I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 45 People

    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH
    16-17, F
    5 Responses Nov 6, 2012

    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913
    31-35, F
    3 Responses Oct 11, 2012

    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3
    56-60, M
    4 Responses Jan 21, 2015

    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8
    41-45, F
    6 Responses May 30, 2012

    My mother was diagnosed with GBM stage IV on

    August 6th 2014 at age 41. She had surgery within the week and we were told the entire tumour was removed. She then began radiotherapy and oral chemotherapy cycles. Every 3 monthly MRI came back clear and he was having minimal side effects to the treatments, June this year it...
    MadisonRoseTC MadisonRoseTC
    18-21, F
    Jul 6, 2015

    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193
    22-25
    3 Responses Jul 18, 2013

    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter
    36-40, F
    4 Responses Feb 13, 2013

    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey
    26-30, F
    4 Responses Feb 7, 2014

    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4
    61-65, F
    Mar 7, 2014
    flga flga
    31-35, M
    3 Responses Oct 9, 2014

    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas
    56-60
    2 Responses Aug 19, 2011

    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9
    31-35, F
    Feb 13, 2014

    My brother has Glioblastoma

    and I have been caring for him for four months, Any advice, Totally devastated and lost!
    pattydowns pattydowns
    51-55, F
    1 Response Apr 14, 2015

    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982
    31-35, M
    1 Response Dec 16, 2014

    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse
    51-55, F
    Mar 16, 2012

    I don't know what to do my husband has been

    give 1-2 to live after the surgery to remove the tumor. I don't know if we do the right thing. I am a scare for him to go through radiation treatment and chemo therapy. The oncology suggest that my husband should do the whole left side of his brain in radiation. I'm afraid that...
    leannesince leannesince
    26-30, F
    2 Responses Jan 4

    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90
    22-25
    Sep 26, 2012

    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char
    26-30, F
    7 Responses Jul 7, 2012

    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7
    56-60, F
    18 Responses Jan 12, 2011
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