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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 38 People

    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 56-60, F Mar 7

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    Related Experiences

    I wish I was fearless and bold and, could put up a fight and stand up for myself but the truth is I am as timid as one could ever be. I shy away from strangers and stress out if I...
    patiencesentience patiencesentience 18-21, F 7 hrs ago

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    Hi my name is Laura and I'm 30 years old, I have had HS since I was 17. I unfortunately have the severe case of this horrible condition, doctors and nurses had no idea what it was...
    lauras1984 lauras1984 26-30, F 1 Response 3 hrs ago

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    I'm sharing this with you because I want to know how I can move forward from this. I do love my husband but I feel so betrayed by his actions. And not just him his family and...
    2011dolly40 2011dolly40 41-45, F 5 hrs ago

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    I have 3 tattoos and they each have a special meaning to me. I would love to get more but in the professional world, it is typically looked upon as taboo. However, I have been...
    nicolek16 nicolek16 22-25, F 1 Response 1 hr ago

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    The First Time Many times...along my life: - First time was in a major change.I had it all,I was happy kid with a family.Suddenly,I lost it all.My mom died.Days without sleep...
    4biandu 4biandu 26-30, F 23 mins ago

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    I have trust issues. I haven't ways had them, in my younger years I trusted without fear of pain or betrayals but I can't function like that anymore. When I was 19 I started...
    misspaperwait misspaperwait 22-25, F 7 hrs ago

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    Since I told my husband I have DID, I no longer want anything to do with him physically. Sex was always torture for me; it hurt, it's gross, and I never really desired it. I only...
    BrokenOneX BrokenOneX 26-30 2 Responses 6 hrs ago

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    I have been hurt and cheated on many times and still, here i am, staying with him and loving him. Now, other woman (he denies having any communication with her) is texting me and...
    brokenscarred brokenscarred 36-40, F 2 Responses 3 hrs ago

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    I have about 7 mental disorders. I have bipolar, schizophrenia, borderline personality, impulse control, intermittent explosive, PTSD, and Asperger's syndrome. I have a lot of...
    Blaze1103 Blaze1103 26-30, F 35 mins ago

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    This is my 1st post of any kind on ep. Yes i am a crossdresser! I love all things feminine. I have done this since i was a teen but currently have only a few items. Dam purges...
    dyaneleigh dyaneleigh 51-55, T 1 Response 13 mins ago

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    When I was 18 I got diagnosed with chronic pancreatitis and have had lots of test done but still live everyday in pain. Is this normal for pancreatitis or has anyone have this...
    Josh3945 Josh3945 18-21, M 6 hrs ago

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    Before couple of weeks (17 May 2014), I did a safe sex with a prostitute. But I lick her vagina it was unprotected just for a fraction of seconds, and I tasted something I don't...
    rohitram rohitram 22-25, M 4 hrs ago

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    I recently got diagnosed with ADD. It makes sense when I think about it but while it gives me some hope of achieving academic sucess. It feels like I am defective...its a bit of a...
    drakneko drakneko 22-25, T 1 Response 2 hrs ago

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    I have a couple, one which no one knows. Another a few people know.. one of those people was an "oops, I let it slip" and my mom got a phone call from some place that deals with...
    brittanys13 brittanys13 22-25, F 1 Response 8 hrs ago

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    I came out as bisexual to only some people in my family; if my mom or grandparents find out I'll be disowned. :/ I haven't come out as Agender to anyone yet...
    Dessy16 Dessy16 16-17, F 8 hrs ago

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    The women of today have tutorials on how to walk in high heels. I wonder what the tutorials were like when foot-binding was popular. I also wonder if the women of tomorrow will...
    thelonewood thelonewood 26-30 6 hrs ago

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    Yes, I've never been in a relationship.. There are times some guys and one girl confessed to me. But I've rejected them all. I support lesbians but I'm VERY VERY straight. I don't...
    IdioticBear IdioticBear 16-17, F 5 hrs ago

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    I constantly have fights with my mother. Full-on screaming fights. She is almost 50 years old and yet chooses to go for the "I guess I'm a bad mother whoops" line at the first sign...
    HexTek HexTek 16-17, F 3 Responses 4 hrs ago

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    I write this post not for myself, but for my boyfriend who found out that he had unknowingly passed the virus on to me. Hopefully someone who's experienced something similar may...
    tflmms tflmms 22-25, F 2 hrs ago

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    I was diagnosed with ADD when I was 14 (I am now 20.) and have tried almost all of the medications out there. So far vyvance has worked the best for me. I'm currently on it and...
    krazykay20 krazykay20 18-21, F 2 Responses 2 hrs ago

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    Yup cuz they understand me more than girls .and they don't judge me like girls do and when I wear a t-shirt and jeans they don't tell me u look like a boy they only tell me that I...
    DrowningInPain2 DrowningInPain2 13-15, F 1 hr ago

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    I'm gay and it's hard enough to find people where I live, I found a guy or he found me on the computer and it was a long distance relationship, which I knew would be terrible in...
    EricRadliffe EricRadliffe 18-21, M 1 Response 35 mins ago

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    http://www.experienceproject.com/stories/Just-Have-To-Say/4445569
    converted converted 46-50, M Jun 23

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    http://www.experienceproject.com/stories/Just-Have-To-Say/4445569
    converted converted 46-50, M Jun 23

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    I have done it a million times it seems from since I can remember. Sitting there when I was little, or standing even to this day there at 16. Everytime it's like time just stands...
    angelw1698 angelw1698 18-21, F 9 Responses Jun 23

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    He's sooo amazing but I'll never have him he's gorgeous to me and funny and sweet and just plain amazing but other than that I'm bored someone hmu
    DannyEck9264 DannyEck9264 13-15, F Jun 23

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    I have no friends in real life and on here, after awhile, they all sizzle away ._.
    ItsAllMyFaultxx ItsAllMyFaultxx 13-15, M 1 Response Jun 23

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    my ex locked me outside naked in his garden after a shower in the middle of the day.....and this is how i got revenge a few weeks ago......he came home drunk & fell asleep on top...
    JennaTolls JennaTolls 18-21, F 1 Response Jun 23

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    It's pretty much every night of this, and it drives me insane. I will go to bed and next thing I know I'm up an hour or two later, and the cycle just keeps repeating. I can't help...
    dyingalittleinside97 dyingalittleinside97 16-17, F Jun 23

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    I have an everyday religion that works for me. Love yourself first, and everything else falls into line. © Lucille Ball
    marklovescoffee marklovescoffee 46-50, M Jun 23

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    Yep... I have an account, but I won't post my username here. O-O
    Conrad219 Conrad219 13-15, M 1 Response Jun 23

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    For a while I thought I had this wretched behavior under control. And I was completely justified thinking so; after all I did get married... But it seems that not even vowing...
    BlankWhitePage BlankWhitePage 18-21, F 3 Responses Jun 23

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    I can't sleep, and I want to talk to someone, but no one is up. So I'm just going to write a story about this. I just learned that they have a name, actually. Whenever I...
    Ikid Ikid 22-25 Jun 23

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    Earlier I had cravings to smell petrol and now I have cravings for the smell of fire
    Frankineedles Frankineedles 13-15, F Jun 23

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    I have a few on my wrist and One on my arm hard two see but if you look close you can see it i got it around age 8 when i burnt my arm off the lamp raching over it for somthing
    DarkpawTheSissyFolf DarkpawTheSissyFolf 18-21, M Jun 23

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