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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 70+ May 16, 2012

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    Related Experiences

    It's the 26th day of my only attempt to stop throwing up, and not every day has been perfect diet and sometimes I haven't done any exercise at all on a few of the days but I haven...
    zoehammo zoehammo 18-21, F 1 Response 4 hrs ago

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    I have very strict mom (my dad died already) but I'm very PROUD and THANKFUL to GOD because we have a mommy like her ❤ If I would given a chance to pick a mommy again I would...
    TheRealYhan TheRealYhan 16-17, F 2 hrs ago

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    I have a group of friends and everything and i really want to tell them about me having my "gift"(inherited lycan genetics)but my friends don't believe in that stuff (no thanks to...
    paperclip2003 paperclip2003 13-15, M 4 hrs ago

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    I have huge trouble opening up to boyfriends so my relationships are never as open, intimate and real as they should be. Im always afraid that as soon as I let them in they will...
    miloks miloks 26-30, F 3 Responses 3 hrs ago

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    I just threw in this group for people that have done so much with there life, they are burn out or bored with it. My goal is to use this experience we have to help others.
    starfoxACEFOX starfoxACEFOX 26-30, M 3 hrs ago

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    i think we should understand the meaning of our dad and mom before we have lost them :(
    berealistic811 berealistic811 26-30, M 2 Responses 3 hrs ago

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    I have an alter ego. I'm not weird, I'm not insane.
    sen017 sen017 22-25, F 1 Response 2 hrs ago

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    Who doesn't want to have fun, life would be very boring if there was no fun......
    MyTongueYourPussy MyTongueYourPussy 41-45, M 2 hrs ago

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    The component that it might not do the job for many people is that they probably have minimal sensitivity to hypnosis.Hypnosis is a wonderfully all-natural state wherein somebody's...
    Laurenazrj90 Laurenazrj90 31-35, M 1 Response 2 hrs ago

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    I have dreams that come true the next day, I see things and can communicate to spirits.
    grimsta1908 grimsta1908 13-15, F 29 mins ago

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    I was diagnosed with HS about a year ago, but I have struggle with it since I was in the 4th grade, the year I reached puberty. I am now 14, about to be 15, going into the 9th...
    laurenblovesyou laurenblovesyou 13-15, F 2 Responses Aug 2

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    I first met her about two years ago in school. I had just moved and one of my new friends introduced us wen I came over to sit with them. That first year I didn't talk to her much...
    Rachlm214 Rachlm214 16-17, F Aug 2

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    I had two miscarriages and an abortion but I posted those experiences already. My first wanted pregnancy started of rocky. I started bleeding at 6 weeks but I held her. We were in...
    BOJ1988 BOJ1988 26-30, F 1 Response Aug 2

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    Ive got anxiety so that makes it hard and impossible sometimes, but even when i feel like maybe just maybe i could talk to somebody. I still havent the slightest clue what to talk...
    shinjorai shinjorai 36-40, M Aug 2

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    I sometimes think EP is like a personal diary where you can share your thoughts and feelings with others.today i m feeling very happy because I sent Rakhi to my brothers . Rakhi is...
    beautifulbluesea beautifulbluesea 31-35, F Aug 2

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    New to this. I'm 26 and have been with my fiancé for almost 8 years and we have a 3 year old son. My son's father started taking percocets and moved to smoking crack and shooting...
    Danielle727 Danielle727 26-30, F 2 Responses Aug 2

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    I have a little brother, he is 4 years old and I am 15. There are 11 years of difference in age between us. And when I eventually move out, and leave my parents house, he will stay...
    guesswhoshere guesswhoshere 13-15, M Aug 2

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    I'm starting off my senior year in two days with 0 friends and everyone hating me because of some stupid girl who was the only friend I had (or I thought). Im terrible at...
    tootaloo tootaloo 16-17, F 5 Responses Aug 2

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    I often feel like I'm losing my mind and now that I'm trying to stop it, I feel worse. I have never spoken with anyone who suffers from Daydreaming as well. I want to talk to...
    Kailygrace1207 Kailygrace1207 13-15, F Aug 2

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    Well ladies I've decided to write my experience of what I went through during the time I was with an inmate... I met him two weeks before he was arrested. We exchanged number and...
    Catmando05 Catmando05 22-25, F 1 Response Aug 2

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    Hey cousin :P I have to tell you something "Sure what is it? :D" I'm asexual "Oh Gabby you haven't meet the right person yet :D" :D .... -Facepalm- Ok get out :D
    DysfunctionalPiano DysfunctionalPiano 13-15, F Aug 2

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    Ricky- US Navy Air Pilot .I was blessed to have my soldier for the time I did but it was his time to go and he did it serving our country I miss him everyday it hurts deeper than...
    ChandlerTitus1 ChandlerTitus1 18-21, F 1 Response Aug 2

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    It's very odd. I have blue eyes but they turn colors based off of my mood and weather. If I'm upset or it's gloomy outside they are more of a hazel. If I'm happy or it's a nice day...
    Rose2622 Rose2622 18-21, F 4 Responses Aug 2

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    Tonight as I write this, I'm thinking of someone far away that I know I have no right to miss or think of. Sometimes late at night he creeps into my thoughts, and even though it's...
    Themassagegal Themassagegal 31-35, F Aug 2

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    Seriously i get quieter or pass out when i have too much drinks. i'm supposed to get wild by then but its the other way around lol
    exprouser14 exprouser14 22-25, F 3 Responses Aug 2

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    Everyone goes through bad experiences, but are we just looking at it from the wrong perspective? Whenever somebody asks about my childhood or my current living events (referring...
    zzamara zzamara 16-17, F Aug 2

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    Exactly!!! I believe as long as two people have a connection and have common interests and bonds age doesn't matter! In most cases...
    Devotedmom77 Devotedmom77 36-40, F 3 Responses Aug 2

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    I get so high on her messages. The anticipation of hearing from her again, seeing her face, her body. I get horny every time. It's aching everywhere. And I have to do something...
    Skywalker1979 Skywalker1979 31-35, M 2 Responses Aug 2

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    *Tiana Jade* This girl needs no introduction. lol Seriously, she's the most amazing person i've known here. Pure hearted, a one of a kind friend that you'll surely love to have...
    DarkSoul07 DarkSoul07 22-25, F 2 Responses Aug 2

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    Why do i have to like/want a crazy clingy girlfriend or female friend
    CuddlesNSnuggles CuddlesNSnuggles 13-15, M 2 Responses Aug 2

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    I love it when you can have a conversation with someone using just eye contact and eyebrow movement haha
    moonziggy moonziggy 18-21, F Aug 2

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    For the past few days I have been having really weird and creepy dreams. I can make horror movies out of them...
    howlingtiger howlingtiger 16-17, F Aug 2

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    *sigh* I have a problem but no understanding ears 👂
    MrsGigalowJr MrsGigalowJr 26-30, F 1 Response Aug 2

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    I hate the fact that i have them. like when i was talking to my friend on fb she did nothing wrong no one did theres nothing wrong but it just happens just like that
    rsddhj rsddhj 13-15, F Aug 2

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    At one in my point in my life I did. At another I couldnt go a single night with out some sort of substance to enhance my night. I loved how with a few sips changed everything...
    AxiosThanatos AxiosThanatos 18-21, M 1 Response Aug 2

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    I have dated across the a rainbow of colors and nationalities. I'm African-American married (and divorced) an Irish Catholic American. I have two children who are very proud of...
    hazelarcher hazelarcher 41-45, F 4 Responses Aug 2

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    To those who have insecurities, especially on beauty. http://imgfave.com/view/4883840?u=367806
    MyEternalDesires MyEternalDesires 22-25, F Aug 2

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    ...I'm afraid that destiny will fall us apart...my current situation will make us fall apart soon...i have a heavy heart, i don't know what to think, all i know afraid of losing...
    hannagrace hannagrace 31-35, F 2 Responses Aug 2

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    I've stated I don't believe in the traditional idea of forgiveness. I believe it's something one earns, a privilege and not a right. I also believe some simply go too far for...
    TheDivineParody TheDivineParody 22-25, M Aug 2

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    I will never stop loving you... I'm afraid that it's true... I will try to deny it... I'll try my hardest to deny it, try my damn hardest to, if ever these future long years the...
    SimonFlarerington SimonFlarerington 22-25, M Aug 2

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    Hahahahaha... I know how to be really rich over night. And i also know that the idea i'm going to share will probably never happen. Lol. Have fun guys! :) Just Imagine that: Just...
    pkmaster pkmaster 18-21, M