I Have Hashimoto's Thyroiditis

Personal Stories, Advice, and Support 908 People

    8 Year Journey To A Diagnosis Of Hashimoto's...

    Not sure where to begin.  It's been a long 8 years!  I am sharing this story to educate and hopefully help others.  I would never wish anyone to go through so many years of feeling horrible day after day. After the birth of my daughter in 2003 I never felt the same.  I could...
    hashimommy hashimommy
    41-45
    5 Responses Mar 31, 2011

    I was diagnosed with Hashimoto's March 2015.

    My identical twin was diagnosed 20 years ago. She can’t remember her exact symptoms that led to her diagnosis after two years and multiple tests. My diagnosis came after my trip to urgent care for tachycardia. I was sent for a head and neck MRI due to the headaches which...
    MinnieT MinnieT
    36-40, F
    3 Responses Jun 24, 2015

    My Story With My Hashimotos Thyroiditis

    You know.. as I am writing this, I remember. I think back to when the signs first started appearing. I remember loosing the person I once was. I remember hiding in my closet with a blanket and a pillow because I felt like an emotional wreck, I just wanted some privacy. I remember...
    emilynn emilynn
    16-17, F
    2 Responses Oct 20, 2010

    I was diagnosed with Hashimotos

    when I was in the seventh grade and I've been miserable ever since. I am currently a freshman in college and weigh roughly 270 lbs. At this point, I believe I am just hypothyroid. I started at 88 mcg synthroid I believe and am currently at 175 mcg. My endocrinologist has stopped...
    kmarieh32 kmarieh32
    18-21, F
    1 Response May 2, 2015

    I'm 22 years old the mother of two

    and one on the way. for the past month i have been out of my doctors and endocrinologist whom thought i had hypothyroidism until i had an ultrasound done. But since my last son was born i havnt felt the same ive had terrible mood swings, my hair has been thinning, and my...
    jesskap jesskap
    22-25, F
    1 Response Feb 21, 2015

    I was diagnosed one year ago in November

    and have been taking my meds ever since. Feeling psyched as I finally managed to lose some weight, which had been impossible before. I lost 3 kilos (down to 55 kg) and feel much better about myself. I have more energy too. Hair and nails still crappy though and I still get a...
    yellowtrees yellowtrees
    26-30, F
    Oct 16, 2014

    The Curse of the Butterfly!

    Ah the thyroid - a part of my body I knew nothing really about until my body attacked it. I definitely took it for granted! In the spring of 2008 allergy season hit me with a bang. My seasonal allergies seemed to have a mind of their own that year - my body felt heavy, my...
    nomadjen nomadjen
    31-35
    11 Responses Aug 8, 2009

    I Ran, I Ran So Far Away

    Being dead would be so much easier than the depression, the constant fear, the non-stop crying. I was disappointed in myself. I was a failure. There was so much I could be and yet I was reduced to a puddle of crying mucus. Feeling sorry for myself. Feeling like at any moment my...
    NotFunAnymore NotFunAnymore
    22-25, F
    4 Responses Nov 19, 2012

    My doctor advised me to eat gluten-free,

    and I have been. I'm just wondering what type of symptoms other people get when they actually eat something with gluten. Thanks!
    deleted deleted
    26-30
    4 Responses Jul 10, 2014

    I work with endocrinology patients.

    This may help some of you, so I would like to put it out there.I would like to take a moment to share a new research article with you that highlights the connection between thyroid inflammation (autoimmune thyroid diseases like Hashimoto's Thyroiditis, Hypothyroidism, etc.) and...
    kmr9346 kmr9346
    26-30, F
    Nov 19, 2014

    Anyone else have increased anxiety

    when increasing Nature Throid, even though their blood levels indicate under active thyroid still? Hesitant to go back to synthroid as it made me slightly depressed but not sure what else to do
    longhorn12 longhorn12
    26-30, F
    4 Responses Mar 7, 2015

    Starting NDT - Armour

    Well, I have another story in this group (http://www.experienceproject.com/stories/Have-Hashimotos-Thyroiditis/2364841), but it's really long and I didn't want to make it longer by writing about my NDT journey. I was on synthetic T4 for a long time, and recently got my endo to...
    RoseTears RoseTears
    26-30, F
    3 Responses Aug 31, 2012

    I Want This To End :(

    im 17 and was just diagnosed with hashimotos thyroiditis today. i cant even tell you how long ive known that SOMETHING was wrong. doctors wouldn't listen teachers think im irresponsible and lazy im ALWAYS sick and my horrible grades are proof of that. it especially sucks because...
    fannnypak fannnypak
    16-17, F
    17 Responses Jun 10, 2010
    MarvelBabe MarvelBabe
    13-15, F
    1 Response Aug 2, 2014

    I'm 17 and i was diagnosed about a month ago.

    I'm not depressed or anything, but i'm losing lots of hair, and think i'm gaining weight. I'm so scared of what might happen to me, especially my beauty. I'm very beauty conscious, and this loss of hair and becoming fat, is frightening. And i also have a lot of confusion and...
    deleted deleted
    26-30
    2 Responses Jun 21, 2015

    I have been diagnosed

    but just started taking meds Levothyroxine 25mg. Can someone tell me what I need to know and what I need to do to feel better from the symptoms. And the do's and Don'ts. Thanks in advance.
    paulina21 paulina21
    31-35, F
    1 Response Jan 11, 2015

    I've just started training full time at a

    circus school in Australia (NICA), and am struggling every day to keep up and to not feel sick. Almost every day I have to sit down for a little while until the nausea subsides, and last week I almost fainted twice. Today, I had to lay down during my dance class and resist the...
    krazykrazne krazykrazne
    26-30, F
    Feb 18, 2015

    Finally Understanding

    Hello Everyone and Anyone who is reading my story. You can call me Cookie. I have recently been diagnosed with Hashimoto's Disease. Scary, isn't it? It is to me, all these symptoms, all the websites stating how it is incurable, and can lead to horrific medical problems if not...
    spunkychocolatte spunkychocolatte
    22-25
    5 Responses Mar 11, 2011

    Anyone have any advice

    for coping with the hot summer weather? I tolerate cold pretty well, but after being out in the sun for a little over 2 hours yesterday I had a horrible migraine and nausea to boot. I never liked summer weather even as a kid. Anyone else's air conditioner their best friend?
    BleuGardenia BleuGardenia
    26-30, F
    Jul 6, 2014

    My Thyroid's Turning Japanese...

    ...at least that's what I tell all my friends   Being in nursing school you tend to become a bit of a hypochondriac. Symptoms appear all too familiar and next thing you know, you're in the doctors being checked out for some obscure disease that only happens in the most...
    blinkiee182 blinkiee182
    31-35, F
    11 Responses Aug 13, 2008

    Hi, Im a 17 year old girl from Sweden.

    I go too high school (I think that's high school in your country). Since I'm from Sweden my English might be a little off, but i hope it's okay anyway. I got sent to a endocrinologist 5 months ago by the health care, or as we call it in Sweden vårdcentral. The health care had...
    AnnaMariaC AnnaMariaC
    18-21, F
    1 Response Mar 3, 2015

    I have been dealing with Hashimoto

    for 10 years since I was 20. I went 5 years with horrible symptoms and to multiple doctors before being diagnosed. I knew what I had from researching but doctors only look at numbers and not symptoms with this disease. I've been through 3 endo doctors and my current one is awful...
    Kristina1016 Kristina1016
    31-35, F
    4 Responses Jun 3, 2014

    I have known for 3 yrs

    that I have Hashimoto's but I believe I have had it for 25 yrs. It started during my 2nd pregnancy. My Dr over the years kept treating the symptoms with drugs. They never helped. My biggest problem has been insomnia. There have been many other difficulties, asthma, IBD...
    physio56 physio56
    56-60, F
    Mar 1, 2015

    For years I have been told

    that I have depression and that I just have to do more things that make me happy. The more I fight the depression and introduce things into my life that I love the more ill I become. I want to give up. I can't even eat anymore even though I eat the 'right' things when I can...
    finaqi finaqi
    41-45, F
    3 Responses May 25, 2014

    So I went to my gynecologist,

    and ended up being tested for my irregular menstrual cycle. They found some issues with my thyroid, and told me to get it checked out with my primary care physician. Primary care physician told me, based on the levels of hormones, that I have Hashimoto's, but it wasn't going to...
    PerspectiveDetective PerspectiveDetective
    26-30
    1 Response Sep 20, 2014

    The Silent Dance

    Twenty years ago my heart began to race and I gained twenty pounds in a month.  I was tired and I just didn't feel well.  I went to the doctor and they ran various tests and put me on beta blockers to help with my palpitations.  Soon after they found a lump on my...
    katiedidit katiedidit
    46-50, F
    10 Responses Jan 8, 2010

    I Have Hashimoto's And I Think I Am Dealing With Hashitoximosis

    I was dxd over 2 years ago as hypothyroid.  It all started when I became anemic and I was so tired, so I made an appt. and was prescribed iron and low dose synthroid  at 0.025 mcg.  I was skeptical about taking my thyroid meds because I was warned by my...
    noahbear noahbear
    36-40
    4 Responses Nov 18, 2010

    so on June 16th I started taking Accutane very

    powerful drug to try and get rid of some of these pretty prevalence scars on my cheeks and to also get my acne under control of course I started taking one pill a day have 40 milligrams for the first month everything was great my scars where fading pretty damn fast my...
    natecr natecr
    22-25, M
    1 Response Sep 9, 2015

    Anyone else hashimotos symptomatic

    but normal thyroid levels? If so what symptoms? I have brain fog, confusion, memory issues, tingling head, some sleeping issues, what seems like anxiety that comes and goes suddenly.
    CoachDanny CoachDanny
    41-45, M
    2 Responses Jul 16, 2014

    Endos and Doctors and Hashi's--Oh My!

    "You're TSH is normal." "This is part of getting older." "You're thyroid is your excuse for everything." "You were fine yesterday." "You have to call in sick again!?" "You need to exercise more." "You need antidepressants." "Just keep dieting." "It's just a senior moment...
    thebutterflyeffect thebutterflyeffect
    26-30, F
    36 Responses May 9, 2010

    I was just diagnosed with hashimoto's my TPO is

    3300 and my Tg was <5, does anyone else have these levels? I can never get warm and have a lot of joint pain. I don't do well in the heat and burn easily, does anyone else have these issues?
    Jung007 Jung007
    31-35, M
    1 Response Aug 21, 2014

    And I am so sick and tired of hearing my

    husband say "I understand BUTTTT." That means you do not understand. I am exhausted and in pain all of the time and I just wish it would stop. He lacks common empathy and thinks that just because he thinks something that he should automatically be able to say it without...
    pinkbunniegirl pinkbunniegirl
    31-35, F
    2 Responses Apr 29, 2015

    Could They Have Misdiagnosed Me With Hashimotos?

    I was having a physical checkup on May 2010 when the doctor noticed my throat was swollen and said that I probably have thyroid problems. They tested me and a few weeks later, I was diagnosed with Hashimotos. They did an antibody test and they did a hormone test. My TSH was 26. I...
    emilynn emilynn
    16-17, F
    3 Responses Jan 8, 2012

    I have this horrible disease

    and I totally understand the symptoms very well. my question is, and this may sound morbid but how does a person die from this? I'm in great suffering and have been progressive downwards as shown in my never ending bad labs. My symptoms are becoming stronger and am now anemic...
    jamieannilyn jamieannilyn
    36-40
    7 Responses Sep 9, 2014

    I was diagnosed four years ago,

    have been on synthroid, then Levothyroxine, then armour, and now WP Thyroid. I'm still tired all the time.
    jmfhokie jmfhokie
    26-30, F
    Jul 17, 2015

    Struggling With Hashimoto's, But Never Giving Up

    My story starts like most of yours. I was starting to feel very bad all of a sudden without being aware that I have a medical condition. I was doing a daily workout that had a high level of difficulty so I started o feel shortness of breath. After a few weeks I stopped it because...
    kristen78 kristen78
    26-30
    Jan 17, 2013

    Anybody else agree with this?

    😔 Hi. My name is Hashimoto’s. I’m an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now velcroed to you for life. If you have hypothyroidism, you probably have me. I am the number one cause of it in the U.S. and many...
    sarahglass sarahglass
    18-21, F
    12 Responses Jul 22, 2014

    I have been painfully tired

    for over two years now. I've been through all kinds of blood tests due to my symptoms and an MRI for headaches. I was just diagnosed with hypothyroidism cause by Hashimoto's just a few months ago. I started on a gluten free diet and tiny dose of Nature Throid. I have since had...
    cbreflect cbreflect
    18-21, F
    4 Responses Jun 20, 2014

    It's been 3 years and 7 months

    since I was diagnosed. I never realized that I would have to deal with something like this for the rest of my days. I always figured it would just go away one day.I have good days, I have bad days, I have terrible days and I have fantastic days. Sometimes, like today, I wonder...
    PittiesRule PittiesRule
    18-21, F
    1 Response Oct 21, 2015

    New Meds Can Be Frustrating...

    If you have read my first story "Finally Understanding" then this is for those of you who have the what-happens-next fever...if not, you might want to peruse it to get a better understanding of the experience as a whole. Or just enjoy come what may. I have tried to be diligent...
    spunkychocolatte spunkychocolatte
    22-25
    5 Responses Mar 31, 2011

    Last month, after a break up,

    moving and a promotion, I flared. My goiter was so big I couldn't talk. My joints were sore, I gained 10lbs of water weight... I also had the stomach from hell. My hormone replacement was at 50mcg... Now, it's at 175, and I am on 10mcg of cytomel a day. my thyroid basically...
    deleted deleted
    26-30
    1 Response Aug 21, 2015

    Hashimotos Journey Of A Teenager .

    A countless number of headaches everyday, countless number of hours spent with a stabbing pain, a countless number of days where I can't get out of bed, a countless amount of money spent on energy drinks so I can move, a countless number of tardies to school, a countless number...
    guesswho143 guesswho143
    13-15, F
    4 Responses May 29, 2012

    I'm 28 and I was recently diagnosed with

    Hashimotos. I was having menstrual periods every day for a year straight with no breaks. I have always been very cold and struggled with depression/anxiety issues. My TPO AB value was 945 and TSH value 21.53. I'm currently taking Levothyroxine 125 MCG and seeing how that's...
    Ashlization85 Ashlization85
    31-35, F
    4 Responses Feb 18, 2014

    Had it since fifth grade (10 years old).

    I remember when i went to science camp. I was the only kid who had to wake up early and go to the teachers room to take my medicine. While the other kids were still sleeping/hanging out/getting ready. They asked me where i was going. But i didnt tell them. Because they wouldve...
    ninjadentistinspace ninjadentistinspace
    18-21, F
    Aug 20, 2014

    I have so much ambition,

    yet so little energy to complete a task. I'm always so tired, or spaced out.
    deleted deleted
    26-30
    Aug 24, 2015

    My First Ep Story .. Just Diagnosed With Hashimoto's Thyroiditis

    I have just been diagnosed with Hashimoto's Thyroiditis about two days ago. I came online to try and read about the disease since I am very unaware of what it is and I have noticed a lot of scary things, so I decided to join this support group since no one understands what I am...
    sissyskates sissyskates
    18-21
    6 Responses Nov 7, 2012

    My Story of Hypo W/ Hashi's

    Hi everyone, Thought I would share my story in hopes of helping someone else or someone seeing something similar with my story and we could relate. After the birth of my 1st daughter in 2004 I was always very very tired.  She was about 9 months old and I was working full...
    MrsFroman MrsFroman
    31-35, F
    15 Responses Aug 12, 2009

    Hashi Hell

    I was just diagnosed a few weeks ago with Hashimotos........and while I am not glad to have found out I have an autoimmune disorder, I am so thankful to have an explaination to all my symptoms.  The past 8 to 9 months I have had a roller coaster of doctors, meds, and just...
    beffur76 beffur76
    31-35, F
    27 Responses Apr 7, 2010

    I was just diagnosed with Hashimoto's

    and hypothyroidism this month after many years of symptoms. I wonder if I'll ever feel like I have control of my body again. It has made me so incredibly self-conscious because of the way it's dried out my hair, caused acne, and made me put on the pounds. I'm only taking 50 mcg...
    ambiblue ambiblue
    22-25, F
    1 Response Jun 25, 2015

    It all started 2 years ago

    when every time I was working ( at a nursing home ) I was fainting. Everytime this happened I went to the hospital and I got told nothing was wrong with me, it was all in my head. I started to lose weight. I ended up losing 36 lbs in one month, it was terrible. I felt weak al...
    klousie klousie
    22-25, F
    1 Response Jul 21, 2015

    New Here

    I am going to try and make this short, but I am 50, so I been around a while. I have had Hoshimotos for years, probably since my early teens.  I know this because I had a dang adams apple, as I am a female you'd think someone would have noticed.  It was big enough...
    hintoncd hintoncd
    46-50, F
    14 Responses Mar 21, 2010

    Im to Young to Be Sick

                When i was 11 i went to the doctors for the common cold, in the process my doctor said that i had an enlarged thyroid, he sent me to the lab for a simple blood test, two days later i got a call from a children's...
    charissajm charissajm
    16-17
    5 Responses Jul 27, 2008

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