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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 66-70 May 16, 2012

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Related Experiences

    There’s one notion I see floating around a lot that many people seem to believe, but it’s something I am convinced is actually a myth. Some females, especially younger ones...
    Rutterman Rutterman 36-40, M 2 Responses 5 hrs ago

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    Hi I'm a person who suffers from maladaptive daydreaming. I'm 16yrs old and I just found out I have MD. It has been bugging me for awhile about how I always seemed to daydream at...
    freshstarter11 freshstarter11 16-17 2 hrs ago

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    Hi there, I'm new, and I just stumbled upon this group/site/experience and I have to just say Wow! :D (sorry in advance for my life story!) This may sound silly but I never knew...
    lightandlove18 lightandlove18 26-30, F 1 Response 17 hrs ago

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    Hi, I'm a 20 year-old-girl from Finland and I was diagnosed with en coup de sabre when I was 17, but I have had it for 6-7 years. Since diagnosed I have been going to a skin doctor...
    meeri95 meeri95 18-21 15 hrs ago

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    I have a big big problem... I am a girl, and I am in love with my friend/roommate/teammate who is also a girl. I don't know how or why this happened, I just know that it happened...
    clearmymind clearmymind 18-21, F 1 Response 10 hrs ago

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    I am a recovering drug addict. I got addicted to pain pills when I injured my back. Coming off them was one of the hardest things I have done. I have been told I have an addictive...
    SissyJazmin SissyJazmin 36-40, M 2 Responses 17 hrs ago

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    Ok so I'm 19, almost 20. I'm a freshman in college, and I find it very hard to talk to girls. I'm a pretty shy person up until I get to know someone well. My main problem is that I...
    quietcontender quietcontender 18-21, M 3 Responses 16 hrs ago

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    Thought he was different? Well looks like I have been ghosted by someone I really thought was a decent guy. So does this mean I am just a fool or a bad judge of character? He`s...
    tamarisk1 tamarisk1 41-45, F 3 Responses 13 hrs ago

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    over the last 8 months or so, i have been through the mill, have looked into the eyes of shear hatred, peered through the gates of hell, and lost sight of who i am, and my faith in...
    MattiusTheGrey MattiusTheGrey 31-35, M 1 Response 7 hrs ago

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    I had a role model to whom I have trusted blindly to have our best interest at heart, only to have seen the ugly truth of who they truly are unfold chapter after the another. At...
    Foundyoung Foundyoung 18-21, F 1 Response 1 hr ago

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    I want to overcome my bad health. I want to overcome my psychological defects, my social anxieties. I want to become independent. I want to find a way to earn a living while being...
    chaekowski chaekowski 26-30, M 18 hrs ago

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    I have an urge to tell the world just how special I think my husband is, he is my rock, he's made me a better person just by being with him. There are t-shirts and jumpers you can...
    RobertaSunset RobertaSunset 36-40, F 1 Response 16 hrs ago

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    From Brighton ,Sussex ,Britain Brighton is one of the nicest and touristic cities in the united kingdom ,I lived in Brighton for whole 8 years from the age of 20 until 29...
    Soullesss Soullesss 31-35, F 1 Response 15 hrs ago

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    I'm already dating his 16 year old daughter. And no, I haven't crossed the line. . .yet. He has that kind of charm that puts you under his spell. He has a younger daughter that I...
    TheGirlTheyCallScar TheGirlTheyCallScar 18-21, F 2 Responses 14 hrs ago

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    Never thought i could hurt my wrists that much by scratching them... I hate my life right now, I just want to disappear, to vanish, to fade away, to stop existing , to be gone, to...
    UNDecodable UNDecodable 18-21, F 1 Response 12 hrs ago

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    Here's a list of 7 things. 1. Humility will always get you further than talent, but it's great to have both. 2. Tectonic plates move just a few centimeters per year, and then...
    addictedtoeverything addictedtoeverything 18-21, M 1 Response 11 hrs ago

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    Here are some things that I hate right now: 1. People who call people stupid because they have an opinion, or insult something personally. Spoiler alert: Not everybody is going...
    RhinosaurusRex RhinosaurusRex 18-21, F 2 Responses 11 hrs ago

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    Hey my bf leaves for boot camp in 3 weeks and was wondering is there is anyone else who is going through this or for those who have gone through it if you have any tips to how you...
    SusanEst4 SusanEst4 18-21, F 10 hrs ago

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    Tomorrow I see Daddy.. i am somewhat excited because i love Daddy but ive been really bad to him lately. On Monday I said really terrible things to him. I even told him that i bet...
    SouthernAndSweet SouthernAndSweet 26-30, F 2 Responses 8 hrs ago

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    I have days where I just shut down. Yeah, I'm doing okay and better than I was. Though I have those days where I'm sad and don't do anything. I hate those days
    EssSmith EssSmith 16-17, F 2 Responses 7 hrs ago

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    im not sure im o her ei just cant cope like everyone else i dont understand this i cant stand fetting up everyday i feel angry inside im tempted to go to hospital as much as i hate...
    hannahabbie hannahabbie 46-50, F 6 hrs ago

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    "Come Right Out And Say It" I'd better rest my eyes 'Cause I'm growing weary of This point you've been trying to make So rather than imply Why don't you just verbalize All...
    NowForever NowForever 46-50, M 5 hrs ago

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    i have not met my biological dad. I am 35. When i was born he was 17. I found him, i got pictures from his niece i even spoke to my half sister. They all like me and i like them...
    candiceblankerosa candiceblankerosa 31-35, F 1 Response 5 hrs ago

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    I hate when I have cold .I trying to get rid of it as soon as i can.Really do not like have running nose . I am okay with temperature ,but running nose I hate it .Hopefully i will...
    luna5555454 luna5555454 26-30, F 1 Response 3 hrs ago

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    I have greater hopes big ones,this ain't really my time, am clinging to it am never losing it
    iamaphla iamaphla 18-21, M 18 hrs ago

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    I feel awful! I have a boyfriend but whenever I see someone I think is cute, I always wonder, "what if I kissed him/her right now!?" I would never cheat, but I hate when I get...
    justjane2000 justjane2000 18-21, F 2 Responses 18 hrs ago

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    i have cried three times in my life all three in school at 13,14, and 16 most of them were long cries like about 5 minutes mostly out of humiliation and embarrasment the best...
    Camouflage Camouflage 22-25, M 2 Responses 17 hrs ago

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    What sort of things is it ok to get spanked for? I don't think its fair that I should have to bend over the bed in the morning if my nappy's wet. This wouldn't normally happen but...
    Anna1997 Anna1997 18-21, F 17 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    bettycc11 bettycc11 26-30, F 16 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    bettycc11 bettycc11 26-30, F 16 hrs ago

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    That moment when someone you have seen around the traps and seems like a good person goes ape for no reason then defends their insanity and you are all like -O.o duuuuude I thought...
    SolitaryElf SolitaryElf 41-45, F 16 hrs ago

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    From a young age I was fascinated with fame and how they started their journey. I look up to these Women as strong girls and have much respect for them living in the limelight.They...
    DiamantesAndDiamonds DiamantesAndDiamonds 31-35, F 1 Response 16 hrs ago

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    Okay so, today's my 19th birthday and nobody told me anything. I know someone who got a lot of birthday wishes and she got bored from replying to all of them. And I'm here, waiting...
    Otakut Otakut 18-21, F 4 Responses 15 hrs ago

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    These lil girls tried to play with my sister. But she handle her light work. So i have to walk with her to school incase one of them feeling frogy today and want to jump her. If...
    babyswag101 babyswag101 16-17, F 14 hrs ago

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    I have! And am more than willing to again =)
    ShadowSp3K ShadowSp3K 26-30, M 3 Responses 13 hrs ago