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I Have Hashimoto's Thyroiditis

Personal Stories, Advice, and Support 852 People

    Endos and Doctors and Hashi's--Oh My!

    "You're TSH is normal." "This is part of getting older." "You're thyroid is your excuse for everything." "You were fine yesterday." "You have to call in sick again!?" "You need to exercise more." "You need antidepressants." "Just keep dieting." "It's just a senior...
    thebutterflyeffect thebutterflyeffect 26-30, F 32 Responses May 9, 2010

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    I have been painfully tired

    for over two years now. I've been through all kinds of blood tests due to my symptoms and an MRI for headaches. I was just diagnosed with hypothyroidism cause by Hashimoto's just a few months ago. I started on a gluten free diet and tiny dose of Nature Throid. I have since had...
    cbreflect cbreflect 18-21, F 4 Responses Jun 20

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    I'm a mom of two and had the same diagnoses

    after delivering my son. I suffered tremendous ppd after I stopped breastfeeding him at 6 months. I was diagnosed hashimotos on the hypo side started med and one month later was hyper. Now one of my eyes is bulging. I still suffer a lot of depression. I was energetic and a very...
    tarapayne tarapayne 31-35, F 2 Responses May 23

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    The Silent Dance

    Twenty years ago my heart began to race and I gained twenty pounds in a month.  I was tired and I just didn't feel well.  I went to the doctor and they ran various tests and put me on beta blockers to help with my palpitations.  Soon after they found a lump on my...
    katiedidit katiedidit 46-50, F 10 Responses Jan 8, 2010

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    I Have No Idea What To Do.

    I thought I was just hypo, but I also have very high cortisol- my numbers kept changing from hypo to normal, When I tried Synthroid it did nothing (though I was on a very low dose). I tried Armour (but was allergic to the glandulars) and then the synthetic version (Thyrolar...
    violett8 violett8 36-40, F 4 Responses Dec 14, 2010

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    My Thyroid's Turning Japanese...

    ...at least that's what I tell all my friends   Being in nursing school you tend to become a bit of a hypochondriac. Symptoms appear all too familiar and next thing you know, you're in the doctors being checked out for some obscure disease that only happens in the most...
    blinkiee182 blinkiee182 31-35, F 11 Responses Aug 13, 2008

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    I work with endocrinology patients.

    This may help some of you, so I would like to put it out there.I would like to take a moment to share a new research article with you that highlights the connection between thyroid inflammation (autoimmune thyroid diseases like Hashimoto's Thyroiditis, Hypothyroidism, etc.) and...
    kmr9346 kmr9346 22-25, F Nov 19

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    MarvelBabe MarvelBabe 13-15, F 1 Response Aug 2

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    So I went to my gynecologist,

    and ended up being tested for my irregular menstrual cycle. They found some issues with my thyroid, and told me to get it checked out with my primary care physician. Primary care physician told me, based on the levels of hormones, that I have Hashimoto's, but it wasn't going to...
    PerspectiveDetective PerspectiveDetective 22-25, F 1 Response Sep 20

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    Im to Young to Be Sick

                When i was 11 i went to the doctors for the common cold, in the process my doctor said that i had an enlarged thyroid, he sent me to the lab for a simple blood test, two days later i got a call from a children's...
    charissajm charissajm 16-17 5 Responses Jul 27, 2008

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    For the past year, I have had an endless list

    of symptoms. My friends thought I was crazy and just a hypochondriac, but I finally got to the bottom of why I have been feeling. However, I am more frustrated than ever. I got a thyroid blood test done at my university's health center, and it came back showing I had...
    Lexsims38 Lexsims38 18-21, F 2 Responses Dec 4, 2013

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    Hi Im 24 years old and was diagnosed wit

    Hashimotos Thyroiditis a year and 3 1/2 Months ago. Im on 25mcgs of Levothyroxine and still suffer symptoms. Im constanly tired, eating 3 meals a day even became a chore, Headaches,body aches,and the most bothersome I cant sleep for my life iv tried everything frm over the...
    Kristine333 Kristine333 22-25, F 5 Responses Feb 18

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    Had it since fifth grade (10 years old).

    I remember when i went to science camp. I was the only kid who had to wake up early and go to the teachers room to take my medicine. While the other kids were still sleeping/hanging out/getting ready. They asked me where i was going. But i didnt tell them. Because they wouldve...
    ninjadentistinspace ninjadentistinspace 16-17, F Aug 20

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    Please Help

    I have a TPO level of close to 600 (normal range less than 35) and normal tsh t4 and t3. I woke up feeling like there was something in my throat. I saw my endocrinologist and she said I have a goiter but will do nothing about it. She says she is the best endocrinologist and I...
    dwf517 dwf517 26-30, F 1 Response Nov 25, 2013

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    Struggling With Hashimoto's, But Never Giving Up

    My story starts like most of yours. I was starting to feel very bad all of a sudden without being aware that I have a medical condition. I was doing a daily workout that had a high level of difficulty so I started o feel shortness of breath. After a few weeks I stopped it because...
    kristen78 kristen78 26-30 Jan 17, 2013

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    Anyone else hashimotos symptomatic

    but normal thyroid levels? If so what symptoms? I have brain fog, confusion, memory issues, tingling head, some sleeping issues, what seems like anxiety that comes and goes suddenly.
    CoachDanny CoachDanny 41-45, M 2 Responses Jul 16

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    Finally Understanding

    Hello Everyone and Anyone who is reading my story. You can call me Cookie. I have recently been diagnosed with Hashimoto's Disease. Scary, isn't it? It is to me, all these symptoms, all the websites stating how it is incurable, and can lead to horrific medical problems if not...
    spunkychocolatte spunkychocolatte 22-25 5 Responses Mar 11, 2011

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    Could They Have Misdiagnosed Me With Hashimotos?

    I was having a physical checkup on May 2010 when the doctor noticed my throat was swollen and said that I probably have thyroid problems. They tested me and a few weeks later, I was diagnosed with Hashimotos. They did an antibody test and they did a hormone test. My TSH was 26. I...
    emilynn emilynn 16-17, F 2 Responses Jan 8, 2012

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    Hashimotos Journey Of A Teenager .

    A countless number of headaches everyday, countless number of hours spent with a stabbing pain, a countless number of days where I can't get out of bed, a countless amount of money spent on energy drinks so I can move, a countless number of tardies to school, a countless number...
    guesswho143 guesswho143 13-15, F 4 Responses May 29, 2012

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    Hi. I am an 18 year old female (about to be 19!

    ). About a month ago I was diagnosed with Hashimoto's Thyroiditis. It is really confusing and scary at times. I would love to be able to talk to people who have it, because I am the only person who has it. It'd be nice to know people's experiences and to know from someone with...
    futurenurse2017 futurenurse2017 18-21, F 5 Responses Dec 31, 2013

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    My doctor advised me to eat gluten-free,

    and I have been. I'm just wondering what type of symptoms other people get when they actually eat something with gluten. Thanks!
    deleted deleted 26-30 4 Responses Jul 10

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    My Story With My Hashimotos Thyroiditis

    You know.. as I am writing this, I remember. I think back to when the signs first started appearing. I remember loosing the person I once was. I remember hiding in my closet with a blanket and a pillow because I felt like an emotional wreck, I just wanted some privacy. I remember...
    emilynn emilynn 16-17, F 2 Responses Oct 20, 2010

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    I live in Calgary, Canada

    and am feeling like my general physician is not providing enough support in living with Hashimoto's. She has given me referrals when asked, but no tips on lifestyle or dietary changes. I've found those on my own. Without me doing my own research, I would have been in sit-and...
    aymier aymier 31-35, F 2 Responses Dec 18, 2013

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    I have this horrible disease

    and I totally understand the symptoms very well. my question is, and this may sound morbid but how does a person die from this? I'm in great suffering and have been progressive downwards as shown in my never ending bad labs. My symptoms are becoming stronger and am now anemic...
    jamieannilyn jamieannilyn 36-40 3 Responses Sep 9

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    Hashi Hell

    I was just diagnosed a few weeks ago with Hashimotos........and while I am not glad to have found out I have an autoimmune disorder, I am so thankful to have an explaination to all my symptoms.  The past 8 to 9 months I have had a roller coaster of doctors, meds, and just...
    beffur76 beffur76 31-35, F 27 Responses Apr 7, 2010

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    Anybody else agree with this?

    😔 Hi. My name is Hashimoto’s. I’m an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now velcroed to you for life. If you have hypothyroidism, you probably have me. I am the number one cause of it in the U.S. and many...
    sarahglass sarahglass 18-21, F 8 Responses Jul 22

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    I'm 28 and I was recently diagnosed with

    Hashimotos. I was having menstrual periods every day for a year straight with no breaks. I have always been very cold and struggled with depression/anxiety issues. My TPO AB value was 945 and TSH value 21.53. I'm currently taking Levothyroxine 125 MCG and seeing how that's...
    Ashlization85 Ashlization85 26-30, F 3 Responses Feb 18

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    8 Year Journey To A Diagnosis Of Hashimoto's...

    Not sure where to begin.  It's been a long 8 years!  I am sharing this story to educate and hopefully help others.  I would never wish anyone to go through so many years of feeling horrible day after day. After the birth of my daughter in 2003 I never felt the same.  I could...
    hashimommy hashimommy 41-45 5 Responses Mar 31, 2011

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    New Here

    Ok I am really confused. My doctor has not really explained anything. I did blood tests and I got a letter in the mail. This is what it reads. TSH: 3.64 Thyroperoxidase: 276.5 you are noted to have high levels of antibodies to thyroid we can only expect things to...
    tulippetal tulippetal 22-25, F 3 Responses May 13, 2010

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    Not Gone Crazy!

    I am 31 and was just diagnosed with Hashimoto's. For month's I battle with feeling like I was going crazy.. I would think this is not me something is not right.. From anxiety, to emotions that surged up and down to severe body aches and nights with little or no sleep. Days were I...
    Sassyred22 Sassyred22 31-35 2 Responses Oct 9, 2011

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    I have Hashimoto's since years.

    I'm trying to accept it but sometimes it is difficult since I don't know anyone with a thyroid disease.
    XChloe XChloe 16-17, F 3 Responses Dec 3, 2013

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    A couple of months ago I decided to take my

    thyroid med at bedtime instead of taking it in the morning. It was very difficult to wait half an hour to have breakfast as I don't have a lot of time in the morning, hence the change. Is there anyone else who takes their med at bedtime and is it working for you?
    yellowtrees yellowtrees 26-30, F 2 Responses May 7

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    New Here

    I am going to try and make this short, but I am 50, so I been around a while. I have had Hoshimotos for years, probably since my early teens.  I know this because I had a dang adams apple, as I am a female you'd think someone would have noticed.  It was big enough...
    hintoncd hintoncd 46-50, F 14 Responses Mar 21, 2010

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    The Curse of the Butterfly!

    Ah the thyroid - a part of my body I knew nothing really about until my body attacked it. I definitely took it for granted! In the spring of 2008 allergy season hit me with a bang. My seasonal allergies seemed to have a mind of their own that year - my body felt heavy, my...
    nomadjen nomadjen 31-35 10 Responses Aug 8, 2009

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    Anyone have any advice

    for coping with the hot summer weather? I tolerate cold pretty well, but after being out in the sun for a little over 2 hours yesterday I had a horrible migraine and nausea to boot. I never liked summer weather even as a kid. Anyone else's air conditioner their best friend?
    BleuGardenia BleuGardenia 26-30, F Jul 6

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    For years I have been told

    that I have depression and that I just have to do more things that make me happy. The more I fight the depression and introduce things into my life that I love the more ill I become. I want to give up. I can't even eat anymore even though I eat the 'right' things when I can...
    finaqi finaqi 36-40, F 4 Responses May 25

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    I have been dealing with Hashimoto

    for 10 years since I was 20. I went 5 years with horrible symptoms and to multiple doctors before being diagnosed. I knew what I had from researching but doctors only look at numbers and not symptoms with this disease. I've been through 3 endo doctors and my current one is awful...
    Kristina1016 Kristina1016 26-30, F 4 Responses Jun 3

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    Starting NDT - Armour

    Well, I have another story in this group (http://www.experienceproject.com/stories/Have-Hashimotos-Thyroiditis/2364841), but it's really long and I didn't want to make it longer by writing about my NDT journey. I was on synthetic T4 for a long time, and recently got my endo to...
    RoseTears RoseTears 26-30, F 3 Responses Aug 31, 2012

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    Hi! I have had Hashimoto's

    for about 4 years now. I started on 75 mg of levy and went up to 125 mg (150mg) when I was preggo. I just started real synthroid this week. I'm always tired, have a small goiter, foggy... Blah blah blah we all have these symptoms. Anyway I'm looking to chat!
    Immabe82 Immabe82 31-35, F 2 Responses May 2

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    New Meds Can Be Frustrating...

    If you have read my first story "Finally Understanding" then this is for those of you who have the what-happens-next fever...if not, you might want to peruse it to get a better understanding of the experience as a whole. Or just enjoy come what may. I have tried to be diligent...
    spunkychocolatte spunkychocolatte 22-25 4 Responses Mar 31, 2011

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    Frustrations

    Right now, my life is full of tests to try and figure out what is wrong with me. I've been diagnosed with depression for five years now and have been on multiple different antidepressants that seem to work for a little bit and then just stop. But recently, I've come to the...
    Keciadj Keciadj 22-25, F 1 Response Dec 2, 2013

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    That Explains Everything

    I was just diagnosed with this disease. I had gone on medication (wellbutrin) to treat severe clinical depression but the medicine stopped working the way it should even at a high dose. I was still tired and easily distracted and way too emotional. I figured the depression was...
    SunnysAlright SunnysAlright 26-30 6 Responses Apr 22, 2009

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    I Want This To End :(

    im 17 and was just diagnosed with hashimotos thyroiditis today. i cant even tell you how long ive known that SOMETHING was wrong. doctors wouldn't listen teachers think im irresponsible and lazy im ALWAYS sick and my horrible grades are proof of that. it especially sucks because...
    fannnypak fannnypak 16-17, F 17 Responses Jun 10, 2010

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    Long Strange Trip

    I have had something up with my thyroid for years. The doc found antibodies in my blood system and gave me a very low dose of levoxyl. Worked for five years. Then August 2007, I was diagnosed with hypothyroidism, and my dose was jacked to almost ten times the original amount...
    crimsoncat crimsoncat 41-45, F 1 Response Apr 23, 2008

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    Conception problems

    I am 24 and have recently been diagnosed with Hashimoto's. I actually found out about a week before my wedding which was about a year ago. I wasn't horribly upset because my doctor assured me it wasn't really a big deal because the medicine will make it easier to lose the 50 or...
    Kazriel Kazriel 22-25, F Dec 9, 2013

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    I have just been diagnosed with Hoshimotos

    as of today. I have had hypothyroidism for three years now. I am on 25 mg of levothyroxine and obviously it's not helping. I feel aweful. I'm tired all of the time. I'm constipated and take magnesium for bowel movements. My hands are always cold as ice and my muscle ache. I had...
    draegompf draegompf 31-35, F 2 Responses Jan 24

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    My Hashimoto's Timeline

    My Hashimoto's Timeline2009 July- Started constantly spotting out of the blue. Started to suddenly lose weight without really doing anything differently. August- Constant spotting hadn't ceased; finally saw a doctor who prescribed birth control pills to be taken without break...
    Saelys Saelys 26-30 2 Responses Mar 1, 2012

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    I was diagnosed one year ago in November

    and have been taking my meds ever since. Feeling psyched as I finally managed to lose some weight, which had been impossible before. I lost 3 kilos (down to 55 kg) and feel much better about myself. I have more energy too. Hair and nails still crappy though and I still get a...
    yellowtrees yellowtrees 26-30, F Oct 16

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    I Have Hashimoto's And I Think I Am Dealing With Hashitoximosis

    I was dxd over 2 years ago as hypothyroid.  It all started when I became anemic and I was so tired, so I made an appt. and was prescribed iron and low dose synthroid  at 0.025 mcg.  I was skeptical about taking my thyroid meds because I was warned by my...
    noahbear noahbear 36-40 4 Responses Nov 18, 2010

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    Hello I am Patricia Sorry

    but my English no is excellent but I will try explain my situation thanks. Before my pregnancy I felt very bad and depressive, My doctors said me that I had postpartum depression, but I felt terrible symptoms, I couldn't speak well. I had change in my face, was a situation very...
    Paty76 Paty76 36-40, M Dec 14, 2013

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    I Ran, I Ran So Far Away

    Being dead would be so much easier than the depression, the constant fear, the non-stop crying. I was disappointed in myself. I was a failure. There was so much I could be and yet I was reduced to a puddle of crying mucus. Feeling sorry for myself. Feeling like at any moment my...
    NotFunAnymore NotFunAnymore 22-25, F 4 Responses Nov 19, 2012

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