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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 42 People

    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 2 Responses Jan 21

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    flga flga 31-35, M 3 Responses Oct 9, 2014

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

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    Related Experiences

    It's 12:30 in the am. It's a cold evening but in a tolerable and comfy kinda way, so I decided to forego wearing a jacket and just went outside wearing old, ripped, denim shorts...
    trAnSyLvanIanconcuBinE trAnSyLvanIanconcuBinE 26-30, F 2 Responses 5 hrs ago

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    Last night I was looking over some my old stories, one in particular very popular and most viewed post under: I am a Lesbian... I noticed I really needed to clean up the...
    bemyvalentine bemyvalentine 56-60, F 2 Responses 4 hrs ago

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    I've been dealing with this for over 10 years now, most of this time I have been in a dark hole. It went as far as me losing all hope and even forgetting who I am, who I used to be...
    lily449 lily449 18-21, F 3 hrs ago

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    I've been dealing with this for over 10 years now, most of this time I have been in a dark hole. It went as far as me losing all hope and even forgetting who I am, who I used to be...
    lily449 lily449 18-21, F 3 hrs ago

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    I've been dealing with this for over 10 years now, most of this time I have been in a dark hole. It went as far as me losing all hope and even forgetting who I am, who I used to be...
    lily449 lily449 18-21, F 3 hrs ago

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    I have always cherished the idea of love; of having someone that you love so much that they bring out the best traits in you and they make you want to become a better person. I...
    sammymater sammymater 18-21, F 1 Response 17 hrs ago

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    My neighbor's house is only about 15 feet away! My wife only wants sheers on the windows downstairs because she says full curtains make her feel "closed-in". Usually, when I'm...
    closetedcd60 closetedcd60 61-65, M 3 Responses 7 hrs ago

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    If a man isn't ready to be a father, he shouldn't have sex. Men should only have sex if they're ready to be be a parent. What? How can that be said for men, but not for women...
    AjLeePunk AjLeePunk 22-25, F 7 Responses 2 hrs ago

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    I don't want to spam my own profile with lyric's from Hozier's album but... I have always adored poetry. This man is a storyteller and I truly admire his ability to draw blood from...
    AphroditeComplex AphroditeComplex 22-25, F 1 hr ago

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    Please read: It's kind of sad to me when someone needs a partner to have meaning or worth or reason to live. It's nice to have someone but why make them your everything? To me...
    dashuria dashuria 16-17, F 3 Responses 16 hrs ago

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    I have been uni this girl for a while, when I finally manage to win her over and she admits that she really go something for me, I suddenly lost interest? I have no idea what...
    aDesperado aDesperado 18-21, M 2 Responses 13 hrs ago

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    part 4... One time the girl and polar bear saw each other. So the girl asked him "do you love me?". and then polar bear said "i care for you...", "I'm asking you if you love me...
    KarenIsMyName KarenIsMyName 18-21, F 4 Responses 12 hrs ago

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    Hi everybody! My name is Maria and I m writing from Italy, so I m sorry if my grammar or vocabulary isn't that perfect. I found your online community and fought: I have to try! In...
    Ciminiera95 Ciminiera95 18-21, F 1 Response 9 hrs ago

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    I'm 14. I have had this medical problem since I was about 7-8 year old maybe i had it before but i don't remember that age good.I always pulled hair from some part of my body when...
    browndeadeyes browndeadeyes 13-15, F 7 hrs ago

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    Normal hair people dont understand our problems. there was only 2 times i tried straightening my hair last year. It didnt work out as i planned. But these are 10 things of the many...
    WhiteRice14 WhiteRice14 18-21, F 2 Responses 3 hrs ago

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    Many people have seen me naked, but only a few were by accident. I used to have neighbors, a lady and her daughter, that didn't know how to knock on a door. They would just walk in...
    ubername ubername 26-30, M 5 Responses 16 hrs ago

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    I have always struggled with memory! It's only gotten worse as I got older. I can only remember one thing at a time and that is a struggle. I will tell myself it multiple times in...
    1lonelydaisy 1lonelydaisy 41-45 1 Response 15 hrs ago

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    its a joke hein?! haha ironi ... have oher things to do in my day than to answer to stupid question haha by the way have a nice day
    laulala laulala 18-21, F 1 Response 13 hrs ago

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    I have a woody!!!!(*Waves hand laughing*)JUUUSSSSTTTTTT Kidding!!!!!!(*straightens face to serious*)no seriously!!!See.. i have a woody!!!
    nocool nocool 41-45, M 2 Responses 11 hrs ago

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    He's amazing, he's kind, he's loving, and sweet. He is perfect in my eyes, and his looks are a huge bonus. I just met him and I have fallen for him. He accepts me for who I am and...
    idontknow1921 idontknow1921 16-17, F 9 hrs ago

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    I have a crush on a very special guy. But I am far to nervous to tell him! I guess it will just have to be a secret.
    TheNameIAlwaysWanted TheNameIAlwaysWanted 16-17, T 1 Response 8 hrs ago

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    Does anyone have or dealt with schizophreniform? Mine has lasted 2 years but apparently that's not schizophrenia. I rarely hallucinate. But i have what I think might be a delusion...
    Ifeeluberish Ifeeluberish 18-21, M 8 hrs ago

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    This shirt is still pretty roomy for now, but you can still tell what's underneath it. I'm surprised no one has noticed, and if they have they haven't said anything
    rubberduxk rubberduxk 18-21, F 6 hrs ago

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    It's a blessing and a curse ... I look great in skirts and they are always slender and sexy however when I'm in a car I have to have space for my legs and some tables are so low I...
    FoirfeGirl FoirfeGirl 18-21, F 1 Response 5 hrs ago

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    I have much to do but have no motovation to do it.
    shorekid shorekid 18-21 3 hrs ago

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    I got mine about 10 years ago now it Is my Fraternity Letters on my right shoulder. I have thought about getting an eagle on my back as im an eagle scout though never seem to have...
    Cargan2016 Cargan2016 31-35, M 2 hrs ago

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    I love bikinis. The tinier they are the greater the love. I have box full of the tiniest Wicked Weasel creations there are and love them all. I think most girls get their first...
    CaningCaregiver CaningCaregiver 26-30, F 2 hrs ago

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