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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 44 People

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    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

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    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 4 Responses Jan 21

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

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    My brother has Glioblastoma

    and I have been caring for him for four months, Any advice, Totally devastated and lost!
    pattydowns pattydowns 51-55, F 1 Response Apr 14

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    flga flga 31-35, M 3 Responses Oct 9, 2014

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 6 Responses May 30, 2012

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    My mother was diagnosed with GBM stage IV on

    August 6th 2014 at age 41. She had surgery within the week and we were told the entire tumour was removed. She then began radiotherapy and oral chemotherapy cycles. Every 3 monthly MRI came back clear and he was having minimal side effects to the treatments, June this year it...
    MadisonRoseTC MadisonRoseTC 18-21, F Jul 6

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    Related Experiences

    We have been together for over a year and I half, I love her so much.
    FatGingerDyke FatGingerDyke 22-25, F 16 mins ago

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    Today Again you were in my dream. We both were chatting. you seemed upset . You were telling me the difficulties you are facing in your life.You were telling me about your mum.You...
    lovemylife2210 lovemylife2210 26-30, F 19 mins ago

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    Few months back, you would often come in my dreams. We were together at that time so I thought its normal to have you in my dreams. I never had you in my dreams since you left...
    lovemylife2210 lovemylife2210 26-30, F 1 Response 27 mins ago

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    As the years go by I become more and more unable to restrain the monster growing inside me. I am alone in this world and even my own reflection turns its back on me, leaving me...
    anhonestgirl anhonestgirl 26-30, F 1 Response 45 mins ago

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    She's extreme. The problem is that I was brought up to respect my elders. She is mine, im the younger. I've never ever thought it was my job to tell her right from wrong. Yet, it...
    Adventurousprofiler Adventurousprofiler 46-50, F 1 Response 46 mins ago

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    I've been so worried recently.. For people with anxiety, you know you do a lot better when you have a schedule everyday. (Wake up, work, come home , do chores, eat, sleep, then...
    akaShaun akaShaun 16-17, M 3 Responses Jun 28

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    I have no friends... Anyone wanna be friends
    HannahR3n33 HannahR3n33 13-15, F 3 Responses Jun 28

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    I am almost 17 and I have never had my first kiss. My friends are so experienced and I'm not... I'm already gonna be a junior.
    Emmahlove Emmahlove 16-17, F 7 Responses Jun 28

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    I'm a lesbian. I have kept it a secret for 16 years. I'm final ready to tell my family and friends. It feels amazing to be comfortable with who I am.
    findingme85 findingme85 26-30, F 2 Responses Jun 28

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    Hmu if u have it U can respond here or message me I'll def see it if u message me tho I don't always check here
    deleted deleted 26-30 15 Responses Jun 28

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    No friends means more Netflix. That's how I see it. I guess I have my dog but he doesn't keep much of a conversation going.
    deleted deleted 26-30 4 Responses Jun 28

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    I feel like I don't have the ability to get pregnant. More Clomid for me I guess. :(
    foreveraaprincess foreveraaprincess 22-25, F 1 Response Jun 28

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    Promotion of sickening. Have a beer. Get high. Buy this. Go there for fun. But. They never promote cures. They claim caring. But never stop abuse. They rule...
    Converted Converted 46-50, M Jun 28

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    I had three but now I have two, I guess. It's been probably a month now since we last talked. Kinda sucks. With two people; I feel like I can be remembered. There's a reason to...
    Kkgunny Kkgunny 16-17, F Jun 28

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    I'm currently underweight and have a low BF% but I still hate my body. I'm 30 yrs old and afraid I'll never find peace.
    Daninhell Daninhell 26-30, F Jun 28

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    To everyone who suffers with seizures whether they be PNES, epilepsy or both. Or you know someone who has seizures please make sure that you or the person you know are aware of...
    VolunteerMouse VolunteerMouse 22-25, F Jun 28

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    I've got a few : Kneecap : I use to have a four wheels so we put down cement behind the house so I could move it easier? Idk, I don't remember the plan behind it, but it was...
    akaShaun akaShaun 16-17, M 3 Responses Jun 28

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    The good news is I FINALLY bought a new hammock and I'm on vacation for the week. The bad news...OH HELLZ NO!!! There ain't no bad news!!! I have a new hammock and I'm on...
    pinkstarburst pinkstarburst 41-45, F 7 Responses Jun 28

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    I take the hit to ensure others get their happily ever after..... Will it ever be my turn ? I don't think so, time is passing I'm aging less confident , my looks have faded, my...
    auburngirl52 auburngirl52 51-55, F 2 Responses Jun 28

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    Im just a normal bi guy whos just now discovering furries and i want to have a gay experience with somebody
    Rogue2224 Rogue2224 22-25, M Jun 28

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    Thank you to everyone who has viewed my posts about my PNES and other subjects. All the messages, hearts, responses and comments received mean a lot. I have met some really nice...
    VolunteerMouse VolunteerMouse 22-25, F 1 Response Jun 28

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    I have a scar on the back of my ankle, and it happened when I was 7, I was sitting in my sisters room, and I wanted to get out, but my brother was blocking the doorway, so I...
    Bflyboo14 Bflyboo14 13-15, F 5 Responses Jun 28

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     I dont have to get dressed up!
    SouthernBelle2 SouthernBelle2 41-45, F 5 Responses Jun 28

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    I had someone special to me leave ep. I will miss him. I wished I understood why. We had gotten close, and then his switch flipped and I was left to wonder. I'd rather have...
    frspch frspch 51-55, F 12 Responses Jun 28

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    I have a group for teens clean chat
    tunp1122 tunp1122 13-15, M Jun 28

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