Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 44 People

    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

    Your Response

    Cancel

    My brother has Glioblastoma

    and I have been caring for him for four months, Any advice, Totally devastated and lost!
    pattydowns pattydowns 51-55, F 1 Response Apr 14

    Your Response

    Cancel

    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

    Your Response

    Cancel

    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

    Your Response

    Cancel

    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 4 Responses Jan 21

    Your Response

    Cancel

    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 6 Responses May 30, 2012

    Your Response

    Cancel

    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

    Your Response

    Cancel

    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

    Your Response

    Cancel
    flga flga 31-35, M 3 Responses Oct 9, 2014

    Your Response

    Cancel

    My mother was diagnosed with GBM stage IV on

    August 6th 2014 at age 41. She had surgery within the week and we were told the entire tumour was removed. She then began radiotherapy and oral chemotherapy cycles. Every 3 monthly MRI came back clear and he was having minimal side effects to the treatments, June this year it...
    MadisonRoseTC MadisonRoseTC 18-21, F Jul 6

    Your Response

    Cancel

    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

    Your Response

    Cancel

    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

    Your Response

    Cancel

    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

    Your Response

    Cancel

    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

    Your Response

    Cancel

    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

    Your Response

    Cancel

    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

    Your Response

    Cancel

    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

    Your Response

    Cancel

    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

    Your Response

    Cancel

    Related Experiences

    I'm 16 and I have a small bladder and I have always wet my bed and I wear diapers at night and sometimes in the day. I'm really used to it and I don't care that I do it and...
    josht111 josht111 18-21, M 1 Response 22 mins ago

    Your Response

    Cancel
    It is dangerous, but I never had my head in clouds till yet... the least distance which ever existed betwixt my hair and the cloud's base was around 5-10 metres lol. If it had...
    ConfusedPsychopath ConfusedPsychopath 18-21, M 40 mins ago

    Your Response

    Cancel
    I just turned 19 and I’ve never been kissed, barely flirted with a guy, and I’ve never had a guy actually show interest in me. I don’t know what’s wrong. I mean I could...
    Neasa Neasa 18-21, F 1 Response 43 mins ago

    Your Response

    Cancel
    I don't know if I actually have social anxiety because I am too scared to mention my thoughts to my parents. I'm an insomniac and take medication for that. I'm almost positive...
    sk8rkm77 sk8rkm77 13-15, F 1 Response 59 mins ago

    Your Response

    Cancel
    Why are you so beautiful??!! Just by looking at your stupid face, my heart felt a dull, crushing pain. What superpowers do you have to make me feel like this?
    rosswakeman rosswakeman 22-25, M 1 Response 1 hr ago

    Your Response

    Cancel
    He is so funny we have the same problems but our family doesnt get along bcz of what of his family member did. i hope my family can change their opinion bcz alex isnt the same as...
    Baee5400 Baee5400 13-15, F 1 hr ago

    Your Response

    Cancel
    everyone must have said or want to say I LOVE U. but by saying it what do u love in that person? is it appearance, thinking money he/she is earning or the way he/she earns,or the...
    Luckydare Luckydare 22-25, M 1 hr ago

    Your Response

    Cancel
    I had a dream last night were a kid at school ran against his locker and jammed his hockey stick threw the side of his head. Then later on i saw his brain scans and had to help him...
    WooTang710 WooTang710 26-30, F 1 hr ago

    Your Response

    Cancel
    Sometimes there's specific people you have a thing for, for me it's worse because I know that our relationship is very one sided and that there is only a professional interest in...
    CiorstaidhNicAnToisich CiorstaidhNicAnToisich 18-21, F 1 hr ago

    Your Response

    Cancel
    What songs can u relate to? which Lyrics? mine would be Savages by Marina and the diamonds amazing singer my gave in fact "one man could build a bomb another run a race to...
    Darkprincess24 Darkprincess24 13-15, F 2 hrs ago

    Your Response

    Cancel
    Life feels very foreign to me these days. I go through the motions, count my blessings, do the best I can (I think)...but it's like I'm on a path I have never walked before and...
    pinkstarburst pinkstarburst 41-45, F 9 Responses 2 hrs ago

    Your Response

    Cancel
    Does anyone out there have Chromesthesia? I can't seem to find anyone that has it similar to how I do... If there is a sudden loud noise that I'm not expecting, then something will...
    maisyworry maisyworry 18-21, F 2 hrs ago

    Your Response

    Cancel
    I have ticker-tape synesthesia (visually seeing the words people say next to them, apparently it is a rare type?) along with a few other types. I have been diagnosed today by a...
    maisyworry maisyworry 18-21, F 2 hrs ago

    Your Response

    Cancel
    I'm 21, almost 22 and have never had a boyfriend/girlfriend. And I've only ever been kissed once just after high school. Recently I've started making friends for a change and one...
    InYourArms InYourArms 18-21, F 1 Response 3 hrs ago

    Your Response

    Cancel
    I'm interested in someone but I have a ten reasons why I should not even think of approaching him. One, I'm extremely shy. Two, he's head over heels over someone else. Three...
    sarasakun sarasakun 18-21, F 3 hrs ago

    Your Response

    Cancel
    I had the worst experience I have ever had last night with friends cause we was sat have a laugh and I decided to go home early because I wanted to see my dad before he went to...
    ljayymale ljayymale 18-21, M 2 Responses 3 hrs ago

    Your Response

    Cancel
    The invisible pain. No one believes the level of pain this chronic disease causes.. I hate it so much.. being in pain on and off since 20 after acute pancreatitis I spent 7months...
    stefx85 stefx85 26-30, M 4 hrs ago

    Your Response

    Cancel
    Yeah, i just have to say this. SOME people here on EP have a stinking habit of sticking their nose in sh*t they know nothing about. Just saying that, if you don't know half of the...
    Chezsoldierr Chezsoldierr 18-21, F 8 Responses 4 hrs ago

    Your Response

    Cancel
    I'm 60 male and married. drive a truck over the road during the week and have time. message me if you want to chat.
    volvoman60 volvoman60 56-60, M 1 Response 5 hrs ago

    Your Response

    Cancel
    Im not well in English.. But im having a story which i cant share with anyone.! Im from a country where love is crime. No parents here accept love marriage. Only 25% parents will...
    unsaidluv unsaidluv 18-21, F 2 Responses 5 hrs ago

    Your Response

    Cancel
    Im a 15 year old teen with a dual simian. So far what ive read basically describes me;impulsive,stubborn and lazy if doing what i do not like. recently however, things have been...
    AlixanderT AlixanderT 13-15, M 5 hrs ago

    Your Response

    Cancel
    Anybody else have these and enjoy the feeling? Must be somebody?
    Wantingsex75 Wantingsex75 36-40 2 Responses 6 hrs ago

    Your Response

    Cancel
    I see why the men in the Middle East smoke hookah, it's so calming I love the apple .. I go on slow night because it's really easy going , and chill the owners son comes out and...
    Prettibrowngirl Prettibrowngirl 70+, F 6 hrs ago

    Your Response

    Cancel
    Over the past year or two, I've been finding it more and more difficult to distinguish between when I'm dreaming and when I'm conscious. My dreams feel more vivid than real life...
    Surreal657 Surreal657 22-25, F 1 Response 6 hrs ago

    Your Response

    Cancel