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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 66-70 May 16, 2012

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Related Experiences

    It was towards the end of last summer when the most amazing thing happened to me. Of course I know the exact day. It was Aug 3. I had been on my own for some time- Feb of 2012 to...
    Sugasug Sugasug 41-45, M 1 Response 17 hrs ago

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    I used to be so afraid of people thinking I was selfish or not being accepted so I would never tell people things about my life. I have trouble making friends because I don't have...
    Stormdance Stormdance 18-21, F 17 hrs ago

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    i stress myself out too much about unnecessary things. i focus too much on the future instead of the now, i worry too much about what's NOT going to happen in my life instead of...
    miracle1487 miracle1487 26-30, F 1 Response 5 hrs ago

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    I stopped coming to ep as often because when i do, my curiosity can get the better of me. I love flirting. Sometimes more than i like to confess, yet here i am. Who doesn't love...
    mor2life3 mor2life3 51-55, F 3 Responses 10 hrs ago

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    I feel like I am too selfish of a person to have kids... I will always be this way. Sure, I may look out for others and take a leadership role, but I will forever do things for...
    RocaAzul RocaAzul 18-21, F 1 Response 7 hrs ago

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    I have read abt foregiveness,and how powerful it can be in healing Moving on& pressing forward. It is one those lessons that is esier always to say then do I have always been a...
    Sugasug Sugasug 41-45, M 1 Response 2 hrs ago

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    First of Hello all you wonderful people on EP. first of I am going to high school, Yay away form the most ignorant, rude, selfish, stuck up children and teachers and Principals...
    twistex2015 twistex2015 18-21, M 47 mins ago

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    I have issues in that I don't know which me is me. I have my patch (I take my meds in a patch form) on for 95% of my waking life, so at a glance, I'm a mostly calm, school-focused...
    stormthenb stormthenb 13-15 1 Response 20 hrs ago

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    Went to the Vascular Surgeon last week after suffering DAILY for two years now. However, I have suffered since my teens. It was not as bad until an autoimmune disease revved it up...
    euphoricvoyage euphoricvoyage 26-30, F 19 hrs ago

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    I NEED TO VENT IM FEELING CRAPPY IM TIRED AND WORN OUT AS THEDAY HASNT BEGUN YET I HAVENT SLEPT A WEEK I HAVE TO GO TO MENTAL HEALTH I FEEL LIKEI JUST DONT WANT TO GO O I LOATHE...
    hannahabbie hannahabbie 46-50, F 12 hrs ago

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    Ok, i have the nice side that everyone knows, and then i have my dark side. I won't go into details, but you really don't wanna see it
    MayaTheBlue MayaTheBlue 18-21, F 11 hrs ago

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    Larry Robert (superfly) Bauman those singles sites are all you'll ever get, Ladies out there, this man preys on women, is a complete lunatic and will steal everything that you have...
    btrflifree btrflifree 31-35, F 2 Responses 7 hrs ago

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    Okay I am a woerd crazy person who get influence by solo many things so let me tell you some the things I want to do before I leave this world (yeah I am young so may a long time...
    CuteButTheDevil CuteButTheDevil 16-17, F 1 Response 7 hrs ago

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    My husband had an emotional affair with a younger, prettier co-worker for about 10 months. It all started when she joined the company my husband worked for. When she first...
    private7069 private7069 41-45, F 2 Responses 5 hrs ago

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    I have crush on my ex boyfriend, let's just say I still love him. I love him for who he is and not what he have. I love him for his mistakes, imperfections, and everything! That's...
    XxCuTiE14xX XxCuTiE14xX 16-17, F 2 Responses 4 hrs ago

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    It's safe to say I didn't dream about being a mommy with lots of kids, but here I am with 5 children. Sometimes I I can't believe that I have all of these children especially when...
    Braveheart4real Braveheart4real 31-35, F 3 hrs ago

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    Since my husband passed away 11 years ago, I have felt very alone. I have made some friends over the years, and each of them has used me. I have dated off and on and that hasn't...
    sleep2dream sleep2dream 36-40, F 3 hrs ago

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    Ok!! So...i have just completed my Master NLP course. I am looking for 2 men to work with who are committed to freeing themselves of their Paraphilias. I am about getting...
    paraphiliacoach44 paraphiliacoach44 26-30 1 hr ago

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    Yes, I've forgiven those who have hurt me in the past because at one point I wanted forgiveness too even if I didn't deserve it. It is absolutely freeing to forgive. Thank You...
    JesusReigns777 JesusReigns777 26-30, F 2 Responses 20 hrs ago

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    I'm gonna get my 19th tattoo today. I know what I want my 20th to represent, but I have no idea what its gonna be. I want it to somehow represent how I'm boldly authentic, yet...
    OqSydSchizo16 OqSydSchizo16 36-40, M 1 Response 20 hrs ago

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    I used to be very fit and recently have been growing a pudgy little belly. But some weight has been going to my thighs and butt making them jiggly and they have a little bit of...
    chubbybellyguy69 chubbybellyguy69 18-21, M 19 hrs ago

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    so finally all doubts have been cleared and it is proved again,,, that some people have their ego, stubbornness is much larger than anything else,,, hahaha,,, and mistake , if it...
    mdbest4u mdbest4u 26-30, M 17 hrs ago

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    so finally all doubts have been cleared and it is proved again,,, that some people have their ego, stubbornness is much larger than anything else,,, hahaha,,, and mistake , if it...
    mdbest4u mdbest4u 26-30, M 17 hrs ago

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    I have a wide range of personal space. Physical proximity matters and comfort would depend on merit or my ties with the person next to me. I'd have to fix the boundary, it's...
    AB2WUS AB2WUS 22-25 16 hrs ago

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    Well, I just graduated from my high school. I am happy and also worried about my future. But there is still a regret. I was in love with a boy. I couldn't stop thinking about him...
    Anomago Anomago 18-21, F 2 Responses 15 hrs ago

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    I have 2 sides when I'm angry. I call them Dr. Jekyll and Mr. Hyde. I dislike getting mad.
    blkrhino blkrhino 31-35, M 15 hrs ago

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    Owl Green man..yes u. look at the first part of this in experiences. soo u wanna ask me anything do it here? ofcourse i do care about u, and what i like about u is the deepness...
    Kannor Kannor 31-35, M 1 Response 14 hrs ago

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    I'm just wondering if anyone else out there has the same problem.. Anxiety! I panic and I always think the worst.. I have a ache or pain and I think it's cancer, a headache is a...
    daniellerookexx daniellerookexx 18-21, F 13 hrs ago

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    Why does the world have to hate?! Why can't I have a normal life just like everyone else?! Why can't people just ******* stop making fun and putting me down?! It's not like I chose...
    TheTrabish TheTrabish 16-17, F 12 hrs ago

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    just because i forgive, doesn't mean i forget. i don't have that luxury.
    CallmeHopelessNotRomantic CallmeHopelessNotRomantic 36-40, F 2 Responses 11 hrs ago

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    my boyfriend and I have been in a relationship for 6 years. he's my high school sweetheart. recently we moved into our new place and I'm having baby fever. I know we are not ready...
    constancemariefat constancemariefat 22-25, F 1 Response 10 hrs ago

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    I know I have emotions but this is one of the times, that I can't tell where they are... maybe I left them in bed. It's almost like I'm so used to the meaningless flurry of...
    LadySweetz LadySweetz 18-21, F 8 hrs ago

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    Yey I found this out 2/3 years ago actually. I was so shocked and it was weird. I found out all about my mum and dads past life before i was born. It was horrible listening to my...
    ItsJustRebecca ItsJustRebecca 13-15, F 7 hrs ago

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    I think im going crazy. I hate everything everyone...I cant stand anything, literally. My body, my mind, and soul. I want to kill myself so badly. Im a paradox waiting to be thrown...
    ToLiveYouMustDie ToLiveYouMustDie 13-15, F 6 hrs ago

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    I want a second child So badly, but my husband wants to wait for a year,and a half, so that way we don't have to postpone our trip to Vegas :( I don't even party! I could make...
    mommashelper mommashelper 18-21 6 hrs ago

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