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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 66-70 May 16, 2012

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    Related Experiences

    Read this my friend: I know u care less that i cared for u last month and stand by your side in ur darkest moments. If u were smart enough u would see that u have hurt me. Why do u...
    lonely4560 lonely4560 31-35, F 1 hr ago

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    I have the same id as the EP username.
    disappeared88 disappeared88 26-30, F 1 hr ago

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    The most sincere sorry(s), are usually the silent ones or the ones that are not heard. I was pissed at my brother because he used my laptop without my consent. I confronted him...
    YesIAmAsian YesIAmAsian 18-21 2 hrs ago

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    It's my first time on this app and it was actually through googling about similar symptoms that I'm here. I find myself in a similar situation. For about 4 days every month before...
    incagem incagem 31-35, F 2 hrs ago

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    Sitting in my warm bubble bath this morning giving thanks to all that made this luxury possible. It is really hot here & to have access to clean water anytime of the day or night...
    Sockitty Sockitty 41-45, F 1 Response 3 hrs ago

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    I actually have two St. Bernards whom I love with all my heart! Seriously the best dogs ever!
    SeanaO SeanaO 18-21, F 3 Responses 3 hrs ago

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    My features, characteristics, and mannerisms have been compared to Vivien Leigh, the English Actress who played ''Scarlett'' in ''Gone With the Wind'. I believe the resemblance is...
    Olivia1962 Olivia1962 51-55, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    Dianecc11 Dianecc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    Dianecc11 Dianecc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    Dianecc11 Dianecc11 26-30, F 1 Response 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    Dianecc11 Dianecc11 26-30, F 4 hrs ago

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    I have got through it, though. Yay! It was a horrible way to live. The worse thing is my parents (who were actually the reason I was depressed in the first place) didn't do...
    bowsandarrows bowsandarrows 13-15, F 4 hrs ago

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    We've all felt empty from within in our lives. I imagine most people search for something to fill in that emptiness for a long time, others maybe not-so-long, but the moment I...
    Celal Celal 18-21, F 4 hrs ago

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    two month ago I went to my ex's place and found a girl who he described as a friend only sleeping on the pile of wood because she was meditating earlier. I offered her a ride home...
    arina130 arina130 41-45, F 2 Responses 5 hrs ago

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    I do, she literally is the light in this harsh world. She's so good to me and kind and caring to others as well. I try to help her stand up for herself because I worry that there's...
    AvgDudeJ AvgDudeJ 26-30, M 1 Response Jun 3

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    Just funny small talk or big scenes. Night out with fun things planned. But I hate buzz kills. Those people who don't laugh at the corny jokes or the randomness I have.
    NomadAngel117 NomadAngel117 18-21, M Jun 3

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    I had Grovers years ago while I was on synthroid for thyroid. I told my doc I would FIND A CURE! He assured me I would not. I looked for well over a year picturing in my mind that...
    Dianne01 Dianne01 56-60 1 Response Jun 3

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    I have been having crazy sex with men lately. My libido is on such high overdrive. Of all the guys who I've been with this year, I didn't make any of them use a condom. After the...
    galaxygrey galaxygrey 26-30, M 1 Response Jun 3

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    I am picked up from work and we go to my nieces birthday party and I get out of my bad work mood by being silly. I play with the kids and then my sister leaves for an hour to pick...
    honestlyanonymouslyme honestlyanonymouslyme 22-25, F 1 Response Jun 3

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    To have him love me.Want me.Hold me.Talk to me.Compliment me.Encourage me.Walk with me.Listen to me.Laugh and cry with me.Understand me.Be with only me.
    KAYDUBAU KAYDUBAU 31-35, F 4 Responses Jun 3

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    i definitely have a split two personality thing going one and it hard to satisfy both off them
    candysissyfag candysissyfag 26-30, T 2 Responses Jun 3

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    He is from my mother's side of the family. I've known him since I was in kindergarten, but because of an incident that occurred between him and my dad, he was kicked out of the...
    Cutiepeachpie Cutiepeachpie 22-25, F Jun 3

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    Love is an overused word...You love movies and TV and books and chips. You may even use it incorrectly by saying it a week or a month in. Love isn't any of that. Love is years...
    ForeverOnMyGuard ForeverOnMyGuard 16-17, F Jun 3

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    I'm dealing with depression due to my depersonalisation and have thought about suicide. But I'm going to carry on fighting these suicidal thoughts. Life is worth living even if you...
    Jaydkins Jaydkins 13-15, F 2 Responses Jun 3

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    I know there is something about me that i need to change to stop making abusers think its ok to treat me that way. i want to stop finding this in a man. . . . . .anyone have...
    212panda 212panda 31-35, F 2 Responses Jun 3

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    I have been living a lie for a year and a half. I just want to kill myself. I've been humiliated in the worst of ways
    deleted deleted 26-30 2 Responses Jun 3

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    I'm 17, from Cincinnati OH looking for some guys to have good conversations and laughs with :) message me anytime!
    ohio17 ohio17 16-17, M Jun 3

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    Remember the cool, old songs? What was YOUR favorite? Over the Mountain Sea of Love (my Favorite!!!!!) Handy Man Shotgun Long Cool Woman in a Black Dress Rocky Mountain Way At The...
    GraceIsMine GraceIsMine 66-70, F 3 Responses Jun 3

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    i have tons of it all over my body from stuffing myself and so poud of my imperct body!
    deleted deleted 26-30 Jun 3

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    Im Linda and im soon 14. I have a mom and a sister who is 10. Our mom is pretty strict but i love her.
    lindaspanked lindaspanked 18-21, F 1 Response Jun 3

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    My mom and dad got me this really expensive anklet for my 16th birthday that doesn't rust when wet and doesn't turn my skin green. I have never taken it off, even after three years...
    TrapQueen19 TrapQueen19 18-21, F Jun 3

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    Maker's breath, my little darlin' s silly. I'd call out to him every feeding time, and he'd come a running but instead of eating, he'd think I was playin' and ignore the food I...
    AB2WUS AB2WUS 22-25 Jun 3

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    I have depression and I cut my arms in the bath when it's bad but I don't do it to really harm myself - I like the way the blood flows, plz only comment if u feel similar
    Lookingishard Lookingishard 13-15 1 Response Jun 3

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    I have 3, a German Shepherd named Pudge, a corgi named Watson, and a lab named Sherlock
    SteffiBanks SteffiBanks 13-15, F 6 Responses Jun 3

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