I Have Fibrous Dysplasia

A Fibrous Dysplasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fibrous Dysplasia. You're not alone. 16 People

    I am just diagnosed and I was wondering

    if anyone else feels tightness in their throat associated with FD
    anschoen anschoen
    1 Response Apr 8, 2014

    I Have Lived With Fibrous Dysplasia For 20 Years

    Well where do i start...suppose from the beginning....when i was 20 i was sat on a 4 foot wall and my girlfriend sammy (now wife..lol) was stood in front of me and after a bit of banter she gave me a little nudge as if she was gonna push me to which i laughed and said she didnt...
    padstoker padstoker
    Nov 11, 2010

    Fibrous Dysplasia And Hip Fractures At 30

    I just found out about 5 months ago that I have fibrous dysplasia at 30. I was training for a triathlon and started feeling pain in my hip crease. I went to my holistic chiropractor for treatment and he sent me packing to the Ortho thinking I had a labral tear. My Ortho sent...
    Momstrong Momstrong
    31-35, F
    1 Response Oct 1, 2013

    Undeserved Luck.

    My doc told me that i wouldnt have any problem with FD, and i believed it's not a severe disease and nobody suffer from its symptomes so im shocked now, a bit fel frightened, and feel sorry for those who have pain. I was 21 when doctors diagnosed FD, and everything was...
    Stellaruni Stellaruni
    22-25, F
    1 Response Oct 6, 2009

    Monostotic Fd

    I discovered my FD in 2008 by myself when I noticed a bump on my right temple. After seeing that it did not go away after a few months I went to my internal medicine doctor who ordered an x-ray and I never heard back any useful feedback about it. Nothing seemed abnormal to the...
    FD2008 FD2008
    1 Response Nov 11, 2011

    I was just diagnosed with fibrous dysplasia ,

    and I am 51. I started getting very bad vertigo and car sick. Finally after several doctors and ER visits they said I had mastoiditious . I went for more ct scans and was diagnosed with FD. I finally went to the mayo clinic and found a wonderful doctor. It is in the temporal...
    darham darham
    2 Responses May 3, 2015

    I Have Fibrous Dysplasia

    I went to the dr for some hip pain at age 28. The doc sent me to an Orthopedic Surgeon who said to me, "You have a tumor in the neck of the femur, and I'm sorry to say but I am going to have to refer you to Massachusetts General Hospital in Boston. The tumor needs to be removed...
    NascarBabe76 NascarBabe76
    31-35, F
    1 Response May 7, 2010
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