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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 42 People

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    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 1 Response Jan 21

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    flga flga 31-35, M 3 Responses Oct 9, 2014

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

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    Related Experiences

    anyone using Optune? Or is it Novocure? Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M Jan 21

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    My mother came for a visit to my house 5 years ago and has yet to leave... No seriously. She has been one of the most clingy, needy and emotionally abusive people that I've ever...
    tajadaja tajadaja 31-35, F 8 hrs ago

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    I have SO MANY problems. I'm pretty sure I'm the only one with this first problem. I can't stand young guy, older women relationships. So much that I will cry. I seriously don...
    Levi1 Levi1 13-15, M 1 Response 3 hrs ago

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    I can never sleep well. I always wake up randomly during the night. I also can't sleep unless i'm really cold, but i still have to have a blanket or two on me. I also have to be...
    white701 white701 18-21, M 1 hr ago

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    I was born on the Philippines. As a baby I was adopted by my Swiss parents. I've always been told I've been a foundling and my biological parents probably died in a storm or...
    mishale80 mishale80 31-35, F 1 Response 6 hrs ago

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    It makes me sad to see so much hate because a lot of people do not have perspective and/or understanding. I always feel the need to defend others, to help them be understood but I...
    topsykrit topsykrit 18-21, F 3 hrs ago

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    Holy cow. I start my new high school on monday. Im nervous af!. I dont want to be noticed , but of course i have to go and be 6 foot 4 inches. So not being seen isnt easy for me...
    YungKhroniK YungKhroniK 13-15, M 5 hrs ago

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    I always wanted to have a relationship. The longest one was about 9 months thats it. It would be so nice to have one.
    igdesigner igdesigner 18-21, M 5 hrs ago

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    So I have PC and to be honest its not that bad but ocassionaly I get alittle depressed, nothing to bad. The main problem is that I'm insecure with girls and that's causing...
    sweefp sweefp 16-17 4 hrs ago

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    I always will love alvin and the chipmunks Simon was always my favorite when I looked at him for the first time I knew it was meant to be me and him I often got bullied because of...
    Rudolphlover28 Rudolphlover28 18-21, F 1 Response 3 hrs ago

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    I'm trying to overcome it. It's difficult but not 100% impossible. I will get there, it takes time but it is making my new relationship hard. Something has triggered it. I've...
    topsykrit topsykrit 18-21, F 2 Responses 2 hrs ago

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    ... by absolutely no one. I have a terrible singing voice. But I'm fantastic at lip-syncing :D
    lulubees lulubees 18-21, F 1 hr ago

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    Ok so for the past week or so my dreams have been sooooo vivid! And one of my dogs has been in every single one of them ! They have been weird dreams that don't make any sense! In...
    Kay92kay Kay92kay 22-25, F 1 Response 29 mins ago

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    Can't sleep at all. People standing outside house staring but have no facial features. Keeping curtains closed.
    woodsetton woodsetton 22-25, F 8 hrs ago

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    What does a glance mean? It's amazing how heavily a pair of eyes can influence a thought process. The ride of emotions and possibilities, all very entertaining to ponder on. I know...
    s0undgarden s0undgarden 16-17, M 7 hrs ago

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    I have a soft voice. It resounds with a slight huskiness. I am never shrill. My accent is particularly Niçoise. A mixture of French, Provençal, and Italian.
    Astrucbmt Astrucbmt 22-25, F 1 Response 6 hrs ago

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    I have visited 14 countries and I love travelling!!
    linbus linbus 31-35, F 5 hrs ago

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    I am so many nick names my name is Emily so I have been call em emi Emstar E bunny m an m and so many most
    wedgiefan247 wedgiefan247 16-17, F 5 hrs ago

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    He was only 36 years old and left two small children behind. He dies only two weeks after he was first diagnosed, he didn't have a chance. He was a quite and sweet person who was...
    Amillionstars Amillionstars 36-40 4 hrs ago

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    I often have dream deja vu. I visit a place in a dream, far different than waking reality, and later on in life whether it be in a few weeks, months or years I feel I dream of...
    topsykrit topsykrit 18-21, F 1 Response 4 hrs ago

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    I have a few but it differs to who is talking to me. (Wyatt) y, W, and my moms personal nickname Button.
    Sesshomaru031 Sesshomaru031 16-17, M 1 Response 3 hrs ago

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    Well I had another account which I deleted and then made this one, my old account was "Catmando05" so of yous may have read my posts on there before I deleted it. My ex is still in...
    domancat domancat 22-25, F 1 Response 2 hrs ago

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    I have. Against flying insects. Flies I can handle, but everything else... like bees, wasps... even butterflies are a horror for me. It's worse inside than outside the house. But...
    Brokenshadowwings Brokenshadowwings 31-35, F 2 Responses 2 hrs ago

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    soo broken i cant feel anymore exhausted from tears i ask why they lie where are such girls like the fairytales all i have seen mostly are not ever close to those fairy tales...
    DevilPARADISE DevilPARADISE 18-21, M 1 Response 2 hrs ago

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    sometimes I wonder what life would be like if my brushes with death had happened. would my family be in a better place? would my children have better lives? would the everyday...
    tsnuggles tsnuggles 36-40, F 1 hr ago

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    If life was only meant for absolute enjoyment, it wouldn't have been as gloomy as it actually is. It would be much better. We wouldn't be suffering from flus, coughs, sickness...
    ladybug96 ladybug96 18-21, F 2 Responses 56 mins ago

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    I remember the first tattoo I ever got! Seems like such a long time ago! So small and discrete! Now I have a sleeve a leg piece and several smaller tats! And I can't wait for more...
    Kay92kay Kay92kay 22-25, F 42 mins ago

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    I am a child in the mind. I don't know what I'm doing. I don't know where I'm going. I'm pretty much just moving about. That's how it feels. But I do have wisdom. I'm an old soul...
    SheSaidx SheSaidx 22-25, F 40 mins ago

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    I got my results back from the doctor yesterday. I do in fact have type 1 and 2 herpes. I'm a 21 year old girl and got infected by a 25 year old man that knew he had it. But didn't...
    ANS21 ANS21 18-21, F 2 Responses Dec 31, 2014

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    I was really sick the other day, in pain. Guess I have diverticulitis. I drove myself to the doctor, which was fine. That night it hurt really bad and I just wanted to take a...
    OnlyMySideOfTheStory OnlyMySideOfTheStory 36-40, F 1 Response Dec 31, 2014

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    I have both of mine done. The first one was grimacingly painful. The second one was twice as bad. It truly was worth it though. They are by far my favourite piercings and I love...
    Hissweetgirl Hissweetgirl 26-30, F 3 Responses Dec 31, 2014

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