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I Have Fibromyalgia

Personal Stories, Advice, and Support 1,561 People

    I've Had Fibro Since I Was 25, I'm Now 41 and On Disability.

         Having Fibromyalgia means having lots of other problems also like: Chronic fatigue syndrome, Irritable bowel syndrome, chronic headaches, visual disturbances, and many other symptoms that pop up from time to time.      I have been...
    freefogging freefogging 41-45 2 Responses Aug 17, 2008

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    Hi everyone. I have had Fibro

    since I was a teenager and I am 54. Back then we just didn't know why I was so sick all the time. It took YEARS to get diagnosed, and I was even misdiagnosed with MS. I believe in the mind-body connection, so I try to stay positive and live as well as I can, rather than...
    lauraym lauraym 51-55, F 1 Response Dec 3, 2013

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    Looking For Fm Friends

    Hi , my name is Kathy. I was diagnosed with Fm last March. Still can't believe I have fm. Recently doc put me on cymbalta .now I can at least sleep. Still have pain in hands & feet. Recently numb & tingling hands . Looking for friends who want to share & see what they do for...
    pinkdolphin21 pinkdolphin21 51-55, F 5 Responses Nov 13, 2013

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    I have had Fibromyalgia

    for 25 years, only diagnosed last year. The pain is never ending, haven't had a pain free day for years.
    cakelady1 cakelady1 56-60 2 Responses Jan 11

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    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-18, F 2 Responses Nov 10, 2007

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    ...but there is hope.

    I found topical pain relief. It is essential prescription pain relief without any pills or side effects, and they have practically saved my life. If you have any questions, I highly recommend looking up his pharmacy, A&R Pharmacy. They answered all of my questions with no...
    chiefsfan37 chiefsfan37 22-25, M 1 Response Jan 24

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    And Am Having The Worst Time Yet.......

    Right now is the longest I've been able to sit up and be awake .....the aches, the pain, the fatigue and guilt. Guilt is the worse in all of this as I'm not here for s / o. Everything is on him. I'm grateful he is a patient man.   
    justmarji justmarji 51-55, F 12 Responses Jan 4, 2013

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    I was diagnosed a little over 13 years ago

    but have had it most of my adult life. The most difficult part of this for me is the cognitive deficit that I experience nearly every day.
    SCbeauty SCbeauty 41-45, F 2 Responses Jan 29

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    I have both Fibromyalgia

    and MS. I have tried to manage my pain and fatigue through natural solutions, but I have lately had to begin using multiple medications to manage my symptoms. However, I have found yoga as another good way to manage daily pain and fatigue. I hope this can help someone as it has...
    writtenonmyheart writtenonmyheart 22-25, F Jan 10

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    Fibromyalgia

    i was diagnosed w/fibro 12 yrs ago, for the 6 yrs before that i was told i had mono,arthritis and was once told im a hypochondriac. doctors need to research this & the chronic fatigue that i have. every day is an effort with no understanding from family, friends or doctors...
    neige neige 36-40, F 9 Responses May 5, 2007

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    I turned 40 this year

    and have always had lots of energy. I started feeling so much pain and now this flare up is kicking my butt. I'm so tired I want to sleep all day. Chiro isn't working. ):
    needsun needsun 36-40, F 2 Responses Jan 16

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    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 15 Responses Jun 11, 2012

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    I am 41, I was diagnosed around 6 years ago.

    Most days I can barely move, my husband is getting very upset with me and keeps yelling that if I don't get busy on getting disability through then I need to get back to work. I just feel like he doesn't believe me about how much pain I am in everyday. My Dr. tells me that...
    sbryan34 sbryan34 41-45, F 3 Responses Dec 11, 2013

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    I have suffered from this

    since about 2000, but didn't get diagnosed until 2006. I spent years asking doctors what is wrong only to constantly be told to lose weight, or it's all in my head. I finally found a doctor who helped me, but we moved 6 months ago and my new doctor is forcing me to see a pain...
    Unappreciated05 Unappreciated05 31-35, F 2 Responses Jan 31

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    Hello my name is Delores,

    I was diagnosed in 2001, it's seems to be at it's worst when I'm stressed or over doing it. I take medication and also get trigger point injection. Which is supposed too help you take less medication. Just pray that my children can understand. They say mom you are always tired...
    praying4healing praying4healing 46-50, F 9 Responses Mar 16

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    To All My Ep Friends

    i just wanted to let you know that i am aware of the fact that i havent been great about writing messages, reading stories etc. i dont want to use this as an excuse but i just want to explain. i have fibromyalgia. sometimes it makes me feel extremely tired, spaced out, foggy...i...
    deleted deleted 26-30 5 Responses May 29, 2011

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    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    shellleebrooks shellleebrooks 36-40, F 24 Responses Feb 7, 2012

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    Today I woke at 1:30 pm my insomnia kept me

    awake till 7:45am or the coffee I drink all day just trying to get enough energy to start day today it did not happen still laying down after7 hours of coffee got up to pee 3 times warmed some food for my 14 year old son and that's all haven't even been able to wash my face or...
    Winger302 Winger302 51-55, F 2 Responses Mar 24

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    Overcoming Fibromyalgia

    It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly...
    Classicality7 Classicality7 56-60, F 18 Responses Sep 12, 2010

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    I have been sick for two years

    since I got pregnant with my daughter. Ive seen all the big doctors in big cities and no one knows whats wrong. They just know my immune system seems (out of sorts.) I am going to see a homeopathic doctor in a few weeks. I have excruciating pain in my arms and legs, and Im so...
    gypsystorms gypsystorms 36-40, F 1 Response Feb 28

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    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312 36-40, F 3 Responses Jun 29, 2012

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    I have had FM for over 10 years

    and have been through more doctors in this country and several others than anyone will ever know, I really get upset when people go to doctors and as I read on here today they are told its some virus or blood disease ect, ect and on we go. I will tell you that I know my disease...
    nightseeker0 nightseeker0 56-60, M 1 Response Jan 24

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    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 3 Responses Apr 16, 2012

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    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 41-45, F 9 Responses May 11, 2007

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    A Miracle

    I have had this terrible condition for 30 years. I have spent thousands of dollars trying to overcome this. I am on disability which just started this past March. I was a guidance counselor- a job I really loved but I had to quit. The pain has been overwhelming and the depression...
    Tierney Tierney 46-50 3 Responses Jun 9, 2008

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    I Thought You Understood......

    But why would I expect anyone who hasn't experienced the full spectrum of this chronic illness to understand that  when I say I can't do, I just can't do. Some days it takes all I've got to get out of bed. The pain, the aches, the fatigue.  The least bit of stress.   To push...
    justmarji justmarji 51-55, F 3 Responses Feb 27, 2013

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    As a young teen I was just constantly thrown on

    pain killers for back and hip pain. It wasn't until Nov last year it was diagnosed as Fibromyalgia. My energy levels just completely dropped and I could barely walk to the shop without being in tears on the way home from the pain. First of all they told me I have...
    XanthiaJo XanthiaJo 22-25, F 1 Response Apr 13

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    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

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    I was diagnosed with fibromyalgia this summer.

    I'm 15 and a sophomore in high school, and because of it I haven't been able to participate in what I want to do and none of the medications are helping me. I have horrible flare up days where I jus feel so miserable and completely in agony to the point where I can't even move...
    Bandgeek1025 Bandgeek1025 13-15, F 1 Response Dec 28, 2013

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    I had been diagnosed with FM during a severe

    and massively debilitating 6 year-long Interstitial Cystitis (painful bladder disease) flare-up, and my symptoms now are worse than ever. Has anyone ever had localized nerve pain from Fibro? The symptoms on the right side of my thigh have been vacillating between pain, numbness...
    pearcey3 pearcey3 36-40, F 1 Response Dec 26, 2013

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    I Love My Job, But I Desperately Need a Change

     I am a 38-year-old journalist with fibromyalgia. I love what I do, but the stress that comes with the job is awful on my illness. The other night I worked a 14-hour day covering a court hearing for a story that's made headlines across the country.  I drove home...
    IbePraisingHim IbePraisingHim 36-40, F 2 Responses Sep 22, 2007

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    Am I Just A Lazy Hyperchondriac, I Think I Have Fibromyalgia

       I havent seen a doctor yet. A year ago I met a lady that told me that she has fibromyalgia. All she told me was that she was tired all the time and didnt sleep good. Recently I have been so tired and in a brain fog. I get headaches more than ever and a stiff neck...
    loveonly1 loveonly1 36-40, F 13 Responses Aug 8, 2010

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    Glamourgirl86 Glamourgirl86 26-30, F Dec 27, 2013

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    Fibromyalgia And Stress

    I'm not sure any one has made this connection ........You have to keep stress very low, as low as you can . Yesterday I went through  so much stress by way of horrible blow up with my s / o  and then the doubts and anxiety about our future together, feelings......Today, I'm...
    justmarji justmarji 51-55, F 9 Responses Jul 1, 2013

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    Hi everybody, I was diagnosed 5 years ago with

    fibromyalgia. I have had a lot happen in my life. I think too much stress brought this syndrome on. I got married young,18, had my first son at 19 and was divorced at 20. I remarried soon after again and had another son. After a few years my marriage went south. I endured a lot...
    cyhumphries cyhumphries 36-40, F 3 Responses Jan 16

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    I was just diagnosed less

    than two weeks ago with fibromyalgia. At first, I only really felt relief that finally someone had figured out what was wrong with me. But, the relief has worn off and I'm sad and scared. I don't know what this means for my life now. There's so much I wanted to do, and things I...
    Owlmaid Owlmaid 22-25, F 4 Responses Mar 3

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    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01 46-50, F 25 Responses May 27, 2007

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    Ya Learn Something New Every Day !

    No matter how much ya think ya know !  copy / pasted from wikipedia The term "fibromyalgia" derives from new Latin,fibro-, meaning "fibrous tissues", Greek myo-, "muscle", and Greek algos-, "pain"; thus the term literally means "muscle and connective tissue pain". The...
    justmarji justmarji 51-55, F 3 Responses Dec 13, 2012

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    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 41-45, F 21 Responses Apr 30, 2007

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 6 Responses Mar 4

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    I've been going through a nasty flare the last

    3 days and I just have to appreciate the tiny things I'm able to do, like going to walk in the warm water therapy pool with my mom. All my friends keep themselves busy, but I'm the lazy one that can't keep busy. It makes no difference if I want to go out and feel less like the...
    Bandgeek1025 Bandgeek1025 13-15, F 1 Response Dec 29, 2013

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    Picture This If You Will

    and this isn't HALF of it:
    deleted deleted 26-30 4 Responses Apr 24, 2009

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    My child has fibromyalgia

    and I don't know how to help her.
    marie1711 marie1711 46-50, F 1 Response Dec 28, 2013

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    Unbearable Pain

    Hi all, I'm new to this group and am hoping to find people "who get it". My level of pain this past week has been completely through the roof. What do you all do / take to deal with pain? Right now, I'm on Cymbalta and Aleve. The Aleve isn't touching my pain at all. I don't...
    doxiemom4ever doxiemom4ever 56-60, F 1 Response Nov 16, 2013

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    So Tired

    For the last 3 years I have been struggling with Fibromyalgia.  The main issues are extreme fatigue, for example I will sleep 10 hours and immediately feel exhausted when I get up, and the constant aching in both my muscles and joints.  Ugh.  I would love to see if...
    lillovesbarbie lillovesbarbie 36-40, F 27 Responses Jan 8, 2007

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    Ive suffered for years even

    as a teen but just last year was diagnosed with fibro. Over the years it has gotten worse and I am not the type to rest nor take naps as I love to just bounce off the walls with energy. I don't like to sleep because I know the incredible pain I will be in when I awake. Ive...
    morticiaD88 morticiaD88 36-40, F 5 Responses Mar 6

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    I was officially diagnosed with Fibro almost 2

    years ago, even though my doctor thinks I may have had it for years without proper diagnosis or treatment.
    CowboyFarmer CowboyFarmer 46-50, M 2 Responses Jan 27

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    My mother suffers from this monster too.

    We would always tell one another, we just want someone to understand what we live through (not sympathy), just to understand. It ruins my life! It will continue to ruin my life until I can find some way to come to terms and except what I was delt. Its poor hell! My biggest fear...
    gotakeepushnon gotakeepushnon 31-35, F Jan 19

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    Fibro Nightmare

    I know they say that Fibromyalgia is not progressive , but my body tells me it is. It seems every touch of flu , a cold and even dental problems cause the symptoms to worsen. I can recover from the cold, but the tole still lingers such as extreme fatigue , weakness , muscle pain...
    opalgems opalgems 51-55, F 31 Responses Mar 10, 2007

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    I was misdiagnosed with rheumatoid arthritis

    and treated with methotrexate and remicade infusions for many years. I have inflammatory osteoarthritis. After my rheumatologist died, I was diagnosed with fibromyalgia by another rheumatologist. I am having so much pain all over my body! Winter has made it SO much worse. I have...
    sallibee sallibee 70+, F 1 Response Dec 23, 2013

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    I Have Fibro, It Doesn't Have Me!!

    My first symptom that something was really wrong with me was March 2000 with my vision going completely blurry and my eyes were constantly in spasm. I couldn't function because I couldn't see clearly for more than a minute at a time. I had painful joints and low back pain that...
    Gma48 Gma48 46-50, F 5 Responses Jan 18, 2012

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    Im currently getting extreme pulling numbing

    sharp pain traveling down the calfs on both of my legs.
    chocolatebunnies chocolatebunnies 18-21, F 1 Response Dec 19, 2013

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 6 Responses Dec 31, 2012

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    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 5 Responses May 8, 2007

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    Constant Pain

      I would like to share my fibromyalgia story. I was diagnosed with fibromyalgia in 1999. At that time I thought the pain was horrible. Little did I know that it would get worse during the years. The pain now is like having flu symptoms. The aches and pains are...
    selky56 selky56 56-60, F 1 Response Jul 24, 2007

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    With All The Little Special Gifts It Brings With It......

    It's been about four years since diagnosed but I know I've had it way longer than that.     Because of  the lifestyle I lived I suffer now.   The abuse / beatings / broken bones .  The poor diet because I left home at 14 and well.....what do you think,  a 14 year old run...
    justmarji justmarji 51-55, F 7 Responses Nov 10, 2012

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