I Have Forestier's Disease

A Forestier's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Forestier's Disease. You're not alone. 45 People

    Dish: Is Dizziness Ever A Symptom?

    I was diagnosed with DISH by my chiro after a fall and a hit on the head. I have undergone scans for brain tumor etc - nothing. My DISH pain is at the lower back edge of my skull on both sides. Ever since the fall, I am always dizzy - except when sitting or lying down. Do...
    peepers29 peepers29
    70+, M
    1 Response Jul 3, 2012

    Too Much Pain To Bare.

    I am a 49 year old married man with two young sons. I was diagnosed with Forestiers Disease about 5 years ago after suffering with back pfor many years previously. I now have pain in my feet and shoulder and am on maximum dose morphine, both slow release and liquid along with...
    Nicbous Nicbous
    46-50, M
    1 Response May 15, 2012

    Orthopedic Surgeon With Forestier's Disease Wants To Help Others

    I am a retired orthopedic surgeon who has Forestier's disease aka DISH. This predisposes me to bulging discs in my lower back and recurring pain. After attending a McKenzie exercises course 20 years ago, I developed my own personal back exercise program. if I sit without my...
    retiredbonedoc retiredbonedoc
    56-60
    2 Responses Oct 25, 2011

    I was just diagnosed with Forestier's Disease

    or DISH...Diffuse Idiopathic Skeletal Hyperostosisin in my lower spine. I've had weakness in my legs, lower back for the past 4 years or so. The pain is worst in my left leg....especially knee, shin, & ankle (left side of knee). Feels like tendonitis at times. Hard to...
    halley888 halley888
    46-50, F
    1 Response Mar 26, 2014

    Orthopedic Surgeon With Forestier's Disease Disease Wants To Help Others

    I am a retired orthopedic surgeon who has Forestier's disease aka DISH. This predisposes me to bulging discs in my lower back and recurring pain. After attending a McKenzie exercises course 20 years ago, I developed my own personal back exercise program. if I sit without my...
    retiredbonedoc retiredbonedoc
    56-60
    2 Responses Oct 25, 2011

    I Have Very Bad Case Of Forestier's Disease

    I am a 62 year old man and have had this disease at least 18 years. I suffer great pain, am now using pain patch and anti-inflammatory medicine. However, I cannot take full dose of anti-inflammatory because of stomach and GI problems. I have had extreme dysphagia from bone...
    mkwohlge mkwohlge
    61-65
    4 Responses Apr 10, 2012

    Hi, I am a GP , 60yrs young

    and am semi retired due to DISH, a condition I had never heard of. Great grammar bur who cares? I am on OxyContin, lyrica and varying doses of tra madol or panadeine forte as required.. My disease was a shock to my go and pain management specialist who both put my symptoms down...
    Dochol123 Dochol123
    61-65, M
    Oct 27, 2015

    Orthopedist With Forestier's Disease Wants To Help Others.................

    I am a retired orthopedic surgeon who has Forestier's disease aka DISH. This predisposes me to bulging discs in my lower back and recurring pain. After attending a McKenzie exercises course 20 years ago, I developed my own personal back exercise program. if I sit without my...
    retiredbonedoc retiredbonedoc
    56-60
    2 Responses Oct 25, 2011

    Possible Diagnosis

    I just found out 2 days ago that in all probability I have Forestier's disease, am just waiting for an MRI to confirm. Feeling pretty down right now, and have been suffering extreme discomfort in lumbar and right leg for the past 2 weeks.
    slingblade1966 slingblade1966
    46-50, M
    1 Response Jun 2, 2013

    Forestier's 13 Years

    I was diagnosed 13 years ago after a softball injury, a collision, would not fade away. I had two small sons and I had gotten to where I could not lift them or bend to play with them. At the time I weighed around 250 pounds or so, I was on celebrex and muscle relaxers but got...
    macrott macrott
    46-50, M
    2 Responses Aug 11, 2013

    Trying To Find A Doctor That Understands This Disease

    Hello all, I am a 46 year old woman just diagnosed with DISH. I am having severe thoracic pain and not getting much assistance from local drs. Any recommendations on treatment plans that have worked for you? I was told by a rheumatologist today that DISH is just osteoarthritis...
    Bergitte Bergitte
    46-50
    4 Responses Mar 18, 2013

    Finally a diagnosis of chronic pain in the

    thoracic region and great difficulty swallowing, have bone spurs throughout my entire spinal region and need knee replacements etc. Forestiers disease! Was told it was OALL or DISH one and the same! Doctors dont want to know and dont listen to what I try to tell them, the...
    hellybell hellybell
    51-55
    1 Response May 11, 2015

    Neck Does Not Turn.

    I was diagnosed with diffuse idiopathic skeletal hyperostosis over 4 years ago. My neck does not turn more than an inch.. if even that much. I can't look up or down.. The strangest thing that I had to deal with about it was that I was in a medically induced coma for over a week...
    iToddBear iToddBear
    46-50
    2 Responses Oct 1, 2012

    Unknown Diagnosis

    I don't know for sure how long I'v had Forestier's, but I've had stiff muscles since I was in my early 40's, and I'm now 69. I was told by my physical therapist that after 2 hours every day for a week, over a period of two years, that by the time I came back in on Monday, my...
    Bigfoot1847 Bigfoot1847
    66-70
    3 Responses Aug 5, 2011

    Support Group

      Just wondering if there are enough of us weird bone growing/fusing people in Qld /Brisbane to have a support group ????? Would love to catch up and share our experiences. Please email and let me know !
    maa64 maa64
    51-55, F
    4 Responses Jun 21, 2013

    Diagnosed Last Sept.

    caught the disease about 7 years ago. didnt even know i was sick. i thought it was stiff muscles. till i had swallowing . ER  doc told me i probably had AS . but tests came back neg for that. so my final diagnoses was dish.   i am 43 years old now.     i can still get...
    janek831 janek831
    41-45, M
    8 Responses Apr 7, 2011

    I Have Forestiers Or Dish

    I am again having to fight to get going each day. I am tired all the time I wake up during the night with my arm up in the air . To stop the pain and try to help my neck and shoulders. I am 58 year old woman and have had dish since I was 40 . I am now fused on all my discs except...
    koala55 koala55
    61-65, F
    4 Responses Jun 20, 2013

    Orthopaedist With Forestier's Disease Wants To Help Others

    I am a retired orthopedic surgeon who has Forestier's disease aka DISH. This predisposes me to bulging discs in my lower back and recurring pain. After attending a McKenzie exercises course 20 years ago, I developed my own personal back exercise program. if I sit without my...
    retiredbonedoc retiredbonedoc
    56-60
    Oct 25, 2011
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