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I Have Had Erythema Nodosum

Personal Stories, Advice, and Support 112 People

    Erythema Nodusum - I too have recently been diagnosed with this condition, my consultant has been doing several tests but as yet to find a cause. I feel all alone and the pain in...
    bikerchick09 bikerchick09 41-45, F 1 Response Oct 25, 2013

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    After Scarlet Fever... - Developed EN after a very bad scarlet fever (brought on by strep) about a year and a half ago. I hate it so much! My legs look like someone has been...
    nita999 nita999 26-30, F May 13, 2011

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    A Cure! - I have had Erythema Nodosum on and off since I was 14, I am now 22. I have had some very painful and umcomfortable times with this and at one stage they literally...
    jj26 jj26 22-25, F 2 Responses Sep 1, 2009

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    10/30/12 I Suffer From En - I just found out that I may have EN, very large red bumps on the lower part of my legs which are very painful. This is the 6th day of having it . Im in...
    LonyCatt LonyCatt 36-40 1 Response Oct 30, 2012

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    My Erythema Nodosum Is Seasonal??? - Hello all, I am hoping for some EN advice, and let other sufferers hear my story. I am experiencing my 6th bout of Erythema nodosum. It...
    Ang2010 Ang2010 31-35, F 10 Responses Feb 28, 2010

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    The New Girl At En School - So about 7 weeks ago I had a sore throat and got over it. The next week I was great and went camping. Then I woke up that following morning with...
    pookieadams86 pookieadams86 22-25, F 2 Responses May 19, 2010

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    I Was My Physician's First Case Ever! - After having swollen areas on my shins for almost a half year I finally went to the physician.  I have a high tolerance to pain so they...
    nokidding nokidding 36-40 Sep 5, 2008

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    Just Been Diagnosed - I have had en for the last 3 weeks following a bad tonsilitus. I have a lump on each knee and a huge lump on my ankle. My knees ache badly most of the time...
    daniidodo daniidodo 26-30 Oct 17, 2012

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    My Daughter Maisie - my darling daughter is had en for 7 years and shes only 8 now, shes under great ormond st and we are no nearer finding out why my daughter keeps on getting en...
    mrsc12008 mrsc12008 36-40 2 Responses Jan 13, 2011

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    EN And What Offered Relief For Me - About 2 years ago I came down with Valley Fever (cocydiomycosis) and at the same time experienced about a 3 month episode of Erythema Nodosum...
    breathe1177 breathe1177 41-45, F Jun 15, 2013

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    Not Sure What To Do - I have been reading others stories and it helps me to know I am not the only one with EN. I am a male in my early 40s. I am a professional working in...
    DoctorEN DoctorEN 41-45, M 1 Response Oct 26, 2012

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    Bruises Left From Erythema Nodosum - What are you'll using on your skin to clear up the dark bruises that are left behind?
    ella601 ella601 26-30 2 Responses Jan 17, 2011

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    Now I Know! - The fever and chills came and joint pain unreal..then the painful bumps on my legs. Could hardly walk..trip to the Doc. positive for some autoimmune disease, then...
    rosie589 rosie589 51-55 Sep 24, 2011

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    Teen Whit En - Last year i went trought some difficult times. First a red spot appered in my left lef. It got bigger and bigger, very warm as well. I went to the hospital, the...
    Nesita15 Nesita15 18-21 Jan 4, 2013

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    EN Treatment - First, I should tell you that I am an otherwise healthy nineteen year old Caucasian female. One family member has been diagnosed with the condition before. I have no...
    cae787 cae787 18-21, F 2 Responses Aug 17, 2013

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    The Devil Has Infected Me - I just turned 20 and just got diagnosed with EN. I've had these lumps all over both of my legs for maybe three weeks now, with no sign of it getting...
    comfysofa comfysofa 18-21, F 1 Response Dec 21, 2012

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    Possible Relief! - Hi All, I believe that I have found something to help, it has been working for me for a month now and I hope it helps others too. My boyfriend took me to Cancun...
    jerseygirl415 jerseygirl415 46-50, F 3 Responses Sep 24, 2012

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    What In The World - I have been suffering from NE for about 5 months. The only thing that calms it is prendisone. At first I thought it would just go away, I was doing everything...
    Asaint2 Asaint2 26-30, F 1 Response Oct 7, 2012

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    Lofgren'S Syndrome - Hi there, I've got EN right now and it's a real hinderance. My EN is a symptom of Lofgren's Syndrome which I have...it's a type of Sarcoidosis. It was...
    Jskoot Jskoot 31-35, F Jun 8, 2013

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    20 Years Of Living With Erythema Nodosum And Avascular Necrosis - Many years ago when I would  wax my legs I noticed small red star like spots that would appear on the lower half...
    jhoppery jhoppery 46-50, F 3 Responses Feb 3, 2011

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    En Onset From Yaz And Now 15 Weeks Pregnant And It's Back - I first was diagnosed with EN in 2007. It soon became clear that the cause was Yaz (oral contraceptive). Once I...
    mdsuzuki mdsuzuki 26-30, F 3 Responses Dec 6, 2010

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    Erythema Nodosum - When You Have An Outbreak, What Do You Do To Get Through It? Help. - Since the last time I posted, my Erythema Nodosum has changed over and over again. ...
    janehasadd janehasadd 18-21, F 2 Responses May 16, 2010

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    EN and 30 Years of It Off and On - I, too, have had EN, and have on & off,now, for the past 30 years.  It started with my taking birth control pills, and continued to...
    gsagtrio gsagtrio 51-55 3 Responses Feb 28, 2008

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    I Have Had En Since 7th Grade. - When I was in 7th grade, running track, I started having severe pain in my shins and experienced a fever followed by an outbreak of hard, hot to...
    wadanne wadanne 22-25, F 2 Responses Oct 9, 2010

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    12 Years And Still Suffering - I got my first lump about 12 years ago. I went to my PCP at least 5 times over the course of the first year only to have him send me to an orthopedic...
    elisabeus elisabeus 41-45 1 Response Mar 25, 2013

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    I Think I Have E.n. - Hi.  I recently developed somewhat painful red nodules (that, at times, itch) on my lower legs.  I believe it is E.N., though I have not had a...
    msuzanne msuzanne 46-50, F 1 Response May 28, 2007

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    Abroad With Erythema Nodosum - Hi, Thank you very much in advance for taking the time to read this long (desperate) post! I'm an international student in Japan and got EN while my...
    Norapk Norapk 22-25 1 Response Apr 9, 2013

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    Like A Spell Out Of Harry Potter "erythema Nodosum" - September 14, 2012 Well life is quick to change and for months I have been tired and sometimes a little sick. Then one night...
    desmed desmed 46-50 3 Responses Sep 23, 2012

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    This Is One Scary And Potentially Life Changing Diagnosis!!!! - I was recently diagnosed with probable erythema nodosum/multiforme. I am still seeing various specialists trying to...
    bumble123 bumble123 31-35, F 2 Responses Jan 12, 2012

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    I Felt Like I Was On An Episode of House! - I decided on a whim to get my tongue peirced a year ago and i loved it, i still love it but after a couple of months i found a small...
    kikiatari kikiatari 19-21, F 5 Responses Apr 20, 2007

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    Newly Diagnosed - I have had strange knots covering my shins for about 4-6 months now. They're so extremely painful, yet no doctor could diagnose me. I had multiple tests and...
    1 Response Jan 9, 2013

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    My Life With Erythema Nodosum - My life with Erythema Nodosum My name is Rebecca Strecker and I have had a rare condition called Erythema Nodosum for the past 38 years. My first...
    ENLady ENLady 56-60, F 2 Responses Apr 24, 2007

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    Living With Pain From En - I was diagnosed with EN almost 5 years ago. I have tried everything. I am currently taking minocycline . Nothing seems to work there are days I feel like...
    painy painy 46-50 2 Responses May 24, 2011

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    Erythma Nodosum - hello all. i am worried n scare of en.2 year ago i seen lump on my leg its very painful and en comes again and again never left i use imuran pill its work in this...
    saima24 saima24 26-30 May 22, 2013

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    I Had No Idea - Hi, my name is Noelle and I'm 46 years old. I have been living with Crohn's disease for almost 20 years now. It took 7 years to find a doctor that cared enough to...
    jerseygirl415 jerseygirl415 46-50, F 2 Responses Aug 29, 2012

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    I Hate Not Being Able to Fit Into My Shoes! Dang It! - I have had EN. I developed a lump on the back of my leg and thought I had pulled a muscle 1week after quitting cigarettes...
    volvoham volvoham 21-25, F Nov 13, 2007

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    Having EN is an experience that I do not want to re-live again. I cannot count the number of times that I cried in despair because of this. Aside from having very painful and...
    anya1988 anya1988 22-25 Mar 31

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    En: Evil Nastiness - It ALL started about three weeks ago, I was at work and felt sore in the exact same spot on each of my shins. It felt as if I had walked into a coffee table...
    amdc64 amdc64 18-21, F 2 Responses Jan 17, 2013

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    Six days ago, I had one bump on my left calf. The next day I had 4 there. The next day it spread my my right calf and up my legs to my hips and hamstrings. Now they are popping up...
    Charlieraenc Charlieraenc 18-21, F Mar 13

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    Erythema Nodosum? - I'm 38 years old and it looks like I, too, have erythema nodosum. It started about 7 weeks ago, I noticed this lumpy looking thing on my shin but it didn't...
    justjessiemom justjessiemom 36-40 1 Response Oct 28, 2012

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    Nodosum Erythema Victim - Here's a story that i wrote about 1.5 years ago. Back then i thought the attack was caused by antibiotics. Now im thinking its the birth control!!! Hello...
    batmannu batmannu 26-30, F Jul 7, 2012

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    Oh The Pain! - I first started getting these lumps on my legs when I was 16, I'm now 27 and am in the midst of the worst occurance of the disease I have ever had. My doctors...
    ea83 ea83 26-30 2 Responses Aug 31, 2010

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    Anyone Have Any Tips On Beating The Fatigue/malaise That Goes With En? - I was wondering if there is anyone out there with tips on managing the fatigue/malaise symptoms and if they...
    loz31 loz31 31-35 6 Responses Jun 6, 2011

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    Vit C! A Trigger! - I think vit c is a trigger for EN,just a couple of days ago i take 1000mg vit C daily...and noticed my joints is aching and EN is back.this is my 3rd time to...
    Erythema Erythema 36-40, F Nov 1, 2012

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    Newly Diagnosed! Confused =( - I noticed one lump in my left shin about 3 to 3 1/2 months ago and for about 2 or three weeks after noticing I finally went to the doctor. For a...
    chelseazink69 chelseazink69 18-21, F 1 Response Aug 1, 2013

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    Erythema Nodosum Is No Joke. - My name is Samantha and I am currently 21, going on 22.  I first experienced Erythema Nodosum about one year ago.  I developed a large...
    janehasadd janehasadd 18-21, F 16 Responses Apr 24, 2010

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    EN Since I Was 12 Years Old - I have had chronic EN since I was 12 years old I'm now 18 and I am still suffering with it. chronic means that I have lots of flare ups and they last...
    nicki210 nicki210 18-21, F Oct 25, 2013

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    Birth Control Started My EN - About 3 months ago I started on birth control to try to regulate my cycles and to help with acne. A few days ago I was having chest pain, and spent...
    Stormy95 Stormy95 18-21, F 1 Response Nov 7, 2013

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    New To En, Not Liking This Already - About 6 weeks ago I had a lump on my leg, not painful or red, just firm. I thought it was an insect bite, after 4 weeks of it not having gone...
    Jfh10 Jfh10 18-21 3 Responses Aug 7, 2011

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    I' M Pregnant And I Have Erythema Nodosum - Hello, I'm 6 weeks pregnant and this terrible disease started again. I had it first when I was 13 years old, I was hospitalized for 8...
    laukine laukine 26-30 3 Responses Dec 1, 2010

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    Update - I Just wanted to give a short update and possible relief for everyone! One of the ladies on here had a post and recommended the salts bath. I did one soak didn't seem to...
    LilLadyBugEN LilLadyBugEN 36-40 1 Response Mar 16, 2013

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    Had It Since I Was 6 - When i was 6 years old i noticed i had started getting red bumps on my legs, not just the lower part but on my thighs too. it was a hot summer day i had no...
    MikalaStarr MikalaStarr 18-21, F 2 Responses Apr 20, 2010

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