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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 40 People

    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7

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    flga flga 31-35, M 3 Responses Oct 9

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 2 Responses 5 days ago

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13

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    Related Experiences

    I have 4 cats (Luna, Kitty, Snow and Lillian), all cute girls with different personalities and habits. I used to have 5, but the oldest one passed away a few months ago due to...
    BayoKitty BayoKitty 18-21, F 42 mins ago

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    Psssst I have a secret! Everybody listen! Are you listening? :P My sexy babe and I have quite a few secrets with eachother and not a single person will ever find out any of them...
    wedgieshurtalot wedgieshurtalot 16-17, F 1 Response 37 mins ago

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    I've been reflecting on a lot of things today. My anxiety level felt like it was through the roof. It probably didn't help that I was pretty hungover. If I could describe what...
    pnw21 pnw21 22-25, M 30 mins ago

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    I have bad issues with abandonment , ever since my father abandoned me , and then my " soulmate " did too which goes to show you he may have been mine but was I his ? We never...
    Delusionalkrysti Delusionalkrysti 22-25, F 29 mins ago

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    That all secondary responses (responses to the responses to a post) be a different color not just you and the author of the post. I can't tell you how many times I have mistaken a...
    Harlequingal93 Harlequingal93 18-21, F 24 mins ago

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    I have a crush on someone that is already talking to someone else and I didn't know that when I started to talk to her and it hurt like a mother ****** when I found out. Idk what...
    Brudy6 Brudy6 18-21, M 1 Response Nov 22

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    I have quite a few actually. Some are from when I was little and got into mischief (I was a tomboy growing up and did everything boys did just to become "one of the guys") and...
    SaraBear87 SaraBear87 26-30, F 3 Responses Nov 22

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    well, here we go again...it's one of "those" nights...when I'm trying to sleep, but then all of the sudden the pain, and the tremors, and the tightness begins. It's not the worse I...
    MeowOnMe MeowOnMe 18-21, F 3 Responses Nov 22

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    Chamomile tea is pointless unless you like drinking things that taste like ****. >.> By the time you've masked the flavour with sugar you've nullified the calming effects that it's...
    Friability Friability 18-21 2 Responses Nov 22

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    My legs and knees are bad because bicycles! I also have a lot of cats... And the rest is when I was doing self harm or got angry and punched the wall. I also punched glass once...
    TransmutedHeart TransmutedHeart 18-21, F Nov 22

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    as much as i love my family, i would really appreciate it if they stop belittling me academic wise. it's always "Why are you so effin stupid?" "Do you have any common sense in that...
    julesju julesju 16-17, F 1 Response Nov 22

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    I am having a nondescript day, boring and on the depressed side. Would be good to have a conversation with someone -- either a heart-to-heart talk, or just shooting the breeze.
    kingaroo kingaroo 61-65, M Nov 22

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    "I would rather cuddle than have sex. If you're good with grammar, you'll get it ."
    AWomanofSubstance AWomanofSubstance 31-35, F 1 Response Nov 22

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    I was 8 years old when my aunt killed herself. My family has a long history of depression and eventually it took my beautiful aunt. I don't know my father. My mother's grandparents...
    idekkkkkkkkkkk idekkkkkkkkkkk 18-21, F 1 Response Nov 22

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    Love my sister but she can be a right BRAT at times. She's as different from me as it could be being a right tomboy but I love her to bits! But she got herself into right trouble...
    Susanna96 Susanna96 16-17, F 5 Responses Nov 22

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    that awkward moment when everyone in the group talks and you are the one with nothing to say.even if you have something to say you would be worried that you might not be not...
    Camouflage Camouflage 18-21, M 7 Responses Nov 22

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    Our troubles may not be easily shadowed by anothers,and maybe we have a right to feel alone. However,it just might give us something to think about.   
    diggler diggler 41-45, M 1 Response Nov 22

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    I frequently get flashbacks of previous dreams that I had years ago. Is that normal? I'll see something familiar while driving in the car or on tv and I'll instantly be brought...
    cicisays13 cicisays13 26-30, F Nov 22

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    1 die in all alone 2 have cancer 3 heart attack 4 the system of our country 5 insane people in public 6 night time 7 having anxiety feelings 8 trouma of sexual abuse 9 forgetting...
    juryandrews juryandrews 31-35, F Nov 22

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    I Forever Have A Deep Scar On My Chest......Kinda Like Sagat Only It Was From A Knife Not An Uppercut
    XavierR02 XavierR02 13-15, M 2 Responses Nov 22

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    FXCK!!! She's a total mind fxck!!! She's a beautiful mind fxck.... And I can't have her. She's like 18 or something like that, blue eyes and dreadlocks - she is perfection! But...
    MixedJayy MixedJayy 16-17, F Nov 22

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    That was last year. It was ok. I learned a lot. However, I just feel like I needed to attend again because I didn't faint when they prayed for me. Because they said that you are...
    Elleshore81 Elleshore81 31-35, F 1 Response Nov 22

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    Just woke up from the craziest nightmare. I recently learned an old friend now lives in Thailand. She grew up 2 hours away from where I live. I hada nightmare that I went to go...
    katariffik katariffik 31-35, F 2 Responses Nov 22

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    Thought for the day: "Whenever you're feeling powerless, remember that a single one of your půbįc hairs can shut down a successful restaurant." Have a nice weekend.
    BloviatingBuffoon BloviatingBuffoon 70+, F 6 Responses Nov 22

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    when people say 'you don't look your age' , what?! who the hell are you comparing me to? O_O are you saying that all 20 year olds have a look, the average black female has a look...
    InnocentBitesizeChocolate InnocentBitesizeChocolate 18-21, F 5 Responses Nov 22

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    This trashy woman probably in her 30's walked up to me in the park and slapped me. I never even saw her before hand nor knew her, wtf? Lets just say she probably won't slap anybody...
    TheAnonymousTroll TheAnonymousTroll 13-15, M Nov 22

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    Split Personality : She used to have a great personality,but it split. :Dlol!!  
    diggler diggler 41-45, M 1 Response Nov 22

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    With my job I am social. With my dysfunctional disagreeable family I am pretty social. But when I get off work, or when I wake up on my day off, I just want someone to spend the...
    Peacepuppy Peacepuppy 22-25, F 13 Responses Nov 22

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    Ok riddle me this. There are sooooo many lonely people in the world, which indeed at times I am one. So why, when there are so many lonely people, aren't more connecting? making...
    Chrye Chrye 51-55, F 3 Responses Nov 22

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    Occasionally it suits me, but it rarely does. I'd love to be like most people my age who have one, but I don't. :(
    Reallifeperson Reallifeperson 22-25, M 2 Responses Nov 22

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    So I met this girl on my vacation in Spain this summer and everything went fine. When I went home to Sweden we've been talking a lot and added each other on Facebook. Home in...
    Hajhaj01 Hajhaj01 22-25, M 1 Response Nov 22

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    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses Nov 22

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