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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 66-70 May 16, 2012

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    Related Experiences

    For the past few years, I have been on a quest to be happy. I was actually catapulted into this quest by a dear friend I met on here four years ago and still text daily. I...
    ANewCreation4Him ANewCreation4Him 36-40, F 11 mins ago

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    I also have no friends because of my bpd. I want to be normal and I can't be.
    biwetgal94 biwetgal94 18-21, F 41 mins ago

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    Me and my ex girlfriend both have bpd. I could only attach to her and understand her and I actually felt everything with her like my bpd wasn't there you know? She couldn't give...
    biwetgal94 biwetgal94 18-21, F 42 mins ago

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    It says so on my medical records. I get incontinence pads from the NHS continence service. My incontinence and enuresis is caused by my diabetes and is not curable so I will have...
    Stillwetshisbed Stillwetshisbed 46-50, M 1 Response 45 mins ago

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    I had a talk this morning with my husband and his words to me was I didn't have the affair I know what it looks like but I didn't have the affair. you are gonna be the reason we...
    unhappywife16 unhappywife16 41-45, F 1 Response 54 mins ago

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    Her name is Nichole, but she's been Nix to me for as long as I can remember. It's hard to describe to anyone else how close we are, how well we mesh together... But it's like...
    Songsinshadow Songsinshadow 18-21, M 1 hr ago

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    And, not that long ago I was known to have howled at the moon.
    Thisis4fun Thisis4fun 56-60, M 2 Responses 1 hr ago

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    I have a southern accent because I live in Michigan how does that work
    fiberjackto45 fiberjackto45 16-17, M 1 Response 1 hr ago

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    I had an epiphany today. Already. 7:30 in the mornin! I hadn't wanted to move on before (past few months) because it's scary. I didn't know what was ahead, what would happen in my...
    Lilcuppa Lilcuppa 70+, F 2 Responses 1 hr ago

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    It's been a week and I'm still reading my husband's emails that comes from her. Will it ever stop? I see she's hurt. I don't feel satisfaction I just have this shaky feeling...
    poppingcandyrulez poppingcandyrulez 36-40, F 2 hrs ago

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    i just got into a college, i met this senior, he seems fine and kind of cute. we used to say "excuse me" or "sorry" whenever we passed by senior. this senior always smile and say...
    shalleo shalleo 16-17, F 2 hrs ago

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    Anyone on here ever go through that time in phy ed where they chose teams and you wondered if you were ever going to be picked. Looking back on it I should have refused to...
    tastyfrzz tastyfrzz 46-50 2 hrs ago

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    And everything about it is awful. The men are disgusting, the women all love the same things, the questions hurt more than help, and plenty more. For the men: What the hell is...
    Moostachio Moostachio 26-30, M 2 hrs ago

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    I'm 13 and for the past few months I have had a crush on my half cousin and he's 17!!
    aimee2002williams aimee2002williams 13-15, F 2 hrs ago

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    my roommate had sex with my girlfriend and came iside her. she got into bed with me and placed my penis at the entrance of her vagina. should I have entered her? would it have...
    Jason267842 Jason267842 22-25, M 2 Responses 2 hrs ago

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    I have spent 3 years on and off with my ex. When we first dated it was 5 months of joy, then she broke up with me a week before we moved into a new place. I was crushed and...
    timthomp timthomp 26-30, M 1 Response 2 hrs ago

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    These past few days have been crazy. The excitement of my new job offer and then the nightmare of a "pregnancy scare" that I have just gone through has sent my emotions spiraling...
    Kriyash Kriyash 22-25, F 3 hrs ago

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    I work nights all the time so I have to sleep through the day but when I have a day off and sleep at night it messes everything up :(
    Lilkittenn Lilkittenn 22-25, F 1 Response 3 hrs ago

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    often i have a switch, my husband prefers this discipline... he has switches of every kind... and it is a very hard punishment on the bare!!!
    laurettalauretta laurettalauretta 41-45, F 2 Responses 4 hrs ago

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    I'm on my second marriage and they've both been hell. Every person I've tried to have any kind of relationship with has hurt me. I have no family and no friends. I am alone in this...
    drag0nf1y1 drag0nf1y1 26-30, F 4 hrs ago

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    Have you ever felt scared? Of course you have. Everyone has. But I mean all the time. Uneccassarily. The worst part is you never understand why. It's stupid. The way we wake...
    BrokenArrow90 BrokenArrow90 13-15, F 3 Responses 4 hrs ago

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    If I not crazy to have kids in the first place why your keep reinforcing me over and over to have one.
    sham17 sham17 26-30, F 4 hrs ago

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    I have been incontinent for some time now. Rather than risk wet pants I decided to start wearing nappies all the time. I was wearing them at night in any case as I wet the bed. My...
    Stillwetshisbed Stillwetshisbed 46-50, M 5 hrs ago

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    Everything changed when I started talking Vyvanse You know how people will occasionally see things that aren't there in the dark? Usually it might just be the fact that there's...
    dbCat dbCat 18-21, M 5 hrs ago

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    I have been back in nappies all the time for two years now as I am incontinent.
    Stillwetshisbed Stillwetshisbed 46-50, M 5 hrs ago

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    I have a crush on one of my guy friends in my circle. X_______X. He's really really cool....but he must NEVER know who he is lol. *Slides into the shadows*
    PrinceStrawHat PrinceStrawHat 18-21, M 5 hrs ago

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    OK, sometimes it’s easier to give advice that to take it, but I could use your input if you have any experience in dealing with DUI’s and/or violating the terms of your...
    craigp572 craigp572 51-55, M 5 hrs ago

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    I have reactive Depression that kicked in when my Dad was diagnosed. Things got even worse when my Mum left him for an alcoholic who uses her for sex. My family have fallen apart...
    tinyheart8888 tinyheart8888 18-21, F 1 Response 6 hrs ago

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    I am female and thinking, if I was a man I wouldn't have to deal with a menstrual period every month like right now. And I have cramps too + bloated + period headache + cranky...
    FantasticMe FantasticMe 46-50, F 3 Responses 6 hrs ago

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    If you don't have a patient heart it's possible to argue anytime with anyone from around ..
    Narkotyk Narkotyk 22-25, F 6 hrs ago

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    Always. I have to keep myself busy and entertained so my thoughts don't get to me. Adrenaline has been bothering me for a while, but it's the good kind. It's because im trying so...
    anonamanda001 anonamanda001 18-21, F 6 hrs ago

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    In real life, maybe 1 or 2. Online, 2 or 3. In person, i feel judged on how i look because many of us "judge a book by its cover" without realizing it. Online, all i have to do...
    MeeeKazz MeeeKazz 16-17, F 7 hrs ago

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    I'm so sad right now. My mind is ok but my heart is torn apart. I have no urge to talk because I barely feel alright. I'm just waiting it out till it goes away. I could use some...
    christasocal1 christasocal1 22-25 2 Responses 7 hrs ago

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    I wish things would've worked out. I see people and wish i have someone who will love me just as much as i love him, who will appreciate and understand me. Someone who will give...
    CrystalSekhmet CrystalSekhmet 22-25 7 hrs ago

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