I Have Gardner's Syndrome

A Gardner's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Gardner's Syndrome. You're not alone. 17 People

    I was just recently diagnosed with fap -

    gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or ask about or anything involved with it. If you are also struggling and living with this please feel free to message me to talk.
    Escapeyourthoughts32 Escapeyourthoughts32
    2 Responses Aug 27, 2015

    This Time Round

    there is no place for poor me stories... i desire to be active and this is a challenge to be more do more. Seeking alternative medication... looking into weed, wheat grass, vitaments... for more energy. Feeling alone through this journey at times .... still i am so full of...
    weeded weeded
    46-50, F
    1 Response Jul 11, 2012

    Long Story Short

    The day I found out I have Gardber's Syndrome it was so surreal. I didn't know what I was in for. I was only 14 years old. Its like I had hit a brick wall all of a sudden. Right away I had the surgery to get my colon removed. I tried living life as normal as I could but wasnt...
    GSwontdefineme GSwontdefineme
    26-30, F
    6 Responses Oct 8, 2012

    Gardner Syndrome

    I have a 14 year old daughter, she has gardner syndrome, but hers is develope into desmoid tumer, and I am scared to dealth that she is going to die, I want to talk to someone that has this so I can know what to expect, down our path, I love her with all my heart and she is...
    jmanes jmanes
    41-45, F
    8 Responses Apr 4, 2010
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