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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 70+ May 16, 2012

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Related Experiences

    I was always taught to fear and hate people opposite of my race. I could never understand why I would want to hate another fellow human being when some of our living conditions...
    AquariusLife AquariusLife 26-30, F 20 mins ago

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    So many have left.... I just feel like whenever I get too close they just drift away. It always happens.
    oneandonly24 oneandonly24 16-17, F 1 Response 34 mins ago

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    I'm also highly-anxious and these symptoms are exacerbated when I drink, which I've done on and off to a detrimental degree for about the last 20 years. I'm fearing my life is so...
    KevinHilly KevinHilly 36-40, M Jun 30

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    cows have a beef with everybody
    hollyjollyholly hollyjollyholly 13-15, F Jun 30

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    I love my bearded dragon. The guy at the pet store claimed it was a girl but it was a boy. He is a beautiful yellow color and some dark. His name is Damon, only because sometimes...
    BeautifulDisaster1989 BeautifulDisaster1989 22-25, F Jun 30

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    I suffer from insomnia, so I stay up for days and when I do sleep with by taking pills or naturally I always wake up in cold sweat and have a racing heart beat like I ran a...
    CastleFreak CastleFreak 26-30, F 1 Response Jun 30

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    I thought I will never get a job, but now I have one. 'am loving it.
    arjob arjob 22-25, M 3 Responses Jun 30

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    My husband and i are in the military. We got married september 30 2013. And a couple weeks after that we got notice of an investigation. A person he had slept with months prior was...
    melguzman21 melguzman21 22-25, F Jun 30

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    I feel I am 5000 years old. Every bone is creaking and cracking, heating pad not helping. And my muscles feel like the claymation artists forgot to let the pieces go back to their...
    PandorasDream PandorasDream 36-40, F Jun 30

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    I believe everyone should have album of photos on ep. In this way we would understand wether the person really exists and that the profile is not fake. I see continuously men who...
    prince35xxx prince35xxx 31-35, M 3 Responses Jun 30

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    I am 19 and never had a long term type relationship. You know recently I've tried meeting guys from dating sites but I get freaked our cause of my social and general anxiety. And I...
    lexik123 lexik123 18-21, F 3 Responses Jun 30

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    I guess it's only fair to update my life on this thing if I started posting really depressing stuff lol Sooooo I told my bf I had HSV1. He said that no matter where it was, and...
    pinkladyyy pinkladyyy 18-21, F 2 Responses Jun 30

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    ....continued After that night at the marina, he started acting weird. He would call me 24/7 he'd insist on knowing where I was at all times & why I wouldn't answer him or text...
    ElenaSC ElenaSC 18-21, F 1 Response Jun 30

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    Random Thoughts Part II: It kind of bugs me when people say things like "It's nice to meet you", before they've gotten to know me. I mean how do you know it's nice to meet me, I'm...
    DeathstalkerScorpion DeathstalkerScorpion 22-25, M 1 Response Jun 30

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    Do blind people have dreams?
    adhane05 adhane05 22-25, M 5 Responses Jun 30

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    I have several. I am sure we all do. I think I've grown to appreciate them. They remind me of my struggles, and also give me strength. But... This just may be my insomnia...
    NewShoes12 NewShoes12 26-30, M 1 Response Jun 30

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    What if I could see the future? So this one time I felt like I had a big time lapse and can't remember when a event happened. A couple weeks back on Friday I was hanging out with...
    benj3 benj3 16-17, M Jun 30

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    I was emotional abuse survivor and i was giving fault to people that hurt me and was dwelling on that memories of how people have hurt me. Today im ashamed of it. Why i didnt let...
    angel8i angel8i 31-35, F Jun 30

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    I just started seeing my abusive ex again. We split apart for three months. He has taken full responsibility for everything , and recognized his flaws now that he's had time to...
    leaom22 leaom22 22-25, F 7 Responses Jun 30

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    Anyone who doesn't have a weird sense of humour, GOBILYE (Get Out Before I Lick Your Elbow)
    HappensForAReason HappensForAReason 13-15, M 1 Response Jun 30

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    When people are at our house and they ask: "Hey man, do you have a bathroom?" I look left and right before I whisper my reply: "Sorry man, we sh1t in the front yard, and we use it...
    Ansonicchi Ansonicchi 18-21, M 6 Responses Jun 30

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    uhm,well, I really don't get it. I personally do not think I am beautiful. I think I am photogenic and maybe the light and the angles make me beautiful. I don't know what to say...
    Wewerethereinthattime Wewerethereinthattime 18-21, F 2 Responses Jun 30

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    The issue that I have is that I never had a daughter. It would be nice to experience this.
    NuclearELDER NuclearELDER 41-45, M Jun 30

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    hi there, I've had a problem for a long time. I don't really have common topics with general people. I like to know and talk the knowledges of history, politics, economics, arts...
    chiyu716 chiyu716 26-30, F 1 Response Jun 30

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    One dream from the other night, then the dream from this night. In the dream I came from a large family. There were 4 girls and 3 guys. My youngest sister was 8, the next was...
    PinkMellow PinkMellow 18-21, F Jun 30

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    I feel guilty sometimes when I eat meat, I remember the guy who told me that animals also have feelings.. He said think about them when they are crying, shouting and screaming when...
    Lovesweetlove Lovesweetlove 26-30, F 11 Responses Jun 30

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    I am constantly been told by my friends, family and most especially strangers that I am beautiful. I believe them and it makes my day :). I always get complimented a lot on my eyes...
    Liv4Life Liv4Life 18-21, F 1 Response Jun 30

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    Well today is the day he gets released I go pick him up in a few hours, I'm so nervous, today is the first day for our future together. Can't wait to see his amazing smile, I hope...
    nicolet12 nicolet12 18-21, F 4 Responses Jun 30

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    My imagination has run dry. I simply don't have the free time to come up with my second part of the angel story. I can't think . I can't focus. I can't relax. I start to relax then...
    Stargazinggal Stargazinggal 41-45, F Jun 30

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    I have three. It is killing me that I can't beat my younger brother at the gym. I am thinking of putting tranquilizers in his cereal.
    Gumba1000 Gumba1000 26-30, M 2 Responses Jun 30

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    I met with my son's father a while back, must be nearly a year now, and I didn't really know him all that well, so we went on a few dates and I let him into my home. He didn't know...
    timeline112 timeline112 18-21, F 1 Response Jun 30

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    im sitting on a chair made of wicker and i have little stickers on my snickers nickers
    hollyjollyholly hollyjollyholly 13-15, F 1 Response Jun 30

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    First of all, I won't judge you in the least for drinking smoking, drugs, whatever. I have simply decided that I don't need them in my life in order to enjoy it, and this is coming...
    myguitarisbusted myguitarisbusted 41-45, M 2 Responses Jun 30

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    For the past few days, following several conversations with different friends, I’ve been thinking about the notion of soul mates. I find the idea that each of us has only one...
    diablesse34 diablesse34 46-50, F 8 Responses Jun 30

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    One lovely lady helped my with some advice. Any other girls have words of wisdom or encouragement cause I'm scared haha.
    staysecret staysecret 22-25, F 6 Responses Jun 30

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    I have learned and taught myself to never get my hopes up because I get disappointed every time
    findasilverlining33 findasilverlining33 16-17, F 2 Responses Jun 30

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    I have travelled to North and South America, Europe, Africa, Asia, and Australia, just missing Antarctica ! Would be willing to go but it is very far away and hard to get to...
    tomkojohn tomkojohn 51-55, M 1 Response Jun 30

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    I was thinking for a sec and I kind of remembered that I love more my 7 year old cousin Nahui than my 3 year old cousin Jeremiah. Well my favorite cousin is 13 but I haven't seen...
    AnonymousJSS AnonymousJSS 13-15, F Jun 30

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    My least favorite comment about my hair. "Oh it's like a bristle pad." "Your hair looks like pubes." Oh my god have you even seen pubes before?! That's only cool when I say it...
    NotApplicable NotApplicable 22-25, F 1 Response Jun 30

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    Worried about taking medication UrDA and there's no effect on the fatigue. Anyone have any good suggestions for dealing with it? Diet changes? Complimentary medicine? Thanks!
    wonderwoman100 wonderwoman100 41-45, F Jun 30

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    I feel like my universe is just so out of alignment.....everything i have known for so long is just not there anymore :0(