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I Have Greig Cephalopolysyndactyly Syndrome

A Greig Cephalopolysyndactyly Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Greig Cephalopolysyndactyly Syndrome. You're not alone.

    Greig Cephalopolysyndactyly Syndrome

    My son is 6yrs old and had GCPS, I would love to talk to anyone out there who has GCPS syndrome or any knowledge of it, for advice. Hope you can help. Naomi Exeter UK
    WALNX WALNX 36-40, F 1 Response Jun 24, 2012

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    I think I have Aspergers, I love arts so much I think it's the only life where I want to be, I love seeing great murals an architect designs, I can get obsessed and lost when I...
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    I can't meet people's gazes. I have single minded focus on certain things. I am clumsy (found a way to help that.) I usually end a conversation just because I can't continue it, I...
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    I thought I needed a good vent so here goes. Sorry if there is TMI. Every since I started my period when I was 11 I would be in excruciating pain, I would have to have time off...
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    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
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    I was finally diagnosed as being on the spectrum on November 2nd, 2014. The test used was the Gilliam Asperger's Disorder Scale and it was a three hour test done over three visits...
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    The doctor finally told me I have it a year ago but so far no one believes it. Looking to meet others who would like to talk about it.
    keravon keravon 51-55, M 1 Response Dec 8

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    I've tried to use it to my advantage. I'm gifted with writing and I believe Aspergers along with an abusive home environment help to give me that as well as other skills. Being...
    KnaisGuy KnaisGuy 22-25, M 3 Responses Dec 8

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    This **** is no joke. The pain is pretty severe. I plan on having surgery, but I have to wait till after Christmas.
    Xplictt Xplictt 22-25, M Dec 11

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    I've struggled all my life socially. I never made a single friend until I turned 14. I was always "that weird, quiet girl." People were cruel to me and I could never figure out why...
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    Has anyone else read the Michael Vey series of books. Kind of Awesome that TS has a champion. :)
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    I have a twin brother that survived Guillain-Barré Syndrome or GBS. He was diagnosed at the age of six and it took a year for him to get treatment and get over the disorder. GBS...
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