I Have Had Scoliosis Surgery

Personal Stories, Advice, and Support 211 People

    Need Some Advice On Spinal Fusion!

    So my story is that it was discovered that I had scoliosis at the age of 9. I wore a back brace for 3 years (23 hours a day) but my case was too severe to even be stopped. My curve is a S curve, and my spine itself is very twisted. When I was 12, in 2000, I had a surgery with 2...
    Siobhan1 Siobhan1
    Mar 31, 2013

    My whole story. start to finish, surgery finally over.

    My name is Allison. I am 17 years old, turning 18 in June, 2011. My first consult with a scoliosis surgeon is tomorrow and I am so excited. My story goes like this: When I was 13 and in the 8th grade, my friend said that her doctor thought she had scoliosis. So as a playful...
    almariemc almariemc
    18-21, F
    6 Responses Dec 26, 2010

    My Surgery Went Wrong

    My surgery went wrong and i became a incomplete tetraplegic (spinal cord injury)  
    nice99 nice99
    18-21, F
    6 Responses Jan 28, 2009

    Scoliosis Surgery

    I had my Scoliosis Surgery at Stanmore Hospital (Royal Orthopedic Hospital) and I wasnt nervous at all (apart from when I had a blood test I hate them) but I am so glad that I had it done I feel more happier to wear dresses before i was very Self Concious of my back I was so...
    DingBatTheTINY DingBatTheTINY
    13-15, F
    6 Responses Sep 3, 2012

    Chronic Pain. Five Years After.

    its already been five years since i had my back fused from C4 to L2 the two rods are 13 inches and corrected my 73* curve to a 27* curve. BUT now i have unbearable chronic back pain ever since. I am at a complete lose. Every six months or so i have acute episodes that end up...
    leahdudd leahdudd
    22-25, F
    3 Responses Nov 4, 2013

    My doctor didn't catch my scoliosis till it was

    way to late in the past 2 years the pain caused me to go over bored, no one believed how bad it was getting. When I was in rehab I realized the source of my addiction started with pills for the pain 2 months before my surgery my top curve went from 51 to 60 and my bottom curve...
    lovelypoison44 lovelypoison44
    18-21, F
    Oct 3, 2014

    From The Time I Was Little

    From the time I was about 2 my mom always told me i had a tilt. As i got older I noticed that my shoulders were uneven and clothes didnt fit right and my back actually hurt all the time. I finally was 11 and I found out my scoliosis was worse then I thought. My mom found a...
    Kellynn88 Kellynn88
    22-25, F
    Oct 7, 2012

    I had scoliosis surgery in the summer of 2011

    and was wondering if anyone has had the same experience and is a tenpin bowler? Never found anyone in the same situation and would be lovely to find someone:)
    amylou300 amylou300
    18-21, F
    Feb 27, 2014

    Crooked Like Me

    Walking on the beach holding my boyfriends hand in mid-summer, the last thing on my mind is my sizely scar along my spine. Well, it was until a small, smiling blonde girl points up at me from her sand castle and says "MOOOMMMYY, loook at this ladies scar!! omgsh, thats a REALLY...
    Delayhna Delayhna
    22-25, F
    3 Responses Oct 10, 2011

    My Story(anterior Spinal Fusion)

    I'm 18 now but I got my surgery when I was 14. I had two curves (s shaped) the top being about 45 degrees and the lower around 58 degrees. I only had to get surgery on the lower part. So instead of making an incision along my spine, they went into my side (at an angle) below my...
    emiloowho emiloowho
    18-21, F
    2 Responses Jul 20, 2011

    So, I am really wanting to shed a few pounds

    but anytime I try to exercise my hip hurts me so bad! I don't know why it does my doctor says that it is a side affect of my surgery (I have 2 rods, 13 screws and 15 vertebrae fused; also I am 16). I was just wondering if any of you all have had or do have a similar bump in the...
    USNGsmith USNGsmith
    18-21, F
    3 Responses Dec 10, 2013

    I found out I had scoliosis

    when I was 11 years old, my curve was too serious to be fixed with a brace so my family opted for the surgery when I was 12. Since I was a child when I had my surgery, I had it done at the Shriners hospital for children, it didn't cost my family a penny. Today I am 20 years old...
    elliehill33 elliehill33
    22-25, F
    3 Responses Apr 7, 2014

    Scoliosis Surgery - 9 Months Ago. (australia).

    Hi. :) I had the surgery from T5 to L2 around nine months ago. It was spotted by my mum around three years ago because I walked weirdly. When I first got my spine x-rayed, the doctor thought nothing was wrong with my spine (Only a 10 degree bend) and sent me to a hip specialist...
    Tasser194 Tasser194
    2 Responses Jul 27, 2012

    My Operation Went Wrong

    I would like to find other people who also had their operation go wrong. My aftercare was bad as a physio sat me up in bed the morning after the operation and then i became paralysed from the chest down. Im an incomplete tertraplegic and wheelchair bound. My life has completely...
    nightx nightx
    18-21, F
    23 Responses May 15, 2010

    The Best Surgery I Ever Had!

    I was actually born with scoliosis - an S curve - and it wasn't really bothered with until I was 11 years old.  I also have brittle bone disease (Osteogenesis Imperfecta Types III/IV) so the fractures and corrective procedures were priority one until I came out of a double...
    kyyorkiemom kyyorkiemom
    41-45, F
    3 Responses Jan 19, 2009

    Was It Worth It?

    I had scoliosis surgery from T1-L2 to correct my curvature of 48 degrees two years ago.  I only had lower back pain before, and that was the only part they didn't perform surgery on.  Now I have pain throughout my entire back.  Its definitely not severe pain...
    lotusblossom321 lotusblossom321
    18-21, F
    16 Responses Jan 7, 2008

    How I Became No Longer Twisted

    On April 12 and 14, I underwent 2 surgeries that fused my back from T4 to S1 and had rods and screws inserted to straighten my back. I was diagnosed at the age of 15 with 30-ish degree lumbar scoliosis. No bracing or surgery was tried because they said I wouldn't get worse.  I...
    caullerm caullerm
    51-55, F
    6 Responses Jul 9, 2011

    Broken Rods After Scoliosis Surgery

    I had surgery on my back 8 years ago now and had two rods put in for the scoliosis surgery. 11 months ago I broke one of the rods that is by my right shoulder blade and it ended up fracturing my spine. The doctors all told me that there was nothing they could do to help me out...
    PrincessKisses23 PrincessKisses23
    4 Responses Jan 4, 2013

    My Scoliosis Surgery

    when I was 11 years old, at my pediatric check up, My physician discovered that I had scoliosis. I was really confused and scared because I knew nothing about the back deformity. we went to get x rays and then I was prescribed a charleston night brace. I wore that from October...
    livvyd123 livvyd123
    18-21, F
    Nov 17, 2013

    What Will I Be Facing Post-Op.?

    I read about the women who was 60 or so and had scoliosis surgery. I wanted to find out how older women have recovered from surgery. Anyone out there with autoimmune disease going into scoliosis surgery and were there complications. I'm 65 with a 60 degree curve which came on...
    desertrose65 desertrose65
    66-70, F
    2 Responses May 25, 2013

    My Surgery At Age 10

    I had surgery at age ten..... Before, it hurt so bad i could barely walk. My spine was pressed up against my heart and lungs which caused problems too. If you need the surgery, do it now to save your self pain!
    898bla4545 898bla4545
    Feb 9, 2013

    I was 15 when I had scoliosis surgery.

    My spine was at an 85% curve and wasn't detected for many years. It was so bad I had to have brain surgery first for a shunt so it would drain properly. It's been a challenge but if I hadn't had it I would be in a wheelchair now! I have two rods from the very top of my spine all...
    XoXoJeSsA XoXoJeSsA
    26-30, F
    2 Responses Apr 21, 2015

    Hi everyone! I'm sixteen

    and I have to have scoliosis surgery in the next 13 months. I just have a few inquiries since I'm a little worried. My curve is a thoracic-lumbar curve (leaning more towards the lumbar region) and it's 45 degrees. My first question is will I be able to ride a roller coaster ever...
    ilovetodreamx ilovetodreamx
    18-21, F
    1 Response Nov 4, 2014

    This is my full account of my experience with

    scoliosis. I’ll first give a brief outline of my condition and when and how I found out that I had it. When I was around fourteen years old I went to my GP to ask about some skin rash or other minor ailment (I can’t quite remember what) and just before leaving I mentioned...
    archieclarke archieclarke
    22-25, M
    Mar 4, 2014


    !! I NEED ADVICE PLEASE!!!! Hi! I'm 29 years old and I was diagnosed with scoliosis when I was a teenager. I went to so many chiropractors and doctors and most of them recommended I have surgery. As I got older I knew I needed the surgery. I recently went to a specialist and the...
    italianagirl italianagirl
    31-35, F
    3 Responses Jan 18, 2014

    Broken Harrington Rods

    In 1984, i had correctional surgery and had 2 Harrington Rods put in. I had 6 months in plaster cast and then 6 months in a plastic cast. By the end of that time both rods had broken and some of the fusions had fractured. I had the rods removed in 1989 and went on to lead a...
    traci1969 traci1969
    46-50, F
    1 Response Aug 27, 2013

    I'Ve Had Scoliosis Surgery - And I Feel Amazing Now!

    Hi my name is Jess. I had scoliosis surgery last year (2012) in October when I was 12. I am now 13. I thought I'd share my story to try and help people going through the same experience. I found out I had scoliosis at 7 but it wasn't bad at all. Over the last few years, it...
    jessl55 jessl55
    16-17, F
    5 Responses Jun 7, 2013

    My Scoliosis Surgery

    I had scoliosis surgery 2 weeks ago and my back hurts so bad. Just wanted to connect with others who had this surgery and see how they made it through and what kind of things helped them the most. I had a really long spinal fusion because of my double curve so my incision goes...
    jennoklahoma jennoklahoma
    22-25, F
    3 Responses Sep 10, 2013

    Ok so I had my surgery three years ago.

    The infusion is from T2 to L4, if you're not sure what that means, my spine was shaped like an S and the bars are all the way down my back. They left movement for my hips and lower back, but it is now causing horrible hip and back pain. I was so sure that I wanted this surgery...
    gypsyroad33 gypsyroad33
    22-25, F
    1 Response Feb 5, 2014

    Ten years ago I had scoliosis surgery,

    About 7 hours after the surgery I couldnt move/feel my right side and my left side was very weak. They were not sure what happened, but decided to move the rods (it was really weird that my arms were paralyzed because they did not operate on the cervical spine, however, they...
    Coconn0903 Coconn0903
    26-30, F
    Jan 12, 2016


    I was diagnosed with scoliosis when I was 11. I had surgery when I was 13. They cut 18 inches down my back to put in my two 18 inch rods. I have a short torso already, so basically my entire back is taken up by my scar. I fear the summer when everyone wears swimsuits and tank...
    18-21, F
    9 Responses Oct 1, 2012

    Have Hope.

    The intention of writing this is to bring hope. I wish the best to all of those who read this. We all are on different paths of a similar journey. Stay strong. Stay positive. Love yourself for wanting to help yourself, you are all beautiful people. I had surgery about 7 years...
    anothersoul03 anothersoul03
    26-30, F
    May 9, 2013

    Full Spinal Fusion

    I had a full spinal fusion at the age of 11. I had been complaining of some back pain for a few months, but we never thought much of it, just bad posture. Then one day, my mom noticed that I had developed a sort of lump on my right shoulder. I went to my family doctor and he...
    aglossen aglossen
    22-25, F
    1 Response Apr 24, 2013

    Getting Ready To Have Surgery On Feb. 15th 2013

    Hi , I am very scared and nervous about the upcoming surgery. My surgeon said he will go in just below the shoulder blades...(lined up to spine of course) and down the to sacrum and do caging on that area. I am sorry i am not well versed in the technical terminology. But I have...
    wrkwrkwrk wrkwrkwrk
    4 Responses Jan 28, 2013

    Scoliosis Surgery

    I found out I had scoliosis when I was 12,I started seeing doctors and they told me I needed to get a brace for day and sleeping.I got the brace but I never wore it.i was so embarrassed! it was really bad,i wouldnt wear tight shirts,in the summer I would wear jackets.so I didnt...
    aprilhogan15 aprilhogan15
    4 Responses Jun 7, 2013

    I Will Never Be The Same =;(

    It's... almost like I laid on that hostpital bed as Me.. and woke up Me, but yet different. I had my sugery in 2007 I think it was.. I was happy, well I was happier then I am now before my sugery (I got screws in my back).. I had low self-asteem and other common issues; issues...
    1 Response Dec 14, 2012

    For everyone that has rods in their back,

    do you guys ever have your necks get really tight and sore? Mine gets so bad that I can hardly move my neck and it gives me really back headaches.. If you have, have you found anything that helps it?
    bean97 bean97
    18-21, F
    Dec 5, 2015

    Falling Over After 4 Months Of Recovery.

    Hi just wondering, before my surgery. i sometimes had numbness in my legs. After 3 months of surgery i had no numbness until a few days ago when i walked my dog and slipped on a wet rock and landed on my bottom. Now i have numbness on my left leg again whenever i stand up for...
    Jun 23, 2013


    Boy!  I can tell you about pain.  That hurts.  I had no doctors who knew about this and most did not care if I did hurt.  I started having pain so badly when I was 18, I could barely walk.  The pain would go and come, but when I had it, I could take 8-9 Ibuprofen and feel no...
    Barbara726 Barbara726
    56-60, F
    4 Responses Mar 8, 2011

    I myself have had kyphosis scoliosis

    and also had the surgery two years ago, for my sixth form media documentary I would like to have scoliosis as the topic. I need some people from the Durham/Newcastle area who have had scoliosis surgery and people who still currently have scoliosis to feature, I'm new to this so...
    kirstyhamilton97 kirstyhamilton97
    18-21, F
    Jun 12, 2014

    Scoliosis Surgery 2 Years Ago

    I had scoliosis surgery 2 years ago when I was 12. My curve was around 65 degrees and I was so self conscious of myself and my confident levels went from bad to worse. But then I went to a RNOH (Royal national orthopedic Hospital) in Stanmore and got told i needed two part...
    DingBatTheTINY DingBatTheTINY
    13-15, F
    3 Responses Jun 26, 2013

    A Month Into Recovery

    I just had a spinal fusion from T12 to T2 and man was it a crazy experience. When I found out my scoliosis had worsened to 62 degree and surgery was my only option I sorta felt nothing. I had very little nerves and up until the day did it hit me what was happening. The surgery...
    Paige133 Paige133
    18-21, F
    2 Responses Feb 13, 2013

    Mental Impasse/Phisically No Other Way To Go.

    I have DDD as well as scoliosis and a spinal stimulator implanted. All of my pain treatment options are just about maxed out and I can't go much longer. The scoliosis surgeon wants to break my back in a couple of places and add new discs and so forth and I am terrified. I...
    jejones jejones
    56-60, F
    3 Responses Oct 16, 2013

    Life Post Surgery

    I found out about my scoliosis and had the surgery after a year. I was a 46 degree curve in the upper part of my spine, and a small curve on my lower spine creating the S shape. The surgery was pretty painful. It went really well, no blood transfers, and they didn't have to give...
    Miwah Miwah
    18-21, F
    1 Response Aug 25, 2013

    Still Suffering

    Hi, Im 22 yrs old and I had scoliosis surgery when I was 12.  I had a very large cuve in the top of my spine and also in the bottom.  I had a total of 13 surgerys starting at age 12 and ending at age 16.  It was all due to the fact that my rods were...
    Manda22 Manda22
    22-25, F
    9 Responses Oct 21, 2009

    My Scoliosis Surgery

    I am 14 years old and i had scoliosis surgery on the 15th of july. During that time I really didn't want surgery because of all the pain i would have to face and all the precautions (paralysis etc). Luckily everything went according to plan but the pain lasted quite long after...
    archy05 archy05
    18-21, F
    2 Responses Sep 20, 2013
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