I Have Greig Cephalopolysyndactyly Syndrome

A Greig Cephalopolysyndactyly Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Greig Cephalopolysyndactyly Syndrome. You're not alone.

    Greig Cephalopolysyndactyly Syndrome

    My son is 6yrs old and had GCPS, I would love to talk to anyone out there who has GCPS syndrome or any knowledge of it, for advice. Hope you can help. Naomi Exeter UK
    WALNX WALNX
    36-40, F
    1 Response Jun 24, 2012

    Related Experiences

    My attacks started 6yrs ago,woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I...
    SoothingSoozie SoothingSoozie
    41-45, F
    1 Response Apr 19
    My 3rd grader has struggled in school from Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician...
    Vette601 Vette601
    36-40, F
    Apr 19
    Well my story is a lot like some of yours, I started young on comet and sometimes dirt from my backyard... I like to eat things with gritty texture for most of my childhood and...
    BadMomKira BadMomKira
    22-25, F
    1 Response Apr 19
    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
    Apr 17
    Hi, I was just diagnosed with SMA Syndrome after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
    Apr 17
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    A description of today's episode: I went home from work vomiting today. This time I was actually driving and puking at one point on my way home. Thanks to 'Murica for plastic...
    Doomflower Doomflower
    31-35, F
    3 Responses Apr 16
    Hello I'm Michelle but call me kris.I am from the USA.I suffer from bipolar as well as anxiety.
    deleted deleted
    26-30
    2 Responses Apr 14
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
    Apr 13
    I'm pretty sure being aspie has.it has its ups and downs.It messes up relationships so badly for me.
    deleted deleted
    26-30
    3 Responses Apr 11
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    So... I make straight A's, never get in trouble, win school awards and awards in general. I'm on a scholarship team and I'm eligible for many other ones... I do all the house work...
    deleted deleted
    26-30
    1 Response Apr 9
    I'm so hurt that I can't even read all the experiences because my tears are in the way
    deleted deleted
    26-30
    2 Responses Apr 8
    My boyfriend hasn't been diagnosed or anything, but I was watching a programme about Asberger's and something resonated with me. If he does have it, I'm sure it's only mild, but it...
    anniechan anniechan
    18-21, F
    2 Responses Apr 7
    I was born with PruneBelly Syndrome (lack of abdominal muscles) I had some corrective surgery at age three and the dr cut through and removed my navel, so I don't really remember...
    Jmacaroon Jmacaroon
    51-55, F
    Apr 7
    30 reasons i love my Aspie (or just a individual person wich i was lucky to met) This is my story, and Just mine. U dont need to relate. Because every person is different, with...
    deleted deleted
    26-30
    Apr 6
    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
    I'm a 19 year old Male and I was diagnosed with wpw when I was 15 years old for 4 years I have basically ignored my symptoms but in recent years it has become increasingly...
    faiquzaki faiquzaki
    18-21, M
    Mar 30
    Most of what I've heard of people with Asperger's Syndrome or autism indicates lack of affection. How common is it for children or adults with ASD to want a lot of hugs? I'm...
    GreenButtercup GreenButtercup
    36-40, F
    Mar 30
    I've had quite a rough time this past year. I began starving myself in middle school but it soon became throwing up whatever I had eaten. It never went away and has gradually...
    verylostcause verylostcause
    16-17, F
    5 Responses Mar 29
    last night i thought i was going to die...i thought i was having a stroke. i got dizzy and i already had a migraine. i laid down on the kitchen floor praying to God that i would be...
    LITVET LITVET
    41-45, F
    Mar 29
    I have no problem with interracial relationships. Latina, Ebony, middle eastern, Asian, etc. Everyone needs love.
    deleted deleted
    26-30
    1 Response Mar 29
    I have no problem with interracial relationships
    deleted deleted
    26-30
    Mar 29
    I have a unique rage against my boyfriend ex right now. I got mad at my boy friend's family (not her) because they have her pics all over Facebook. They went and told her (because...
    Sarsooora Sarsooora
    26-30, F
    Mar 29
    I didn't mean to. He started texting me. He was a relative of my husband's and at first I'm sure he was trying to keep in touch with my husband. He asked for advice. Told me...
    Jessamine3 Jessamine3
    36-40, F
    2 Responses Mar 29
    Womens clothes are so much better than mens! I have all kinds of clothes, skirts, dresses, shorts, jeans, pants, leggings, yoga pants... Its so much easier to get variety.
    lauratdc lauratdc
    46-50, T
    4 Responses Mar 29
    How do I miss thee, let me counts the way hmph (smiling to myself) Dare I say its too much, or maybe not enough. My heart compels me to miss you until the end of time; every...
    ollifer ollifer
    36-40, F
    Mar 29
    I'm endlessly sick, I have chills but I'm still to anxious to call in sick tomorrow incase they hate me, I'm the only marketing executive on right now.
    Imnotok2 Imnotok2
    18-21, F
    Mar 29
    I had a dream where I Was a fire man and we had about 1000 kids in a firetruck which then crashes when we're in the mountains, only to have hundreds of kids fall into a pit of...
    Thtguywitglasses Thtguywitglasses
    13-15, M
    Mar 29
    I have a place in the woods,where my soul goes when its tired.There's a box made of old lumber.where I sit to rest,and a deskwhere I writeapologies and amends.A tiny pond at the...
    ManOnTheMoon68 ManOnTheMoon68
    46-50, M
    2 Responses Mar 29
    Kind of random, but I haven't had my cup today, maybe that's why I'm thinking about it. I typically work early mornings, like 5 in the morning early. So, I get my typical order at...
    deleted deleted
    26-30
    Mar 29
    does anyone have kids and have been dealing with this the whole time? how do you handle taking care of your child with the possibility of an attack lurking around every corner? how...
    stallins stallins
    31-35, T
    Mar 29
    I think I have BDD but not sure I saw a character from a TV show say and do the exact same thing as I do. While everybody who watches the show was asking "why is he not eating but...
    PositiveStateOfMind PositiveStateOfMind
    22-25, M
    Mar 29
    45. EP is coming to an end and I still haven't found my dear friend "michalb". I don't know if you still use this site but if you do please do get in touch with me before destiny...
    UnicornsOfHope UnicornsOfHope
    26-30
    Mar 29
    ...Which I love to have pulled;)/~
    RebelOfSouthernEnvy396 RebelOfSouthernEnvy396
    41-45, F
    4 Responses Mar 29
    1- Travel somewhere where the culture is drastically different to the one where I live 2- Backpack across Europe for a year and meet fun, diverse people on the way 3- Go skinny...
    SkyouInSpace SkyouInSpace
    16-17, F
    4 Responses Mar 29
    Never lie, if you're married never have extra marital affair,if you're single never fall for some who is married. It may b fun for while but for your own happiness you're...
    deleted deleted
    26-30
    1 Response Mar 29
    Never lie, if you're married never have extra marital affair,if you're single never fall for some who is married. It may b fun for while but for your own happiness you're...
    deleted deleted
    26-30
    Mar 29
    EP is shutting down?!! Noooo! I know I haven't posted much up for the last few months due to being super busy with work and remote family issues but I don't really want to say...
    deleted deleted
    26-30
    Mar 29
    Forgot to post this dream and it was pretty cool. It started out I was in Breaking Bad. Walt was about to go to this shootout with a bunch of bad guys and skylar was worried about...
    Hush92 Hush92
    18-21, F
    Mar 29
    Please someone help me! Am my husband an Asperger? I married for ten years. My husband is an honest, quiet man, responsible and with good temper. However, the worst part is I can...
    ChuChu256 ChuChu256
    36-40, F
    3 Responses Mar 29
    This is a second marriage for my husband. We both have two children from previous relationships and one daughter together. My husband was able to adopt my two kids and we have 50...
    confidenz confidenz
    31-35, F
    Mar 29
    My fiancé and I have been trying to since July of last year I pray I can give him the little girl he wants and deserves he has two boys already :)
    serendipity786 serendipity786
    26-30, F
    1 Response Mar 29
    I have a hard time explaining to people that I have adhd but in not in the slightest hyperactive. My ability to focus and comprehend is terrible and that's why im diagnosed with...
    cassmar10 cassmar10
    18-21, F
    1 Response Mar 29
    well here is how my mind would process it that information if someone said they had a crush on me. I am a girl in RL but changed my gender to male out of boredom. 1.They are...
    nostalkerswelcome nostalkerswelcome
    22-25
    Mar 29
    But I've also learned things from other places too ...😕 This is why I'm concerned about the photo albums I have on here ...😳 Some abandoned websites go on for months or even...
    BSTisapain BSTisapain
    46-50, F
    7 Responses Mar 29
    I remember the time when I ran away from the mental hospital I was in. It was May's end and we were going together for a walk. My friend has been suggesting me to run away with him...
    EddieAndrews EddieAndrews
    16-17, M
    Mar 29
    I'm in this university organization. I've always liked tall good looking guys. But then there's this person that caught my attention. He's not even tall, but he's not short either...
    chineselol chineselol
    18-21, F
    1 Response Mar 29
    I have a crush on someone here. It feels creepy hahahuhu
    seraphim06 seraphim06
    18-21, F
    3 Responses Mar 29
    I recently had surgery to remove my ectopic pregnancy. It's been hell of a ride physically and emotionally. I no longer have my right tube and concerned about my fertility. I am...
    laceymarie95 laceymarie95
    18-21, F
    Mar 29
    This just hit me. Over the years I've heard my parents and other older people bragging that their generation was way better than this generation. They claim that they were very...
    Abi936 Abi936
    22-25, M
    3 Responses Mar 29
    Hey,how are you? Have you ever read the news? http://www.vice.com/read/looking-for-love-on-wooplus-an-app-for-plus-sized-dating There is a dating app for BBWs and curve lovers...
    hongdi hongdi
    26-30, F
    Mar 29
    Hey,how are you? Have you ever read the news? http://www.vice.com/read/looking-for-love-on-wooplus-an-app-for-plus-sized-dating There is a dating app for BBWs and curve lovers...
    hongdi hongdi
    26-30, F
    Mar 29
    Hey,how are you? Have you ever read the news? http://www.vice.com/read/looking-for-love-on-wooplus-an-app-for-plus-sized-dating There is a dating app for BBWs and curve lovers...
    hongdi hongdi
    26-30, F
    Mar 29
    why is it, even though you're sleeping right next to me, i feel so alone? why did you have to change things, when we were doing great? was i not enough? What hole is she filling in...
    Aeryn90 Aeryn90
    26-30, F
    Mar 29
    I was diagnosed with bilateral idiopathic brachial neuritis, still have a lot of sensory and motor loss 8 months in. Couldn't do much for the first few months and was in horrible...
    brachialneuritis brachialneuritis
    26-30, M
    Mar 29
    I'm just done. I'm done trying to put effort into talking to people who don't put the same effort back. One sided friendships don't fly with me. I'm done tiptoeing around...
    PsychGirl94 PsychGirl94
    18-21, F
    7 Responses Mar 29
More Stories