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I Have Fibromyalgia

Personal Stories, Advice, and Support 3,026 People

    There worst thing I have found through living

    with Fibromyalgia for years now is the severe loneliness that comes with it. Having to shut people out isolate yourself and keep it all In. Stuck between heaven and hell. I used to think it was doing me a favour. Slowing me down and taking time to put me first. Standing up for...
    Elveee Elveee 36-40, F 3 Responses Oct 25, 2014

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    Hello everyone, it brings me great pleasure to

    tell you that I have made a Facebook page specially for plexus slim so that you can all follow me if you wish to see updates, information and testimonials on how plexus has helped so many people with various medical issues such as fibromyalgia, diabetes, high cholesterol, high...
    PlexusSlimChick PlexusSlimChick 22-25, F Jun 23

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    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 46-50, F 21 Responses Apr 30, 2007

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    Anyone on here successfully claim disability?

    I can only work part time ad struggle with that at times and then other times I do alright. It seems hard to even be able to qualify. It seems one must see a doctor other than a general one and have tests to disprove other illnesses. I'm not saying I am going to try to claim but...
    searchingfar searchingfar 22-25, F 4 Responses Feb 13

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 6 Responses Dec 31, 2012

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    It is so hard to do EVERYTHING.

    I get tired so easily. And exhaustion due to pain is a really crappy kind of exhaustion.
    Chuckabeth Chuckabeth 18-21 3 Responses Aug 29, 2014

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    Pain changes a person.

    Physical pain has done me in lately. Though I have suffered from mental And physical. It changes who I am, who I want to be. Some captain only makes you stronger but I don't agree, not entirely. My eating habits have gone to Shiite..I can't go forwakks...I am drinking more..tho...
    searchingfar searchingfar 22-25, F 1 Response Feb 10

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    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01 46-50, F 26 Responses May 27, 2007

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    I have certain symptoms

    that make me think I have this, but I'm not always in constant pain. I always feel in a fog state, I have difficulty concentrating or remembering things. I feel like my body is very sensitive, like any sudden movement or too much body exercise will cause me to pull a muscle. I...
    ofthisgirl90 ofthisgirl90 22-25, F 3 Responses Jan 21

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    Imagine loading up a backpack with 30-50 lbs of

    rocks, sew on patches of the roughest grade of sandpaper you can find to the underside of the straps so that you get nasty sharp gouges into the soft flesh of your shoulders through whatever shirt you're wearing... ...Now, sprinkle a healthy tablespoon or so of some nice sharp...
    debbie913 debbie913 31-35, F 12 Responses Nov 24, 2014

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    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    deleted deleted 26-30 21 Responses Feb 7, 2012

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    I been suffering from this disease

    for years now.. I was 13 when it started. All I want you to know and to never forget is that you are not alone. Apart from that our pain will have an end one day even if it's not tomorrow. NEVER GIVE UP ! STAY STRONG! We can show the world that we're stronger than anyone else...
    alwaysshine alwaysshine 18-21, F 1 Response Sep 30, 2014

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    This link gave me hope

    and later bought the book written by Dr Kevin White. Recommend reading this book if you know someone close with fibromyaglia, or are a sufferer yourself. Raising awareness to this invisible illness is key. *Gentle Hugs* https://www.youtube.com/watch?v=8RnKQSLwPqY
    debbie913 debbie913 31-35, F 1 Response Apr 26

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    Does anyone experience severe flares during

    winter? I only discovered I had fibro last winter and I knew I was more sensitive to the cold weather than before but the cold weather started coming in a few weeks ago and since then I've been experiencing the worst and longest flare yet. It's been five weeks of intense awful...
    musicqueen musicqueen 26-30, F 2 Responses May 15

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    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 28 Responses Jan 8, 2007

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    Hello I'm Stephanie, I was finally diagnosed

    with Fibromyalgia, Rheumatoid Arthritis and a couple other health issues. I was wondering what everyone uses for the pain and also what do you do to stay awake and have energy. Thanks!!
    FallenStar87 FallenStar87 26-30, F 3 Responses Mar 17

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F Jan 29

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    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears 31-35, F 2 Responses Aug 1, 2007

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    I have fibromyalgia and it's really frustrating

    how nobody understands how much it affects me. I'm not making it up or exaggerating the symptoms, I'm really very sick at times. It also isn't the same from day to day, week to week. Sometimes I'm doing relatively okay, other times I'm doing terrible. And my other chronic...
    UnwantedPup UnwantedPup 31-35, T 8 Responses Apr 24

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    My whole body aches today.

    Damn it, snow and cold weather, go away.
    LoveAndPeace1321 LoveAndPeace1321 18-21, M 4 Responses Jan 30

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    Just woke up in pain,

    like every other morning. I make a cup of coffee and reach for my five bottles of pills...once they kick in, I'll be able to move some more. As I wait, my muscles ache, my head is cloudy, my nerves (thanks to neuropathy) are sending me electric shocks and pulses that make my...
    michelle0808 michelle0808 31-35, F 4 Responses Aug 19, 2014

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    My Husband & I were just talking about how I

    don't have the patience I used to. As a wife & mother, and especially as a L&D/Pediatrics Nurse, I was capable of tuning out annoying background noise and functioning normally. I could completely ignore babies crying, the TV turned up, people talking, the phone ringing, the dog...
    xxTayaLionessxx xxTayaLionessxx 41-45, F Dec 29, 2014

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    Hi I wanted to post that I am with a company in

    the US for all natural products for various medical conditions, one product that helps inflammatory issues. We have over 30 yrs of research behind our products. If interested in learning more, message me, would be happy to share more information. Thank you
    carolgem carolgem 46-50, F May 26

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    I was diagonsed with fibromyalgia back 15 years

    ago and as I have gotten older it seems to have gotten worse I lay in bed at night and when go to move I am in pain sometimes I feel like I am paraylized and cannot move. I do not wish fibromyalgia on anyone it is terrible to have and your in pain more than anything else even...
    Krimsonraine Krimsonraine 41-45, F 1 Response Aug 17, 2014

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    First of all, sorry for the length of this.

    So I had an appointment for my fibromyalgia. I've been told I have it but was getting some more tests ran. I've never seen this doctor before. She was nice at first (and remained 'nice' throughout the appointment). I say 'nice' because some of the stuff she said to me really...
    ChantelSurvived ChantelSurvived 22-25, F 2 Responses Mar 31

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    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 18 Responses Sep 12, 2010

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    To All My Ep Friends

    i just wanted to let you know that i am aware of the fact that i havent been great about writing messages, reading stories etc. i dont want to use this as an excuse but i just want to explain. i have fibromyalgia. sometimes it makes me feel extremely tired, spaced out, foggy...i...
    deleted deleted 26-30 4 Responses May 29, 2011

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    I used to be someone

    who contributed to society, someone who used to matter. I made a difference in peoples lives, I saved lives, I changed lives. I was a nursing supervisor, well respected by my supervisors, co-workers, patients. I was really very good at my job. Then I was diagnosed with a benign...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 6

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    Someone shoot me right now.

    ...so much pain..tears are welling up...I can't sleep...I took benadyrl to help me sleep....I hurt so bad...why...what the hell did I ever do
    searchingfar searchingfar 22-25, F 2 Responses Feb 6

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    I finally got my diagnosis

    but that doesn't help with my problems. I hate fibromyalgia and I hate my life. Everything hurts all the time, doesn't matter if I'm lying down in my bed, sitting, standing or walking. Touching anything hurts. Noice, light and strong smells make me dizzy and give me head aches...
    myckeli myckeli 18-21, F 2 Responses Jun 10

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems 51-55, F 32 Responses Mar 10, 2007

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    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 6 Responses May 8, 2007

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    Hi! I was recently diagnosed,

    and I don't think my current regimen of nortriptyline is helping. I am still in constant pain, and I have no energy. Can you all tell me what treatments work the best for you? Thanks!
    jsho86 jsho86 26-30, F 3 Responses Jan 29

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    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    Someone please shoot me

    and put me out of this misery
    searchingfar searchingfar 22-25, F 2 Responses Feb 10

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    Yesterday and today have been

    such bad pain days. I just have problems doing much of anything. I just want to sleep constantly. It seems it's all I do now is sleep.
    ChantelSurvived ChantelSurvived 22-25, F 3 Responses Mar 29

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    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 4 Responses Apr 16, 2012

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    Is anyone else out there looking forward to the

    movie "Cake" where Jennifer Aniston plays Claire, a chronic pain patient? I'm definitely going to go see it in the theaters. I'm really hoping they portray someone living w/chronic, intractable, invisible pain in a way that the rest of society can finally understand, relate to...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 24

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    A lot of pain lately.

    ..I woke up for almost a month not in pain and then it starts up again. I lie in bed and don't want to move. Of course I do and I feel better as I move around. Yet I wonder what provokes it. I have been stressed, but I was stressed a month ago also: I had wine and yet I had...
    searchingfar searchingfar 22-25, F Jan 29

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    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 46-50, F 9 Responses May 11, 2007

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 9 Responses Mar 4, 2014

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    Does anyone else experience chest pain

    when they're having a flare? My chest feels heavy and tight and it hurts to breathe kind of like when you have a bad cold. I'm assuming I'm not the only one who experiences this, does anyone have any suggestions for what might help alleviate this? I got an asthma inhaler but...
    musicqueen musicqueen 26-30, F 1 Response Jan 6

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