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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 37 People

    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 56-60, F Mar 7

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 3 Responses Feb 7

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 4 Responses May 30, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Related Experiences

    To be completely honest, I denied it for some time. I haven't actually done any kind of official test, but I have a nurse practitioner and a number of knowledgeable individuals who...
    Kavka Kavka 18-21, M 16 hrs ago

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    I'm 31 years old and have been battling back problems for the last 15 years. It used to come on just once in awhile, a little pain in the lower back, some tingling down my right...
    jeneral3015 jeneral3015 31-35, F 12 hrs ago

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    I'm 16 years old.There are 10 days till my birthday.I've been depressed for good 3 years.My whole puberty was a great mess.One year and two months ago,I got bulimic.Before that,I...
    mystiquebelle mystiquebelle 13-15, F 9 hrs ago

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    HI , Im 24 years old , im a man . the thing about me is i am not quite sure if i have cauda Equina , i didnt have an accident or any truama , my pain first started at my right foot...
    Atrilundy Atrilundy 22-25, M 1 Response 12 hrs ago

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    *Walks up to counter* “Hi, I would like to order a man, athletic build, cute face- maybe with a little scuff on it;), very kind, charming, and intelligent; and that will be all...
    MW1321 MW1321 18-21, M 2 Responses 18 hrs ago

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    oh the battle with the body has been a living nightmare from hell as you all know so well. I have so many physical problems, I just get that look from the doctors. urggg So I have...
    mommaceitta mommaceitta 51-55, F 9 hrs ago

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    I have yet to see anyone about it or get an official diagnosis, but I think I have paranoid or disorganized schizophrenia. I have been experiencing auditory, visual, and even...
    e524 e524 18-21, F 1 Response 6 hrs ago

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    I really want to experience this since I never have before. I've never had a mutual bond with someone in which we feel strongly for each other. I am jealous of other people who...
    Dreamer32 Dreamer32 22-25, F 3 Responses 5 hrs ago

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    I'm new to EP.. I was told by my close friend that it was a great app that would help me deal with having herpes. Basically I was in a relationship with a guy for over a year...
    cb180696 cb180696 16-17, F 2 Responses 1 hr ago

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    #2 on my list of "Things I am proud of about me": 2. I’m not lazy/selfish/spoiled. I guess I’m not exactly sure what I would call this, but basically when I see people doing...
    shannonymous shannonymous 18-21, F 1 hr ago

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    If I had friends! 😫😭 I mean I have friends, socially, but nobody asks to hang out with me or asks me to join them on something, unless its my sister and her friends. Maybe...
    ashalew ashalew 22-25, F 14 hrs ago

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    I suffer awful anxiety attacks since 10 years every day. I also have social anxiety and have had panic attacks outside the house. I was on meds 10 years ago as it all started...
    angel8i angel8i 31-35, F 1 Response 14 hrs ago

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    I Have this collection of ribbons because use them when i have a haircut first week the hair sometimes dosen't look so good or because i must go for a haircut and didn't found time...
    blackweirdcat blackweirdcat 46-50, F 12 hrs ago

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    I'm a teacher who moved to a small town because I was supposed to get married. Didn't happen and now I have nothing and no one in my life. I have no one to call or talk to. I'm...
    srta srta 26-30, F 2 Responses 7 hrs ago

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    I am 13 and I have had pimples since 4th grade, and now I am in 7th grade and it has gotten so bad I don't want to go anywhere. But the worst part is I make it worse for myself...
    fabbeauty fabbeauty 18-21 7 hrs ago

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    I feel like I have no chance of being in a proper relationship... I had a girls night out with some friends last night which was fun, but I found myself feeling like the 'grenade...
    charllymarie charllymarie 18-21, F 4 Responses 5 hrs ago

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    Lots of things in mind these days. Lots of memories, that I didn't have on the surface. I have things to say that I'm not ready to say. I don't even think I'm ready to write them...
    WickedScullyOfTheWest WickedScullyOfTheWest 31-35, F 5 hrs ago

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    I don't understand why men are obsessed with their penis size and why the assume if they have a large penis, they suddenly know how to have sex. And then they have the gall to...
    ErraticallyGrey ErraticallyGrey 22-25, F 5 Responses 3 hrs ago

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    Another incident from when I was 14, one which is burned into my memory in excruciating detail. It happened a few weeks after my naked picture had made the rounds at school, and...
    reader123456789012 reader123456789012 22-25, F 1 Response 3 hrs ago

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    Hi there I have had ADHD for the last 30+ yrs and let me tell you I have had my ups and downs and things can get challenging at time I know I have found something that has worked...
    MrThriving MrThriving 36-40, M 3 hrs ago

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    I have very dark hair, dark eyelashes and eyebrows. I started to get the odd grey hair when I was 20. It seems to be a common thing for darker hair i guess. I have a guy friend who...
    SmashedUpSanity SmashedUpSanity 26-30, F 1 Response 52 mins ago

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    A lot of people (mainly guys) have said my voice is very soothing. I don't really agree but ehh.
    lexix0 lexix0 16-17, F 6 Responses 18 hrs ago

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    Last night I had a dream that felt good when I was having it but now I am awake I find it disturbing. I was with a crowd of people (in my mind, I seemed to associate them with...
    T4RD15 T4RD15 26-30 16 hrs ago

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    While at uni I was at a party and one of the lecturers was there. She was about 35 and I was 19, and we had a wonderful time at the party, and ended up kissing while we were...
    PinkyPinks PinkyPinks 31-35, F 5 Responses 11 hrs ago

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    "After A While" After a while you learn the subtle difference between holding a hand and chaining a soul and you learn love doesn't mean leaning and company doesn't always mean...
    mommaceitta mommaceitta 51-55, F 9 hrs ago

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    Just today... my mom called me an ungrateful egotist. It hurts a lot when your only purpose is to help others..and when you have helped. She is attacking me as if I was some kind...
    sparkydream sparkydream 16-17, F 1 Response 8 hrs ago

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    getting updates from my challengers.... i LIGHT UP when i read these: "I am half way done with 21 day fix. I am down about 5 pounds and about 25 pounds in 2 1/2 months. It feels...
    felismina felismina 36-40, F 1 Response 7 hrs ago

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    I am at the point in life where I have "disposable income" and I can buy nice stuff. I hate it when I walk into nice stores / specialty shops and I am ignored. I am looking for a...
    Kickingtires Kickingtires 51-55, M 1 Response 6 hrs ago

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    I carry it everywhere, spent 2 years of my life on it -.- made a lot of friends with this ipad so basically I have friends on my finger tips. If u Destroy my ipad, u destroy the...
    LoverBoyMike LoverBoyMike 18-21, M 6 hrs ago

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    I don't think he deserves a letter but I know that writing one will make me feel better so I'm doing this for me. I want to thank you for helping me get over him, but I also want...
    Dreamer32 Dreamer32 22-25, F 5 hrs ago

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    So my boyfriend and I have been together alittle over two years and hes leaving tomorrow for work. We are inseperable and he is my best friend. I have cried all day.knowing I will...
    stephyblueyes14 stephyblueyes14 26-30, F 3 hrs ago

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    All of the women of in my family have ESP. We've always had from the beginning. We all different forms of ESP. But is it strange that every female in my moms side of the family...
    SimplyZero SimplyZero 13-15, F 1 Response 2 hrs ago

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    The thing that makes me most angry about people who constantly lie to you, is the fact they think you are not smart enough to figure out they are lying. When you have, they persist...
    JustmeraeAgain JustmeraeAgain 46-50, F 3 Responses 2 hrs ago

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    I have no one but me. I immerse myself in books, crafts and games to drown out the fact that I am totally alone. Granted, I do love being alone, but it would be nice to know...
    CraftsInStitches CraftsInStitches 31-35, F 4 Responses 57 mins ago

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      Hi, this is something that's not that easy to talk to people about, so I thought this would be a good place to vent it. Im 30 & I have almost no family (& no 'really close...
    Shybi30 Shybi30 26-30, F 1 Response 41 mins ago

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    My 3rd great grandmother never drank Coffee, her husband was a judge and he made a wrong conviction, the family of the victim decided to kill him, they knew that he drank coffee...
    projectgwyn101 projectgwyn101 16-17, M 29 mins ago

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    I lost my father to cancer on February 8, 2014 . I was just shy of turning 16 . He's missed so much in these past 2 1/2 months . I think it gets harder everyday . He should be...
    awkwardprincess98 awkwardprincess98 16-17, F 1 Response 17 hrs ago

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    Besides getting cheated on ...there's always been this other boy who's always trying to grab my attention He's a football, baseball& basketball player for my school he's very...
    elitedancer14 elitedancer14 13-15, F 16 hrs ago

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    It's not a song to sing. In fact, I have many. I won't die, before I fulfil all of them. Nothing will kill me, before that.
    AyushCR7 AyushCR7 13-15, M 1 Response 14 hrs ago

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