I Have Giant Axonal Neuropathy

A Giant Axonal Neuropathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Giant Axonal Neuropathy. You're not alone. 5 People

    My Kids With Gan

    Hi,         I am a mom with three kids that have GAN. My name is Charee. My childrens neurologist told us in January that my 3 boys match up to Giant Axonal Neuropathy. It has been devistating. my 5 year old is the oldest "Levi" and also my Identical twin boys "Aaron...
    ChareeSpencer ChareeSpencer
    1 Response Mar 11, 2012

    2 Beautiful Girls

    I have 3 beautiful daughters that I have raised on my own for 25 years. Two whom have a rare disease, Giant Axonal Neuropathy (GAN). Amber, my eldest, is now 25 and is from a previous relationship, not the same father as the two younger daughters. Tanya is now 23 and I first...
    Lamb1963 Lamb1963
    2 Responses Aug 22, 2012
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