I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 45 People

    I don't know what to do my husband has been

    give 1-2 to live after the surgery to remove the tumor. I don't know if we do the right thing. I am a scare for him to go through radiation treatment and chemo therapy. The oncology suggest that my husband should do the whole left side of his brain in radiation. I'm afraid that...
    leannesince leannesince
    26-30, F
    2 Responses Jan 4

    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4
    61-65, F
    Mar 7, 2014

    My mother was diagnosed with GBM stage IV on

    August 6th 2014 at age 41. She had surgery within the week and we were told the entire tumour was removed. She then began radiotherapy and oral chemotherapy cycles. Every 3 monthly MRI came back clear and he was having minimal side effects to the treatments, June this year it...
    MadisonRoseTC MadisonRoseTC
    18-21, F
    Jul 6, 2015
    flga flga
    31-35, M
    3 Responses Oct 9, 2014

    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193
    22-25
    3 Responses Jul 18, 2013

    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char
    26-30, F
    7 Responses Jul 7, 2012

    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH
    16-17, F
    5 Responses Nov 6, 2012

    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey
    26-30, F
    4 Responses Feb 7, 2014

    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3
    56-60, M
    4 Responses Jan 21, 2015

    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7
    56-60, F
    18 Responses Jan 12, 2011

    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter
    36-40, F
    4 Responses Feb 13, 2013

    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse
    51-55, F
    Mar 16, 2012

    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9
    31-35, F
    Feb 13, 2014

    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8
    41-45, F
    6 Responses May 30, 2012

    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90
    22-25
    Sep 26, 2012

    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas
    56-60
    2 Responses Aug 19, 2011

    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982
    31-35, M
    1 Response Dec 16, 2014

    My brother has Glioblastoma

    and I have been caring for him for four months, Any advice, Totally devastated and lost!
    pattydowns pattydowns
    51-55, F
    1 Response Apr 14, 2015

    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913
    31-35, F
    3 Responses Oct 11, 2012

    Related Experiences

    I have to pee kind of bad right now. I'm planning until holding it until Friday, though. I have a strong bladder. I already feel some pain. I'd love to be tortured. Can someone pm...
    Gabbylovesjustin Gabbylovesjustin
    22-25, F
    1 Response Apr 3
    I love having one. Sadly I don't have many contacts yet. Im straight so $_exting isn't going to happen sorry guys :) but I don't mind chatting gay bi or trans people about things...
    jarocho jarocho
    22-25, M
    Apr 3
    I had a scary dream last night and I know this isn't the first time I've had this dream as if felt familiar upon waking up. Here it is: I'm in a house with a few people, it's...
    ADCue44 ADCue44
    18-21, F
    4 Responses Apr 3
    I always wanted to have super powers as a little boy. I wanted the ability to grow bigger. I always wanted to be a giant, so I wish I could embiggerate myself to epic proportions...
    Profweird Profweird
    22-25, M
    Apr 3
    Anyone wanting to have gay anal in Aberdeen? I'm 16, no older than 35
    xxFraserxx xxFraserxx
    16-17, M
    Apr 3
    50. I'm so in touch with myself that I am out of touch myself. Everything is a routine and I no longer have any real feelings for any emotions. I feel quite numb. I am numb. Even...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 3
    I do get very deep in my fantasies and i love sharing them with people who are open to accept them and even enjoying being in that moment! I love to create stuff which i have not...
    pleasuretobehere pleasuretobehere
    26-30, M
    Apr 3
    When I was in Junior High the whole class got it one at a time, for misbehaving substitute teacher. Our science teacher was strict and didn't tolerate talking or not doing what...
    davedexp davedexp
    56-60, M
    1 Response Apr 3
    My wife and have had many threes ones with her girlfriend but I would really like to try mfm. I've got a best friend that packs a 10" beast and I want to want her enjoy it. Not...
    Shootinone1 Shootinone1
    26-30, M
    1 Response Apr 3
    Call of Duty zombies dream, love this because I get to be with my two favorite characters Nikolai and Dempsey! I ended up on the catwalk in Call of Duty zombies Der Rise. I...
    CaptainDragoness CaptainDragoness
    18-21, F
    Apr 3
    Just got done downloading 78 solid color anime wallpapers. They are really nice to look at. I have them set on a slide show to change every minute. Can you believe that? 78...
    jasonBK1 jasonBK1
    18-21, M
    Apr 3
    Anyone else have one? If you do comment down below, don't be shy I don't judge
    unknown0726 unknown0726
    13-15, F
    4 Responses Apr 3
    My therapist lied to me. Instead of telling me that she had married months ago and was pregnant, so she couldn't take sessions, she told me that I was at fault because I couldn't...
    lonelylifeindia lonelylifeindia
    26-30, M
    Apr 3
    I can't wait to have kids , I know it's no going be easy but it's something I always wanted and I know when time is right GOD will allow to have one & I know it will be the...
    deleted deleted
    26-30
    1 Response Apr 3
    They don't scare me so much anymore. I realized I was beginning to overcome my fear when I was home alone at night watching a movie and felt something touch me after feeling it...
    thisisnotanexit thisisnotanexit
    26-30, F
    1 Response Apr 3
    Friday was rough for us. I responded to something you said about my friends being jealous of me over you. I said it was more like pity for me. You bristled. I persisted. Obviously...
    lilimartelini lilimartelini
    51-55, F
    Apr 3
    When you sleep too much. 4 hours ago I had a dream about Charlie Sheen. Being his daughter and switching in the dream and being his girlfriend. Saw him grow up and had a family...
    LeahLovee LeahLovee
    70+, F
    7 Responses Apr 3
    Its funny when people ask if I have any piercings? I tell them yes and show them all the holes from when I was really into body peircing, the only peircing I wear now is nipp rings...
    Haze94 Haze94
    22-25, F
    2 Responses Apr 3
    anybody online wanna make me burst? i just woke up and have to pee. what tortures my bladder: teasing about water, listening to water, drinking water, no crossing legs...
    controlmybladder controlmybladder
    22-25, F
    9 Responses Apr 3
    I am 50 years old and completely paralysed by my fear of v*. My husband and I went to a party last week and by the evening after, 10 of us that went were sick. Some virus must...
    Whitelilyrose Whitelilyrose
    46-50
    1 Response Apr 3
    Armen Berjikly could have had the decency to make sure his brainchild (ep) didn't decay & drip through the floorboard.... even a rock solid foundation has gaps
    deleted deleted
    26-30
    1 Response Apr 3
    Does anyone else constantly try to hide their trich? I feel like no one understands and my parents don't believe it's a real disorder. I have basically no eyelashes and I buy eye...
    kellyu22 kellyu22
    13-15, F
    2 Responses Apr 3
    I don't have any anymore thank God. I used to have them as a kid and they were scary to me that I thought it would happen in real life. I had them for weeks about my neighbor...
    Niceguy890 Niceguy890
    26-30, M
    Apr 3
    Does anyone have all these symptoms for 3 week? And only one week of feeling normal? Pain areas: in the breast, abdomen, back, joints, muscles, pelvis Gastrointestinal...
    mnutz mnutz
    36-40, F
    Apr 3
    I have a 13-year-old girl with thick curly hair. I still brush her hair because it always gets in knots. For a long time, she has wanted to just cut it off. But I don't want to let...
    imAddison imAddison
    13-15, F
    Apr 3
    Well somi have put on more than just a few pounds apparentlyI think I am overweight but not sure.someone message me im soooo bored 
    kendallmiller kendallmiller
    18-21, F
    2 Responses Apr 3
    Does anyone have anxiety while driving? Can you tell me what you do to calm yourself while driving. I have a long drive to do. so anything will help.
    JustWantBeauty JustWantBeauty
    18-21, F
    6 Responses Apr 2
    EP is ending, sadly. But I want to "celebrate" having 720+ experiences, 35400+ profile views and 10,000+ Circle friends. Yes, I'm one of few maybe many who cares about these...
    LeahLovee LeahLovee
    70+, F
    9 Responses Apr 2
    My sister who is only 16 has come out to my family as gender fluid a few months ago, and has recently told my mom that in the future she wants to take hormones to become a man. She...
    G1121 G1121
    22-25, F
    Apr 2
    I have updated my blog! See more in the comments below:
    dWizz808 dWizz808
    41-45, M
    2 Responses Apr 2
    Does anyone else have imaginary friends? :) If so, kick me and join my new group for girls with imaginary friends :) But here are the rules: - you have to be a Christian -you can...
    ImaginaryFriends4Ever ImaginaryFriends4Ever
    16-17, F
    1 Response Apr 2
    I have updated my blog! See more in the comments below:
    dWizz808 dWizz808
    41-45, M
    1 Response Apr 2
    So this "Experience Again" website is counting down until it goes live. I entered my email address and it kind of seems like its a new version of EP but I can't tell for sure. I...
    SRayne SRayne
    51-55, M
    7 Responses Apr 2
    i have been scared of holes since primary school it was a film i watched where the man gets lots of holes in his hands eversince my insides feel utterly revolted and just completly...
    sarah1084 sarah1084
    31-35, F
    Apr 2
    so I am writing for my book chronicles of sam volume 2. it is a compilation of short stories based on paranormal experiances that my family and I have had in our life when all of a...
    Sorellana Sorellana
    26-30
    2 Responses Apr 2
    For my story, I was always a bit bigger than everyone around me. My family is all pretty fat, but I'm the largest kid (despite being the youngest) and I outweigh my mom. I broke my...
    oliviayay oliviayay
    18-21, F
    Apr 2
    46. Ever since I said I wanted to be friends. I haven't heard from him. Not a "hi".. Nothing. I'm a little hurt to be honest. But I know he's speaking to 5-10 other girls. I don't...
    UnicornsOfHope UnicornsOfHope
    26-30
    1 Response Apr 2
    a lot of guys are so willing to have sex with you when they are drunk but wouldn't give you the time of day if they are sober
    margie215 margie215
    46-50, F
    10 Responses Apr 2
    Okay so am I crazy for this? Well I'm a person who's quiet, I do have a temper on me. Yet I'm still trying to find myself. I have a big imagination especially when I'm trying to...
    bchfdj bchfdj
    16-17, F
    Apr 2
    My life has been full of painful experiences. No one understands me. Every single day is like I am holding lot's of burden which is out of my capacity. I don't understand how to...
    Realkitty Realkitty
    22-25, F
    Apr 2
    Courage isn't having the strength to go on - it is going on when you don't have strength.
    Wantsfortomorrow Wantsfortomorrow
    41-45, F
    2 Responses Apr 2
More Stories