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I Have Hashimoto's Thyroiditis

Personal Stories, Advice, and Support 900 People

    Hi there my name is Nate And I'm a 25 year old

    male With cerebral palsy, On August 14 2015 I was diagnosed with Hashi modos I was shocked Because I have been a bodybuilder for the last three years was all around healthy I don't drink smoke Do drugs Any of that I took pretty good care of my bodySo being diagnosed with thyroid...
    natecr natecr 22-25, M Aug 21

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    The Curse of the Butterfly!

    Ah the thyroid - a part of my body I knew nothing really about until my body attacked it. I definitely took it for granted! In the spring of 2008 allergy season hit me with a bang. My seasonal allergies seemed to have a mind of their own that year - my body felt heavy, my...
    nomadjen nomadjen 31-35 11 Responses Aug 8, 2009

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    I have been dealing with Hashimoto

    for 10 years since I was 20. I went 5 years with horrible symptoms and to multiple doctors before being diagnosed. I knew what I had from researching but doctors only look at numbers and not symptoms with this disease. I've been through 3 endo doctors and my current one is awful...
    Kristina1016 Kristina1016 31-35, F 4 Responses Jun 3, 2014

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    And I am so sick and tired of hearing my

    husband say "I understand BUTTTT." That means you do not understand. I am exhausted and in pain all of the time and I just wish it would stop. He lacks common empathy and thinks that just because he thinks something that he should automatically be able to say it without...
    pinkbunniegirl pinkbunniegirl 31-35, F 2 Responses Apr 29

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    My Thyroid's Turning Japanese...

    ...at least that's what I tell all my friends   Being in nursing school you tend to become a bit of a hypochondriac. Symptoms appear all too familiar and next thing you know, you're in the doctors being checked out for some obscure disease that only happens in the most...
    blinkiee182 blinkiee182 31-35, F 11 Responses Aug 13, 2008

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    Could They Have Misdiagnosed Me With Hashimotos?

    I was having a physical checkup on May 2010 when the doctor noticed my throat was swollen and said that I probably have thyroid problems. They tested me and a few weeks later, I was diagnosed with Hashimotos. They did an antibody test and they did a hormone test. My TSH was 26. I...
    emilynn emilynn 16-17, F 3 Responses Jan 8, 2012

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    Had it since fifth grade (10 years old).

    I remember when i went to science camp. I was the only kid who had to wake up early and go to the teachers room to take my medicine. While the other kids were still sleeping/hanging out/getting ready. They asked me where i was going. But i didnt tell them. Because they wouldve...
    ninjadentistinspace ninjadentistinspace 16-17, F Aug 20, 2014

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    New Meds Can Be Frustrating...

    If you have read my first story "Finally Understanding" then this is for those of you who have the what-happens-next fever...if not, you might want to peruse it to get a better understanding of the experience as a whole. Or just enjoy come what may. I have tried to be diligent...
    spunkychocolatte spunkychocolatte 22-25 4 Responses Mar 31, 2011

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    I Have Hashimoto's And I Think I Am Dealing With Hashitoximosis

    I was dxd over 2 years ago as hypothyroid.  It all started when I became anemic and I was so tired, so I made an appt. and was prescribed iron and low dose synthroid  at 0.025 mcg.  I was skeptical about taking my thyroid meds because I was warned by my...
    noahbear noahbear 36-40 4 Responses Nov 18, 2010

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    I was diagnosed with Hashimoto's in my 20s.

    I get blood tests twice a year and an ultrasound on thyroid once a year. About 2 years ago the ultrasound showed something like a small cyst. My doc said he just wanted to keep an eye on it. But didn't seem concerned so I wasn't. It didn't show up on the next ultrasound. He...
    amazingdream amazingdream 46-50, F 3 days ago

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    My doctor advised me to eat gluten-free,

    and I have been. I'm just wondering what type of symptoms other people get when they actually eat something with gluten. Thanks!
    deleted deleted 26-30 4 Responses Jul 10, 2014

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    I'm 22 years old the mother of two

    and one on the way. for the past month i have been out of my doctors and endocrinologist whom thought i had hypothyroidism until i had an ultrasound done. But since my last son was born i havnt felt the same ive had terrible mood swings, my hair has been thinning, and my...
    jesskap jesskap 22-25, F 1 Response Feb 21

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    I was diagnosed four years ago,

    have been on synthroid, then Levothyroxine, then armour, and now WP Thyroid. I'm still tired all the time.
    jmfhokie jmfhokie 26-30, F Jul 17

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    MarvelBabe MarvelBabe 13-15, F 1 Response Aug 2, 2014

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    Struggling With Hashimoto's, But Never Giving Up

    My story starts like most of yours. I was starting to feel very bad all of a sudden without being aware that I have a medical condition. I was doing a daily workout that had a high level of difficulty so I started o feel shortness of breath. After a few weeks I stopped it because...
    kristen78 kristen78 26-30 Jan 17, 2013

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    I was diagnosed with Hashimotos

    when I was in the seventh grade and I've been miserable ever since. I am currently a freshman in college and weigh roughly 270 lbs. At this point, I believe I am just hypothyroid. I started at 88 mcg synthroid I believe and am currently at 175 mcg. My endocrinologist has stopped...
    kmarieh32 kmarieh32 18-21, F 1 Response May 2

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    New Here

    I am going to try and make this short, but I am 50, so I been around a while. I have had Hoshimotos for years, probably since my early teens.  I know this because I had a dang adams apple, as I am a female you'd think someone would have noticed.  It was big enough...
    hintoncd hintoncd 46-50, F 14 Responses Mar 21, 2010

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    Hi, Im a 17 year old girl from Sweden.

    I go too high school (I think that's high school in your country). Since I'm from Sweden my English might be a little off, but i hope it's okay anyway. I got sent to a endocrinologist 5 months ago by the health care, or as we call it in Sweden vårdcentral. The health care had...
    AnnaMariaC AnnaMariaC 16-17, F 1 Response Mar 3

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    I Want This To End :(

    im 17 and was just diagnosed with hashimotos thyroiditis today. i cant even tell you how long ive known that SOMETHING was wrong. doctors wouldn't listen teachers think im irresponsible and lazy im ALWAYS sick and my horrible grades are proof of that. it especially sucks because...
    fannnypak fannnypak 16-17, F 17 Responses Jun 10, 2010

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    For years I have been told

    that I have depression and that I just have to do more things that make me happy. The more I fight the depression and introduce things into my life that I love the more ill I become. I want to give up. I can't even eat anymore even though I eat the 'right' things when I can...
    finaqi finaqi 41-45, F 4 Responses May 25, 2014

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    My Story With My Hashimotos Thyroiditis

    You know.. as I am writing this, I remember. I think back to when the signs first started appearing. I remember loosing the person I once was. I remember hiding in my closet with a blanket and a pillow because I felt like an emotional wreck, I just wanted some privacy. I remember...
    emilynn emilynn 16-17, F 2 Responses Oct 20, 2010

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    I have been painfully tired

    for over two years now. I've been through all kinds of blood tests due to my symptoms and an MRI for headaches. I was just diagnosed with hypothyroidism cause by Hashimoto's just a few months ago. I started on a gluten free diet and tiny dose of Nature Throid. I have since had...
    cbreflect cbreflect 18-21, F 4 Responses Jun 20, 2014

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    I have so much ambition,

    yet so little energy to complete a task. I'm always so tired, or spaced out.
    PoshPoet PoshPoet 22-25, F Aug 24

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    My Hashimoto's Timeline

    My Hashimoto's Timeline2009 July- Started constantly spotting out of the blue. Started to suddenly lose weight without really doing anything differently. August- Constant spotting hadn't ceased; finally saw a doctor who prescribed birth control pills to be taken without break...
    Saelys Saelys 26-30 2 Responses Mar 1, 2012

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    I have this horrible disease

    and I totally understand the symptoms very well. my question is, and this may sound morbid but how does a person die from this? I'm in great suffering and have been progressive downwards as shown in my never ending bad labs. My symptoms are becoming stronger and am now anemic...
    jamieannilyn jamieannilyn 36-40 7 Responses Sep 9, 2014

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    I was just diagnosed with hashimoto's my TPO is

    3300 and my Tg was <5, does anyone else have these levels? I can never get warm and have a lot of joint pain. I don't do well in the heat and burn easily, does anyone else have these issues?
    Jung007 Jung007 31-35, M 1 Response Aug 21, 2014

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    I Ran, I Ran So Far Away

    Being dead would be so much easier than the depression, the constant fear, the non-stop crying. I was disappointed in myself. I was a failure. There was so much I could be and yet I was reduced to a puddle of crying mucus. Feeling sorry for myself. Feeling like at any moment my...
    NotFunAnymore NotFunAnymore 22-25, F 4 Responses Nov 19, 2012

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    Endos and Doctors and Hashi's--Oh My!

    "You're TSH is normal." "This is part of getting older." "You're thyroid is your excuse for everything." "You were fine yesterday." "You have to call in sick again!?" "You need to exercise more." "You need antidepressants." "Just keep dieting." "It's just a senior moment...
    thebutterflyeffect thebutterflyeffect 26-30, F 33 Responses May 9, 2010

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    Anyone have any advice

    for coping with the hot summer weather? I tolerate cold pretty well, but after being out in the sun for a little over 2 hours yesterday I had a horrible migraine and nausea to boot. I never liked summer weather even as a kid. Anyone else's air conditioner their best friend?
    BleuGardenia BleuGardenia 26-30, F Jul 6, 2014

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    Anybody else agree with this?

    😔 Hi. My name is Hashimoto’s. I’m an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now velcroed to you for life. If you have hypothyroidism, you probably have me. I am the number one cause of it in the U.S. and many...
    sarahglass sarahglass 18-21, F 12 Responses Jul 22, 2014

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    My First Ep Story .. Just Diagnosed With Hashimoto's Thyroiditis

    I have just been diagnosed with Hashimoto's Thyroiditis about two days ago. I came online to try and read about the disease since I am very unaware of what it is and I have noticed a lot of scary things, so I decided to join this support group since no one understands what I am...
    sissyskates sissyskates 18-21 6 Responses Nov 7, 2012

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    I have been diagnosed

    but just started taking meds Levothyroxine 25mg. Can someone tell me what I need to know and what I need to do to feel better from the symptoms. And the do's and Don'ts. Thanks in advance.
    paulina21 paulina21 31-35, F 1 Response Jan 11

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    I was diagnosed one year ago in November

    and have been taking my meds ever since. Feeling psyched as I finally managed to lose some weight, which had been impossible before. I lost 3 kilos (down to 55 kg) and feel much better about myself. I have more energy too. Hair and nails still crappy though and I still get a...
    yellowtrees yellowtrees 26-30, F 1 Response Oct 16, 2014

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    Hashi Hell

    I was just diagnosed a few weeks ago with Hashimotos........and while I am not glad to have found out I have an autoimmune disorder, I am so thankful to have an explaination to all my symptoms.  The past 8 to 9 months I have had a roller coaster of doctors, meds, and just...
    beffur76 beffur76 31-35, F 27 Responses Apr 7, 2010

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    Anyone else have increased anxiety

    when increasing Nature Throid, even though their blood levels indicate under active thyroid still? Hesitant to go back to synthroid as it made me slightly depressed but not sure what else to do
    longhorn12 longhorn12 22-25, F 4 Responses Mar 7

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    I've just started training full time at a

    circus school in Australia (NICA), and am struggling every day to keep up and to not feel sick. Almost every day I have to sit down for a little while until the nausea subsides, and last week I almost fainted twice. Today, I had to lay down during my dance class and resist the...
    krazykrazne krazykrazne 22-25, F Feb 18

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    So I went to my gynecologist,

    and ended up being tested for my irregular menstrual cycle. They found some issues with my thyroid, and told me to get it checked out with my primary care physician. Primary care physician told me, based on the levels of hormones, that I have Hashimoto's, but it wasn't going to...
    PerspectiveDetective PerspectiveDetective 22-25 3 Responses Sep 20, 2014

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    I was just diagnosed with Hashimoto's

    and hypothyroidism this month after many years of symptoms. I wonder if I'll ever feel like I have control of my body again. It has made me so incredibly self-conscious because of the way it's dried out my hair, caused acne, and made me put on the pounds. I'm only taking 50 mcg...
    ambiblue ambiblue 22-25, F 1 Response Jun 25

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    I work with endocrinology patients.

    This may help some of you, so I would like to put it out there.I would like to take a moment to share a new research article with you that highlights the connection between thyroid inflammation (autoimmune thyroid diseases like Hashimoto's Thyroiditis, Hypothyroidism, etc.) and...
    kmr9346 kmr9346 26-30, F Nov 19, 2014

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    I have known for 3 yrs

    that I have Hashimoto's but I believe I have had it for 25 yrs. It started during my 2nd pregnancy. My Dr over the years kept treating the symptoms with drugs. They never helped. My biggest problem has been insomnia. There have been many other difficulties, asthma, IBD...
    physio56 physio56 56-60, F Mar 1

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    I'm 28 and I was recently diagnosed with

    Hashimotos. I was having menstrual periods every day for a year straight with no breaks. I have always been very cold and struggled with depression/anxiety issues. My TPO AB value was 945 and TSH value 21.53. I'm currently taking Levothyroxine 125 MCG and seeing how that's...
    Ashlization85 Ashlization85 26-30, F 4 Responses Feb 18, 2014

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    Anyone else hashimotos symptomatic

    but normal thyroid levels? If so what symptoms? I have brain fog, confusion, memory issues, tingling head, some sleeping issues, what seems like anxiety that comes and goes suddenly.
    CoachDanny CoachDanny 41-45, M 2 Responses Jul 16, 2014

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    It all started 2 years ago

    when every time I was working ( at a nursing home ) I was fainting. Everytime this happened I went to the hospital and I got told nothing was wrong with me, it was all in my head. I started to lose weight. I ended up losing 36 lbs in one month, it was terrible. I felt weak al...
    klousie klousie 22-25, F 1 Response Jul 21

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    Starting NDT - Armour

    Well, I have another story in this group (http://www.experienceproject.com/stories/Have-Hashimotos-Thyroiditis/2364841), but it's really long and I didn't want to make it longer by writing about my NDT journey. I was on synthetic T4 for a long time, and recently got my endo to...
    RoseTears RoseTears 26-30, F 3 Responses Aug 31, 2012

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    My Story of Hypo W/ Hashi's

    Hi everyone, Thought I would share my story in hopes of helping someone else or someone seeing something similar with my story and we could relate. After the birth of my 1st daughter in 2004 I was always very very tired.  She was about 9 months old and I was working full...
    MrsFroman MrsFroman 31-35, F 15 Responses Aug 12, 2009

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