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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 66-70 May 16, 2012

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    Related Experiences

    I get to swim with these amazing creatures every single day as I work with them. they are so smart and beautiful. I truly believe I have one of the best jobs in the world
    alex2123 alex2123 18-21, T 22 mins ago

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    Being single, I have endured some very painful house chore consequences. One is pouring an oil on heated frypan from head high causing the oil to burst causing burns on my skin...
    katsuobushi katsuobushi 36-40, M 1 Response 28 mins ago

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    I have small lips ._. Curses!!!!
    BrokenInnocence BrokenInnocence 13-15, F 41 mins ago

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    Our elder project leader asked I and a female young colleague where we wanted to eat for lunch. (We usually asked for his decision.) She said to him I (me) had talked about an...
    katsuobushi katsuobushi 36-40, M 48 mins ago

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    I've been told I have that stereotypical New York accent, which isn't surprising since I'm from New York. But it kinda sucks because of my blunt personality, and it makes me sound...
    CaricatureRenaitre CaricatureRenaitre 70+, M 1 Response 1 hr ago

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    Hey it's my birthday today!!! Let's all have a great day!!! :))))
    buscameenelcielo buscameenelcielo 26-30, F 7 Responses 1 hr ago

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    Looking for an attractive man aged 26-40 to have a discrete relationship with my husband & I.
    PollyAmoreMMF PollyAmoreMMF 31-35, F 2 Responses 2 hrs ago

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    Im so sad thinkinf about my joints. My elbows are inflamed, red and swollen everyday. My knees are also swollen and i feel pain everywhere basically. I've seen doctors and im being...
    HigherCalling HigherCalling 26-30, F 2 hrs ago

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    So for the longest time I grew up pulling mainly my lashes. Then it turned into pulling at my brows, too. Now I'm at the point where I've been able to grow more lashes than I've...
    mcoulter94 mcoulter94 18-21, F 3 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 1 Response 4 hrs ago

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    I'm having a terrible day. I've worked 30 of 48 hours, I broke it off with my boyfriend, I have a migraine, I can't sleep, I'm probably going to be fired, and none of my friends...
    DancesWithUnicorns DancesWithUnicorns 22-25, F 2 Responses 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    Which Keirsey Personality Type Are You?The RationalsYou're a Rational! Rationals are abstract and objective thinkers that seek knowledge. You strive to learn as many subjects as...
    4BlackForest 4BlackForest 36-40, F 1 Response 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    I kind of do.... I mean first of all, we have only explored less than 1% of Earths oceans, so if you look at that and say mermaids aren't real, then you're just an idiot. Then...
    CloverMermaid CloverMermaid 13-15, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 5 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 5 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 5 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 5 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 5 hrs ago

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    I have had eczema ever since I was born and I hate it it keeps me from the things I like to do. I love sports and I love to play them but I can because if I get over heated, sleepy...
    chocolatecrazy9010 chocolatecrazy9010 13-15, F 5 hrs ago

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    I oddly have a crush on my boyfriends parents I am not sure why and it's so weird but both his dad and his mom stir something inside me.
    Loverk3u Loverk3u 18-21, F 2 Responses 5 hrs ago

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    Can I get some advice real quick? I've been told I have a really nice voice and I'm curious if I could go anywhere with it? Not like singing but voice acting? Is there more...
    akaShaun akaShaun 16-17, M 4 Responses 5 hrs ago

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    I want to have a boyfriend so if there's someone is available please message me i don't care even it's a long distance relationship i just want to have someone that will comfort me...
    reonz reonz 18-21 5 hrs ago

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    Me and my girlfriend have sex almost everyday and it never gets old. We are open with each other sexually which helps a lot. We try new things all Tyne time. However, me on top...
    Funderburk93 Funderburk93 18-21, M 5 hrs ago

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    I will take it from anybody.... I have taken so much, and I am at my limits. I have allowed my self to take it because I am tired of the back and forth crap that goes with it...
    SassyBabe39 SassyBabe39 41-45, F 5 hrs ago

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    Why does Indian society still have to be so male dominated.?Or is it that some men are controlled by their ego?I wonder.
    whitesunshine87 whitesunshine87 51-55, F 2 Responses 5 hrs ago

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    Apparently, I could have been an artist.
    adhane05 adhane05 22-25, M 1 Response 6 hrs ago

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    Imagine a stone wall.. Behind that stone walls there's all your dreams and wishes. Everything you could ever hope for. Now there's no way around that wall..you cannot climb it...
    thekingwizard thekingwizard 18-21, M 6 hrs ago

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    i want to have passionate animalistic fun with showerbutt !! she gets me SO hard !!
    jaydog80 jaydog80 31-35, M 6 hrs ago

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