I Have Gitelman Syndrome

A Gitelman Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Gitelman Syndrome. You're not alone. 28 People

    Gitelman And Me

    I was diagnosed with Gitelman's Syndrome in September of 2008 after a year of numerous misdiagnosis, pain, exhaustion, heatstroke, and extreme weight loss. I found it frustrating to have to take a large number of pills multiple times a day and I was embarrassed by taking them all...
    Kstaver Kstaver
    5 Responses Nov 10, 2011

    It's Been A Heck Of A Fight

    I'll start at the beginning, so that the good stuff at the end carries the weight it deserves and you fellow GS's will know that the steps I took are legit. :-) My name is Kate, and back in 2006 I was a Sergeant in the military and went on deployment with my unit to Kuwait to...
    IndomitableShrew IndomitableShrew
    4 Responses May 3, 2013

    Hi everyone. I was diagnosed with GS about a

    year ago (haven't done the genetic testing yet, but it's on the to-do list). I'll be 20 soon. It completely derailed me and made my depression far worse than it already was (luckily I've been fine in that regard lately, though so yay for that). It's made my life much harder. I...
    xxFeathersxx xxFeathersxx
    Dec 27, 2015

    hey everyone. I have a group on fb called

    gitelman/bartter buddies. please join. we support eachother and learn from others.
    lilmomma1411 lilmomma1411
    Aug 31, 2015

    My Son Has Gitelmans Syndrome..he Is 10 Now ..diagnosed In 2009

    Hi everyone.. I am just looking to joined as many groups to learn more and more about gs. I know like everyone one else that with out these forums there would be no validation of the dialy things people with gs go threw..Mostly all of the websites found on internet are composed...
    lemondrop1 lemondrop1
    2 Responses Sep 4, 2012

    I was diagnosed with gitelman syndrome back

    when I was around 16 yrs old (just turned 25). It took a really long time to actually get diagnosed. It was a very hard process. I pretty much live a normal life. I work full time and I'm a mother of 2 boys. Each day i push myself just to make it through. My body is so use to...
    pinay89 pinay89
    26-30, F
    1 Response Oct 16, 2014

    Hello. I was diagnosed at age 8

    and am now 20. I have some specific concerns which I have heard a bit about but don't know a lot about due to the lack of general knowledge. Psychological symptoms?? And pregnancy?? Please let me know if you have any info or experiences with either or these two things in...
    alanahw alanahw
    4 Responses Jan 21, 2014

    I'M Seventeen Years Old And Was Diagnosed With Gitelman'S When I Was Nine

    Like the title says I was diagnosed eight years ago. I have almost passed away multiple times due to my extremely low electrolyte levels. My medicine has caused me stomach ulcers and with the medicine I take for my stomach ulcers it lowers my magnesium levels drastically. So...
    WWJ31L14 WWJ31L14
    18-21, F
    5 Responses Feb 15, 2013

    Gitelman's Syndrome

    Hi I am 27 years old and i was diagnosed with GS in 2006 while preg with my second child it has been 6 years now an my condition is worseing each and every day i would love to talk to someone about my condition because i stay depressed all the time an talking about this helps...
    jaime2327 jaime2327
    26-30, F
    6 Responses Jun 27, 2012

    Recently Diagnosed With Gitelmans

    I was recently diagnosed with gitelmans syndrome just over a week ago and I am looking for information about it finding it hard to understand it all! I went into hospital with my potassium been 2.2 took 11 days on 14 litres of IV to get to 3.1! It is how back to 2.5 as of...
    2 Responses Jan 25, 2013

    At A Loss

    Just found out that I have Gitelmans syndrome back in July 2010. I feel like no one really knows about gitelmans syndrome and I am really looking for some answers.
    maltman2010 maltman2010
    20 Responses Sep 21, 2010

    My Daughter Has Gitelmans

    New to this site & posted this on someone's story. Finally figured out how to share it with everyone. My daughter was diagnosed at age 5 but was in & out of hospitals since 2 1/2. Finally the on call doc at hospital knew what she had. We had even been to a children's hospital in...
    mommabear37 mommabear37
    41-45, F
    4 Responses Apr 26, 2013
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