I Have Hemangioma

Hemangioma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangioma. You're not alone. 16 People

    My Darling Niece.

    I am writing to see if anyone that has dealt with a hemangioma has any advice on how to help my 5 year old niece deal with the stares.  She has always been one of the most outgoing little girls I know, but recently she has noticed people staring and has been hiding behind her...
    thelittlegypsie thelittlegypsie
    36-40
    1 Response Jul 28, 2011

    My some has a scrotial H

    and he just turned 13 months old. At 3 weeks old is when we noticed it and honestly had no idea what it was at first, we thought it was diaper rash but it wasn't going away so we made an appointment with his pediatrician and he said it's an infantile hemangioma, but there isn't...
    wolfmama13 wolfmama13
    31-35, F
    1 Response Jul 20, 2014

    Natalie's Hemangioma

    Hi! I live in Georgia,not in the USA,my country is near Russia.I want to tell you my daughter's story.Sorry for my English,but you understand me I hope...Well, Natalie was born on july 29. 2009  the left part of her face was red...I could not understand what it was....Then...
    asatiani asatiani
    22-25, F
    Apr 6, 2010

    Dealing

    Seventeen years later and the questions are still there, just piling up in my mind. I have trouble focusing because I feel like there is no one I can talk to. My family doesn't know what I'm going through how can they even begin to understand that I'm in pain, that I am lost and...
    jljgirl jljgirl
    16-17, F
    1 Response Oct 2, 2011

    My Baby Boy

    My son is 11 weeks old this Tuesday and he has a large hemangioma on his right cheek. What I am here for is to get opinions on the treatment of steroids or propranolol, my oncologist has started him on steroids 2 days ago but the side effects are just horrible so me and my...
    Proudmomma2010 Proudmomma2010
    18-21, F
    2 Responses Mar 27, 2010

    Infant Hemoangiomas

    Hi there I have a 7 month old daughter she has 5 hemoangiomas, two are very large being on the top of her head and knee one is an internal growing on her back and 2 small on tummy and her hand, Is anyone else dealing with their child being constantly stared at and the stupid...
    Scarlettrose25 Scarlettrose25
    26-30, F
    2 Responses Oct 19, 2013

    Never New I Had It Till It Nearly Killed Me

    I am a mother of 3 children I was at the age of 11 told I had a condition called fibrous daysplia but when they tried to operate they found that I bleed at a rate of 1 1/ pints to every 90 secounds and that when chisling a way at bone which was in fected in stead of gaps of...
    mysticdesignznz mysticdesignznz
    36-40, F
    1 Response Nov 23, 2008

    About a month ago I noticed a hemangioma on the

    right side of my chest. I am getting married in less than a month & my dress has an illusion neckline. You can see the hemangioma. I am DREADING wearing my wedding dress because of it. Is there a way I can cover it? I don't think that make-up will help much.
    kelsey1227 kelsey1227
    22-25, F
    Dec 1, 2014

    Marshmellow Hand!

    hemangiomas are just part of the birth defect that i have, the entire thing is called capillary-lymphatico venous malformation. to learn more about my experience with this entire defect see my group titled the same. anyway, about  my hemangiomas, they are probably the most...
    scooper scooper
    26-30, F
    1 Response Nov 10, 2008

    I Have Hemangioma

    hi,I'm 25 years old girl,I have a hemangioma in my upper lip by birth,tonigth when I was searching on the net I found the experince group,I would like to share my story life with u,for those of u who don't know hemangioma I should say it's a malformatoin that could appear in body...
    lilihz lilihz
    22-25
    4 Responses Oct 15, 2010
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