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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 70+ May 16, 2012

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Related Experiences

    Ghana, West Africa had held my heart since the day i stepped foot on their soil. Its so hard to put into words how much of an impact going to an African country will have on your...
    amandakleveland amandakleveland 18-21, F 1 hr ago

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    I'm not good enough never have been and never will be I wish people understood how bad im struggling right now going out tonight to a bar with friends sucks enough since I don't...
    willieverbegoodenough willieverbegoodenough 22-25, F 1 Response 1 hr ago

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    I really want to have this experience
    goonteam goonteam 16-17, M 1 hr ago

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    Super unhappy with my life. I've been lacking motivation to make any good changes. It feels like every decision I've ever made was a bad one. I obviously lack the ability to make...
    BleuGirl83 BleuGirl83 26-30, F 1 hr ago

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    Would you still love me if I went crazy? If I wasn't me but just a bugged out person that's literally lost their mind, would you take care of me? **** that go through head, don't...
    Sdm2987 Sdm2987 26-30, M 1 Response Jun 25

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    Over the past year or so my sleeping has gotten worse and worse. I don't have a nighttime job or a daytime job. I'm just a student in college and enjoy writing and music. I need to...
    EsotericEnigma08 EsotericEnigma08 18-21, F 1 Response Jun 25

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    Ladies and Gents Please be patient with me. No need to get upset if I don't respond right away. I'm no superhuman. I work just like everyone else. I receive like a hundred messages...
    SweetestGirl89 SweetestGirl89 22-25, F 1 Response Jun 25

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    Five months ago, my father was diagnosed with Leukemia. The doctor told him that if he hadn't come into the hospital then we would had lost him within 38 days. My father has always...
    Untamablespark Untamablespark 22-25, F 3 Responses Jun 25

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    This will be the fifth night I haven't slept. For awhile I was sleeping okay... But now I only get like 3-5 hrs of sleep and if I am lucky enough to even get those hours of bliss I...
    laultman78 laultman78 13-15, F 3 Responses Jun 25

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    I have frequent dreams where I am both pursuing someone or something and being pursued at the same time. the scenery changes from being empty city streets to empty buildings to...
    CrushedCrusader CrushedCrusader 46-50, M 2 Responses Jun 25

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    I always talk to myself because I wonder " am I always going to get rejected by anymore boys?" Because I have been rejected by 2 in 4th grade but I hope this doesn't happen to me...
    bela5562 bela5562 13-15, F 5 Responses Jun 25

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    I have a major crush and I don't know what to do I just need someone to vent to
    immeandonlyme immeandonlyme 13-15, F 2 Responses Jun 25

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    Best news I have ever heard all day/month!!! My boo only got a $200 fine in court today & he "Might" be out in the next 3 days!! find out Friday... Fingers crossed & everything...
    LillyJean13 LillyJean13 16-17, F 1 Response Jun 25

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    I still love my ex that I haven't been with for 7 months, I don't know how to move on, I try I just can't .. I remember him:(
    chelsean16 chelsean16 16-17, F Jun 25

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    Never tell your problems to anyone. 20% don't care and the other 80% are glad you have them.
    tepidly tepidly 22-25, F 10 Responses Jun 25

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    I'm having one of those nights when you sleep for only about 3 hours, have a nightmare, wake up and you're scared as hell to fall asleep again. T-T
    MysteriousAddiction MysteriousAddiction 16-17, F Jun 25

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    I have hydroskourophobia, it's so bad that I can't play videogames or watch movies with scenes underwater. I took a tea bath the other day and had a panic attack when I couldn't...
    Willowrae22 Willowrae22 18-21, F 1 Response Jun 25

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    I have 3 stitches on my forehead, 3 on my hand this was two days ago, 4 on my knee, 2 on my hip, 21 on my stomach xD ;p
    FenderACDC FenderACDC 18-21 1 Response Jun 25

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    Hate it when I have anxiety attacks. And when it happens, it's hard to breathe properly and concentrate in whatever I do. Sometimes my whole body even shakes, wth.
    ziwen ziwen 16-17, F 3 Responses Jun 25

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    I'm so far past done it's not funny. I'm done with being treated like a freak. I'm done with trying so hard to control my BPD just have everything thrown back in my face and I'm...
    LewisCollins LewisCollins 31-35 1 Response Jun 25

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    I don't know why, but I was beat up a lot as a kid. Some would punch me, some would kick me, I have been strangled, I was pushed off a hill, I was told I was garbage and a waste of...
    Pettraner Pettraner 13-15, F 3 Responses Jun 25

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    I have never killed anybody and hope I am never in the position where a choice like that has to be maid no one has the right to take another persons life but sometimes things go to...
    scotchbonit scotchbonit 26-30, M 2 Responses Jun 25

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    Ep is amazing. I don't care if someone's reads my stories but its always great to know that you have someone you can tell anything to without them knowing who you really are. This...
    fios fios 18-21, F Jun 25

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    I married young had and raised my family. Now I'm questioning if I settled instead of waiting. I trust a man who is not my spouse more than just about everyone else yet I can't...
    Runnergirl527 Runnergirl527 36-40, F Jun 25

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    I am worried that I am going to have an anxiety attack..... Again...
    ChaoticCaroline ChaoticCaroline 13-15, F 2 Responses Jun 25

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    So, my adaptive cutting/eating equipment came into today. Who knew that a cutting board with suction cups and 2 nails stuck in the middle could be so helpful. Food doesn't slide...
    sweetstar1 sweetstar1 22-25, F 2 Responses Jun 25

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    After weeks of thinking I had it under control, I am having a severe bulimia relapse. I've had seizures and been so ill because of it and am scared I won't be able to stop. I don't...
    keeleywilcox keeleywilcox 22-25, F 2 Responses Jun 25

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    I have panic attacks for no Reason.. Like last night I was laying in bed and I felt like I Couldn't breathe. And not to long ago I couldn't find something so I had a mental break...
    Bflyboo14 Bflyboo14 13-15, F 1 Response Jun 25

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    I wish this every single day of life! I have so many regrets 😫 wish this button existed so much
    nikkijamieson nikkijamieson 18-21, F 1 Response Jun 25

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    After my recent brain surgery I couldn't remember anything from the past year - 2013 till the moment I woke up in the hospital. And since that day I started to have this dream...
    Toriwho Toriwho 13-15, F 1 Response Jun 25

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    My nose feels itchy, my eyes water because of my nose feeling itchy and I pull the most hideous faces when I'm about to sneeze. If I'm in public, I try to hold it back because ew...
    imsoawkward imsoawkward 18-21, F Jun 25

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    When I get into a relationship, no doubt it will be with a masculine dominant daddy. I need somebody to give me direction and make sure that I am doing the right things. I love to...
    KY2LAX KY2LAX 22-25, M 2 Responses Jun 25

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    I have never been on a real date! I am 21 and had a relationship with BAD BOYS who never really took me out an made me feel special. My ex was i jail for three years an came out an...
    CAMBRIA22 CAMBRIA22 18-21, F 1 Response Jun 25

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    I went to the dermatologist today. He prescribed a few things for my folliculitis and acne. He couldn't offer much for my scars. He gave me a referral to a cosmetic dermatologist...
    saviscool saviscool 22-25, F Jun 25

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    I feel so much anger today. It's been building. Like just suddenly my medicine stopped working. I somehow lost 40 dollars out of my wallet. Makes me wonder if my mind is playing...
    saviscool saviscool 22-25, F Jun 25

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    I just can't handle going to work today. I don't want anyone looking at me. I feel like if someone looks at me the wrong way today I'll have a panic attack. I don't know why it's...
    rainbowphobic rainbowphobic 18-21, F 2 Responses Jun 25

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    Hello my friends. I have mild cerebral palsy. It affects my walking and sometimes I trip over myself but apart from that I'm completely independent. I really try to be positive as...
    jbird1890 jbird1890 16-17, M 2 Responses Jun 25

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    Little brother: I don't want to get hit with the ball Aunt: well don't turn away and you won't get hit Me: I remember I got beaned in the butt once.. That hurt. That's probably why...
    TheAmazingSpiderJoe TheAmazingSpiderJoe 18-21, M 1 Response Jun 25

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    Ugh the struggle of stairs. With my hyperventilation I feel like Hazel Grace when she makes it to the top of the Anna Frank in the Fault in Our Stars movie. Literally one flight...
    kelizabeth13 kelizabeth13 18-21, F Jun 25

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    I have a crush with a friend!! But the problem is i dont want to say because i dont want to loose her friendship!! Help me please!! ;)
    Puppy92 Puppy92 18-21, F 1 Response Jun 25

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    I had a dream I was infiltrating a live in school for blind kids. I was a young boy and I had to convincingly pretend I was blind while they showed me to my room, etcetera. There...
    DreamChristine DreamChristine 31-35, F 3 Responses