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I Have Glossopharyngeal Neuralgia

A Glossopharyngeal Neuralgia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Glossopharyngeal Neuralgia. You're not alone. 17 People

    My Solo Journey

     I was diagnosed with neuralgia in the fall of 2005 by an oral surgeon.  It was a mild case, yet I didn't believe so then.  The episodes of electrifying shooting pain in the back right side of my tongue only last a few weeks.  The next fall it returned, more...
    3dcoupon 3dcoupon
    41-45, F
    9 Responses Oct 18, 2009

    Spinal Cord Injury With Throat Problem

     I need your help!I had a sports injury in 1998 and received a blow to the left hand side of the neck during the formation of a rugby scrum.  This left me paralysed C3 / C4 with no movement from top of shoulders. I have a plate in the left hand side of the neck fixed with two...
    stav27 stav27
    31-35
    Mar 20, 2012

    Neuralgia, My Story, My Pain, My Undiagnosed Neuralgia...

    I am a 39 year old female, married for 20 years, with two children 19 and 15. In January of 2010 I got the flu. It was horrible but I had no idea what was to come. After the flu was gone, my ear, throat and head was still killing me, literally. I called my main internal medine...
    morwenlotesse morwenlotesse
    36-40
    1 Response Dec 22, 2010

    My 17 Year Old Son Diagnosed With Glossopharyngeal Neuralgia In 2008

    I joined EP to meet others who have Glossopharyngeal Neuralgia, to talk and share experiences about this rare disorder. My son 17 year old son was diagnosed with Glossopharyngeal Neuralgia in July 2008 when he first experienced three incidents in one night of the painful...
    nwiebe nwiebe
    36-40, F
    2 Responses May 20, 2010
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