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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 42 People

    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 2 Responses Jan 21

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

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    flga flga 31-35, M 3 Responses Oct 9, 2014

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    Related Experiences

    My father was diagnosed with glioblastoma last May 2014. He had surgery and most of tumor was removed. Started chemo and radiation. Timodar 5 days at beginning of month. Avastin...
    Shorty59000 Shorty59000 41-45, F 1 Response 1 day ago

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    So basically most people who aren't that close to me don't know that I am a person who suffers from GAD (Generalized Anxiety Disorder). Some of the symptoms of GAD include...
    devinesoul94 devinesoul94 18-21, F 1 Response 7 hrs ago

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    i have low self esteem, and i hate it. because i love myself, but its like i find trouble thinking in that way everyday. i have headaches sometimes thinking about bad things. I am...
    NonoFlorArtist NonoFlorArtist 13-15, F 1 Response 2 hrs ago

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    What does it really mean to be soul mates? I believe I have found him. We've known each other for years, our paths crossing with the potential for love twice before. But this...
    queennaji queennaji 18-21, F 2 hrs ago

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    Well we should start from the beginning but I have made the decision to become open about this even though i don't want to but I feel like I have to. I started back in 6th grade I...
    beeella beeella 13-15, F 1 hr ago

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    Yes, I have a lava lamp in my bedroom. I'm not ashamed to have spent $25 on it. It has clear fluid in it with purple "lava," in it. Personally, I think they're cool, and bring a...
    enigmaticraven enigmaticraven 31-35, F 3 Responses 10 hrs ago

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    I don't understand why dying has to be a bad thing. I seriously can't wait. I believe in God...was raised southern Baptist...but have formed sort of own belief. I know that IF...
    DownSouthFlGirl69 DownSouthFlGirl69 26-30 9 hrs ago

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    I am in 8th grade and most of my friends have dated or have a girlfriend, what should I do or how do I become friends with a girl?
    FedExPizza FedExPizza 41-45, M 1 Response 9 hrs ago

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    I just got transferred from one community mental health center to another, and today the new psychiatrist asked me what I was diagnosed with during my last hospital stay. I said...
    sarahk85 sarahk85 26-30, F 9 hrs ago

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    As I go about my daily run its my relationship that is running through my mind, how did it degrade to what its become? How could I make things better? Do I want to try and save it...
    spiritofthecelts spiritofthecelts 31-35, M 1 Response 8 hrs ago

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    I have a few great friends that I have never met. Best friends* each message from them reminds me that I am not alone, but it hurts when all I need is a hug and no one is here...
    Harper101 Harper101 16-17, F 1 Response 7 hrs ago

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    I have dated a lot of Women in my time, and I found out one thing. It is, that white women, can be extremely boring at times. Notice I did not say, all the time. I said at times...
    Elkins91 Elkins91 22-25, M 1 Response 7 hrs ago

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    My sister and mother just laid the law down on me by severe arguing only coz I didnt want my kids to here my sister's convo after midnight with her friends as I have set rules for...
    Fizzy0875 Fizzy0875 36-40, F 3 hrs ago

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    I know for some people the following statement may be a shock and may even be disbelieved ....... You can disagree with someone without insulting them or being condescending. I...
    SolitaryElf SolitaryElf 41-45, F 2 Responses 2 hrs ago

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    Oooooh....... there are so many! I think I might have a pet peeve about how many pet peeves I have!
    girlfaith girlfaith 36-40, F 1 Response 48 mins ago

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    Hey! I have an insta account; you follow me and I'll follow you back. You like my pics and I'll like yours too😃. And if you unfollow; I may unfollow you too. Hit me up...
    TheRobin1112 TheRobin1112 16-17, M 8 hrs ago

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    Every single one of us struggles with attitudes and behavior patterns that are self-defeating and bring unhappiness. Any form of dysfunctional behavior- like yours, like mine...
    Injoy1767 Injoy1767 46-50, F 1 Response 7 hrs ago

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    Had to leave for a few hours, need to breathe and calm down before it escalates! I hope these "tests" bare fruit in later life coz right now I'm struggling internaly to cope! I'm...
    spiritofthecelts spiritofthecelts 31-35, M 3 hrs ago

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    I am a nice person to strangers and I'm friendly, helpful, kind and pretty funny to my friends.But at home I'm hot tempered, won't speak to anyone if I don't have to. Lock myself...
    Jabezzz2 Jabezzz2 31-35, M 1 Response 3 hrs ago

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    Have Good Manners....................
    goodnites25 goodnites25 22-25, M 3 hrs ago

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    sorry guys I have been really busy so yea ill try to be on more often
    Bonjovi11 Bonjovi11 13-15, M 1 Response 3 hrs ago

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    I've tried talking to my boyfriend about some problems regarding my best friend but he just gets upset at what I tell him. I think I've gave him a bad impression of my family too...
    Sayybriana Sayybriana 18-21, F 2 hrs ago

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    I have a bad *** beard and dam proud of it. I would never shave it off!
    RedDog123321 RedDog123321 18-21, M 2 hrs ago

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    Have Been In An Airplane...................
    goodnites25 goodnites25 22-25, M 2 hrs ago

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    does anybody know of a way i can read A MANGO SHAPED SPACE without buying it?? i dont have the $$ atm but it sounds so amazing!!
    kinkystapler kinkystapler 18-21, F 1 hr ago

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    I've gone to the extent of avoiding my gruesome memories; I know I've suppressed many of them to the deepest of my mind. I have the knowledge that doing so isn't safe but I feel...
    LoveOverHatred LoveOverHatred 18-21, F 1 Response 1 hr ago

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    I just want to say that is it is a great feeling. I have been doing taekwondo ever since I was 6 and it's great knowing I can protect myself. I really do recommend learning a...
    Someonequiet17 Someonequiet17 18-21, F 52 mins ago