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I Have Fibromyalgia

Personal Stories, Advice, and Support 2,494 People

    I'm not going to let it get between me

    and my ambitions. Ever since I was a kid I dreamed of hiking up mountains, camping in the wilderness, traveling the world and meeting people from every corner. I want to find the hidden beauty and share it, I want to soak up culture and experience like a sponge. I want to bask...
    goinganywhere goinganywhere 18-21, F 2 Responses Jul 6

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    I need to pack up some boxes today

    and return them. I can barely bend down and my neck is aching everyone is yelling because of random crap. I am sp stressed and there are kids around which makes it worse. Kids keep talking and making all these noises and it irkes me so much. My sensitivity to weather doesn't...
    thesorrybumblebee thesorrybumblebee 18-21, F 6 Responses Aug 14

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    Today has been so emotionally draining!

    I need to make a way to be apart of my life again!
    squirllykid squirllykid 46-50, F 1 Response Jul 22

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    Am I Just A Lazy Hyperchondriac, I Think I Have Fibromyalgia

       I havent seen a doctor yet. A year ago I met a lady that told me that she has fibromyalgia. All she told me was that she was tired all the time and didnt sleep good. Recently I have been so tired and in a brain fog. I get headaches more than ever and a stiff neck...
    loveonly1 loveonly1 36-40, F 13 Responses Aug 8, 2010

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    Constant Pain

      I would like to share my fibromyalgia story. I was diagnosed with fibromyalgia in 1999. At that time I thought the pain was horrible. Little did I know that it would get worse during the years. The pain now is like having flu symptoms. The aches and pains are...
    selky56 selky56 56-60, F 1 Response Jul 24, 2007

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    There worst thing I have found through living

    with Fibromyalgia for years now is the severe loneliness that comes with it. Having to shut people out isolate yourself and keep it all In. Stuck between heaven and hell. I used to think it was doing me a favour. Slowing me down and taking time to put me first. Standing up for...
    Elveee Elveee 36-40, F 3 Responses 5 days ago

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    so before this illness I use to be

    so fit and healthy and active but since..... I have gained so much weight ???? so I'm going to TRY and do some light exercise today despite not even being able to hold my cup this morning *sigh * find a reason to fight for everyday because even though it might feel like a waste...
    tljsmtc tljsmtc 22-25, F 2 Responses 4 days ago

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    Last night I could barely sleep.

    My RLS kept me up all night. I hate having to deal with that pain. It just makes me want to cry sometimes because I'm nor on medicine yet or doing any therapy, so I just have to get up and walk around until it goes away. This happens almost every night and its tough.
    thesorrybumblebee thesorrybumblebee 18-21, F 1 Response Aug 16

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    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears 31-35, F 2 Responses Aug 1, 2007

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    My aunt has fibromyalgia

    and about a month ago I started getting pain that got really bad in the course of a week. It started at the bottom of my feet and slowly worked all the way up my neck. I went to the hospital because I don't have insurance and was out of state. They did a urine test said...
    searchingfar searchingfar 22-25, F 2 Responses Aug 17

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    I finally get to go to a psychiatrist today.

    Finally....I get to find out what's wrong with me. :D
    thesorrybumblebee thesorrybumblebee 18-21, F 2 Responses Oct 22

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    My mom has it really bad.

    My mom fears i have it because we have the same symptoms. I read a while ago that they found out its genetic. Great...
    EllieAmazing EllieAmazing 16-17, F 2 Responses Sep 27

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    I found an all natural ,

    FDA listed class 1 medical device for pain. It goes on like a bandaid and is the size of a postcard. Go to layman.fgxpresspro.com layman.fgxpress.com I hope this is a blessing for you!
    laymanfgxpress laymanfgxpress 36-40, M 1 Response Oct 12

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 6 Responses Dec 31, 2012

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 8 Responses Mar 4

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    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 3 Responses Apr 16, 2012

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    The pain just keeps getting worse each night.

    My sleep is dwindling. Each night I stay up and try my very best to sleep ,but I can not. People tell me to "just sleep" or "lay down and you will sleep",but that is not the case at all. Simply laying down does not help me one bit. Even trying to go to sleep earlier does...
    thesorrybumblebee thesorrybumblebee 18-21, F 6 Responses Sep 15

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    What are your experiences with fibromyalgia?

    How do you deal with the pain? Have you found anything that helps?
    jaimstar jaimstar 26-30, F 1 Response 5 days ago

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    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-18, F 2 Responses Nov 10, 2007

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    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 5 Responses May 8, 2007

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    I was diagonsed with fibromyalgia back 15 years

    ago and as I have gotten older it seems to have gotten worse I lay in bed at night and when go to move I am in pain sometimes I feel like I am paraylized and cannot move. I do not wish fibromyalgia on anyone it is terrible to have and your in pain more than anything else even...
    Krimsonraine Krimsonraine 41-45, F 1 Response Aug 17

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    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 18 Responses Sep 12, 2010

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    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 41-45, F 9 Responses May 11, 2007

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    I wish I could find the receipt.

    I'd like to return it and get my youth back.
    americanpoppet americanpoppet 31-35, F 1 Response a week ago

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    I am 65 and have had fibro

    since I was 33 although it took a long time for the diagnosis. I could barely move. To get out of bed was almost impossible. The aching in my muscles and joints was horrible. My upper legs have small lumps like the eraser on a pencil. The Dr said that was a common complaint...
    agautier1 agautier1 46-50, F 4 Responses Jun 15

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    My days are filled with pain.

    My nights with no sleep. Everyone I thought were friends left me. All I want is someone to tell me it's going to be okay. Someone to hold me. Someone to help me see it doesn't all suck.
    johna71 johna71 41-45, M 4 Responses Jun 16

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    Last night I got no sleep

    because I couldn't find a position where the pain was gone. So today has been very long. The last few days I haven't been feeling much pain, I've felt pretty good. Then last night hit and it was all down hill from there. My head is killing me, my legs, my arms, neck, shoulders...
    Lostneedsfound Lostneedsfound 22-25, F 2 Responses Oct 16

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    To All My Ep Friends

    i just wanted to let you know that i am aware of the fact that i havent been great about writing messages, reading stories etc. i dont want to use this as an excuse but i just want to explain. i have fibromyalgia. sometimes it makes me feel extremely tired, spaced out, foggy...i...
    deleted deleted 26-30 5 Responses May 29, 2011

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    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312 36-40, F 2 Responses Jun 29, 2012

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    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01 46-50, F 25 Responses May 27, 2007

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    I was already sick and tired of the severe pain,

    weakness, fatigue, blurred vision, brain fog, hurt so bad can't get out of bed, the shooting pain like your bones are crushing themselves. But the nerves firing off I feel like things are crawling all over me, cold breeze, hair standing up feeling. What helps with this? It's...
    selfstruggle selfstruggle 41-45, F 3 Responses Sep 30

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    Since I had fibromyalgia I lost half of my

    friends cause they don't understand the pain I go though.. :(
    shell20 shell20 18-21, F 7 Responses Jun 18

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    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 17 Responses Jun 11, 2012

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    -usually a very active,

    happy, crazy, life living kinda gal! but lately been defeated by fibromyalgia... I know fibromyalgia is said to be triggered from depression and anxiety etc but I have not, any of those. just recently diagnosed through the elimination process, I feel like there must seriously...
    tljsmtc tljsmtc 22-25, F 2 Responses 6 days ago

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    Fibromyalgia

    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings 56-60, F 3 Responses Sep 15, 2010

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    I have had FM since I was 15,

    now it is so bad and with the chronic fatigue all I do is sleep or cry. I am on so much medication and it still doesn't help. My husband is so frustrated and overwhelmed. My kids are sad because they can't go on vacations with me any more. I don't play with them anymore. I am...
    squirllykid squirllykid 46-50, F 5 Responses Jul 21

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    Hi everyone, So I haven't officially been

    diagnosed with fibro but the more things they rule out the stronger the possibility that that's what I have. I understand what fibro is and the basics etc but I was wondering if any of you could explain what it's actually like, what the pain is like so I can see if it's similar...
    musicqueen musicqueen 22-25, F 4 Responses Sep 4

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    I'm losing my roots to

    which I have held to and survived from. I haven't thought about really hurting myself in a while but today I have and Maybe yesterday also. My head hurts my eyes hurt. I woke up to a swollen eye lid and my shoulder still hurts. I had to leave work yesterday. I was dropping thigs...
    searchingfar searchingfar 22-25, F 3 Responses Oct 9

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    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 28 Responses Jan 8, 2007

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    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    shellleebrooks shellleebrooks 36-40, F 24 Responses Feb 7, 2012

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    It is so hard to do EVERYTHING.

    I get tired so easily. And exhaustion due to pain is a really crappy kind of exhaustion.
    Chuckabeth Chuckabeth 18-21 3 Responses Aug 29

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    I am 25 yr old woman.

    .. suffered with fibromyalgia since I was 17.. i am.now 25 and still every day I am in pain. can't remember a day without pain. its getting colder and it's getting worse. so hard to explain to ppl that don't know me. Any other young sufferers our there i would love to talk ? x
    cbear89 cbear89 22-25, F 5 Responses Oct 22

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    I Have Fibro, It Doesn't Have Me!!

    My first symptom that something was really wrong with me was March 2000 with my vision going completely blurry and my eyes were constantly in spasm. I couldn't function because I couldn't see clearly for more than a minute at a time. I had painful joints and low back pain that...
    Gma48 Gma48 46-50, F 5 Responses Jan 18, 2012

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    I am dwindling. I'm so tired

    and my body hurts. Yesterday I slept most of the day. I feel down. My hands have been partly numb. I feel like an old woman. I feel abandoned and betrayed. How can seine be with a person who openly insults and abuses you with words and non physically violent actions. I just got...
    searchingfar searchingfar 22-25, F 2 Responses Oct 7

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    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems 51-55, F 32 Responses Mar 10, 2007

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    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 41-45, F 21 Responses Apr 30, 2007

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    I've Had Fibro Since I Was 25, I'm Now 41 and On Disability.

         Having Fibromyalgia means having lots of other problems also like: Chronic fatigue syndrome, Irritable bowel syndrome, chronic headaches, visual disturbances, and many other symptoms that pop up from time to time.      I have been...
    freefogging freefogging 41-45 2 Responses Aug 17, 2008

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    When I take muscle relaxers the next day my

    fibromyalgia pain is even worse. Does this happen to anyone else?
    psych22 psych22 22-25, F 3 Responses Aug 20

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    Very difficult morning

    for me I can barely iron my sons clothes for school! Right hand joints are very stiff this sux!!! I'd rather have a stiff **** lol!!
    got2bme44 got2bme44 36-40, F 3 Responses Oct 14

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    I been suffering from this disease

    for years now.. I was 13 when it started. All I want you to know and to never forget is that you are not alone. Apart from that our pain will have an end one day even if it's not tomorrow. NEVER GIVE UP ! STAY STRONG! We can show the world that we're stronger than anyone else...
    alwaysshine alwaysshine 18-21, F 1 Response Sep 30

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    Just woke up in pain,

    like every other morning. I make a cup of coffee and reach for my five bottles of pills...once they kick in, I'll be able to move some more. As I wait, my muscles ache, my head is cloudy, my nerves (thanks to neuropathy) are sending me electric shocks and pulses that make my...
    michelle0808 michelle0808 31-35, F 4 Responses Aug 19

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    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

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