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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 43 People

    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 4 Responses Jan 21

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My brother has Glioblastoma

    and I have been caring for him for four months, Any advice, Totally devastated and lost!
    pattydowns pattydowns 46-50, F 1 Response Apr 14

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 6 Responses May 30, 2012

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    flga flga 31-35, M 3 Responses Oct 9, 2014

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    Related Experiences

    First of all, please don't judge..I am a good person that did a not-so-good-thing. I fell deeply in love with someone I shouldn't have. He feels the same. We are both with other...
    Catontheroof Catontheroof 31-35, F 1 Response 10 hrs ago

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    i have recently been posting about my relationship with my Sir. The benefits it brings and how i feel about him. But there are some pretty amazing people in my life that are kind...
    Eyeswiderthnb4 Eyeswiderthnb4 36-40, F 3 Responses 2 hrs ago

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    My cup is overflowing with inspiration. I said it then, I say it once again; I love my special friend. I feel I have more than my EP share! (I couldn't upload the cover pic in the...
    stiltcourt stiltcourt 41-45, F 1 Response 8 hrs ago

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    Even before Kindergarten, I have struggled with a social anxiety disorder known as Selective Mutism. Up until Middle School I never spoke a word to anyone except my family, and...
    girlwithsm girlwithsm 13-15, F 6 hrs ago

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    Yup....and that is because I no longer have the strength, the resilience or the optimism to withstand any more anxiety. I have a dream which means the world to me but what makes me...
    uiop09 uiop09 18-21, F 5 hrs ago

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    June 3 2015. Things have changed for the better since I was in here writing before The chronic fatigue syndrome isn't any better but I'm working some every week. I feel better...
    MsBlueDreamer MsBlueDreamer 46-50, F 1 Response 5 hrs ago

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    ….and concerns about how society is going. I read a lot of posts here. A LOT. Many of them are meaningful, intelligent, and have quality. Some are disgusting, and still others...
    Ravenwind43 Ravenwind43 41-45, F 1 hr ago

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    Why do I Always become EXTREMELY sexually attracted to the friends of my husband?? My husband has forbidden this one to me for 10 years ( I have had.a few of his friends, like in...
    curiouslylooking4me curiouslylooking4me 31-35, F 1 Response 12 hrs ago

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    idk why allmost everyone I know is on kikster and it's like why text on a phone when I got my comp and I can press the keys on a keyboard alot better than on my phone. I don't like...
    foxy4ever foxy4ever 13-15, M 2 Responses 10 hrs ago

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    I have been diagnosed with type one and two cervical dysphasia. Since 35% of cases heal on their own I am going to wait and get another copo in 6 months before having the LEEP...
    jackiesmith12 jackiesmith12 22-25, F 7 hrs ago

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      My name is Jaydie and I am 15 years old. A few months ago, I was diagnosed with depersonalisation/derealisation, which causes symptoms such as feeling unreal, not alive...
    Jaydkins Jaydkins 13-15, F 2 Responses 4 hrs ago

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    so lesson learned sufficiently...went to the beach Saturday with a bunch of friends. at first, when we got to the beach it was cool, and there was a heavy fog, which actually...
    bcharap bcharap 36-40, M 1 Response 4 hrs ago

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    I wonder if there are any others that can relate to my issue. I have traveled to and lived in other countries over the years. I was stationed in Germany for a couple of years...
    LostDragon LostDragon 56-60, M 4 hrs ago

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    Im in hospital right now.. Theres an old lady with a towel on her head singing religious songs and laughing, and i swear a guy was sent here for dad jokes, cos he is constantly...
    lauhi lauhi 26-30, M 2 hrs ago

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    Soo.. Time does heal. Mentally i'm doing good. I don't cry as much and i sleep much more better. I went to the doctor for my bloodtest results last monday. Kinda late i know, but...
    camikrma camikrma 18-21, F 1 Response 1 hr ago

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    My scars remind me that I survived... I survived a horrible dark time in my life, and I don't have to be ashamed of that. Each one of those marks was another hour, another day...
    Tori84 Tori84 26-30, F 1 Response 12 hrs ago

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    I would have married a woman after only knowing her 3 months. I knew I wanted to marry her within 2 weeks. Gladly, I would have loved her forever and laid down in traffic for her...
    Ajushi Ajushi 41-45, M 1 Response 12 hrs ago

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    This was about a life altering heartbreak. Someone I care & love very deeply for, which in turn helped me discover what I am about. Please, leave your thoughts. ❤True love is...
    Stickwithmebaby Stickwithmebaby 36-40, F 12 hrs ago

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    Religion based families dont mix such as Catholic and maybe Jewish. I even see asian guys and other ethnicities finally starting to mix these days. Korean and Japanese families...
    BoxJellyFish64 BoxJellyFish64 22-25 2 Responses 11 hrs ago

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    I met a nice girl that wanted me to show on webcam. After I started my cam I liked to see her take off the clothes and let her watch me ***** too. Till then I have showed my self...
    Ruefe87 Ruefe87 26-30, M 11 hrs ago

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    I have had anxiety for my whole life. It's frustrating because sometimes I can't sleep which is even more frustrating because I have 2 kids. 2yr and 6 months. The other day my mom...
    xiluvspink xiluvspink 22-25, F 1 Response 10 hrs ago

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    Hey guys, just wondering if anyone had/have problems with creativity, having this disorder? Mine was off, on for a few months than now fading a bit. For ex/ my creativity... I've...
    SsMcGavin SsMcGavin 22-25, M 8 hrs ago

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    He threatened to end my life just because of things I have believed in, and he said "if you believe in such cause, why don't you believe my words on killing you?" And I simply...
    Gino19 Gino19 16-17, M 5 hrs ago

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    I have recently come to terms that I like a certain guy, we were really close last year but now not so much due to not having classes together. I really miss him and I'm now...
    Bethhhhhh Bethhhhhh 18-21, F 1 Response 4 hrs ago

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    I own and restored a 68 coupe I owned this car since 1994.The one thin i have noticed is there is no love for the coupe.i have found stuff (shirts,model kits, die cast, posters...
    Jazonx Jazonx 36-40 3 hrs ago

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    No matter what I dream about I always end up the only woman, naked, and with a group of guys in my dreams somehow. From sports to partying I have a Colgate smile on my face and...
    kristaw12 kristaw12 31-35, F 1 Response 2 hrs ago

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