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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 46 People

    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    My mother was diagnosed with GBM stage IV on

    August 6th 2014 at age 41. She had surgery within the week and we were told the entire tumour was removed. She then began radiotherapy and oral chemotherapy cycles. Every 3 monthly MRI came back clear and he was having minimal side effects to the treatments, June this year it...
    MadisonRoseTC MadisonRoseTC 18-21, F Jul 6, 2015

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 7 Responses Jul 7, 2012

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

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    flga flga 31-35, M 3 Responses Oct 9, 2014

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    My brother has Glioblastoma

    and I have been caring for him for four months, Any advice, Totally devastated and lost!
    pattydowns pattydowns 51-55, F 1 Response Apr 14, 2015

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 4 Responses Jan 21, 2015

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    I don't know what to do my husband has been

    give 1-2 to live after the surgery to remove the tumor. I don't know if we do the right thing. I am a scare for him to go through radiation treatment and chemo therapy. The oncology suggest that my husband should do the whole left side of his brain in radiation. I'm afraid that...
    leannesince leannesince 26-30, F 2 Responses Jan 4

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 6 Responses May 30, 2012

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    Related Experiences

    I am literally in the middle of my family. I am an only child, but have like 100 cousins. There is a big age gap between my older cousins and younger cousins so when everyone...
    denny123456 denny123456 22-25, F 28 mins ago

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    It seems there will always be communication issues between men an women, we see things differently and react differently. This is not a bad thing, just causes misunderstandings and...
    1niceguy4u 1niceguy4u 51-55, M 1 hr ago

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    I was diagnosed with the most painful disease yesterday. I don't know how I got it but imagine it was from an ex that wasn't faithful I'm only 17 and I'm terrified I have the best...
    nadiakp98 nadiakp98 16-17, F 1 hr ago

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    Christian corners me ( keep in mind he's a big guy ) in the classroom after the staff told him not to date ask me anything. Christian with that creepy *** bug eyed look on his face...
    CreepypastaFan2016 CreepypastaFan2016 16-17, F 1 hr ago

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    I have no problem with interracial relationships. my family is all married to white women and men. I see no difference in people and I'm from the east side of San Antonio. I...
    claytonspain claytonspain 31-35, M 1 Response 1 hr ago

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    I have been made to stand in the corner many times after my spankings i get. It is supposed to add to my humiliation but when im there with my hands on my head and my red bottom on...
    CuteNat CuteNat 31-35, F 1 Response 1 hr ago

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    Looking to have a chat to anyone. Preferably females, unless you want to talk about your girl/wife guys. Pictures also gratefully received :)
    dirtymind39 dirtymind39 36-40, M 1 hr ago

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    yep!!!! I have one every year too. but I don't want o get old like some people do so can I stop having them say when I'm around 25-30 lol then I won't get old!
    JTurner2002 JTurner2002 13-15, F 1 Response 2 hrs ago

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    People have called a girl on the phone
    coolboy2468 coolboy2468 13-15, M 1 Response 2 hrs ago

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    Hi everyone, I don't have a mother either. She died when I was born so I never knew her. I live with my dad and I think he do pretty good most times but it not like when I go to a...
    JTurner2002 JTurner2002 13-15, F 2 hrs ago

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    I'm a 19 year old female who has never been in a relationship. It never bothered me until recently. Many people I know have already been in several relationships. I just feel that...
    happypancake happypancake 18-21, F 3 Responses 2 hrs ago

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    Sooo many people who have issue with interracial marriage or relationships don't even bother to take any time to try to learn anything about the so called "races", how or what...
    AvGeek AvGeek 22-25, M 1 Response 2 hrs ago

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    So, I have literally ballooned up so much in the past several years. In 2012 I was 200 lbs. Now I'm a whopping 285 and it's beautiful. Went up 4 sizes and my belly is humongous. It...
    voluptuousbelly voluptuousbelly 22-25, F 1 Response 2 hrs ago

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    If I had dated Nina, what would my life be like now? The possibilities with her were tremendous. I should have tried. No one else would date me and she was way far more awesome and...
    Mossonarock Mossonarock 41-45, M 3 hrs ago

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    I love Luis Miguel so much omg. He was my man crush ever since I was like 10 or 11, he was the Mexican Justin Bieber during the 80's. He is so beautiful to me, european, tan and...
    DianaFromEP DianaFromEP 18-21, F 3 hrs ago

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    At one time, I was the victim of a *********. I went to my parents to have something done about it and they wouldn't listen to me. I understand now the problems rape victims have...
    Mossonarock Mossonarock 41-45, M 3 hrs ago

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    It was dark. Very dark. I was between the ages of three and five, playing in my room with a rolling vacuum cleaner. The kind that rolls the balls around in the plastic and plays...
    nicaea nicaea 22-25, F 3 hrs ago

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    I haven't had a good friend in almost 10 years. I just want someone to talk to and go out for lunch with and just hang out with. I'm not easy to get along with because I'm quiet...
    ACWK226 ACWK226 22-25, F 4 Responses 4 hrs ago

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    I think the reason I don't get along with people is because I don't let them close to me. Or I have unrealistic ideas of who they're supposed to be
    DiamondAuthority DiamondAuthority 18-21, F 4 hrs ago

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    I have a secret , but its like only 3 people that knows what it is . They told me its prob. better if I don't tell everybody .
    hotpinkpussy hotpinkpussy 13-15, F 1 Response 4 hrs ago

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    Wow. Just realized I have over 110 stories shared on this site. Maybe I should take a break.
    disastercupcake disastercupcake 26-30, F 4 hrs ago

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    Ok so it's only Feb but I've been away from here and people have been worried so want to update you. Im ok now but I was cheating lots over Xmas and my bf finally found out. He is...
    CheatingTracy CheatingTracy 22-25, F 8 Responses 4 hrs ago

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    am I the only one that struggles in believing I have this when I know I do? like sometimes I feel like I must be a fake but other times my alter comes out so strong that I just can...
    JessygotaBooBoo JessygotaBooBoo 22-25, F 5 hrs ago

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