I Have Graves' Disease

Personal Stories, Advice, and Support 115 People

    I have really amazing news!

    !! I received Radioactive Iodine treatment about 4 months ago due to an incredibly large flare up that left me sick for a couple of months. But the radiation has finally kicked in! Today, for the first time since Year 9, (I'm now have 7 weeks of school left excluding holidays...
    CharliBrown CharliBrown
    18-21, F
    2 Responses Sep 5, 2014

    Radioactive Iodine Treatment

    I was recently diagnosed with graves. I went and had the Radioactive Iodine treatment on April 13th. I am so tired. I sometimes feel like I could melt right into my bed. I feel very jittery inside like am shaking inside but not.... last night I was lying in bed  and felt a urge...
    loriv349 loriv349
    51-55
    May 6, 2011

    Life Gone!

    I was diagnosed with Grave's Disease in 2011. I live in a country (Namibia) where we are not medically advanced in the field. The result therefore was that I had to go from one doctor to another with horrifying results. I had very high heart rates and was treated for asthma and...
    Mia681 Mia681
    46-50, F
    1 Response May 23, 2013

    Graves

    I was diagnosed with Graves Disease in March of 2009.  I literally thought I was going crazy b/c of all my mood swings and crying spells.  A friend of mine thought it was PMDD so I went to my gynocologist who tested me for thyroid problems and wham.....talk about...
    holakisty holakisty
    36-40, F
    Feb 9, 2010

    Possible Graves Disease

    Hi I'm 23. It al started 3 months ago when my hair started falling out then 2 weeks later my mouth was really dry I have family history of thyroid problems so I asked Pcp to check my thyroid she didnt even take blood just felt my neck. Then the severe chest pains started and...
    whodat504 whodat504
    22-25, F
    1 Response Oct 13, 2012

    Graves In the Fifth Decade

    I found out I had Graves when I went to the doctor with a heart-rate of 160. Because it was untreated for a while I developed an enlarged heart and atrial fibrillation. My left eye started to bulge and I suffered from irritability and weight-loss. After four years of...
    jonber jonber
    51-55
    2 Responses Jan 6, 2009

    Meds...

    well on a new med and beater blockers i do feel so much better but also was a little scary,me tho i worry over stupid things but the being down and low is to do with it.. off to see my consultant in 3wks and see whats happening,also more bloods.. Its nice to say i feel ok at the...
    Jaywelshgirl Jaywelshgirl
    31-35, F
    1 Response Nov 13, 2012

    Sick Of It

    Did anyone lose control of their bowels, lose hours of sleep with 3 kids,spend hundreds on their hair just to watch it fall out and be a total ***** to everyone that crosses you, have your meds changed constantly......I want to be me again...I never dreamed that this disease...
    jennnynzack jennnynzack
    31-35, F
    1 Response Oct 4, 2012

    What It's Like to Have Graves' Disease

    As anyone who is part of this group knows, Graves' disease is an autoimmune illness that attacks the thyroid gland. Instead of simply destroying the tissue, the immune system stimulates the thyroid, tricking it into releasing more thyroid hormone which in turn increases the...
    bobles bobles
    22-25, F
    6 Responses Dec 14, 2007

    Born With Graves

      I'm 36 years old and about 1,5 years ago I got the dagnosis graves disease. I have been extremely tired since birth, sleeping 15-22 hours a day. Nothing has worked; not school, work, educations, internships, nothing. I've tried and tried and thought it was just bad...
    Bixna Bixna
    36-40, F
    Jun 4, 2013

    I got diagnosed about a year ago

    and everyone's always thought I was always scared do to my bulging eyes turns out I have Graves' disease
    germany100 germany100
    18-21, F
    Aug 12, 2014

    I'm Out of Ideas

    I think I have Graves' Disease, but I'm not really sure. All help is appreciated. Here is my story up until now: I wake up one morning and can't breathe. I have this horrible pain in my chest and back. It feels tight. I go to the doctor and they say I have asthma (despite years...
    conanobriengirl conanobriengirl
    18-21
    5 Responses Aug 20, 2009

    I was diagnosed with Graves' disease almost

    three years ago, and am still not back to normal. I was misdiagnosed for years going in and out of hospitals when I was 17. Since taking radio active iodine at 18, things have not gotten any better. I have gained over 40 pounds, and lost all self esteem and confidence I ever had...
    brittnikae brittnikae
    22-25, F
    2 Responses Mar 26, 2014

    I was diagnosed with Hyperthyroid

    and Graves Disease about a year ago. the symptoms were slowly rearing their heads in my life and now the anxiety and irritability and "Graves Rage" so to speak is getting so bad it is really starting to affect my family and my marriage and my friends. I have been looking into...
    lauriecl12 lauriecl12
    36-40, F
    1 Response Jun 24, 2015

    Graves Disease!!

    IM 28 and was diagnosed 5 years ago with the disease no matter what the doctors have tryed my body just wont respond to the drugs! 2 years ago i gave birth to my little boy who was delivered early as he was suffering with his heart and growth thankfully he is healthy,as ive had...
    gemmaglp gemmaglp
    31-35, F
    2 Responses Aug 26, 2013

    I Have Graves Disease Too

    I knew I had a hyper thyroid since I was in highschool. For a while after I found out, my thyroid was going from normal to hyper, then back to normal. When I turned 20, my thyroid became hyperactive and didn't go back to normal. I was diagnosed with graves disease after I went to...
    rayka rayka
    22-25
    2 Responses Aug 20, 2012

    Living With Gd

    I'm 36 years old and have been diagnosed since 2004. I've had all kinds of symptoms rapid heart rate, tremors, weight gain, weight loss depression, mood swings, muscle weakness, trouble with body temperature, hair loss, and being just plain exhausted!! I have went through all of...
    jimmyscooper jimmyscooper
    36-40, F
    1 Response Oct 5, 2012

    I was diagnosed with Graves Disease in 2007.

    My thyroid tests, T3 and T4 were only mildly high but my TSH was less than 0.01. My symptoms were rapid heart rate and dry and irritated eyes. My diagnosis was confirmed with antibody blood tests, thyroid ultrasound and RI uptake test. I was started on 10 mg of Methimazole...
    purpleizzybee purpleizzybee
    61-65
    Apr 11, 2014

    Am I The Youngest???

    I'm only 15... Is there anyone else out there that has Graves Disease of my age, I need to know. I need to know that I'm not the only one at my age experiencing this. Or am I the youngest...
    CharliBrown CharliBrown
    18-21, F
    1 Response Dec 13, 2012

    Graves Has Ruined Me

    I feel like t has made me into a different person.  I am tired still and even after radioactive iodine and meds for several months it has become worse and levels have risen rather then drop.  It is leaving me with despair and guilt over not being able to do the things I once...
    jezabell28 jezabell28
    26-30
    3 Responses Feb 1, 2011

    I Have Graves Disease

    It all started when I went to the doctor for a sinus infection. The doctor felt of my neck and asked if I have had my thyroid checked lately. I told him that it had been a while, so he ordered some blood work. It took a week or so and the doctors office called me back and...
    aukitty aukitty
    22-25, F
    2 Responses Oct 4, 2009

    Graves Disease

    It started when I was halfway through year 9, age 14. I had been getting severe headaches for a couple of months. They were severe enough to have me throwing up and near fainting. My Mum was getting worried so I got an appointment with the local GP, he sent me next door for a...
    CharliBrown CharliBrown
    18-21, F
    Aug 2, 2012

    Trying To Deal...

    hi im Jay,34yr old mum of 2.. i was diagnosed with Graves Disease 2yrs ago they found it when i was carrying my son,i was a big girl size 22 now im 10-12.ive had tremors,weight loss,tiredness,fast heart rate,anxiety,isolation which i didnt know it came with the disease,not many...
    Jaywelshgirl Jaywelshgirl
    31-35, F
    6 Responses Nov 11, 2012

    Living With Graves

    isn't easy, it isn't easy at all. I remember thinking to myself, 'self, you know God couldn't possibly let you deal with any other sicknesses. It seems fair to stop at type 1 diabetes, right?' At the ripe ol age of 2, I was diagnosed as a type 1 diabetic. My pancreas decided to...
    savannahbabyy savannahbabyy
    22-25, F
    2 Responses Nov 11, 2013

    Diagnosed With Grave's Disease

    Hello everyone , 28 female working as anurse in singapore... Recent episode of pAlpitations . Sinus tachy of 125 at rest , free thyroid hormones were elevated , diagnosed with graves' disease in July this year (2013). Was quite devastated by the diagnosis , had even went to see a...
    Eswarig Eswarig
    31-35, F
    Jul 30, 2013

    i have had this mess( hyperthyroidism)

    for over 7 years and im just now getting the symptoms under control all but losing weight. just now found a weight gain shake that tastes good enough for me to drink. got the headaches under control and my heart rate stays normal ( no irregular heart beats). im doing this...
    LadyTigeress76 LadyTigeress76
    36-40, F
    Jun 24, 2015

    I'm 20 years old and about 10 months ago I was

    diagnosed with hyperthyroidism and later Graves' Disease. For a long time I just assumed that I was a lazy person and being really tired was a part of life, especially as I was in my first year of uni! However in the summer of last year I went back to work in the fish and chip...
    emwisemannn emwisemannn
    22-25
    1 Response Apr 23, 2014

    It's Been a Long Journey!

    Hi,i'm new here, i'll make this brief for now--------- i was diagnosed with Graves in 2003, the first Endo i had did nothing for me in fact he was rubbish!! so i asked my Dr to refer me else were, which he did, i have had 4 Radioactive treatments, the last one in 2007, and my...
    smeeee11 smeeee11
    56-60
    3 Responses Aug 2, 2009

    Eye Surgery & Graves Disease

    I have ocular graves disease and HYPO-thyroid ism. I've been taking thyroid meds with good results except that my eyes are still enlarged and protruding.My eyes have stopped growing and my ophthalmologist has proposed surgery to "clean out" the back of my eyeballs and settle my...
    merni48 merni48
    61-65
    2 Responses May 19, 2011

    i started having panic

    and anxiety attacks when i was 9. people thought i was being abused i wasnt and didnt know what anxiety was i was 9! it wasnt until i was 23 that a keen doctor ordered bloodwork for my thyroid that it was discovered. i was at the doctor for a totally different reason. (had a...
    williethebeagle williethebeagle
    31-35, M
    1 Response Aug 11, 2014

    Graves Disease Has Robbed Me Of Life At Age 44

    I was diagnosed with Graves Disease about 4 1/2 yrs ago. I went to an endocrinologist who sent me for nuclear scans and tests etc, costing a fortune. After it depleting my finances, I stopped taking my medication all together. Time went by and I started feeling better. Another 2...
    Chatterbell Chatterbell
    41-45, F
    1 Response Jan 4, 2013

    Figuring Out Graves

    Hi I was just recently diagnosed with Graves' disease. I have gone through extensive tests and health problems for over 20 yrs. after reading a lot on GD mine seems complicated and wanted to know if others had symptoms. I have the usual anxiety, hot flashes, moodiness, etc...
    Jrcurls Jrcurls
    36-40
    1 Response Oct 13, 2013

    Has anyone else experienced enlarged sore

    breasts and numb pinky and ring fingers on the left hand ?
    lauriecl12 lauriecl12
    36-40, F
    2 Responses Jul 5, 2015

    Graves Disease

    I was diagnosed with Graves Disease 1 yr and a 1/2 ago. I've had symptoms as long as I can remember. I lead a very lonely existence besides my life with my boyfriend that is able to deal with this.
    TopazLi TopazLi
    36-40, F
    Aug 5, 2012

    Graves Disease And My Relationship With My Boyfriend

    I have been with my boyfriend for 3 and a half years and he is my world and my best friend. We have an amazing relationship apart from 1 thing, he HATES moany and negative people.I have been diagnosed with Graves disease for over 5 years now,For the past 2 years i have been mean...
    joban221 joban221
    31-35
    5 Responses Feb 12, 2011

    I Don't Know What To Think

    Today, I was diagnosed with Graves' Disease. I have no idea what to think or do. The doctors say I have two treatment options, but neither sound too appealing to me. I am only 21 years old and have no family history of thyroid problems. I have been having symptoms for about a...
    deleted deleted
    26-30
    4 Responses Jul 14, 2011

    2-3%...& I'm Included

    I was diagnosed with Graves in June. Before I was however, starting in February I noticed that my hair was falling out.  I thought it was fallingout because of the Winter.  I did not think anything about it until it started warming up. In March, I started to work at Hardees and...
    smithla6 smithla6
    22-25
    1 Response Oct 21, 2011

    Graves Disease Diagnosed In 2010

    After numerous trips to my primary care doc and being told that I was "old" they finally ran a Thyroid panel and discovered I was grossly hyperthyroid (had lost 40 lbs in a month) and I found my own specialist who ablated my Thyroid in 2010. It has been a roller coaster ride on...
    carrie7black carrie7black
    61-65, F
    1 Response Apr 12, 2013

    Almost There

    I recently had another blood test and it showed that my hormones were still all normal! I have also recently seen my endocrinologist and she reduced my dosage of Carbimizole. Hopefully in the next year or so I will be able to stop my medication.
    CharliBrown CharliBrown
    18-21, F
    May 27, 2013

    I Have Graves Disease

    I am a 46 year old woman and was diagnosed with Graves disease 3 days ago. Not only was I diagnosed with Graves but my endocrinologist thinks I may have Graves/ Hashimato's (one is hypo one is hyper). I started on meds methizole 5 milligrams that I take at night. The next day I...
    missholley missholley
    46-50, F
    4 Responses Jun 14, 2013

    Want To Feel Normal....

    Today again crying..i dont know anyone who has this disease or where it came from,im trying to put on a front but really im upset and hoping this will get sorted soon,they told me i should opt for radioactive drink iodine.. if it means helping me in the long run i will do,im so...
    Jaywelshgirl Jaywelshgirl
    31-35, F
    4 Responses Nov 15, 2012

    It has been almost 2 years

    since I was first diagnosed with Graves Disease and 3 days ago (4 March) I had a blood test done, as I was quite sick on the Saturday. I was twenty times what I should have been in the T3 hormone. I am now on 9 tablets a day, 6 of Carbimazole and 3 Propanalol (to slow my...
    CharliBrown CharliBrown
    18-21, F
    Mar 7, 2014

    This Is New to Me

    So, they think I most likely have Graves Disease...Long story short: I am 32 year old woman who is in the process, i guess, of being diagnosed with Graves. I went to the Dr. for what I thought was low blood sugar and left with scribbled notes that I didn't even look at...
    PinkishlyWell PinkishlyWell
    31-35
    2 Responses Aug 13, 2009
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