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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 38 People

    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 56-60, F Mar 7

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    Related Experiences

    I don't know how I let this happen and my heart wants to be hopeful but reality just doesn't make it seem likely! We live half a world apart and every opposite in our social...
    starstuff79 starstuff79 31-35, F 2 Responses 1 hr ago

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    I have red hair. I've been told I look like a leprechaun but that was the day after I kicked my elementary school bully's *** at Walmart... It was thru text messaging also lol...
    Mechawaffle Mechawaffle 13-15, M 1 Response 1 hr ago

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    I lost my Dad 2012 and I have recently lost my Mom on June 7 it's been a little over a month and I am just now starting to feel depressed. They both passed from cancer and I don't...
    toripiercy toripiercy 13-15, F 1 hr ago

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    Okay so I'm not sure If I did but there wasn't a right experience for my case! I have sprained the same foot 3 times before today! So today I was on a rope swing and I tried to...
    pinklover76 pinklover76 16-17, F 1 Response 1 hr ago

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    Just got home from work, want to sleep but have insomnia. This sucks!
    bananarama1 bananarama1 41-45, F 1 Response 29 mins ago

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    Crossed the finish line of a marathon last week and within 10 mins I was in an ambulance. Hives, throat closed up, tongue swollen, eyes and hands swollen...I was surprised to say...
    MPLS1973 MPLS1973 41-45, F Jun 28

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    I have been having sex with my daughters mum for years. I think it's time to stop.
    usernamesareashame usernamesareashame 46-50, M 1 Response Jun 28

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    Well it has been about 17 years for me and the agony of this is sometimes just too much. I have resisted any medication but now I take as needed 2 mg daily (usually .5 - 1mg at a...
    njfeds njfeds 51-55 Jun 28

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    Once upon a time my social anxiety was so bad that I couldn't ask the time, couldn't order a pizza... I still have a little problem making phone calls... I had panic attacks at...
    Drechavo Drechavo 26-30, F 2 Responses Jun 28

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    I have a genetic form of thyroid cancer. My chances of living past 60 increase once I do some stupid surgery.
    kat990 kat990 13-15 2 Responses Jun 28

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    I can't do this. I can't let anyone get close to me. Lately, I've met some people. People I really connect with. People who are excited to talk with me, hang out with me. And I...
    AlleywayGospel AlleywayGospel 26-30, F 2 Responses Jun 28

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    I have had a grand total of 13 concussions. I believe it has taken a toll on me. Mostly in the form of terrible headaches. Also, I'm not sure if it's related, some muscle twitches...
    AlleywayGospel AlleywayGospel 26-30, F 1 Response Jun 28

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    I am so happy right now one of my friends is engaged after 8 years of a relationship... I couldn't be more happier for her, she really deserves the up most happiness. Things have...
    lilygeorge12 lilygeorge12 22-25, F Jun 28

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    Mind you I like to drink and all but you don't need drugs or alcohol to have fun. Get some friends and go on a hike through wood you don't know. Do something adventurous and...
    shadowlike shadowlike 26-30, M Jun 28

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    If you don't know, I have some pet peeves about EP. Here is but another one. When I log into my account. It is annoying that I see mostly stories from people that are not in my...
    OnewithJC OnewithJC 36-40, F Jun 28

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    It gets bright in the summer and I have orange sunbursts going around my pupils of my blue eyes
    Fishscaledreams Fishscaledreams 22-25, M Jun 28

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    I get déjà vu a lot. Sometimes I have a strange but realistic dream, then a couple of days later I see something exactly the same or similar.
    MCD1 MCD1 13-15, F 1 Response Jun 28

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    I actually have a lot of advantages. but I hide it behind my laziness. I am very sensitive to the nature of the person, and at the moment I see a lot of people around me that only...
    chitrawlndary chitrawlndary 18-21, F Jun 28

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    I have my lip pierced😁✌️ and tomorrow I'm getting my eyebrow pierced and a septum piercing, I'm so fvcking excited🙈
    XxbixtchybellaxX XxbixtchybellaxX 13-15, F 1 Response Jun 28

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    so I have been told by many men LOL
    deleted deleted 26-30 8 Responses Jun 28

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    I think I look a little bit Native American, but most people don't necessarily guess this is part of my ancestry. My grandma's grandma was a full blood Delaware Indian. Sometimes...
    Solfeggio Solfeggio 36-40, F 1 Response Jun 28

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    So sad..I found in this world people like to use people ..they only care their own profit..This is truth..Bad people end up get punishment?...Maybe maybe only in fairy tale... I...
    Farmerwork Farmerwork 22-25, F 1 Response Jun 28

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    My boyfriend tells me all the time that I have a nice bottom. He says it's so nice that enjoys play spanking me cause he likes how it feels so much cause it's got shape and...
    NanaimoDiaperGuy NanaimoDiaperGuy 18-21, M 1 Response Jun 28

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    My gf says I have a great *** she's says it's round and plump and she always gropes it and wants to take it
    Chesher Chesher 16-17, M Jun 28

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    I haven't been in for a while I had such a busy day that turned into WEEKS!! But it was worth it :) I went on field trips with my class then I graduated after parties and my...
    MerpR MerpR 16-17, F Jun 28

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    I love tumblr I can be on it forever looking for the one think to master bate to. Then I have to delete so no one finds it on my phone. The I just reload it.
    KyWackyGirl KyWackyGirl 41-45, F 3 Responses Jun 28

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    I'm 22 and I still have accidents; it's been happening my entire life, even if it does happen less frequently now than it used to. But since it happens so often, I'm kind of used...
    tjaraujo17111 tjaraujo17111 22-25, M 7 Responses Jun 28

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    I really think I do my friends always say I worry way too much, I have stomach pains and headaches, I panic over little stuff but whenever I try talking to mom she dosent believe...
    oOMissDiorOo oOMissDiorOo 13-15, F Jun 28

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    Last night I looked into the sky and saw thousands of pinpoints of light I knew the light I was seeing took hundreds maybe thousands of light years to get to me last night...
    nomorei nomorei 22-25, F 6 Responses Jun 28

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    As I grow older and older....bigger and fatter....my heart has become smaller...my ambitions all dead. And this vast ocean that is life which once I held in awe and loved so dearly...
    sasunaruizlove sasunaruizlove 22-25, F 2 Responses Jun 28

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    I'm going to finish up college next year and yet I have no idea exactly what I'm going to do in the future. I'm torn between school psychology, school counseling and clinical...
    redbeansxo redbeansxo 18-21, F 1 Response Jun 28

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    I have good news to share. My mother just accepted Jesus Christ a few weeks ago. She went to healing ministry then God has healed her broken hand. She fell from motor bike 4 years...
    Arrow17 Arrow17 36-40, F 1 Response Jun 28

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    I was diagnosed with vertigo a few years back. I was just sitting in chair and everything started spinning. It is the worse feeling in the world and what I don't understand is or...
    sassy5555 sassy5555 51-55, F 1 Response Jun 28

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    I become jolly whenever I see her, but it breaks my heart to think that I can't have that angel.
    eratosthenes eratosthenes 18-21, M 3 Responses Jun 28

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    We have 2 dogs...one is lab and australian cattle dog mix and about 6.5 years old. The other is a Great Dane and blue tick coonhound mix and still a puppy at about 3 months old.
    Env06 Env06 22-25, F Jun 28

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