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I Have Greig Cephalopolysyndactyly Syndrome

A Greig Cephalopolysyndactyly Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Greig Cephalopolysyndactyly Syndrome. You're not alone.

    Greig Cephalopolysyndactyly Syndrome

    My son is 6yrs old and had GCPS, I would love to talk to anyone out there who has GCPS syndrome or any knowledge of it, for advice. Hope you can help. Naomi Exeter UK
    WALNX WALNX 36-40, F 1 Response Jun 24, 2012

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    Hi my name is Edward, I was diagnosed with Russell Silver Syndrome when I was every young. I'm 18 now and about to go off to college. My whole life I have known about my...
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    not me but my youngest son. we adopted him and his birth parents were drug and alcohol addicted. I am only just learning about this syndrome and the problems that my son will have...
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    I don't know if because of the other medications I HAVE to take or what but I use Restasis every day twice a day like the frickin commercial says. I also take Fish Oil and...
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    Not sure what to think, 20 years old, for almost two years, I will wake up in the early hours with this intense pain, sweating, and know that I need to get to the toilet. I will...
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    and I was wondering how else did? What are some tics you have and how do you manage them?
    zodiac1888 zodiac1888 18-21, M a week ago

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    When I was a kid I basically thought I was an alien because I felt so different the first language i learned was german but i was going to school with children whose mother...
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    All through my short life I have experienced the troubles of being an outcast, being told to simply "get involved" but that's not at all easy. Well not for me anyway. I can do...
    thedimone thedimone 13-15, F 3 Responses 1 day ago

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    Indeedly--makes effective communication a ***** I gotta say. And then there's the difficulty to quickly adapt, and sometimes people say stuff in a way that you just don't get and...
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    Pues aquí estoy, me acaban de diagnosticar esto, y fue como una gran patada... llevo ya mucho tiempo con cosas: depresión, crónica, cansancio,fatiga, herpes zozter, problemas en...
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    People say "oh your lucky, I wish I could stay at home and not work" and I just want to slap them. Id give anything to be able to work again. Yes I'm home but I can't even help...
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    This is true, one thing about it is an immense obsession with limited things, I was diagnosed a LONG time ago, most likely after preschool. My obsession is mental disorders, Two...
    deanratzloff deanratzloff 13-15 2 Responses Mar 19

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    anyone here from the Uk who has it? finding the nhs not that helpful ty
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    Every couple of weeks I vomit atleast once every ten to twenty minutes for no less than a week at a time. Its totally debilitating. Any one else? I Would like to talk to someone...
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    Hello Everyone! I'm currently 16 years old, 7 months ago I was going school, hanging out with my friends and living life to the fullest! But now everyday is a struggle. I don't go...
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    Hi call me Sean. I'm 21 years of age and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit...
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    Don't give up; there is hope. I'm 19 and when I was 16, I got my first symptoms of rumination syndrome. Like a lot of others, I thought it was a 24 hour sick bug but it just...
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    I am 31 years old female and was diagnosed Guillain-Barré syndrome. I felt tingling weakness in my right leg and in few hours it started spreading to lower limbs and I realised...
    amishah154 amishah154 31-35, F 4 days ago

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    I am Hispanic, female, 49 years old. On September 2012 started with progressive serious problems in my health. Weakness on my extremities, drastic loss of weight , foot drop...
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