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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 70+ May 16, 2012

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Related Experiences

    this is my story on how i managed to beat Lupus and the HOrrIBLE JOINT pain-- WOW!!!! Congratulations Crystal :) I'm so happy to receive your email and learn how much better you...
    heavenlygardens heavenlygardens 51-55, F 7 hrs ago

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    How do you get over it? I knew going into my marriage and my attempts to have children that there was a good chance I wouldn't be able to conceive. The doctor told me when I was...
    Dawn0421 Dawn0421 31-35, F 7 hrs ago

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    Russell. If there is one man who has literally become my worst nightmare, it's Russell *beeping* Brand. In real life i'm sure he's nice, but i'll NEVER forgive him for the...
    Monstermaster13 Monstermaster13 22-25, M 4 hrs ago

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    I was young at the time, age 17. I decided to meet up with this guy who I thought was my boyfriend and the sweetest ever. Turns out I found out he was drunk and wanted to have sex...
    chebrianna chebrianna 18-21, F 2 hrs ago

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    Well sentencing is Friday. They took him back into custody last Wednesday. I'm scared to death! He has done a few jail runs, but now he is facing 18-22 months. I know that's...
    DeniseMarie72 DeniseMarie72 41-45, F 2 Responses 5 hrs ago

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    I think that a genuine smile is the ultimate accessory. That our hearts speak to each other when we are silent. That nothing beats coffee in the morning. That God just wants us to...
    esmeraldream esmeraldream 26-30, F 3 Responses 3 hrs ago

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    There name is Sprocket and Cog. They are so cute! They fill there cheeks full of food, and they have the biggest cheeks! When they get hungry they just pull out a seed and eat it...
    veeshybi veeshybi 18-21, F 24 mins ago

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    Just looking back at my life and I really don't remember having any friends. Sure i had people I knew and I get along with, but when it came to actually having memories of them, I...
    Inasda Inasda 18-21, M 2 Responses 5 hrs ago

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    After turning 14 years old ( where I have stopped on the previous part) , a lot of things has changed in me and in my life. I always believe that every human has his own circle...
    Bash94 Bash94 18-21, M 1 hr ago

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    I just checked my last story I posted and its almost been a year sense I have been on this site! Maybe its a sign I shouldn't work two jobs?
    starlight721 starlight721 18-21 6 hrs ago

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    I have had FMS since I was 8 years old. It gets worse with the years. I've had to give up my dream of having children, a career, a full life. I don't think I can live the rest of...
    softbunny6 softbunny6 26-30, F 4 Responses 6 hrs ago

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    She and the neighbor's dog dug a hole under the fence so that each has access to both yards. That's how they got hold of and are constantly fighting over Peanut Bear. That's a...
    TheBadgeringWitness TheBadgeringWitness 70+ 1 Response 6 hrs ago

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    My dad picked my first name and my mother my middle. My dad said he wanted his princess to have a unique name, because she'd be a unique young lady. What people don't know is that...
    BrohovahsWitness BrohovahsWitness 18-21, F 5 hrs ago

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    It's My Fault - I couldn't help it, I became a control freak and I tried controlling my friend's character and tried making them do what I wanted. It's just well, i'm a...
    Monstermaster13 Monstermaster13 22-25, M 1 Response 5 hrs ago

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    I think I have "cured" my brother with his heartache! I feel so proud and happy for myself and him :)))
    CatLikeCub CatLikeCub 13-15, F 5 hrs ago

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    Well, you may say it is not a big deal and it is ok but I really do not like when people say; it is ok you are young, move on I wish I am that young! or you are too young to feel...
    lonelytone lonelytone 31-35, F 4 hrs ago

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    I can't be the only guy to have ever wondered this.
    MetalM4tt MetalM4tt 22-25, M 3 hrs ago

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    I have a boyfriend but I really like this guy. But he has a girlfriend. I think the other guy is better for me in general but he really likes his girlfriend. I also don't mind his...
    LittleMissUnknown LittleMissUnknown 16-17, F 2 hrs ago

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    SomedaySomeday you’ll gonna realizeOne day you’ll see through my eyesBut then i won’t even be thereI’ll be happy somewhereEven if i can’tI knowYou...
    Lightsinmotion Lightsinmotion 70+ 2 hrs ago

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    I have borderline personallity disorder and recently begun self medicating with dxm
    EmurdA EmurdA 22-25, M 2 hrs ago

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    i have gastroeritis i found out from the doctor
    MariaDawson MariaDawson 70+, F 1 hr ago

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    When I was 20 I was diagnosed with GAD i went through a year of therapy (CBT) I've had hypnosis and I've been on beta blockers and anti depressants to try to help me over come my...
    peacefulstorm peacefulstorm 22-25, F 1 hr ago

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    Here is my beautiful fantasy of you of this very moment: Myself and you. Here. Now. In this exact setting on this very day. We are naked together and reclining on this couch...
    saturnsdaughter saturnsdaughter 26-30, F 1 hr ago

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    Anxiety literally destroys my mind. My mind is constantly racing with negative thoughts and I can't help it. I'm always up late at night just worrying and creating problems in my...
    megtayl0rr megtayl0rr 16-17, F 1 Response 25 mins ago

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    I love the feeling of love and have genuinely been in love twice in my life so far. I love the feeling of being cared for and being intimate with someone. It makes me feel whole...
    AikaMelodia AikaMelodia 16-17, F Mar 24

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    So I'm a guy, and I have feelings for this other guy. And all the time I wish I could just tell him how I feel but I can't. I write my feelings down on a notebook and get rid of it...
    Iamsolonely96 Iamsolonely96 18-21, M 1 Response Mar 24

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    My boyfriend rifles through my things. He comes across a box of random things, pictures, memos, trinkets. He lifts up a laminated funeral program. 'Who is this, Who?' The program...
    WhoAmI613 WhoAmI613 22-25, F Mar 24

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    I mean, I may shower the person spit (on the account that I stutter when I have to apologize, in which case, I'll have to apologize for that as well O_O), but when I'm wrong, I'm...
    Whoami30 Whoami30 26-30, M 1 Response Mar 24

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    I skinny dipped it was great felt good o have no clothes clingin to me from the water
    LaTeAssassin LaTeAssassin 16-17, M 1 Response Mar 24

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    everyday of my life until I got lazy and stopped working out. I still get told they change color (it depends what shirt I wear, and the quality of sleep I got). I can't wear the...
    ksup ksup 31-35, M 1 Response Mar 24

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    I am 20 years old and on Thursday I am getting my ovaries removed I have had 7 surgeries in the past 8 years to remove my ovarian cyst and they continued to come back. Im scared...
    valenballerina valenballerina 18-21 Mar 24

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    Its one thing to always demand respect in the household,but its also based on a give and take type of thing...I live with my mother and her boyfriend who acts as if this house is...
    Natashachetty Natashachetty 22-25 Mar 24

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    I have a perfect big *** and I am proud of it.. squats are my best friend.
    krorenae krorenae 18-21, F 5 Responses Mar 24

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    Ever since i was little i knew i was a little different the biggest tale tale sign was that i am left handed and taste in clothing music hobbies and interest, later in life i...
    Carmen45 Carmen45 18-21, F Mar 24

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    Hi people, so i have another ep account, but decided to make this new one cos that one i wasnt really able to post any stories in.
    ssaaraahh ssaaraahh 18-21, F 1 Response Mar 24

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    Craving them, though. 18th birthday, of course. It seems to have become a tradition, now. I'm not sure what I want it to be though. I for sure what a tree on my back and an...
    Naxxaras Naxxaras 16-17, F 1 Response Mar 24

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    I had a very wierd dream yesterday. I dreamt i was in the bathroom with my cat (i dont really have a cat just in the dream) and my mum was knocking on the bathroom door saying r u...
    ssaaraahh ssaaraahh 18-21, F 3 Responses Mar 24

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    So I have depression. Is it not the most ****** up, confusing illness of all time! Why do I have this?
    mingerama mingerama 22-25, F 1 Response Mar 24

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    One of the worst things about insomnia: When you go to school and you feel like **** for the entire day because you haven't had any sleep.
    Pfchangbitches Pfchangbitches 36-40, M Mar 24

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    I feel terrible about my mood swings and how much trouble it must cause for my boyfriend. He knew from the begining that I have constant mood swings but I was diagnosed just...
    harjotmehesh harjotmehesh 16-17, F Mar 24

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    So a short school holiday is coming up and my wife will be visiting my in laws for two days next week. My older daughter will be at her mom's for the holiday so that leaves me home...
    G1One G1One 31-35, M 4 Responses Mar 24

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    i struggled with cutting for years (2007-2010)i never had noticeable scars. i stopped cutting for 3 years with only a minor slip up twice. in october i started cutting again and...
    jnenifer jnenifer 18-21, F 2 Responses Mar 24

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    Actually i really could use someone to talk to...I live in a chaotic home exposed to so much disorder and inconsistency. I haven't had a compulsive episode in a while. I resist...
    Kryste Kryste 18-21, F 1 Response Mar 24

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    I have just been put on 10 sodium tablets per day. This is apparently meant to help my POTS, has this worked for anyone else?
    justplainhollyjayne justplainhollyjayne 13-15, F 1 Response Mar 24

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