I Have Hemihypertrophy

Personal Stories, Advice, and Support 29 People

    My Legs

    I was born with hemihypertrophy. The doctor in my small town had never seen these symptoms before and i was wrongly diagnosed, but for what i forgot. By the time i finally got treatment, my left leg was just over 6 cm longer than my right and i had to have an Ilizarov frame on my...
    crazymonkey88 crazymonkey88
    13-15, M
    3 Responses Jun 21, 2012

    My Whole Life

    I was born with a leg length discrepancy...my right leg is larger than my left. I had to get CT scans and ultrasounds (to check for Wilms Tumor) up until my surgery. I recently discovered that the hemihypertrophy manifested in my pinky finger as well. It's kind of cute. I had...
    slamgirl78 slamgirl78
    18-21, F
    13 Responses Dec 2, 2009

    I haven't been diagnosed with Hemi

    but I'm pretty sure I have it. I'm a 17 year old girl and I do pay attention to my body a lot. About a year a go I really started to notice how my face looked in photos. My left side Is much smaller then my right side. I have braces and my orthodontics confirmed this because he...
    thaliatjan thaliatjan
    18-21, F
    1 Response Apr 16, 2014

    I was diagnosed with hemi at birth,

    I have now been living with it for 15 years, I have gone through multiple CAT scans and MIR scans and have had 2 operations. I have it from my hips down, it's always been hard because in my foot especially it's really obvious so hiding it from people can't be done, I've been...
    lxcymills lxcymills
    16-17, F
    Apr 16, 2016

    Adult With Hemihypertrophy

    I was diagnosed with Hemihypertrophy of the left hip before I was a one year old back in 1985. There were not a lot of Doctor's who recognized it at the time, but a Doctor in Portland Oregon helped my parents and I by not only diagnosing me with the condition but referring us to...
    MarieC85 MarieC85
    26-30, F
    6 Responses Jul 6, 2012

    Freshman In High School

    so im a freshman in high school and i have hemihypertrophy.. on my right leg up to my kidney. its so hard to find shoes and pants and i hate how people look at me like im a freak. i just hate this thing and i always ask myself whyme . i really think its ridiculous that i have to...
    briday15 briday15
    13-15, F
    2 Responses Dec 8, 2010

    I Have Hemihypertrophy

    I am 38 and live in the uk. By the time I was 11 my left leg was 6cm shorter than the right. I had it lengthened and was told by my doctor I was the first girl in the world to have my type of operation. A boy beat me. This annoyed me!!!!!!
    Clarevc Clarevc
    36-40
    Nov 6, 2012

    Hemihypertrophy Ruined My Life

    I was born with one side of my body bigger than the other, I spent a lot of my life in hospital getting my legs fixed. I hated being in hospital and developed a megacolon. Since the age of 11 the toilets have always clogged when I use them, my doctor says its due to my...
    plopking plopking
    61-65
    Apr 21, 2013
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