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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 39 People

    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    flga flga 31-35, M 3 Responses Oct 9

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    Related Experiences

    Let me start with I have a problem. I'm only 19 and I have always been drawn to older women that have a strong personality. I went to job corps and Miss Maria was my 3rd shift...
    patriotslover21 patriotslover21 26-30, F 5 hrs ago

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    For the most part, if someone insults me, I can rise above it. I'm usually calm and collective, and realise that the problem is not with me, but with the person hurling the abuse...
    shellofaboy shellofaboy 18-21, M 1 Response 3 hrs ago

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    ...and I'm still recovering. I used to wonder about my father... how little things could send him into a rage. How his words and actions always mismatched the perceived offense...
    DubstepEnderFox DubstepEnderFox 26-30, F 6 hrs ago

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    sometimes I feel lame whenever I talk to or hang out with my friends. Yes I drink, but only with a group of people, so I'm only a social drinker. yet other than that, I don't smoke...
    alxvii alxvii 18-21, F 3 Responses 6 hrs ago

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    Twice in the recent past, as my relationship with my male BFF has continued to develop, I have had disturbing dreams about him. Both of the dreams were similar in that my BFF's...
    lc1967 lc1967 46-50, F 4 hrs ago

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    I haven't really written anything on EP in about 4 days. Just posted a few little blurb-y things. It's frustrating when I have ideas for something I want to write but am missing...
    Friability Friability 18-21 1 Response 4 hrs ago

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    Hello everyone I need advice I have gone low contact with my NM & mostly I'm managing it very well & I am a lot happier . I'm on crutches at the moment for an injury & she has...
    blueberry36 blueberry36 36-40, F 1 Response 46 mins ago

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    I am so sick and tired of hearing parents trying to get certain TV shows off the air, because they don't want their children watching it... IT'S CALLED PARENTAL CONTROLS - YOU...
    MeowOnMe MeowOnMe 18-21, F 1 Response 38 mins ago

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    I do not have Pluto conjuncting my Sun, but boy have I met some interesting characters who do.
    Plutonianbabe Plutonianbabe 18-21, F 36 mins ago

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    This was a couple days ago~ This was around 9 PM I went to the restroom to brush my teeth I was looking at the wall and I notice something strange about my shadow? I moved so to...
    RainbowWolf13 RainbowWolf13 13-15, F 2 Responses 7 hrs ago

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    So I'm just up thinking and writing away everything I'm feeling. I'm gonna have to get up and a few hours because I'm going to the mountains. I can't wait.
    Itsnotareligion Itsnotareligion 22-25, F 2 Responses 7 hrs ago

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    I suppose I could call it insomnia. It has been both productive and destructive in my life. I can remember as a child having great difficulty sleeping. When I discovered books I...
    TunnelofTrees TunnelofTrees 36-40, M 7 hrs ago

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    This past summer I encountered NOT ONE mosquito. What does this mean? Our area, the Canadian Niagara region, has a Carolinian climate, hot and very humid in summer. While it is...
    paulie138 paulie138 66-70, M 2 Responses 6 hrs ago

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    I just accidently sucked all the co2 out of a whipcream can and i still have half a pie left, everythings closed....the struggle is real...
    AntonioV AntonioV 46-50, M 5 Responses 6 hrs ago

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    Look within you. The questions are all there. But look without and encounter a world that needs no answers. If you choose to question it you will be led astray, not by the natural...
    paulie138 paulie138 66-70, M 6 hrs ago

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    My so-called "Random Thoughts" really are random. Most of them appear to me in the middle of the night. They might occur after I've smoked a nice fat joint, or be inspired by what...
    paulie138 paulie138 66-70, M 5 hrs ago

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    iwant that someone to talk to again. someone that’ll listen & not judge cause I get more than enough of that already. nothing is ever rainbows & butterflies. a modern fairy tale...
    alrightco alrightco 22-25, F 1 Response 5 hrs ago

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    If you have brown hair and brown eyes message me because I will love you ❤️
    littleflowerx littleflowerx 16-17, F 3 hrs ago

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    I have earned masters degree in forensic psychology after I earned my bachelors degree in behavioral science. I am a graduate from major research universities in America.
    oldernudistwifeandmom oldernudistwifeandmom 51-55, F 1 Response 1 hr ago

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    I have attended many concerts in my short little life but my groupie experience was pretty fun. It was with a well know dj and his crew. Damn that was a hot and fun night in an...
    PoojaTimberlake PoojaTimberlake 18-21, F 1 hr ago

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    I sometimes wonder what my life would have been like if I wasn't diagnosed with cancer. If I could still walk and do things normal teens do.
    tiaa26 tiaa26 16-17, F 1 Response 40 mins ago

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    So just yesterday my boyfriend left for army basic training, for 7 weeks, and has just arrived to base camp which is where we had to say good bye in text till the next time we get...
    tayrichx tayrichx 18-21, F Oct 28

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    My mom left when I was 12, and ever since then she has made my life a living hell. She intentionally tries to make sure I am not happy living with my dad. She tries to create drama...
    Siciliansdoitbetter Siciliansdoitbetter 16-17, F 3 Responses Oct 28

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    looking to chat. always nice to have more chat buddies. sirjuicealot
    kalosjuice kalosjuice 26-30, M 1 Response Oct 28

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    Well this year has been quite the ride , I been to jail , lost my job, went to rehab, May or may not have a girlfriend idk? Going threw a custody battle , fighting the union for...
    spanishjay spanishjay 26-30, M Oct 28

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    I dream alot about this town off the highway. by the scary water. there is a casino and water park. It has a downtown in the valley with thin streets and stores very close together...
    Lungmyster Lungmyster 41-45, F Oct 28

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    Have any of you ever had an alter start to remove other alters, or kill them to make themselves more prominent? To try to make it just the two of you? So they have more control...
    TheDylanWorld TheDylanWorld 13-15, M 6 Responses Oct 28

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    It's been slowly happening over the last two years but in the last few months it's been dramatic there are a few people hanging on but I guess that's because they've never spent a...
    lilygeorge12 lilygeorge12 22-25, F 1 Response Oct 28

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    I am 15 and I have a job interview for a spot at a recording studio I'm so excited because all of their equipment and instruments is high grade stuff so I really want this job so...
    mrmarshall1 mrmarshall1 13-15, M 2 Responses Oct 28

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    some part of b really abnormally wants to believe in a non realistic second bottom of this story. b observes herself in her suspended minutes. This spark of hope gives her...
    redribbonbook redribbonbook 46-50 Oct 28

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    I know he likes her and she likes him. But they haven't been on a date since she is frustrated with how he is so clueless. I don't think they are suited for another; she is very...
    Maihowl Maihowl 22-25, F 1 Response Oct 28

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    So I've been NC with my NM and GC brother and his family. We live in the same city, relatively close to each other. Yesterday the other brother who I've been LC said in the future...
    zeeva70 zeeva70 41-45, F 2 Responses Oct 28

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    The first time I met you, it was a simple "Hi" followed by an exchange of names. It took a few days for me to really appreciate how handsome and sexy you really are. Your clear...
    Bloo Bloo 22-25, F 1 Response Oct 28

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