I Have Hemifacial Microsomia

Hemifacial Microsomia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemifacial Microsomia. You're not alone. 38 People

    Hi :)

    My name is Ricki Miles, 32 year old male. I'm Cherokee, have long brown hair, brown eyes and a little tiny right ear and sunk in right jaw. I was born without my right jawbone and my ear never developed either. I had surgeries as a kid, first one when I was about 9 where they...
    RickiMiles RickiMiles
    31-35, M
    1 Response Aug 23, 2013

    Hi:)

    hi everybody :)  im 28 old female with hfm  :(  i was diagnosed 3 months ago.before i never seen a doctor about it :(  i always know that is something wrong with my face ,because i notice  im asymetrical , but my family was poor and patological (alcohol...
    microsomia microsomia
    26-30, F
    7 Responses Apr 26, 2010

    Mystory...

    Wel, as a baby, i was diagnost with hemi facial micro somia And, it effected my entire life.Ive had Nine Surgerys on my face Each one was a struggle for me, i have 3other sibblings My oldest brother19 and the twinns are both 15 ,so im the middle child, the second oldest, ive...
    nitaaluvss nitaaluvss
    18-21, F
    2 Responses Mar 12, 2012

    I didn't understand my asymmetrical face

    until age 47 when the larger right side started sagging from age and people kept telling me to smile all the time. I also had lower facial nerve palsy on the small side of my face which made my smile lopsided or as some of the medical professionals call it "a grimace" instead...
    cbaker2008 cbaker2008
    61-65
    1 Response Jun 12, 2014

    I Have Hemifacual

    hey my name is Ashtyn Mooso. i have Hemifacual Microsomia and i have had surgreys my whole life. im currently miss teen idaho falls and i want to spread the word about Hemifacual to the world, little by little. i started a Facebook account named Hemifaual Microsomia. please like...
    Hemifacialmicrosomia Hemifacialmicrosomia
    16-17
    4 Responses Oct 29, 2011

    Teenagers & HM

    Well, im 18, i have big blue eyes and long brown hair, but no one would know the left eyes fake! I am, like many with HM, blind in the left eye, and deaf in my left ear. Yes, like anybody else, I hate looking different, but if someone were to ask me if i could change it...idk if...
    Carter979 Carter979
    26-30, F
    1 Response Feb 28, 2013

    Chan Has Hemifacial Microsomia

    Hello!  I am a mommy of a 2 year old who has Hemifacial Microsomia.  I have shed so many tears and I would really love some contacts and support to share my fears, tears and joy with.  I have done so much research but would love to have some real life people to relate to...
    chanman1 chanman1
    31-35
    3 Responses Apr 13, 2012

    ...

    I'm fifteen and I just found out there was a name for what I have. I didn't even know I had anything
    mcc14015 mcc14015
    13-15
    1 Response Jan 25, 2011

    My Addie And Hfm

    My daughter was born 5 years ago, and after a week in the NICU she was diagnosed with HFM. Addie's case is more severe than other cases. She has no right ear, her right eye is smaller, and she had no right mandible. After 2 rib grafts, and a distraction surgery, Addie received...
    Addiesmom Addiesmom
    31-35, F
    Aug 12, 2012

    I Have Hfm Too

    Hey, my name is Becca. When I was in the third grade I was diagnosed with hemifacial microsomia. Immediately I went to the doctor to get it all checked out. 4 surgeries later and I have new outlook on life! If anyone wants to chat about it let me know! I'm open to talking about...
    beccacro beccacro
    18-21
    4 Responses May 17, 2012

    my baby has been diagnosed. Need support

    Hi everyone. Not sure where else to turn too as I need to know what to expact. my 13m old baby girl has just been diagnosed with Hemifacial Microsomia and microtia, both are very mild when looking at her but her jaw is quite twisted. I fear for her teeth comming through and being...
    naysmum naysmum
    26-30, F
    8 Responses Mar 12, 2012
More Stories