I Have Had Erythema Nodosum

Personal Stories, Advice, and Support 125 People

    Now I Know!

    The fever and chills came and joint pain unreal..then the painful bumps on my legs. Could hardly walk..trip to the Doc. positive for some autoimmune disease, then tested again and negative. Checked for strep B and Lyme..both negative..put on pred. antibotic and tons of advil...
    rosie589 rosie589
    Sep 24, 2011

    I Felt Like I Was On An Episode of House!

    I decided on a whim to get my tongue peirced a year ago and i loved it, i still love it but after a couple of months i found a small lump on my leg one night. I though nothing of it until i found more and more on my lower legs until one night i had to go to hospital to get...
    kikiatari kikiatari
    18-21, F
    5 Responses Apr 20, 2007

    Not Sure What To Do

    I have been reading others stories and it helps me to know I am not the only one with EN. I am a male in my early 40s. I am a professional working in Education Administration. What I am struggling most with right now with EN is the fatigue. It is impacting my work since I am now...
    DoctorEN DoctorEN
    41-45, M
    1 Response Oct 26, 2012

    Six days ago, I had one bump on my left calf.

    The next day I had 4 there. The next day it spread my my right calf and up my legs to my hips and hamstrings. Now they are popping up on my arms. I have over 80 spots all over my body and I can't sit, I can't stand, but laying down hurts the most, and it takes forever to fall...
    Winterling Winterling
    22-25, F
    1 Response Mar 13, 2014

    This Is One Scary And Potentially Life Changing Diagnosis!!!!

    I was recently diagnosed with probable erythema nodosum/multiforme. I am still seeing various specialists trying to rule out what the potential cause is. It started about a couple weeks ago with a couple small spots on the side of my right foot and one on the back of my right leg...
    bumble123 bumble123
    31-35, F
    2 Responses Jan 12, 2012

    Newly Diagnosed! Confused =(

    I noticed one lump in my left shin about 3 to 3 1/2 months ago and for about 2 or three weeks after noticing I finally went to the doctor. For a month or so they all thought it was just a staff infection. So I was on antibiotics for about 2 months, all different kinds, trying to...
    chelseazink69 chelseazink69
    22-25, F
    1 Response Aug 1, 2013

    EN Since I Was 12 Years Old

    I have had chronic EN since I was 12 years old I'm now 18 and I am still suffering with it. chronic means that I have lots of flare ups and they last several months. I am currently in my longest flare up of EN having had it for seven months so far. I first had EN from contracting...
    nicki210 nicki210
    22-25, F
    1 Response Oct 25, 2013

    Living With Pain From En

    I was diagnosed with EN almost 5 years ago. I have tried everything. I am currently taking minocycline . Nothing seems to work there are days I feel like I am getting better but then the pain returns sometimes worse than the time before. There are days I feel I cant take it...
    painy painy
    3 Responses May 24, 2011

    En: Evil Nastiness

    It ALL started about three weeks ago, I was at work and felt sore in the exact same spot on each of my shins. It felt as if I had walked into a coffee table going 30 miles per hour, which was obviously not what happened. I lifted my pants up and it looked like a rash, or...
    amdc64 amdc64
    18-21, F
    2 Responses Jan 17, 2013

    Abroad With Erythema Nodosum

    Hi, Thank you very much in advance for taking the time to read this long (desperate) post! I'm an international student in Japan and got EN while my stay in Japan. I'd first caught a bad cold in the very beginning of January (2013) and since the fever increased (until 39.2...
    Norapk Norapk
    1 Response Apr 9, 2013

    Had It Since I Was 6

    When i was 6 years old i noticed i had started getting red bumps on my legs, not just the lower part but on my thighs too. it was a hot summer day i had no illness, it just randomly appeared. when i saw doctors they couldn't diagnose me with anything because they didn't know...
    MikalaStarr MikalaStarr
    18-21, F
    2 Responses Apr 20, 2010

    20 Years Of Living With Erythema Nodosum And Avascular Necrosis

    Many years ago when I would  wax my legs I noticed small red star like spots that would appear on the lower half of my legs. There was no discomfort and they did not appear after each waxing. A decade later swelling in my ankles along with bruising now accompanied the red spots...
    jhoppery jhoppery
    46-50, F
    3 Responses Feb 3, 2011

    New To En, Not Liking This Already

    About 6 weeks ago I had a lump on my leg, not painful or red, just firm. I thought it was an insect bite, after 4 weeks of it not having gone away, and it beginning to get bigger, red and painful I went to my gp, they gave me antibiotics, thinking it was an infected horsefly...
    Jfh10 Jfh10
    3 Responses Aug 7, 2011

    EN =(

    I have had EN since 2004. The very night I found out my mother was killed, those painful red knots showed up! since then I have had outbreaks about twice a year. For me it seems to be the same time every year I get them "seasonal" maybe? Right now I have had an outbreak it is so...
    LilLadyBugEN LilLadyBugEN
    1 Response Mar 13, 2013

    A Cure!

    I have had Erythema Nodosum on and off since I was 14, I am now 22. I have had some very painful and umcomfortable times with this and at one stage they literally covered my legs from top to bottom. Although now I only get approx 6 at a time (touch wood) I think I have found...
    jj26 jj26
    22-25, F
    3 Responses Sep 1, 2009

    Oh The Pain!

    I first started getting these lumps on my legs when I was 16, I'm now 27 and am in the midst of the worst occurance of the disease I have ever had. My doctors believe the onset was from starting birth control. Due to the fact that all of my blood tests, urine tests, etc. have...
    ea83 ea83
    2 Responses Aug 31, 2010

    Erythema Nodosum - When You Have An Outbreak, What Do You Do To Get Through It? Help.

    Since the last time I posted, my Erythema Nodosum has changed over and over again.  I got to the point where I was so miserable, I went to the ER and I was crying and I felt as though I was going to faint from the pain..It felt as though I'd been in a car crash, it...
    janehasadd janehasadd
    18-21, F
    2 Responses May 16, 2010

    What In The World

    I have been suffering from NE for about 5 months. The only thing that calms it is prendisone. At first I thought it would just go away, I was doing everything the dr asked, and I started with 30 mg of prendisone for 3 days, then 20, then wp. Well it came back. Anyway, I got...
    Asaint2 Asaint2
    26-30, F
    2 Responses Oct 7, 2012

    Newly Diagnosed

    I have had strange knots covering my shins for about 4-6 months now. They're so extremely painful, yet no doctor could diagnose me. I had multiple tests and doctors visits, finally I was diagnosed with EN. Is it always reoccurring? Or can it just happen once? Also, if there are...
    1 Response Jan 9, 2013

    I have this and its the most evil thing anyone

    can have. My EN started after a flare of my UC back in early august. My UC started to act up again and then about two weeks in I noticed I had a pain in the lower part of my knee and I kept wondering and thinking how I even hurt myself or how it could have happened. All in one...
    Tcsblue22 Tcsblue22
    26-30, F
    Nov 5, 2015

    The Devil Has Infected Me

    I just turned 20 and just got diagnosed with EN. I've had these lumps all over both of my legs for maybe three weeks now, with no sign of it getting better. The pain is unbearable and I can't even walk now. School starts up in a few weeks and I'm afraid I won't even be able to...
    comfysofa comfysofa
    18-21, F
    1 Response Dec 21, 2012

    EN Treatment

    First, I should tell you that I am an otherwise healthy nineteen year old Caucasian female. One family member has been diagnosed with the condition before. I have no history of leukematic symptoms and have never had an auto-immune disease. However, I have had strep throat...
    cae787 cae787
    22-25, F
    2 Responses Aug 17, 2013


    I Just wanted to give a short update and possible relief for everyone! One of the ladies on here had a post and recommended the salts bath. I did one soak didn't seem to do much all though I didn't expect it to with only one use. I was doing some research online of natural cures...
    LilLadyBugEN LilLadyBugEN
    1 Response Mar 16, 2013

    Erythma Nodosum

    hello all. i am worried n scare of en.2 year ago i seen lump on my leg its very painful and en comes again and again never left i use imuran pill its work in this desease but slowly
    saima24 saima24
    May 22, 2013

    Medicine Side Effects Cause Erythema Nodosum..

    i had this erythema nodosum since i started taking PTU for my hyperthyroidism toxic goiter.. i went to a rheaumatology and confirmed that it was erythema nodosum but he old me that it may cause by some factor like leukemia, tb, hepatitis, etc.. but my results was all fine except...
    denkyo999 denkyo999
    1 Response May 21, 2011

    I'm a runner and 36 year old with erythema

    nodosum which presents as a result of trama and seems to be reduced by running. I've had the condition for over a decade. I've yet to find anyone else with similar presentation of this disease. The lumps hurt, the night sweats are awful but exercise seems to reduce duration and...
    MikeRunner MikeRunner
    36-40, M
    1 Response Jul 14, 2014

    Possible Relief!

    Hi All, I believe that I have found something to help, it has been working for me for a month now and I hope it helps others too. My boyfriend took me to Cancun for a few days to rest and escape and when we first arrived I was about to tear the skin off my shins they itched so...
    jerseygirl415 jerseygirl415
    46-50, F
    4 Responses Sep 24, 2012

    Erythema Nodosum?

    I'm 38 years old and it looks like I, too, have erythema nodosum. It started about 7 weeks ago, I noticed this lumpy looking thing on my shin but it didn't seem to be a bruise. After 2 weeks I went to urgent care one day after work (I'm a teacher) because I can never get to a...
    justjessiemom justjessiemom
    1 Response Oct 28, 2012

    Hi - I'm new to this.

    I've been getting EN lumps for about a year, maybe 2 now.... does anyone else get them all over their body? I keep reading how its usually only your lower legs?? But i've had them on my arms, legs, tummy, back, shoulders, hands, top of my feet and now I've just starting...
    mummawe mummawe
    41-45, F
    1 Response Jan 25, 2016

    Wondering If I Have En

    In February, 3 of my 6 children were home for 3 weeks (alternating) with strep throat. The week they were all well and went back to school, I believe I had strep. However, I never went to the dr. (Lack of funds). On Feb. 26th, I began having some pain in my calf. I went to the...
    rzdoucet rzdoucet
    1 Response Mar 23, 2011

    Having EN is an experience

    that I do not want to re-live again. I cannot count the number of times that I cried in despair because of this. Aside from having very painful and unsightly legs, the emotional torture of finding the cause or culprit is such a daunting task. And even after the treatment, there...
    anya1988 anya1988
    Mar 31, 2014

    I have had erythema nodosum,

    only one bout of it because I found a cure, sure it took a little while to clear up but got there in the end CHLOROPHYLL! Try it people :) it really does help, and I'm full of energy! Thank you Thank you Thank you universe!!
    AmyRob11 AmyRob11
    26-30, F
    1 Response Nov 21, 2014

    En Onset From Yaz And Now 15 Weeks Pregnant And It's Back

    I first was diagnosed with EN in 2007. It soon became clear that the cause was Yaz (oral contraceptive). Once I discontinued the Yaz, my symptoms soon subsided. Now I am 15 weeks pregnant and the symptoms of erythema nodosum presented themselves at 14 weeks. At first I just...
    mdsuzuki mdsuzuki
    26-30, F
    3 Responses Dec 6, 2010

    Erythema Nodosum Is No Joke.

    My name is Samantha and I am currently 21, going on 22.  I first experienced Erythema Nodosum about one year ago.  I developed a large, red, painful and itchy bump on the back of my ankle.  At first I thought it was a spider bite, but it just got bigger and more...
    janehasadd janehasadd
    18-21, F
    21 Responses Apr 24, 2010

    EN and 30 Years of It Off and On

    I, too, have had EN, and have on & off,now, for the past 30 years.  It started with my taking birth control pills, and continued to plague me on and off over the years despite my going off the pill.  I have had ALL of the tests by countless drs., and...
    gsagtrio gsagtrio
    3 Responses Feb 28, 2008

    EN And What Offered Relief For Me

    About 2 years ago I came down with Valley Fever (cocydiomycosis) and at the same time experienced about a 3 month episode of Erythema Nodosum. I more or less diagnosed myself--- but a dermatologist confirmed it. A few different things seemed to offer the most relief...
    breathe1177 breathe1177
    46-50, F
    Jun 15, 2013

    Like A Spell Out Of Harry Potter "erythema Nodosum"

    September 14, 2012 Well life is quick to change and for months I have been tired and sometimes a little sick. Then one night my lymph nodes swelled up and I got a weird bump on my leg under the skin and one on the inside of my arm by my elbow. My ankles were swollen and I could...
    desmed desmed
    3 Responses Sep 23, 2012

    Erythema Nodusum

    I too have recently been diagnosed with this condition, my consultant has been doing several tests but as yet to find a cause. I feel all alone and the pain in my joints is becoming unbareble I feel that im fobbed off by my gp with pain killers and frequently told its...
    bikerchick09 bikerchick09
    46-50, F
    1 Response Oct 25, 2013

    12 Years And Still Suffering

    I got my first lump about 12 years ago. I went to my PCP at least 5 times over the course of the first year only to have him send me to an orthopedic doc three times and a vascular doc once. I even brought paperwork I printed from the internet about EN telling him I thought that...
    elisabeus elisabeus
    1 Response Mar 25, 2013

    Just Been Diagnosed

    I have had en for the last 3 weeks following a bad tonsilitus. I have a lump on each knee and a huge lump on my ankle. My knees ache badly most of the time and my ankle is very painful constantly. I am 9 weeks pregnant so I can't take nsaids which are the standard treatment here...
    daniidodo daniidodo
    Oct 17, 2012

    My Life With Erythema Nodosum

    My life with Erythema Nodosum My name is Rebecca Strecker and I have had a rare condition called Erythema Nodosum for the past 38 years. My first experience with EN came in the summer of 1968 when I was in my early 20’s. It started like a bad case of the flu and then I got...
    ENLady ENLady
    56-60, F
    2 Responses Apr 24, 2007

    My 3rd Bout of En

    My first experience with EN was when i was about 20, i had awoken in the mornning at my parents' house with very sore and warm legs.  Getting out of bed, I noticed the big red bumps.  I was quite nervous about this, so I was taken to emergency where I was...
    laurien laurien
    41-45, F
    2 Responses Aug 10, 2007

    My Erythema Nodosum Is Seasonal???

    Hello all, I am hoping for some EN advice, and let other sufferers hear my story. I am experiencing my 6th bout of Erythema nodosum. It is very seasonal- tends to occur in Spring every year. I twice had it in in October after visiting a warmer state. I feel prodromal joint...
    Ang2010 Ang2010
    31-35, F
    11 Responses Feb 28, 2010

    Teen Whit En

    Last year i went trought some difficult times. First a red spot appered in my left lef. It got bigger and bigger, very warm as well. I went to the hospital, the doctar didnt even look at it and said it was a soft tissue infection and send me off with some antibiotics. One week...
    Nesita15 Nesita15
    Jan 4, 2013

    I' M Pregnant And I Have Erythema Nodosum

    Hello, I'm 6 weeks pregnant and this terrible disease started again. I had it first when I was 13 years old, I was hospitalized for 8 month but it didn’t help and after a while it disappeared. It shoed up now when I’m pregnant , I’m really afraid if it will not affect my...
    laukine laukine
    3 Responses Dec 1, 2010

    10/30/12 I Suffer From En

    I just found out that I may have EN, very large red bumps on the lower part of my legs which are very painful. This is the 6th day of having it . Im in the process of going to the doctors now. It helps to know im not alone. I thought I was getting better at one point until the...
    LonyCatt LonyCatt
    1 Response Oct 30, 2012

    Anyone Have Any Tips On Beating The Fatigue/malaise That Goes With En?

    I was wondering if there is anyone out there with tips on managing the fatigue/malaise symptoms and if they've experienced them continuing way beyond the nodules showing and healing? Just to explain my experience with EN: I have been struggling a bit with it since March 2011...
    loz31 loz31
    6 Responses Jun 6, 2011

    Birth Control Started My EN

    About 3 months ago I started on birth control to try to regulate my cycles and to help with acne. A few days ago I was having chest pain, and spent all weekend in bed trying to figure out what was going on. Then I noticed a big, sore, red bump on my shin and a few tiny ones up my...
    Stormy95 Stormy95
    22-25, F
    1 Response Nov 7, 2013

    My Daughter Maisie

    my darling daughter is had en for 7 years and shes only 8 now, shes under great ormond st and we are no nearer finding out why my daughter keeps on getting en, i am at my witts end trying to find out ways of helping her, or to get the docs and meds right for her. en has taken...
    mrsc12008 mrsc12008
    2 Responses Jan 13, 2011

    Vit C! A Trigger!

    I think vit c is a trigger for EN,just a couple of days ago i take 1000mg vit C daily...and noticed my joints is aching and EN is back.this is my 3rd time to have it.i was always prescribed with prednisone,a steroid and effective to get rid of the pain and inflamation.tapered...
    Erythema Erythema
    36-40, F
    Nov 1, 2012

    Erythema Nodosum: My Differential Diagnosis

    I am 23 years old and will be graduating with my Doctor of Pharmacy degree in May. I had set my goal to complete a half marathon this fall. Two weeks ago I woke up with severe knee pain, I thought I had tweaked my knee and put some ice on it. Soon my wrists and ankles were...
    Lwsims Lwsims
    3 Responses Mar 4, 2013

    Lofgren'S Syndrome

    Hi there, I've got EN right now and it's a real hinderance. My EN is a symptom of Lofgren's Syndrome which I have...it's a type of Sarcoidosis. It was diagnosed after a CT scan that showed nodules in my lungs. The nodules on my shins and ankles have now lasted two weeks....but I...
    Jskoot Jskoot
    31-35, F
    Jun 8, 2013

    Bruises Left From Erythema Nodosum

    What are you'll using on your skin to clear up the dark bruises that are left behind?
    ella601 ella601
    2 Responses Jan 17, 2011
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