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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 39 People

    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7

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    flga flga 31-35, M 3 Responses Oct 9

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Related Experiences

    I am engaged to my best friend of 8 years, partner of 3 years who happens to be in the military. We both want kids someday. We are not in the situation currently to have a child...
    Lexx42 Lexx42 18-21, F 1 Response 18 hrs ago

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    A few years ago I was participating in a marathon event and at the half way mark I was super tired and felt just like I was running through treacle. As I am keen on fitness I...
    jjthornton jjthornton 41-45, M 16 hrs ago

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    The Royal Library of Alexandria EXISTS! By Paul Dale Roberts, HPI Esoteric Detective Halo Paranormal Investigations - HPI International https://www.facebook.com/#!/groups...
    PaulDaleRoberts PaulDaleRoberts 51-55, M 6 hrs ago

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    It is so tough to change or heal. When for my entire adult life, I have been in bad relationships. I have no more relationships( boyfriends) the past 2 years but I still get...
    Howtobeme Howtobeme 51-55, F 10 hrs ago

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    Wonder if anyone can help. Ive been in a relationship with a Romanian man for just over 7 months now. I myself am british and although at first there were language barriers its...
    beckalem beckalem 36-40, F 5 Responses 9 hrs ago

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    I have been this way since I was 12 Yrs old, due to my parents divorcing and me having to live in 2 other towns at different times. I became suicidal at age 15 and that lasted up...
    psychologicallydamaged psychologicallydamaged 41-45, F 9 hrs ago

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    I want Confindence in myself. I have been battling what i now know as rosacea since i was 12. In turn its made me extremely shy and self conscious about myself. I don't have flare...
    ARP90 ARP90 22-25, F 6 hrs ago

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    Am I the only one who hates that we HAVE to rely on people to live. We have to rely on doctors to help when sick, same with surgeons. We have to rely on farmers to get us our food...
    akaShaun akaShaun 16-17, M 5 Responses 4 hrs ago

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    Live And Let Live. (EP Edition)This website has been up since 2007.Millions of people have joined since. From different backgrounds. Different lifestyles. Different views and...
    DoctorSheldonCooper DoctorSheldonCooper 18-21 3 hrs ago

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    Seriously! at my age my friends are always teasing me for being single, their words are "When are you going to sentenced yourself to life imprisonment" and i am just trying to joke...
    ShadesofWhite67 ShadesofWhite67 26-30, F 1 hr ago

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    Just found out... I wasn't surprised when the doctor told me the news. I had already been doing my research on it and my symptoms were practically identical to everything I was...
    anomalnonomous anomalnonomous 26-30, F 1 Response 17 hrs ago

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    sorry i need to vent yesterday i found out tmy mom does have lung cancer im probably youn g i went had a few glasses of wine then i was like a kid phoned people its cause im not a...
    hannahabbie hannahabbie 46-50, F 13 hrs ago

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    Top 4 questions/requests people have asked me by mail. 1) Hi ZA, why do health experts say light Brown three are the healthiest stools? Anyway we can achieve it too? My A to him...
    ZADoubleMesser ZADoubleMesser 22-25, F 12 hrs ago

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    If at least two of them have a Yes as your answer, you're a great friend to bond with :) 1. Do you enjoy messing yourself? 2. Do you enjoy messing stuff up? 3. Do you plan your...
    ZADoubleMesser ZADoubleMesser 22-25, F 11 hrs ago

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    Let's talk about sp*rm donors. Okay, so, ever think that popular sp*rm donors ever wonder how many children they have out there? (Imagine like 20+ kids o_o) (now I know this one...
    sugarcakes143 sugarcakes143 18-21, F 2 Responses 8 hrs ago

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    i'm only 15, and i have so many issues and have made so many mistakes that i regret. i also have been heart broken, i swear to god i thought i was f*cking dying. it hurt so bad. it...
    courtneythepizzaqueen courtneythepizzaqueen 13-15, F 1 Response 7 hrs ago

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    well the reason i've never dated anyone is because the schools i went to all had really mean students that bullied me all the time mainly because i have long hair, have acne, and...
    viper1024 viper1024 16-17, M 3 hrs ago

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    some ****** up ******* wrote this scenario. It's time to start fancying it if there is no other job. Why are you so upset? asked the Donkey. I am to play the role of a heroine...
    redribbonbook redribbonbook 46-50 2 hrs ago

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    So it's raining now. I was late today,about 15mins..Not good,I arrived at 6.45 am. Weird dream, that's the culprit. I'm on duty with my female colleague today so its kinda...
    DNightTrain DNightTrain 26-30, M 1 hr ago

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    I think. I'm no doctor, but I was reading the symptoms and I know I know that's no way tell tell if you have it. I'm emotionless, I don't make eye contact, I'm clumsy and awkward...
    PsychedelicSmile PsychedelicSmile 18-21, F 1 hr ago

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    Dreamt about my old crush approaching me then he said in my ear "I have a gf that I miss so much. Why did you leave without telling me?" Then when things got existing I woke up...
    itsjustme11119 itsjustme11119 16-17, F 1 Response 19 hrs ago

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    Sorry just deleting some people on my circle. I'd rather have few on my circle than have a long list but you never actually spoken to them.
    Lakee112812 Lakee112812 36-40, F 2 Responses 16 hrs ago

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    For most of my adult life I've suffered from alcoholism. For years I lived under the illusion of control, 'I got this, I can handle this, I know what I'm doing' were my standard...
    Allysoninaz Allysoninaz 46-50 2 Responses 12 hrs ago

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    I want to know, have you ever seen the rain? I want to know, have you ever seen the rain Comin' down on a sunny day?
    jml2000 jml2000 56-60, M 11 hrs ago

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    This certain friend crush thing is weird. I knew I liked him as a friend but but took me half a year to figure out that I had an insanely huge crush on him. He was just walking by...
    fivesaucewhoop fivesaucewhoop 13-15, F 10 hrs ago

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    Here's one that shouldn't have been too big of a deal- but it was.Some of you know the Honesty Box app on Facebook. It's where one can anonymously say what they think about another...
    insidious2014 insidious2014 18-21, M 1 Response 9 hrs ago

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    well.i had to face my fast again through a friend I know who told me to see a specialist who cure ppl throw energy of color and yoga etc..so I went to her and I was so nervous. She...
    denez denez 22-25, F 8 hrs ago

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    I've never trusted anyone in my entire life. not even the people I love the most in my life. I mean you have to have basic trust in people to do simple things but trusting...
    pikapup17 pikapup17 18-21 8 hrs ago

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    I have, yes it isn't something I'm proud of. And I know I shouldn't have. I know I shouldn't. So why do I? I don't know.
    wedgieshurtalot wedgieshurtalot 16-17, F 2 Responses 7 hrs ago

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    I don't have a brother. I have 3 brothers. Their way older then me. Same for sisters way older then me :(
    lorrena19 lorrena19 18-21, F 1 Response 7 hrs ago

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    I have self harmed for quite a long time, though it has been around three months since I last did it and I really hope that I can keep it up. Though I try not to be ashamed of my...
    ExPButterfly ExPButterfly 16-17, F 1 Response 5 hrs ago

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    I am partially incontinent due to a minor car accident and a childhood psychological block in my unconscious. Most days I have bladder control. But on occasional days, I have no...
    heyimalive heyimalive 18-21, M 3 hrs ago

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    I like talking about haircuts but I really would like to find a girl that wants to actually cut her hair. More precisely have it cut by me. There are so many girls here that have...
    Jackson3421 Jackson3421 31-35, M 2 Responses 3 hrs ago

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