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I Have Fibromyalgia

Personal Stories, Advice, and Support 3,163 People

    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    I have fibromyalgia and it's really frustrating

    how nobody understands how much it affects me. I'm not making it up or exaggerating the symptoms, I'm really very sick at times. It also isn't the same from day to day, week to week. Sometimes I'm doing relatively okay, other times I'm doing terrible. And my other chronic...
    UnwantedPup UnwantedPup 31-35, T 9 Responses Apr 24

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    I was diagnosed with FM in 2003.

    I was tested up the wazoo to eliminate so many things because to drs here FM wasnt real. It was all in my head...just complaining...u kno the drill. Then I was sent to a doc at Ohio State University who believed in FM and ME! He recommended getting off all meds and learning to...
    Harleygirl65 Harleygirl65 46-50, F 1 Response Aug 19

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    Fybromyalgia - An Unbelieving Story

    I was diagnosed with Fybromyalgia a couple of years ago in a weird way.  After many trips to the doctor (following my husband's heart attack) and trying to explain all of my aches and pains, the doctor takes out one of his books, copies a page and tells me that it...
    elloise01 elloise01 46-50, F 26 Responses May 27, 2007

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    I have fibromyalgia like millions of people.

    How many of us suffer from CFS, fibro, Lupus, arthritis, tendinitis, bursitis, gout, mental and emotional issues? Is it progressive? Yes it is and I know why. I'm not crazy I'm a 42 yr old stay at home mom with a need to fix my health. I have no affiliation with any company nor...
    fibromommy fibromommy 41-45, F Mar 5

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    I'm 22 years old, I've been having

    fatigue/depression-like symptoms/pain/muscle tension since I was around 12. Today, after a good 7 months of diagnostic work, they told me I have Fibromyalgia. I have a prescription I haven't filled yet for an antidepressant whose name I forget, and some topical cream that's a...
    r3djax r3djax 22-25, M 3 Responses Jul 28

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    There worst thing I have found through living

    with Fibromyalgia for years now is the severe loneliness that comes with it. Having to shut people out isolate yourself and keep it all In. Stuck between heaven and hell. I used to think it was doing me a favour. Slowing me down and taking time to put me first. Standing up for...
    Elveee Elveee 36-40, F 3 Responses Oct 25, 2014

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    I have had the worst 3 days.

    only diagnosed 1 month ago so I'm still learning. Lyrica is a wonder drug for me. plus I take Norco too. but the last 3 days over been hurting all over and really tired (I take nuvigil for tiredness). it seems like none of my meds are working. does this happen with...
    kareenmarie kareenmarie 36-40, F 3 Responses Jul 21

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    It's Heartbreaking

    It's heartbreaking to have this disease.  The people in my life don't understand or get angry with me for my seemlingly lack of interest in doing things, it's not that I don't want to spend time with them, it's the disease.  I'm constantly fatigued and weak. ...
    PiscesDream PiscesDream 46-50, F 9 Responses May 11, 2007

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    Hi I wanted to post that I am with a company in

    the US for all natural products for various medical conditions, one product that helps inflammatory issues. We have over 30 yrs of research behind our products. If interested in learning more, message me, would be happy to share more information. Thank you
    carolgem carolgem 46-50, F May 26

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    First of all, sorry for the length of this.

    So I had an appointment for my fibromyalgia. I've been told I have it but was getting some more tests ran. I've never seen this doctor before. She was nice at first (and remained 'nice' throughout the appointment). I say 'nice' because some of the stuff she said to me really...
    ChantelSurvived ChantelSurvived 22-25, F 2 Responses Mar 31

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    Whoops I ate gluten.::.

    i figured it couldn't really make it all too much worse since it is so bad right now..:I figured I would let my heart and tummy be happy....frie chicken :p....cheers to feeling crappy and moving forward
    searchingfar searchingfar 22-25, F 2 Responses Jan 30

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    I have been diagnosed with fibromylgia,

    it took doctors a year to figure it out why is was in pain! I would wake up and the pain would have moved to different parts off my body, it was so frustrating. When I got diagnosed it was still frustrating I wanted to know why I was in so much pain how or why I was suffering...
    LiilyPad LiilyPad 22-25, F 2 Responses Feb 19

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    No Fibro? No Ms? I Don't Care. I'd Just Like a Normal Life.

    Theoretically, even if I don't have fibromyalgia and multiple sclerosis, that's OK. Because what I'd like an end to is the fatigue that has been plaguing me since I was 10. It's a life that's not a life. Consciousness is merely a window on the world. The rest of the time is...
    diredepths diredepths 46-50, F 6 Responses Jul 21, 2007

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    To All My Ep Friends

    i just wanted to let you know that i am aware of the fact that i havent been great about writing messages, reading stories etc. i dont want to use this as an excuse but i just want to explain. i have fibromyalgia. sometimes it makes me feel extremely tired, spaced out, foggy...i...
    deleted deleted 26-30 4 Responses May 29, 2011

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    It is so hard to do EVERYTHING.

    I get tired so easily. And exhaustion due to pain is a really crappy kind of exhaustion.
    Chuckabeth Chuckabeth 18-21 3 Responses Aug 29, 2014

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    Sometimes, Its Too Much

    I was diagnosed with fibromyalgia 6 years ago. I have had several ups and downs since then. Its like being on a roller coaster. I might feel good for a few days, then be in bed for the next week fighting excruciating pain. I have fought my way out of depression numerous times...
    silvertears silvertears 31-35, F 2 Responses Aug 1, 2007

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    Discovery

    My symptoms started when I was only twelve, but it took the doctors nearly five years to consider fibro because they assumed I was "too young" for it. Getting the disease so early has changed everything. I've had to half homeschool myself throughout junior high and high...
    JustMe17 JustMe17 16-17, F 2 Responses Nov 10, 2007

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    What do you take specifically to help with

    fibro? My doc said there are 3 options: cymbalta, nurotin, and lyrica. I tried lyrica and i had bad reactions, cymbalta I can't take because it messes with my mood as was on I then I tried to kill myself. I haven't tried nurotin...but my doc said it makes people drowsy...come...
    searchingfar searchingfar 22-25, F 8 Responses Feb 13

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    Does anyone experience severe flares during

    winter? I only discovered I had fibro last winter and I knew I was more sensitive to the cold weather than before but the cold weather started coming in a few weeks ago and since then I've been experiencing the worst and longest flare yet. It's been five weeks of intense awful...
    musicqueen musicqueen 26-30, F 5 Responses May 15

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    I have had it so long

    that I have given up trying to find a way to make it better.
    deleted deleted 26-30 4 Responses Aug 1

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    Is anyone else out there looking forward to the

    movie "Cake" where Jennifer Aniston plays Claire, a chronic pain patient? I'm definitely going to go see it in the theaters. I'm really hoping they portray someone living w/chronic, intractable, invisible pain in a way that the rest of society can finally understand, relate to...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 24

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    I finally got my diagnosis

    but that doesn't help with my problems. I hate fibromyalgia and I hate my life. Everything hurts all the time, doesn't matter if I'm lying down in my bed, sitting, standing or walking. Touching anything hurts. Noice, light and strong smells make me dizzy and give me head aches...
    myckeli myckeli 18-21, F 4 Responses Jun 10

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    Ugh...help

    I was diagnosed with FM a few weeks ago, but had the symptoms for 7 years. Besides the muscle/joint pains, I am plagued with chronic fatigue. Sometimes it's all I can do to get to work. Weekends and vacations are used to lay on the couch and sleep. Does anyone else have...
    fibromess fibromess 46-50 6 Responses Dec 31, 2012

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    Anyone on here successfully claim disability?

    I can only work part time ad struggle with that at times and then other times I do alright. It seems hard to even be able to qualify. It seems one must see a doctor other than a general one and have tests to disprove other illnesses. I'm not saying I am going to try to claim but...
    searchingfar searchingfar 22-25, F 4 Responses Feb 13

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    Someone shoot me right now.

    ...so much pain..tears are welling up...I can't sleep...I took benadyrl to help me sleep....I hurt so bad...why...what the hell did I ever do
    searchingfar searchingfar 22-25, F 2 Responses Feb 6

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    Hello I'm Stephanie, I was finally diagnosed

    with Fibromyalgia, Rheumatoid Arthritis and a couple other health issues. I was wondering what everyone uses for the pain and also what do you do to stay awake and have energy. Thanks!!
    FallenStar87 FallenStar87 26-30, F 3 Responses Mar 17

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    My Fibromyalgia Story

    What a wicked disease this is.  A disease that no one else can see except you.  It took me years to convince my family (siblings and husband) that I was actually ill.  At that time I was in the most horric pain all the time.  Couldn't get rid of my family but...
    Cheryl2461 Cheryl2461 56-60, F 6 Responses Nov 6, 2008

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    I Call Bullshit!

    I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT! I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008...
    shylamarais shylamarais 36-40, F 18 Responses Jun 11, 2012

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    Do any of you find that the older you get the

    less you can tolerate the pain. Or maybe it's not the tolerance level going down. Maybe it's that your fibro is getting worse with age. I know mine feels more severe as I get older. I was diagnosed 11yrs ago. It's gotten progressively worse over the last 4yrs and right now I'm...
    BeautifullySickkk BeautifullySickkk 31-35, F 3 days ago

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    Invisible Illness

    Fibromyalgia can affect every aspect of a person's life. While neither degenerative nor fatal, the chronic pain associated with fibromyalgia is pervasive and persistent. FMS can severely curtail social activity and recreation, and as many as 30% of those diagnosed with...
    PiscesDream PiscesDream 46-50, F 21 Responses Apr 30, 2007

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    Hi I don't personally have fibromyalgia,

    but I am with a US company for all natural products that help various medical conditions, products for pain/inflammation for instance, let me know if interested in learning more, would be happy to share more information.
    carolgem carolgem 46-50, F Aug 15

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    This link gave me hope

    and later bought the book written by Dr Kevin White. Recommend reading this book if you know someone close with fibromyaglia, or are a sufferer yourself. Raising awareness to this invisible illness is key. *Gentle Hugs* https://www.youtube.com/watch?v=8RnKQSLwPqY
    debbie913 debbie913 31-35, F 2 Responses Apr 26

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    I Have Fibromyalgia My Doctor’s Appointment

    There’s an old lady sitting in a wheelchair in the middle of the room. Her shriveled body acting up from what seems to be some sort of nerve tick. Her eyes are closed and her hands are clenched to a white handkerchief in prayer position. As I look around the room I see the...
    enblanco enblanco 46-50, F 9 Responses Mar 4, 2014

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    Learning About Fibro

    I was diagnosed with fibro in 2010, I really didn't know much about it. I thought that it was just about the pain that i was experiencing. I thought that i suddenly got it after my mom died do to the stress of losing her.What i found out left me shocked. Yes, fibro can be brought...
    moonstar312 moonstar312 41-45, F 2 Responses Jun 29, 2012

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    Someone please shoot me

    and put me out of this misery
    searchingfar searchingfar 22-25, F 2 Responses Feb 10

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    Fibromyalgia

    This is the most common arthritis related disease after osteoarthritis, but it is most often misunderstood and misdiagnosed. It is a rheumatic condition which the characteristics of wide spread pain in the muscles and joints, fatigue and other symptoms. It can also lead to social...
    writings writings 56-60, F 4 Responses Sep 15, 2010

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    Some may look at me as I sometimes regrettably

    look at myself from time to time. As I sit here in pain troubled with fatigue I feel down. Yet I ask myself who would not. I want to be free to do as my mind wishes but my body doesn't allow me to do so all the time. There are times that I feel disgusted with myself for feeling...
    searchingfar searchingfar 22-25, F 2 Responses Feb 11

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    Learned To Stop And Smell The Flowers

    I've had FM for about 20 years. Somehow I managed to raise two young children, work full time and deal with a verbally/emotionally abusive husband and I didn't drive, so I had to walk or take the bus everywhere. Honestly, I don't know how I did it. Children are grown, new...
    chowmama chowmama 46-50, F 4 Responses Apr 16, 2012

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    I doubt I have Fibromyalgia,

    I have been suffering from migraine since childhood.. I always feel tired, fatigue and dizzy. The tiring feeling is always with me and it increased lately. I was in depression because of personal issues so I thought all these may be because of that.. I had no clue about this...
    dare86 dare86 26-30, M 3 days ago

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    Don't Tell An ER Doctor You Have Fibromyalgia!

    So I have found that the worst thing you can tell an emergency room doctor is that you have fibromyalgia!  I have rheumatoid arthritis as well, I can tell them I have that, but if I go in saying I'm in a lot of pain from fibro - well you might as well walk right back out the...
    deleted deleted 26-30 21 Responses Feb 7, 2012

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    Will This Ever Get Better?

    Hey everyone!  I have been diagnosed with Fibro and osteoarthritis.  I have had pain and symptoms for about 10 years but just finally went to the doc about it and was diagnosed about a year ago.  I take pain meds, muscle relaxers, anti-inflamitories, etc.  I...
    aimela aimela 31-35, F 6 Responses May 8, 2007

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    Imagine loading up a backpack with 30-50 lbs of

    rocks, sew on patches of the roughest grade of sandpaper you can find to the underside of the straps so that you get nasty sharp gouges into the soft flesh of your shoulders through whatever shirt you're wearing... ...Now, sprinkle a healthy tablespoon or so of some nice sharp...
    debbie913 debbie913 31-35, F 12 Responses Nov 24, 2014

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    A little worn out...whole body aches

    and I feel weak...I will be fine it will get better. I just miss being more spunky and full of energy: I wanted to ride my bike after taking a walk but I was too tired. Tomorrow is a new day however....I wish I had a second job right now so I could afford to he a massage from...
    searchingfar searchingfar 22-25, F Jan 29

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    I used to be someone

    who contributed to society, someone who used to matter. I made a difference in peoples lives, I saved lives, I changed lives. I was a nursing supervisor, well respected by my supervisors, co-workers, patients. I was really very good at my job. Then I was diagnosed with a benign...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 6

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    Pain changes a person.

    Physical pain has done me in lately. Though I have suffered from mental And physical. It changes who I am, who I want to be. Some captain only makes you stronger but I don't agree, not entirely. My eating habits have gone to Shiite..I can't go forwakks...I am drinking more..tho...
    searchingfar searchingfar 22-25, F 1 Response Feb 10