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I Have Glioblastoma

A Glioblastoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glioblastoma. You're not alone. 44 People

    Is It Possible To Out Live The Prognosis Of Multiform Grade 4 Gbs?

    Hello all. I am a 45 yo women diagnosed with a grade 4 GBS in March of 2011. I have read many of your stories and understand how lucky I am. I know the prognosis is poor. I was a nurse in rehab for 24 years and have had several patients with GBS's I had surgery and most of the...
    demi8 demi8 41-45, F 6 Responses May 30, 2012

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    My 35 Year Old Sister Has Gbm And A 1 Month Old Son...

    My older sister is 35 years old and a hospice nurse. She had her first child on 09/17/12. She has had migraines since she was a teenager. On Oct 3 she had a severe migraine and started showing stroke like symptoms. The doctors found a tumor that was very large in size. They...
    sam0913 sam0913 31-35, F 3 Responses Oct 11, 2012

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    Glioblastoma Diagnosis

    My husband is 62 years old and was diagnosed with a glioblastoma multiforme tumor on July 3 of 2011.  He had no symptoms other than one headache.  We went to the ER because we could not get rid of the headache.  The doc on call did a CT scan and found a mass int he right...
    msomawas msomawas 56-60 2 Responses Aug 19, 2011

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    anyone using Optune? Or is it Novocure?

    Seems kinda science fiction but I hear it may work. How is that possible?
    joev3 joev3 56-60, M 4 Responses Jan 21

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    Glioblastoma Multiforme-3 Years Already!

    Hello! I am a 22 year old female diagnosed with Glioblastoma Multiforme. I was first diagnosed with a brain tumour in 2010 when I was 20 years old. I had surgery right after as the tumour appeared to be quite large. After the surgery,the doctors found out that it was a malignant...
    ay90 ay90 22-25 Sep 26, 2012

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    It All Started 2011

    I've been diagnosed with GBM in November 2011 at the age of 15. I've three surgeries behind me and still fighting against the cancer that spread to my lungs. It's a long battle but my grandfather survived it twice as well so why shouldn't I? Life's not easy but I'm gonna fight...
    ElizabethCJH ElizabethCJH 16-17, F 5 Responses Nov 6, 2012

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    My brother has Glioblastoma

    and I have been caring for him for four months, Any advice, Totally devastated and lost!
    pattydowns pattydowns 51-55, F 1 Response Apr 14

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    My mother of 83 years was just diagnosed with

    GBM4 on the left side orbital depth on Jan 20th 2014. It is difficult to believe that she recently went thru full left hip replacement on July 2013 and recovered perfectly. We celebrated an early Christmas in S.F. and she was dancing at the Top the Mark at 10:30 p.m. and...
    laceyb4 laceyb4 61-65, F Mar 7, 2014

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    My Father Is 54 Years Old And Was Diagnosed With GBM

    My Father Was diagnosed with GBM June 30th 2012. He had a orange sized tumor on the Left Side of his brain. He had a total resection and went into recovery at home.. He lost a lot of cognition and had trouble speaking. My father was unable to speak what he was thinking and it was...
    jts5193 jts5193 22-25 3 Responses Jul 18, 2013

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    My mother was diagnosed with GBM stage IV on

    August 6th 2014 at age 41. She had surgery within the week and we were told the entire tumour was removed. She then began radiotherapy and oral chemotherapy cycles. Every 3 monthly MRI came back clear and he was having minimal side effects to the treatments, June this year it...
    MadisonRoseTC MadisonRoseTC 18-21, F 21 hrs ago

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    I Have So Many Questions About GBM IV

    Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection. The tumors are in the left anterior temporal lobe...
    Her2ndDaughter Her2ndDaughter 36-40, F 4 Responses Feb 13, 2013

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    Glioblastoma Multiforme Stage 4 Brain Cancer!

    We'd never even heard of it before March 15,2010, when our doctor told us that my husband had it. We were in shock! He'd never before been sick, was very athletic person. He turned 58 in Feb. 2010. Diagnosis - March 15, 2010, Surgery to remove 95% of tumor in right temporal lobe...
    Grandmomof7 Grandmomof7 56-60, F 18 Responses Jan 12, 2011

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    Five year survivor!! Praying

    for all other warriors!!
    Blue1982 Blue1982 31-35, M 1 Response Dec 16, 2014

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    Counting New Blessings Everyday

    In Oct.2010,my sweet sister in law was diagnosed with a glioblastoma.her initial symptoms were. Similar to a stroke. The decision's. Was made with. Her husband. And adult children to treat agressivley with avastin and tamador after surgery. To remove as much as loss.she has Aldo...
    sisternurse sisternurse 51-55, F Mar 16, 2012

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    My Dad.

    My father (57 y/o white male) was just diagnosed with GBM on 06/26/12. My entire family is devastated. He had his biopsy to confirm the diagnosis. I'm only 30 and fear for the day that I have to bury my father. I don't know who to talk to because nobody really understands what...
    Lucky1004char Lucky1004char 26-30, F 6 Responses Jul 7, 2012

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    Write more about this experience (optional) My

    ex boyfriends father and I are very close. So close he calls me his daughter and helped pay for my wedding to someone other than his son.We even married in his church . He has recently been diagnosed with glioblastoma. I want to help as much as can with whatever I can but...
    babykh9 babykh9 26-30, F Feb 13, 2014

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    flga flga 31-35, M 3 Responses Oct 9, 2014

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    My husband and I recently moved in with my Dad,

    who has a glioblastoma in the left temporal and frontal lobes. Before we moved in, I was worried sick about him every day, so I’m happy that he finally allowed us to move in and start caring for him. A daily phone call was not nearly enough anymore… I definitely feel like...
    Boopsey Boopsey 26-30, F 4 Responses Feb 7, 2014

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    Related Experiences

    All I can say is thank God for the theatre. My parents signed me up for an amateur theatre group when I was 11; in hindsight, they may have done it because of my Asperger's (I was...
    heyitsgarrett heyitsgarrett 22-25, M 9 mins ago

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    Do you ever feel so completetly lost? Like maybe I shouldn't have taken this path...
    SammyPoo91 SammyPoo91 22-25, F 2 Responses 44 mins ago

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    My Love!!!!I have the most amazing girlfriend. She is supportive, protective, caring, and loving. She is my everything. She is my Mistress, my lover, my friend, and my partner in...
    IBelongToAlison IBelongToAlison 41-45, F 51 mins ago

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    As I was watching the movie Fahrenheit 451, it made me think of a few things. I noticed that Montag (the main character) just agreed with whatever his captain said and never...
    moose73630 moose73630 16-17, M 1 Response 57 mins ago

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    Hi I would like to vent a bit.Yes I have a bipolar spouse.I understand that it takes patients and the right medication.He was diagnosed with bipolar this April.And he is bipolar...
    Fruitypunch15 Fruitypunch15 31-35 1 hr ago

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    In the words on Morrisey: "I smoke cause I'm hoping for an early death and I need to cling to something." I don't have the courage to kill myself, but if I get terminally ill then...
    CokeandWhiskey CokeandWhiskey 22-25, M 2 hrs ago

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    Quite often I search for some diet plans to detoxify my body.Many people go for detoxification by having a clean and healthy diet plan. Sometimes I wonder how many of us have tried...
    lovemylife2210 lovemylife2210 26-30, F 2 hrs ago

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    I have crushes on book characters. The McCoy men.. All of them...
    RahRah73 RahRah73 41-45, F Jun 7

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    thanks to my uncle, I managed to go around the earth twice and as far north and south as you can go in a ship. have been to Antarctica, Australia, and just keep going down the...
    eldrichseer eldrichseer 46-50, M 1 Response Jun 7

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    I just would like support, and hear everyone else's experioence so I can have help leaving him
    Krot12 Krot12 18-21, F 2 Responses Jun 7

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    I have tried asking for help my panic attacks are getting to the point of insanity. but no one cares
    SMcCL SMcCL 22-25, F 3 Responses Jun 7

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    I have never been so damn busy today doing absolutely nothing... yet i got a ton of stuff done... small stuff, but still... how does that work?
    nocool nocool 41-45, M 3 Responses Jun 7

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    i have stetchmarks every where deep red ones and they are so awsome! thaey are from stuffing my self and i love it!
    deleted deleted 26-30 Jun 7

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    Missing my left pectoral muscle, Every thing else is fine! Would like to talk to people have this type of thing 😊
    John746 John746 18-21, M Jun 7

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    I have learned that I will be happy. funny things kids (child/weak minded grownups) keep telling my kids father we are together. I don't of they assume it is annoying/hurting me...
    bigdreamssmalltown bigdreamssmalltown 31-35, F Jun 7

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    It's just gone 3am again XD and I have a English presentation today/tomorrow ;-; McBusted, blink182, AllTimeLow and Nickelback are helping me get to sleep but it seems like its not...
    AskingAllTimeHorizon AskingAllTimeHorizon 13-15, F 5 Responses Jun 7

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    in Management, with a concentration in Human Resources Management. I have been an Administrative Assistant since graduating college about ten years ago. I still don't know what I...
    Jennio1559 Jennio1559 31-35, F Jun 7

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    I have waited two days after my last interview with no call for a job. Please pray for me that they do call me for a job. I desperately need this job for my family. Thank you for...
    HeatherNicole2010 HeatherNicole2010 22-25, F 1 Response Jun 7

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    My legs look like someone beats me... I guess I just have a tendency to somehow always hurt myself
    UnderTheSleeves UnderTheSleeves 13-15, F 3 Responses Jun 7

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    I am a doe, following a woman with faded lilac hair. She is slight in frame, her skin pale and bare as the moonlight, although the sun is shining on us. Her hair is in French...
    TheWildling TheWildling 22-25, F 1 Response Jun 7

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    I only have vivid dreams when I'm happy. So I welcome them.
    nnamhcsielf nnamhcsielf 22-25, F 1 Response Jun 7

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    I'm use it after all these years, it brings peace and less stress, but it would be nice to just have one person to talk to constantly that I can relate to.
    alycia12 alycia12 26-30, F Jun 7

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    I only have them on one side of my face. Which is odd, but I like it like that.
    xcrownlessx xcrownlessx 16-17, F Jun 7

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    My parents are extremely strict because they are Arabic and Muslim. for example, I'm not allowed to wear anything above my knee, anything showing my back, armpits or cleavage. I'm...
    sarahxo19 sarahxo19 16-17, F 3 Responses Jun 7

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    I have nothing to live for. No one will hire me, no girl wants me and I'm in constant pain. I don't want to commit suicide but I don't want live anymore.
    SnowHawk88 SnowHawk88 26-30, M 3 Responses Jun 7