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I Have Hemangiopericytoma

A Hemangiopericytoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemangiopericytoma. You're not alone. 16 People

    Life Is A Dream Till Confronted With Mortality.

    I only discovered the 5lb hemangiopericytoma, rooted in the psoas muscle which runs down along the spinal column, after it started pressing in on other organs and began causing me some discomfort. I was fortunate in that I was able to go straight to the Mayo Clinic. They were...
    clanritch clanritch 61-65, M 1 Response Jun 26, 2013

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    Pelvic Hemangiopericytoma

    A little over a year ago I developed severe bladder contractions.  After months of discomfort, doctors ordered ultrasounds, a CT scan, and a MRI.  The bladder showed no abnormality.  However, a mass was located "near the ovary".  I was told to...
    amcjos1029 amcjos1029 26-30 1 Response Nov 18, 2010

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    So Young.....

    My story begins in December of 2007. I am 24 yrs of age and I a married and have  a 6 yr old girl and a 3 yr old girl.  I am sharing my story not only to see if there are others out there like me but also for future information for others. I had went to...
    Amanda83 Amanda83 22-25 Jul 30, 2008

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    It Is Just a Lipoma!

    Hello,       I have just recently had hemangiopericytoma remove from deep in the muscle on my left shoulder.I was told for two years that it was just a lipoma not to worry if it isn't bothering you just let it be.Well in July of this year it got so sore...
    wvstewartfan14 wvstewartfan14 41-45, F Sep 23, 2009

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    My Husband Had Hemangiopericytoma For About 15 Years

    Starting in 1997 my husband had brain surgery that was not diagnosed as hemangiopericytoma.  Possibly at that time it was not.. In 2005 he had Gamma Knife surgery to hit 3 small tumors that returned.  His last MRI was 2006.  In 2008 he had a seizure that led Drs. to find 15...
    Barbamiller6 Barbamiller6 70+ May 16, 2012

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    It's Been More Than 20 Years Ago

    It was misdiagnosed for about a month, first as a flu bug that I could not kick and then as appendicitis after being admitted to a hospital.  It came with night sweats, chills and uncontrollable shaking at night.  The first surgeon believed he was removing my appendix...
    Californian Californian 56-60, M 1 Response Apr 14, 2010

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    Still Suffering

    I WAS MISDIAGNOSED WITH MEDULLABLASTOMA WHEN THEY REMOVED MY BRAIN TUMOR, 3 YEARS AGO. I REMAINED VERY ILL AFTER COMPLETING 30 RADIATION TREATMENTS AND THE DIAGNOSIS WAS CHANGED TO HEMAGIOPERICYTOMA- 1 1/2 YEARS POST-OP. ICAN'T GET A STRAIGHT ANSWER FROM ANYONE ON WHAT MY FUTURE...
    jen42 jen42 41-45 Aug 8, 2009

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    Related Experiences

    I'm not in anyway socially, financially, or mentally deprived. I live with an average family. Thinking I have nothing to complain because some were even less fortunate than me...
    DreamerCost DreamerCost 16-17, M 10 hrs ago

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    i was diagnosed of hep b in 2009 while i was in the university.. i constantly felt sick in the year 2006, when and how i had it i dont know. since 2011 i have been having series of...
    nanacquah nanacquah 26-30, M 1 Response 17 hrs ago

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    The truth is: I dont like my boyfriend. We have known each other for 5 years and yet I havent caught one inch of feelings for him. I was forced into this relationship because he...
    AnimeFan90210 AnimeFan90210 18-21, F 1 Response 21 hrs ago

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    So apparently I have what's considered a "big butt". I have a 94cm hips and People at my school, especially the guys, tell me I have a nice a$$ and some girls tell me that they...
    kalaniesmommy143 kalaniesmommy143 13-15, F 2 Responses 12 hrs ago

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    I've had a crush on him since summer. We're just friends though. I was with his former best friend for a little. and he dated a girl that used to be my friend. And she almost dated...
    cemarie128 cemarie128 18-21, F 1 Response 5 hrs ago

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    Hi all, well so new to this site, I thought I'd just get this off my chest and see where it takes me. I'm a 48 yr old guy from Brisbane Australia and I have a few tales to tell...
    grayarea66 grayarea66 46-50, M 4 hrs ago

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    I can't deny it anymore. Even though I've been involved with my current girlfriend for 7 years I have to admit I have a huge crush on a co-worker. I can't take my eyes off her when...
    Dreamer19845 Dreamer19845 26-30, M 2 Responses 2 hrs ago

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    I was one of those lucky kids who got to have a cousin as a bestfriend and it actually wasn't one of those "we're only friends because we're cousins", but we actually just had so...
    landhoee landhoee 18-21, M 2 hrs ago

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    I am an extremely high functioning psychopath and no one knows what that actually means. I hate when people use the term sociopath and psychopath synonymously. A psychopath has...
    Siarnaq Siarnaq 16-17, M 1 Response 1 hr ago

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    My whole life ive always had pets and they were always there when unreliable people stabbed u in the back and lied to ur face and etc...i think i would be truly alone and depressed...
    RedBats RedBats 26-30, M 2 Responses 48 mins ago

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    I saw my best friend take suicide in front of me. He was 16 and handsome. Suicide doesn't kill someone, its sadness. Being judged Feeling like you have no one Suicide is being...
    ILYBlackVeilBrides ILYBlackVeilBrides 13-15, F 13 hrs ago

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    I have the weirdest dreams ever that I have to write about them because they are so interesting. I have written a lot that I'm almost finished with my journal. -SG
    StRiKiNgEEk StRiKiNgEEk 18-21, F 1 Response 6 hrs ago

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    This is crazy to me. But here's goes my first official boyfriend in HS... Omg I was head over heals and we were perfect for each other... Flash forward to home coming his junior yr...
    thegirlWHOwait3d thegirlWHOwait3d 31-35, F 4 hrs ago

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    Since I was born I have had hazel eyes with a brown slash through the right eye. Whenever I met someone new they would say "you have something in your eye" and I would have to...
    nvboom nvboom 16-17, F 1 Response 2 hrs ago

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    I have something called "Frenulum Breve" and "Phimosis". having those conditions make it impossible to have sex. Becoming 30 years old this year would make me sort of a 30 year old...
    MAGH2 MAGH2 26-30, M 44 mins ago

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    I was at my aunt house and they had cook fried chicken macaroni ribs and other stuff like that and my belly was hanging out they whole time when we finished we were about to leave...
    Fatjigglybelly00 Fatjigglybelly00 13-15, F 4 Responses 19 hrs ago

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    I have a difficult time working because of my social phobia and anxiety. I have a great personality friendly kind and funny but my anxiety holds me back from so much. I figured i...
    tb2985 tb2985 26-30, F 3 Responses 19 hrs ago

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    Hello, I just had a nightmare. I am typing this as I just woke up. So I can remember most of the details. I went to my old school for lunch, I did not have a reason but I did...
    Toastland Toastland 13-15, T 1 Response 17 hrs ago

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    Theories I have, yes. But I will not type them under this subject. I will say that if anything, I'd rather fade into non-existence, I don't want to feel after I die. All I'll have...
    GrimAndInUtterDismay GrimAndInUtterDismay 13-15, F 15 hrs ago

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    I was in the 6th grade the last time I went to a youth camp. After that I wen to a public school for the 7th grade. A public school where students are smart. That time, my faith in...
    smferanil smferanil 13-15, M 1 Response 15 hrs ago

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    I am so happy to have Friends who really care about me and who I really care about them too I love to have friends and if you want to be my friend come on and be my friend and talk...
    JadelynThompson2121 JadelynThompson2121 13-15, F 13 hrs ago

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    I have one friend and I am so blessed to have her. She's the sister I never had 👯💁👑
    Shygirl917 Shygirl917 18-21, F 13 hrs ago

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    We all have a choice in life. We just have to make sure we make the right one.
    deviness deviness 13-15, F 10 hrs ago

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    After over 20 years and 3 doctors later, they finally figured out which autoimmune disease I have. I'm lucky that I am in remission right now but it has affected my kidneys. I have...
    Booksaremypassion Booksaremypassion 41-45, F 1 Response 9 hrs ago

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    I'm new here and I just really wanna let this out, and maybe get some advice. So, my mom and I are extremely close, she is my bestfriend. I live with my mom and my dad lives in...
    xoxocs xoxocs 16-17, F 9 hrs ago

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    That's the one flaw I think I have. I won't get into details, but I have this rage inside that stays with me all the time. I just control it, like Bruce Banner. I'm always angry...
    BobFrost BobFrost 36-40, M 9 hrs ago

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    I have a confession to make. I am having an affair. Yes, it's true. I have two lovers. One is the undeniably successful, practical, reasonable, and ever-attractive science...
    shannonymous shannonymous 18-21, F 5 Responses 6 hrs ago

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    Me and my best friend have been very close for a while and our conversations get very sexual and we know everything about each other. What makes our friendship special is that...
    Diggerzdabeast Diggerzdabeast 16-17, M 1 Response 4 hrs ago

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    Since im only working one part time job at the moment and only have three weeks left in this semester of college I honestly have entirely too much free time and I really dread it
    ryanw93 ryanw93 18-21, M 1 hr ago

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    What can I say… I am fair skin and for a mature person have a nice smooth Bum. I don’t have hair on my body naturally. But I will say my *** is good…Lol did I say that?
    NigelGG NigelGG 41-45 1 hr ago

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    I have never truly came out about my eating disorder. I have been on and off with anorexia for a while. I recently became bulimic and I also binge eat a lot. I'm 17 and gay and...
    rchris96 rchris96 16-17, M 1 hr ago

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    I have never told anyone about this. It happened when I was on vacation. I had a boyfriend that time back home, but he had some trust issues. Until one time, we fought and I ran...
    chocofrappe249 chocofrappe249 22-25 27 mins ago

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    I feel like whoever I talk to, whether it be teachers or acquaintances or people on EP or even best friends, that i'm just being a burden on them. In my head, I believe that they...
    urbanparadigm urbanparadigm 16-17, M 4 Responses 21 hrs ago

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    Hie girls 7AF7515B this is my bbm pin add me looking forward to get many pings now lol :P lets chat and have fun :-)
    Rocko989 Rocko989 18-21, M 20 hrs ago

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    I have a really big crush on this vine famous. He's got tattoos on his arms, likes hardcore, super hot, funny, still hot even when he's making ugly faces and I can't help it...
    ancllevyn ancllevyn 16-17, F 1 Response 20 hrs ago

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    Ok here it goes..... I'm more than your slave, your baby, your sugar or your toy. I have feelings too. Sometimes I would like to meet someone who would just listen to me and be my...
    kimmerzwth kimmerzwth 18-21, F 2 Responses 20 hrs ago

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    I had chronic nausea in High school. Waking up every morning was really difficult, ending up in puking 65% of the time. I'm in college now and it came back.. except this time...
    adorablesarah adorablesarah 18-21, F 18 hrs ago

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    I have so many scars on my body I've lost count. I've battled self injury since I was thirteen, now 22 and I can still remember why each scar is there. I wish I could erase them...
    CatRescuer22 CatRescuer22 18-21 2 Responses 18 hrs ago

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    What do you do when you have a really vivid dream about a girl you used to see? :( Now I know I'm going to feel sad all day
    Devilscar Devilscar 18-21, M 2 Responses 17 hrs ago

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    I want to document every single thing that happens so he can know. Idk if I'm the only person who does this. But I wrote him yesterday, and I can think about 10 more different...
    xoxowilson xoxowilson 18-21, F 2 Responses 14 hrs ago

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    21 year old guy in Minnesota. i have always wanted to help a thin girl get fat . if any girl age 16-23 that lives in Minnesota and is looking to gain message me
    unreadchief92 unreadchief92 18-21 12 hrs ago

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    21 year old guy in Minnesota. i have always wanted to help a thin girl get fat . if any girl age 16-23 that lives in Minnesota and is looking to gain a belly for bikini season...
    unreadchief92 unreadchief92 18-21 12 hrs ago

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    Summer. Hot. Urgh. Where's that big shady tree?... Autumn. Yes! Wonderful. *Jumps on leaves...rolls around* *sniffs air* AH. Oh I love the fall. Winter! Brrrrr. Cold. *snuggles...
    FangsAndFurs13 FangsAndFurs13 18-21, F 12 hrs ago

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    Please nothing too personal:) Private Message me if you have a question:)
    ashley359 ashley359 13-15, F 1 Response 11 hrs ago

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