I Have Geniospasm

A Geniospasm anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Geniospasm. You're not alone. 42 People

    What Happens To The Tongue?

    I have this 'disorder' since when I can remember... to me it's not like a disorder at all... just like how this scar on my left hand (which is result of a small fire accident when I was just 6 months old) is not abnormal at all! Since when i started to think and remember I have...
    matmeg12 matmeg12
    2 Responses Sep 1, 2012

    The worry is making me ill - i've had geniospasm

    since birth, and have just had a baby. 1 month in, i see no signs of geniospasm in him. Obviously it's a 50/50 whether he will inherit it from me - has anyone else passed either a 'lesser form' of the disorder down, had children who've appeared fine, then progressed with it in...
    ajdt ajdt
    31-35, F
    1 Response Nov 18, 2015

    My Wiggly Chin

    I was born with my wiggly chin. My great grandmother, grandmother, mother and brother have it also. My son did not inherit it. The weird thing is that my cousin's (maternal) daughter has it. I just read that it is autosomal dominant trait. I'm not sure how it skipped 2...
    vicchick vicchick
    2 Responses Feb 4, 2012

    Something By Way Of England

    My family's geniospasm dates back to that branch of the family arriving in Kentucky right before the Civil War. They immigrated from Fordington, Dorset, Dorchester: Henry Warren and wife Sarah Gawler, born 1799 and 1806, respectively. From there, the trait has been passed in...
    Arroyograndegal Arroyograndegal
    66-70, F
    1 Response Apr 15, 2013

    Had Since I Was A Baby And 50 Now

    Reading up on this and it's common for babies to bite their tongues. Both my sister and I did it. My mother's chin also trembles and so did her mother's. No one else in my family, my cousin's daughter MAY have it.
    billc603 billc603
    51-55, M
    Nov 17, 2013

    Hi my name is jo and i have a wobbly chin to

    call it geniospasm seems a bit strange.i start by sayn thankyou to everyone who have it and posted real stories .Well my kissing career has been floored with woobles and by now i guess real genios would know anyway. im in this life with it and find it rather puzzling that not...
    norbul79 norbul79
    36-40, F
    1 Response Dec 13, 2013

    New Being

    i am  sick of people   like my  husbend  telling me i am not fun no more  just   because  i dont drink   smoke   or get high    no  morei mean you dont need   to do thoes things to have a good time     i cant  how is it fun to   throw up    acting...
    afirocks afirocks
    31-35, F
    Dec 30, 2011
    billc603 billc603
    51-55, M
    1 Response Dec 22, 2013


    Recently, I have been learning more and more about this genetic disorder called geniospasm. I was born with this condition and it was passed down from my mother. It seems like most of the people who are afflicted with this “disorder” in my family are women. Growing up with a...
    jlparrigin jlparrigin
    36-40, F
    7 Responses Nov 18, 2011

    Went to www.rareshare.

    org but no Geniospasm group. I requested for a community be created for us. Maybe others should do the same.
    billc603 billc603
    51-55, M
    3 Responses Dec 24, 2013

    Brought About By And Brings About Stress

    Hey, I got this ever since I know myself, my dad has it too. I hate it and the stress it brings along with anticipation molded my personality somehow, it sucks to know everyone will see there's something "wrong" with you, they think you're nervous, about to break down, fragile...
    SilviaCardoso SilviaCardoso
    31-35, F
    2 Responses Oct 12, 2013

    Are We All Related?

    I'm wondering if we are all related? Does anyone know how many people have geniospasm and if there is a place where we can start tracking all these families and see how we are all connected?
    cmsmns cmsmns
    1 Response Oct 22, 2012

    My Hereditary Geniospasm

    Since I was six ( 1977 ) , my chin has trembled . My grandfather , father and brother also have the same issue . I have learnt now it is hereditary geniospasm . It was always aparent when I was a young child , but as I grow older it was less apparent . It has been brought on at...
    hiyadc hiyadc
    41-45, M
    5 Responses Sep 16, 2012

    Anyone Tried Botox ?

    Hi all I don't have geniospasm but I do have members of my family that do. One of them went to The Institute of Neurology in London where they were interested in doing a family study. Interestingly I don't have it but 2 out of my three children do. The Institute of Neurology...
    cecy1 cecy1
    1 Response Jan 6, 2013

    wiggly wobbly ru ru ru ru ru oh how it goes.

    See how it is jumps, fun times hard times no difference
    norbul79 norbul79
    36-40, F
    2 Responses Dec 25, 2013

    A Badge Of Identiy

    The first person noted  in my family to have geniospasm was my great grandfather; his daughter, my great aunt also had it.  My father and his mother must have had it but it was not so apparent in their adulthood.  My father's sister had it until her husband died suddenly, then...
    shinderager shinderager
    8 Responses Jul 16, 2011

    My Son

    My son is almost 3 and has it. People comment on it quite often. I think eventually we will treat it with Botoxv when he is bothered by it. I don't have any known relatives that have it so I am not sure if it came from my side or my husband's. Is there any information on where...
    cmsmns cmsmns
    4 Responses Mar 26, 2012

    Speech Delay

    I'm wondering if you know if there are any speech development delays related to Geniospasm. My son is 31/2 now and his language is a bit delayed. I didn't think it was much to worry because at our teacher conference this year they said everything is fine and that he is...
    cmsmns cmsmns
    3 Responses Oct 22, 2012

    My Guys

    I believe my husband and 2 year old son have this. We only know my husband's side of the family. (Mother left when he was a baby) My son has twin sister (via IVF) who does not. I saw a cashier with the chin spasm last week. I didn't know there were more people out there.
    mom2gandm mom2gandm
    31-35, F
    Jan 24, 2013

    My 3year Old Son

    Since my son was born his chin wobbled their is no history of geniospasm in the family but he has been diagnosed with geniospasm but he also bites his tongue and mouth more often when he's asleep some time 30 +times and slavers alot I was wondering if this is the case with other...
    lawren6 lawren6
    26-30, F
    1 Response Apr 22, 2013
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