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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 38 People

    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 56-60, F Mar 7

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Related Experiences

    Diagnosed 4 weeks ago with grade 4 glioblastoma and absolutely ******** myself. Im 25 y/o and so scared I might die... Is anyone else in the same boat?!
    hamsahand25 hamsahand25 22-25, F Aug 13

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    Update! There's hope guys - don't settle! Last time I posted it had been only one month since being cheated on - and I was a mess. Only thing I was sure of is that there was no way...
    imatulipinacup imatulipinacup 22-25, F 1 Response 9 hrs ago

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    My sweet boy was born sleeping. I was 34 1/2 weeks pregnant . He had a true knot in his cord and it was also wrapped around his neck . Burying my son Jai'Marri was the hardest...
    brandi1191 brandi1191 31-35, F 7 hrs ago

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    I have major trust issues I can't let my bf rest in peace because all I do is think he is gonna cheat or do something that I won't know about when I'm at work and he's not .. Ugh...
    20andinkedxxx 20andinkedxxx 18-21, F 2 Responses 9 hrs ago

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    I was diagnosed with endometriosis when I was about 12 years old. That's a lot for a person of that age to take in. You don't really pay attention tot what the doctor is telling...
    brandijeannn brandijeannn 16-17, F 1 Response 9 hrs ago

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    Numerous Global companies often publish their want for more electrical technicians to calibrate, configure, deal with, their electrical issues inside their large production crops...
    Diana63by Diana63by 31-35, M 1 Response 4 hrs ago

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    I've been having some thoughts about this for a few days now, which I might have partly reflected in comments I've made here and there, can't remember... What I've been thinking...
    sometimeslonelytoo sometimeslonelytoo 41-45, M 1 Response 2 hrs ago

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    Now don't go getting excited over nothing. I don't post videos of myself there, i don't post any videos at all, i just watch them. i do watch and subscribe to a few youtubers. and...
    violet1698 violet1698 31-35, F 1 Response 2 hrs ago

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    Let's just say it was the worse family vacation I have ever been on you get on a boat and the first thing that happens is the people try to give you drinks that you have to pay for...
    erikapaige97 erikapaige97 16-17, F 2 hrs ago

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    I have been told :) AKA bad *** movie voice
    WhosChaos WhosChaos 18-21, M 2 hrs ago

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    This group says it all I do have feelings But to be honest there are people who don't consider that I ask people how they are They answer but they don't bother asking me...
    charmingcutie charmingcutie 18-21, M 1 hr ago

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    I do not need drugs & alcohol to make me happy & have fun. I doing fine without them. Just be yourself, have a positive attitude on life.
    DiscoNight1970s DiscoNight1970s 46-50, F 3 Responses 48 mins ago

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    I have one on my back but I need more !! Lol
    20andinkedxxx 20andinkedxxx 18-21, F 2 Responses 9 hrs ago

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    I have been to Thailand and I was sad and amazing all at the same time ! Te beaches were lovely !! The night sky was ******* amazing !
    20andinkedxxx 20andinkedxxx 18-21, F 2 Responses 9 hrs ago

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    I had this one the night before last and I barely recall any of it, which is sad because it was very engaging and complex. Basically, I lived in this alternate dimension where...
    PinkMellow PinkMellow 18-21, F 9 hrs ago

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    Now the only thing I want from her is her heart in a jar of embalming fluid next to my bed so I can finally have the peace of my soul that she stole
    malakaixanoctu malakaixanoctu 18-21, M 8 hrs ago

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    I have on outtie that it very ticklish
    AlexBrewer AlexBrewer 16-17, M 6 hrs ago

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    ok I have it just no pervs plz my username is ashleysokolik thxz
    ashleysokolik ashleysokolik 13-15, F 4 hrs ago

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    I have always been depressed sence I could remember I always act ok and never let on how I truly feel I don't take meds for it though I probably should but I just find the fact...
    Toyx Toyx 22-25, F 1 Response 4 hrs ago

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    its double the giggles and double the grins and double the trouble when u have twins ,twice as much to love two blessings from above
    stacey8 stacey8 22-25, F 4 hrs ago

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    Who doesn't have a dysfunctional family? If you don't then your not "normal" lol Everyone has their quirks.
    breeze90 breeze90 22-25, F 1 Response 3 hrs ago

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    Im a good listener. Yes I have issues of my own but a good conversation helps sometimes right
    FaithCB FaithCB 16-17, F 3 hrs ago

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    Anybody else ever have an invisible ****? You sit on the toilet for 3,4,5 minutes. You hear those satisfying plops and splashes. You get up expecting to rejoice at the results of...
    Handyman25 Handyman25 22-25, M 1 Response 2 hrs ago

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    I have one as he is like 12 days as he lost his sister early morning. He is a Lama and seems like feeding him make it hard to think we will give him away to a family to care about...
    Egyptianguy34 Egyptianguy34 31-35, M 2 hrs ago

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    I have one, with 160000+ subscribers! Join the queue! www.youtube.com/user/WhosChaos
    WhosChaos WhosChaos 18-21, M 2 hrs ago

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    I'm not going to lie or sugarcoat this: for me having male friends, I have to be VERY mindful of my relationships with them. I've barely mentioned my bf to them since he left for...
    VousEtesBelleCM VousEtesBelleCM 18-21, F 2 Responses 1 hr ago

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    Everyone who is a little bit closer to me knows how low self esteem i have. It is unbelievable actually. There's no part on me that I'm satisfied with. I mean physically. And...
    anrim654 anrim654 18-21, F 1 hr ago

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    I have. I made someone scream when they came a climibin' up the rocks.
    thelonerinyourbed thelonerinyourbed 70+, F 1 Response 39 mins ago

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    On my way drive home with my son, we have a 'stupid' games. Like making puns and quizes. He ask me somebody is doing big on on the toilet. When he finished he realized that the...
    sashimi9 sashimi9 31-35, F 1 Response 26 mins ago

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    my girlfriend is amazing. she's so cute and funny and dorky in a cute way. haha. her voice is adorable. she's beautiful. she's gorgeous. she makes me smile. she makes me laugh. she...
    xxxalyssabrownxxx xxxalyssabrownxxx 13-15, F 1 Response Jul 27

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    I'm a loner I have a job but never had guts to ask a girl out with the fear that whether that girl wud b right for me.I come from an orthodox Indian family. I'm 26 and have never...
    Fancricket60 Fancricket60 26-30, M 2 Responses Jul 27

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    I am the only boy with five sisters. Four of them are older and one is younger. You'd think that growing up in a household full of females that I would know all about women... Haha...
    yossarian1944 yossarian1944 26-30, M Jul 27

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    I have been a lot of times. ;o I think my first was to NC from NJ when I was 3? Then I went to Dominican Republic, Disney World, Michigan. Probably NC more, but I don't really...
    njgirll njgirll 16-17, F Jul 27

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    I have a lot of friends online, but I want more friends in person.. and more people I'm close to. Part of it is that I miss being touched. My boyfriend doesn't like to snuggle or...
    audrig audrig 26-30, F Jul 27

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    I'm not a pervert, I don't find breasts arousing just looking at them. Breasts to me are just a part of being human. I'm not saying its for everyone but women should have the right...
    Noxious123 Noxious123 22-25 Jul 27

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