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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 70+ May 16, 2012

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Related Experiences

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    Does this ever go away or get better? I was diagnosed in February and now I'm 19 and still go to a therapist...well as of late I've been seeing a psychotherapist. I have dysthymia...
    bisexual95 bisexual95 18-21, F 39 mins ago

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    He went to play pool at 9 pm. It is now 1:30am. Wtf? How can I not be upset at this? Be a grown man and let me know you are ok and when you are coming home. Just great. Just when...
    txhouswife42 txhouswife42 41-45, F 2 Responses 4 hrs ago

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    I'm really, really bored with iPhone's now, especially my own dull, dreary and plastic 5C. I'm very passionate about phone's, so when the 5C came out before the 5S, the impatient...
    Ryanholmes20375 Ryanholmes20375 18-21, M 1 Response 3 hrs ago

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    My system is a house. We all live in this house, with our own rooms (bedrooms) and communal rooms. Like the lounge room and library. We also have something like a prison, where the...
    TheDylanWorld TheDylanWorld 13-15, M 1 Response 2 hrs ago

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    My system is a house. We all live in this house, with our own rooms (bedrooms) and communal rooms. Like the lounge room and library. We also have something like a prison, where the...
    TheDylanWorld TheDylanWorld 13-15, M 1 Response 1 hr ago

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    service provided in this lodge is fantastic, they provide the very best in customer care and a superb breakfast, almost nothing is ever a difficulty to them and with only some area...
    Jeffrybup Jeffrybup 31-35, M 1 Response 1 hr ago

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    Sometimes I wish I had friends but at this point in my life I don't have the time or energy for a friendship. I always give so much to my friends.. I'm honest, thoughtful, helpful...
    xobrowneyedgirly xobrowneyedgirly 22-25, F 3 Responses 49 mins ago

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    When I said I promise I would change...lied... When I said I have a dream to be a writer, it's not mine I've stolen it from my sister. When I chose Journalism back in university...
    Quentine Quentine 22-25, F 8 mins ago

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    One thing I have learned over the years (and Girls, you should especially take note) is that there are attractive people, and there are drunk people, BUT there are NO attractive...
    murphysmaster murphysmaster 51-55, M 2 Responses 4 hrs ago

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    I went to community taco. night. I am a young Grandma. I saw my granddaughter at the tavern. We sat outside under the big oaks and talked casually. She told me how her new school...
    MCK21 MCK21 46-50, F 4 hrs ago

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    I'll never understand the idea of those who think just because some doesn't have the same skin tone as another person they are either better or looked down on... Granted now says...
    ValhallaAwaits ValhallaAwaits 18-21, M 4 hrs ago

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    Funny how most people in America (not all people, just most) seem to have no problem at all with violence on the scale of all of the wars the United States has been involved in...
    BLACKTIGER75 BLACKTIGER75 36-40, M 1 Response 4 hrs ago

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    I have heard some of the harshest truth about myself, the people I love and the world. It's such a sad realization that things can be as ****** up as they are but on the bright...
    Rbsgirl22 Rbsgirl22 18-21, F 1 Response 4 hrs ago

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    Having Dysautonomia is like screaming in a sound proofed room. The doctors see you and they nod their head, yet as as the words tumble out of your mouth you might as well be...
    BrittMari BrittMari 16-17, F 1 Response 4 hrs ago

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    Currently, my husband is struggling with CVS (Cyclic Vomiting Syndrome). This is probably one of the most frustrating things for someone you love to have. He will be fine for a few...
    kristinap123 kristinap123 22-25, F 3 hrs ago

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    I had about 6 panic attacks tonight, all within an hour. Not sure what set me off; I hate it when they come out of the blue like that, I was fine all day. I was able to not let...
    cricket2121 cricket2121 18-21, F 4 Responses 3 hrs ago

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    This is ruining my life. Impulses I can't control. Anger I cant maintain. Such deep brutal feelings. Scars from head to toe, self inflicted, done so I didn't have to feel my...
    skinfeeder skinfeeder 26-30 1 Response 2 hrs ago

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    Welcome to the life in live theater/ performance art. I have applied makeup, costumes and learned more uses for medical tape that the average person could imagine.
    GleefulLaughs GleefulLaughs 36-40, F 2 Responses 2 hrs ago

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    I am in a deep forest. My throat is parched and my lips are dry. Under the huge canopy of the trees a well appears, brimming with water. I scoop the water in my palms and I drink...
    novembermountain novembermountain 41-45, F 2 hrs ago

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    This apartment complicated is located in Nerja, lying amidst the wealthy lifestyle and heritage of this amazing region. The complex is situated just one km clear of the beach. The...
    Temple2516ja Temple2516ja 31-35, M 1 Response 2 hrs ago

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    I've been working full time as a checkout operator for about a year now. It's slowly turning me into a terrible person... It's not the angry customers that bother me, because it...
    Claireli Claireli 18-21, F 1 Response 2 hrs ago

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    Last Thursday I had my hair permed at a Old Ladies - perm and set salon.Sadly the perm did not take. The dowdy looking hairdresser wound my hair onto the green rods perfectly but...
    pinnyapron pinnyapron 51-55, F 1 hr ago

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    This is me signing off for the weekend. To one and all - HAVE A GREAT WEEKEND
    ConcreteSleeper ConcreteSleeper 31-35, M 1 Response 1 hr ago

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    I am not really a 3 or 4 AMer anymore, yet here I am, up at 3:08 AM. Definitely gonna crash soon. Wonder if I will have weird dreams from the pot brownie I ate. Hmmmm.
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    My friend today said she envies me "you have the husband, 4 happy kids, the house even the dog and you work" Appearances can be deceiving as she assumes I'm happy
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    I lost both parents by the age of 18. My dad died of a brain tumour when I was 17, then my mum died also of cancer when I was 18. I have to live the rest of my life without them.
    Jen97 Jen97 22-25, F 1 Response 23 mins ago

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    Well i wouldnt say no friends bc i do have a friend online But at school or irl i never have anyone to talk to. I just sit in the library or some random place in school huddled...
    InfiniteMusic InfiniteMusic 13-15, M 2 Responses Aug 20

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    Ever have that annoying gnat flying right by your eye? Then you swat at it to make it leave you alone and people near you think your crazy.
    GreenAppleMartini GreenAppleMartini 22-25, F 3 Responses Aug 20

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    Well my sweet summer is almost ending. It sucked balls and it was **** (kind of) But I was taught life lessons for the past 3 months and I think I'm doing fine. In retrospect I...
    DysfunctionalPiano DysfunctionalPiano 13-15, F 2 Responses Aug 20

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    Are you forgetful like me? Sitting there with the fridge door open, cup in hand, staring at the jug of water like why am I looking in the fridge. I close the fridge, look at the...
    GreenAppleMartini GreenAppleMartini 22-25, F 3 Responses Aug 20

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    Real distant managed electrical Velux double glazed skylight comprehensive with flashing package. Brand-new in box. VSE C01 2004A product with EDW C01 0000 flashing kit (flashing...
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    I've had my CPAP for several years now. I love it! I can't believe how long I slept without it! When I was younger, my sister would plug my nose and I'd turn over. Wasn't mean, I...
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    anxiety and depression..iam troubled with my life, i don't feel like iam living, i don't find anything good to live with, everything is troubled, i do everything with difficulty...
    Emmajasonn Emmajasonn 18-21, F 3 Responses Aug 20

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    Ever have a fight with a stink bug and its crew? I have... -_-
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    my diagnosis remains unclear to me cause ive been diagnosed with so many things.But i do suffer from depression.I do cut and burn myself. And my anxiety though ive never been...
    Passionfruit3 Passionfruit3 18-21, F 1 Response Aug 20

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    Remember to Speak to CommIT Consultants to understand more about how our guaranteed Search engine marketing options can help you to radically improve your Web siteR17;s...
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