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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 43 People

    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 3 Responses Jan 21

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

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    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 5 Responses May 30, 2012

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    My brother has Glioblastoma

    and I have been caring for him for four months, Any advice, Totally devastated and lost!
    pattydowns pattydowns 46-50, F 1 Response Apr 14

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    flga flga 31-35, M 3 Responses Oct 9, 2014

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    Related Experiences

    My father was diagnosed with glioblastoma last May 2014. He had surgery and most of tumor was removed. Started chemo and radiation. Timodar 5 days at beginning of month. Avastin...
    Shorty59000 Shorty59000 41-45, F 1 Response Mar 30

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    Hello my fellow EP members.I would like to share a personal experience that recently happen to me.I recently have been going threw some personal issues with my Family.I have been...
    Fruitypunch15 Fruitypunch15 31-35 12 hrs ago

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    REAL TALK POWER'S OF ENERGY GREETINGS!.. Its Me Icey! The Energy Manipulator, How are you all?.. Me? Im Well Thanks..And I've Got so much Stuff to talk to ya'll about! Its not...
    icey1 icey1 22-25, M 10 hrs ago

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    "Booksmart" "You don't use your brain" "Do not make decisions on your own anymore, ask me before you do anything" "F*** U" "Stupid" "Lazy" And that's not even half of it. I can...
    DearYou DearYou 22-25, F 1 hr ago

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    I have been thinking about how many friends I have lately because well, I've been attending a few weddings and realized that if I were to get married, I would not have a full line...
    disastercupcake disastercupcake 26-30, F 1 Response 17 mins ago

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    Have any of you fully Gained your trust back up ? Is it truly worth working out ? I have read where some marriages are stronger after the apocalypse , how fu..ing long does it...
    jocu123 jocu123 31-35, M 4 Responses 10 hrs ago

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    I have to go to my grandmas for dinner tomorrow and I haven't seen this grandma since thanksgiving I haven't ate in a long time and I've been really dizzy and haven't felt well I...
    butterflybaby123 butterflybaby123 13-15 5 mins ago

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    I don't know why a part of me feels broken often times. As if I was empty. I manage to be good, to be kind, gentle and loving all the time but those things I do couldn't satisfy me...
    diane1996 diane1996 18-21, F 6 Responses 13 hrs ago

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    I have some good online friends, but no real life friends. My family rejects me and ignores me. I have a partner, but even he isn't as much "there" as he used to be. On the up side...
    UnwantedPup UnwantedPup 31-35, T 45 mins ago

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    It's not everyday. It's not all the time. But I have it. And they gave me medicine for it. But I stopped taking it a long time ago because I wanted to see if I could feel better...
    Allforaview Allforaview 18-21, F 12 mins ago

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    I have a crush on a it on Tinder... Idk if he only wants sex but we talk sexy all the time which I love. he's so cute and can turn me on like THAT haha We also talk about our lives...
    WhatChrisDid4Love WhatChrisDid4Love 18-21, M 15 hrs ago

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    Yup and I never had one. Ever. I used to have girls that are friends but they didn't last long and I was too dense to notice that they probably liked me. I just didn't bother to...
    Xemplefied Xemplefied 26-30, M 1 Response 15 hrs ago

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    My ex was very mentally abusive to me. he had at one point hit me and my friends and family made me break up with him. I now see that it wasn't okay but I'm still in love with the...
    CopenhagenAngel427 CopenhagenAngel427 18-21, F 4 Responses 15 hrs ago

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    My mother has this rude joke she makes if I don't show her something i am doing when she asks, I'm looking at "****" and "willies" and goes and tells my stepfather. She tells him...
    1lonelydaisy 1lonelydaisy 41-45 14 hrs ago

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    I always know when my period comes because of the pain. It's pain that hurts but isn't at the stage where I'm thinking "I can't deal with this anymore". It's like an alarm clock...
    1lonelydaisy 1lonelydaisy 41-45 1 Response 12 hrs ago

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    Boo! Did I get ya? I have never stopped. I never will stop. But if you're in this group you turned little ***** and quit, probably bowing to social pressure. Nothing can change...
    smokingrocks1 smokingrocks1 56-60, M 12 hrs ago

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    So, he approached my friend and said, o really like your best friend and i have to tell her where is she, i looked up and he smiled , i went over and sat beside my friend, and he...
    FAIRYboobs FAIRYboobs 18-21, F 11 hrs ago

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    My daughter is biracial. She was born very white and I thought that she would get a little darker with age, like many black and mixed babies do. She looks about the same now. I...
    Evesdaughter Evesdaughter 31-35, F 1 Response 11 hrs ago

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    So before I tell the main part of my story id like to rewind a few years and give some backstory. When I was 5 years old I was molested by my neighbor. He never penetrated but a...
    Niavati23 Niavati23 18-21, F 2 Responses 9 hrs ago

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    I have, me and my sister have fights with knives because we both like it and it turns us on, we play a game where we fight with knives and it's the first one to ten stabs to win...
    IWantToBeTortured IWantToBeTortured 18-21, F 9 hrs ago

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    I haven't spoken to my twin in a while. Sometimes I wake up from my sleep in the morning with a random song stuck in my head which I haven't heard in years. When I play the song...
    krimsonlove krimsonlove 22-25, F 1 Response 6 hrs ago

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    I wonder what it would be like, but frankly I have no time. I am not that interesting either, mostly just tired or negative. I know there should be some sort of "substance" to it...
    chairsmissing chairsmissing 22-25, F 5 hrs ago

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    Just an update: so many little things have happened between us that I just builds on the electricity and vibe I feel we have. I remember my friend asked him if there was a future...
    Tigercass Tigercass 22-25, F 1 Response 4 hrs ago

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    what's missing ..... I have lost that younger person who always was happy enjoying life getting out doing thing a single person should be doing before the evil VAGINITE came along...
    joophomme joophomme 46-50, M 1 Response 4 hrs ago

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    I have been cheated on by 3 people (that I know of, it could be more) One was a relationship of 2 years and he had cheated on me for 5-6 months, pretty much had a new girlfriend...
    tastethiss tastethiss 22-25, F 4 Responses 3 hrs ago

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    i have social anxiety, it gets the best of me most of the time. especially when im at work i have a voice in my head that constantly tells me im doing something wrong. i get sweaty...
    haileymauck haileymauck 18-21, F 16 mins ago

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