I Have Fibrous Dysplasia

A Fibrous Dysplasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fibrous Dysplasia. You're not alone. 17 People

    Undeserved Luck.

    My doc told me that i wouldnt have any problem with FD, and i believed it's not a severe disease and nobody suffer from its symptomes so im shocked now, a bit fel frightened, and feel sorry for those who have pain. I was 21 when doctors diagnosed FD, and everything was...
    Stellaruni Stellaruni
    22-25, F
    1 Response Oct 6, 2009

    I was just diagnosed with fibrous dysplasia ,

    and I am 51. I started getting very bad vertigo and car sick. Finally after several doctors and ER visits they said I had mastoiditious . I went for more ct scans and was diagnosed with FD. I finally went to the mayo clinic and found a wonderful doctor. It is in the temporal...
    darham darham
    2 Responses May 3, 2015

    I am just diagnosed and I was wondering

    if anyone else feels tightness in their throat associated with FD
    anschoen anschoen
    1 Response Apr 8, 2014

    I Have Lived With Fibrous Dysplasia For 20 Years

    Well where do i start...suppose from the beginning....when i was 20 i was sat on a 4 foot wall and my girlfriend sammy (now wife..lol) was stood in front of me and after a bit of banter she gave me a little nudge as if she was gonna push me to which i laughed and said she didnt...
    padstoker padstoker
    Nov 11, 2010

    I Have Fibrous Dysplasia

    I went to the dr for some hip pain at age 28. The doc sent me to an Orthopedic Surgeon who said to me, "You have a tumor in the neck of the femur, and I'm sorry to say but I am going to have to refer you to Massachusetts General Hospital in Boston. The tumor needs to be removed...
    NascarBabe76 NascarBabe76
    31-35, F
    1 Response May 7, 2010

    Fibrous Dysplasia And Hip Fractures At 30

    I just found out about 5 months ago that I have fibrous dysplasia at 30. I was training for a triathlon and started feeling pain in my hip crease. I went to my holistic chiropractor for treatment and he sent me packing to the Ortho thinking I had a labral tear. My Ortho sent...
    Momstrong Momstrong
    31-35, F
    1 Response Oct 1, 2013

    Monostotic Fd

    I discovered my FD in 2008 by myself when I noticed a bump on my right temple. After seeing that it did not go away after a few months I went to my internal medicine doctor who ordered an x-ray and I never heard back any useful feedback about it. Nothing seemed abnormal to the...
    FD2008 FD2008
    1 Response Nov 11, 2011
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