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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 70+ May 16, 2012

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    Related Experiences

    latlely I have been having troubles sleeping or staying asleep. no matter how tired I am I just can't do it. I have been having family troubles since my aunt past away Feb 14, 2...
    MarineGirlfriendMary MarineGirlfriendMary 18-21, F 1 Response 1 hr ago

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    Idk what's going on or if I'm js overthinking it but the "baby" subject and me having one keeps getting brought up, like my friend Amanda had a dream Abt me being pregnant, today I...
    DRB92 DRB92 22-25, F 25 mins ago

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    The only good thing about having a bad cold is using the pun.....My nose is running and I have to go catch it.
    AlysonAnnaD AlysonAnnaD 18-21, F 2 Responses 1 hr ago

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    I don't think I've ever truly smiled. I don't think anyone has seen the real me. I don't think my friends have ever seen me cry. I don't think I've ever shown them the pain I go...
    SoulWriter17 SoulWriter17 16-17, M 1 hr ago

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    My mother may not make it through the night. But she might. I am unsure what I should do. She's trying to walk around...I am trying to stay out of the nurse's way as they try ti...
    Myzery Myzery 31-35, F 53 mins ago

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    There's two experiences I have had. The first time I wasn't trying to astral project, I was just going to sleep as normal and the next morning is when I realized that I had astral...
    Champagne77 Champagne77 18-21, F Oct 29

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    Sometimes, I sleep poorly not because my mind is too busy, or I am distracted, but because I fear the although light, definite responsibility of tomorrow. I guess it's just like...
    dabram71 dabram71 16-17, M 1 Response Oct 29

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    I hate it when people mistake my age through my looks.. Unlike my other friends , I have a baby face.. People in school thought I'm my friend's little sister..
    Sharlita Sharlita 18-21, F 3 Responses Oct 29

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    I need help!!!!! i met my husband in 2008... we were young, loving life and infatuated with eachother. we got married in 2012 and here it is 2014 and I have felt for a year and a...
    lovexlife lovexlife 22-25, F 3 Responses Oct 29

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    If you have a crush in me you're obligated to tell me because I am B L I N D when it comes to that sort of stuff.
    Colourfi Colourfi 13-15, F Oct 29

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    Why are there SO MANY military wife/girlfriend/fiance groups? I'll assume the reason there isn't a reverse of this group is because most military personnel are male. It seems like...
    pinkypie5 pinkypie5 22-25, F 1 Response Oct 29

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    I never really had much friends as a little kid. I remember one time I thought I made a friend. She invited me to the football field. Nobody ever invited me anywhere so I was...
    AwkwardDemon AwkwardDemon 16-17, M Oct 29

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    I think I have trusted people too much and I was let down badly by them.I don't know why I still trust people.Trusting less may mean getting hurt less.
    restored87 restored87 46-50, F 12 Responses Oct 29

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    I want someone who will love me and care for me. To stand with me by my side, to have children with who we both love. That and more and whoever gives it to me has my heart body and...
    alohacruz alohacruz 18-21, F 3 Responses Oct 29

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    I have two lovers. I don't want to hurt them, it's not fair, it's wrong. I can't seem to choose... They both satisfy different needs of mine, what one doesn't the other does. (Not...
    lowlowloks lowlowloks 18-21, F 6 Responses Oct 29

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    Probably too many things. Skipping and leaving school I don't even have regrets over, so it isn't that. I regret messaging that former teacher a few months back and trusting that...
    1lonelydaisy 1lonelydaisy 41-45 Oct 29

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    I'm not sure of what's happening. I'm not sure if it's GSA, I mean, I assume it is. I'm confused about it and maybe if I share my experience, I can figure it out better. I'm a boy...
    Noahtuk Noahtuk 26-30, M Oct 29

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    I'm 20 and many people have told me I look as I am 17/18 or that I look young and that I look younger than I am. I don't know how to take this, as a compliment or rude. I have no...
    OKPunk OKPunk 18-21, M 4 Responses Oct 29

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    Do I think I've go it figured out? Does my wisdom sit on high? Am I so dilluted, That the truth will pass me bye. I have always wondered, why I feel the way I do. Always looking...
    Mindlabyrinth Mindlabyrinth 41-45, M Oct 29

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    Raisin cookies that looks like chocolate chip cookies are the main reason I have trust issues.
    hippiee hippiee 13-15, F 1 Response Oct 29

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    How do I let this go. My heart fills with woe, Will I loose my heart, Are we ment to be apart, I never thought so, How will I ever heal, Will I ever love this much, Can it ever be...
    Mindlabyrinth Mindlabyrinth 41-45, M Oct 29

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    This was taken at a friends gathering I have it on my Facebook profile! I took a picture of these two bunnies getting it on! The female which apparently was the one on the bottom...
    ThereIsNoName ThereIsNoName 31-35, F 1 Response Oct 29

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    I frequently have dreams where I'm facing some challenge.. like rock climbing to a plateau then a group of gypsies with wagons tell me I've done well and there's still a bit more...
    trmhippygirl7 trmhippygirl7 22-25, F Oct 29

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    I came to this site after sleepless nights of wandering the Internet while trying to calm my anxieties. It's been a few days since my Herpes diagnosis and I have experienced every...
    BabyBlondeOne BabyBlondeOne 18-21, F 7 Responses Oct 29

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    There have been moments over the course of the last few days where my life was the same. Where I felt like my cute, bubbly self. And then something small would happen; a thought, a...
    BabyBlondeOne BabyBlondeOne 18-21, F 3 Responses Oct 29

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    Trying to send the perfect picture for a friend on Snapchat and I'd be like "Why do I have to be so Ugly!?" :(
    TheKDoomsday TheKDoomsday 16-17, F 2 Responses Oct 29

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    It has been years since I have had a "normal" sleeping pattern. It is to the point where I often wonder if I am no longer an insomniac, but rather just nocturnal instead.
    BabyBlondeOne BabyBlondeOne 18-21, F 3 Responses Oct 29

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    I had crush on someone.. she was my class mate.. knowing her from childhood use to like her a lot and started growing feelings for her from very long time. I never felt d same for...
    purvajsheth purvajsheth 22-25, M 1 Response Oct 29

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    I wish I didn't hate my body so much. People tell me that I have nothing to worry about, and I am beautiful. I still find so many things wrong with my body and the way I look...
    PreciousAngel27 PreciousAngel27 36-40, F 12 Responses Oct 29

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    I have always loved dogs, but i could get one when i was 18. My first dog was a beautiful sheperd mix, he was a malinois/dutch sheperd mix. I trained with him and everything. Now i...
    Crazycoral84 Crazycoral84 26-30, M Oct 29

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    I have a condition that prevents me from dieting....i get hungry.
    AntonioV AntonioV 46-50, M 6 Responses Oct 29

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    Probably 52,678 pep have crush on me. Well I automatically assume that everytime peps glance at me, they must have interested in me... *Breathe* I'm such a luckyman...
    DelonWulf DelonWulf 18-21, M 1 Response Oct 29

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    I don't understand guys that want to "share their wife" Like.. Do you have no shame? I wouldn't want a guy even hugging my girl, let alone having sex with her >.<
    akaShaun akaShaun 16-17, M 4 Responses Oct 29

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    I came here because in many of my google searches I have come across this site where everyone is just very supportive of each other and with no judgment which I guess is the point...
    Gizzi Gizzi 22-25, F 3 Responses Oct 29

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    I thought I had grown out of it but here we go again. She works at the library at uni so I see her almost everyday. Amazing how crush's can make you do things you never imagined...
    nick030 nick030 22-25, M 2 Responses Oct 29

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    I wonder why people have a crush on me? I look like a boy, my hair is short and I never use dress unless at school uniform. My behaviour also like a boy. But now, some boys have a...
    Lovelyday235 Lovelyday235 13-15, F 4 Responses Oct 29

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    My best friend since I was one is a boy. I think it is ok to have a best friend from an opposite gender it's actually fun!
    JordynRenee1023 JordynRenee1023 13-15, F 1 Response Oct 29

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    @ jung_zebra Follow me maybe? u don't have to if u don't want but what's wrong with clicking that follow button?;) lol
    maknaekid maknaekid 13-15, F 2 Responses Oct 29

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    I have been friends with this guy for so long and he is very concern to me. He always says he misses me everytime i reply to his messages. Do you think he likes me?
    unknrnt unknrnt 13-15, F 1 Response Oct 29

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