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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 70+ May 16, 2012

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Related Experiences

    Hey i have no life I never graduated, never had a prom, never had some cute love story happen in my life, even though i have my true love... we never had a nice cute story though...
    beckybecks224 beckybecks224 16-17, F 8 hrs ago

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    Hahaha I am such a mushy friend but anyways this is a poem I came across that made me think of someone who I haven't known very long but this person is really special to me and I...
    sarahspanked43 sarahspanked43 16-17, F 7 hrs ago

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    I was diagnosed with myoclonus 2 years ago. We had a restaurant and were working 18 hours a day, not sleeping properly and weirdly, not eating! It was really scary I got carted...
    Jellyt0t Jellyt0t 41-45, F 5 hrs ago

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    His name is Robert. I forget his last name. But that's not important. When I went to class, I only noticed him in passing at first. He was just someone who sat next to me and I...
    madelinefish madelinefish 16-17, F 1 Response 2 hrs ago

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    “To love oneself is the beginning of a lifelong romance.”~Oscar WildeAs human beings we all seek to love and be loved. Love cannot be explained, measured or seen. It is...
    MzPhoenix MzPhoenix 31-35, F 2 hrs ago

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    i have Punjabi accent :p i don't think so any one have it ;)
    ahsan66666 ahsan66666 22-25, M 1 Response 4 hrs ago

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    Where I'm from we have a different accent than the rest of Sweden, but all my friends say I have a mixed accent, most Norwegians can't understand what I'm saying but they...
    lily449 lily449 18-21, F 1 Response 4 hrs ago

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    Today I was went on jog. I live in a remote part of the country. As I was beginning to leave, I asked the maker of heaven if I had the courage to stand in front of danger and back...
    Itsmondayagain Itsmondayagain 36-40, M 2 hrs ago

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    Can someone explain to me what experiencing a flashback is like ? I feel like I used to have them but can't tell.
    LaurenAR LaurenAR 22-25, F 1 Response 9 hrs ago

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    I have Osd, I'm bipolar, and chemically imbalanced I hate that I was cursed with these illness's I pray constantly to get through the day and God helps me when I ask...
    LoveMessiah LoveMessiah 26-30, F 1 Response 8 hrs ago

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    Lately I've seen so many posts on EP by people who say that they are proud to be White, Black, Asian, Latino etc. Then I've read some that say they find it difficult to like other...
    AthenaJones AthenaJones 36-40, F 11 Responses 8 hrs ago

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    He will be 13 years old in a week. Tomorrow, we are leaving for what might be our last hiking trip together. It is so hard to watch him get old. I remember when we reached a...
    SBW2014 SBW2014 51-55, F 3 Responses 8 hrs ago

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    I'm pretty awkward 99% of the time, I don't know how I have friends lol 😂
    Sergjok Sergjok 22-25, M 7 hrs ago

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    Today i read something online doing some personal research about people feeling unloved and it mentioned how those who grew up in homes where their parent(s) didn't show them any...
    TheWorldVsJ TheWorldVsJ 26-30, M 1 Response 7 hrs ago

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    I Have MPD (Multiple Personality Disorder) its bc i was abused as a child and to protect myself my brain split into pieces..... meaning theres basically another peron or persons...
    AiymaSnikies AiymaSnikies 22-25, F 2 Responses 7 hrs ago

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    Not spoken to my mother since May and the only contact I had was her banging on my front door for 2 days demanding I tell her why we're not talking. I tell her to refer to a letter...
    littlehedgehog littlehedgehog 36-40, F 5 hrs ago

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    I found my sister after I was in high school I never knew about her growing we are both very open sexually with each other now we get together at least 3 times a week we have a...
    cuteinmypantiestoo cuteinmypantiestoo 26-30, M 3 Responses 4 hrs ago

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    I have spent the past couple of years in an emotionally abusive relationship. My ex boyfriend had problems with alcohol and would use it as an excuse to accuse me of cheating on...
    amie1986 amie1986 26-30, F 2 Responses 4 hrs ago

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    I have a photographic memory and find it amazingly awesome but also isolating at times. Its caused me to get in arguments (when I know one thing happened and someone argues against...
    AGMemory AGMemory 31-35, F 3 hrs ago

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    Worst Christmas ever. I sent my Christmas with my wife who at times felt like she was elsewhere mentally and emotionally. All I really wanted for Christmas was her being happy...
    wil137 wil137 26-30, M 1 Response 3 hrs ago

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    in 4 days I have gained 7 pounds in weight....hoping to get it back off and lose 14 pounds as I originally was thinking about doing
    ShadowWolf01 ShadowWolf01 16-17, F 1 Response 3 hrs ago

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    So one night stands sound amazing until the realisation kicks in you have no idea what this person is like what they like and normally both drunk and it ends to either being crazy...
    cemmerson cemmerson 22-25, M 2 hrs ago

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    I hope we can see each other soon, I miss your hand in mine, your luscious lips, the sweet tone of your voice, the goosebumps you give me when you run your hand along my arm and...
    W0lfhunter W0lfhunter 41-45, M 2 hrs ago

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    Just like my young uncle did. How happy to have a full lifetime of denture wear!
    ledertal ledertal 51-55, M 1 hr ago

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    i was sooo scared ever since i saw emit till in his coffin and his face was all chopped up and gross i have been scared to go to funerals but three weeks ago i went to my cousins...
    ilovemyhaters ilovemyhaters 13-15, F 49 mins ago

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    i want to have one too! :*
    basyirjustice basyirjustice 13-15, M 29 mins ago

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    Let me begin with well I have a problem I like 2 girls at my school. And they are both friends and everyone is telling me to ask out of the the girls that I hang out with. But how...
    madison57 madison57 13-15, M Nov 26

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    It's beginning to look a lot like Christmas.. You know it's that time of year when the shops are packed and people stop and have arguments in the parking lot bc one stubborn...
    aquagrl aquagrl 31-35, F 1 Response Nov 26

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    I don't understand Catholics sometimes. They believe in God but they worship the Virgin Mary. Don't they know that by worshipping her, they are breaking the 2nd Commandment? Thou...
    InfiniteTearDrops InfiniteTearDrops 13-15, F 1 Response Nov 26

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    I think many guys have a just sex with wives also.....
    awakeja awakeja 51-55, F Nov 26

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    Bad because we don't have one at home at this moment for a long time now. And it sucks because I don't get to go online 24/7.
    dakilangdreamer dakilangdreamer 18-21, F Nov 26

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    I am feeling so alone in this world. And the only company I have is someone who can't stand to be around me - myself..
    prettyballerina prettyballerina 31-35, F Nov 26

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    No matter how much, I want to believe in Gid. I can't. I don't believe God makes mistakes. I believe everybody has a purpose on this earth. I may not have all the male genes and im...
    KatrinaBoyer41 KatrinaBoyer41 36-40 3 Responses Nov 26

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    if guys get hard every morning and the eath revolves around the sun, does that mean men have been doing a huge ***** wave around the earth for millions of years?
    chucku45 chucku45 13-15, F 2 Responses Nov 26

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    I haven't update any experience with this statement in a really long time. 5'3, 84lbs I think that explains it. I finally succeeded^^ my goal has been reached. But I'm scared...
    roseinsurvival roseinsurvival 13-15 2 Responses Nov 26

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    I have snapchat. I love gettin dirty with girls 😘 add me: der_stahlhelm
    OGLithium OGLithium 16-17, M Nov 26

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    Which often means means I don't go to sleep until just before 5 or 6am. And I always feel so lazy when I wake up around midday, even though I've only had five to seven hours sleep...
    IdleFox IdleFox 26-30, F 3 Responses Nov 26

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    I have been there quite a lot of times usually on my way to the Airport from somewhere else. before 9/11 there was a convenient left luggage at Grand Central where I could leave...
    Wulfstan Wulfstan 70+, M Nov 26

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