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I Have Hashimoto's Thyroiditis

Personal Stories, Advice, and Support 888 People

    My Story With My Hashimotos Thyroiditis

    You know.. as I am writing this, I remember. I think back to when the signs first started appearing. I remember loosing the person I once was. I remember hiding in my closet with a blanket and a pillow because I felt like an emotional wreck, I just wanted some privacy. I remember...
    emilynn emilynn 16-17, F 2 Responses Oct 20, 2010

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    MarvelBabe MarvelBabe 13-15, F 1 Response Aug 2, 2014

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    Anyone else hashimotos symptomatic

    but normal thyroid levels? If so what symptoms? I have brain fog, confusion, memory issues, tingling head, some sleeping issues, what seems like anxiety that comes and goes suddenly.
    CoachDanny CoachDanny 41-45, M 2 Responses Jul 16, 2014

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    Anybody else agree with this?

    😔 Hi. My name is Hashimoto’s. I’m an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now velcroed to you for life. If you have hypothyroidism, you probably have me. I am the number one cause of it in the U.S. and many...
    sarahglass sarahglass 18-21, F 12 Responses Jul 22, 2014

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    I'm 28 and I was recently diagnosed with

    Hashimotos. I was having menstrual periods every day for a year straight with no breaks. I have always been very cold and struggled with depression/anxiety issues. My TPO AB value was 945 and TSH value 21.53. I'm currently taking Levothyroxine 125 MCG and seeing how that's...
    Ashlization85 Ashlization85 26-30, F 3 Responses Feb 18, 2014

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    Starting NDT - Armour

    Well, I have another story in this group (http://www.experienceproject.com/stories/Have-Hashimotos-Thyroiditis/2364841), but it's really long and I didn't want to make it longer by writing about my NDT journey. I was on synthetic T4 for a long time, and recently got my endo to...
    RoseTears RoseTears 26-30, F 3 Responses Aug 31, 2012

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    So I went to my gynecologist,

    and ended up being tested for my irregular menstrual cycle. They found some issues with my thyroid, and told me to get it checked out with my primary care physician. Primary care physician told me, based on the levels of hormones, that I have Hashimoto's, but it wasn't going to...
    PerspectiveDetective PerspectiveDetective 22-25, F 2 Responses Sep 20, 2014

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    I Want This To End :(

    im 17 and was just diagnosed with hashimotos thyroiditis today. i cant even tell you how long ive known that SOMETHING was wrong. doctors wouldn't listen teachers think im irresponsible and lazy im ALWAYS sick and my horrible grades are proof of that. it especially sucks because...
    fannnypak fannnypak 16-17, F 17 Responses Jun 10, 2010

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    8 Year Journey To A Diagnosis Of Hashimoto's...

    Not sure where to begin.  It's been a long 8 years!  I am sharing this story to educate and hopefully help others.  I would never wish anyone to go through so many years of feeling horrible day after day. After the birth of my daughter in 2003 I never felt the same.  I could...
    hashimommy hashimommy 41-45 5 Responses Mar 31, 2011

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    The Silent Dance

    Twenty years ago my heart began to race and I gained twenty pounds in a month.  I was tired and I just didn't feel well.  I went to the doctor and they ran various tests and put me on beta blockers to help with my palpitations.  Soon after they found a lump on my...
    katiedidit katiedidit 46-50, F 10 Responses Jan 8, 2010

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    New Meds Can Be Frustrating...

    If you have read my first story "Finally Understanding" then this is for those of you who have the what-happens-next fever...if not, you might want to peruse it to get a better understanding of the experience as a whole. Or just enjoy come what may. I have tried to be diligent...
    spunkychocolatte spunkychocolatte 22-25 4 Responses Mar 31, 2011

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    I was diagnosed with Hashimotos

    when I was in the seventh grade and I've been miserable ever since. I am currently a freshman in college and weigh roughly 270 lbs. At this point, I believe I am just hypothyroid. I started at 88 mcg synthroid I believe and am currently at 175 mcg. My endocrinologist has stopped...
    kmarieh32 kmarieh32 18-21, F 1 Response May 2

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    I'm a mom of two and had the same diagnoses

    after delivering my son. I suffered tremendous ppd after I stopped breastfeeding him at 6 months. I was diagnosed hashimotos on the hypo side started med and one month later was hyper. Now one of my eyes is bulging. I still suffer a lot of depression. I was energetic and a very...
    tarapayne tarapayne 31-35, F 2 Responses May 23, 2014

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    I was diagnosed one year ago in November

    and have been taking my meds ever since. Feeling psyched as I finally managed to lose some weight, which had been impossible before. I lost 3 kilos (down to 55 kg) and feel much better about myself. I have more energy too. Hair and nails still crappy though and I still get a...
    yellowtrees yellowtrees 26-30, F Oct 16, 2014

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    I was diagnosed with Hashimoto's March 2015.

    My identical twin was diagnosed 20 years ago. She can’t remember her exact symptoms that led to her diagnosis after two years and multiple tests. My diagnosis came after my trip to urgent care for tachycardia. I was sent for a head and neck MRI due to the headaches which...
    MinnieT MinnieT 36-40, F 2 Responses 6 days ago

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    I have been diagnosed

    but just started taking meds Levothyroxine 25mg. Can someone tell me what I need to know and what I need to do to feel better from the symptoms. And the do's and Don'ts. Thanks in advance.
    paulina21 paulina21 31-35, F 1 Response Jan 11

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    I Ran, I Ran So Far Away

    Being dead would be so much easier than the depression, the constant fear, the non-stop crying. I was disappointed in myself. I was a failure. There was so much I could be and yet I was reduced to a puddle of crying mucus. Feeling sorry for myself. Feeling like at any moment my...
    NotFunAnymore NotFunAnymore 22-25, F 4 Responses Nov 19, 2012

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    Hi! I have had Hashimoto's

    for about 4 years now. I started on 75 mg of levy and went up to 125 mg (150mg) when I was preggo. I just started real synthroid this week. I'm always tired, have a small goiter, foggy... Blah blah blah we all have these symptoms. Anyway I'm looking to chat!
    Immabe82 Immabe82 31-35, F 2 Responses May 2, 2014

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    Endos and Doctors and Hashi's--Oh My!

    "You're TSH is normal." "This is part of getting older." "You're thyroid is your excuse for everything." "You were fine yesterday." "You have to call in sick again!?" "You need to exercise more." "You need antidepressants." "Just keep dieting." "It's just a senior...
    thebutterflyeffect thebutterflyeffect 26-30, F 33 Responses May 9, 2010

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    Struggling With Hashimoto's, But Never Giving Up

    My story starts like most of yours. I was starting to feel very bad all of a sudden without being aware that I have a medical condition. I was doing a daily workout that had a high level of difficulty so I started o feel shortness of breath. After a few weeks I stopped it because...
    kristen78 kristen78 26-30 Jan 17, 2013

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    I've just started training full time at a

    circus school in Australia (NICA), and am struggling every day to keep up and to not feel sick. Almost every day I have to sit down for a little while until the nausea subsides, and last week I almost fainted twice. Today, I had to lay down during my dance class and resist the...
    krazykrazne krazykrazne 22-25, F Feb 18

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    Hi, I'm Casie. 28 years old.

    I was just diagnosed with Hashimoto's last Thursday. I've had hypothyroidism since I was probably 17-18 years old. I'm terrified. I feel so lost. Any advice would be appreciated.
    deleted deleted 26-30 9 Responses May 21, 2014

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    I was just diagnosed with Hashimoto's

    and hypothyroidism this month after many years of symptoms. I wonder if I'll ever feel like I have control of my body again. It has made me so incredibly self-conscious because of the way it's dried out my hair, caused acne, and made me put on the pounds. I'm only taking 50 mcg...
    ambiblue ambiblue 22-25, F 5 days ago

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    I Have Hashimoto's And I Think I Am Dealing With Hashitoximosis

    I was dxd over 2 years ago as hypothyroid.  It all started when I became anemic and I was so tired, so I made an appt. and was prescribed iron and low dose synthroid  at 0.025 mcg.  I was skeptical about taking my thyroid meds because I was warned by my...
    noahbear noahbear 36-40 4 Responses Nov 18, 2010

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    Im to Young to Be Sick

                When i was 11 i went to the doctors for the common cold, in the process my doctor said that i had an enlarged thyroid, he sent me to the lab for a simple blood test, two days later i got a call from a children's...
    charissajm charissajm 16-17 5 Responses Jul 27, 2008

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    That Explains Everything

    I was just diagnosed with this disease. I had gone on medication (wellbutrin) to treat severe clinical depression but the medicine stopped working the way it should even at a high dose. I was still tired and easily distracted and way too emotional. I figured the depression was...
    SunnysAlright SunnysAlright 26-30 6 Responses Apr 22, 2009

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    I work with endocrinology patients.

    This may help some of you, so I would like to put it out there.I would like to take a moment to share a new research article with you that highlights the connection between thyroid inflammation (autoimmune thyroid diseases like Hashimoto's Thyroiditis, Hypothyroidism, etc.) and...
    kmr9346 kmr9346 26-30, F Nov 19, 2014

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    I have known for 3 yrs

    that I have Hashimoto's but I believe I have had it for 25 yrs. It started during my 2nd pregnancy. My Dr over the years kept treating the symptoms with drugs. They never helped. My biggest problem has been insomnia. There have been many other difficulties, asthma, IBD...
    physio56 physio56 56-60, F Mar 1

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    Hashi Hell

    I was just diagnosed a few weeks ago with Hashimotos........and while I am not glad to have found out I have an autoimmune disorder, I am so thankful to have an explaination to all my symptoms.  The past 8 to 9 months I have had a roller coaster of doctors, meds, and just...
    beffur76 beffur76 31-35, F 27 Responses Apr 7, 2010

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    I have this horrible disease

    and I totally understand the symptoms very well. my question is, and this may sound morbid but how does a person die from this? I'm in great suffering and have been progressive downwards as shown in my never ending bad labs. My symptoms are becoming stronger and am now anemic...
    jamieannilyn jamieannilyn 36-40 7 Responses Sep 9, 2014

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    My First Ep Story .. Just Diagnosed With Hashimoto's Thyroiditis

    I have just been diagnosed with Hashimoto's Thyroiditis about two days ago. I came online to try and read about the disease since I am very unaware of what it is and I have noticed a lot of scary things, so I decided to join this support group since no one understands what I am...
    sissyskates sissyskates 18-21 6 Responses Nov 7, 2012

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    And I am so sick and tired of hearing my

    husband say "I understand BUTTTT." That means you do not understand. I am exhausted and in pain all of the time and I just wish it would stop. He lacks common empathy and thinks that just because he thinks something that he should automatically be able to say it without...
    pinkbunniegirl pinkbunniegirl 31-35, F 2 Responses Apr 29

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    Hashimotos Journey Of A Teenager .

    A countless number of headaches everyday, countless number of hours spent with a stabbing pain, a countless number of days where I can't get out of bed, a countless amount of money spent on energy drinks so I can move, a countless number of tardies to school, a countless number...
    guesswho143 guesswho143 13-15, F 4 Responses May 29, 2012

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    I'm 17 and i was diagnosed about a month ago.

    I'm not depressed or anything, but i'm losing lots of hair, and think i'm gaining weight. I'm so scared of what might happen to me, especially my beauty. I'm very beauty conscious, and this loss of hair and becoming fat, is frightening. And i also have a lot of confusion and...
    opiumm opiumm 16-17, F 1 Response Jun 21

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    New Here

    I am going to try and make this short, but I am 50, so I been around a while. I have had Hoshimotos for years, probably since my early teens.  I know this because I had a dang adams apple, as I am a female you'd think someone would have noticed.  It was big enough...
    hintoncd hintoncd 46-50, F 14 Responses Mar 21, 2010

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    Had it since fifth grade (10 years old).

    I remember when i went to science camp. I was the only kid who had to wake up early and go to the teachers room to take my medicine. While the other kids were still sleeping/hanging out/getting ready. They asked me where i was going. But i didnt tell them. Because they wouldve...
    ninjadentistinspace ninjadentistinspace 16-17, F Aug 20, 2014

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    I have been dealing with Hashimoto

    for 10 years since I was 20. I went 5 years with horrible symptoms and to multiple doctors before being diagnosed. I knew what I had from researching but doctors only look at numbers and not symptoms with this disease. I've been through 3 endo doctors and my current one is awful...
    Kristina1016 Kristina1016 31-35, F 4 Responses Jun 3, 2014

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    For years I have been told

    that I have depression and that I just have to do more things that make me happy. The more I fight the depression and introduce things into my life that I love the more ill I become. I want to give up. I can't even eat anymore even though I eat the 'right' things when I can...
    finaqi finaqi 41-45, F 4 Responses May 25, 2014

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    Could They Have Misdiagnosed Me With Hashimotos?

    I was having a physical checkup on May 2010 when the doctor noticed my throat was swollen and said that I probably have thyroid problems. They tested me and a few weeks later, I was diagnosed with Hashimotos. They did an antibody test and they did a hormone test. My TSH was 26. I...
    emilynn emilynn 16-17, F 3 Responses Jan 8, 2012

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    A couple of months ago I decided to take my

    thyroid med at bedtime instead of taking it in the morning. It was very difficult to wait half an hour to have breakfast as I don't have a lot of time in the morning, hence the change. Is there anyone else who takes their med at bedtime and is it working for you?
    yellowtrees yellowtrees 26-30, F 3 Responses May 7, 2014

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    I have been painfully tired

    for over two years now. I've been through all kinds of blood tests due to my symptoms and an MRI for headaches. I was just diagnosed with hypothyroidism cause by Hashimoto's just a few months ago. I started on a gluten free diet and tiny dose of Nature Throid. I have since had...
    cbreflect cbreflect 18-21, F 4 Responses Jun 20, 2014

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    Why Is It Always a Numbers Game?

    Monday I will be going to my third endocrinologist. I have a strange case where sometimes my thyroid levels will be excessively hypothyroid and at other times they're totally normal, for no particular reason. However, I'm constantly plagued with weight gain, PCOS...
    chirhi chirhi 26-30, F 5 Responses Aug 9, 2009

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    I'm 22 years old the mother of two

    and one on the way. for the past month i have been out of my doctors and endocrinologist whom thought i had hypothyroidism until i had an ultrasound done. But since my last son was born i havnt felt the same ive had terrible mood swings, my hair has been thinning, and my...
    jesskap jesskap 22-25, F 1 Response Feb 21

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    Hi, Im a 17 year old girl from Sweden.

    I go too high school (I think that's high school in your country). Since I'm from Sweden my English might be a little off, but i hope it's okay anyway. I got sent to a endocrinologist 5 months ago by the health care, or as we call it in Sweden vårdcentral. The health care had...
    AnnaMariaC AnnaMariaC 16-17, F 1 Response Mar 3

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    Long Strange Trip

    I have had something up with my thyroid for years. The doc found antibodies in my blood system and gave me a very low dose of levoxyl. Worked for five years. Then August 2007, I was diagnosed with hypothyroidism, and my dose was jacked to almost ten times the original amount...
    crimsoncat crimsoncat 41-45, F 1 Response Apr 23, 2008

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    My Hashimoto's Timeline

    My Hashimoto's Timeline2009 July- Started constantly spotting out of the blue. Started to suddenly lose weight without really doing anything differently. August- Constant spotting hadn't ceased; finally saw a doctor who prescribed birth control pills to be taken without break...
    Saelys Saelys 26-30 2 Responses Mar 1, 2012

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