7 months of diagnostic work, they told me I have Fibromyalgia. I have a prescription I haven't filled yet for an antidepressant whose name I forget, and some topical cream that's a...
    r3djax r3djax
    22-25, M
    4 Responses Jul 28, 2015

    I've been ill since 2003,

    and my diagnosis originally was ME (Myalgic Encephalomyelitis) to which the diagnosis of Fibromyalgia has been added, although nothing has changed. The rheumatologist I saw said that ME, Fibro and CFS are overlapping conditions with almost identical symptom lists although the...
    ProfessorYaffle ProfessorYaffle
    46-50, F
    Mar 4, 2016
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